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Hi Kathleen, I have taken amitriptylin 100mg. to sleep for 10 years,if I

want to go to sleep fast I take two. I have never had a hangover from

them. It is classed as an antidepressant.I hope this helps. Love Rach

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Hi ,I want to comment about not knowing what we look like. I think

it's kind of funny,I always have an idea what each person looks like and

there age in my mind and when I do see a pix of them I'm totally

surprised because they don't look anything like I thought they would. It

would be fun for each of us to write what we thought each person looked

like then have the person we were describing to reveal themselves.

Love ta Rach

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Hi ,I want to comment about not knowing what we look like.I think

it's kind of funny,I always have an idea what each person looks like and

there age in my mind and when I do see a pix of them I'm totally

surprised because they don't look anything like I thought they would. It

would be fun for each of us to write what we thought each person looked

like then have the person we were describing to reveal themselves. love

ta Rach

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  • 1 month later...

Hi Faye,

RSD is known as Reflex Sympathetic Dystrophy, it is usually brought

on by a minor injury to a limb whether it be a sprain or break or anything

like that. There is noCURE, and it is known to be the wrost pain conditon

in the world. It causes the nervous system to go haywire resulting in

insufferable pain 24/7, and it spreads to other body parts and when it

reaches the brain or heart, then it is called stage 4 and one dies. There

is remisssion which is rare..not many ARE SO LUCKY TO EVER achieve it. Most

commit suciside from the PAIN, which is burning, stabbing, crushing, and

pericing in nature.

Most are in wheelchairs and their bodies atrophy and they can no longer

walk or even use their hand to touch anything. Simply

wither up and die is what happens unless stopped by blocks, or scs or the

pump..which often does not work...I have been one of the lucky one's to

obtain remission. I am on a support RSD list for over 4 million ppl all

over the world. It mostly attacks women..and it now being found to be

genetic. It dates back to the CIVIL WAR. I hope I explained it OK we call

it a monster inside of us.

Take care everyone..and God bless.

Jasmine survivor of RSD

At 10:28 AM 12/09/99 -0700, you wrote:

>

>

>Hi All,

>What is RSD?

>~~~Faye~~~

>

>

>---------------------------

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Hi ~~~Faye~~~,

At 10:28 AM 9/12/99 -0700, you wrote:

>

>

>Hi All,

>What is RSD?

>~~~Faye~~~

>

Am a little behind in mail (took a birthday off), so you may have

already gotten an answer. Reflex Sympathetic Dystrophy is a condition that

usually sets in after injury or surgery that causes nerve pain, but usually

with no definable source. It can be just about anywhere in the body &

progressive or relatively static. Although it doesn't sound so dreadful, it

can be. RSD can become excruciating & have other symptoms develop as well.

Ken

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Hi ~~~Faye~~~,

At 10:28 AM 9/12/99 -0700, you wrote:

>

>

>Hi All,

>What is RSD?

>~~~Faye~~~

>

Am a little behind in mail (took a birthday off), so you may have

already gotten an answer. Reflex Sympathetic Dystrophy is a condition that

usually sets in after injury or surgery that causes nerve pain, but usually

with no definable source. It can be just about anywhere in the body &

progressive or relatively static. Although it doesn't sound so dreadful, it

can be. RSD can become excruciating & have other symptoms develop as well.

Ken

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  • 2 weeks later...

Hello everyone,

Just a update on myself. Afew days ago I lost my ability to speak. My new

Holistic doctor put me in the hospital. Got me a new neroligist and got my

uroligist. Started running tests mri's,x-rays,physical therapist,occupational

therapist,.Mri's still show nothing but they all ran tests on me for lyme

disease,food allergies,eviormental posioning, all were negtive. So did a

brain scan today and let me out under a 5 year watch for ms and put me on

xanax, and neuerontin. So I geuss were getting somewhere.So a I said this is

just a update.

love light and laughter

Raven

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  • 1 month later...

Attachments do not come with e-mails for the list. The e-mails are sent

directly to members of the list and all attachments are deleted

automatically. URLs for sites with information for a specific question are

sent only as links, and not as attachments. I hope this helps.

Ray in Virginia

> I realize I am going out on a limb here, I would really like to be part of

> your list you have set up here, but I will not open Anyone's attatchments

at

> All, unless they are from family members or close friends, including list

> rules. Is this the only way you are willing to send them out?

> Sincerely,

> Kimberley

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  • 3 months later...

Not only is my body dysfunctional, but my family as well.

Hello listmembers,

Thanks for the laugh, Ken.

I have never not been in pain. When my leg was amputated, it was

actually less painful than the RSD. I had a couple of mild strokes due

to Ehlers-danlos syndrome so I already had the short term memory

impairment even before I got this. Of course that has gotten worse. I

have very little energy to do anything.

In terms of medication for depression, I have been on Paxil for over a

year, before than Doxepin for 8 years. Doxepin helped with the pain

better than the Paxil, but it caused some side effects and was

implicated in one of the strokes. I have heart disease so I have only

limited choices in meds. Percoset works for pain, but I am so sleepy

that I don't function very well. I seldom drive anymore, and I can't

take pain meds if I do. I am allergic to codeine, and Vicodin.

One of the things that really makes me angry is that before my leg was

amputated on 8/28/98, no one would prescribe anything for my pain

except the ones I am violently allergic to and Darvocet. Darvocet

made me nauseous. Now since I fit some acceptable category, my doctor

willingly prescribes Percocet. Here in California, God help you if

you need pain meds and don't have the " right " diagnosis.

I want to thank you for your welcome, and the information on your site

at OneList. least, I no longer feel so alone.

Judy H

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At 12:19 AM 2/25/00 -0800, Judy wisely said:

>Here in California, God help you if

>you need pain meds and don't have the " right " diagnosis.

So CA is no different from the rest of the world. My psychiatrist

insists on having an office with an outside door because, he says, he was

threatened by a patient with a gun. I told him that based on the way he

prescribes, I was not surprised.

Ken

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Re:

At 12:19 AM 2/25/00 -0800, Judy wisely said:

>Here in California, God help you if

>you need pain meds and don't have the " right " diagnosis.

> So CA is no different from the rest of the world. My psychiatrist

>insists on having an office with an outside door because, he says, he was

>threatened by a patient with a gun. I told him that based on the way he

>prescribes, I was not surprised.

> Ken

It's nice to see you out making friends again, Ken !

Mike

mailto:byteme@...

homepage: http://members.home.net/mcourteau

ICQ# is 19431463

" Free Tibet ! 50 years of Chinese occupation is long enough ! "

--------------------------------------------

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  • 2 weeks later...
Guest guest

Hi !

Receiving html coded messages causes problems to some of us (including

myself). Would you please choose " plain text " when writing to the list?

Greetings,

Tiina

Tiina Onttonen

tiinao@...

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  • 2 months later...
Guest guest

Thanks for the offer, may take you up tomorrow, feeling very tired , going

to bed soon.

>

> You don't know me very much, but I am a counselor & am glad that at least

> you took your turmoil to us, rather than silently letting the fears and

> swirling emotions overwhelm you. Ray & Kat are giving you some good

direction.

>

> You feel overwhelmed, trapped & angry about that. It is best if you have

> someone local to talk to. But we're here too. My number is

&

> I can usually take a call at any time of the day or night, unless I'm

> feeling real sick. Right now I am physically quite stable & in good shape,

> so the only reason I might not answer is if I'm too deeply asleep; which

> never happened in years of work with people struggling. If you need to

> call,it would not be an intrusion.

>

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Guest guest

Thanks for the offer, may take you up tomorrow, feeling very tired , going

to bed soon.

>

> You don't know me very much, but I am a counselor & am glad that at least

> you took your turmoil to us, rather than silently letting the fears and

> swirling emotions overwhelm you. Ray & Kat are giving you some good

direction.

>

> You feel overwhelmed, trapped & angry about that. It is best if you have

> someone local to talk to. But we're here too. My number is

&

> I can usually take a call at any time of the day or night, unless I'm

> feeling real sick. Right now I am physically quite stable & in good shape,

> so the only reason I might not answer is if I'm too deeply asleep; which

> never happened in years of work with people struggling. If you need to

> call,it would not be an intrusion.

>

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Guest guest

There is no particular relationship between sleep apnea that I am aware of,

and I think there may be more conservative remedied to try than the one

suggested. It is important to find out just what is happening mechanically.

If it is in the nose, low-cost clips are available at most drug stores to

keep nostrils open.

Your husband is an individual with multiple diagnoses. I think an

understanding needs to be reached with your doctor about which problems are

being addressed & in what order. It is typical for chronic pain complaints

to be shuffled aside. Your husband & you need to take more control of what

the treating doctor will focus on, or find another one.

Many doctors, when faced with multiple problems, can discard some of them

based on how much time they perhaps have for the particular patient. Life &

medical problems do not work this way. A comprehensive medical plan is

needed covering what will be done for each problem, how, by whom, etc.

Ken

| Turbin | mailto:kturbin@... |

* Page me online through ICQ: http://www.mirabilis.com/17198172

Tel. (702) 312- 6888 | Fax | GetICQ http://www.icq.com/

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Guest guest

Hi,

My husband was diagnosed with severe sleep apnea in February.

Unfortunately for him, the prolonged bout with it cost him his job,

and his doctors think he has some permanent cognitive functions that

were damaged in the process.That is what clued me into his problem, he

said stuff that just wasn't correct and then acted confused when I

would explain the circumstances in question. He has a Bi-pap machine

and he does a lot better, but it's still not perfect. He wears the

machine when he sleeps and no longer snores. It is really a godsend!

C-Pap is a continuous pressure of air forcing the pathways open.

Bi-pap differs in that the pressure backs off some on exhale, and

increases the air pressure on inspiration.

He also has chronic pain...knees and back. Just getting enough sleep

has helped him tremendously, but his forgetfulness remains.

Judy

> My husband had a sleep anpea test Sunday. Is this commonly linked

to chronic

> pain? His regular doctor found that he had high blood pressure,

they ran a

> bunch of tests on his heart, and now the sleep apnea. What concerns

me is

> the FACT that his pain and back doctor has been seeing him for

almost 10

> years and has not treated either condition. We live in a area where

we have

> to travel several hours to see the doctors, and then his local

doctor is the

> one doing something other that treatments that aren't very

productive. The

> area we live in is not able to deal with the problems Bob has in his

back.

> It is very frustrating. We are hoping that the sleep apnea will be

helped

> and thus help him to at least sleep. We are a little in the dark as

to the

> treatments involved except for something called a CPAP machine.

Does anyone

> have any feedback? This whole thing is getting old and expensive.

> kat

>

> --------------------------------------------------------------------

----

> beMANY! has a new way to save big on your phone bill -- and keep on

> saving more each month: Our huge buying group gives you Long

Distance

> rates which fall monthly, plus an extra $60 in FREE calls!

> http://click./1/3821/1/_/82384/_/960870131/

> --------------------------------------------------------------------

----

>

> Know someone who could profit from our list? Send our direct sign-up

URL: http://www.onelist.com/subscribe.cgi/chronic_pain or write us

at: chronic_pain-listowneronelist

> Manage your subscription with several special email addresses:

> chronic_pain-owneronelist - Sends email to the list owners

> chronic_pain-subscribeonelist - Subscribe to the list through

email

> chronic_pain-unsubscribeonelist - Unsubscribe from the list

> chronic_pain-normalonelist - Switch your subscription to normal

> chronic_pain-digestonelist - Switch your subscription to digest

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>

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Guest guest

Hi,

My husband was diagnosed with severe sleep apnea in February.

Unfortunately for him, the prolonged bout with it cost him his job,

and his doctors think he has some permanent cognitive functions that

were damaged in the process.That is what clued me into his problem, he

said stuff that just wasn't correct and then acted confused when I

would explain the circumstances in question. He has a Bi-pap machine

and he does a lot better, but it's still not perfect. He wears the

machine when he sleeps and no longer snores. It is really a godsend!

C-Pap is a continuous pressure of air forcing the pathways open.

Bi-pap differs in that the pressure backs off some on exhale, and

increases the air pressure on inspiration.

He also has chronic pain...knees and back. Just getting enough sleep

has helped him tremendously, but his forgetfulness remains.

Judy

> My husband had a sleep anpea test Sunday. Is this commonly linked

to chronic

> pain? His regular doctor found that he had high blood pressure,

they ran a

> bunch of tests on his heart, and now the sleep apnea. What concerns

me is

> the FACT that his pain and back doctor has been seeing him for

almost 10

> years and has not treated either condition. We live in a area where

we have

> to travel several hours to see the doctors, and then his local

doctor is the

> one doing something other that treatments that aren't very

productive. The

> area we live in is not able to deal with the problems Bob has in his

back.

> It is very frustrating. We are hoping that the sleep apnea will be

helped

> and thus help him to at least sleep. We are a little in the dark as

to the

> treatments involved except for something called a CPAP machine.

Does anyone

> have any feedback? This whole thing is getting old and expensive.

> kat

>

> --------------------------------------------------------------------

----

> beMANY! has a new way to save big on your phone bill -- and keep on

> saving more each month: Our huge buying group gives you Long

Distance

> rates which fall monthly, plus an extra $60 in FREE calls!

> http://click./1/3821/1/_/82384/_/960870131/

> --------------------------------------------------------------------

----

>

> Know someone who could profit from our list? Send our direct sign-up

URL: http://www.onelist.com/subscribe.cgi/chronic_pain or write us

at: chronic_pain-listowneronelist

> Manage your subscription with several special email addresses:

> chronic_pain-owneronelist - Sends email to the list owners

> chronic_pain-subscribeonelist - Subscribe to the list through

email

> chronic_pain-unsubscribeonelist - Unsubscribe from the list

> chronic_pain-normalonelist - Switch your subscription to normal

> chronic_pain-digestonelist - Switch your subscription to digest

>

>

>

>

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Guest guest

At 11:48 PM 6/12/00 -0700, Judy wisely said:

>That is what clued me into his problem, he

>said stuff that just wasn't correct and then acted confused when I

>would explain the circumstances in question.

Confursion can be an effect of insufficient oxygen to the brain. Although

you will get many opinions, there is no way to determine if it will improve

or not. In other words, chances are 50/50 at least that it will improve.

And if it doesn't, your husband will begin to learn adaptive ways to

minimize it's impact on daily living. A behavioral psychologist or

psychologist could help with this, as well as with clarifying the severity

& permanence of the problem.

But don't take negative predictions or diagnoses too seriously. I worked in

a clinic where we successfully reversed amnesia & many features of

alzheimers disease, generally over periods of about 3 years. And it is

professionally well known that this is just short of impossible.

Ken

| Turbin | mailto:kturbin@... |

* Page me online through ICQ: http://www.mirabilis.com/17198172

Tel. (702) 312- 6888 | Fax | GetICQ http://www.icq.com/

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Guest guest

At 11:48 PM 6/12/00 -0700, Judy wisely said:

>That is what clued me into his problem, he

>said stuff that just wasn't correct and then acted confused when I

>would explain the circumstances in question.

Confursion can be an effect of insufficient oxygen to the brain. Although

you will get many opinions, there is no way to determine if it will improve

or not. In other words, chances are 50/50 at least that it will improve.

And if it doesn't, your husband will begin to learn adaptive ways to

minimize it's impact on daily living. A behavioral psychologist or

psychologist could help with this, as well as with clarifying the severity

& permanence of the problem.

But don't take negative predictions or diagnoses too seriously. I worked in

a clinic where we successfully reversed amnesia & many features of

alzheimers disease, generally over periods of about 3 years. And it is

professionally well known that this is just short of impossible.

Ken

| Turbin | mailto:kturbin@... |

* Page me online through ICQ: http://www.mirabilis.com/17198172

Tel. (702) 312- 6888 | Fax | GetICQ http://www.icq.com/

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Guest guest

Hi Ken,

Thanks for the response. I have had three strokes in the last 15

years, and I know about the struggle and the improvement. It is just

very disheartening to have my husband have to suffer from the same

sort of confusion that I had to deal with, and still do. If the

doctor had listened to him years ago when he said he was not feeling

rested this problem would not have existed. Of course, with managed

care you get no care until you are almost dead. He has the machine

now, but our insurance will end in August 2001, as we are on Cobra

benefits. At that time, the insurance company will take the machine

back.....isn't that the most vile thing?

I need a power chair, and we would have ended up in this " rent "

problem if we used Pacificare. My durable medical products provider

gave us the heads up so we wouldn't waste our time. He gave me a good

discount and with savings I am able to purchase what I need. Then,

the government will give us back most of the taxes we have had to pay

this year next April. With that money, we will be able to purchase my

husbands equipment. Medical care is in the hands of shysters. Such a

horrible situation for all of us!

Judy

Re:

> At 11:48 PM 6/12/00 -0700, Judy wisely said:

> >That is what clued me into his problem, he

> >said stuff that just wasn't correct and then acted confused when I

> >would explain the circumstances in question.

>

> Confursion can be an effect of insufficient oxygen to the brain.

Although

> you will get many opinions, there is no way to determine if it will

improve

> or not. In other words, chances are 50/50 at least that it will

improve.

> And if it doesn't, your husband will begin to learn adaptive ways to

> minimize it's impact on daily living. A behavioral psychologist or

> psychologist could help with this, as well as with clarifying the

severity

> & permanence of the problem.

>

> But don't take negative predictions or diagnoses too seriously. I

worked in

> a clinic where we successfully reversed amnesia & many features of

> alzheimers disease, generally over periods of about 3 years. And it

is

> professionally well known that this is just short of impossible.

>

> Ken

> | Turbin | mailto:kturbin@... |

> * Page me online through ICQ: http://www.mirabilis.com/17198172

> Tel. (702) 312- 6888 | Fax | GetICQ

http://www.icq.com/

>

>

> --------------------------------------------------------------------

----

> @Backup- Protect and Access your data any time, any where on the

net.

> Try @Backup FREE and recieve 300 points from mypoints.com Install

now:

> http://click./1/5467/1/_/82384/_/960892655/

> --------------------------------------------------------------------

----

>

> Know someone who could profit from our list? Send our direct sign-up

URL: http://www.onelist.com/subscribe.cgi/chronic_pain or write us

at: chronic_pain-listowneronelist

> Manage your subscription with several special email addresses:

> chronic_pain-owneronelist - Sends email to the list owners

> chronic_pain-subscribeonelist - Subscribe to the list through

email

> chronic_pain-unsubscribeonelist - Unsubscribe from the list

> chronic_pain-normalonelist - Switch your subscription to normal

> chronic_pain-digestonelist - Switch your subscription to digest

>

>

>

>

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Guest guest

Hi Ken,

Thanks for the response. I have had three strokes in the last 15

years, and I know about the struggle and the improvement. It is just

very disheartening to have my husband have to suffer from the same

sort of confusion that I had to deal with, and still do. If the

doctor had listened to him years ago when he said he was not feeling

rested this problem would not have existed. Of course, with managed

care you get no care until you are almost dead. He has the machine

now, but our insurance will end in August 2001, as we are on Cobra

benefits. At that time, the insurance company will take the machine

back.....isn't that the most vile thing?

I need a power chair, and we would have ended up in this " rent "

problem if we used Pacificare. My durable medical products provider

gave us the heads up so we wouldn't waste our time. He gave me a good

discount and with savings I am able to purchase what I need. Then,

the government will give us back most of the taxes we have had to pay

this year next April. With that money, we will be able to purchase my

husbands equipment. Medical care is in the hands of shysters. Such a

horrible situation for all of us!

Judy

Re:

> At 11:48 PM 6/12/00 -0700, Judy wisely said:

> >That is what clued me into his problem, he

> >said stuff that just wasn't correct and then acted confused when I

> >would explain the circumstances in question.

>

> Confursion can be an effect of insufficient oxygen to the brain.

Although

> you will get many opinions, there is no way to determine if it will

improve

> or not. In other words, chances are 50/50 at least that it will

improve.

> And if it doesn't, your husband will begin to learn adaptive ways to

> minimize it's impact on daily living. A behavioral psychologist or

> psychologist could help with this, as well as with clarifying the

severity

> & permanence of the problem.

>

> But don't take negative predictions or diagnoses too seriously. I

worked in

> a clinic where we successfully reversed amnesia & many features of

> alzheimers disease, generally over periods of about 3 years. And it

is

> professionally well known that this is just short of impossible.

>

> Ken

> | Turbin | mailto:kturbin@... |

> * Page me online through ICQ: http://www.mirabilis.com/17198172

> Tel. (702) 312- 6888 | Fax | GetICQ

http://www.icq.com/

>

>

> --------------------------------------------------------------------

----

> @Backup- Protect and Access your data any time, any where on the

net.

> Try @Backup FREE and recieve 300 points from mypoints.com Install

now:

> http://click./1/5467/1/_/82384/_/960892655/

> --------------------------------------------------------------------

----

>

> Know someone who could profit from our list? Send our direct sign-up

URL: http://www.onelist.com/subscribe.cgi/chronic_pain or write us

at: chronic_pain-listowneronelist

> Manage your subscription with several special email addresses:

> chronic_pain-owneronelist - Sends email to the list owners

> chronic_pain-subscribeonelist - Subscribe to the list through

email

> chronic_pain-unsubscribeonelist - Unsubscribe from the list

> chronic_pain-normalonelist - Switch your subscription to normal

> chronic_pain-digestonelist - Switch your subscription to digest

>

>

>

>

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  • 1 month later...
Guest guest

In a message dated 7/19/00 11:06:48 PM Eastern Daylight Time,

TheTaeBoWay@... writes:

<<

I had your pictures downloaded on my desktop and my SO opened them up-he was

very impressed with your results! :) >>

Eek, don't show anyone! LOL! Thanks so much for the compliment!

:)

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Guest guest

> (((((le)))))

> You are going thru so much! I wish I had some magic words to make

everything

> better!! I am sending you a great big hug. I hope it helps!

> :)

- you just did a magic move that sure helped a lot!!!! I

really appreciate those hugs and your kind words. You are such a

sweetheart. Hugs are the best thing ever invented!

My husband just was making fun of me regarding that all school reunion

I went to in June and how I had to hug EVERYONE - that is just who I

am and I don't think that is such a bad thing. It could be worse!!!!

When I was a senior in H.S. and the Junior class read our futures,

mine was that I worked in a hotel (because I at one time had plans in

going into hotel administration) and hugged everyone that came through

the door. See, it could be worse, I could go up to total strangers and

hug them!!! LOL

Thanks again ((())).

le

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