Guest guest Report post Posted August 7, 1999 Hi Kathleen, I have taken amitriptylin 100mg. to sleep for 10 years,if I want to go to sleep fast I take two. I have never had a hangover from them. It is classed as an antidepressant.I hope this helps. Love Rach Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 8, 1999 Hi ,I want to comment about not knowing what we look like. I think it's kind of funny,I always have an idea what each person looks like and there age in my mind and when I do see a pix of them I'm totally surprised because they don't look anything like I thought they would. It would be fun for each of us to write what we thought each person looked like then have the person we were describing to reveal themselves. Love ta Rach Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 8, 1999 Hi ,I want to comment about not knowing what we look like.I think it's kind of funny,I always have an idea what each person looks like and there age in my mind and when I do see a pix of them I'm totally surprised because they don't look anything like I thought they would. It would be fun for each of us to write what we thought each person looked like then have the person we were describing to reveal themselves. love ta Rach Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 12, 1999 Hi All, What is RSD? ~~~Faye~~~ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 12, 1999 Hi All, What is RSD? ~~~Faye~~~ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 13, 1999 Hi Faye, RSD is known as Reflex Sympathetic Dystrophy, it is usually brought on by a minor injury to a limb whether it be a sprain or break or anything like that. There is noCURE, and it is known to be the wrost pain conditon in the world. It causes the nervous system to go haywire resulting in insufferable pain 24/7, and it spreads to other body parts and when it reaches the brain or heart, then it is called stage 4 and one dies. There is remisssion which is rare..not many ARE SO LUCKY TO EVER achieve it. Most commit suciside from the PAIN, which is burning, stabbing, crushing, and pericing in nature. Most are in wheelchairs and their bodies atrophy and they can no longer walk or even use their hand to touch anything. Simply wither up and die is what happens unless stopped by blocks, or scs or the pump..which often does not work...I have been one of the lucky one's to obtain remission. I am on a support RSD list for over 4 million ppl all over the world. It mostly attacks women..and it now being found to be genetic. It dates back to the CIVIL WAR. I hope I explained it OK we call it a monster inside of us. Take care everyone..and God bless. Jasmine survivor of RSD At 10:28 AM 12/09/99 -0700, you wrote: > > >Hi All, >What is RSD? >~~~Faye~~~ > > >--------------------------- Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 14, 1999 Hi ~~~Faye~~~, At 10:28 AM 9/12/99 -0700, you wrote: > > >Hi All, >What is RSD? >~~~Faye~~~ > Am a little behind in mail (took a birthday off), so you may have already gotten an answer. Reflex Sympathetic Dystrophy is a condition that usually sets in after injury or surgery that causes nerve pain, but usually with no definable source. It can be just about anywhere in the body & progressive or relatively static. Although it doesn't sound so dreadful, it can be. RSD can become excruciating & have other symptoms develop as well. Ken Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 14, 1999 Hi ~~~Faye~~~, At 10:28 AM 9/12/99 -0700, you wrote: > > >Hi All, >What is RSD? >~~~Faye~~~ > Am a little behind in mail (took a birthday off), so you may have already gotten an answer. Reflex Sympathetic Dystrophy is a condition that usually sets in after injury or surgery that causes nerve pain, but usually with no definable source. It can be just about anywhere in the body & progressive or relatively static. Although it doesn't sound so dreadful, it can be. RSD can become excruciating & have other symptoms develop as well. Ken Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 25, 1999 Hello everyone, Just a update on myself. Afew days ago I lost my ability to speak. My new Holistic doctor put me in the hospital. Got me a new neroligist and got my uroligist. Started running tests mri's,x-rays,physical therapist,occupational therapist,.Mri's still show nothing but they all ran tests on me for lyme disease,food allergies,eviormental posioning, all were negtive. So did a brain scan today and let me out under a 5 year watch for ms and put me on xanax, and neuerontin. So I geuss were getting somewhere.So a I said this is just a update. love light and laughter Raven Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 19, 1999 Attachments do not come with e-mails for the list. The e-mails are sent directly to members of the list and all attachments are deleted automatically. URLs for sites with information for a specific question are sent only as links, and not as attachments. I hope this helps. Ray in Virginia > I realize I am going out on a limb here, I would really like to be part of > your list you have set up here, but I will not open Anyone's attatchments at > All, unless they are from family members or close friends, including list > rules. Is this the only way you are willing to send them out? > Sincerely, > Kimberley Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 25, 2000 Not only is my body dysfunctional, but my family as well. Hello listmembers, Thanks for the laugh, Ken. I have never not been in pain. When my leg was amputated, it was actually less painful than the RSD. I had a couple of mild strokes due to Ehlers-danlos syndrome so I already had the short term memory impairment even before I got this. Of course that has gotten worse. I have very little energy to do anything. In terms of medication for depression, I have been on Paxil for over a year, before than Doxepin for 8 years. Doxepin helped with the pain better than the Paxil, but it caused some side effects and was implicated in one of the strokes. I have heart disease so I have only limited choices in meds. Percoset works for pain, but I am so sleepy that I don't function very well. I seldom drive anymore, and I can't take pain meds if I do. I am allergic to codeine, and Vicodin. One of the things that really makes me angry is that before my leg was amputated on 8/28/98, no one would prescribe anything for my pain except the ones I am violently allergic to and Darvocet. Darvocet made me nauseous. Now since I fit some acceptable category, my doctor willingly prescribes Percocet. Here in California, God help you if you need pain meds and don't have the " right " diagnosis. I want to thank you for your welcome, and the information on your site at OneList. least, I no longer feel so alone. Judy H Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 25, 2000 At 12:19 AM 2/25/00 -0800, Judy wisely said: >Here in California, God help you if >you need pain meds and don't have the " right " diagnosis. So CA is no different from the rest of the world. My psychiatrist insists on having an office with an outside door because, he says, he was threatened by a patient with a gun. I told him that based on the way he prescribes, I was not surprised. Ken Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 25, 2000 Re: At 12:19 AM 2/25/00 -0800, Judy wisely said: >Here in California, God help you if >you need pain meds and don't have the " right " diagnosis. > So CA is no different from the rest of the world. My psychiatrist >insists on having an office with an outside door because, he says, he was >threatened by a patient with a gun. I told him that based on the way he >prescribes, I was not surprised. > Ken It's nice to see you out making friends again, Ken ! Mike mailto:byteme@... homepage: http://members.home.net/mcourteau ICQ# is 19431463 " Free Tibet ! 50 years of Chinese occupation is long enough ! " -------------------------------------------- Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 11, 2000 Hi ! Receiving html coded messages causes problems to some of us (including myself). Would you please choose " plain text " when writing to the list? Greetings, Tiina Tiina Onttonen tiinao@... Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 5, 2000 Thanks for the offer, may take you up tomorrow, feeling very tired , going to bed soon. > > You don't know me very much, but I am a counselor & am glad that at least > you took your turmoil to us, rather than silently letting the fears and > swirling emotions overwhelm you. Ray & Kat are giving you some good direction. > > You feel overwhelmed, trapped & angry about that. It is best if you have > someone local to talk to. But we're here too. My number is & > I can usually take a call at any time of the day or night, unless I'm > feeling real sick. Right now I am physically quite stable & in good shape, > so the only reason I might not answer is if I'm too deeply asleep; which > never happened in years of work with people struggling. If you need to > call,it would not be an intrusion. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 5, 2000 Thanks for the offer, may take you up tomorrow, feeling very tired , going to bed soon. > > You don't know me very much, but I am a counselor & am glad that at least > you took your turmoil to us, rather than silently letting the fears and > swirling emotions overwhelm you. Ray & Kat are giving you some good direction. > > You feel overwhelmed, trapped & angry about that. It is best if you have > someone local to talk to. But we're here too. My number is & > I can usually take a call at any time of the day or night, unless I'm > feeling real sick. Right now I am physically quite stable & in good shape, > so the only reason I might not answer is if I'm too deeply asleep; which > never happened in years of work with people struggling. If you need to > call,it would not be an intrusion. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 12, 2000 There is no particular relationship between sleep apnea that I am aware of, and I think there may be more conservative remedied to try than the one suggested. It is important to find out just what is happening mechanically. If it is in the nose, low-cost clips are available at most drug stores to keep nostrils open. Your husband is an individual with multiple diagnoses. I think an understanding needs to be reached with your doctor about which problems are being addressed & in what order. It is typical for chronic pain complaints to be shuffled aside. Your husband & you need to take more control of what the treating doctor will focus on, or find another one. Many doctors, when faced with multiple problems, can discard some of them based on how much time they perhaps have for the particular patient. Life & medical problems do not work this way. A comprehensive medical plan is needed covering what will be done for each problem, how, by whom, etc. Ken | Turbin | mailto:kturbin@... | * Page me online through ICQ: http://www.mirabilis.com/17198172 Tel. (702) 312- 6888 | Fax | GetICQ http://www.icq.com/ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2000 Hi, My husband was diagnosed with severe sleep apnea in February. Unfortunately for him, the prolonged bout with it cost him his job, and his doctors think he has some permanent cognitive functions that were damaged in the process.That is what clued me into his problem, he said stuff that just wasn't correct and then acted confused when I would explain the circumstances in question. He has a Bi-pap machine and he does a lot better, but it's still not perfect. He wears the machine when he sleeps and no longer snores. It is really a godsend! C-Pap is a continuous pressure of air forcing the pathways open. Bi-pap differs in that the pressure backs off some on exhale, and increases the air pressure on inspiration. He also has chronic pain...knees and back. Just getting enough sleep has helped him tremendously, but his forgetfulness remains. Judy > My husband had a sleep anpea test Sunday. Is this commonly linked to chronic > pain? His regular doctor found that he had high blood pressure, they ran a > bunch of tests on his heart, and now the sleep apnea. What concerns me is > the FACT that his pain and back doctor has been seeing him for almost 10 > years and has not treated either condition. We live in a area where we have > to travel several hours to see the doctors, and then his local doctor is the > one doing something other that treatments that aren't very productive. The > area we live in is not able to deal with the problems Bob has in his back. > It is very frustrating. We are hoping that the sleep apnea will be helped > and thus help him to at least sleep. We are a little in the dark as to the > treatments involved except for something called a CPAP machine. Does anyone > have any feedback? This whole thing is getting old and expensive. > kat > > -------------------------------------------------------------------- ---- > beMANY! has a new way to save big on your phone bill -- and keep on > saving more each month: Our huge buying group gives you Long Distance > rates which fall monthly, plus an extra $60 in FREE calls! > http://click./1/3821/1/_/82384/_/960870131/ > -------------------------------------------------------------------- ---- > > Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneronelist > Manage your subscription with several special email addresses: > chronic_pain-owneronelist - Sends email to the list owners > chronic_pain-subscribeonelist - Subscribe to the list through email > chronic_pain-unsubscribeonelist - Unsubscribe from the list > chronic_pain-normalonelist - Switch your subscription to normal > chronic_pain-digestonelist - Switch your subscription to digest > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2000 Hi, My husband was diagnosed with severe sleep apnea in February. Unfortunately for him, the prolonged bout with it cost him his job, and his doctors think he has some permanent cognitive functions that were damaged in the process.That is what clued me into his problem, he said stuff that just wasn't correct and then acted confused when I would explain the circumstances in question. He has a Bi-pap machine and he does a lot better, but it's still not perfect. He wears the machine when he sleeps and no longer snores. It is really a godsend! C-Pap is a continuous pressure of air forcing the pathways open. Bi-pap differs in that the pressure backs off some on exhale, and increases the air pressure on inspiration. He also has chronic pain...knees and back. Just getting enough sleep has helped him tremendously, but his forgetfulness remains. Judy > My husband had a sleep anpea test Sunday. Is this commonly linked to chronic > pain? His regular doctor found that he had high blood pressure, they ran a > bunch of tests on his heart, and now the sleep apnea. What concerns me is > the FACT that his pain and back doctor has been seeing him for almost 10 > years and has not treated either condition. We live in a area where we have > to travel several hours to see the doctors, and then his local doctor is the > one doing something other that treatments that aren't very productive. The > area we live in is not able to deal with the problems Bob has in his back. > It is very frustrating. We are hoping that the sleep apnea will be helped > and thus help him to at least sleep. We are a little in the dark as to the > treatments involved except for something called a CPAP machine. Does anyone > have any feedback? This whole thing is getting old and expensive. > kat > > -------------------------------------------------------------------- ---- > beMANY! has a new way to save big on your phone bill -- and keep on > saving more each month: Our huge buying group gives you Long Distance > rates which fall monthly, plus an extra $60 in FREE calls! > http://click./1/3821/1/_/82384/_/960870131/ > -------------------------------------------------------------------- ---- > > Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneronelist > Manage your subscription with several special email addresses: > chronic_pain-owneronelist - Sends email to the list owners > chronic_pain-subscribeonelist - Subscribe to the list through email > chronic_pain-unsubscribeonelist - Unsubscribe from the list > chronic_pain-normalonelist - Switch your subscription to normal > chronic_pain-digestonelist - Switch your subscription to digest > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2000 At 11:48 PM 6/12/00 -0700, Judy wisely said: >That is what clued me into his problem, he >said stuff that just wasn't correct and then acted confused when I >would explain the circumstances in question. Confursion can be an effect of insufficient oxygen to the brain. Although you will get many opinions, there is no way to determine if it will improve or not. In other words, chances are 50/50 at least that it will improve. And if it doesn't, your husband will begin to learn adaptive ways to minimize it's impact on daily living. A behavioral psychologist or psychologist could help with this, as well as with clarifying the severity & permanence of the problem. But don't take negative predictions or diagnoses too seriously. I worked in a clinic where we successfully reversed amnesia & many features of alzheimers disease, generally over periods of about 3 years. And it is professionally well known that this is just short of impossible. Ken | Turbin | mailto:kturbin@... | * Page me online through ICQ: http://www.mirabilis.com/17198172 Tel. (702) 312- 6888 | Fax | GetICQ http://www.icq.com/ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2000 At 11:48 PM 6/12/00 -0700, Judy wisely said: >That is what clued me into his problem, he >said stuff that just wasn't correct and then acted confused when I >would explain the circumstances in question. Confursion can be an effect of insufficient oxygen to the brain. Although you will get many opinions, there is no way to determine if it will improve or not. In other words, chances are 50/50 at least that it will improve. And if it doesn't, your husband will begin to learn adaptive ways to minimize it's impact on daily living. A behavioral psychologist or psychologist could help with this, as well as with clarifying the severity & permanence of the problem. But don't take negative predictions or diagnoses too seriously. I worked in a clinic where we successfully reversed amnesia & many features of alzheimers disease, generally over periods of about 3 years. And it is professionally well known that this is just short of impossible. Ken | Turbin | mailto:kturbin@... | * Page me online through ICQ: http://www.mirabilis.com/17198172 Tel. (702) 312- 6888 | Fax | GetICQ http://www.icq.com/ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2000 Hi Ken, Thanks for the response. I have had three strokes in the last 15 years, and I know about the struggle and the improvement. It is just very disheartening to have my husband have to suffer from the same sort of confusion that I had to deal with, and still do. If the doctor had listened to him years ago when he said he was not feeling rested this problem would not have existed. Of course, with managed care you get no care until you are almost dead. He has the machine now, but our insurance will end in August 2001, as we are on Cobra benefits. At that time, the insurance company will take the machine back.....isn't that the most vile thing? I need a power chair, and we would have ended up in this " rent " problem if we used Pacificare. My durable medical products provider gave us the heads up so we wouldn't waste our time. He gave me a good discount and with savings I am able to purchase what I need. Then, the government will give us back most of the taxes we have had to pay this year next April. With that money, we will be able to purchase my husbands equipment. Medical care is in the hands of shysters. Such a horrible situation for all of us! Judy Re: > At 11:48 PM 6/12/00 -0700, Judy wisely said: > >That is what clued me into his problem, he > >said stuff that just wasn't correct and then acted confused when I > >would explain the circumstances in question. > > Confursion can be an effect of insufficient oxygen to the brain. Although > you will get many opinions, there is no way to determine if it will improve > or not. In other words, chances are 50/50 at least that it will improve. > And if it doesn't, your husband will begin to learn adaptive ways to > minimize it's impact on daily living. A behavioral psychologist or > psychologist could help with this, as well as with clarifying the severity > & permanence of the problem. > > But don't take negative predictions or diagnoses too seriously. I worked in > a clinic where we successfully reversed amnesia & many features of > alzheimers disease, generally over periods of about 3 years. And it is > professionally well known that this is just short of impossible. > > Ken > | Turbin | mailto:kturbin@... | > * Page me online through ICQ: http://www.mirabilis.com/17198172 > Tel. (702) 312- 6888 | Fax | GetICQ http://www.icq.com/ > > > -------------------------------------------------------------------- ---- > @Backup- Protect and Access your data any time, any where on the net. > Try @Backup FREE and recieve 300 points from mypoints.com Install now: > http://click./1/5467/1/_/82384/_/960892655/ > -------------------------------------------------------------------- ---- > > Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneronelist > Manage your subscription with several special email addresses: > chronic_pain-owneronelist - Sends email to the list owners > chronic_pain-subscribeonelist - Subscribe to the list through email > chronic_pain-unsubscribeonelist - Unsubscribe from the list > chronic_pain-normalonelist - Switch your subscription to normal > chronic_pain-digestonelist - Switch your subscription to digest > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 13, 2000 Hi Ken, Thanks for the response. I have had three strokes in the last 15 years, and I know about the struggle and the improvement. It is just very disheartening to have my husband have to suffer from the same sort of confusion that I had to deal with, and still do. If the doctor had listened to him years ago when he said he was not feeling rested this problem would not have existed. Of course, with managed care you get no care until you are almost dead. He has the machine now, but our insurance will end in August 2001, as we are on Cobra benefits. At that time, the insurance company will take the machine back.....isn't that the most vile thing? I need a power chair, and we would have ended up in this " rent " problem if we used Pacificare. My durable medical products provider gave us the heads up so we wouldn't waste our time. He gave me a good discount and with savings I am able to purchase what I need. Then, the government will give us back most of the taxes we have had to pay this year next April. With that money, we will be able to purchase my husbands equipment. Medical care is in the hands of shysters. Such a horrible situation for all of us! Judy Re: > At 11:48 PM 6/12/00 -0700, Judy wisely said: > >That is what clued me into his problem, he > >said stuff that just wasn't correct and then acted confused when I > >would explain the circumstances in question. > > Confursion can be an effect of insufficient oxygen to the brain. Although > you will get many opinions, there is no way to determine if it will improve > or not. In other words, chances are 50/50 at least that it will improve. > And if it doesn't, your husband will begin to learn adaptive ways to > minimize it's impact on daily living. A behavioral psychologist or > psychologist could help with this, as well as with clarifying the severity > & permanence of the problem. > > But don't take negative predictions or diagnoses too seriously. I worked in > a clinic where we successfully reversed amnesia & many features of > alzheimers disease, generally over periods of about 3 years. And it is > professionally well known that this is just short of impossible. > > Ken > | Turbin | mailto:kturbin@... | > * Page me online through ICQ: http://www.mirabilis.com/17198172 > Tel. (702) 312- 6888 | Fax | GetICQ http://www.icq.com/ > > > -------------------------------------------------------------------- ---- > @Backup- Protect and Access your data any time, any where on the net. > Try @Backup FREE and recieve 300 points from mypoints.com Install now: > http://click./1/5467/1/_/82384/_/960892655/ > -------------------------------------------------------------------- ---- > > Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneronelist > Manage your subscription with several special email addresses: > chronic_pain-owneronelist - Sends email to the list owners > chronic_pain-subscribeonelist - Subscribe to the list through email > chronic_pain-unsubscribeonelist - Unsubscribe from the list > chronic_pain-normalonelist - Switch your subscription to normal > chronic_pain-digestonelist - Switch your subscription to digest > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 19, 2000 In a message dated 7/19/00 11:06:48 PM Eastern Daylight Time, TheTaeBoWay@... writes: << I had your pictures downloaded on my desktop and my SO opened them up-he was very impressed with your results! >> Eek, don't show anyone! LOL! Thanks so much for the compliment! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 25, 2000 > (((((le))))) > You are going thru so much! I wish I had some magic words to make everything > better!! I am sending you a great big hug. I hope it helps! > - you just did a magic move that sure helped a lot!!!! I really appreciate those hugs and your kind words. You are such a sweetheart. Hugs are the best thing ever invented! My husband just was making fun of me regarding that all school reunion I went to in June and how I had to hug EVERYONE - that is just who I am and I don't think that is such a bad thing. It could be worse!!!! When I was a senior in H.S. and the Junior class read our futures, mine was that I worked in a hotel (because I at one time had plans in going into hotel administration) and hugged everyone that came through the door. See, it could be worse, I could go up to total strangers and hug them!!! LOL Thanks again ((())). le Quote Share this post Link to post Share on other sites
