Guest guest Report post Posted October 9, 2011 Thanks for directing me. All the best Nevin > > > > Hello! > > > > There is a discussion in my group about the use of NDF...cholerella.,cilantro....Could you direct me what is the evidence for Andy Cutler says' that these two causes the metal distribution in the body.? I expressed this and it started a discussion.I haven't got Cutler's book?How does he know that cholerella is not right to use as an chelating agent or supporting the detox??? Does any tests give this evidence of re-distrubition? > > People are happy to use NDF in Turkey..Dr Klinghardt is happy to use it.DrAmy Yasko's protocol..you may see ALA...I would like to hear particularly about the use of cholerella and cilantro? > > > > I would really appreciate if you could direct me any reference,articles for this please > > Thanks > > Nevin > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 9, 2011 Thanks for directing me. All the best Nevin > > > > Hello! > > > > There is a discussion in my group about the use of NDF...cholerella.,cilantro....Could you direct me what is the evidence for Andy Cutler says' that these two causes the metal distribution in the body.? I expressed this and it started a discussion.I haven't got Cutler's book?How does he know that cholerella is not right to use as an chelating agent or supporting the detox??? Does any tests give this evidence of re-distrubition? > > People are happy to use NDF in Turkey..Dr Klinghardt is happy to use it.DrAmy Yasko's protocol..you may see ALA...I would like to hear particularly about the use of cholerella and cilantro? > > > > I would really appreciate if you could direct me any reference,articles for this please > > Thanks > > Nevin > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 9, 2011 Thanks for directing me. All the best Nevin > > > > Hello! > > > > There is a discussion in my group about the use of NDF...cholerella.,cilantro....Could you direct me what is the evidence for Andy Cutler says' that these two causes the metal distribution in the body.? I expressed this and it started a discussion.I haven't got Cutler's book?How does he know that cholerella is not right to use as an chelating agent or supporting the detox??? Does any tests give this evidence of re-distrubition? > > People are happy to use NDF in Turkey..Dr Klinghardt is happy to use it.DrAmy Yasko's protocol..you may see ALA...I would like to hear particularly about the use of cholerella and cilantro? > > > > I would really appreciate if you could direct me any reference,articles for this please > > Thanks > > Nevin > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 9, 2011 Dear Mandi, Thanks again.I shared your words. All the best Nevin > > To mobilise you only need one Thiol group, to mobilise and EXCRETE (which > is the whole aim of chelation) then you need 2 thoil groups, Chorella and > cilantro only have one and nobody knows the half life > > Mx > > > In a message dated 08/10/2011 14:23:49 GMT Daylight Time, > Nevin.Penny@... writes: > > > > > Hello! > > There is a discussion in my group about the use of > NDF...cholerella.,cilantro....Could you direct me what is the evidence for Andy Cutler says' that > these two causes the metal distribution in the body.? I expressed this and > it started a discussion.I haven't got Cutler's book?How does he know that > cholerella is not right to use as an chelating agent or supporting the > detox??? Does any tests give this evidence of re-distrubition? > People are happy to use NDF in Turkey..Dr Klinghardt is happy to use > it.DrAmy Yasko's protocol..you may see ALA...I would like to hear particularly > about the use of cholerella and cilantro? > > I would really appreciate if you could direct me any reference,articles > for this please > Thanks > Nevin > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 9, 2011 Dear Mandi, Thanks again.I shared your words. All the best Nevin > > To mobilise you only need one Thiol group, to mobilise and EXCRETE (which > is the whole aim of chelation) then you need 2 thoil groups, Chorella and > cilantro only have one and nobody knows the half life > > Mx > > > In a message dated 08/10/2011 14:23:49 GMT Daylight Time, > Nevin.Penny@... writes: > > > > > Hello! > > There is a discussion in my group about the use of > NDF...cholerella.,cilantro....Could you direct me what is the evidence for Andy Cutler says' that > these two causes the metal distribution in the body.? I expressed this and > it started a discussion.I haven't got Cutler's book?How does he know that > cholerella is not right to use as an chelating agent or supporting the > detox??? Does any tests give this evidence of re-distrubition? > People are happy to use NDF in Turkey..Dr Klinghardt is happy to use > it.DrAmy Yasko's protocol..you may see ALA...I would like to hear particularly > about the use of cholerella and cilantro? > > I would really appreciate if you could direct me any reference,articles > for this please > Thanks > Nevin > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 9, 2011 Dear Mandi, Thanks again.I shared your words. All the best Nevin > > To mobilise you only need one Thiol group, to mobilise and EXCRETE (which > is the whole aim of chelation) then you need 2 thoil groups, Chorella and > cilantro only have one and nobody knows the half life > > Mx > > > In a message dated 08/10/2011 14:23:49 GMT Daylight Time, > Nevin.Penny@... writes: > > > > > Hello! > > There is a discussion in my group about the use of > NDF...cholerella.,cilantro....Could you direct me what is the evidence for Andy Cutler says' that > these two causes the metal distribution in the body.? I expressed this and > it started a discussion.I haven't got Cutler's book?How does he know that > cholerella is not right to use as an chelating agent or supporting the > detox??? Does any tests give this evidence of re-distrubition? > People are happy to use NDF in Turkey..Dr Klinghardt is happy to use > it.DrAmy Yasko's protocol..you may see ALA...I would like to hear particularly > about the use of cholerella and cilantro? > > I would really appreciate if you could direct me any reference,articles > for this please > Thanks > Nevin > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 11, 2011 Hello Margaret, I've found a few but I am glad to ask here, because doctors are also sensitive.They are not always happy with the patients who are asking a lot, especially parents with internet knowledge..I can understand their sensitivity so my effort is trying to get the positive outcome without disturbing any relationship..Sometimes I am more direct and I can make mistakes..Again, I feel that they found something and hopefully it may direct us some recommendations otherwise hearing " normal " is not good enough because my son has a problem,if everything was normal he wouldn't have this problem.. Thanks for your thoughts.. All the best nevin > > > > > > From: tiredbee2006 <Nevin.Penny@> > > > Subject: CSF elavated dihydrobiopterin ! > > > To: Autism-Biomedical-Europe > > > Date: Tuesday, 11 October, 2011, 8:44 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello again! > > > > > > > > > > > > Yesterday we had an appointment at the Great Ormond Street Hospital .My son had MRI,lumbar puncture and various blood tests in July.I shared his seizures on this platform before..I was told all the tests were normal,neurotransmitters...metabolic markers..didn't tell me virus if he had any and I forgotten to ask.I asked them to send all the detailed results to dr Goyal, so I can see the values.They didn't look at ammonia...gaba-glutamate....relation..they didn't look at but I was told ,if something was wrong with these two, it would have reflected to another test which I can't remember the name now.. > > > > > > One marker was significant but they don't know the importance and couldn't explain it to me! I look at the internet.Perhaps this is the sign for his seizures....it is a very important cofactor in metabolic pathways.... > > > > > > Another research which I found in Pub Med points to " two amino acids,citrulineand methinonine..and both aresubstrates in inflammation and oxidative stress patways-two pathways that utilize BH(4) and abnoarmally activated in autism " . > > > > > > MY son's amino acids are in urine normal, they told me but blood tests was repeated. > > > > > > I am writing to the neurologist at Great Ormond and asking their interpretation as the internet science resources have already cited some studies surely they should know more, shouldn't they?? > > > > > > In daily life.....there are some improvements on my son's condtion,seizures are widen the gap a bit, over a month we haven't seen it, I hope we won't see it again.I've been doing DrYasko's first phase protocol,5-6 RNAs,small amouns daily together with the immune support stuff..withdrawn all allergic food, avaoid glutamae contained foods..so far he looks better,even he put some weight on.Definetely I need more guidance,hopefully Dr Goyal shows interest in Yasko protocol and supports me.We will see him next week. > > > > > > If any one can tell anything about elavated " CSF dihydrobiopterin " , please share. > > > > > > Thanks > > > > > > Nevin > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 11, 2011 Hello Margaret, I've found a few but I am glad to ask here, because doctors are also sensitive.They are not always happy with the patients who are asking a lot, especially parents with internet knowledge..I can understand their sensitivity so my effort is trying to get the positive outcome without disturbing any relationship..Sometimes I am more direct and I can make mistakes..Again, I feel that they found something and hopefully it may direct us some recommendations otherwise hearing " normal " is not good enough because my son has a problem,if everything was normal he wouldn't have this problem.. Thanks for your thoughts.. All the best nevin > > > > > > From: tiredbee2006 <Nevin.Penny@> > > > Subject: CSF elavated dihydrobiopterin ! > > > To: Autism-Biomedical-Europe > > > Date: Tuesday, 11 October, 2011, 8:44 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello again! > > > > > > > > > > > > Yesterday we had an appointment at the Great Ormond Street Hospital .My son had MRI,lumbar puncture and various blood tests in July.I shared his seizures on this platform before..I was told all the tests were normal,neurotransmitters...metabolic markers..didn't tell me virus if he had any and I forgotten to ask.I asked them to send all the detailed results to dr Goyal, so I can see the values.They didn't look at ammonia...gaba-glutamate....relation..they didn't look at but I was told ,if something was wrong with these two, it would have reflected to another test which I can't remember the name now.. > > > > > > One marker was significant but they don't know the importance and couldn't explain it to me! I look at the internet.Perhaps this is the sign for his seizures....it is a very important cofactor in metabolic pathways.... > > > > > > Another research which I found in Pub Med points to " two amino acids,citrulineand methinonine..and both aresubstrates in inflammation and oxidative stress patways-two pathways that utilize BH(4) and abnoarmally activated in autism " . > > > > > > MY son's amino acids are in urine normal, they told me but blood tests was repeated. > > > > > > I am writing to the neurologist at Great Ormond and asking their interpretation as the internet science resources have already cited some studies surely they should know more, shouldn't they?? > > > > > > In daily life.....there are some improvements on my son's condtion,seizures are widen the gap a bit, over a month we haven't seen it, I hope we won't see it again.I've been doing DrYasko's first phase protocol,5-6 RNAs,small amouns daily together with the immune support stuff..withdrawn all allergic food, avaoid glutamae contained foods..so far he looks better,even he put some weight on.Definetely I need more guidance,hopefully Dr Goyal shows interest in Yasko protocol and supports me.We will see him next week. > > > > > > If any one can tell anything about elavated " CSF dihydrobiopterin " , please share. > > > > > > Thanks > > > > > > Nevin > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 11, 2011 Dear Ken, Thank you very much for your recommendations,very helpful for me. I don't know what Hcy level is, in fact I don't know what HCy means? Is it mercury, toxic level? If it is mercury....no blood test showed any toxic elements.Hopefully I will see the full test results via DrGoyal, they will send copies to him.If it is not normal what does it mean? Nevin > > > > From: tiredbee2006 <Nevin.Penny@> > > Subject: CSF elavated dihydrobiopterin ! > > To: Autism-Biomedical-Europe > > Date: Tuesday, 11 October, 2011, 8:44 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > Hello again! > > > > > > > > Yesterday we had an appointment at the Great Ormond Street Hospital .My son had MRI,lumbar puncture and various blood tests in July.I shared his seizures on this platform before..I was told all the tests were normal,neurotransmitters...metabolic markers..didn't tell me virus if he had any and I forgotten to ask.I asked them to send all the detailed results to dr Goyal, so I can see the values.They didn't look at ammonia...gaba-glutamate....relation..they didn't look at but I was told ,if something was wrong with these two, it would have reflected to another test which I can't remember the name now.. > > > > One marker was significant but they don't know the importance and couldn't explain it to me! I look at the internet.Perhaps this is the sign for his seizures....it is a very important cofactor in metabolic pathways.... > > > > Another research which I found in Pub Med points to " two amino acids,citrulineand methinonine..and both aresubstrates in inflammation and oxidative stress patways-two pathways that utilize BH(4) and abnoarmally activated in autism " . > > > > MY son's amino acids are in urine normal, they told me but blood tests was repeated. > > > > I am writing to the neurologist at Great Ormond and asking their interpretation as the internet science resources have already cited some studies surely they should know more, shouldn't they?? > > > > In daily life.....there are some improvements on my son's condtion,seizures are widen the gap a bit, over a month we haven't seen it, I hope we won't see it again.I've been doing DrYasko's first phase protocol,5-6 RNAs,small amouns daily together with the immune support stuff..withdrawn all allergic food, avaoid glutamae contained foods..so far he looks better,even he put some weight on.Definetely I need more guidance,hopefully Dr Goyal shows interest in Yasko protocol and supports me.We will see him next week. > > > > If any one can tell anything about elavated " CSF dihydrobiopterin " , please share. > > > > Thanks > > > > Nevin > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 11, 2011 Dear Ken, Thank you very much for your recommendations,very helpful for me. I don't know what Hcy level is, in fact I don't know what HCy means? Is it mercury, toxic level? If it is mercury....no blood test showed any toxic elements.Hopefully I will see the full test results via DrGoyal, they will send copies to him.If it is not normal what does it mean? Nevin > > > > From: tiredbee2006 <Nevin.Penny@> > > Subject: CSF elavated dihydrobiopterin ! > > To: Autism-Biomedical-Europe > > Date: Tuesday, 11 October, 2011, 8:44 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > Hello again! > > > > > > > > Yesterday we had an appointment at the Great Ormond Street Hospital .My son had MRI,lumbar puncture and various blood tests in July.I shared his seizures on this platform before..I was told all the tests were normal,neurotransmitters...metabolic markers..didn't tell me virus if he had any and I forgotten to ask.I asked them to send all the detailed results to dr Goyal, so I can see the values.They didn't look at ammonia...gaba-glutamate....relation..they didn't look at but I was told ,if something was wrong with these two, it would have reflected to another test which I can't remember the name now.. > > > > One marker was significant but they don't know the importance and couldn't explain it to me! I look at the internet.Perhaps this is the sign for his seizures....it is a very important cofactor in metabolic pathways.... > > > > Another research which I found in Pub Med points to " two amino acids,citrulineand methinonine..and both aresubstrates in inflammation and oxidative stress patways-two pathways that utilize BH(4) and abnoarmally activated in autism " . > > > > MY son's amino acids are in urine normal, they told me but blood tests was repeated. > > > > I am writing to the neurologist at Great Ormond and asking their interpretation as the internet science resources have already cited some studies surely they should know more, shouldn't they?? > > > > In daily life.....there are some improvements on my son's condtion,seizures are widen the gap a bit, over a month we haven't seen it, I hope we won't see it again.I've been doing DrYasko's first phase protocol,5-6 RNAs,small amouns daily together with the immune support stuff..withdrawn all allergic food, avaoid glutamae contained foods..so far he looks better,even he put some weight on.Definetely I need more guidance,hopefully Dr Goyal shows interest in Yasko protocol and supports me.We will see him next week. > > > > If any one can tell anything about elavated " CSF dihydrobiopterin " , please share. > > > > Thanks > > > > Nevin > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 11, 2011 Dear Ken, Thank you very much for your recommendations,very helpful for me. I don't know what Hcy level is, in fact I don't know what HCy means? Is it mercury, toxic level? If it is mercury....no blood test showed any toxic elements.Hopefully I will see the full test results via DrGoyal, they will send copies to him.If it is not normal what does it mean? Nevin > > > > From: tiredbee2006 <Nevin.Penny@> > > Subject: CSF elavated dihydrobiopterin ! > > To: Autism-Biomedical-Europe > > Date: Tuesday, 11 October, 2011, 8:44 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > Hello again! > > > > > > > > Yesterday we had an appointment at the Great Ormond Street Hospital .My son had MRI,lumbar puncture and various blood tests in July.I shared his seizures on this platform before..I was told all the tests were normal,neurotransmitters...metabolic markers..didn't tell me virus if he had any and I forgotten to ask.I asked them to send all the detailed results to dr Goyal, so I can see the values.They didn't look at ammonia...gaba-glutamate....relation..they didn't look at but I was told ,if something was wrong with these two, it would have reflected to another test which I can't remember the name now.. > > > > One marker was significant but they don't know the importance and couldn't explain it to me! I look at the internet.Perhaps this is the sign for his seizures....it is a very important cofactor in metabolic pathways.... > > > > Another research which I found in Pub Med points to " two amino acids,citrulineand methinonine..and both aresubstrates in inflammation and oxidative stress patways-two pathways that utilize BH(4) and abnoarmally activated in autism " . > > > > MY son's amino acids are in urine normal, they told me but blood tests was repeated. > > > > I am writing to the neurologist at Great Ormond and asking their interpretation as the internet science resources have already cited some studies surely they should know more, shouldn't they?? > > > > In daily life.....there are some improvements on my son's condtion,seizures are widen the gap a bit, over a month we haven't seen it, I hope we won't see it again.I've been doing DrYasko's first phase protocol,5-6 RNAs,small amouns daily together with the immune support stuff..withdrawn all allergic food, avaoid glutamae contained foods..so far he looks better,even he put some weight on.Definetely I need more guidance,hopefully Dr Goyal shows interest in Yasko protocol and supports me.We will see him next week. > > > > If any one can tell anything about elavated " CSF dihydrobiopterin " , please share. > > > > Thanks > > > > Nevin > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 11, 2011 Hi Nevin, Hcy = homocysteine Ken Subject: Re:To: Autism-Biomedical-Europe Date: Tuesday, 11 October, 2011, 13:50 Dear Ken,Thank you very much for your recommendations,very helpful for me.I don't know what Hcy level is, in fact I don't know what HCy means? Is it mercury, toxic level?If it is mercury....no blood test showed any toxic elements.Hopefully I will see the full test results via DrGoyal, they will send copies to him.If it is not normal what does it mean?Nevin> > > > From: tiredbee2006 <Nevin.Penny@>> > Subject: CSF elavated dihydrobiopterin !> > To: Autism-Biomedical-Europe > > Date: Tuesday, 11 October, 2011, 8:44> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > Hello again!> > > > > > > > Yesterday we had an appointment at the Great Ormond Street Hospital .My son had MRI,lumbar puncture and various blood tests in July.I shared his seizures on this platform before..I was told all the tests were normal,neurotransmitters...metabolic markers..didn't tell me virus if he had any and I forgotten to ask.I asked them to send all the detailed results to dr Goyal, so I can see the values.They didn't look at ammonia...gaba-glutamate....relation..they didn't look at but I was told ,if something was wrong with these two, it would have reflected to another test which I can't remember the name now..> > > > One marker was significant but they don't know the importance and couldn't explain it to me! I look at the internet.Perhaps this is the sign for his seizures....it is a very important cofactor in metabolic pathways....> > > > Another research which I found in Pub Med points to "two amino acids,citrulineand methinonine..and both aresubstrates in inflammation and oxidative stress patways-two pathways that utilize BH(4) and abnoarmally activated in autism".> > > > MY son's amino acids are in urine normal, they told me but blood tests was repeated.> > > > I am writing to the neurologist at Great Ormond and asking their interpretation as the internet science resources have already cited some studies surely they should know more, shouldn't they??> > > > In daily life.....there are some improvements on my son's condtion,seizures are widen the gap a bit, over a month we haven't seen it, I hope we won't see it again.I've been doing DrYasko's first phase protocol,5-6 RNAs,small amouns daily together with the immune support stuff..withdrawn all allergic food, avaoid glutamae contained foods..so far he looks better,even he put some weight on.Definetely I need more guidance,hopefully Dr Goyal shows interest in Yasko protocol and supports me.We will see him next week.> > > > If any one can tell anything about elavated "CSF dihydrobiopterin", please share.> > > > Thanks> > > > Nevin> >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 11, 2011 Hi Nevin, Hcy = homocysteine Ken Subject: Re:To: Autism-Biomedical-Europe Date: Tuesday, 11 October, 2011, 13:50 Dear Ken,Thank you very much for your recommendations,very helpful for me.I don't know what Hcy level is, in fact I don't know what HCy means? Is it mercury, toxic level?If it is mercury....no blood test showed any toxic elements.Hopefully I will see the full test results via DrGoyal, they will send copies to him.If it is not normal what does it mean?Nevin> > > > From: tiredbee2006 <Nevin.Penny@>> > Subject: CSF elavated dihydrobiopterin !> > To: Autism-Biomedical-Europe > > Date: Tuesday, 11 October, 2011, 8:44> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > Hello again!> > > > > > > > Yesterday we had an appointment at the Great Ormond Street Hospital .My son had MRI,lumbar puncture and various blood tests in July.I shared his seizures on this platform before..I was told all the tests were normal,neurotransmitters...metabolic markers..didn't tell me virus if he had any and I forgotten to ask.I asked them to send all the detailed results to dr Goyal, so I can see the values.They didn't look at ammonia...gaba-glutamate....relation..they didn't look at but I was told ,if something was wrong with these two, it would have reflected to another test which I can't remember the name now..> > > > One marker was significant but they don't know the importance and couldn't explain it to me! I look at the internet.Perhaps this is the sign for his seizures....it is a very important cofactor in metabolic pathways....> > > > Another research which I found in Pub Med points to "two amino acids,citrulineand methinonine..and both aresubstrates in inflammation and oxidative stress patways-two pathways that utilize BH(4) and abnoarmally activated in autism".> > > > MY son's amino acids are in urine normal, they told me but blood tests was repeated.> > > > I am writing to the neurologist at Great Ormond and asking their interpretation as the internet science resources have already cited some studies surely they should know more, shouldn't they??> > > > In daily life.....there are some improvements on my son's condtion,seizures are widen the gap a bit, over a month we haven't seen it, I hope we won't see it again.I've been doing DrYasko's first phase protocol,5-6 RNAs,small amouns daily together with the immune support stuff..withdrawn all allergic food, avaoid glutamae contained foods..so far he looks better,even he put some weight on.Definetely I need more guidance,hopefully Dr Goyal shows interest in Yasko protocol and supports me.We will see him next week.> > > > If any one can tell anything about elavated "CSF dihydrobiopterin", please share.> > > > Thanks> > > > Nevin> >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 11, 2011 Hi Nevin, Hcy = homocysteine Ken Subject: Re:To: Autism-Biomedical-Europe Date: Tuesday, 11 October, 2011, 13:50 Dear Ken,Thank you very much for your recommendations,very helpful for me.I don't know what Hcy level is, in fact I don't know what HCy means? Is it mercury, toxic level?If it is mercury....no blood test showed any toxic elements.Hopefully I will see the full test results via DrGoyal, they will send copies to him.If it is not normal what does it mean?Nevin> > > > From: tiredbee2006 <Nevin.Penny@>> > Subject: CSF elavated dihydrobiopterin !> > To: Autism-Biomedical-Europe > > Date: Tuesday, 11 October, 2011, 8:44> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > Hello again!> > > > > > > > Yesterday we had an appointment at the Great Ormond Street Hospital .My son had MRI,lumbar puncture and various blood tests in July.I shared his seizures on this platform before..I was told all the tests were normal,neurotransmitters...metabolic markers..didn't tell me virus if he had any and I forgotten to ask.I asked them to send all the detailed results to dr Goyal, so I can see the values.They didn't look at ammonia...gaba-glutamate....relation..they didn't look at but I was told ,if something was wrong with these two, it would have reflected to another test which I can't remember the name now..> > > > One marker was significant but they don't know the importance and couldn't explain it to me! I look at the internet.Perhaps this is the sign for his seizures....it is a very important cofactor in metabolic pathways....> > > > Another research which I found in Pub Med points to "two amino acids,citrulineand methinonine..and both aresubstrates in inflammation and oxidative stress patways-two pathways that utilize BH(4) and abnoarmally activated in autism".> > > > MY son's amino acids are in urine normal, they told me but blood tests was repeated.> > > > I am writing to the neurologist at Great Ormond and asking their interpretation as the internet science resources have already cited some studies surely they should know more, shouldn't they??> > > > In daily life.....there are some improvements on my son's condtion,seizures are widen the gap a bit, over a month we haven't seen it, I hope we won't see it again.I've been doing DrYasko's first phase protocol,5-6 RNAs,small amouns daily together with the immune support stuff..withdrawn all allergic food, avaoid glutamae contained foods..so far he looks better,even he put some weight on.Definetely I need more guidance,hopefully Dr Goyal shows interest in Yasko protocol and supports me.We will see him next week.> > > > If any one can tell anything about elavated "CSF dihydrobiopterin", please share.> > > > Thanks> > > > Nevin> >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 11, 2011 Dear Ken, I don't know it yet.When I learn more, I may ask you again if you don't mind please. Thanks for the information. All the best nevin > > > > > > From: tiredbee2006 <Nevin.Penny@> > > > Subject: CSF elavated dihydrobiopterin ! > > > To: Autism-Biomedical-Europe > > > Date: Tuesday, 11 October, 2011, 8:44 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello again! > > > > > > > > > > > > Yesterday we had an appointment at the Great Ormond Street Hospital .My son had MRI,lumbar puncture and various blood tests in July.I shared his seizures on this platform before..I was told all the tests were normal,neurotransmitters...metabolic markers..didn't tell me virus if he had any and I forgotten to ask.I asked them to send all the detailed results to dr Goyal, so I can see the values.They didn't look at ammonia...gaba-glutamate....relation..they didn't look at but I was told ,if something was wrong with these two, it would have reflected to another test which I can't remember the name now.. > > > > > > One marker was significant but they don't know the importance and couldn't explain it to me! I look at the internet.Perhaps this is the sign for his seizures....it is a very important cofactor in metabolic pathways.... > > > > > > Another research which I found in Pub Med points to " two amino acids,citrulineand methinonine..and both aresubstrates in inflammation and oxidative stress patways-two pathways that utilize BH(4) and abnoarmally activated in autism " . > > > > > > MY son's amino acids are in urine normal, they told me but blood tests was repeated. > > > > > > I am writing to the neurologist at Great Ormond and asking their interpretation as the internet science resources have already cited some studies surely they should know more, shouldn't they?? > > > > > > In daily life.....there are some improvements on my son's condtion,seizures are widen the gap a bit, over a month we haven't seen it, I hope we won't see it again.I've been doing DrYasko's first phase protocol,5-6 RNAs,small amouns daily together with the immune support stuff..withdrawn all allergic food, avaoid glutamae contained foods..so far he looks better,even he put some weight on.Definetely I need more guidance,hopefully Dr Goyal shows interest in Yasko protocol and supports me.We will see him next week. > > > > > > If any one can tell anything about elavated " CSF dihydrobiopterin " , please share. > > > > > > Thanks > > > > > > Nevin > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 11, 2011 Dear Ken, I don't know it yet.When I learn more, I may ask you again if you don't mind please. Thanks for the information. All the best nevin > > > > > > From: tiredbee2006 <Nevin.Penny@> > > > Subject: CSF elavated dihydrobiopterin ! > > > To: Autism-Biomedical-Europe > > > Date: Tuesday, 11 October, 2011, 8:44 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello again! > > > > > > > > > > > > Yesterday we had an appointment at the Great Ormond Street Hospital .My son had MRI,lumbar puncture and various blood tests in July.I shared his seizures on this platform before..I was told all the tests were normal,neurotransmitters...metabolic markers..didn't tell me virus if he had any and I forgotten to ask.I asked them to send all the detailed results to dr Goyal, so I can see the values.They didn't look at ammonia...gaba-glutamate....relation..they didn't look at but I was told ,if something was wrong with these two, it would have reflected to another test which I can't remember the name now.. > > > > > > One marker was significant but they don't know the importance and couldn't explain it to me! I look at the internet.Perhaps this is the sign for his seizures....it is a very important cofactor in metabolic pathways.... > > > > > > Another research which I found in Pub Med points to " two amino acids,citrulineand methinonine..and both aresubstrates in inflammation and oxidative stress patways-two pathways that utilize BH(4) and abnoarmally activated in autism " . > > > > > > MY son's amino acids are in urine normal, they told me but blood tests was repeated. > > > > > > I am writing to the neurologist at Great Ormond and asking their interpretation as the internet science resources have already cited some studies surely they should know more, shouldn't they?? > > > > > > In daily life.....there are some improvements on my son's condtion,seizures are widen the gap a bit, over a month we haven't seen it, I hope we won't see it again.I've been doing DrYasko's first phase protocol,5-6 RNAs,small amouns daily together with the immune support stuff..withdrawn all allergic food, avaoid glutamae contained foods..so far he looks better,even he put some weight on.Definetely I need more guidance,hopefully Dr Goyal shows interest in Yasko protocol and supports me.We will see him next week. > > > > > > If any one can tell anything about elavated " CSF dihydrobiopterin " , please share. > > > > > > Thanks > > > > > > Nevin > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 11, 2011 Dear Ken, I don't know it yet.When I learn more, I may ask you again if you don't mind please. Thanks for the information. All the best nevin > > > > > > From: tiredbee2006 <Nevin.Penny@> > > > Subject: CSF elavated dihydrobiopterin ! > > > To: Autism-Biomedical-Europe > > > Date: Tuesday, 11 October, 2011, 8:44 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello again! > > > > > > > > > > > > Yesterday we had an appointment at the Great Ormond Street Hospital .My son had MRI,lumbar puncture and various blood tests in July.I shared his seizures on this platform before..I was told all the tests were normal,neurotransmitters...metabolic markers..didn't tell me virus if he had any and I forgotten to ask.I asked them to send all the detailed results to dr Goyal, so I can see the values.They didn't look at ammonia...gaba-glutamate....relation..they didn't look at but I was told ,if something was wrong with these two, it would have reflected to another test which I can't remember the name now.. > > > > > > One marker was significant but they don't know the importance and couldn't explain it to me! I look at the internet.Perhaps this is the sign for his seizures....it is a very important cofactor in metabolic pathways.... > > > > > > Another research which I found in Pub Med points to " two amino acids,citrulineand methinonine..and both aresubstrates in inflammation and oxidative stress patways-two pathways that utilize BH(4) and abnoarmally activated in autism " . > > > > > > MY son's amino acids are in urine normal, they told me but blood tests was repeated. > > > > > > I am writing to the neurologist at Great Ormond and asking their interpretation as the internet science resources have already cited some studies surely they should know more, shouldn't they?? > > > > > > In daily life.....there are some improvements on my son's condtion,seizures are widen the gap a bit, over a month we haven't seen it, I hope we won't see it again.I've been doing DrYasko's first phase protocol,5-6 RNAs,small amouns daily together with the immune support stuff..withdrawn all allergic food, avaoid glutamae contained foods..so far he looks better,even he put some weight on.Definetely I need more guidance,hopefully Dr Goyal shows interest in Yasko protocol and supports me.We will see him next week. > > > > > > If any one can tell anything about elavated " CSF dihydrobiopterin " , please share. > > > > > > Thanks > > > > > > Nevin > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 12, 2011 Hi Alison, Thanks all these information.I know you have good understanding about Yasko.Whatever the reason I find hard to communicate on that form,I think it is a bit overwhelming for me..I am more comfortable here but I will try it again. Thanks Nevin > > > ** > > > > > > Hello again! > > > > Yesterday we had an appointment at the Great Ormond Street Hospital .My son > > had MRI,lumbar puncture and various blood tests in July.I shared his > > seizures on this platform before..I was told all the tests were > > normal,neurotransmitters...metabolic markers..didn't tell me virus if he had > > any and I forgotten to ask.I asked them to send all the detailed results to > > dr Goyal, so I can see the values.They didn't look at > > ammonia...gaba-glutamate....relation..they didn't look at but I was told ,if > > something was wrong with these two, it would have reflected to another test > > which I can't remember the name now.. > > One marker was significant but they don't know the importance and couldn't > > explain it to me! I look at the internet.Perhaps this is the sign for his > > seizures....it is a very important cofactor in metabolic pathways.... > > Another research which I found in Pub Med points to " two amino > > acids,citrulineand methinonine..and both aresubstrates in inflammation and > > oxidative stress patways-two pathways that utilize BH(4) and abnoarmally > > activated in autism " . > > MY son's amino acids are in urine normal, they told me but blood tests was > > repeated. > > I am writing to the neurologist at Great Ormond and asking their > > interpretation as the internet science resources have already cited some > > studies surely they should know more, shouldn't they?? > > In daily life.....there are some improvements on my son's condtion,seizures > > are widen the gap a bit, over a month we haven't seen it, I hope we won't > > see it again.I've been doing DrYasko's first phase protocol,5-6 RNAs,small > > amouns daily together with the immune support stuff..withdrawn all allergic > > food, avaoid glutamae contained foods..so far he looks better,even he put > > some weight on.Definetely I need more guidance,hopefully Dr Goyal shows > > interest in Yasko protocol and supports me.We will see him next week. > > If any one can tell anything about elavated " CSF dihydrobiopterin " , please > > share. > > Thanks > > Nevin > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 17, 2011 Thanks Mandi, The number is wrong so I will post a letter or send an e-mail.I am not sure when the new issue is coming up. Nevin > > They are in USA now, so if that's the number its the right one > > Mandi > > > In a message dated 17/12/2011 17:36:40 GMT Standard Time, > Nevin.Penny@... writes: > > > > > Hello! > > Iwould like to get the Autism File's contact number.The number on their > web site is wrong.I wouldlike to find out if a new issue has come up yet.. > Could anyone giveit to me please. > > Thanks > nevin > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 24, 2012 Thanks , ,Mandi Good to hear positive progress of Carmel WAkefield. nevin > > > > Hello, > > > > I've received my Autism File today.There was an article about two > > trusts there.I remembered Mrs WAkefield.How is she now, is she > > recovering??Any body knows.. > > nevin > > > > > > > > No virus found in this message. > > Checked by AVG - www.avg.com <http://www.avg.com> > > Version: 2012.0.1901 / Virus Database: 2109/4763 - Release Date: 01/24/12 > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 24, 2012 Thanks , ,Mandi Good to hear positive progress of Carmel WAkefield. nevin > > > > Hello, > > > > I've received my Autism File today.There was an article about two > > trusts there.I remembered Mrs WAkefield.How is she now, is she > > recovering??Any body knows.. > > nevin > > > > > > > > No virus found in this message. > > Checked by AVG - www.avg.com <http://www.avg.com> > > Version: 2012.0.1901 / Virus Database: 2109/4763 - Release Date: 01/24/12 > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 27, 2012 Sorry,I just responded to the message.I don't know what happened!! nevin > > > > > > Does anyone know who I can contact to give the moderator a nudge for the ABA - UK group. Ive mailed them 4 times now with no response? > > > > > > Any ideas??? > > > Thanks > > > Sophie x > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 27, 2012 Sorry,I just responded to the message.I don't know what happened!! nevin > > > > > > Does anyone know who I can contact to give the moderator a nudge for the ABA - UK group. Ive mailed them 4 times now with no response? > > > > > > Any ideas??? > > > Thanks > > > Sophie x > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 27, 2012 Sorry,I just responded to the message.I don't know what happened!! nevin > > > > > > Does anyone know who I can contact to give the moderator a nudge for the ABA - UK group. Ive mailed them 4 times now with no response? > > > > > > Any ideas??? > > > Thanks > > > Sophie x > > > > > > > > Quote Share this post Link to post Share on other sites
