Re: (unknown)

November 10, 2002

Shirley,

You are always a breath of fresh air here. I don't think you could

drive anyone away. You are just too real and say it like it is. I love

to read whatever you end up writing.

Donna

To learn more about LBD Disease, please visit the Lewy Body Disease

Association site at:

http://www.lewybodydisease.org

November 11, 2002

Shirley

...... " atleast I can tell people I HAD a flying Iguana " ...what a hoot.

Thank you for the laugh, I hope it was meant to be funny any way. You

really have a way with words. :-)))

Sandie

November 18, 2002

Once again, case in point. My Mom receives 30mg of Remeron at night. This

doesn't seem to have any affect on her agitation.

Every one with this disease is so unique.

Mariea

November 18, 2002

Remeron agitated my dad more, and worked in almost an opposite effect.

We had taken him off of it pretty quickly.

Sandie

November 19, 2002

My dad had really bad hallucinations at first but was helped by drugs. Firstly

he was given Olanzipine which seemed to suit him. They then changed it to

Quetiapine (Seroquel) which surpressed the hallucinations but I thought made

tremors much worse and I wasn't as convinced as the 'experts' on suitability.

Nothing works forever - just trial and error with dosages I'm afraid. Hope this

helps

Sally xx

(unknown)

I am interested in medications with best results for hallucinations

as well. I feel that my Mom's # one complaint is the never quiet

hallucinations. They are an ongoing never stopping item with her.

She had been able to just have kids, now it is adults (and they really

upset her) and even animals . SHe has very little ability to

carry on a conversation anymore because of confussion of all the

people and keeping anything straight. She takes only Remeron. Help

with the hallucinations would be a wonderful thing

s

November 19, 2002

My dad had really bad hallucinations at first but was helped by drugs. Firstly

he was given Olanzipine which seemed to suit him. They then changed it to

Quetiapine (Seroquel) which surpressed the hallucinations but I thought made

tremors much worse and I wasn't as convinced as the 'experts' on suitability.

Nothing works forever - just trial and error with dosages I'm afraid. Hope this

helps

Sally xx

(unknown)

I am interested in medications with best results for hallucinations

as well. I feel that my Mom's # one complaint is the never quiet

hallucinations. They are an ongoing never stopping item with her.

She had been able to just have kids, now it is adults (and they really

upset her) and even animals . SHe has very little ability to

carry on a conversation anymore because of confussion of all the

people and keeping anything straight. She takes only Remeron. Help

with the hallucinations would be a wonderful thing

s

November 19, 2002

I learned early on that I couldn't give my mom what others were given.

If a pill was prescribed for her, I gave her 1/2 or 1/4 of a pill.

Zanax was one most people can't take but when I gave her 1/4 of a pill,

three times a day it just leveled her out.

If the MD at the nh prescribed a pill, {or two} for pain or anything

else, I made them cut it way back. And as long as I kept on top of it,

I knew when they tried to give her more, and I would remind them she

couldn't take that much. When she was with me, I could regulate it and

when she went into a nh, I just kept fighting about the meds. She

needed very little to be effective and they kept wanting to give her

more. Zoned out was not ok with me.

Donna

November 19, 2002

Donna

Bless your heart for the wonderful care, love, and concern you gave your

mom. :-))

Love-

Sandie

November 19, 2002

Donna

Bless your heart for the wonderful care, love, and concern you gave your

mom. :-))

Love-

Sandie

November 26, 2002

Shirley,

What can I say? It sounds like this nh is something you don't want to

do, but have to, to survive. I just keep trying to help myself

understand, now that it is over, I was fighting a losing war with death.

So no matter how you and your parents do it,

finally someday it will be over and the end results are the same no

matter how you do it.

I always compare it to the child birth thing that seems to be happening

all around us. It is a different fight at the present and it is for

life and the outcome is different. We help the little ones survive and

things do get better. That is not what I was faced with things don't

" get better. " Not by our standards. I didn't want to accept death as

better, even when it was better.

Take a deep breath and know you are doing the best you can, no matter

the decision. Only you can know your limits, and we can't give up our

lives because that isn't the way things are to be. Good luck!

Donna

July 17, 2003

Hum...............I really had to think about that one.

Once or twice a year maybe for a second or two. )

Then I just make a different choice and Walla............good mood.

Susie

Susie, I just gotta ask - Are you ever in a bad mood? LOL!

July 17, 2003

Hum...............I really had to think about that one.

Once or twice a year maybe for a second or two. )

Then I just make a different choice and Walla............good mood.

Susie

Susie, I just gotta ask - Are you ever in a bad mood? LOL!

August 28, 2003

ine, it will be okay. Remember, " this too shall pass " or in other

words, this is a temporary setback or feeling that you are currently going

through. It will run its course, and then you will feel better! It won't last

forever. Honest!

Also, ask the sisters for some music of the hymns as that will help you

alot. If you can't go out for awhile from your apt., then listen to the words

and the music of the hymns and hum them while you clean house, or whatever. You

will find that they comfort you alot.

And call some people for rides when you need to!! All they can say is

" no " , if they can't do it. But, you will never know if someone was willing to

help with a ride, unless you ask for one. Good Luck to you. ine, things

will get better.

Remember, things have been bad before, and it got better. Now it is bad

again, but it won't always be that way. Keep hanging in there! I will be

praying for you also.

Love, PJ

ine Tague wrote:

Well, I'm angry, depressed, feel usless, empty, lonely..........I finally

decided that perhaps maybe if I found a class to take somewhere I could go by

bus and meet people and find more things to do that I could enjoy. All classes

are in the evening when I can't go-no car or are scrapbooking which I extremely

detest. Or I can't get to the places. I feel so hopeless. I can't stand my

life anymore. How much loneliness can you handle? I have my aggriphobia again

so it is hard to get out. I feel like I am in a jail................I feel so

inadequate that I can't even crochet by myself. I need people around

me--mommies. pauline

August 28, 2003

ine,

Another thing you can do is to give yourself a big bear hug. Also,

imagine your God giving you a big bear hug. God loves you, and is always there

with you. When you are hurting the most, He is carrying you.

And, love the little child - ine that is inside of you. Give her

comfort and hugs as she will be okay. Sending you hugs through the email

also!!! PJ