Guest guest Report post Posted November 13, 2000 Dear Lee, Well you shoulndn't be thinking of suicide as things will get better. Put it this way you are only on prednisolone and nothing else. There are people in this group who would give an arm and a leg to be in your position. Sonny rheumatic HELP! > Dear All, > > I have had RA for 11 years (with periods of remission and a two and a > half year drug nightmare. I'm on 5 mg of prednisone...just started, > not long term... and nothing else right now. I'm very afraid of drugs > after what they did to me before). It's more severe than it's ever > been in the last six months for reasons I don't entirely understand > as I've been watching my diet and drink lots of water and try so hard > to do the right thing. I want to try the antibiotics but am > terrified of the Herxheimer effect as I am truly at the end of my > rope right now and MORE pain and incapacity for what might be several > months is more than I could bear mentally I think. The prospect of > seeing no improvement for as long as two years is a frightening > thought also, as contemplating the joint damage that's going on > during that time in addition to what I already have means that I may > not be walking no matter what... I feel so trapped and hopeless > and am ashamed to say that I contemplate suicide on a fairly regular > basis these days. I would really appreciate some > advice/encouragement... > > Thanks, > > Lee > > > P.S. Am I the only one whose joints move about painlessly when > pressured? The clicks and pops in my hips and knees! Scare the life > out of me...little buggers... > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 13, 2000 Lee....we all understand how you feel, but try to think positive and keep telling yourself it WILL get better. First of all, you won't necessarily get a herx from starting the antibiotics and if you do, it might not be one you can't handle. I never herxed at all, but just recently, my dr adjusted the minocin and put me on zithromax also. After a few days, I felt I was going thru a herx (had new pain and stiffness) and when I went for my next app't and told him, he said I should have called, because there's something he could have given me to ease it quite a bit. He also said 1 tblsp of flaxseed oil daily helps with a herx (I think the group will verify that). The main point is that when you start the AP, you will mentally know you are working towards a positive health improvement, and hopefully remission. Time goes by the same, whatever we do, so even if it's two, three or five years, where will you be if you don't give it a shot. Believe me, there are plenty in this group who have been where you are.....draw strength from the people here..they're wonderful and so knowledgeable. Good Luck to you Lee Judy (Keels) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 13, 2000 Lee, Not everyone gets worse before they get better. I felt better in some areas within a few weeks, and only had a slight worsening (which felt pretty bad at that point, as I was not in good shape already) but it was bearable as a lot of the fatigue and sleep problems improved first, and consequently the depressive feelings. The pain was a lot easier to take under those circumstances. And after several months, I reached a period of near-remission which lasted a good while before reaching a partial setback. I'm still back a bit from the best point I achieved, but lots better than before the antibiotics. Some people start to feel better right away, and you may be one of the lucky ones. Please try and not borrow trouble from tomorrow, believe me--with this illness, you have enough trouble if you take it on a Zen basis, one day at a time. And please, don't even *think* of ending your life, That is a decision you can not take back, and those who love you will be forever affected by it. There is a lot to live for, you just need to get some help with the pain and depression. See your doctor ASAP for some help in that department, and lean on the strength to be found here. You won't be sorry in a few months that you stuck it out. If you just cannot shake the suicidal feelings, Go To The ER or Local clinic, please! Antidepressant side-effects s***, in my humble opinion, but not as much as losing someone you love. Take good care of yourself, and try to stay in the NOW, and make plans for a better tomorrow. Sending best wishes and prayers for you tonight, Liz G. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 13, 2000 Dear Lee, Janine in this group was at the point of contemplating suicide when she joined us. You can read her story at rheumatic.org/janine.htm. While most people take a long time to see significant results, many start to see small improvements much earlier than that. Janine started on the antibiotics and gradually got better. You can do the same. The herxheimer effect can be minimised by starting at a very low dose the way Dr. Brown advised. You take only about 50mg minocycline or doxycycline on Mon Wed and Fri the first week and see how you feel. If you get a reaction, stay on that dose for a while. If all OK, you can gradually increase the dose by 50mg per week until you're on 100-200mg on Mon Wed and Fri. If at any point you feel you don't want to increase, then just stay on the dose you've reached. Stay on the 5mg prednisone for now and don't try to reduce the dose. Much later on, when you don't have pain, you can gradually taper off. Lee, there is hope here for you as there has been for so many people. Do you have a doctor to prescribe the antibiotic for you? We maintain a list if you need help with this. Hope to hear back from you soon. You have nothing to lose and everything to gain by using the antibiotics. I'm in Adelaide - where in Australia are you? Chris. >I have had RA for 11 years (with periods of remission and a two and a >half year drug nightmare. I'm on 5 mg of prednisone...just started, >not long term... and nothing else right now. I'm very afraid of drugs >after what they did to me before). It's more severe than it's ever >been in the last six months for reasons I don't entirely understand >as I've been watching my diet and drink lots of water and try so hard >to do the right thing. I want to try the antibiotics but am >terrified of the Herxheimer effect as I am truly at the end of my >rope right now and MORE pain and incapacity for what might be several >months is more than I could bear mentally I think. The prospect of >seeing no improvement for as long as two years is a frightening >thought also, as contemplating the joint damage that's going on >during that time in addition to what I already have means that I may >not be walking no matter what... I feel so trapped and hopeless >and am ashamed to say that I contemplate suicide on a fairly regular >basis these days. I would really appreciate some >advice/encouragement... > >Thanks, > >Lee > > >P.S. Am I the only one whose joints move about painlessly when >pressured? The clicks and pops in my hips and knees! Scare the life >out of me...little buggers... > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 14, 2000 Dear Lee, Although I have had a horrible herx on Biaxin, I didn't have any on Mino (after the first couple of weeks with a terrible, frightening headache at times...the pharmacist said it would go away and it did.). I got so much better in just three months, I was riding my bicycle again instead of hurting in every single joint and suffering terribly. I have felt pretty hopeless before and lately because of increased damage, an unsympathetic doctor who doesn't believe in chronic pain, and fear for the future. But suicide is not a way out because they really are making progress with this new B cell stuff and other things. You should definitely go on the minocycline, I think, and also see your doctor for a referral to a pain clinic and perhaps some antidepressants to get you over this period. They can really help as thoughts of suicide are very, very dangerous and a sure sign of clinical depression. Good luck and hang in with us, love, Gloria P.S. Are you are boy or a girl? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 15, 2000 Dear Lee, Don't give up! We've all been scared and frightened. If you do the minocin very gradually, you should be just fine. And any pain you have will be part of getting better, not from disease progression. Please see a therapist to talk, and also get some antidepressants. Celexa is a good one because it's safe with a lot of other drugs. This will give you the spirit to go forward, and we're all here to support you too. Please let us know how you're doing. G. rheumatic HELP! > Dear All, > > I have had RA for 11 years (with periods of remission and a two and a > half year drug nightmare. I'm on 5 mg of prednisone...just started, > not long term... and nothing else right now. I'm very afraid of drugs > after what they did to me before). It's more severe than it's ever > been in the last six months for reasons I don't entirely understand > as I've been watching my diet and drink lots of water and try so hard > to do the right thing. I want to try the antibiotics but am > terrified of the Herxheimer effect as I am truly at the end of my > rope right now and MORE pain and incapacity for what might be several > months is more than I could bear mentally I think. The prospect of > seeing no improvement for as long as two years is a frightening > thought also, as contemplating the joint damage that's going on > during that time in addition to what I already have means that I may > not be walking no matter what... I feel so trapped and hopeless > and am ashamed to say that I contemplate suicide on a fairly regular > basis these days. I would really appreciate some > advice/encouragement... > > Thanks, > > Lee > > > P.S. Am I the only one whose joints move about painlessly when > pressured? The clicks and pops in my hips and knees! Scare the life > out of me...little buggers... > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 7, 2001 on 7/7/01 7:03 AM, hpumom2@... at hpumom2@... wrote: > Group: > deleted my name from the support group list about 10 days > ago. In order to write the group I have had to JUMP THROUGH HOOPS! > I had to sign up as HPUMOM2 (instead of 1) and also instead of > AOL.COM I have to use .com. I am not receving my messages when > I click on READ. I have to go to .Groups and read them in a > different format. > > Will someone please tell me how to fix this problem- I have writen > , Chris/, called AOL --- but have not heard from them > yet! I want to use my old name and also be able to have the message > as regular posts- not go to .groups to have to get them. > > Anyone else have this happen to them? Carol, I'm not sure why this has happened, but you can edit your settings with for the rheumatic list. If you haven't tried this yet, maybe this will work: Go to <rheumatic> Near the top right of that page will be a link called [Edit My Membership] Punch that link, and a page will come up with various options you can set. You can specify that you receive mail or not here. The problem with the address is that it doesn't deliver e-mail to your e-mail program, you have to read it on the web. You can also add other e-mail addresses to use with , I don't know if they will let you use the old one now or not, because it is used with the other profile. I would try that first. If it doesn't work, does AOL let you have any more free e-mail addresses? You could get an additional AOL address. I'm sure or will help when they get time, if you don't want another AOL address. Good luck. Jean Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 7, 2001 Hi Carol, Is your real email HPUMOM1@... or HUPMOM2@.... Your subscription name to the group has to be the same as your real email in order for you to get group mail in your own mailbox. I've deleted the old account and subscribed you again as HPUMOM1@... as I remember that is your real email. Several people have had trouble sending group mail via rheumatic so send to the group using rheumaticegroups which seems still to work better. Chris. >Group: > deleted my name from the support group list about 10 days >ago. In order to write the group I have had to JUMP THROUGH HOOPS! >I had to sign up as HPUMOM2 (instead of 1) and also instead of >AOL.COM I have to use .com. I am not receving my messages when >I click on READ. I have to go to .Groups and read them in a >different format. > > Will someone please tell me how to fix this problem- I have writen >, Chris/, called AOL --- but have not heard from them >yet! I want to use my old name and also be able to have the message >as regular posts- not go to .groups to have to get them. > > Anyone else have this happen to them? > >Thanks, >Carol* >HPUMOM1@... > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 10, 2001 I just now wrote to to assist Judy Keels as she has not been getting her group emails for a couple weeks now - she was told they were being "bounced". Hope someone can help both of you (???) Babs Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 11, 2001 Hi group, I think groups is having some problems as a couple of people have had their emails bounced, for no reason I can see. I'll check Judy's subscription and see if I can fix it. Chris. > ><HTML><FONT FACE=arial,helvetica><BODY BGCOLOR= " #c0c0c0 " ><FONT COLOR= " #800080 " SIZE=3 FACE= " Stewardson " LANG= " 0 " >I just now wrote to to assist Judy Keels as she has not been getting ><BR>her group emails for a couple weeks now - she was told they were being ><BR> " bounced " . Â Hope someone can help both of you (???) ><BR> ><BR>Babs</FONT> > ><br> ><tt> >To unsubscribe, email: rheumatic-unsubscribeegroups<BR> ></tt> ><br> > ><br> ><tt> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 25, 2001 Dear Dee, Have a look at www.hacres.com Many people have cured themselves of all different types of cancers with this diet. Malkmus had a large bowel cancer 26 years ago and he went on this diet. His cancer was completely gone in less than a year. If your friend decides to go on it tell her she will need to have her vitamin B12 levels checked every couple of months. Some people have a problem with this and others don't. I hope this helps. Tell her that we are praying for her. Rosemary Trudeau. allrosy@... rheumatic HELP! > Hi All, > > A friend of a friend is 5 months pregnant and just discovered she has a > cancerous tumor in her uterus. Obviously she cannot persue conventional > treatment since she does not want to harm the baby. If anybody has any ideas > or knowledge in this area please e-mail me at ljdsll@.... This poor girl > is beside herself with worry. Any help would be greatly appreciated. Thanks > in advance. > > Dee > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 6, 2001 > I am new to this group. My eight and half year old son is autistic. I > just did an hair analysis for him at Doctor's Data Inc. Now the report > comes. His mercury result is in the reference range. But other toxic > elements results like lead, antimony, alluminum, Uranium, Nickel, > silver, tin are all above reference range. His sodium, potassium and > Lithium are 10 times higher than the normal range. Does anybody know > how to interpret those test result? Many appreciate for your help. You will find information on how to do this in the " counting rules " file if it was a 'hair element profile.' If it was a 'toxic element screen' you get to clip more hair and do a hair element profile. Andy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 7, 2001 At 10:02 PM 11/6/2001 -0000, you wrote: >I am new to this group. My eight and half year old son is autistic. I >just did an hair analysis for him at Doctor's Data Inc. Now the report >comes. His mercury result is in the reference range. But other toxic >elements results like lead, antimony, alluminum, Uranium, Nickel, >silver, tin are all above reference range. His sodium, potassium and >Lithium are 10 times higher than the normal range. Does anybody know >how to interpret those test result? Many appreciate for your help. > Dear lilitsao@..., The fact that your child's mercury reading on this test is " normal " is NOT SIGNIFICANT. Many people who ARE mercury toxic have " normal " level of mercury in their hair. It is not a problem with the lab. Mercury is very well stored by some body tissues (e.g. brain) so it is not circulating about in the body. Right after exposure it is circulating about for a bit, but then it is stored off (doing lots of damage) but NOT circulating, so it doesn't show up in hair. You can have plenty of stored mercury and be very toxic and have normal level in hair. Please do not write me this off. If you were to go back through the archive of this list, there are doxens of posts like yours and like mine. This is very important, even though it is terribly easy to be decieved into thinking " all is well " . It is very important that you not misread the mercury value as " okay " . You shuold read it as " unknown " . I realize this may seem confusing. Go here: /files/Counting%2BRules and read about how to tell if your child is mercury toxic. Finally, to answer the question that you DID ask, yes, the rest of those toxic elements do matter a great deal. I can't say as I've memorized the " ill effects " of each one (I haven't). Lead I know is very damaging. DMSA will remove lead (as well as mercury). Parents have reported on quite a range of toxic elements being excreted (based on urine tests) using DMSA. Also, once mercury is removed, some toxic elements MAY come down on their own (this is speculative on my part, based on what Andy has said about disturbed mineral transport-- which affects BOTH nutritive and toxic elements). best, Moria Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 7, 2001 Please see the counting rules. S On Wed, 07 November 2001, Moria Merriweather wrote: > > <html><body> > <tt> > At 10:02 PM 11/6/2001 -0000, you wrote:<BR> > & gt;I am new to this group. My eight and half year old son is autistic. I <BR> > & gt;just did an hair analysis for him at Doctor's Data Inc. Now the report <BR> > & gt;comes. His mercury result is in the reference range. But other toxic <BR> > & gt;elements results like lead, antimony, alluminum, Uranium, Nickel, <BR> > & gt;silver, tin are all above reference range. His sodium, potassium and <BR> > & gt;Lithium are 10 times higher than the normal range. Does anybody know <BR> > & gt;how to interpret those test result? Many appreciate for your help.<BR> > & gt;<BR> > <BR> > Dear lilitsao@...,<BR> > <BR> > The fact that your child's mercury reading on this test is & quot;normal & quot;<BR> > is NOT SIGNIFICANT. & nbsp; Many people who ARE mercury toxic have & quot;normal & quot;<BR> > level of mercury in their hair. & nbsp; It is not a problem with the lab.<BR> > Mercury is very well stored by some body tissues (e.g. brain) so it<BR> > is not circulating about in the body. & nbsp; Right after exposure it is<BR> > circulating about for a bit, but then it is stored off (doing lots<BR> > of damage) but NOT circulating, so it doesn't show up in hair.<BR> > You can have plenty of stored mercury and be very toxic and have<BR> > normal level in hair.<BR> > <BR> > Please do not write me this off. & nbsp; If you were to go back through<BR> > the archive of this list, there are doxens of posts like yours and <BR> > like mine. & nbsp; This is very important, even though it is terribly <BR> > easy to be decieved into thinking & quot;all is well & quot;. & nbsp; It is very <BR> > important that you not misread the mercury value as & quot;okay & quot;.<BR> > You shuold read it as & quot;unknown & quot;. & nbsp; I realize this may seem<BR> > confusing.<BR> > <BR> > Go here:<BR> > <a href= " /files/Counting%2BRules " >http:\ ///group/ /files/Counting%2BRules</a><BR> > and read about how to tell if your child is mercury toxic.<BR> > <BR> > Finally, to answer the question that you DID ask, yes, the<BR> > rest of those toxic elements do matter a great deal. & nbsp; I can't <BR> > say as I've memorized the & quot;ill effects & quot; of each one (I haven't).<BR> > Lead I know is very damaging. & nbsp; DMSA will remove lead (as well<BR> > as mercury). & nbsp; Parents have reported on quite a range of<BR> > toxic elements being excreted (based on urine tests) using<BR> > DMSA. & nbsp; Also, once mercury is removed, some toxic elements<BR> > MAY come down on their own (this is speculative on my part,<BR> > based on what Andy has said about disturbed mineral transport--<BR> > which affects BOTH nutritive and toxic elements).<BR> > <BR> > best,<BR> > Moria<BR> > <BR> > <BR> > <BR> > </tt> > > <br> > > <!-- |**|begin egp html banner|**| --> > > <table border=0 cellspacing=0 cellpadding=2> > <tr bgcolor=#FFFFCC> > <td align=center><font size= " -1 " color=#003399><b> Sponsor</b></font></td> > </tr> > <tr bgcolor=#FFFFFF> > <td align=center width=470><a href= " http://rd./M=210672.1513963.3091383.1442549/D=egroupweb/S=1705061\ 616:HM/A=655209/R=0/*http://www.prostateinfo.com/piyb " ><img src= " http://us.a1.yimg.com/us.yimg.com/a/as/astrazeneca/b3.gif " width= " 468 " height= " 60 " border= " 0 " ></a></td> > </tr> > <tr><td><img alt= " " width=1 height=1 src= " http://us.adserver./l?M=210672.1513963.3091383.1442549/D=egroupmai\ l/S=1705061616:HM/A=655209/rand=433529271 " ></td></tr> > </table> > > <!-- |**|end egp html banner|**| --> > > > <br> > <tt> > =======================================================<BR> > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 7, 2001 In addition to what Moria answered...remember that DMSA is approved for chelating lead from children. It also removes mercury. So since your child is above the reference range in lead, you may have just found a good way to get your doctor to prescribe DMSA and your insurance to cover it... Lorilyn Re: [ ] help! At 10:02 PM 11/6/2001 -0000, you wrote: >I am new to this group. My eight and half year old son is autistic. I >just did an hair analysis for him at Doctor's Data Inc. Now the report >comes. His mercury result is in the reference range. But other toxic >elements results like lead, antimony, alluminum, Uranium, Nickel, >silver, tin are all above reference range. His sodium, potassium and >Lithium are 10 times higher than the normal range. Does anybody know >how to interpret those test result? Many appreciate for your help. > Dear lilitsao@..., The fact that your child's mercury reading on this test is " normal " is NOT SIGNIFICANT. Many people who ARE mercury toxic have " normal " level of mercury in their hair. It is not a problem with the lab. Mercury is very well stored by some body tissues (e.g. brain) so it is not circulating about in the body. Right after exposure it is circulating about for a bit, but then it is stored off (doing lots of damage) but NOT circulating, so it doesn't show up in hair. You can have plenty of stored mercury and be very toxic and have normal level in hair. Please do not write me this off. If you were to go back through the archive of this list, there are doxens of posts like yours and like mine. This is very important, even though it is terribly easy to be decieved into thinking " all is well " . It is very important that you not misread the mercury value as " okay " . You shuold read it as " unknown " . I realize this may seem confusing. Go here: /files/Counting%2BRules and read about how to tell if your child is mercury toxic. Finally, to answer the question that you DID ask, yes, the rest of those toxic elements do matter a great deal. I can't say as I've memorized the " ill effects " of each one (I haven't). Lead I know is very damaging. DMSA will remove lead (as well as mercury). Parents have reported on quite a range of toxic elements being excreted (based on urine tests) using DMSA. Also, once mercury is removed, some toxic elements MAY come down on their own (this is speculative on my part, based on what Andy has said about disturbed mineral transport-- which affects BOTH nutritive and toxic elements). best, Moria Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 10, 2001 [ ] Re: help! > > > I am new to this group. My eight and half year old son is autistic. > I > > just did an hair analysis for him at Doctor's Data Inc. Now the > report > > comes. His mercury result is in the reference range. But other toxic > > elements results like lead, antimony, alluminum, Uranium, Nickel, > > silver, tin are all above reference range. His sodium, potassium and > > Lithium are 10 times higher than the normal range. Does anybody know > > how to interpret those test result? Many appreciate for your help. > > You will find information on how to do this in the " counting rules " > file if it was a 'hair element profile.' > If it was a 'toxic element screen' you get to clip more hair and do > a hair element profile. > > Andy > > > ======================================================= > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 14, 2002 I have read that a B12 deficiency may cause these symptoms as well as an underactive thyroid. http://thyroid.about.com/library/weekly/aa021101a.htm?terms=feet http://www.thenaturalconnection.net/TNC%20Columns%202000/B12_basics.htm Sue rheumatic Help! Has anyone ever heard of 's disease? Or something like that. A dear friend has Lupus but today she has to have some tests on her heart. Feet have been tingling and spot under her toenail. Any ideas? Thanks, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 20, 2002 Hi, I've been taking flax, 2-3 tablesoons with yogurt and fruit - over a month now - no problems. One thing for you to check - is the oil fresh, any smell of rancidity and that could be causing your stomach ailments. the oil I use " Barleans " has the date of press printed on the side, a date of several weeks ago, so I'm assured it's fresh. On Monday, May 20, 2002, at 06:03 AM, Bradley, Roneice wrote: > Hi All, > > OK, here's the prob...a little more than a week ago I started mixing 1 > teaspoon each, flax seed oil and plain yogurt and I've been taking it > twice > a day. By last Wednesday I was sick, sick, sick with stabbing, lower > abdomen pains, pains in my temples and fatigue. Thursday and Friday I > stayed in bed and rested for the most part. Late, Saturday afternoon I > developed a sore throat and runny nose, which I still have. However, > the > stomach and head thing was completely gone by Sunday! Here's the rub; I > know you take the flax seed oil when you Herx but it seemed to cause a > Herx > in me. If anyone can explain this, I would be most grateful. > > Thanks, Roneice > > > >                    Confidentiality Notice > This message is being sent by or on behalf of a lawyer. It is intended > exclusively for the individual or entity to which it is addressed. > This communication may contain information that is proprietary, > privileged or confidential or otherwise legally exempt from > disclosure. If you are not the named addressee, you are not authorized > to read, print, retain, copy or disseminate this message or any part of > it. If you have received this message in error, please notify the > sender immediately by e-mail and delete all copies of the message. > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 23, 2002 It is wonderful that your tenacity has gotten you to a solution. This group is wonderful. My son has had great results with chelation. Without the people that have helped us along, there is no way we could have done all of this. There are many resources at your fingertips now. Good luck to you. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 23, 2002 Haven: I wish I were in your shoes! You are on the right track. How old is your son now? If I had known what I know now...my eight year old would probably have much better chances in life. So keep plugging. Read the archives and try not to get overwhelmed! You're doing all the right things for your son. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 23, 2002 Hello Haven, > I am new to this group. We began believeng our son was poisoned > after rceiving four vaccinations at age 15 months with each > containing thimerasol (wish we'd known then what we know now). He > may have shown some toxicity before, but whenever I voiced concerns > about things, I was always treated like a hysterical, over-reacting > mother. > The day after the fifteen month shots, our son quit talking, > became very quiet and began exhibiting other signs of autism. > The > doctor just kept telling me " Let's wait until he's two. Don't > worry. " Before the age of two we saw another doctor who told us that > our son's loss of speech was significant and from there we have been > to see different clinicians. All with the same result:autism. > Whenever we voiced our concern about the vaccinations, we were put > off. Our doctors would not order hair testing and when we tried to > get a urine test, we were treated horribly and were unable to obtain > the test. !!!!! aaagggghhhhhhhhh > Almost fifteen months later I found a doctor willing to > order whatever test I wanted. We ordered the hair test, and after > more research realized that the mercury would probably not show up as > so much time has passed. I'm sure you will find this of great interest: /files/HOW_TO_hair_test In particular read the part about why mercury does NOT show up in hair tests (usually). > We received the results today, and though > the mercury did not show up in the high range, our son is toxic for > Aluminum, Antimony, Arsenic, Bismuth, Cadmium, lead, molybdenum, > Boron (3.0 is high. Our son's is 85.26), lithium, and vanadium. We > tried to get an appointment with Dr. Holmes, but she cannot see us > until March. yep, that is the usual situation with Dr. Amy. I think it used to be " only " 6 months, now it is more 9 or 10 months.... > Our new doctor says that we can't wait that long. We > have an appointment with Dr. Block in a little over a week, and she > will do the urine test for mercury. Read the file above about hair test interpretation and see what you think. You can also read here [below] about " challenge " tests and why they can be dangerous as well as not useful (or at least that is Andy's opinion): /files/ANDY_INDEX Look for the sections on " determining toxicity " . > We will do a liver panel this > coming Tuesday. We are devastated! I'm sure it is the start of better things, but I also see that probably does not help you right now. > Any information you can give us > about Dr. Block, chelation etc... would be greatly appreciated. You can read whatever interests you in ANDY_INDEX (URL above)-- I recommend you just see what looks interesting and start reading. And the FAQ if you have not read that already: /files/Mercury-Autism%20FA Q some more about Andy's protocol, if you want: /files/Andy_dose_sched /files/Andy_protocol >We > also had a food panel done and he is allergic to almost everything! > We started him on the gf/cf diet in addition to eliminating the foods > he is most allergic to. We cannot imagine ANY other way he could > have become this toxic other than the vaccinations. Please help us. Well, I would help if I knew how. I don't know what SORT of help is needed. But, ANDY_INDEX will get you pretty far. If you want hope and inspiration, here is a collection of hope and inspiration: /files/LOVE_LETTERS Keep reading. > This is all so new to us. yes, well, that won't last too long. You have reached " the right place " IMO. I hope that you find that is so. In fact, if you find it is NOT so, you can probably ask for whatever other help would be more to your liking, and people will refer you. Not every question is answered when asked, but there really is a huge wealth of experience here........ keep asking. keep reading. keep asking. keep reading. and so on. > Thank you, sure thing. Moria Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 23, 2002 --- Dear Haven, Your son's story sounds like a " carbon copy " of mine(and many others here I am sure) My son is 11, fell into Autism after 15 month vaccines, diagnosed at age 22 months..regained some speech, lost ALL of it at age 3 immediately after a TETANUS shot. He has not spoken since. Like you, I wish I had known then what I know now...this group is a GODSEND! Study Andy's " counting rules " in he files section...and I believe you will find that your son is indeed mercury toxic. You will get the help you need for your son here. Godspeed!!! Lindy ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ In @y..., " shygirl75158 " <horses@n...> wrote: > Dear list mates, > > I am new to this group. We began believeng our son was poisoned > after rceiving four vaccinations at age 15 months with each > containing thimerasol (wish we'd known then what we know now). He > may have shown some toxicity before, but whenever I voiced concerns > about things, I was always treated like a hysterical, over-reacting > mother. The day after the fifteen month shots, our son quit talking, > became very quiet and began exhibiting other signs of autism. The > doctor just kept telling me " Let's wait until he's two. Don't > worry. " Before the age of two we saw another doctor who told us that > our son's loss of speech was significant and from there we have been > to see different clinicians. All with the same result:autism. > Whenever we voiced our concern about the vaccinations, we were put > off. Our doctors would not order hair testing and when we tried to > get a urine test, we were treated horribly and were unable to obtain > the test. Almost fifteen months later I found a doctor willing to > order whatever test I wanted. We ordered the hair test, and after > more research realized that the mercury would probably not show up as > so much time has passed. We received the results today, and though > the mercury did not show up in the high range, our son is toxic for > Aluminum, Antimony, Arsenic, Bismuth, Cadmium, lead, molybdenum, > Boron (3.0 is high. Our son's is 85.26), lithium, and vanadium. We > tried to get an appointment with Dr. Holmes, but she cannot see us > until March. Our new doctor says that we can't wait that long. We > have an appointment with Dr. Block in a little over a week, and she > will do the urine test for mercury. We will do a liver panel this > coming Tuesday. We are devastated! Any information you can give us > about Dr. Block, chelation etc... would be greatly appreciated. We > also had a food panel done and he is allergic to almost everything! > We started him on the gf/cf diet in addition to eliminating the foods > he is most allergic to. We cannot imagine ANY other way he could > have become this toxic other than the vaccinations. Please help us. > This is all so new to us. > > Thank you, > > Haven Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 27, 2002 Dr. Block is a very good doctor so you're in good hands. I know many people who have been happy with her treatment of their children. The only negatives I've heard about her was from two people who felt she didn't listen very well and got kind of stuck on her own protocols rather than individualizing. These people did not see her for chelation but rather for wholistic ADHD treatments. She just recently started handling metals toxic patients about a year or so ago -- used to refer them to Dr. Hansen, who we used for my son's chelation. However, from what I understand, she seems to be handling it very well and is careful with her patients. While you're waiting to see her, look at everything your child is exposed to. Do web searches on all the metals he showed high in to find possible sources. Read all labels carefully and eliminate as many sources as possible. With the high boron, I'd suspect a multi-mineral supplement but there may be other sources as well. Gaylen Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 24, 2003 Suzi, we still deal with the running away in stores and running in the street, Lindsey is 6 too. she getting much better though. She cannot undo her car seat thankfully. Do you still use the shoulder strap or just put the seat belt over her and the seat? With the shoulder strap on Lindsey does not have the strength to undo it. The only thing I can think of his a positive reinforcement give her something if she stays in her car seat. Maybe a quarter or some candy. I'm just thinking here. I know that doesn't always work either, Lindsey can me very impulsive and she gets a " i don't care " attitude. good luck! Jennie Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 24, 2003 oH sUZI mY HEART GOES OUT TO YOU My son used to do this also and nothing seemed to work i did all the things you mentioned. He hasnt done it a awile now unless he is ina rage but it has even slowed down then. I dont have any advice we too couldnt figure out what to do it finially sorta went away by itself. God Bless and HUgs Amy mom to Randy BP, OCD, ODD,ADHD, SPEECH APRAXIA, AUTO IMMUNE DEFIENCY TRILEPTAL 300MG BID ZYPREZA 2.5MG CUT IN HALF 3 TIMES DAY WILMINGTON OHIO Elissa, 10 normal private school Danny DH Quote Share this post Link to post Share on other sites
