Re: (unknown)

[Guest guest]

Yowzah

Awesome

Yippee

Ooh Baby

(unknown)

Tabrina was asking for some joking out of her story. Here's an

idea.

Previouslynn wrote:

When I read all your posts I feel permission and inspiration to

use the thinking you use, the words you use. .....

My " challenging " person recently came up with a new phrase that

expresses frustration and impatience, and I felt very hurt. What

new phrase am I going to start incorporating in my days that

expresses undauntable positivity?

Todayslynn writes:

Yes, I want a long list of expressions! Personally I am thinking

of ones that express and create the senses of unflappability,

undauntedness, humor, perkiness, passion, excitement,

enthusiasm, etc. But there are other positive styles so dont let

me stop you with my style!

I notice that a lot of mine are short expressions that are simple

enough for a child to use. What are yours like?

Here are some:

Oopsie!

(this takes a " serious mistake " down to just a little fall as I

learned how to walk)

Cowabunga!

I'm into it!

You rock!

Me OK! ( again how can I be so serious when I am talking like a

kid?)

Yes!

Tabrina and everybody else, would you care to cut my list and

paste in more words until we get a Listo Magnifico? Adding to

the list could be fun despite your present story!

Love, Lynn

> > steve and heidi... That was beautiful heidi...

> >

> > Today my client who has been bedridden for 5 years.. sang a

song to

> me and i

> > wanted to cry... she used to sing opera...and also played

violin

> in Santa

> > monica

> >

> > I love life..

> > I want to live.

> > I love life..

> > I drink of lifes fullness

> > and take all it can give.

> > I love life.

> > Every moment must count

> > To glory in its sunshine

> > and reveal in its fount.

> > I LOVE LIFE (she sings in a strong voice.. at the end. )

> >

> > Shes had a stroke and sometimes I cant understand her but

I

> understood her

> > singing perfectly and she taught me the song.

> > When we sang--- her devoted cat left the room..so you can

get the

> idea we

> > sounded terrible... but it was fun..

> > I sang it with her.. but when i sang it didnt have the feeling

and

> conviction

> > she had... made me wonder... why does she whose been

bedridden for

> 5 years

> > love life.. more than I do..?

> >

> > This morning lying in bed she reminded me of mother teresa

... so

> frail and

> > really really cute... Honestly cute...

> >

> > WEll should i sing the song every day 15 times or what?

> > I'm going to do the work today... I dont worry about money.. I

try

> not to

> > even think about it.. but i worry about not being good enough

or

> failing...

> > so I can relate steve... well no new stories...

> > good luck steve...and thanks..

> > love, roslyn

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

> Todayslynn writes:

> Yes, I want a long list of expressions! Personally I am thinking

> of ones that express and create the senses of unflappability,

> undauntedness, humor, perkiness, passion, excitement,

> enthusiasm, etc. But there are other positive styles so dont let

> me stop you with my style!

> I notice that a lot of mine are short expressions that are simple

> enough for a child to use. What are yours like?

I often look to my cats for material.

Here's one my cats use to celebrate a recent visit to the litterbox:

" Prrrrrrrt! " (to be spoken while scampering like mad to no particular

destination)

I use it whenever I feel a sudden burst of anxiety or hurriedness, and it

helps me feel silly.

Love,

Bev

[Guest guest]

In a message dated 10/04/2003 17:56:44 GMT Standard Time, mervaz@...

writes:

> " When this drug forms a Schiff base on amines expressed on antigen

> presenting cells APC and helper T cells (Th), it mimcs Schiff base

> formation between constitutive cell-surface ligands to enhace

> co-stimulatory signaling and promote antigen-specific stimulation of Th

> cells "

>

> What's mimcs?

Mimics?

Kinory MITI

[Guest guest]

If you want to hug go see Ammachi...you will know what it is like.

(unknown)

> Carol, hugging BK sounds real interesting, I hope I experience it someday.

> , I agree, no point searching for " deeply buried stuff " , it will show

up (if it exists) when we're ready. Except if I or whoever speak as if I

were clear, at-one with myself. Then I find it useful to check on.

Ultimately of course it's only my stuff and self deceit that I need to deal

with.

> Yes, and the work too can be used to keep that stuff buried. A friend of

mine was doing the work with his daughter, and " Who would you be without

that thought " got the answer " In denial " . LOL.

> In Helen's inquiry circle in London we did " I should be more successful " -

did that hit home, I guess that's what many of us are led to believe, I

really saw how much I bought into that belief. And a couple of days later I

felt a glow all over which affirmed, " yeah, I'd love to be more successful,

that feels really good " . It was very helpful.

> Jan, yes, I noticed which points go ignored. I thought Red's scenario was

very plausible and deserved a response.

> Thanks for the info on Trish - after all these years, there's only one who

made it? God knows how she's supposed to describe that, I'll check it out.

Did someone say they didn't believe Trish got it?

> Well, that took my mind off those sensations I've been calling terror, and

now call pain, grief whatever, and now I've stopped distracting myself, here

they are again, I wonder if I could roast some chestnuts on the fire? Tim

>

>

>

>

>

>

> ---------------------------------

> It's Samaritans' Week. Help Samaritans help others.

> Call 08709 000032 to give or donate online now at

> http://www.samaritans.org/support/donations.shtm

>

>

[Guest guest]

(unknown)

>

>The Californian Registry will be publishing a FAX on LBD. To see a preview

>of it go to

>>

>>http://www.calregistry.com/dyk/lbd.htm

>>

>>

>>Once again, this was thru the good work of Courage . Thanks Courage!!!

>>Imelda

>

>

>To learn more about Lewy Body Disase, please visit the Lewy Body Disease

>Association site at: http://www.lewybodydisease.org

>

>

>

>

>

[Guest guest]

I'm the same way, Elyse! I naturally acquiesce to anyone in authority,

including police officers, firemen, teachers, bosses, ministers,

postmen, meter readers, you name it. Basically, I've always had a

difficult time drawing the line between standing up for myself and

respecting authority. Perhaps I translate everything into " authority " ,

so I have an excuse not to stand up for myself? Does this make any sense?

Interestingly, I can teach a class of adults and be totally at ease and

" in my element " , like water to a duck. Yet, on the job, I have to put

tons of mental and emotional effort into keeping myself balanced, so as

not to say something I'd be sorry for, and to not have a " bad attitude " .

As for bosses, I've always been much more comfortable with male bosses

and teachers.

SmileS!

Carol

Elyse <VwaLuhh> wrote:

>Anyone here have problems with authority figures...like bosses? I

>have total problems in that area...especially if the authority figure

>is female. I have quit my last 4 jobs ..all family businesses with a

>male & female in authority. I never lasted longer than a year. My

>latest job has no female in authority and I am going on my 14th

>month. I have just never been able to work with a female authority

>figure. Anyone else experience problems with this?

> It seems everytime there is a female in authority, I usually end up

>in conflict with her and assume the male authority will be able to

>see that she is wrong...and it never happens. And I end up

>quitting...and one time even fired (a total blow to the ego).

[Guest guest]

Gail

Sorry, have racked my brain and can't come up with the perfect gift to

give your dad...except the gift you are already giving him of spending

his birthday with him. I am sure there is no gift money could buy that

would be better than you being with your dad to help him celebrate.

I will look forward to hearing how everything went, when you return.

Still doing dances of happiness that you have decided to go, and have

made all the necessary arrangements!

Hugs-

Sandie

[Guest guest]

(unknown)

just wanted to thank all for the kind wishes and the emotional

support. this has been one of the most fascinating experiences of

my life, doing the work in tandem with this funeral and all the

baggage that has come with it.

the work has done wonders for my relationship with my step-son.

we always butted heads before because i was always judging him.

now i can just accept him. he spoke at the funeral, this wild

kid with the mohawk, the torn leather jacket, the attitude, the

burned-out druggie, and i totally loved it. i no longer attach to a

story that he should be different.

[FB] How very cool. Thank you for that.

he just seems great to me as he is. it has forged a much better

understanding between us and i am so glad i have had the work,

because it has enabled me to truly be here for these kids in a way

i never was before. i'm not needing to change them for me.

lol...

what a miracle

[FB] Just beautiful Tabrina. I'm moved to tears over here, like your

acceptance was directed right at me. Well done!

[Guest guest]

Thanks Gail for sharing with me and give me a nudge. I'm feeling more

positive about things this morning but it was hard shaking these depressing

thoughts off last night. I will try my very best when the time comes to be

strong for mom, my dad, my children, my siblings and for myself. I pray

that it isn't too close yet as I need to build on that strength.

Courage

(unknown)

>Courage,

>I think, if truth be told, we all think of our LO's last moments, and

>if we, the children, can " behave " in those last moments. Do I think

>about it, sure I do, even dream about it. The very first funeral I

>ever went to was my Mom's and to this day whenever I hear the Lord's

>Prayer sung I cry (that's 20 years). And thinking about it is a way

>of preparing for it, part of the mourning process. My wicked step

>mother wants to take my father's ashes to Arlington Cemetery, (the

>major military cemetery here in the States, and a place that he is

>intitled to be)the thought horrorifies me as I have never been able

>to enter the place without crying (used to do field trips as a school

>girl there every year). But I have gone as far as finding out the

>procedure of getting the ashes on the plane - send him through

>baggage so some gung ho, wet behind the years federal agent doesn't

>open the urn and Dad doesn't spend the rest of eternity in the air

>port air conditioning system, although he might like that he

>travelled all my life and I virually grew up in airports waiting for

>him. Can you picture the scene with SM, you bet I can, and it makes

>me smile. Reality isn't always fun, but I believe that it prepares

>us, and Courage, I have no doubt that you will " survive " this as you

>have the other trials, don't be so hard on yourself.

>Gail

>

>

>

>

[Guest guest]

Deb

Welcome to the group. I wanted to let you know we (the caregivers, and

who ever is able to attend) are having a first ever LBD Caregivers

Gathering scheduled for Friday, Saturday, and Sunday - August 15, 16,

and 17. It will be held in La Crosse, WI. It appears that wouldn't be

too far for you to travel, since you are in Michigan and I am sure you

would benefit meeting others traveling the same journey. We have a

block of rooms at the Super 8 Motel in La Crosse. If you are interested

in making a reservation, the phone number there is 1-.

Please remember to mention the LBD Caregivers when making your

reservation.

I can give you more details if you are interested in attending the

gathering. This is the first ever planned gathering, so the sky is the

limit. I have been fortunate to have met with 3 other caregivers, and

have talked on the phone with another 9 or so, reaching over to our

international members in Australia, Scotland, England, and New Zealand.

Hearing of others experiences confirms that we are not alone...it is a

comforting feeling, plus putting a voice and/or face to a name is

rewarding.

Hoping you continue to post here, and know that I will add you to my

prayers.

Sandie

Des Moines, IA

...dad, Merle passed away 9-20-02 of LBD

[Guest guest]

Dear Josie

I know EXACTLY what you are going through and my heart goes out to you and the

family.

My dad could not stand because he couldn't bear his own weight (and he was

skeletal!) but he had the grasp of the Hulk and strength in his arms to bend

iron bars! He too was 'insane' with fear, anger and helplessness. It was

heartbreaking - utterly devastating to watch.

Whatever happens - no matter what he says or does remember it isn't him but 'the

beast' masquerading!

You are in my prayers

I thank God you have the hospice. Unfortunately my dad was refused by our local

hospice because he was too violent and abusive and they didn't have the

one-to-one staff to accommodate him. I was very angry about that - in fact I

still am! Like everything else in life - you get good and you get not so good. I

guess I was bitterly disappointed because I knew my dad would die in hospital

without the additional 'comforts' hospice care can offer.

Take care of yourself

Sally xx

(unknown)

Dear , Kath, Courage, Susie and all:

My Mom, my daughters and I are home! My dad became agitated around 9

PM, his usual thing, and his heart started pumping, his body was warm

again and you could see he had good circulation to his extremities.

He had his usual bout of dementia. He is still very strong, he

grabbed and pulled my sister by the arm and dropped her --thank

goodness-- in a chair. My daugter was calling him " the come back

king " .

He is still very ill, but he may last another day or more.

Unfortunatelly, when he is lucid he is very upset. He cannot talk at

all and gets very emotional over anything.

My sister and brother in law are back in town and will take care of

most of the paperwork. The hospice services take care of all the

arrangements and have support for the surviving relatives.

We finally talked my mom into coming home this evening. The nurse

was very reassuring. She took our phone #'s and promised to call if

there was any change. She was so worried about my mom.

Thank you for all your messages of support and your prayers. We are

all very grateful.

Love and ciberhugs to all,

Josie

[Guest guest]

Josie, i just wanted to pass along that we're now at the same stage as you,

since last night granda has been having apnea every minute or so lasting about

30 seconds or more, he was put on morphine yesterday and they were using

diazipam(sp?) as a backup, the doctor was called at tea-time today and has

prescribed another type of morphine to go with the others.

We've been told that this is it now and that the combined meds will further

supress his breathing so it's just a case of sitting with him, sponging him down

and holding his hand and talking to him.

I'll keep everyone informed of what's happening and i pray he passes peacefully.

.xx

(unknown)

Dear , Kath, Courage, Susie and all:

My Mom, my daughters and I are home! My dad became agitated around 9

PM, his usual thing, and his heart started pumping, his body was warm

again and you could see he had good circulation to his extremities.

He had his usual bout of dementia. He is still very strong, he

grabbed and pulled my sister by the arm and dropped her --thank

goodness-- in a chair. My daugter was calling him " the come back

king " .

He is still very ill, but he may last another day or more.

Unfortunatelly, when he is lucid he is very upset. He cannot talk at

all and gets very emotional over anything.

My sister and brother in law are back in town and will take care of

most of the paperwork. The hospice services take care of all the

arrangements and have support for the surviving relatives.

We finally talked my mom into coming home this evening. The nurse

was very reassuring. She took our phone #'s and promised to call if

there was any change. She was so worried about my mom.

Thank you for all your messages of support and your prayers. We are

all very grateful.

Love and ciberhugs to all,

Josie

[Guest guest]

,

I'm sorry to hear your news. Will keep you and your family in my thoughts.

Re: (unknown)

Josie, i just wanted to pass along that we're now at the same stage as

you, since last night granda has been having apnea every minute or so

lasting about 30 seconds or more, he was put on morphine yesterday and they

were using diazipam(sp?) as a backup, the doctor was called at tea-time

today and has prescribed another type of morphine to go with the others.

We've been told that this is it now and that the combined meds will

further supress his breathing so it's just a case of sitting with him,

sponging him down and holding his hand and talking to him.

I'll keep everyone informed of what's happening and i pray he passes

peacefully.

.xx

(unknown)

Dear , Kath, Courage, Susie and all:

My Mom, my daughters and I are home! My dad became agitated around 9

PM, his usual thing, and his heart started pumping, his body was warm

again and you could see he had good circulation to his extremities.

He had his usual bout of dementia. He is still very strong, he

grabbed and pulled my sister by the arm and dropped her --thank

goodness-- in a chair. My daugter was calling him " the come back

king " .

He is still very ill, but he may last another day or more.

Unfortunatelly, when he is lucid he is very upset. He cannot talk at

all and gets very emotional over anything.

My sister and brother in law are back in town and will take care of

most of the paperwork. The hospice services take care of all the

arrangements and have support for the surviving relatives.

We finally talked my mom into coming home this evening. The nurse

was very reassuring. She took our phone #'s and promised to call if

there was any change. She was so worried about my mom.

Thank you for all your messages of support and your prayers. We are

all very grateful.

Love and ciberhugs to all,

Josie

[Guest guest]

, will keep you and yours in my thoughts and prayers.

Courage

Re: (unknown)

>Josie, i just wanted to pass along that we're now at the same stage as you,

since last night granda has been having apnea every minute or so lasting

about 30 seconds or more, he was put on morphine yesterday and they were

using diazipam(sp?) as a backup, the doctor was called at tea-time today and

has prescribed another type of morphine to go with the others.

>We've been told that this is it now and that the combined meds will further

supress his breathing so it's just a case of sitting with him, sponging him

down and holding his hand and talking to him.

>I'll keep everyone informed of what's happening and i pray he passes

peacefully.

>.xx

> (unknown)

>

>

> Dear , Kath, Courage, Susie and all:

>

> My Mom, my daughters and I are home! My dad became agitated around 9

> PM, his usual thing, and his heart started pumping, his body was warm

> again and you could see he had good circulation to his extremities.

> He had his usual bout of dementia. He is still very strong, he

> grabbed and pulled my sister by the arm and dropped her --thank

> goodness-- in a chair. My daugter was calling him " the come back

> king " .

>

> He is still very ill, but he may last another day or more.

> Unfortunatelly, when he is lucid he is very upset. He cannot talk at

> all and gets very emotional over anything.

>

> My sister and brother in law are back in town and will take care of

> most of the paperwork. The hospice services take care of all the

> arrangements and have support for the surviving relatives.

>

> We finally talked my mom into coming home this evening. The nurse

> was very reassuring. She took our phone #'s and promised to call if

> there was any change. She was so worried about my mom.

>

> Thank you for all your messages of support and your prayers. We are

> all very grateful.

>

> Love and ciberhugs to all,

>

> Josie

>

>

>

[Guest guest]

Josie, i know how you feel, for a fortnight there my granda was having severe

hallucinations inspite of the quetiapine(seroquel).

He would thrash about, cry, moan, they would sedate him but the sedation

wouldn't even touch him, it was a complete waste of time.

He would eventually tire himself out and drift off into a restless sleep only to

wake up again and for it all to start over again.

Don't know how today is going to pan out as granda hasn't been able to be roused

to even get morphine, he hasn't ate or drank in days and as you know there is no

time limit for dying, so we'll just take it as it comes.

Any news at all and i'll let you know.

.xx

(unknown)

>

>

> Dear , Kath, Courage, Susie and all:

>

> My Mom, my daughters and I are home! My dad became agitated

around 9

> PM, his usual thing, and his heart started pumping, his body was

warm

> again and you could see he had good circulation to his

extremities.

> He had his usual bout of dementia. He is still very strong, he

> grabbed and pulled my sister by the arm and dropped her --thank

> goodness-- in a chair. My daugter was calling him " the come back

> king " .

>

> He is still very ill, but he may last another day or more.

> Unfortunatelly, when he is lucid he is very upset. He cannot

talk at

> all and gets very emotional over anything.

>

> My sister and brother in law are back in town and will take care

of

> most of the paperwork. The hospice services take care of all the

> arrangements and have support for the surviving relatives.

>

> We finally talked my mom into coming home this evening. The

nurse

> was very reassuring. She took our phone #'s and promised to call

if

> there was any change. She was so worried about my mom.

>

> Thank you for all your messages of support and your prayers. We

are

> all very grateful.

>

> Love and ciberhugs to all,

>

> Josie

>

>

>

[Guest guest]

Josie & ,

The two of you have been in my thoughts so much lately although I have failed

to say so. It is a blessing that you both have found so much comfort in each

other. I have heard so many stories of miraculous comebacks by our LOs with

LBD. It is so cunning, leaving such heartbreak in the wake. My prayers are

for a peaceful passage for both your families. Josie, I am so glad your dad is

no longer angry. My mom has the same horrific hallucinations and has just

recently become violent. If your dad seems like a child, comfort him, rock him,

sing him a lullaby. I believe we come full circle in life, leaving with

purity and innocence. The time is approaching for the unbirth, just another

part

of the cycle of life. My only thoughts are to give my mother the security she

gave me as an infant, love without limits.

I always wonder how many I will see come and go in this group, as I wait for

the inevitable. I cried a few tears recently, wanting my mommy back, but I

know now, I will never know her that way again. So I will be the angel on her

shoulder until she moves beyond my reality, and give her the love I know she

gave me when I was helpless and vulnerable.

Today I am holding you in my heart up to the heavens, asking the Great Spirit

to surround you with the love of the universe and the beauty of the earth.

It is the closest we will get to the joy our LOs will receive when they are

released from this earthly nightmare. May the skies show you the light of the

future and the winds warm you with their gentle caress.

Much Love & Blessing to you both,

Betty

[Guest guest]

,

You may want to check this out:

http://www.lewybodydisease.org

Seems like we have people on this net in NC.

Donna

[Guest guest]

There are 2 groups- Love-to-debate and Debate_Everything. You can

bring up everything and anything. It is very stimulating for me. ine

Original Message:

-----------------

From: whittonangela@...

Date: Sun, 16 Jan 2005 17:31:09 +0000

To: AffirmationstoDe-Stress

Subject: (unknown)

<html><body>

<tt>

Someone from this group, I believe, mentioned a debate group that they were

in.  I sure would like to have the name of that group.  I joined yesterday

and than unjoined because I was confused and now I can't figure out what

group it was.<BR>

<BR>

Hope someone can help me out and Thanks in advance!<BR>

<BR>

--<BR>

-- Lynn <BR>

MSN Messenger: whittonangela@... <BR>

______________ <BR>

<BR>

" To be grateful is to recognize the love of God in every- <BR>

thing He has given us - and He has given us everything. <BR>

Every breath we draw is a gift of His love. " <BR>

<BR>

- Merton <BR>

<BR>

[Guest guest]

Thank you ine.

--

-- Lynn

MSN Messenger: whittonangela@...

______________

" To be grateful is to recognize the love of God in every-

thing He has given us - and He has given us everything.

Every breath we draw is a gift of His love. "

- Merton

--------- (unknown)

<html><body>

<tt>

Someone from this group, I believe, mentioned a debate group that they were

in. I sure would like to have the name of that group. I joined yesterday

and than unjoined because I was confused and now I can't figure out what

group it was.<BR>

<BR>

Hope someone can help me out and Thanks in advance!<BR>

<BR>

--<BR>

-- Lynn <BR>

MSN Messenger: whittonangela@... <BR>

______________ <BR>

<BR>

" To be grateful is to recognize the love of God in every- <BR>

thing He has given us - and He has given us everything. <BR>

Every breath we draw is a gift of His love. " <BR>

<BR>

- Merton <BR>

<BR>

[Guest guest]

OK now this is a problem for me, because what makes me happiest is the thing I'm

not supposed to be able to do....I enjoy taking care of myself & being

INDEPENDENT of the rest of the world, but because I keep thinking, " I CAN'T " , I

don't get very far with anything

I do all the research, make the plans in my head, so I know what & how to do it,

then I get this voice telling me " You can't " IT STOPS ME DEAD N MY TRACKS or

plans.

Kerry Standifur wrote:

FOCUS ON WHAT'S WORKING

Our culture has been very invested in focusing on " what's wrong. "

For instance, when was the last time you heard of massive research

funding

for studying healthy, happy people? When was the last time you went

to a therapist who asked " What makes you happy? " Have you ever gone

to a

doctor who congratulated you on all the things that were working

well in your body? There's power in the attitude of gratitude and

positive focus. It's a potent tool for directing your life.

SHIFT YOUR THOUGHTS

If you buy the theory that what you focus on with your thoughts and

beliefs is intensified in your life, why not put all your attention

on what makes you happy, challenged and healthy?

One of the techniques that works for me when I'm feeling upset is

simply to ask myself, " Is there another way to think about this

issue/concern/worry? " I catch myself in the early stages of worry

and negative thinking and begin to focus on what I want instead of

what I don't want.

TAKE SMALL STEPS

The trick to breaking this habit of thought that afflicts many of

us, is two fold: 1) just begin and 2) start small. Take a first step

to what you feel excited about and then take another one and another

one. Remain centered in the present. That's your point of power.

Trust your inner direction from your intuition. When you follow your

passion, excitement, and inner knowing, you'll discover what makes

you happy and fulfilled.

When you know what you want, there's a clear path to achieve it.

Your inner guidance will show you the way.

---------------------------------

[Guest guest]

Kerry,

Thank you for this excellent message! I liked it so much I forwarded it

on to some family members. Thanks for sharing!! Take Care, and have a good

week! PJ

Kerry Standifur wrote:

FOCUS ON WHAT'S WORKING

Our culture has been very invested in focusing on " what's wrong. "

For instance, when was the last time you heard of massive research

funding

for studying healthy, happy people? When was the last time you went

to a therapist who asked " What makes you happy? " Have you ever gone

to a

doctor who congratulated you on all the things that were working

well in your body? There's power in the attitude of gratitude and

positive focus. It's a potent tool for directing your life.

SHIFT YOUR THOUGHTS

If you buy the theory that what you focus on with your thoughts and

beliefs is intensified in your life, why not put all your attention

on what makes you happy, challenged and healthy?

One of the techniques that works for me when I'm feeling upset is

simply to ask myself, " Is there another way to think about this

issue/concern/worry? " I catch myself in the early stages of worry

and negative thinking and begin to focus on what I want instead of

what I don't want.

TAKE SMALL STEPS

The trick to breaking this habit of thought that afflicts many of

us, is two fold: 1) just begin and 2) start small. Take a first step

to what you feel excited about and then take another one and another

one. Remain centered in the present. That's your point of power.

Trust your inner direction from your intuition. When you follow your

passion, excitement, and inner knowing, you'll discover what makes

you happy and fulfilled.

When you know what you want, there's a clear path to achieve it.

Your inner guidance will show you the way.

---------------------------------

[Guest guest]

I've met each of them only once, and my visit with Dr. R was just a

consulation; no tests, treatments or prescriptions. The reason

that I say that Dr. R may not be working out for me is that I can't get

anyone to return my phone calls so I can get started with tests,

treatments, etc. I understand this is unusual, but I don't know what to

do. That's the problem with the long distance - I can't just drop in a

make a nuisance of myself.

Hi, Do you prefer Dr.Ozan over Dr. R?

[Guest guest]

No, I would say no to pain.

What I've heard of PMG is possible seizures, respitory issues, mental

handicapped, feeding issues.

Your son might have development delays.

He should be seen by a developmental pediatrian.

Does anyone have the complete list of possible symptoms?

Dr. Dobyns in the specialist in PMG.

He is at the U of Chicago.

If you would like his address, I'm sure someone here can let you know.

Take care,

Donna

[Guest guest]

You are going to have to learn how to deal with these type of people for the

rest of your life. There will always be some who will be nice and helpful

and then there will always be the others.

Speak up.............educate them, tell them he has a disability.

The lady who sold us our home told me my son taught her a lesson.

She saw him throw some major tantrums. Now when she goes to restraints and

stores and sees older children throwing tantrums, she does not

judge.........she thinks about my son and wonders if this child has a

disability.

This is progress...............one person at a time.

Donna

[Guest guest]

i know exactly what you are going through. I went xmas shopping and i had to put

my coat around him for him to stay put. and yes people are real mean i cant

stand it..it gets real fustrating at times

little_pain_intheass wrote: My son Axel is

unable to set up yet. So when we go to the mall he not

able to sit in the shopping cart. We have to support him with stuff.

People just look and point at him. That make me so mad why do people

have to be so mean. He is only a baby . If people would just take the

time to ask what is wrong with him. Instead of looking and laughing.

Do any of you have the same problem as i do.