Guest guest Report post Posted January 6, 2006 >Thanks Terry! > Adam just got his band on Tuesday. He, too, has slept throught the night > since he was two months. He was totally fine with the helmet till he went to > sleep. He was up every two hours crying. We have been reading the posts and > expected it but it was awful. (My husband is sick with the flu and I just got over a > stomach virus). We went in and rubbed him, assuring him that it was ok and to > go back to sleep with a gentle compassionate voice. He'd settle down and then > start up again 2 hours later. > > I was wiped out on Wednesday. > > Wednesday night was bad, but not nearly as bad. > > Last night he almost slept through! > > Don't take the helmet off for the crying. You will only reinforce that if he > cries the helmet will come off. It will get better. Just read the posts. > > Terry > mom of adam 7 month old > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 6, 2006 Carol, I'm so glad to hear that things have calmed down a bit. I hope he sleeps better tonight, I'll keep my fingers crossed for you. CarolG > >I'll put him in his usual sleeper tonight. He just fell asleep for > his nap without crying. Thank Goodness! I did call CT with some > questions about his red marks.. Seems like everything is normal so > far. Whew! > > Carol, > > You can always call with your questions. > > > > If you changed his whole bedtime routine that might have thrown him > > off. I didn't change the sleepers my kids wore. I just didn't get > > ones with collars. I know if I didn't cover Cece's feet she would > > never sleep. She's like me. Needs her piggies covered to sleep! > > > > Do you think it's possible he was too cold? I don't know where you > > live, but it was colder here last night. > > > > > > Mom to Dane 4 yo and Cece 12 mo (DOC Grads) > > > > --- In Plagiocephaly , " crrn05 " <crrn05@y...> wrote: > > > > > > 's first night with the band was aweful! He has been sleeping > > > through the night since 2 months old for 12 hours without a peep. > > He > > > got up 8 times hysterical crying last night! We had to rock him to > > > sleep for the first time and by 3 am I was exhausted so I took it > > off. > > > He has been sleeping since. He usually gets up about 6 but it's > > 7:10 > > > am and he still is sleeping! Is there a way to make them more > > > comfortable while sleeping? He didn't feel hot. I have him in > > light > > > pj's, no socks, and a cool mist humidifer in his room. He didn't > > feel > > > sweaty when I took off the band. I think one of the problems is > > the > > > way he learned o fall asleep is by rubbing his face and now there > > is > > > this big helmet in the way. He also has eczema and I'm wondering > > if > > > he's more itchy?? Can I continue to put aquaphor underneath the > > band? > > > I love how I had no questions at the office and now a Million! > > How > > > about a rolled blanket underneath his shoulders? Please tell me > > this > > > gets better! > > > > > > Carol > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 6, 2006 Carol, I'm so glad to hear that things have calmed down a bit. I hope he sleeps better tonight, I'll keep my fingers crossed for you. CarolG > >I'll put him in his usual sleeper tonight. He just fell asleep for > his nap without crying. Thank Goodness! I did call CT with some > questions about his red marks.. Seems like everything is normal so > far. Whew! > > Carol, > > You can always call with your questions. > > > > If you changed his whole bedtime routine that might have thrown him > > off. I didn't change the sleepers my kids wore. I just didn't get > > ones with collars. I know if I didn't cover Cece's feet she would > > never sleep. She's like me. Needs her piggies covered to sleep! > > > > Do you think it's possible he was too cold? I don't know where you > > live, but it was colder here last night. > > > > > > Mom to Dane 4 yo and Cece 12 mo (DOC Grads) > > > > --- In Plagiocephaly , " crrn05 " <crrn05@y...> wrote: > > > > > > 's first night with the band was aweful! He has been sleeping > > > through the night since 2 months old for 12 hours without a peep. > > He > > > got up 8 times hysterical crying last night! We had to rock him to > > > sleep for the first time and by 3 am I was exhausted so I took it > > off. > > > He has been sleeping since. He usually gets up about 6 but it's > > 7:10 > > > am and he still is sleeping! Is there a way to make them more > > > comfortable while sleeping? He didn't feel hot. I have him in > > light > > > pj's, no socks, and a cool mist humidifer in his room. He didn't > > feel > > > sweaty when I took off the band. I think one of the problems is > > the > > > way he learned o fall asleep is by rubbing his face and now there > > is > > > this big helmet in the way. He also has eczema and I'm wondering > > if > > > he's more itchy?? Can I continue to put aquaphor underneath the > > band? > > > I love how I had no questions at the office and now a Million! > > How > > > about a rolled blanket underneath his shoulders? Please tell me > > this > > > gets better! > > > > > > Carol > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 7, 2006 > > > > > > > > 's first night with the band was aweful! He has been > sleeping > > > > through the night since 2 months old for 12 hours without a > peep. > > > He > > > > got up 8 times hysterical crying last night! We had to rock him > to > > > > sleep for the first time and by 3 am I was exhausted so I took > it > > > off. > > > > He has been sleeping since. He usually gets up about 6 but > it's > > > 7:10 > > > > am and he still is sleeping! Is there a way to make them more > > > > comfortable while sleeping? He didn't feel hot. I have him in > > > light > > > > pj's, no socks, and a cool mist humidifer in his room. He > didn't > > > feel > > > > sweaty when I took off the band. I think one of the problems > is > > > the > > > > way he learned o fall asleep is by rubbing his face and now > there > > > is > > > > this big helmet in the way. He also has eczema and I'm > wondering > > > if > > > > he's more itchy?? Can I continue to put aquaphor underneath > the > > > band? > > > > I love how I had no questions at the office and now a > Million! > > > How > > > > about a rolled blanket underneath his shoulders? Please tell > me > > > this > > > > gets better! > > > > > > > > Carol > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 7, 2006 > > > > > > > > 's first night with the band was aweful! He has been > sleeping > > > > through the night since 2 months old for 12 hours without a > peep. > > > He > > > > got up 8 times hysterical crying last night! We had to rock him > to > > > > sleep for the first time and by 3 am I was exhausted so I took > it > > > off. > > > > He has been sleeping since. He usually gets up about 6 but > it's > > > 7:10 > > > > am and he still is sleeping! Is there a way to make them more > > > > comfortable while sleeping? He didn't feel hot. I have him in > > > light > > > > pj's, no socks, and a cool mist humidifer in his room. He > didn't > > > feel > > > > sweaty when I took off the band. I think one of the problems > is > > > the > > > > way he learned o fall asleep is by rubbing his face and now > there > > > is > > > > this big helmet in the way. He also has eczema and I'm > wondering > > > if > > > > he's more itchy?? Can I continue to put aquaphor underneath > the > > > band? > > > > I love how I had no questions at the office and now a > Million! > > > How > > > > about a rolled blanket underneath his shoulders? Please tell > me > > > this > > > > gets better! > > > > > > > > Carol > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 9, 2006 Carol, That is awesome!!!!!!!!!!!! I hope it keeps up. CAROLG > > > > > > > > > > 's first night with the band was aweful! He has been > > sleeping > > > > > through the night since 2 months old for 12 hours without a > > peep. > > > > He > > > > > got up 8 times hysterical crying last night! We had to rock him > > to > > > > > sleep for the first time and by 3 am I was exhausted so I took > > it > > > > off. > > > > > He has been sleeping since. He usually gets up about 6 but > > it's > > > > 7:10 > > > > > am and he still is sleeping! Is there a way to make them more > > > > > comfortable while sleeping? He didn't feel hot. I have him in > > > > light > > > > > pj's, no socks, and a cool mist humidifer in his room. He > > didn't > > > > feel > > > > > sweaty when I took off the band. I think one of the problems > > is > > > > the > > > > > way he learned o fall asleep is by rubbing his face and now > > there > > > > is > > > > > this big helmet in the way. He also has eczema and I'm > > wondering > > > > if > > > > > he's more itchy?? Can I continue to put aquaphor underneath > > the > > > > band? > > > > > I love how I had no questions at the office and now a > > Million! > > > > How > > > > > about a rolled blanket underneath his shoulders? Please tell > > me > > > > this > > > > > gets better! > > > > > > > > > > Carol > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 9, 2006 Carol, That is awesome!!!!!!!!!!!! I hope it keeps up. CAROLG > > > > > > > > > > 's first night with the band was aweful! He has been > > sleeping > > > > > through the night since 2 months old for 12 hours without a > > peep. > > > > He > > > > > got up 8 times hysterical crying last night! We had to rock him > > to > > > > > sleep for the first time and by 3 am I was exhausted so I took > > it > > > > off. > > > > > He has been sleeping since. He usually gets up about 6 but > > it's > > > > 7:10 > > > > > am and he still is sleeping! Is there a way to make them more > > > > > comfortable while sleeping? He didn't feel hot. I have him in > > > > light > > > > > pj's, no socks, and a cool mist humidifer in his room. He > > didn't > > > > feel > > > > > sweaty when I took off the band. I think one of the problems > > is > > > > the > > > > > way he learned o fall asleep is by rubbing his face and now > > there > > > > is > > > > > this big helmet in the way. He also has eczema and I'm > > wondering > > > > if > > > > > he's more itchy?? Can I continue to put aquaphor underneath > > the > > > > band? > > > > > I love how I had no questions at the office and now a > > Million! > > > > How > > > > > about a rolled blanket underneath his shoulders? Please tell > > me > > > > this > > > > > gets better! > > > > > > > > > > Carol > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 18, 2006 Barb, I will post the whole thing in my next post, it will be good to have everyone gettine bands go over it anyway. CAROLG --- In Plagiocephaly , " Barbara " <oreonibbles@y...> wrote: > > Hello, > I just want to thank you all for the welcomes. I've been doing some > research on the web for plagio. I want to be ready when my daughter > gets her helmet on the 30th. I do have a question. I tried to open the > file-Helping Baby Adjust, but I can't get into it. It closes down every > time. Could someone send me that file? Also, what should I bring to her > fitting? I don't know if there is anything extra I should take. Thanks > for your help. > > Hugs, > Barb > (will be getting STARband 1/30/06) > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 18, 2006 Barb, I will post the whole thing in my next post, it will be good to have everyone gettine bands go over it anyway. CAROLG --- In Plagiocephaly , " Barbara " <oreonibbles@y...> wrote: > > Hello, > I just want to thank you all for the welcomes. I've been doing some > research on the web for plagio. I want to be ready when my daughter > gets her helmet on the 30th. I do have a question. I tried to open the > file-Helping Baby Adjust, but I can't get into it. It closes down every > time. Could someone send me that file? Also, what should I bring to her > fitting? I don't know if there is anything extra I should take. Thanks > for your help. > > Hugs, > Barb > (will be getting STARband 1/30/06) > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 31, 2006 Hello Michele, I am from Lake Hopatcong, NJ and I send my son privately to a Prompt speech therapist in Randolph NJ Her name is Mindy Kirshner and she works well with . Also, my son has made so many gains with the Prompt method, I know it doesn't work for every child, but it really works for my son. He also has a prompt certified speech therapist in school which I had to fight the district to get. I hope this helps . Good Luck, Dana Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 31, 2006 Dana, What exactly did you have to do to get the PROMPT out of the school district? This is my problem, when you say fight, what exactly did you have to do? Im usually pretty good at this stuff, but for some reason the order of things when it comes to this is just escaping me, can you give me some more details, as I really want to move on this soon, but im not sure of the order in which I should proceed with the district. Thanks Michele Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 31, 2006 Dear , When my son first started PSD last Feb. They gave him group speech 3x a week for 20 min with a school speech teacher. He was making no gains, so a month later I requested to have his IEP reopened and before that I had a private eval. done by a Dev. Ped and a speech therapist who stated in their reports that needed Individual speech 3-4x a week with a prompt certified speech therapist, So when the IEP meeting took place I had all the reports from outside evaluations and they basically had to except them. And ironically there was a Prompt certified speech therapist on staff at my sons school, that I already knew about because I put in her name on the Prompt institute website and she was on it. So, switched Speech teachers and is making great progress with Prompt. I hope this helps, because I am terrible at writing, If you need to talk call me. Thanks, Dana Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 1, 2006 I've finally been semi-successful with this, but it took going to a Prompt therapist privately and presenting test results that finally showed an improvement for my child. I live less than a mile from the Prompt Institute. So far the public schools here have not agreed to work with Prompt at all! Not for my son or any other child. There are many districts who now train their entire speech therapy staff, but not ours who could send them mere miles away for training! I've heard various excuses ranging from Prompt being unsanitary in a group environment (and the PS here tend to only offer group speech) to " we just don't need that kind of support. " For us personally we have gotten a victory. My son will FINALLY start getting speech through the schools tomorrow! He's supposed to get two hours, but the school SLP was only told one hour so we still need to work that out, but it is written into our IEP that Prompt will work closely together with the school therapist and private services will be covered until Prompt has determined they are ready to be handed over. I'm not sure if this entails training the school SLP or what? What I do know is the SLP that he will be working with is respected by Deborah Hayden (Prompt founder and one of my son's two Prompt therapists) and she has assured me it will work out. When the full turn-over of therapies occurs we will still be keeping him two private sessions per week at Prompt. There is no way we're stopping the ONLY thing that has helped him in 2.5 years! Michele, has your child seen a Prompt certified SLP yet? I think the best way to get he schools to support this would be to do what we did and show that it is working for your child. Since dyspraxia is so much more rare than other speech issues I think the schools aren't as aware that it needs to be treated differently! I know the schools here still react as if my son just has some severe articulation issues or something. It just can't sink in that not all speech and language issues are articulation! In addition to verbal dyspraxia my son also has a receptive language delay. His delay may be related to the dyspraxia, auditory processing or who knows what else! At our last IEP we were able to show with formal testing that he at the very least kept up with his peers these past 5 months. Deborah initially was very discouraged until I told her that 6 months of gain in 5 months is HUGE for us! In the previous 18 months he had tested only 3-4 months higher and was getting farther and farther behind his peers. I'll take the minimum of keeping up over falling further behind! Miche At 06:55 PM 1/31/2006, you wrote: >Dana, > >What exactly did you have to do to get the PROMPT out of the school >district? This is my problem, when you say fight, what exactly did you >have to do? Im >usually pretty good at this stuff, but for some reason the order of things >when it comes to this is just escaping me, can you give me some >more details, >as I really want to move on this soon, but im not sure of the order in which >I should proceed with the district. > >Thanks >Michele Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 11, 2006 In a message dated 2/12/2006 5:40:35 AM Eastern Standard Time, lspees@... writes: My son just turned 7 months old. He was diagnosed with mild Torticollis about 2 weeks ago. We have already taken him to PT and have started doing exercises with him. The doctor acknowledged that he does have a flat area on the back left side of his head, but she said it was minor and he does not need any treatment. My husband and I have noticed for several months that one eye looks smaller than the other. Also, if you look at him from the top, one ear is set back. I am concerned that this is all being overlooked because there is not a huge flat spot on his head. We do not want him to have permanent facial asymmetry because this is not treated. How severe does the head flatness have to be in order to need banding or treatment of any sort? We are already working on head positioning as a result of the Torticollis. My sons ear eye and cheek are off. he has a very very small flat spot. His left forehead stick out a little more. He is very mild and just got his helmet. Have you seen a plastic surgeon? They are better with faces because they look for prefection. Doctors will just tell you it is ok everyones face is off. I can give you my number if you want to talk. Take a picture from the chin up and that will help u seee. Y**************Y Loving the ones that keep my heart afloat ..-..-...dwh .-..-. (..v..)....(..v..) `._.'.-..-.`._.' (.(..v..).) \.`._.'./ '..|..' (»§«) ) ( ~andra~ www.myspace.com/ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 11, 2006 In a message dated 2/12/2006 5:40:35 AM Eastern Standard Time, lspees@... writes: My son just turned 7 months old. He was diagnosed with mild Torticollis about 2 weeks ago. We have already taken him to PT and have started doing exercises with him. The doctor acknowledged that he does have a flat area on the back left side of his head, but she said it was minor and he does not need any treatment. My husband and I have noticed for several months that one eye looks smaller than the other. Also, if you look at him from the top, one ear is set back. I am concerned that this is all being overlooked because there is not a huge flat spot on his head. We do not want him to have permanent facial asymmetry because this is not treated. How severe does the head flatness have to be in order to need banding or treatment of any sort? We are already working on head positioning as a result of the Torticollis. My sons ear eye and cheek are off. he has a very very small flat spot. His left forehead stick out a little more. He is very mild and just got his helmet. Have you seen a plastic surgeon? They are better with faces because they look for prefection. Doctors will just tell you it is ok everyones face is off. I can give you my number if you want to talk. Take a picture from the chin up and that will help u seee. Y**************Y Loving the ones that keep my heart afloat ..-..-...dwh .-..-. (..v..)....(..v..) `._.'.-..-.`._.' (.(..v..).) \.`._.'./ '..|..' (»§«) ) ( ~andra~ www.myspace.com/ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 12, 2006 Welcome to the group! You can take him to Cranial Technologies (cranialtech.com) for a free evaluation. They will give you an honest opinion and there isn't any kind of commitment on your part. They'll take pictures and give you lots of information to take to your doctor. You don't need a prescription to do this. What you are describing is very common with the facial distortion. And many peds wave it off saying it will round out. Sometimes it does many times it doesn't. Torticollis is very frustrating. It keeps them favoring the flat spot making the situation worse. Good luck! Mom to Dane (4 yo) and Cece (13 mo) DOC Grads Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 12, 2006 Welcome to the group! You can take him to Cranial Technologies (cranialtech.com) for a free evaluation. They will give you an honest opinion and there isn't any kind of commitment on your part. They'll take pictures and give you lots of information to take to your doctor. You don't need a prescription to do this. What you are describing is very common with the facial distortion. And many peds wave it off saying it will round out. Sometimes it does many times it doesn't. Torticollis is very frustrating. It keeps them favoring the flat spot making the situation worse. Good luck! Mom to Dane (4 yo) and Cece (13 mo) DOC Grads Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 22, 2006 Beneal, You may want to ask this question on Autism_LDN/ a group which deals with autism and ldn. > > Hello. My name is Beneal. My son, Will, is 2 1/2 and he has Autism. > We just started LDN Monday night. We started with 1/2ml. He did not > take a nap Tuesday. He crashed Tuesday night and a few hours later he > woke up throwing up. He woke up this morning at 7AM and has not taken > a nap again today. He hasn't been sick anymore today. He has been a > little hyper though. Is all of this normal? Is there anything I can > do to get him not to throw up and to take naps? Should we cut back on > the dosage? > Thanks, > Beneal > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 22, 2006 Thanks! :-) > > > > Hello. My name is Beneal. My son, Will, is 2 1/2 and he has > Autism. > > We just started LDN Monday night. We started with 1/2ml. He did > not > > take a nap Tuesday. He crashed Tuesday night and a few hours > later he > > woke up throwing up. He woke up this morning at 7AM and has not > taken > > a nap again today. He hasn't been sick anymore today. He has been > a > > little hyper though. Is all of this normal? Is there anything I > can > > do to get him not to throw up and to take naps? Should we cut > back on > > the dosage? > > Thanks, > > Beneal > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 22, 2006 In a message dated 5/22/2006 6:57:59 PM Central Standard Time, Nat222448@... writes: Hello all! I am a long-time member of this group, although I don't post much, and am wondering if there is anyone who knows a good Rheumatologist in the Pittsburgh, PA area. I will be moving to the area soon, and need all the help I can get. Thank you! i am in the pittsburgh area. Her name is dr gail fisher at allegheny rheumatology. She has done wonders for me so far... there is also another doc in that practice too. here is her info Fisher, Gail, MD - Allegheny Rheumatology Incorporated 490 E North Ave Ste 402 Pittsburgh, PA 15212-4740 (http://maps.citysearch.com/location/33735021?) (412) 359-5244 Hope i could help. http://www1.myspace.com/julz2kidz Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 23, 2006 hey sarah!!! yes, i do know of a FANTASTIC rheumy in PGH!!! I live about 45 min northof the burgh...I see Dr. Ken Gold in Oakland....if you want i can get you his phone number! He is awesum!!! sherri Stay strong and healthy >From: " Nat222448 " <Nat222448@...> >Reply- > >Subject: [ ] Help! >Date: Mon, 22 May 2006 23:42:31 -0000 > >Hello all! > >I am a long-time member of this group, although I don't post much, and >am wondering if there is anyone who knows a good Rheumatologist in the >Pittsburgh, PA area. I will be moving to the area soon, and need all >the help I can get. > >Thank you! > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 31, 2006 : I know you're scared. It's a very scary thing. All of us here are at different stages of this thing, so there is lots of support, encouragement and information to share. The most important thing I can stress to you is to LEARN, LEARN, LEARN. Educate yourself on the disease, the meds used to treat it, etc. The internet is a quick way to do it. I started with NSAID's (Non-Steroidal Anti-Inflammatory Drugs) which helped some for a little while, but eventually switched to Plaquenil (an anti-malarial drug that is used to treat RA) and my latest addition is Methotrexate (an old chemotherapy drug that is also used to treat RA). The common theory that rheumatologists have now is " combination therapy " , meaning the use of two (or more) drugs that act in different ways to treat the disease. The docs seem to have the most success with combination therapy and also " early aggressive treatment " . That means hitting the disease upfront and hard - it's important to begin meds ASAP for a couple of reasons - one, because it takes awhile to find the right meds that work for you and two, because studies show that the most damage occurs in the first few (I think it's actually two) years of the disease. Treating the pain means you gotta get the inflammation down, get plenty of rest, don't overdo it. I was diagnosed over a year ago and I still only use regular old over-the-counter tylenol, etc. and only when I really need it. Ice packs help when my joints feel like they are on fire. See a pulmonologist to rule out sleep apnea. Not getting deep, restorative sleep is linked with RA, fibromyalgia and a host of other auto-immune disorders. Many RA patients have sleep problems. The good thing about sleep apnea, if you have it, is it is treated WITHOUT drugs. My pain got rapidly worse until I got on some meds that really started improving things and started treating the sleep apnea. There ARE things to help you, but you have to be patient (which is very hard when you are hurting so much) because it's a trial-and-error situation to find what works best for you. God bless you and keep the faith. in Texas rustierose1964rustie <rustierose1964rustie@...> wrote: Hi All, I have just been diagnosed with RA and am very upset and scared. My pain seems to get worse everyday. Can someone tell me what meds they use to treat the pain, that works? And sleeping, how can I stay asleep? I wake up in pain several times a night. Any ideas? Thanks to you all! God Bless, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 31, 2006 Hi . I was diagnosed w/RA in 1992. Been on quite a few diff- meds for it since. Now I'm on Methotrexate and Remicade infusions. Tried Kineret several years ago, but the injections hurt me so much and they put large bumpy bruises on me, so after trying for a couple of weeks, I stopped it. I still hurt, and have to wear armor on my hands and wrists. Not sure if the hurt is suppose to completely go away with the meds or not. And it always keeps me awake also. Unless the dr prescribes me some kind of sedative, I usually only get 2-3 hours (broken up) of sleep every nite. Most of all the other meds for RA, I'm allergic to. Good luck and keep hi spirits! Hopefully you'll get some better info from someone else. Kathy [ ] HELP! Hi All, I have just been diagnosed with RA and am very upset and scared. My pain seems to get worse everyday. Can someone tell me what meds they use to treat the pain, that works? And sleeping, how can I stay asleep? I wake up in pain several times a night. Any ideas? Thanks to you all! God Bless, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 31, 2006 Hello ! I know exactly how you feel. I have just been recently diagnosed and am in the same boat you are in. Currently I take 10mg of prednisone per day, Lodine, Plaquenil, Calcium Supplements, Multivitamin & Prevacid. I also just started Restassis for my very dry eyes. I am in major pain and continue to get worse as well. I use Ambien to help me fall asleep on the night that the pain keeps me awake. I just try to move around as much as I can because I get very stiff very quickly. I hope that you find some relief soon! Just remember, you are not alone. Lori [ ] HELP! Hi All, I have just been diagnosed with RA and am very upset and scared. My pain seems to get worse everyday. Can someone tell me what meds they use to treat the pain, that works? And sleeping, how can I stay asleep? I wake up in pain several times a night. Any ideas? Thanks to you all! God Bless, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 31, 2006 Hi! Welcome. I've just recently been diagnosed as well. I'm 47 and was laid off from my job of 15 years in May and diagnosed in July. I've been on Methatrexate since July and started Humira last month. It really just came out of nowhere. I have already been on lunesta for some time now, but I still could not sleep more than an hour or two. I started taking Prozac when I lost my job and my dr also put me on elavil (amitriptylin) to help me sleep through the night. It has made a big difference and I don't wake up feeling drugged. It's actually an antidepressant but the dr said that it helps with sleeping problems and has really made a difference for me. Best of all it is relatively inexpensive. I take 50 mg every night when I go to bed. I still take the lunesta to help me fall asleep. I've been very resistant to starting prednisone, I know how it affected my father. I haven't had any real change in my joint pain. Primarily it's every joint in both hands and wrists, but elbows are starting to hurt worse. Tonight is pretty chilly here and I was outside handing out candy my hands were killing me. I guess I'm getting a glimpse of what to expect this winter. Thank God I live in Texas. It could be worse. I really feel for those of you in cold climates. I start a new job next week and I'm a project manager, so I face a lot of pressure and stress every day. I'm really worried about how well I'll be able to perform on my rough days. I didn't tell them about the RA yet. I appreciate all the emails and info that I've gotten from this group already. Up until now I've just kind of been lurking. Thanks everyone for the advise and support that I've found here already, Sabra [ ] HELP! Hi All, I have just been diagnosed with RA and am very upset and scared. My pain seems to get worse everyday. Can someone tell me what meds they use to treat the pain, that works? And sleeping, how can I stay asleep? I wake up in pain several times a night. Any ideas? Thanks to you all! God Bless, Quote Share this post Link to post Share on other sites
