Help!

[Guest guest]

Suzi,

First a online hug. I have the same problem here. We have been working with

a behaviorist and a neuropsychologist. It has really helped. My son is also

brain damaged and the way it has been described to me is that the area that

controls emotional response is impaired in my sons brain. The doctor gave us

this example: if you are driving on a road and you want to run someone off

the road, there is a part of our brain that says no, thats wrong and controls

the impulse. In my sons brain it is not working. We are doing intensive

behavioral techniques to improve this. One improtant thing he told us is

that kids like this learn from experience not from emotion. So yelling and

all of that is not goin to help him (I know it feels good to scream during

frustration). He told us to set up experiences for " practice " where we just

go somewhere knowing that he will unbuckle his seatbelt and then turn around

and go home. Same thing at the store. He said that eventually he will

figure out that acting bad means you go home and don't get to do anything

fun. Also, he showed us a 30 second hold that is for brain impaired

children. It teaches them to eliminate an undesired response. You could try

that in the car.

I highly suggest finding a neuropsychologist. They are awesome. We just

started with him and he is doing brain mapping to find out where s

brain is damaged and where his strong areas are and then we will teach him to

learn through his strong areas and bipass the areas that are weak. I highly

recommend this.

Any questions or did I lose you- I have alot of info so fire away. and hang

in there. Maybe its time for a moms night out.

[Guest guest]

Rob, you don't need our advice, you need to speak with an attorney!!

Find one that specializes in medical claims and they can probably

answer all of your questions. As far as the medication stuff, I

would anonymously call a pharmicist and ask those questions. Please

don't take this personally, but you certainly do sound paranoid.

Sounds like the meds have definitely affected you. You suffered from

a huge lack of judgement when you deleted the logs (in my opinion).

Rob, take the high road, and do the right thing. I understand about

your family, and my prayers are with you all. ML

> I have a problem and I need help, please! I was diagnosed with RA

in 1994,

> since then have had 2 knee replacements, and am currently in a

flare - have

> been since November. I have been suspended from my job, with pay,

pending

> an investigation as to whether or not the medications I am

currently taking

> could have altered my judgement and caused me to do something I

shouldn't

> have. About 2 weeks ago, my boss started asking me questions about

my

> disease - I got scared that he was digging to find out more info

and then

> try to can me to avoid any LTD claims. I got very scared that I

was going

> to lose my job, as I am a family of 5 on 1 salary, so I checked his

email.

> I then destroyed the logs to cover my tracks. Currently I am

taking

> oxycodone (325 MG, 4-6 per day, vioxx, prednisone (12 MG) and

arava). I

> know that the Oxycodone dedinitely gives me the euphoric feeling,

and

> lately, I think it has given me increased fear, anxiety and

paranoia. I am

> seeing a company doctor on February 4, and if he concludes these

medications

> could indeed have altered my judgement, I will be allowed back to

work. My

> question is - do I stand a chance? Can oxycodone cause this stuff

to

> happen? Any advice as to what I can say or do to go back to my

job - I

> can't lose my position, especially my benefits. Any and all advice

is

> greatly appreciated! I am a very very good person - I just got

very very

> scared.

>

>

>

>

>

> _________________________________________________________________

> Protect your PC - get McAfee.com VirusScan Online

> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

My son get out of his car seat some times- But is non-verbal six

year old - I know that he does not understand most things so - I am

left to just pull over and rebuckle him in - I do try to have books

for him to look at in the car- maybe your daughter is bored- view

finders are great in the car too. I will be looking for more post on

this and any ideas. Ann

[Guest guest]

Hi Rob,

I second the advice for you to get a good attorney. From what I've read,

oxycodone has been associated with impaired judgment and even prednisone can

alter your mood and temperment but that information alone may not be enough

to help you. And while you may think the company doctor is there to help

you, in reality he may have been called in to back up whatever decision your

company makes. A good attorney who specializes in this area of the law can

take the necessary steps to ensure your rights are protected. Many places

have laws making it illegal for companies to fire employees simply because

they have an illness and merely knowing your rights may make you feel less

paranoid about answering your boss's questions. After all, he may have

simply been asking to have a better understanding of what you're dealing

with in order to possibly make your work situation easier. In any event, a

lawyer should also be able to set you up with an independent doctor not

beholden to your company who can make his own assessment of the effects of

your medications on your behaviour. He can also advise you of your best

course of action with your boss. If you previously had a good working

relationship, perhaps something as simple as a calm meeting where you

express the fears that drove you to making such a bad decision and your

immense regret for having done it may be enough to get things back on track.

At this point, however, obtaining good legal advice will help you to not

make things worse. Good luck and let us know how you make out.

Hugs

a

rheumatic Help!

> I have a problem and I need help, please!...I have been suspended from my

job, with pay, pending an investigation as to whether or not the medications

I am currently taking could have altered my judgement and caused me to do

something I shouldn't have. About 2 weeks ago, my boss started asking me

questions about my disease - I got scared that he was digging to find out

more info and then try to can me to avoid any LTD claims. I got very scared

that I was going to lose my job, as I am a family of 5 on 1 salary, so I

checked his email. I then destroyed the logs to cover my tracks. Currently

I am taking oxycodone (325 MG, 4-6 per day, vioxx, prednisone (12 MG) and

arava)...I am seeing a company doctor on February 4, and if he concludes

these medications could indeed have altered my judgement, I will be allowed

back to work. My question is - do I stand a chance? Can oxycodone cause

this stuff to happen?...

[Guest guest]

I didn't know the neuropsychologist did that. 's had an

evaulation from a neuropsychologist, but I didn't know that they did

more than that.

I wish that my neurologist and my pediatrician were more helpful. I

get most of my information from you guys.

I agree that the screaming doesn't help. It didn't even help me. I

just sometimes feel like I'm in a vacuum, and there is no one to

help.

--- In , lloydandleslie@a...

wrote:

> Suzi,

> First a online hug. I have the same problem here. We have been

working with

> a behaviorist and a neuropsychologist. It has really helped. My

son is also

> brain damaged and the way it has been described to me is that the

area that

> controls emotional response is impaired in my sons brain. The

doctor gave us

> this example: if you are driving on a road and you want to run

someone off

> the road, there is a part of our brain that says no, thats wrong

and controls

> the impulse. In my sons brain it is not working. We are doing

intensive

> behavioral techniques to improve this. One improtant thing he

told us is

> that kids like this learn from experience not from emotion. So

yelling and

> all of that is not goin to help him (I know it feels good to

scream during

> frustration). He told us to set up experiences for " practice "

where we just

> go somewhere knowing that he will unbuckle his seatbelt and then

turn around

> and go home. Same thing at the store. He said that eventually he

will

> figure out that acting bad means you go home and don't get to do

anything

> fun. Also, he showed us a 30 second hold that is for brain

impaired

> children. It teaches them to eliminate an undesired response. You

could try

> that in the car.

>

> I highly suggest finding a neuropsychologist. They are awesome.

We just

> started with him and he is doing brain mapping to find out where

s

> brain is damaged and where his strong areas are and then we will

teach him to

> learn through his strong areas and bipass the areas that are

weak. I highly

> recommend this.

>

> Any questions or did I lose you- I have alot of info so fire

away. and hang

> in there. Maybe its time for a moms night out.

>

>

>

>

>

[Guest guest]

I keep crayons and paper and coloring books in the car. She's good

when she is by herself. However, her charming brother and sister

bug her. Mainly, she it's a communication thing. She's trying to

tell me something, and they make noise and interrupt her. She gets

frustrated and mad and gets unbuckled.

I feel sorry for her because she is so frustrated, but she can't get

unbuckled.

> My son get out of his car seat some times- But is non-verbal six

> year old - I know that he does not understand most things so - I

am

> left to just pull over and rebuckle him in - I do try to have

books

> for him to look at in the car- maybe your daughter is bored- view

> finders are great in the car too. I will be looking for more post

on

> this and any ideas. Ann

[Guest guest]

I have had AS for years and am now in so much pain that I am trying various

" poison " drugs before staring Embrel or Remmy..

Although my rheumie knows I am in pain, she has not offered me any pain pills.

Because I am on pred, I am able to function, but will be off it soon.

What is the " right " way to ask?

I feel like a junkie having to beg for pain pills.

I do not see why doctors do not offer up these pills for patients they know

are in pain, and patients that they have had for years..

How can they be sued for just allowing a small prescription, and monitoring

the patient?

I feel like a fool paying all this money for healthcare and having to beg for

pills.

I wish the doctor would at least be willing or fight for thr right to put a

person out of their misery (assisted suicide) if they won't give them pain

pills.

Pris (discouraged)

Show Biz tricks for pigs!

Awaken your pigs mind and give him challenges....

See our book at http://valentinesperformingpigs.com/trainingbook.html

[Guest guest]

Hi Rob! Geoff here.

Dude, you've got some troubles, but they're not terminal yet.

You wrote:

> I have a problem and I need help, please! I was diagnosed with RA in

1994,

> since then have had 2 knee replacements, and am currently in a flare -

have

> been since November. I have been suspended from my job, with pay, pending

> an investigation as to whether or not the medications I am currently

taking

> could have altered my judgement and caused me to do something I shouldn't

> have.

Your concerns are common, but laws vary state-by-state. The ADA is a major

help for you. If the drugs taken for your disease effect you in the

workplace, that may make you eligible for rehabilitation, accommodation and

disability. You may not be eligible for LTD from the workplace under

AOE/COE however, as it would be very difficult to link the disease to a

precipitating agent arising out of employment or in the course of

employment. But reasonable accommodation could set the stage for LTD

AOE/COE.

> About 2 weeks ago, my boss started asking me questions about my

> disease - I got scared that he was digging to find out more info and then

> try to can me to avoid any LTD claims. I got very scared that I was going

> to lose my job, as I am a family of 5 on 1 salary, so I checked his email.

> I then destroyed the logs to cover my tracks.

That was dumb. Fear or not, that was dumb. OTH, if in trespassing through

his e-mail you found evidence that he is trying to access medical

information about you and why, I can only assume you had the presence of

mind to copy it for later use in court or negotiations, if need be.

> Currently I am taking

> oxycodone (325 MG, 4-6 per day, vioxx, prednisone (12 MG) and arava). I

> know that the Oxycodone dedinitely gives me the euphoric feeling, and

> lately, I think it has given me increased fear, anxiety and paranoia. I

am

Fear, anxiety & paranoia are known psychological complications of

*Prednisone*.

> seeing a company doctor on February 4, and if he concludes these

medications

> could indeed have altered my judgement, I will be allowed back to work.

My

> question is - do I stand a chance?

You may need your own Doctor to evaluate as well. The company Doctor may or

may not be an independent voice.

> Can oxycodone cause this stuff to happen?

Wrong place - oxycodone is an opiate agonist, a narcotic analgesic. It will

induce euphoria, reduce pain, and do all the other stuff opiates generally

do. Unless you have obtained large amounts of oxycodone and are taking it

in a way not in compliance with the Rx and in doing so becoming

psychologically and/or physically dependent upon it (addicted,) your nemesis

is most likely Prednisone, not oxycodone. If anything, the oxycodone would

tend to limit your ability to carry act out the aggression, anxiety &

paranoia Prednisone induce. Look here:

http://www.rxlist.com/frame/display.cgi?drug=PERCOLONE for information on

oxycodone.

> Any advice as to what I can say or do to go back to my job - I

> can't lose my position, especially my benefits. Any and all advice is

> greatly appreciated! I am a very very good person - I just got very very

> scared.

Keep your mouth shut, act like nothing happened, be very careful about every

word that comes out of your mouth, the less said the better, and you would

be well served to hire an attorney now to advise (keeping the fact you have

him/her on retainer secret.) You really messed up looking through the

boss's e-mail, this could be very bad and it definitely is NOT something you

want to talk about... with anyone, including your attorney at this point,

and especially in a public forum such as this. Suck it up.

If your boss started asking you questions about your medical situation in

most states that is forbidden by law and doing so sets up your employer for

a high-payoff lawsuit. Changes in the privacy laws over the last 10-20

years have made your medical records private by law. The employer's agent

(your boss) violates that law when he begins questioning you about your

medical history. It is to your benefit to make note of these conversations,

record these conversations, have witnesses to these conversations, generally

refuse to take part in them and, if the boss is so ignorant and inclined, to

not try and dissuade him from tightening the noose. The more he does this,

the greater the benefit to you, again, talk to your attorney and make sure

you put money in *his* pocket up front. Free consultation does not provide

protection in cases of conflict.

You need to take control of your emotions, regardless of how strong they may

be. The drugs definitely have a psychological impact and if you do not

control it, it will control you which you apparently have already

experienced.

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing adrenal damage; 100% volunteer staffed.

[Guest guest]

Hi Pris, Do not be discouraged. lf your doctor will not cooperate with you

and give the pain meds, then l would change doctors immediately. My next

door neighbor has AS and l know he takes some kind of codene, l think #4 and

also NSAIDS. He to was on prednisone and then came off. Are you on NSAIDS

at all? Just tell your doctor that you are in terrible pain and need

something for relief and as l said if she refuses just change doctors. lt

is your health and you must take hold. My neighbor has AS so bad that his

doctor made him order a special bike to ride just to keep moving because of

the pain. He lays way back on the bike and l really do not no how he does

it but it helps. Keep on trying and never give up,because hope springs

eternal. Hang in there Pris.

Hope l have helped in some small way.

Ginger

Re: rheumatic Re: Help!

> I have had AS for years and am now in so much pain that I am trying

various

> " poison " drugs before staring Embrel or Remmy..

> Although my rheumie knows I am in pain, she has not offered me any pain

pills.

> Because I am on pred, I am able to function, but will be off it soon.

> What is the " right " way to ask?

> I feel like a junkie having to beg for pain pills.

> I do not see why doctors do not offer up these pills for patients they

know

> are in pain, and patients that they have had for years..

> How can they be sued for just allowing a small prescription, and

monitoring

> the patient?

> I feel like a fool paying all this money for healthcare and having to beg

for

> pills.

> I wish the doctor would at least be willing or fight for thr right to put

a

> person out of their misery (assisted suicide) if they won't give them pain

> pills.

> Pris (discouraged)

>

> Show Biz tricks for pigs!

> Awaken your pigs mind and give him challenges....

> See our book at http://valentinesperformingpigs.com/trainingbook.html

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

Hi Suzi,

I had an idea which may work depending on the type of seat belt you are using.

Try cutting the top end off a plastic water bottle or soft drink bottle, leaving

a long length of bottle with the base attached. cut a slit in the bottom of the

bottle just wide enough for the seat belt clasp to go through, and push it

through until it comes out of the open end. Do up the seat belt as usual and

push the drink bottle down as far as it will go, maybe until it goes between the

upper and lower part of the seat, so that the seat belt clasp is entirely

covered with the soft plastic of the drink bottle. I have just tried it in my

own car and if you are using the ordinary inertia seat belt with a booster seat

I am sure that it will be more difficult ( not impossible) for a child to fiddle

with the clasp.

Just an idea, perhaps

[Guest guest]

cathy

it sounds like a great idea with the bottle but...any reputable car seat

installer will say that it is unsafe and compromises the seat belts

effectiveness and could lead to the child being ejected from the seat, as if

they weren't even wearing a seatbeat. i don't know about australia but in

the u.s. there is a carseat program called " fit for kids " that will install

any carseat in any make car. the gentleman there has told me even the little

wrap around pads that are worn on the strap by the neck must be removed if

they are to install a carseat or booster seat.

lori

[Guest guest]

I agree. I had to switch doctors several times until I found one

that took my pain seriously and agreed to the treatments I was

suggesting -- inluding the AP. If I would have listened to the first

two doctors, I have no doubt I would still be in extreme pain and at

my wits end.

Sharon

> Hi Pris, Do not be discouraged. lf your doctor will not cooperate

with you

> and give the pain meds, then l would change doctors immediately.

My next

> door neighbor has AS and l know he takes some kind of codene, l

think #4 and

> also NSAIDS. He to was on prednisone and then came off. Are you on

NSAIDS

> at all? Just tell your doctor that you are in terrible pain and need

> something for relief and as l said if she refuses just change

doctors. lt

> is your health and you must take hold. My neighbor has AS so bad

that his

> doctor made him order a special bike to ride just to keep moving

because of

> the pain. He lays way back on the bike and l really do not no how

he does

> it but it helps. Keep on trying and never give up,because hope

springs

> eternal. Hang in there Pris.

> Hope l have helped in some small way.

> Ginger

> Re: rheumatic Re: Help!

>

>

> > I have had AS for years and am now in so much pain that I am

trying

> various

> > " poison " drugs before staring Embrel or Remmy..

> > Although my rheumie knows I am in pain, she has not offered me

any pain

> pills.

> > Because I am on pred, I am able to function, but will be off it

soon.

> > What is the " right " way to ask?

> > I feel like a junkie having to beg for pain pills.

> > I do not see why doctors do not offer up these pills for patients

they

> know

> > are in pain, and patients that they have had for years..

> > How can they be sued for just allowing a small prescription, and

> monitoring

> > the patient?

> > I feel like a fool paying all this money for healthcare and

having to beg

> for

> > pills.

> > I wish the doctor would at least be willing or fight for thr

right to put

> a

> > person out of their misery (assisted suicide) if they won't give

them pain

> > pills.

> > Pris (discouraged)

> >

> > Show Biz tricks for pigs!

> > Awaken your pigs mind and give him challenges....

> > See our book at

http://valentinesperformingpigs.com/trainingbook.html

> >

> > To unsubscribe, email: rheumatic-unsubscribeegroups

> >

> >

> >

[Guest guest]

Does the suger-free candy contain nutrasweet/saccharin? What else does he get

at school but not at home? Is he on probiotics? SFrom: hooten [mailto:

dhooten@...] @...: Tue, 4 Feb 2003

21:21:54 -0800Subject: Re: [ ] Help!It sounds like the candies are

a problem and may or may not be allergy...The swelling sounds like allergy to

me. [ ] Help! I'm hoping someone can shed some light on an

area that I'm concerned about. Over the course of a few months, my son has

developed pimple-like eruptions on his bottom. I'm not really sure what it is

from. I first noticed them when I put him on Nystatin in December and

eliminated sugar with sugar free products. Then during Christmas break (2 weeks

off from school) they disappeared. When he returned to school-they came back.

I have him on Peptizyde and No-Fenols (past 3 weeks, previous Kirkman brand). I

took him out of school on a Wednesday a last week and by Sunday they were

completely gone. However, his first day back to school I noticed a few

eruptions. Today they are all over his bottom. I also noticed that the ring

around his anus appears excoriated (red & amp; raw) and it leaves a little

discharge. The only thing I can think of that it might be would be sugar free

candies he gets at school. Other than that his diet has remained the same.

Could this be a food allergy and are sugar-free products highly allergenic? I

scheduled him a doctors appointment but I don't think his pediatrician will be

much help. For the past 4 years he also has swelling in his buccal cavity

(mouth). The first time I noticed this I rushed him to a center but by the time

I got there it disappeared. The other day I was feeding him something and I

noticed it but it disappeared (went down) while I was still feeding him the same

food. So, I don't think it's a food allergy or maybe it is. Has anyone heard

of this? I look inside his mouth at the buccal cavity (inside cheeks) for bite

marks but find none. The swelling just appears and disappears. Thanks for the

help! Robin

[Guest guest]

It sounds like the candies are a problem and may or may not be allergy...

The swelling sounds like allergy to me.

[ ] Help!

I'm hoping someone can shed some light on an area that I'm concerned about.

Over the course of a few months, my son has developed pimple-like eruptions on

his bottom. I'm not really sure what it is from. I first noticed them when I

put him on Nystatin in December and eliminated sugar with sugar free products.

Then during Christmas break (2 weeks off from school) they disappeared. When he

returned to school-they came back. I have him on Peptizyde and No-Fenols (past

3 weeks, previous Kirkman brand). I took him out of school on a Wednesday a

last week and by Sunday they were completely gone. However, his first day back

to school I noticed a few eruptions. Today they are all over his bottom. I

also noticed that the ring around his anus appears excoriated (red & raw) and it

leaves a little discharge. The only thing I can think of that it might be would

be sugar free candies he gets at school. Other than that his diet has remained

the same. Could this be a food allergy and are sugar-free products highly

allergenic? I scheduled him a doctors appointment but I don't think his

pediatrician will be much help.

For the past 4 years he also has swelling in his buccal cavity (mouth). The

first time I noticed this I rushed him to a center but by the time I got there

it disappeared. The other day I was feeding him something and I noticed it but

it disappeared (went down) while I was still feeding him the same food. So, I

don't think it's a food allergy or maybe it is. Has anyone heard of this? I

look inside his mouth at the buccal cavity (inside cheeks) for bite marks but

find none. The swelling just appears and disappears.

Thanks for the help! Robin

[Guest guest]

Hi Robin,

You have just described a classic yeast flare up.

You should probably start anti-yeast rotation protocol - use

different anti-yeast remedy every couple days.

Vera

--- In , " Robin " <robinhughes@c...>

wrote:

> I'm hoping someone can shed some light on an area that I'm

concerned about. Over the course of a few months, my son has

developed pimple-like eruptions on his bottom. I'm not really sure

what it is from. I first noticed them when I put him on Nystatin in

December and eliminated sugar with sugar free products. Then during

Christmas break (2 weeks off from school) they disappeared. When he

returned to school-they came back. I have him on Peptizyde and No-

Fenols (past 3 weeks, previous Kirkman brand). I took him out of

school on a Wednesday a last week and by Sunday they were completely

gone. However, his first day back to school I noticed a few

eruptions. Today they are all over his bottom. I also noticed that

the ring around his anus appears excoriated (red & raw) and it leaves

a little discharge. The only thing I can think of that it might be

would be sugar free candies he gets at school. Other than that his

diet has remained the same. Could this be a food allergy and are

sugar-free products highly allergenic? I scheduled him a doctors

appointment but I don't think his pediatrician will be much help.

>

> For the past 4 years he also has swelling in his buccal cavity

(mouth). The first time I noticed this I rushed him to a center but

by the time I got there it disappeared. The other day I was feeding

him something and I noticed it but it disappeared (went down) while I

was still feeding him the same food. So, I don't think it's a food

allergy or maybe it is. Has anyone heard of this? I look inside his

mouth at the buccal cavity (inside cheeks) for bite marks but find

none. The swelling just appears and disappears.

>

> Thanks for the help! Robin

>

>

>

[Guest guest]

Hi Vera,

I'm not sure it is a yeast flare up because it seems to go away when

he is not in his classroom. The only thing he doesn't receive at

home that he gets in school is those sugar free candies that contain

sucrolose (splenda brand) and red dyes.

He is currently on HMF Replete which is a strong probiotic that

contains lactobacillus acidophilus, bifidus, bulgaricus and fructo-

oligosaccarides, Yeast Control, and Culturelle.

Robin

- In , " verochkaus <mv@g...> "

<mv@g...> wrote:

> Hi Robin,

> You have just described a classic yeast flare up.

> You should probably start anti-yeast rotation protocol - use

> different anti-yeast remedy every couple days.

>

> Vera

>

>

>

>

> > I'm hoping someone can shed some light on an area that I'm

> concerned about. Over the course of a few months, my son has

> developed pimple-like eruptions on his bottom. I'm not really

sure

> what it is from. I first noticed them when I put him on Nystatin

in

> December and eliminated sugar with sugar free products. Then

during

> Christmas break (2 weeks off from school) they disappeared. When

he

> returned to school-they came back. I have him on Peptizyde and No-

> Fenols (past 3 weeks, previous Kirkman brand). I took him out of

> school on a Wednesday a last week and by Sunday they were

completely

> gone. However, his first day back to school I noticed a few

> eruptions. Today they are all over his bottom. I also noticed

that

> the ring around his anus appears excoriated (red & raw) and it

leaves

> a little discharge. The only thing I can think of that it might

be

> would be sugar free candies he gets at school. Other than that

his

> diet has remained the same. Could this be a food allergy and are

> sugar-free products highly allergenic? I scheduled him a doctors

> appointment but I don't think his pediatrician will be much help.

> >

> > For the past 4 years he also has swelling in his buccal cavity

> (mouth). The first time I noticed this I rushed him to a center

but

> by the time I got there it disappeared. The other day I was

feeding

> him something and I noticed it but it disappeared (went down)

while I

> was still feeding him the same food. So, I don't think it's a

food

> allergy or maybe it is. Has anyone heard of this? I look inside

his

> mouth at the buccal cavity (inside cheeks) for bite marks but find

> none. The swelling just appears and disappears.

> >

> > Thanks for the help! Robin

> >

> >

> >

[Guest guest]

,

The candies contain sucrolose (splenda brand) and it also contains

red dyes. This is the only thing he gets at school that I do not

give at home. He is on Culturelle, HMF Replete (strong probiotics)

and Yeast Control.

Robin

> Does the suger-free candy contain nutrasweet/saccharin? What

else does he get at school but not at home? Is he on probiotics?

S---

>

>

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[Guest guest]

--- In , " Robin " <robinhughes@c...>

wrote:

> I'm hoping someone can shed some light on an area that I'm concerned

about. Over the course of a few months, my son has developed

pimple-like eruptions on his bottom.

This would be yeast for one of my kids, or eating a food/supplement he

did not tolerate.

>>The only thing I can think of that it might be would be

sugar free candies he gets at school. Other than that his diet has

remained the same. Could this be a food allergy and are sugar-free

products highly allergenic?

Give the school another item to give him for snack/treat, see if that

helps.

Dana

[Guest guest]

Lots have issues with red dyes. SFrom: robinehughes2000 [mailto:

robinhughes@...] @...: Wed, 05 Feb 2003

14:50:06 -0000Subject: [ ] Re: Help!,The candies contain

sucrolose (splenda brand) and it also contains red dyes. This is the only thing

he gets at school that I do not give at home. He is on Culturelle, HMF Replete

(strong probiotics) and Yeast Control. Robin & gt; Does the suger-free

candy contain nutrasweet/saccharin? What else does he get at school but not at

home? Is he on probiotics? S--- & gt; & gt; & gt; ADVERTISEMENT & gt; & gt;

=======================================================

[Guest guest]

>>> The candies contain sucrolose (splenda brand) and it also

contains red dyes. This is the only thing he gets at school that I

do not give at home. He is on Culturelle, HMF Replete (strong

probiotics) and Yeast Control.

It might be the dye...but if this seems like a yeast problem, it

might be the sucralose. You have him in an intense yeast program so

he may be really sensitive to little amounts. Information from the

SCDiet says that sucralose is not digestible by humans but it is by

bacteria or yeast. Thus, sucralose is pathogen food if you have a

problem with it.

A different snack seems in order at least for a trial.

.

[Guest guest]

It could be chemicals from the chair he sits on, too.

Andy . . . .. . . . . .

> I'm hoping someone can shed some light on an area that I'm concerned

about. Over the course of a few months, my son has developed

pimple-like eruptions on his bottom. I'm not really sure what it is

from. I first noticed them when I put him on Nystatin in December and

eliminated sugar with sugar free products. Then during Christmas

break (2 weeks off from school) they disappeared. When he returned to

school-they came back. I have him on Peptizyde and No-Fenols (past 3

weeks, previous Kirkman brand). I took him out of school on a

Wednesday a last week and by Sunday they were completely gone.

However, his first day back to school I noticed a few eruptions.

Today they are all over his bottom. I also noticed that the ring

around his anus appears excoriated (red & raw) and it leaves a little

discharge. The only thing I can think of that it might be would be

sugar free candies he gets at school. Other than that his diet has

remained the same. Could this be a food allergy and are sugar-free

products highly allergenic? I scheduled him a doctors appointment but

I don't think his pediatrician will be much help.

>

> For the past 4 years he also has swelling in his buccal cavity

(mouth). The first time I noticed this I rushed him to a center but

by the time I got there it disappeared. The other day I was feeding

him something and I noticed it but it disappeared (went down) while I

was still feeding him the same food. So, I don't think it's a food

allergy or maybe it is. Has anyone heard of this? I look inside his

mouth at the buccal cavity (inside cheeks) for bite marks but find

none. The swelling just appears and disappears.

>

> Thanks for the help! Robin

>

>

> [Non-text portions of this mes

[Guest guest]

Thanks for all the replies. He's been off the " sugar-free " candies

that contained sucralose for 8 days and his bottom is completely

healed! , thanks for the info regarding sucralose being

digestable by yeast or bacteria-it helped confirm that it was a

yeast problem and not allergies. Where do I get more info on this

SCdiet?

Robin

> >>> The candies contain sucrolose (splenda brand) and it also

> contains red dyes. This is the only thing he gets at school that I

> do not give at home. He is on Culturelle, HMF Replete (strong

> probiotics) and Yeast Control.

>

>

> It might be the dye...but if this seems like a yeast problem, it

> might be the sucralose. You have him in an intense yeast program

so

> he may be really sensitive to little amounts. Information from the

> SCDiet says that sucralose is not digestible by humans but it is

by

> bacteria or yeast. Thus, sucralose is pathogen food if you have a

> problem with it.

>

> A different snack seems in order at least for a trial.

> .

[Guest guest]

Oh Kim...

I feel so sorry for you & poor . I have never

been through this situation exactly. (almost 3)

has learned how to unfasten his seat belt on his

carseat. We call him Hudini!!! My older boys have to

keep putting his arms back through the belts and

fasten them.

I swapped seats with his one year old

brother---thinking that maybe he will like this one

better and not try to escape. WRONG. I don't know how

to handle it. I have looked at other carseats to see

if they fasten in a way that he can't get out of, but

so far I can't find one. They all seem to have the

same kind of latch at the breast area. I was even

going to let him pick it out.

So my suggestions is maybe you can get to pick

out a new car seat, a " special one for just the bus " .

I know that not everyone can afford to just go out &

buy a carseat just because our kids don't like the one

they have....but we have to remember that it is their

safety and comfort that counts.

Hope you figure it out soon. GOOD LUCK.

Brock

--- jacksonsmom12000 <kim.gill@...> wrote:

[Guest guest]

Kim,

Congratulations on a successful transition.

Two thoughts crossed my mind, one is the car seat the same as what he

is use to? Is it the harness type or one that he has at home? If it

is exactly like his one at home maybe the fear that it won't go back

home bothers him.

Second, I think it is great that they are allowing your husband to

ride with him. We cannot step foot on the bus forget about riding it!

ANother thought is if it really freaks him out, maybe wait a little

awhile for him to ride the bus. Maybe after some time he will be

asking because he sees his friends go on it and then it will be OK

for him.

Good luck.

denise

> OK listmates: I need help, please! This will probably be

lengthy,

> I will try to be short. Yesterday was 's first day of

> school. He turned 3 yrs. old on Saturday, so he is a brand new 3!

> Just like everyone out there, we prepared for school. We

> took him to the building, showed pictures, went over the day,

> teacher's names, buses, etc. You name it, we did it!

>

> First, the positives. He loves school. He went into the classroom

> just great, took off his coat and shoes, put them away, put his

> backpack away, went to color with other kids...never cried at

> school. The teacher said it was the smoothest transition she had

> ever seen.

>

> Now for the real bad stuff. was absolutely terrified of

the

> bus. Please understand that most of you probably think he was just

> crying....this was SHEER TERROR! Although walked onto the

> bus to go to school....the minute he saw his car-seat, he went into

> terror screaming. Finally, the bus driver suggested that we drive

> to school in our car and follow the bus, which we did.

> did not cry in the car and never took his eyes off the

bus.

> He met the kids coming OFF the bus with the aids...went into

school,

> and as mentioned above, did great at school.

>

> When it came time to go home on the bus (he had no choice at this

> point), he walked onto the bus with the other kids just fine. As

> soon as he saw the carseat...terror screaming! He cried the whole

> way home. He screamed for 45 minutes AFTER he got into the house.

> Honestly, I think he was in shock. When he came " out of it " , he

was

> his great, cute little self. Actually, he started talking in

> sentences. 5 word sentences! HE has never done that before. He

> was 100% verbal. Truly amazing!

>

> So, today was even worse. He would not put his coat/shoes on to go

> to the bus. He ran into a corner and screamed " NO BUS! " When it

> came, turned off the tv and calmly went to the front door

and

> put his coat on. We carried him to the bus (because he was still

> shoeless). He went onto the bus, no crying! We thought we were

home-

> free! The minute he saw that car seat, terror screaming! IN

fact,

> the bus driver could not get him into the seat, and ran off

> the bus and into the house. At that point, we decided that

's

> dad would ride the bus with him tomorrow and we didn't even try to

> get him back out of the house again.

>

> OK guys. We have car-seats! We use them, it is the law. The

school

> asked if we used them....of course we do! We never expected this,

> never! This is not at all like .

>

> Anyone out there familiar with this one?

>

> Thanks. Kim

[Guest guest]

Hi Kim,

You poor dear. I know exactly what type of " cry " you are talking about. Last

October I posted to the list about my son, (3.2 at the time), absolutely

FREAKING OUT about taking the bus. I could not believe that it was possible for

a child to be that upset and frightened about something. We would talk about the

bus, see pictures, point out buses on the road, blah, blah, blah.. he was always

fine and actually excited about the idea of taking the bus until the door of the

bus was in front of him. He would freeze and then start kicking, screaming,

crying and trying to make his way back into the house. I followed the advice of

the driver to put him on the bus and walk away. It absolutely killed me. I cried

all day. We did that for the first two days... I'd buckle him in while he

screamed his head off and then go and cry until he got home. When he got home, I

described the same way you described your son; in shock. When the shock

wore off he'd immediately start telling me he didn't want to go on the bus

anymore and this would go on until he went to bed. Then he got smart.... he

decided that if he wasn't dressed, he wouldn't have to get on the bus so every

time I got him dressed (holding him down kicking and screaming, mind you) he

would promptly remove his clothes as soon as I turned around. You know what I

did? I carried his clothes under onder arm and him under the other. I buckled

him in and stood on the bus dressing him in the carseat (not an easy task).

Thank goodness he has a patient and understanding driver and matron because this

went on for two weeks. His teachers and the driver assured me that after they

pulled away from the house he almost immediately stopped crying. They also

assured me that this ritual would eventually stop. That no kid cries about the

bus forever. They were right. It took a couple of weeks but now he RUNS TO THE

BUS with a big smile and hugs for his driver and matron! It was a painful

journey for all of us but not giving in and showing him that the bus was a safe

and fun place to be, that also happened to bring him to see all of his friends,

paid off in the end.

My greatest fear about not be " tough " about it was that he'd learn to manipulate

me into driving him which isn't an option most of the time due to my older son's

school schedule. I felt like the wicked witch, the worst mother, a meanie....

you name it. But I knew I had to do it.

If it really is the carseat itself ask the driver if there is another style

available. 's driver tried that at one point too but his issue wasn't

with the seat. It was a fear of the unknown. Think about how bizarre that whole

scenario is to a 3 year old. You are putting him in a funny looking vehicle with

total strangers driving him to who knows where and he doesn't know where you are

going to be while all of this is going on. After going to and from for a little

while he'll " get it " . He'll figure out the routine but it will definitely take

time.

Not all kids, or parents for that matter, are cut out for the " tough love "

thing. It worked for us but you will know what's appropriate for your situation.

IMHO, I'd give it a shot. If he's as bad as you say he is it can't get any

worse, right?

Only you know your son but I have a funny feeling that it's not really about the

car seat. It could be that when he looks at it he knows he's going to be

" latched in " and he won't be able to " get away " . Again, just my opinion.

I feel for you with this issue. Been there, done that and it was quite ugly.

Ours ended up being a success story. Please let us know how you make out.

Take Care,

~Dani~

--- In , " jacksonsmom12000 " <kim.gill@g...>

wrote:

> OK listmates: I need help, please! This will probably be lengthy,

> I will try to be short. Yesterday was 's first day of

> school. He turned 3 yrs. old on Saturday, so he is a brand new 3!

> Just like everyone out there, we prepared for school. We

> took him to the building, showed pictures, went over the day,

> teacher's names, buses, etc. You name it, we did it!

>

> First, the positives. He loves school. He went into the classroom

> just great, took off his coat and shoes, put them away, put his

> backpack away, went to color with other kids...never cried at

> school. The teacher said it was the smoothest transition she had

> ever seen.

>

> Now for the real bad stuff. was absolutely terrified of the

> bus. Please understand that most of you probably think he was just

> crying....this was SHEER TERROR! Although walked onto the

> bus to go to school....the minute he saw his car-seat, he went into

> terror screaming. Finally, the bus driver suggested that we drive

> to school in our car and follow the bus, which we did.

> did not cry in the car and never took his eyes off the bus.

> He met the kids coming OFF the bus with the aids...went into school,

> and as mentioned above, did great at school.

>

> When it came time to go home on the bus (he had no choice at this

> point), he walked onto the bus with the other kids just fine. As

> soon as he saw the carseat...terror screaming! He cried the whole

> way home. He screamed for 45 minutes AFTER he got into the house.

> Honestly, I think he was in shock. When he came " out of it " , he was

> his great, cute little self. Actually, he started talking in

> sentences. 5 word sentences! HE has never done that before. He

> was 100% verbal. Truly amazing!

>

> So, today was even worse. He would not put his coat/shoes on to go

> to the bus. He ran into a corner and screamed " NO BUS! " When it

> came, turned off the tv and calmly went to the front door and

> put his coat on. We carried him to the bus (because he was still

> shoeless). He went onto the bus, no crying! We thought we were home-

> free! The minute he saw that car seat, terror screaming! IN fact,

> the bus driver could not get him into the seat, and ran off

> the bus and into the house. At that point, we decided that 's

> dad would ride the bus with him tomorrow and we didn't even try to

> get him back out of the house again.

>

> OK guys. We have car-seats! We use them, it is the law. The school

> asked if we used them....of course we do! We never expected this,

> never! This is not at all like .

>

> Anyone out there familiar with this one?

>

> Thanks. Kim