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Re: I give up......

By Guest guest, in Health, Medicine and Natural Healing 12

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Guest guest
Posted

Its really tough, cause my newborn doesnt want to be put down ecen for a second.

I even have to sleep holding him him. Im so exhausted I cant even remember the

last time I actually went to sleep. This is the hardest baby I have had. Even

colton was the easiest baby especially since he was completely stationary til he

was over 10 months old. Lol. Sometimes I just wanna run away. Yeah and peyton

has a milk allergy and he had an ultrasound the other.day to make sure he doesnt

have a blockage in his belly. So needless to say I hace almost no time for

Colton. And it almost pisses me off. I really want to spend time with him so bad

because I already feel loke I have missed so much with him due to my very hard

pregnancy and now him being here I think is worse. And to top it all off I was

dx with bipolar disorder when I was 20 and when im pregnant my symptoms pretty

much go away. And around 8 to 12 weeks they start coming back, I wish I had more

help. :(

------------------------------

>I am sorry, typing on my iPad I sounded brusque. I understand--for me, 2 1/2

to 4 1/2 was a really, really intense and tiring time. My son (Asperger

Syndrome) was very high needs, and I had a baby, too, who, incidentally, had

multiple food allergies. I was on a strict elimination diet so that he didn't

get sick from the breast milk. It was hard, and sometimes I didn't think I

would make it through.

>

>But I did. And my son made it through the hardest part, too. Early

intervention really is so important, and that is why I encouraged you to work at

home, even while you are waiting for Early Start to figure their act out (and I

totally agree that the therapist was out of line!). Ultimately, even an hour a

week with the most amazing therapist ever is just an hour a week. What you can

do at home is also very helpful. Yes, it is really important to have

professionals on that journey with you, to help you with resources, to help you

know where to focus next, to help you know what to do, etc. Until you get them,

my only point for the message was meant for empowerment--you can help him now,

even as you wait for the system to work.

>

>Incidentally, we pursed a diagnosis for my son through our health insurance,

through a psychiatrist. After that we went to the school district (he was 3;9

at that point), and they did additional testing to see if he qualified for

services. But having the diagnosis from the psychiatrist initially was very

helpful, and he had good resources for us too,

>

>Sent from my iPad

>

>

>

>>

>>

>> Well I really do try not to let him rock so much but it is literally so much

that there is no way to control even.a little bit of it. He rocks him self to

sleep at night in his crib. We wakes up in the middle of the night any where

between 1 and 4am and rocks for an hour or 2. And if I try to redirect his

attention he has a meltdown. Then the rocking gets violent. And if I try to hard

he attacks me. So I just let him do it most of the time. And I have 3 other

children and one will be 3 months old tomorrow. :/

>>

>> ------------------------------

>>

>>

>> >I think liking commercials is not atypical for all kids. My daughter is not

on the spectrum at all, and she'll come running from another room for

commercials-- not even on kid shows, any TV.

>> >

>> >Pursue an evaluation, because you are concerned. But remember that just like

you know that Colton making eye contact doesn't rule out autism, neither does

stimming or having meltdowns automatically rule in autism. There are so many

factors to consider, and a whole DSM-IV qualification to meet. A good evaluation

will help sort it all out.

>> >

>> >In the meantime, start doing what you would do if he did have autism. You

don't have to wait for a diagnosis to do that. Provide a language rich

environment. If he is rocking until he has sores, I would not let that happen.

Engage him in a different activity when he starts rocking. Play, play, play. He

doesn't play with his toys? Teach him how! Play along with him, show him how to

use it. Does he currently receive speech therapy? Ask the SLP for some

suggestions of how to work with him at home. If not, there are a lot of great

early learning blogs that could help give you ideas. At the very least, read to

him, as much as possible.

>> >

>> >Sent from my iPad

>> >

>> >

>> >

>> > Omg are you serious. Colton does that to commercials too. I thought he just

liked them a lot. He will not pay attention to much of anything else on t.v.

That is so strange. I just thought he liked commercials. A lot of times he will

stim to them. And a lot of times when he rocks he has to have a blanket or

pillow or even the rug from the front door in his lap. kinda makes sense

now.....

>> >

>> >

>> >

>> > To: " autism-aspergers " <autism-aspergers >

>> > Sent: Tuesday, April 24, 2012 2:18 PM

>> > Subject: Re: I give up......

>> >

>> >

>> > The guy sounds like an ass, sorry you had to deal with him! It's hard

enough on a daily basis to deal with some people. What he did was not acceptable

and he is the one who should be more comforting. I would report him! I watched

your videos. My daughter did the same things. Her meltdowns were much more

intense but I think your son's was having a meltdown. My daughter did the

stimming and still does. One thing my daughter did we used to think was " funny "

before we realized what it was. She would stop everything when commercials came

on TV. She was so fascinated by any and all commercials anything it could be

aspirin or cars she stopped everything.

>> >

>> > Please keep trying to get early intervention for your son. It has made a

world of difference in our daughter and our lives. Do you have a Children's

Hospital near you? I would make an appointment with them if you can.

>> >

>> > If guns kill people then pencils cause misspelled words

>> >

>> >

>> > To: " autism-aspergers " <autism-aspergers >

>> > Sent: Tuesday, April 24, 2012 12:48 PM

>> > Subject: I give up......

>> >

>> >

>> > So for the last 7 weeks that Coltons therapist has been coming to see him

he has only showed up 3 times. He is suppose to come once a week for an hour.

When he cancels he texts me minutes away from the appt. time. Which I find

ridiculous. So I called yesterday to have Early Steps try and get me a different

Therapist. And to have Colton tested for ASD. And to get him into a Gifted

school. They accept children that have anything from developmental delays to

Severe Retardation. And you can start at 18 months old. Everything went good til

today. When The old Therapist comes to my house and is like well can you tell me

why I'm not on your case anymore? And I calmly explained to him that I need

someone more reliable. He mentioned that I should not seek a dx and that I

should wait a few years if I am told to do so. And then he goes on to talk about

how everyone at the office is " talking " about " certain parents " that only want

their child dx so they can

>> receive government benefits. And said that they don't say names cause they

aren't allowed to but didn't think any of it was about me. I in no way shape or

form want anything from the government only the right kind of care for my child.

I am extremely hurt by what he said. And Think that you know maybe there isn't

anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking

about it. I don't know what to do. I am really starting to question if there is

anything wrong at all. :-/

>> >

>> >

>> > P.S. This is my Son Colton

http://www.youtube.com/user/bradleysmommy1?feature=mhee

>> >

>> >

>> >

>> >

>> >

>>

>>

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Guest guest
Posted

Hay I do that! All of a sudden I see something and think it is new and people tell me it has been on dozens of times already! With me though I have other thoughts in my mind and am not paying attention. Have a hard time when a movie just starts because I am so busy looking at everything what they are wearing the texture of their clothing the weather all the objects cars buildings I am well into it and wonder what it is about and my husband says to me AREN’T YOU WATCHING! in a rather rude tone. Well yes I WAS watching just wasn’t listening. Had a heck of a time when I went to college had to stop all that and listen or I would get way behind. Learned to listen first watch later because that first class was the SYLLABUS! What the professor wanted out of you for the rest of the term. Miss that and you’re in big trouble.

Sigh.

Carolyn

From: Riley

Sent: Tuesday, April 24, 2012 4:46 PM

To: autism-aspergers

Subject: Re: I give up......

Yep - just goes to prove we are all different. Sometimes I comment that a new commercial is good, only to be told it has been on multiple times a day for weeks.

that's funny because all three of my kids can be hyper focused on the tv but once the commercial comes on they are up my butt!!

From: mailto:heythere_heather@...To: mailto:autism-aspergers mailto:autism-aspergers Sent: Tuesday, April 24, 2012 6:22 PMSubject: Re: I give up......

I think liking commercials is not atypical for all kids. My daughter is not on the spectrum at all, and she'll come running from another room for commercials-- not even on kid shows, any TV.

Pursue an evaluation, because you are concerned. But remember that just like you know that Colton making eye contact doesn't rule out autism, neither does stimming or having meltdowns automatically rule in autism. There are so many factors to consider, and a whole DSM-IV qualification to meet. A good evaluation will help sort it all out.

In the meantime, start doing what you would do if he did have autism. You don't have to wait for a diagnosis to do that. Provide a language rich environment. If he is rocking until he has sores, I would not let that happen. Engage him in a different activity when he starts rocking. Play, play, play. He doesn't play with his toys? Teach him how! Play along with him, show him how to use it. Does he currently receive speech therapy? Ask the SLP for some suggestions of how to work with him at home. If not, there are a lot of great early learning blogs that could help give you ideas. At the very least, read to him, as much as possible.

Sent from my iPad

Omg are you serious. Colton does that to commercials too. I thought he just liked them a lot. He will not pay attention to much of anything else on t.v. That is so strange. I just thought he liked commercials. A lot of times he will stim to them. And a lot of times when he rocks he has to have a blanket or pillow or even the rug from the front door in his lap. kinda makes sense now.....

To: "autism-aspergers " <autism-aspergers > Sent: Tuesday, April 24, 2012 2:18 PMSubject: Re: I give up......

The guy sounds like an ass, sorry you had to deal with him! It's hard enough on a daily basis to deal with some people. What he did was not acceptable and he is the one who should be more comforting. I would report him! I watched your videos. My daughter did the same things. Her meltdowns were much more intense but I think your son's was having a meltdown. My daughter did the stimming and still does. One thing my daughter did we used to think was "funny" before we realized what it was. She would stop everything when commercials came on TV. She was so fascinated by any and all commercials anything it could be aspirin or cars she stopped everything.

Please keep trying to get early intervention for your son. It has made a world of difference in our daughter and our lives. Do you have a Children's Hospital near you? I would make an appointment with them if you can.

If guns kill people then pencils cause misspelled words

To: "autism-aspergers " <autism-aspergers > Sent: Tuesday, April 24, 2012 12:48 PMSubject: I give up......

So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/

P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee

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Guest guest
Posted

Wow, Colton and Chase really sound so similar. It feels so good to find someone

that is a lot like Colton. It drives me crazy he always has something in his

mouth. At first I was like ok well all babies do this, but usually grow out of

it by his age and he takes it to the extreme. Ge will put something in his mouth

and if he doesnt like it or want it he gives it to me.

Colton loves his brush. He used to just like hair, but then this brush thing

started about a couple weeks ago. He is even obsessed with pictures of brushes.

If he sees one on tv he gets overly excited and starts rocking.

------------------------------

>Sara,

>Chase too.  OMG!  This all brings back so many memories.  Chase put

everything in his mouth...and, still puts things in his mouth from time to time.

 He is 10...so annoying!  

>And, Chase had NO idea what to use a brush for.  Gosh...how many times did we

show him!???  Thousands.  Finallly, he would do it.  But, never pretend

played with it like kids do.  He will brush his hair sometimes now.  But,

mostly I do it....

>Lori

>

>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism!

>

>https://www.facebook.com/BoycottMovie21JumpStreetForAutism

>

>

>

>> >

>

>> >

>

>> > Omg are you serious. Colton does that to commercials too. I thought he just

liked them a lot. He will not pay attention to much of anything else on t.v.

That is so strange. I just thought he liked commercials. A lot of times he will

stim to them. And a lot of times when he rocks he has to have a blanket or

pillow or even the rug from the front door in his lap. kinda makes sense

now.....

>

>> >

>

>> >

>

>> >

>

>> > To: " autism-aspergers " <autism-aspergers >

>

>> > Sent: Tuesday, April 24, 2012 2:18 PM

>

>> > Subject: Re: I give up......

>

>> >

>

>> >

>

>> > The guy sounds like an ass, sorry you had to deal with him! It's hard

enough on a daily basis to deal with some people. What he did was not acceptable

and he is the one who should be more comforting. I would report him! I watched

your videos. My daughter did the same things. Her meltdowns were much more

intense but I think your son's was having a meltdown. My daughter did the

stimming and still does. One thing my daughter did we used to think was " funny "

before we realized what it was. She would stop everything when commercials came

on TV. She was so fascinated by any and all commercials anything it could be

aspirin or cars she stopped everything.

>

>> >

>

>> > Please keep trying to get early intervention for your son. It has made a

world of difference in our daughter and our lives. Do you have a Children's

Hospital near you? I would make an appointment with them if you can.

>

>> >

>

>> > If guns kill people then pencils cause misspelled words

>

>> >

>

>> >

>

>> > To: " autism-aspergers " <autism-aspergers >

>

>> > Sent: Tuesday, April 24, 2012 12:48 PM

>

>> > Subject: I give up......

>

>> >

>

>> >

>

>> > So for the last 7 weeks that Coltons therapist has been coming to see him

he has only showed up 3 times. He is suppose to come once a week for an hour.

When he cancels he texts me minutes away from the appt. time. Which I find

ridiculous. So I called yesterday to have Early Steps try and get me a different

Therapist. And to have Colton tested for ASD. And to get him into a Gifted

school. They accept children that have anything from developmental delays to

Severe Retardation. And you can start at 18 months old. Everything went good til

today. When The old Therapist comes to my house and is like well can you tell me

why I'm not on your case anymore? And I calmly explained to him that I need

someone more reliable. He mentioned that I should not seek a dx and that I

should wait a few years if I am told to do so. And then he goes on to talk about

how everyone at the office is " talking " about " certain parents " that only want

their child dx so they can

>

>> receive government benefits. And said that they don't say names cause they

aren't allowed to but didn't think any of it was about me. I in no way shape or

form want anything from the government only the right kind of care for my child.

I am extremely hurt by what he said. And Think that you know maybe there isn't

anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking

about it. I don't know what to do. I am really starting to question if there is

anything wrong at all. :-/

>

>> >

>

>> >

>

>> > P.S. This is my Son Colton

http://www.youtube.com/user/bradleysmommy1?feature=mhee

>

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>> > TODAY(Beta) • Powered by Yahoo!

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Guest guest
Posted

Wow, that is hard. It really sounds like you might have postpartum depression going on...or just your bipolar rearing it's ugly head. You probably need to get checked and maybe talk to someone. You have to take care of yourself so that you can take care of the kids. Have you tried a sling to help with carrying the baby around. They are wonderful and easy and comfortable. Do you have help (daddy, grandparents, aunts/uncles, friend...)? Try to arrange someone to come and hold the baby while you play with your son or get a nap. Have you tried a swing for the baby. If it is the movement that he likes then maybe a swing or bouncy chair would help. You could look at getting a 'mother's helper' ... a preteen or early teen that can gain babysitting experience and help you out some. You usually don't have to pay them as much. Sleep when the baby sleeps, if possible.

Good luck and don't give up. 'and this too shall pass!'

  Only two defining forces have ever offered to die for you;

Jesus Christ and the American Soldier.

One died for your soul; the other for your freedom.

-- I give up......>> > >> > >> > So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can>> receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/>> > >> > >> > P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee>> > >> > >> > >> > >> > >> >>

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Guest guest   

Guest guest
Posted

That sounds like my . I couldn't put him down either. I told my cousin that I wore the front pouch thing to do my chores just so that he was happy. She said she's put him down and let him scream......that is like the theory you hear about food....."if they are hungry enough they'll eat" ummmm.....no, mine will keep screaming and he'll starve too. To: autism-aspergers Sent: Tuesday, April 24, 2012 8:20 PM Subject: Re: I give up......

Yeah, I attached a picture of colton when he fell into the table. And he just simply looked at me like what the hell is that table doing there? And walked off. Coltons younger brother will be 3 months old tomorrow and I literally can not put him down fir even a second or hes screaming his head off. Almost like hes in pain its very strange and he has a milk allergy and hes got acid reflux, so he has to sit up all the time.

------------------------------

>I think it may be a matter of not being engaged with our own bodies. I know if I get up in the morning and it is cold and I dress warmly, if it comes out warm - even if it gets over 30C - I probably won't notice i need to remove any clothes. I have also been known to dress for warm weather and then need reminding (this is why we have mothers and wives :) ) to put something else on. I don't always notice small things that cause pain. I am just focused on other things. My son is much the same. But when it comes to emotional or mental discomfort - that is another thing! My son cried almost constantly if not being held for the first 10 months of his life. But after that, if he fell over, sometimes he cried, sometimes he didn't. Usually not much at all - nothing like from the distress of not being held. He took years to learn to put out his hands to break his fall, but even when he put his teeth through his lips and there was blood everywhere,

it

was more a whimper than a cry. The only time he really cried was if he couldn't see me when it happened. Once I was there, it was fine.

>

>Strange thing is, if I cut my nails and there is even the slightest 'catch' on anything it drives me mad. My wife has often commented I fuss over my nails worse than any woman. It's just that if they are not smooth, then any contact with anything is like fingernails screeching on a blackboard. Did anyone else have a teacher who did that to get attention? Not sure how I survived a year without getting up and hitting her hard. Maybe because I was only 7 at the time :)

>

>

>

>

>> �Just piggy-backing on what said- my son with Asperger's has an incredibly high tolerance for pain.� He's now 10. If he cried (as a baby, toddler, or even now) we knew it was very bad... usually involving blood or worse.� It's bizarre the level of pain he can handle!!�

>>

>>

>> On Tue, Apr 24, 2012 at 3:57 PM, sara degeer <bradleysmommy1@... wrote:

>>

>> �

>> [Attachment(s) <#136e5ee3c4d375be_TopText> from sara degeer

>> included below]

>> Yes he rocks all the time It took the sores a couple months to

>> heal because he would keep rocking. Colton has a very high pain

>> tolerance as well just the other day he was sitting in my lap and

>> started throwing a fit and did the limp noodle thing and slid out

>> of my lap and when his knees hit the floor he kinda lunged forward

>> and hit his forehead on the coffee table that is in the videos and

>> didn't even cry. Just looked at me funny and walked away with a

>> lump sticking out of his head about a 1/4 of an inch. It was huge

>> and he should've cried. Here is a picture of it seconds after it

>> happened. He was more upset that I was trying to hold him still to

>> take the pic. :(

>>

>> ----------------------------------------------------------

>> *From:* and <alexandriairma@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 3:47 PM

>> *Subject:* Re: I give up......

>>

>> �

>> You mentioned the scars on his back from rocking? When the scars

>> are sores does it stop him from rocking? My daughter has what I

>> think is an incredibly high tolerance for pain. When she has

>> skinned her knees and does this weird sound thing but won't cry.

>> She does freak out at the sight of blood even if it is not her

>> own. I think it is all part of the sensory issues.�

>>

>> Ella did not speak until after her second birthday, but she did a

>> lot of stuff early. When she finally did speak she was very

>> articulate (well for a 26 -27 month old) if you or anyone wants to

>> look at her videos let me know, I will give you the link.

>>

>> As for toys Ella has/has the�opposite�of the Midas Touch, she

>> intentionally took apart or broke most of her toys.�

>> �

>> */If guns kill people then pencils cause misspelled words/*

>>

>> ----------------------------------------------------------

>> *From:* sara degeer <bradleysmommy1@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 1:35 PM

>> *Subject:* Re: I give up......

>>

>> �

>> No Colton doesn't talk. He babbles like a little baby, but no real

>> words. He talks to himself almost constantly. And the rocking is

>> all day and all night. He has scars from rocking, on his back he

>> has like these lesion things from rocking against hard surfaces

>> and it wont ever heal cause he continues to do it so often. I have

>> been trying to get him to point at stuff since before he was a

>> year old. And I wish he played normal with his toys seeing as how

>> he has so many of them. I feel like half the time we just waste

>> our money on toys because he doesn't play with them instead he

>> just carries them around the house in his hand and/or throws them

>> at people.�

>>

>> ----------------------------------------------------------

>> *From:* Lori Yurtin <loriyurtin@...

>>

>> *To:* autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 2:06 PM

>> *Subject:* Re: I give up......

>>

>> �

>> One more thing. �He is darling! �And, although in isolation,

>> rocking and spinning can be perfectly normal...if he isn't

>> talking...isn't pointing...doesn't play appropiately with most

>> toys...doesn't reference....etc, etc...he is on the spectrum.

>> �Please don't doubt yourself. �If I waited, my son would never

>> have learned to talk...NEVER! �My son also is "gifted" but has

>> classic autism. �And, he is currently mainstreamed in 3rd grade.

>> �I may homeschool him next year, though. �

>>

>>

>>

>> Please BOYCOTT the movie 21 Jump Street! It makes fun of those

>> with autism!

>> https://www.facebook.com/BoycottMovie21JumpStreetForAutism

>>

>>

>>

>>

>> From: sara degeer <bradleysmommy1@...

>>

>> Subject: I give up......

>> To: "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> Date: Tuesday, April 24, 2012, 10:48 AM

>>

>> �

>> So for the last 7 weeks that Coltons therapist has been coming

>> to see him he has only showed up 3 times. He is suppose to

>> come once a week for an hour. When he cancels he texts me

>> minutes away from the appt. time. Which I find ridiculous. So

>> I called yesterday to have Early Steps try and get me a

>> different Therapist. And to have Colton tested for ASD. And to

>> get him into a Gifted school. They accept children that have

>> anything from developmental delays to Severe Retardation. And

>> you can start at 18 months old. Everything went good til

>> today. When The old Therapist comes to my house and is like

>> well can you tell me why I'm not on your case anymore? And I

>> calmly explained to him that I need someone more reliable. He

>> mentioned that I should not seek a dx and that I should wait a

>> few years if I am told to do so. And then he goes on to talk

>> about how everyone at the office is "talking" about "certain

>> parents" that only want their child dx so they can receive

>> government benefits. And said that they don't say names cause

>> they aren't allowed to but didn't think any of it was about

>> me. I in no way shape or form want anything from the

>> government only the right kind of care for my child. I am

>> extremely hurt by what he said. And Think that you know maybe

>> there isn't anything wrong with him. Maybe he's just weird and

>> quirky. I can't stop thinking about it. I don't know what to

>> do. I am really starting to question if there is anything

>> wrong at all. :-/

>>

>>

>> P.S. This is my Son

>> Colton�http://www.youtube.com/user/bradleysmommy1?feature=mhee

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>> No virus found in this message.

>> Checked by AVG - www.avg.com <http://www.avg.com>

>> Version: 2012.0.1913 / Virus Database: 2411/4957 - Release Date: 04/24/12

>>

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Awww...I've been there minus the bipolor part but I had severe PPD with my oldest two children (but miraculously not with my third). My oldest was the one I couldn't put down which in a way made it easier than you've got it b/c there was no other child in the house at the time. All my pregnancies were difficult for one reason or another. I hope you find some time to take care of you. From: sara degeer

To: autism-aspergers Sent: Tuesday, April 24, 2012 10:10 PM Subject: Re: I give up......

Its really tough, cause my newborn doesnt want to be put down ecen for a second. I even have to sleep holding him him. Im so exhausted I cant even remember the last time I actually went to sleep. This is the hardest baby I have had. Even colton was the easiest baby especially since he was completely stationary til he was over 10 months old. Lol. Sometimes I just wanna run away. Yeah and peyton has a milk allergy and he had an ultrasound the other.day to make sure he doesnt have a blockage in his belly. So needless to say I hace almost no time for Colton. And it almost pisses me off. I really want to spend time with him so bad because I already feel loke I have missed so much with him due to my very hard pregnancy and now him being here I think is worse. And to top it all off I was dx with bipolar disorder when I was 20 and when im pregnant my symptoms pretty much go away. And around 8 to 12 weeks they start coming back, I wish I had more help. :(

------------------------------

>I am sorry, typing on my iPad I sounded brusque. I understand--for me, 2 1/2 to 4 1/2 was a really, really intense and tiring time. My son (Asperger Syndrome) was very high needs, and I had a baby, too, who, incidentally, had multiple food allergies. I was on a strict elimination diet so that he didn't get sick from the breast milk. It was hard, and sometimes I didn't think I would make it through.

>

>But I did. And my son made it through the hardest part, too. Early intervention really is so important, and that is why I encouraged you to work at home, even while you are waiting for Early Start to figure their act out (and I totally agree that the therapist was out of line!). Ultimately, even an hour a week with the most amazing therapist ever is just an hour a week. What you can do at home is also very helpful. Yes, it is really important to have professionals on that journey with you, to help you with resources, to help you know where to focus next, to help you know what to do, etc. Until you get them, my only point for the message was meant for empowerment--you can help him now, even as you wait for the system to work.

>

>Incidentally, we pursed a diagnosis for my son through our health insurance, through a psychiatrist. After that we went to the school district (he was 3;9 at that point), and they did additional testing to see if he qualified for services. But having the diagnosis from the psychiatrist initially was very helpful, and he had good resources for us too,

>

>Sent from my iPad

>

>

>

>>

>>

>> Well I really do try not to let him rock so much but it is literally so much that there is no way to control even.a little bit of it. He rocks him self to sleep at night in his crib. We wakes up in the middle of the night any where between 1 and 4am and rocks for an hour or 2. And if I try to redirect his attention he has a meltdown. Then the rocking gets violent. And if I try to hard he attacks me. So I just let him do it most of the time. And I have 3 other children and one will be 3 months old tomorrow. :/

>>

>> ------------------------------

>>

>>

>> >I think liking commercials is not atypical for all kids. My daughter is not on the spectrum at all, and she'll come running from another room for commercials-- not even on kid shows, any TV.

>> >

>> >Pursue an evaluation, because you are concerned. But remember that just like you know that Colton making eye contact doesn't rule out autism, neither does stimming or having meltdowns automatically rule in autism. There are so many factors to consider, and a whole DSM-IV qualification to meet. A good evaluation will help sort it all out.

>> >

>> >In the meantime, start doing what you would do if he did have autism. You don't have to wait for a diagnosis to do that. Provide a language rich environment. If he is rocking until he has sores, I would not let that happen. Engage him in a different activity when he starts rocking. Play, play, play. He doesn't play with his toys? Teach him how! Play along with him, show him how to use it. Does he currently receive speech therapy? Ask the SLP for some suggestions of how to work with him at home. If not, there are a lot of great early learning blogs that could help give you ideas. At the very least, read to him, as much as possible.

>> >

>> >Sent from my iPad

>> >

>> >

>> >

>> > Omg are you serious. Colton does that to commercials too. I thought he just liked them a lot. He will not pay attention to much of anything else on t.v. That is so strange. I just thought he liked commercials. A lot of times he will stim to them. And a lot of times when he rocks he has to have a blanket or pillow or even the rug from the front door in his lap. kinda makes sense now.....

>> >

>> >

>> >

>> > To: "autism-aspergers " <autism-aspergers >

>> > Sent: Tuesday, April 24, 2012 2:18 PM

>> > Subject: Re: I give up......

>> >

>> >

>> > The guy sounds like an ass, sorry you had to deal with him! It's hard enough on a daily basis to deal with some people. What he did was not acceptable and he is the one who should be more comforting. I would report him! I watched your videos. My daughter did the same things. Her meltdowns were much more intense but I think your son's was having a meltdown. My daughter did the stimming and still does. One thing my daughter did we used to think was "funny" before we realized what it was. She would stop everything when commercials came on TV. She was so fascinated by any and all commercials anything it could be aspirin or cars she stopped everything.

>> >

>> > Please keep trying to get early intervention for your son. It has made a world of difference in our daughter and our lives. Do you have a Children's Hospital near you? I would make an appointment with them if you can.

>> >

>> > If guns kill people then pencils cause misspelled words

>> >

>> >

>> > To: "autism-aspergers " <autism-aspergers >

>> > Sent: Tuesday, April 24, 2012 12:48 PM

>> > Subject: I give up......

>> >

>> >

>> > So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so

they can

>> receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/

>> >

>> >

>> > P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee

>> >

>> >

>> >

>> >

>> >

>>

>>

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he might really be in pain the little baby next door was holding her head funny when I first saw her and it didn't take very long to realize she had neck and back problems a few visits with a chiropractor massage person that deals with kids made a while different child the acid reflux is nasty also

I literally can not put him down fir even a second or hes screaming his head off. Almost like hes in pain its very strange and he has a milk allergy and hes got acid reflux, so he has to sit up all the time.

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My Chase was like that and he screamed even if I held him. Plus, he is a twin. I had no choice but to let him scream on many occasions. :(Sent from my iPhone

That sounds like my . I couldn't put him down either. I told my cousin that I wore the front pouch thing to do my chores just so that he was happy. She said she's put him down and let him scream......that is like the theory you hear about food....."if they are hungry enough they'll eat" ummmm.....no, mine will keep screaming and he'll starve too. To: autism-aspergers Sent: Tuesday, April 24, 2012 8:20 PM Subject: Re: I give up......

Yeah, I attached a picture of colton when he fell into the table. And he just simply looked at me like what the hell is that table doing there? And walked off. Coltons younger brother will be 3 months old tomorrow and I literally can not put him down fir even a second or hes screaming his head off. Almost like hes in pain its very strange and he has a milk allergy and hes got acid reflux, so he has to sit up all the time.

------------------------------

>I think it may be a matter of not being engaged with our own bodies. I know if I get up in the morning and it is cold and I dress warmly, if it comes out warm - even if it gets over 30C - I probably won't notice i need to remove any clothes. I have also been known to dress for warm weather and then need reminding (this is why we have mothers and wives :) ) to put something else on. I don't always notice small things that cause pain. I am just focused on other things. My son is much the same. But when it comes to emotional or mental discomfort - that is another thing! My son cried almost constantly if not being held for the first 10 months of his life. But after that, if he fell over, sometimes he cried, sometimes he didn't. Usually not much at all - nothing like from the distress of not being held. He took years to learn to put out his hands to break his fall, but even when he put his teeth through his lips and there was blood everywhere,

it

was more a whimper than a cry. The only time he really cried was if he couldn't see me when it happened. Once I was there, it was fine.

>

>Strange thing is, if I cut my nails and there is even the slightest 'catch' on anything it drives me mad. My wife has often commented I fuss over my nails worse than any woman. It's just that if they are not smooth, then any contact with anything is like fingernails screeching on a blackboard. Did anyone else have a teacher who did that to get attention? Not sure how I survived a year without getting up and hitting her hard. Maybe because I was only 7 at the time :)

>

>

>

>

>> �Just piggy-backing on what said- my son with Asperger's has an incredibly high tolerance for pain.� He's now 10. If he cried (as a baby, toddler, or even now) we knew it was very bad... usually involving blood or worse.� It's bizarre the level of pain he can handle!!�

>>

>>

>> On Tue, Apr 24, 2012 at 3:57 PM, sara degeer <bradleysmommy1@... wrote:

>>

>> �

>> [Attachment(s) <#136e5ee3c4d375be_TopText> from sara degeer

>> included below]

>> Yes he rocks all the time It took the sores a couple months to

>> heal because he would keep rocking. Colton has a very high pain

>> tolerance as well just the other day he was sitting in my lap and

>> started throwing a fit and did the limp noodle thing and slid out

>> of my lap and when his knees hit the floor he kinda lunged forward

>> and hit his forehead on the coffee table that is in the videos and

>> didn't even cry. Just looked at me funny and walked away with a

>> lump sticking out of his head about a 1/4 of an inch. It was huge

>> and he should've cried. Here is a picture of it seconds after it

>> happened. He was more upset that I was trying to hold him still to

>> take the pic. :(

>>

>> ----------------------------------------------------------

>> *From:* and <alexandriairma@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 3:47 PM

>> *Subject:* Re: I give up......

>>

>> �

>> You mentioned the scars on his back from rocking? When the scars

>> are sores does it stop him from rocking? My daughter has what I

>> think is an incredibly high tolerance for pain. When she has

>> skinned her knees and does this weird sound thing but won't cry.

>> She does freak out at the sight of blood even if it is not her

>> own. I think it is all part of the sensory issues.�

>>

>> Ella did not speak until after her second birthday, but she did a

>> lot of stuff early. When she finally did speak she was very

>> articulate (well for a 26 -27 month old) if you or anyone wants to

>> look at her videos let me know, I will give you the link.

>>

>> As for toys Ella has/has the�opposite�of the Midas Touch, she

>> intentionally took apart or broke most of her toys.�

>> �

>> */If guns kill people then pencils cause misspelled words/*

>>

>> ----------------------------------------------------------

>> *From:* sara degeer <bradleysmommy1@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 1:35 PM

>> *Subject:* Re: I give up......

>>

>> �

>> No Colton doesn't talk. He babbles like a little baby, but no real

>> words. He talks to himself almost constantly. And the rocking is

>> all day and all night. He has scars from rocking, on his back he

>> has like these lesion things from rocking against hard surfaces

>> and it wont ever heal cause he continues to do it so often. I have

>> been trying to get him to point at stuff since before he was a

>> year old. And I wish he played normal with his toys seeing as how

>> he has so many of them. I feel like half the time we just waste

>> our money on toys because he doesn't play with them instead he

>> just carries them around the house in his hand and/or throws them

>> at people.�

>>

>> ----------------------------------------------------------

>> *From:* Lori Yurtin <loriyurtin@...

>>

>> *To:* autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 2:06 PM

>> *Subject:* Re: I give up......

>>

>> �

>> One more thing. �He is darling! �And, although in isolation,

>> rocking and spinning can be perfectly normal...if he isn't

>> talking...isn't pointing...doesn't play appropiately with most

>> toys...doesn't reference....etc, etc...he is on the spectrum.

>> �Please don't doubt yourself. �If I waited, my son would never

>> have learned to talk...NEVER! �My son also is "gifted" but has

>> classic autism. �And, he is currently mainstreamed in 3rd grade.

>> �I may homeschool him next year, though. �

>>

>>

>>

>> Please BOYCOTT the movie 21 Jump Street! It makes fun of those

>> with autism!

>> https://www.facebook.com/BoycottMovie21JumpStreetForAutism

>>

>>

>>

>>

>> From: sara degeer <bradleysmommy1@...

>>

>> Subject: I give up......

>> To: "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> Date: Tuesday, April 24, 2012, 10:48 AM

>>

>> �

>> So for the last 7 weeks that Coltons therapist has been coming

>> to see him he has only showed up 3 times. He is suppose to

>> come once a week for an hour. When he cancels he texts me

>> minutes away from the appt. time. Which I find ridiculous. So

>> I called yesterday to have Early Steps try and get me a

>> different Therapist. And to have Colton tested for ASD. And to

>> get him into a Gifted school. They accept children that have

>> anything from developmental delays to Severe Retardation. And

>> you can start at 18 months old. Everything went good til

>> today. When The old Therapist comes to my house and is like

>> well can you tell me why I'm not on your case anymore? And I

>> calmly explained to him that I need someone more reliable. He

>> mentioned that I should not seek a dx and that I should wait a

>> few years if I am told to do so. And then he goes on to talk

>> about how everyone at the office is "talking" about "certain

>> parents" that only want their child dx so they can receive

>> government benefits. And said that they don't say names cause

>> they aren't allowed to but didn't think any of it was about

>> me. I in no way shape or form want anything from the

>> government only the right kind of care for my child. I am

>> extremely hurt by what he said. And Think that you know maybe

>> there isn't anything wrong with him. Maybe he's just weird and

>> quirky. I can't stop thinking about it. I don't know what to

>> do. I am really starting to question if there is anything

>> wrong at all. :-/

>>

>>

>> P.S. This is my Son

>> Colton�http://www.youtube.com/user/bradleysmommy1?feature=mhee

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>> No virus found in this message.

>> Checked by AVG - www.avg.com <http://www.avg.com>

>> Version: 2012.0.1913 / Virus Database: 2411/4957 - Release Date: 04/24/12

>>

=

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Posted

I wish it was that easy for me I have my husband but he works all the time. And

my mom works full time and then when she gets home takes care of my sisters kids

while she works. And that is pretty much the extent of my family. And no real

friends that would help. :( and I have noticed that a lot people find it hard to

beleive that someone could have absolutely no one to rely on, but I am one of

those people.

------------------------------

>Wow, that is hard. It really sounds like you might have postpartum

>depression going on...or just your bipolar rearing it's ugly head. You

>probably need to get checked and maybe talk to someone. You have to take

>care of yourself so that you can take care of the kids. Have you tried a

>sling to help with carrying the baby around. They are wonderful and easy and

>comfortable. Do you have help (daddy, grandparents, aunts/uncles, friend..

>)? Try to arrange someone to come and hold the baby while you play with your

>son or get a nap. Have you tried a swing for the baby. If it is the movement

>that he likes then maybe a swing or bouncy chair would help. You could look

>at getting a 'mother's helper' ... a preteen or early teen that can gain

>babysitting experience and help you out some. You usually don't have to pay

>them as much. Sleep when the baby sleeps, if possible.

>

>Good luck and don't give up. 'and this too shall pass!'

>

>

>

> 

>Only two defining forces have ever offered to die for you;

>Jesus Christ and the American Soldier.

>One died for your soul; the other for your freedom.

>-- I give up......

>> >

>> >

>> > So for the last 7 weeks that Coltons therapist has been coming to see

>him he has only showed up 3 times. He is suppose to come once a week for an

>hour. When he cancels he texts me minutes away from the appt. time. Which I

>find ridiculous. So I called yesterday to have Early Steps try and get me a

>different Therapist. And to have Colton tested for ASD. And to get him into

>a Gifted school. They accept children that have anything from developmental

>delays to Severe Retardation. And you can start at 18 months old. Everything

>went good til today. When The old Therapist comes to my house and is like

>well can you tell me why I'm not on your case anymore? And I calmly

>explained to him that I need someone more reliable. He mentioned that I

>should not seek a dx and that I should wait a few years if I am told to do

>so. And then he goes on to talk about how everyone at the office is " talking

> about " certain parents " that only want their child dx so they can

>> receive government benefits. And said that they don't say names cause

>they aren't allowed to but didn't think any of it was about me. I in no way

>shape or form want anything from the government only the right kind of care

>for my child. I am extremely hurt by what he said. And Think that you know

>maybe there isn't anything wrong with him. Maybe he's just weird and quirky.

>I can't stop thinking about it. I don't know what to do. I am really

>starting to question if there is anything wrong at all. :-/

>> >

>> >

>> > P.S. This is my Son Colton http://www.youtube

>com/user/bradleysmommy1?feature=mhee

>> >

>> >

>> >

>> >

>> >

>>

>>

>

>

>

>

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Posted

Yea peyton has been screaming so much he has completely lost his voice. And when

I asked the dr about it she said hes just colicy, so idk

------------------------------

>That sounds like my .  I couldn't put him down either.  I told my

cousin that I wore the front pouch thing to do my chores just so that he was

happy.  She said she's put him down and let him scream......that is like the

theory you hear about food..... " if they are hungry enough they'll eat "  

ummmm.....no, mine will keep screaming and he'll starve too. 

>

> 

>

>

>

>

>________________________________

>

>To: autism-aspergers

>Sent: Tuesday, April 24, 2012 8:20 PM

>Subject: Re: I give up......

>

>

> 

>

>

>Yeah, I attached a picture of colton when he fell into the table. And he just

simply looked at me like what the hell is that table doing there? And walked

off. Coltons younger brother will be 3 months old tomorrow and I literally can

not put him down fir even a second or hes screaming his head off. Almost like

hes in pain its very strange and he has a milk allergy and hes got acid reflux,

so he has to sit up all the time.

>

>------------------------------

>

>

>>I think it may be a matter of not being engaged with our own bodies. I know

if I get up in the morning and it is cold and I dress warmly, if it comes out

warm - even if it gets over 30C - I probably won't notice i need to remove any

clothes. I have also been known to dress for warm weather and then need

reminding (this is why we have mothers and wives :) ) to put something else on.

I don't always notice small things that cause pain. I am just focused on other

things. My son is much the same. But when it comes to emotional or mental

discomfort - that is another thing! My son cried almost constantly if not being

held for the first 10 months of his life. But after that, if he fell over,

sometimes he cried, sometimes he didn't. Usually not much at all - nothing like

from the distress of not being held. He took years to learn to put out his

hands to break his fall, but even when he put his teeth through his lips and

there was blood everywhere, it

>was more a whimper than a cry. The only time he really cried was if he

couldn't see me when it happened. Once I was there, it was fine.

>>

>>Strange thing is, if I cut my nails and there is even the slightest 'catch' on

anything it drives me mad. My wife has often commented I fuss over my nails

worse than any woman. It's just that if they are not smooth, then any contact

with anything is like fingernails screeching on a blackboard. Did anyone else

have a teacher who did that to get attention? Not sure how I survived a year

without getting up and hitting her hard. Maybe because I was only 7 at the time

:)

>>

>>

>>

>>

>> �Just piggy-backing on what said- my son with Asperger's has an

incredibly high tolerance for pain.� He's now 10. If he cried (as a baby,

toddler, or even now) we knew it was very bad... usually involving blood or

worse.� It's bizarre the level of pain he can handle!!�

>>

>>

>> On Tue, Apr 24, 2012 at 3:57 PM, sara degeer <bradleysmommy1@...

wrote:

>>

>> �

>> [Attachment(s) <#136e5ee3c4d375be_TopText> from sara degeer

>> included below]

>> Yes he rocks all the time It took the sores a couple months to

>> heal because he would keep rocking. Colton has a very high pain

>> tolerance as well just the other day he was sitting in my lap and

>> started throwing a fit and did the limp noodle thing and slid out

>> of my lap and when his knees hit the floor he kinda lunged forward

>> and hit his forehead on the coffee table that is in the videos and

>> didn't even cry. Just looked at me funny and walked away with a

>> lump sticking out of his head about a 1/4 of an inch. It was huge

>> and he should've cried. Here is a picture of it seconds after it

>> happened. He was more upset that I was trying to hold him still to

>> take the pic. :(

>>

>> ----------------------------------------------------------

>> *From:* and <alexandriairma@...

>>

>> *To:* " autism-aspergers

>> <mailto:autism-aspergers > "

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 3:47 PM

>> *Subject:* Re: I give up......

>>

>> �

>> You mentioned the scars on his back from rocking? When the scars

>> are sores does it stop him from rocking? My daughter has what I

>> think is an incredibly high tolerance for pain. When she has

>> skinned her knees and does this weird sound thing but won't cry.

>> She does freak out at the sight of blood even if it is not her

>> own. I think it is all part of the sensory issues.�

>>

>> Ella did not speak until after her second birthday, but she did a

>> lot of stuff early. When she finally did speak she was very

>> articulate (well for a 26 -27 month old) if you or anyone wants to

>> look at her videos let me know, I will give you the link.

>>

>> As for toys Ella has/has the�opposite�of the Midas Touch, she

>> intentionally took apart or broke most of her toys.�

>> �

>> */If guns kill people then pencils cause misspelled words/*

>>

>> ----------------------------------------------------------

>> *From:* sara degeer <bradleysmommy1@...

>>

>> *To:* " autism-aspergers

>> <mailto:autism-aspergers > "

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 1:35 PM

>> *Subject:* Re: I give up......

>>

>> �

>> No Colton doesn't talk. He babbles like a little baby, but no real

>> words. He talks to himself almost constantly. And the rocking is

>> all day and all night. He has scars from rocking, on his back he

>> has like these lesion things from rocking against hard surfaces

>> and it wont ever heal cause he continues to do it so often. I have

>> been trying to get him to point at stuff since before he was a

>> year old. And I wish he played normal with his toys seeing as how

>> he has so many of them. I feel like half the time we just waste

>> our money on toys because he doesn't play with them instead he

>> just carries them around the house in his hand and/or throws them

>> at people.�

>>

>> ----------------------------------------------------------

>> *From:* Lori Yurtin <loriyurtin@...

>>

>> *To:* autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 2:06 PM

>> *Subject:* Re: I give up......

>>

>> �

>> One more thing. �He is darling! �And, although in isolation,

>> rocking and spinning can be perfectly normal...if he isn't

>> talking...isn't pointing...doesn't play appropiately with most

>> toys...doesn't reference....etc, etc...he is on the spectrum.

>> �Please don't doubt yourself. �If I waited, my son would never

>> have learned to talk...NEVER! �My son also is " gifted " but has

>> classic autism. �And, he is currently mainstreamed in 3rd grade.

>> �I may homeschool him next year, though. �

>>

>>

>>

>> Please BOYCOTT the movie 21 Jump Street! It makes fun of those

>> with autism!

>> https://www.facebook.com/BoycottMovie21JumpStreetForAutism

>>

>>

>>

>>

>> From: sara degeer <bradleysmommy1@...

>>

>> Subject: I give up......

>> To: " autism-aspergers

>> <mailto:autism-aspergers > "

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> Date: Tuesday, April 24, 2012, 10:48 AM

>>

>> �

>> So for the last 7 weeks that Coltons therapist has been coming

>> to see him he has only showed up 3 times. He is suppose to

>> come once a week for an hour. When he cancels he texts me

>> minutes away from the appt. time. Which I find ridiculous. So

>> I called yesterday to have Early Steps try and get me a

>> different Therapist. And to have Colton tested for ASD. And to

>> get him into a Gifted school. They accept children that have

>> anything from developmental delays to Severe Retardation. And

>> you can start at 18 months old. Everything went good til

>> today. When The old Therapist comes to my house and is like

>> well can you tell me why I'm not on your case anymore? And I

>> calmly explained to him that I need someone more reliable. He

>> mentioned that I should not seek a dx and that I should wait a

>> few years if I am told to do so. And then he goes on to talk

>> about how everyone at the office is " talking " about " certain

>> parents " that only want their child dx so they can receive

>> government benefits. And said that they don't say names cause

>> they aren't allowed to but didn't think any of it was about

>> me. I in no way shape or form want anything from the

>> government only the right kind of care for my child. I am

>> extremely hurt by what he said. And Think that you know maybe

>> there isn't anything wrong with him. Maybe he's just weird and

>> quirky. I can't stop thinking about it. I don't know what to

>> do. I am really starting to question if there is anything

>> wrong at all. :-/

>>

>>

>> P.S. This is my Son

>> Colton�http://www.youtube.com/user/bradleysmommy1?feature=mhee

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>> No virus found in this message.

>> Checked by AVG - www.avg.com <http://www.avg.com>

>> Version: 2012.0.1913 / Virus Database: 2411/4957 - Release Date: 04/24/12

>>

>

>

>

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Guest guest
Posted

Thanks, me too.

------------------------------

>Awww...I've been there minus the bipolor part but I had severe PPD with my

oldest two children (but miraculously not with my third).  My oldest was the one

I couldn't put down which in a way made it easier than you've got it b/c there

was no other child in the house at the time.  All my pregnancies were difficult

for one reason or another.  I hope you find some time to take care of you. 

>

>

> 

>

>

>

>

>________________________________

>

>To: autism-aspergers

>Sent: Tuesday, April 24, 2012 10:10 PM

>Subject: Re: I give up......

>

>

> 

>

>

>Its really tough, cause my newborn doesnt want to be put down ecen for a

second. I even have to sleep holding him him. Im so exhausted I cant even

remember the last time I actually went to sleep. This is the hardest baby I have

had. Even colton was the easiest baby especially since he was completely

stationary til he was over 10 months old. Lol. Sometimes I just wanna run away.

Yeah and peyton has a milk allergy and he had an ultrasound the other.day to

make sure he doesnt have a blockage in his belly. So needless to say I hace

almost no time for Colton. And it almost pisses me off. I really want to spend

time with him so bad because I already feel loke I have missed so much with him

due to my very hard pregnancy and now him being here I think is worse. And to

top it all off I was dx with bipolar disorder when I was 20 and when im pregnant

my symptoms pretty much go away. And around 8 to 12 weeks they start coming

back, I wish I had more help. :(

>

>------------------------------

>

>

>>I am sorry, typing on my iPad I sounded brusque. I understand--for me, 2 1/2

to 4 1/2 was a really, really intense and tiring time. My son (Asperger

Syndrome) was very high needs, and I had a baby, too, who, incidentally, had

multiple food allergies. I was on a strict elimination diet so that he didn't

get sick from the breast milk. It was hard, and sometimes I didn't think I

would make it through.

>>

>>But I did. And my son made it through the hardest part, too. Early

intervention really is so important, and that is why I encouraged you to work at

home, even while you are waiting for Early Start to figure their act out (and I

totally agree that the therapist was out of line!). Ultimately, even an hour a

week with the most amazing therapist ever is just an hour a week. What you can

do at home is also very helpful. Yes, it is really important to have

professionals on that journey with you, to help you with resources, to help you

know where to focus next, to help you know what to do, etc. Until you get them,

my only point for the message was meant for empowerment--you can help him now,

even as you wait for the system to work.

>>

>>Incidentally, we pursed a diagnosis for my son through our health insurance,

through a psychiatrist. After that we went to the school district (he was 3;9

at that point), and they did additional testing to see if he qualified for

services. But having the diagnosis from the psychiatrist initially was very

helpful, and he had good resources for us too,

>>

>>Sent from my iPad

>>

>>

>>

>>

>>

>> Well I really do try not to let him rock so much but it is literally so much

that there is no way to control even.a little bit of it. He rocks him self to

sleep at night in his crib. We wakes up in the middle of the night any where

between 1 and 4am and rocks for an hour or 2. And if I try to redirect his

attention he has a meltdown. Then the rocking gets violent. And if I try to hard

he attacks me. So I just let him do it most of the time. And I have 3 other

children and one will be 3 months old tomorrow. :/

>>

>> ------------------------------

>>

>>

>> >I think liking commercials is not atypical for all kids. My daughter is not

on the spectrum at all, and she'll come running from another room for

commercials-- not even on kid shows, any TV.

>> >

>> >Pursue an evaluation, because you are concerned. But remember that just like

you know that Colton making eye contact doesn't rule out autism, neither does

stimming or having meltdowns automatically rule in autism. There are so many

factors to consider, and a whole DSM-IV qualification to meet. A good evaluation

will help sort it all out.

>> >

>> >In the meantime, start doing what you would do if he did have autism. You

don't have to wait for a diagnosis to do that. Provide a language rich

environment. If he is rocking until he has sores, I would not let that happen.

Engage him in a different activity when he starts rocking. Play, play, play. He

doesn't play with his toys? Teach him how! Play along with him, show him how to

use it. Does he currently receive speech therapy? Ask the SLP for some

suggestions of how to work with him at home. If not, there are a lot of great

early learning blogs that could help give you ideas. At the very least, read to

him, as much as possible.

>> >

>> >Sent from my iPad

>> >

>> >

>> >

>> > Omg are you serious. Colton does that to commercials too. I thought he just

liked them a lot. He will not pay attention to much of anything else on t.v.

That is so strange. I just thought he liked commercials. A lot of times he will

stim to them. And a lot of times when he rocks he has to have a blanket or

pillow or even the rug from the front door in his lap. kinda makes sense

now.....

>> >

>> >

>> >

>> > To: " autism-aspergers " <autism-aspergers >

>> > Sent: Tuesday, April 24, 2012 2:18 PM

>> > Subject: Re: I give up......

>> >

>> >

>> > The guy sounds like an ass, sorry you had to deal with him! It's hard

enough on a daily basis to deal with some people. What he did was not acceptable

and he is the one who should be more comforting. I would report him! I watched

your videos. My daughter did the same things. Her meltdowns were much more

intense but I think your son's was having a meltdown. My daughter did the

stimming and still does. One thing my daughter did we used to think was " funny "

before we realized what it was. She would stop everything when commercials came

on TV. She was so fascinated by any and all commercials anything it could be

aspirin or cars she stopped everything.

>> >

>> > Please keep trying to get early intervention for your son. It has made a

world of difference in our daughter and our lives. Do you have a Children's

Hospital near you? I would make an appointment with them if you can.

>> >

>> > If guns kill people then pencils cause misspelled words

>> >

>> >

>> > To: " autism-aspergers " <autism-aspergers >

>> > Sent: Tuesday, April 24, 2012 12:48 PM

>> > Subject: I give up......

>> >

>> >

>> > So for the last 7 weeks that Coltons therapist has been coming to see him

he has only showed up 3 times. He is suppose to come once a week for an hour.

When he cancels he texts me minutes away from the appt. time. Which I find

ridiculous. So I called yesterday to have Early Steps try and get me a different

Therapist. And to have Colton tested for ASD. And to get him into a Gifted

school. They accept children that have anything from developmental delays to

Severe Retardation. And you can start at 18 months old. Everything went good til

today. When The old Therapist comes to my house and is like well can you tell me

why I'm not on your case anymore? And I calmly explained to him that I need

someone more reliable. He mentioned that I should not seek a dx and that I

should wait a few years if I am told to do so. And then he goes on to talk about

how everyone at the office is " talking " about " certain parents " that only want

their child dx so they can

>> receive government benefits. And said that they don't say names cause they

aren't allowed to but didn't think any of it was about me. I in no way shape or

form want anything from the government only the right kind of care for my child.

I am extremely hurt by what he said. And Think that you know maybe there isn't

anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking

about it. I don't know what to do. I am really starting to question if there is

anything wrong at all. :-/

>> >

>> >

>> > P.S. This is my Son Colton

http://www.youtube.com/user/bradleysmommy1?feature=mhee

>> >

>> >

>> >

>> >

>> >

>>

>>

>

>

>

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Posted

Yep that is what the Ped said about Chase. Actually she tried to tell me he was "High spirited" yeah right!Sent from my iPhone

Yea peyton has been screaming so much he has completely lost his voice. And when I asked the dr about it she said hes just colicy, so idk

------------------------------

>That sounds like my . I couldn't put him down either. I told my cousin that I wore the front pouch thing to do my chores just so that he was happy. She said she's put him down and let him scream......that is like the theory you hear about food....."if they are hungry enough they'll eat" ummmm.....no, mine will keep screaming and he'll starve too.

>

>

>

>

>

>

>________________________________

>

>To: autism-aspergers

>Sent: Tuesday, April 24, 2012 8:20 PM

>Subject: Re: I give up......

>

>

>

>

>

>Yeah, I attached a picture of colton when he fell into the table. And he just simply looked at me like what the hell is that table doing there? And walked off. Coltons younger brother will be 3 months old tomorrow and I literally can not put him down fir even a second or hes screaming his head off. Almost like hes in pain its very strange and he has a milk allergy and hes got acid reflux, so he has to sit up all the time.

>

>------------------------------

>

>

>>I think it may be a matter of not being engaged with our own bodies. I know if I get up in the morning and it is cold and I dress warmly, if it comes out warm - even if it gets over 30C - I probably won't notice i need to remove any clothes. I have also been known to dress for warm weather and then need reminding (this is why we have mothers and wives :) ) to put something else on. I don't always notice small things that cause pain. I am just focused on other things. My son is much the same. But when it comes to emotional or mental discomfort - that is another thing! My son cried almost constantly if not being held for the first 10 months of his life. But after that, if he fell over, sometimes he cried, sometimes he didn't. Usually not much at all - nothing like from the distress of not being held. He took years to learn to put out his hands to break his fall, but even when he put his teeth through his lips and there was blood everywhere, it

>was more a whimper than a cry. The only time he really cried was if he couldn't see me when it happened. Once I was there, it was fine.

>>

>>Strange thing is, if I cut my nails and there is even the slightest 'catch' on anything it drives me mad. My wife has often commented I fuss over my nails worse than any woman. It's just that if they are not smooth, then any contact with anything is like fingernails screeching on a blackboard. Did anyone else have a teacher who did that to get attention? Not sure how I survived a year without getting up and hitting her hard. Maybe because I was only 7 at the time :)

>>

>>

>>

>>

>> �Just piggy-backing on what said- my son with Asperger's has an incredibly high tolerance for pain.� He's now 10. If he cried (as a baby, toddler, or even now) we knew it was very bad... usually involving blood or worse.� It's bizarre the level of pain he can handle!!�

>>

>>

>> On Tue, Apr 24, 2012 at 3:57 PM, sara degeer <bradleysmommy1@... wrote:

>>

>> �

>> [Attachment(s) <#136e5ee3c4d375be_TopText> from sara degeer

>> included below]

>> Yes he rocks all the time It took the sores a couple months to

>> heal because he would keep rocking. Colton has a very high pain

>> tolerance as well just the other day he was sitting in my lap and

>> started throwing a fit and did the limp noodle thing and slid out

>> of my lap and when his knees hit the floor he kinda lunged forward

>> and hit his forehead on the coffee table that is in the videos and

>> didn't even cry. Just looked at me funny and walked away with a

>> lump sticking out of his head about a 1/4 of an inch. It was huge

>> and he should've cried. Here is a picture of it seconds after it

>> happened. He was more upset that I was trying to hold him still to

>> take the pic. :(

>>

>> ----------------------------------------------------------

>> *From:* and <alexandriairma@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 3:47 PM

>> *Subject:* Re: I give up......

>>

>> �

>> You mentioned the scars on his back from rocking? When the scars

>> are sores does it stop him from rocking? My daughter has what I

>> think is an incredibly high tolerance for pain. When she has

>> skinned her knees and does this weird sound thing but won't cry.

>> She does freak out at the sight of blood even if it is not her

>> own. I think it is all part of the sensory issues.�

>>

>> Ella did not speak until after her second birthday, but she did a

>> lot of stuff early. When she finally did speak she was very

>> articulate (well for a 26 -27 month old) if you or anyone wants to

>> look at her videos let me know, I will give you the link.

>>

>> As for toys Ella has/has the�opposite�of the Midas Touch, she

>> intentionally took apart or broke most of her toys.�

>> �

>> */If guns kill people then pencils cause misspelled words/*

>>

>> ----------------------------------------------------------

>> *From:* sara degeer <bradleysmommy1@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 1:35 PM

>> *Subject:* Re: I give up......

>>

>> �

>> No Colton doesn't talk. He babbles like a little baby, but no real

>> words. He talks to himself almost constantly. And the rocking is

>> all day and all night. He has scars from rocking, on his back he

>> has like these lesion things from rocking against hard surfaces

>> and it wont ever heal cause he continues to do it so often. I have

>> been trying to get him to point at stuff since before he was a

>> year old. And I wish he played normal with his toys seeing as how

>> he has so many of them. I feel like half the time we just waste

>> our money on toys because he doesn't play with them instead he

>> just carries them around the house in his hand and/or throws them

>> at people.�

>>

>> ----------------------------------------------------------

>> *From:* Lori Yurtin <loriyurtin@...

>>

>> *To:* autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 2:06 PM

>> *Subject:* Re: I give up......

>>

>> �

>> One more thing. �He is darling! �And, although in isolation,

>> rocking and spinning can be perfectly normal...if he isn't

>> talking...isn't pointing...doesn't play appropiately with most

>> toys...doesn't reference....etc, etc...he is on the spectrum.

>> �Please don't doubt yourself. �If I waited, my son would never

>> have learned to talk...NEVER! �My son also is "gifted" but has

>> classic autism. �And, he is currently mainstreamed in 3rd grade.

>> �I may homeschool him next year, though. �

>>

>>

>>

>> Please BOYCOTT the movie 21 Jump Street! It makes fun of those

>> with autism!

>> https://www.facebook.com/BoycottMovie21JumpStreetForAutism

>>

>>

>>

>>

>> From: sara degeer <bradleysmommy1@...

>>

>> Subject: I give up......

>> To: "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> Date: Tuesday, April 24, 2012, 10:48 AM

>>

>> �

>> So for the last 7 weeks that Coltons therapist has been coming

>> to see him he has only showed up 3 times. He is suppose to

>> come once a week for an hour. When he cancels he texts me

>> minutes away from the appt. time. Which I find ridiculous. So

>> I called yesterday to have Early Steps try and get me a

>> different Therapist. And to have Colton tested for ASD. And to

>> get him into a Gifted school. They accept children that have

>> anything from developmental delays to Severe Retardation. And

>> you can start at 18 months old. Everything went good til

>> today. When The old Therapist comes to my house and is like

>> well can you tell me why I'm not on your case anymore? And I

>> calmly explained to him that I need someone more reliable. He

>> mentioned that I should not seek a dx and that I should wait a

>> few years if I am told to do so. And then he goes on to talk

>> about how everyone at the office is "talking" about "certain

>> parents" that only want their child dx so they can receive

>> government benefits. And said that they don't say names cause

>> they aren't allowed to but didn't think any of it was about

>> me. I in no way shape or form want anything from the

>> government only the right kind of care for my child. I am

>> extremely hurt by what he said. And Think that you know maybe

>> there isn't anything wrong with him. Maybe he's just weird and

>> quirky. I can't stop thinking about it. I don't know what to

>> do. I am really starting to question if there is anything

>> wrong at all. :-/

>>

>>

>> P.S. This is my Son

>> Colton�http://www.youtube.com/user/bradleysmommy1?feature=mhee

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>> No virus found in this message.

>> Checked by AVG - www.avg.com <http://www.avg.com>

>> Version: 2012.0.1913 / Virus Database: 2411/4957 - Release Date: 04/24/12

>>

>

>

>

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Guest guest   

Guest guest
Posted

Does anything comfort him? make him stop screaming? How old is he? My had to be on a pre-digested formula called Nutramiguen....(spelling this wrong, I know) To: autism-aspergers Sent: Wednesday, April 25, 2012 12:03 PM Subject: Re:

I give up......

Yea peyton has been screaming so much he has completely lost his voice. And when I asked the dr about it she said hes just colicy, so idk

------------------------------

>That sounds like my . I couldn't put him down either. I told my cousin that I wore the front pouch thing to do my chores just so that he was happy. She said she's put him down and let him scream......that is like the theory you hear about food....."if they are hungry enough they'll eat" ummmm.....no, mine will keep screaming and he'll starve too.

>

>

>

>

>

>

>________________________________

>

>To: autism-aspergers

>Sent: Tuesday, April 24, 2012 8:20 PM

>Subject: Re: I give up......

>

>

>

>

>

>Yeah, I attached a picture of colton when he fell into the table. And he just simply looked at me like what the hell is that table doing there? And walked off. Coltons younger brother will be 3 months old tomorrow and I literally can not put him down fir even a second or hes screaming his head off. Almost like hes in pain its very strange and he has a milk allergy and hes got acid reflux, so he has to sit up all the time.

>

>------------------------------

>

>

>>I think it may be a matter of not being engaged with our own bodies. I know if I get up in the morning and it is cold and I dress warmly, if it comes out warm - even if it gets over 30C - I probably won't notice i need to remove any clothes. I have also been known to dress for warm weather and then need reminding (this is why we have mothers and wives :) ) to put something else on. I don't always notice small things that cause pain. I am just focused on other things. My son is much the same. But when it comes to emotional or mental discomfort - that is another thing! My son cried almost constantly if not being held for the first 10 months of his life. But after that, if he fell over, sometimes he cried, sometimes he didn't. Usually not much at all - nothing like from the distress of not being held. He took years to learn to put out his hands to break his fall, but even when he put his teeth through his lips and there was blood

everywhere, it

>was more a whimper than a cry. The only time he really cried was if he couldn't see me when it happened. Once I was there, it was fine.

>>

>>Strange thing is, if I cut my nails and there is even the slightest 'catch' on anything it drives me mad. My wife has often commented I fuss over my nails worse than any woman. It's just that if they are not smooth, then any contact with anything is like fingernails screeching on a blackboard. Did anyone else have a teacher who did that to get attention? Not sure how I survived a year without getting up and hitting her hard. Maybe because I was only 7 at the time :)

>>

>>

>>

>>

>> �Just piggy-backing on what said- my son with Asperger's has an incredibly high tolerance for pain.� He's now 10. If he cried (as a baby, toddler, or even now) we knew it was very bad... usually involving blood or worse.� It's bizarre the level of pain he can handle!!�

>>

>>

>> On Tue, Apr 24, 2012 at 3:57 PM, sara degeer <bradleysmommy1@... wrote:

>>

>> �

>> [Attachment(s) <#136e5ee3c4d375be_TopText> from sara degeer

>> included below]

>> Yes he rocks all the time It took the sores a couple months to

>> heal because he would keep rocking. Colton has a very high pain

>> tolerance as well just the other day he was sitting in my lap and

>> started throwing a fit and did the limp noodle thing and slid out

>> of my lap and when his knees hit the floor he kinda lunged forward

>> and hit his forehead on the coffee table that is in the videos and

>> didn't even cry. Just looked at me funny and walked away with a

>> lump sticking out of his head about a 1/4 of an inch. It was huge

>> and he should've cried. Here is a picture of it seconds after it

>> happened. He was more upset that I was trying to hold him still to

>> take the pic. :(

>>

>> ----------------------------------------------------------

>> *From:* and <alexandriairma@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 3:47 PM

>> *Subject:* Re: I give up......

>>

>> �

>> You mentioned the scars on his back from rocking? When the scars

>> are sores does it stop him from rocking? My daughter has what I

>> think is an incredibly high tolerance for pain. When she has

>> skinned her knees and does this weird sound thing but won't cry.

>> She does freak out at the sight of blood even if it is not her

>> own. I think it is all part of the sensory issues.�

>>

>> Ella did not speak until after her second birthday, but she did a

>> lot of stuff early. When she finally did speak she was very

>> articulate (well for a 26 -27 month old) if you or anyone wants to

>> look at her videos let me know, I will give you the link.

>>

>> As for toys Ella has/has the�opposite�of the Midas Touch, she

>> intentionally took apart or broke most of her toys.�

>> �

>> */If guns kill people then pencils cause misspelled words/*

>>

>> ----------------------------------------------------------

>> *From:* sara degeer <bradleysmommy1@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 1:35 PM

>> *Subject:* Re: I give up......

>>

>> �

>> No Colton doesn't talk. He babbles like a little baby, but no real

>> words. He talks to himself almost constantly. And the rocking is

>> all day and all night. He has scars from rocking, on his back he

>> has like these lesion things from rocking against hard surfaces

>> and it wont ever heal cause he continues to do it so often. I have

>> been trying to get him to point at stuff since before he was a

>> year old. And I wish he played normal with his toys seeing as how

>> he has so many of them. I feel like half the time we just waste

>> our money on toys because he doesn't play with them instead he

>> just carries them around the house in his hand and/or throws them

>> at people.�

>>

>> ----------------------------------------------------------

>> *From:* Lori Yurtin <loriyurtin@...

>>

>> *To:* autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 2:06 PM

>> *Subject:* Re: I give up......

>>

>> �

>> One more thing. �He is darling! �And, although in isolation,

>> rocking and spinning can be perfectly normal...if he isn't

>> talking...isn't pointing...doesn't play appropiately with most

>> toys...doesn't reference....etc, etc...he is on the spectrum.

>> �Please don't doubt yourself. �If I waited, my son would never

>> have learned to talk...NEVER! �My son also is "gifted" but has

>> classic autism. �And, he is currently mainstreamed in 3rd grade.

>> �I may homeschool him next year, though. �

>>

>>

>>

>> Please BOYCOTT the movie 21 Jump Street! It makes fun of those

>> with autism!

>> https://www.facebook.com/BoycottMovie21JumpStreetForAutism

>>

>>

>>

>>

>> From: sara degeer <bradleysmommy1@...

>>

>> Subject: I give up......

>> To: "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> Date: Tuesday, April 24, 2012, 10:48 AM

>>

>> �

>> So for the last 7 weeks that Coltons therapist has been coming

>> to see him he has only showed up 3 times. He is suppose to

>> come once a week for an hour. When he cancels he texts me

>> minutes away from the appt. time. Which I find ridiculous. So

>> I called yesterday to have Early Steps try and get me a

>> different Therapist. And to have Colton tested for ASD. And to

>> get him into a Gifted school. They accept children that have

>> anything from developmental delays to Severe Retardation. And

>> you can start at 18 months old. Everything went good til

>> today. When The old Therapist comes to my house and is like

>> well can you tell me why I'm not on your case anymore? And I

>> calmly explained to him that I need someone more reliable. He

>> mentioned that I should not seek a dx and that I should wait a

>> few years if I am told to do so. And then he goes on to talk

>> about how everyone at the office is "talking" about "certain

>> parents" that only want their child dx so they can receive

>> government benefits. And said that they don't say names cause

>> they aren't allowed to but didn't think any of it was about

>> me. I in no way shape or form want anything from the

>> government only the right kind of care for my child. I am

>> extremely hurt by what he said. And Think that you know maybe

>> there isn't anything wrong with him. Maybe he's just weird and

>> quirky. I can't stop thinking about it. I don't know what to

>> do. I am really starting to question if there is anything

>> wrong at all. :-/

>>

>>

>> P.S. This is my Son

>> Colton�http://www.youtube.com/user/bradleysmommy1?feature=mhee

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>> No virus found in this message.

>> Checked by AVG - www.avg.com <http://www.avg.com>

>> Version: 2012.0.1913 / Virus Database: 2411/4957 - Release Date: 04/24/12

>>

>

>

>

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Posted

I have felt the same way. My mom says go back to school....so and so did it....and I'll say yeah, but her Mother lived with her and watched her son when she wasn't home. Who is going to live with me? Yeah, respectfully, shut up Mom! I don't have any help!! To: autism-aspergers Sent: Wednesday,

April 25, 2012 11:55 AM Subject: Re: I give up......

I wish it was that easy for me I have my husband but he works all the time. And my mom works full time and then when she gets home takes care of my sisters kids while she works. And that is pretty much the extent of my family. And no real friends that would help. :( and I have noticed that a lot people find it hard to beleive that someone could have absolutely no one to rely on, but I am one of those people.

------------------------------

>Wow, that is hard. It really sounds like you might have postpartum

>depression going on...or just your bipolar rearing it's ugly head. You

>probably need to get checked and maybe talk to someone. You have to take

>care of yourself so that you can take care of the kids. Have you tried a

>sling to help with carrying the baby around. They are wonderful and easy and

>comfortable. Do you have help (daddy, grandparents, aunts/uncles, friend..

>)? Try to arrange someone to come and hold the baby while you play with your

>son or get a nap. Have you tried a swing for the baby. If it is the movement

>that he likes then maybe a swing or bouncy chair would help. You could look

>at getting a 'mother's helper' ... a preteen or early teen that can gain

>babysitting experience and help you out some. You usually don't have to pay

>them as much. Sleep when the baby sleeps, if possible.

>

>Good luck and don't give up. 'and this too shall pass!'

>

>

>

> 

>Only two defining forces have ever offered to die for you;

>Jesus Christ and the American Soldier.

>One died for your soul; the other for your freedom.

>-- I give up......

>> >

>> >

>> > So for the last 7 weeks that Coltons therapist has been coming to see

>him he has only showed up 3 times. He is suppose to come once a week for an

>hour. When he cancels he texts me minutes away from the appt. time. Which I

>find ridiculous. So I called yesterday to have Early Steps try and get me a

>different Therapist. And to have Colton tested for ASD. And to get him into

>a Gifted school. They accept children that have anything from developmental

>delays to Severe Retardation. And you can start at 18 months old. Everything

>went good til today. When The old Therapist comes to my house and is like

>well can you tell me why I'm not on your case anymore? And I calmly

>explained to him that I need someone more reliable. He mentioned that I

>should not seek a dx and that I should wait a few years if I am told to do

>so. And then he goes on to talk about how everyone at the office is "talking

> about "certain parents" that only want their child dx so they can

>> receive government benefits. And said that they don't say names cause

>they aren't allowed to but didn't think any of it was about me. I in no way

>shape or form want anything from the government only the right kind of care

>for my child. I am extremely hurt by what he said. And Think that you know

>maybe there isn't anything wrong with him. Maybe he's just weird and quirky.

>I can't stop thinking about it. I don't know what to do. I am really

>starting to question if there is anything wrong at all. :-/

>> >

>> >

>> > P.S. This is my Son Colton http://www.youtube

>com/user/bradleysmommy1?feature=mhee

>> >

>> >

>> >

>> >

>> >

>>

>>

>

>

>

>

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Posted

Mine was happy as long as he was held. He didn't cry when I held him! To: "autism-aspergers " <autism-aspergers > Cc: "autism-aspergers " <autism-aspergers > Sent: Wednesday, April 25, 2012 11:17 AM

Subject: Re: I give up......

My Chase was like that and he screamed even if I held him. Plus, he is a twin. I had no choice but to let him scream on many occasions. :(Sent from my iPhone

That sounds like my . I couldn't put him down either. I told my cousin that I wore the front pouch thing to do my chores just so that he was happy. She said she's put him down and let him scream......that is like the theory you hear about food....."if they are hungry enough they'll eat" ummmm.....no, mine will keep screaming and he'll starve too. To: autism-aspergers Sent: Tuesday, April 24, 2012 8:20 PM Subject: Re: I give up......

Yeah, I attached a picture of colton when he fell into the table. And he just simply looked at me like what the hell is that table doing there? And walked off. Coltons younger brother will be 3 months old tomorrow and I literally can not put him down fir even a second or hes screaming his head off. Almost like hes in pain its very strange and he has a milk allergy and hes got acid reflux, so he has to sit up all the time.

------------------------------

>I think it may be a matter of not being engaged with our own bodies. I know if I get up in the morning and it is cold and I dress warmly, if it comes out warm - even if it gets over 30C - I probably won't notice i need to remove any clothes. I have also been known to dress for warm weather and then need reminding (this is why we have mothers and wives :) ) to put something else on. I don't always notice small things that cause pain. I am just focused on other things. My son is much the same. But when it comes to emotional or mental discomfort - that is another thing! My son cried almost constantly if not being held for the first 10 months of his life. But after that, if he fell over, sometimes he cried, sometimes he didn't. Usually not much at all - nothing like from the distress of not being held. He took years to learn to put out his hands to break his fall, but even when he put his teeth through his lips and there was blood everywhere,

it

was more a whimper than a cry. The only time he really cried was if he couldn't see me when it happened. Once I was there, it was fine.

>

>Strange thing is, if I cut my nails and there is even the slightest 'catch' on anything it drives me mad. My wife has often commented I fuss over my nails worse than any woman. It's just that if they are not smooth, then any contact with anything is like fingernails screeching on a blackboard. Did anyone else have a teacher who did that to get attention? Not sure how I survived a year without getting up and hitting her hard. Maybe because I was only 7 at the time :)

>

>

>

>

>> �Just piggy-backing on what said- my son with Asperger's has an incredibly high tolerance for pain.� He's now 10. If he cried (as a baby, toddler, or even now) we knew it was very bad... usually involving blood or worse.� It's bizarre the level of pain he can handle!!�

>>

>>

>> On Tue, Apr 24, 2012 at 3:57 PM, sara degeer <bradleysmommy1@... wrote:

>>

>> �

>> [Attachment(s) <#136e5ee3c4d375be_TopText> from sara degeer

>> included below]

>> Yes he rocks all the time It took the sores a couple months to

>> heal because he would keep rocking. Colton has a very high pain

>> tolerance as well just the other day he was sitting in my lap and

>> started throwing a fit and did the limp noodle thing and slid out

>> of my lap and when his knees hit the floor he kinda lunged forward

>> and hit his forehead on the coffee table that is in the videos and

>> didn't even cry. Just looked at me funny and walked away with a

>> lump sticking out of his head about a 1/4 of an inch. It was huge

>> and he should've cried. Here is a picture of it seconds after it

>> happened. He was more upset that I was trying to hold him still to

>> take the pic. :(

>>

>> ----------------------------------------------------------

>> *From:* and <alexandriairma@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 3:47 PM

>> *Subject:* Re: I give up......

>>

>> �

>> You mentioned the scars on his back from rocking? When the scars

>> are sores does it stop him from rocking? My daughter has what I

>> think is an incredibly high tolerance for pain. When she has

>> skinned her knees and does this weird sound thing but won't cry.

>> She does freak out at the sight of blood even if it is not her

>> own. I think it is all part of the sensory issues.�

>>

>> Ella did not speak until after her second birthday, but she did a

>> lot of stuff early. When she finally did speak she was very

>> articulate (well for a 26 -27 month old) if you or anyone wants to

>> look at her videos let me know, I will give you the link.

>>

>> As for toys Ella has/has the�opposite�of the Midas Touch, she

>> intentionally took apart or broke most of her toys.�

>> �

>> */If guns kill people then pencils cause misspelled words/*

>>

>> ----------------------------------------------------------

>> *From:* sara degeer <bradleysmommy1@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 1:35 PM

>> *Subject:* Re: I give up......

>>

>> �

>> No Colton doesn't talk. He babbles like a little baby, but no real

>> words. He talks to himself almost constantly. And the rocking is

>> all day and all night. He has scars from rocking, on his back he

>> has like these lesion things from rocking against hard surfaces

>> and it wont ever heal cause he continues to do it so often. I have

>> been trying to get him to point at stuff since before he was a

>> year old. And I wish he played normal with his toys seeing as how

>> he has so many of them. I feel like half the time we just waste

>> our money on toys because he doesn't play with them instead he

>> just carries them around the house in his hand and/or throws them

>> at people.�

>>

>> ----------------------------------------------------------

>> *From:* Lori Yurtin <loriyurtin@...

>>

>> *To:* autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 2:06 PM

>> *Subject:* Re: I give up......

>>

>> �

>> One more thing. �He is darling! �And, although in isolation,

>> rocking and spinning can be perfectly normal...if he isn't

>> talking...isn't pointing...doesn't play appropiately with most

>> toys...doesn't reference....etc, etc...he is on the spectrum.

>> �Please don't doubt yourself. �If I waited, my son would never

>> have learned to talk...NEVER! �My son also is "gifted" but has

>> classic autism. �And, he is currently mainstreamed in 3rd grade.

>> �I may homeschool him next year, though. �

>>

>>

>>

>> Please BOYCOTT the movie 21 Jump Street! It makes fun of those

>> with autism!

>> https://www.facebook.com/BoycottMovie21JumpStreetForAutism

>>

>>

>>

>>

>> From: sara degeer <bradleysmommy1@...

>>

>> Subject: I give up......

>> To: "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> Date: Tuesday, April 24, 2012, 10:48 AM

>>

>> �

>> So for the last 7 weeks that Coltons therapist has been coming

>> to see him he has only showed up 3 times. He is suppose to

>> come once a week for an hour. When he cancels he texts me

>> minutes away from the appt. time. Which I find ridiculous. So

>> I called yesterday to have Early Steps try and get me a

>> different Therapist. And to have Colton tested for ASD. And to

>> get him into a Gifted school. They accept children that have

>> anything from developmental delays to Severe Retardation. And

>> you can start at 18 months old. Everything went good til

>> today. When The old Therapist comes to my house and is like

>> well can you tell me why I'm not on your case anymore? And I

>> calmly explained to him that I need someone more reliable. He

>> mentioned that I should not seek a dx and that I should wait a

>> few years if I am told to do so. And then he goes on to talk

>> about how everyone at the office is "talking" about "certain

>> parents" that only want their child dx so they can receive

>> government benefits. And said that they don't say names cause

>> they aren't allowed to but didn't think any of it was about

>> me. I in no way shape or form want anything from the

>> government only the right kind of care for my child. I am

>> extremely hurt by what he said. And Think that you know maybe

>> there isn't anything wrong with him. Maybe he's just weird and

>> quirky. I can't stop thinking about it. I don't know what to

>> do. I am really starting to question if there is anything

>> wrong at all. :-/

>>

>>

>> P.S. This is my Son

>> Colton�http://www.youtube.com/user/bradleysmommy1?feature=mhee

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>> No virus found in this message.

>> Checked by AVG - www.avg.com <http://www.avg.com>

>> Version: 2012.0.1913 / Virus Database: 2411/4957 - Release Date: 04/24/12

>>

=

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Guest guest   

Guest guest
Posted

My son is on the spectrum. I believe in attachment parenting & my son too cried often as a baby if he was t held. I carried him on me for the first year of his life! He was then ready to do his own thing. If he cried I always rushed to his side to help him. It wasn't enabling him but more of showing him I was there. My son is 6 now & when he's hurt he will hop around saying ouch but generally no tears at all. Only reason he ever cries is if he is interrupted when speaking. I feel that with autistic children the parents are tired & trying to 'fix' their child. I have embraced that my son is not typical but when I treat him with respect & really take the time to learn how he is feeling then we go without any issues! My son was in traditional kindergarten & each day he flipped further into himself. I pulled him out. We unschool & homeschool & My sin is more typical than ever!!!Bless,Breanna Schultz

Mine was happy as long as he was held. He didn't cry when I held him! To: "autism-aspergers " <autism-aspergers > Cc: "autism-aspergers " <autism-aspergers > Sent: Wednesday, April 25, 2012 11:17 AM

Subject: Re: I give up......

My Chase was like that and he screamed even if I held him. Plus, he is a twin. I had no choice but to let him scream on many occasions. :(Sent from my iPhone

That sounds like my . I couldn't put him down either. I told my cousin that I wore the front pouch thing to do my chores just so that he was happy. She said she's put him down and let him scream......that is like the theory you hear about food....."if they are hungry enough they'll eat" ummmm.....no, mine will keep screaming and he'll starve too. To: autism-aspergers Sent: Tuesday, April 24, 2012 8:20 PM Subject: Re: I give up......

Yeah, I attached a picture of colton when he fell into the table. And he just simply looked at me like what the hell is that table doing there? And walked off. Coltons younger brother will be 3 months old tomorrow and I literally can not put him down fir even a second or hes screaming his head off. Almost like hes in pain its very strange and he has a milk allergy and hes got acid reflux, so he has to sit up all the time.

------------------------------

>I think it may be a matter of not being engaged with our own bodies. I know if I get up in the morning and it is cold and I dress warmly, if it comes out warm - even if it gets over 30C - I probably won't notice i need to remove any clothes. I have also been known to dress for warm weather and then need reminding (this is why we have mothers and wives :) ) to put something else on. I don't always notice small things that cause pain. I am just focused on other things. My son is much the same. But when it comes to emotional or mental discomfort - that is another thing! My son cried almost constantly if not being held for the first 10 months of his life. But after that, if he fell over, sometimes he cried, sometimes he didn't. Usually not much at all - nothing like from the distress of not being held. He took years to learn to put out his hands to break his fall, but even when he put his teeth through his lips and there was blood everywhere,

it

was more a whimper than a cry. The only time he really cried was if he couldn't see me when it happened. Once I was there, it was fine.

>

>Strange thing is, if I cut my nails and there is even the slightest 'catch' on anything it drives me mad. My wife has often commented I fuss over my nails worse than any woman. It's just that if they are not smooth, then any contact with anything is like fingernails screeching on a blackboard. Did anyone else have a teacher who did that to get attention? Not sure how I survived a year without getting up and hitting her hard. Maybe because I was only 7 at the time :)

>

>

>

>

>> �Just piggy-backing on what said- my son with Asperger's has an incredibly high tolerance for pain.� He's now 10. If he cried (as a baby, toddler, or even now) we knew it was very bad... usually involving blood or worse.� It's bizarre the level of pain he can handle!!�

>>

>>

>> On Tue, Apr 24, 2012 at 3:57 PM, sara degeer <bradleysmommy1@... wrote:

>>

>> �

>> [Attachment(s) <#136e5ee3c4d375be_TopText> from sara degeer

>> included below]

>> Yes he rocks all the time It took the sores a couple months to

>> heal because he would keep rocking. Colton has a very high pain

>> tolerance as well just the other day he was sitting in my lap and

>> started throwing a fit and did the limp noodle thing and slid out

>> of my lap and when his knees hit the floor he kinda lunged forward

>> and hit his forehead on the coffee table that is in the videos and

>> didn't even cry. Just looked at me funny and walked away with a

>> lump sticking out of his head about a 1/4 of an inch. It was huge

>> and he should've cried. Here is a picture of it seconds after it

>> happened. He was more upset that I was trying to hold him still to

>> take the pic. :(

>>

>> ----------------------------------------------------------

>> *From:* and <alexandriairma@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 3:47 PM

>> *Subject:* Re: I give up......

>>

>> �

>> You mentioned the scars on his back from rocking? When the scars

>> are sores does it stop him from rocking? My daughter has what I

>> think is an incredibly high tolerance for pain. When she has

>> skinned her knees and does this weird sound thing but won't cry.

>> She does freak out at the sight of blood even if it is not her

>> own. I think it is all part of the sensory issues.�

>>

>> Ella did not speak until after her second birthday, but she did a

>> lot of stuff early. When she finally did speak she was very

>> articulate (well for a 26 -27 month old) if you or anyone wants to

>> look at her videos let me know, I will give you the link.

>>

>> As for toys Ella has/has the�opposite�of the Midas Touch, she

>> intentionally took apart or broke most of her toys.�

>> �

>> */If guns kill people then pencils cause misspelled words/*

>>

>> ----------------------------------------------------------

>> *From:* sara degeer <bradleysmommy1@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 1:35 PM

>> *Subject:* Re: I give up......

>>

>> �

>> No Colton doesn't talk. He babbles like a little baby, but no real

>> words. He talks to himself almost constantly. And the rocking is

>> all day and all night. He has scars from rocking, on his back he

>> has like these lesion things from rocking against hard surfaces

>> and it wont ever heal cause he continues to do it so often. I have

>> been trying to get him to point at stuff since before he was a

>> year old. And I wish he played normal with his toys seeing as how

>> he has so many of them. I feel like half the time we just waste

>> our money on toys because he doesn't play with them instead he

>> just carries them around the house in his hand and/or throws them

>> at people.�

>>

>> ----------------------------------------------------------

>> *From:* Lori Yurtin <loriyurtin@...

>>

>> *To:* autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 2:06 PM

>> *Subject:* Re: I give up......

>>

>> �

>> One more thing. �He is darling! �And, although in isolation,

>> rocking and spinning can be perfectly normal...if he isn't

>> talking...isn't pointing...doesn't play appropiately with most

>> toys...doesn't reference....etc, etc...he is on the spectrum.

>> �Please don't doubt yourself. �If I waited, my son would never

>> have learned to talk...NEVER! �My son also is "gifted" but has

>> classic autism. �And, he is currently mainstreamed in 3rd grade.

>> �I may homeschool him next year, though. �

>>

>>

>>

>> Please BOYCOTT the movie 21 Jump Street! It makes fun of those

>> with autism!

>> https://www.facebook.com/BoycottMovie21JumpStreetForAutism

>>

>>

>>

>>

>> From: sara degeer <bradleysmommy1@...

>>

>> Subject: I give up......

>> To: "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> Date: Tuesday, April 24, 2012, 10:48 AM

>>

>> �

>> So for the last 7 weeks that Coltons therapist has been coming

>> to see him he has only showed up 3 times. He is suppose to

>> come once a week for an hour. When he cancels he texts me

>> minutes away from the appt. time. Which I find ridiculous. So

>> I called yesterday to have Early Steps try and get me a

>> different Therapist. And to have Colton tested for ASD. And to

>> get him into a Gifted school. They accept children that have

>> anything from developmental delays to Severe Retardation. And

>> you can start at 18 months old. Everything went good til

>> today. When The old Therapist comes to my house and is like

>> well can you tell me why I'm not on your case anymore? And I

>> calmly explained to him that I need someone more reliable. He

>> mentioned that I should not seek a dx and that I should wait a

>> few years if I am told to do so. And then he goes on to talk

>> about how everyone at the office is "talking" about "certain

>> parents" that only want their child dx so they can receive

>> government benefits. And said that they don't say names cause

>> they aren't allowed to but didn't think any of it was about

>> me. I in no way shape or form want anything from the

>> government only the right kind of care for my child. I am

>> extremely hurt by what he said. And Think that you know maybe

>> there isn't anything wrong with him. Maybe he's just weird and

>> quirky. I can't stop thinking about it. I don't know what to

>> do. I am really starting to question if there is anything

>> wrong at all. :-/

>>

>>

>> P.S. This is my Son

>> Colton�http://www.youtube.com/user/bradleysmommy1?feature=mhee

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>> No virus found in this message.

>> Checked by AVG - www.avg.com <http://www.avg.com>

>> Version: 2012.0.1913 / Virus Database: 2411/4957 - Release Date: 04/24/12

>>

=

Share this post

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Share on other sites

Guest guest   

Guest guest
Posted

That is so awesome! I want to homeschool next year!My son was 30lbs at 10 months! No way could I carry him! Lol!Sent from my iPhone

My son is on the spectrum. I believe in attachment parenting & my son too cried often as a baby if he was t held. I carried him on me for the first year of his life! He was then ready to do his own thing. If he cried I always rushed to his side to help him. It wasn't enabling him but more of showing him I was there. My son is 6 now & when he's hurt he will hop around saying ouch but generally no tears at all. Only reason he ever cries is if he is interrupted when speaking. I feel that with autistic children the parents are tired & trying to 'fix' their child. I have embraced that my son is not typical but when I treat him with respect & really take the time to learn how he is feeling then we go without any issues! My son was in traditional kindergarten & each day he flipped further into himself. I pulled him out. We unschool & homeschool & My sin is more typical than ever!!!Bless,Breanna Schultz

Mine was happy as long as he was held. He didn't cry when I held him! To: "autism-aspergers " <autism-aspergers > Cc: "autism-aspergers " <autism-aspergers > Sent: Wednesday, April 25, 2012 11:17 AM

Subject: Re: I give up......

My Chase was like that and he screamed even if I held him. Plus, he is a twin. I had no choice but to let him scream on many occasions. :(Sent from my iPhone

That sounds like my . I couldn't put him down either. I told my cousin that I wore the front pouch thing to do my chores just so that he was happy. She said she's put him down and let him scream......that is like the theory you hear about food....."if they are hungry enough they'll eat" ummmm.....no, mine will keep screaming and he'll starve too. To: autism-aspergers Sent: Tuesday, April 24, 2012 8:20 PM Subject: Re: I give up......

Yeah, I attached a picture of colton when he fell into the table. And he just simply looked at me like what the hell is that table doing there? And walked off. Coltons younger brother will be 3 months old tomorrow and I literally can not put him down fir even a second or hes screaming his head off. Almost like hes in pain its very strange and he has a milk allergy and hes got acid reflux, so he has to sit up all the time.

------------------------------

>I think it may be a matter of not being engaged with our own bodies. I know if I get up in the morning and it is cold and I dress warmly, if it comes out warm - even if it gets over 30C - I probably won't notice i need to remove any clothes. I have also been known to dress for warm weather and then need reminding (this is why we have mothers and wives :) ) to put something else on. I don't always notice small things that cause pain. I am just focused on other things. My son is much the same. But when it comes to emotional or mental discomfort - that is another thing! My son cried almost constantly if not being held for the first 10 months of his life. But after that, if he fell over, sometimes he cried, sometimes he didn't. Usually not much at all - nothing like from the distress of not being held. He took years to learn to put out his hands to break his fall, but even when he put his teeth through his lips and there was blood everywhere,

it

was more a whimper than a cry. The only time he really cried was if he couldn't see me when it happened. Once I was there, it was fine.

>

>Strange thing is, if I cut my nails and there is even the slightest 'catch' on anything it drives me mad. My wife has often commented I fuss over my nails worse than any woman. It's just that if they are not smooth, then any contact with anything is like fingernails screeching on a blackboard. Did anyone else have a teacher who did that to get attention? Not sure how I survived a year without getting up and hitting her hard. Maybe because I was only 7 at the time :)

>

>

>

>

>> �Just piggy-backing on what said- my son with Asperger's has an incredibly high tolerance for pain.� He's now 10. If he cried (as a baby, toddler, or even now) we knew it was very bad... usually involving blood or worse.� It's bizarre the level of pain he can handle!!�

>>

>>

>> On Tue, Apr 24, 2012 at 3:57 PM, sara degeer <bradleysmommy1@... wrote:

>>

>> �

>> [Attachment(s) <#136e5ee3c4d375be_TopText> from sara degeer

>> included below]

>> Yes he rocks all the time It took the sores a couple months to

>> heal because he would keep rocking. Colton has a very high pain

>> tolerance as well just the other day he was sitting in my lap and

>> started throwing a fit and did the limp noodle thing and slid out

>> of my lap and when his knees hit the floor he kinda lunged forward

>> and hit his forehead on the coffee table that is in the videos and

>> didn't even cry. Just looked at me funny and walked away with a

>> lump sticking out of his head about a 1/4 of an inch. It was huge

>> and he should've cried. Here is a picture of it seconds after it

>> happened. He was more upset that I was trying to hold him still to

>> take the pic. :(

>>

>> ----------------------------------------------------------

>> *From:* and <alexandriairma@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 3:47 PM

>> *Subject:* Re: I give up......

>>

>> �

>> You mentioned the scars on his back from rocking? When the scars

>> are sores does it stop him from rocking? My daughter has what I

>> think is an incredibly high tolerance for pain. When she has

>> skinned her knees and does this weird sound thing but won't cry.

>> She does freak out at the sight of blood even if it is not her

>> own. I think it is all part of the sensory issues.�

>>

>> Ella did not speak until after her second birthday, but she did a

>> lot of stuff early. When she finally did speak she was very

>> articulate (well for a 26 -27 month old) if you or anyone wants to

>> look at her videos let me know, I will give you the link.

>>

>> As for toys Ella has/has the�opposite�of the Midas Touch, she

>> intentionally took apart or broke most of her toys.�

>> �

>> */If guns kill people then pencils cause misspelled words/*

>>

>> ----------------------------------------------------------

>> *From:* sara degeer <bradleysmommy1@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 1:35 PM

>> *Subject:* Re: I give up......

>>

>> �

>> No Colton doesn't talk. He babbles like a little baby, but no real

>> words. He talks to himself almost constantly. And the rocking is

>> all day and all night. He has scars from rocking, on his back he

>> has like these lesion things from rocking against hard surfaces

>> and it wont ever heal cause he continues to do it so often. I have

>> been trying to get him to point at stuff since before he was a

>> year old. And I wish he played normal with his toys seeing as how

>> he has so many of them. I feel like half the time we just waste

>> our money on toys because he doesn't play with them instead he

>> just carries them around the house in his hand and/or throws them

>> at people.�

>>

>> ----------------------------------------------------------

>> *From:* Lori Yurtin <loriyurtin@...

>>

>> *To:* autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 2:06 PM

>> *Subject:* Re: I give up......

>>

>> �

>> One more thing. �He is darling! �And, although in isolation,

>> rocking and spinning can be perfectly normal...if he isn't

>> talking...isn't pointing...doesn't play appropiately with most

>> toys...doesn't reference....etc, etc...he is on the spectrum.

>> �Please don't doubt yourself. �If I waited, my son would never

>> have learned to talk...NEVER! �My son also is "gifted" but has

>> classic autism. �And, he is currently mainstreamed in 3rd grade.

>> �I may homeschool him next year, though. �

>>

>>

>>

>> Please BOYCOTT the movie 21 Jump Street! It makes fun of those

>> with autism!

>> https://www.facebook.com/BoycottMovie21JumpStreetForAutism

>>

>>

>>

>>

>> From: sara degeer <bradleysmommy1@...

>>

>> Subject: I give up......

>> To: "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> Date: Tuesday, April 24, 2012, 10:48 AM

>>

>> �

>> So for the last 7 weeks that Coltons therapist has been coming

>> to see him he has only showed up 3 times. He is suppose to

>> come once a week for an hour. When he cancels he texts me

>> minutes away from the appt. time. Which I find ridiculous. So

>> I called yesterday to have Early Steps try and get me a

>> different Therapist. And to have Colton tested for ASD. And to

>> get him into a Gifted school. They accept children that have

>> anything from developmental delays to Severe Retardation. And

>> you can start at 18 months old. Everything went good til

>> today. When The old Therapist comes to my house and is like

>> well can you tell me why I'm not on your case anymore? And I

>> calmly explained to him that I need someone more reliable. He

>> mentioned that I should not seek a dx and that I should wait a

>> few years if I am told to do so. And then he goes on to talk

>> about how everyone at the office is "talking" about "certain

>> parents" that only want their child dx so they can receive

>> government benefits. And said that they don't say names cause

>> they aren't allowed to but didn't think any of it was about

>> me. I in no way shape or form want anything from the

>> government only the right kind of care for my child. I am

>> extremely hurt by what he said. And Think that you know maybe

>> there isn't anything wrong with him. Maybe he's just weird and

>> quirky. I can't stop thinking about it. I don't know what to

>> do. I am really starting to question if there is anything

>> wrong at all. :-/

>>

>>

>> P.S. This is my Son

>> Colton�http://www.youtube.com/user/bradleysmommy1?feature=mhee

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>> No virus found in this message.

>> Checked by AVG - www.avg.com <http://www.avg.com>

>> Version: 2012.0.1913 / Virus Database: 2411/4957 - Release Date: 04/24/12

>>

=

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Posted

Hi Sara,You ARE seeing what you think you are seeing in  your son.  I watched your vodeos of him and it's like looking at me and my youngest.  His nerves are in overdrive and he's responding to that by melting down.  If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling.  The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. 

I see him lashing out then he'll hug you.  He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream.  I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control.  My son melted down like this, and at 7, still does, but not as often.  Now it comes out in defiance against his brother and me.

My son wears a compression suit from the time he wakes up, until bedtime.  His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit.  I notice that he's able to calm himself more now than prior.  I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. 

My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first.  I think the difference was when he gained his ability speak better.  He still struggles but he can tell me better what has upset him.  Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us " I stab you. " He hasn't done that in a long time.  He mostly tells me he hates me when he's mad, and I remind him, " No, you don't hate me, you are mad at me. "

Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen.  I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention.  I finally got him evaluated and now he is in IEP and Speech/Occu therapy.  They are helping so much, especially with the behavioral and eating issues

Ashton (Aspie Mom with 2 Autistic sons)

 

So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so.

And then he goes on to talk about how everyone at the office is " talking " about " certain parents " that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/

P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee

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Posted

Yes, both my sons and I are/were like this. My son has been going through  therapy on how to appropriately play with toys, but he still takes one toy and uses it for a whole different purpose than what it was intended for, mostly as some sort of weapon. His two favorite toys were the handle to a guitar hero and a homemade baseball bat, both used as weapons where he walks incessently battling whatever it is he's thinking about and making this tsssssss noise. He'll do this for hours.  He hasn't ever hit anyone with them, nor made threats to people with them, so It's not been something that I felt the need to try to control in him, as long as he remembers not to smash things when " playing " with them.

Ashton (Aspie Mom with 2 Autistic sons)

 

No Colton doesn't talk. He babbles like a little baby, but no real words. He talks to himself almost constantly. And the rocking is all day and all night. He has scars from rocking, on his back he has like these lesion things from rocking against hard surfaces and it wont ever heal cause he continues to do it so often. I have been trying to get him to point at stuff since before he was a year old. And I wish he played normal with his toys seeing as how he has so many of them. I feel like half the time we just waste our money on toys because he doesn't play with them instead he just carries them around the house in his hand and/or throws them at people. 

To: autism-aspergers

Sent: Tuesday, April 24, 2012 2:06 PM Subject: Re: I give up......

 

One more thing.  He is darling!  And, although in isolation, rocking and spinning can be perfectly normal...if he isn't talking...isn't pointing...doesn't play appropiately with most toys...doesn't reference....etc, etc...he is on the spectrum.  Please don't doubt yourself.  If I waited, my son would never have learned to talk...NEVER!  My son also is " gifted " but has classic autism.  And, he is currently mainstreamed in 3rd grade.  I may homeschool him next year, though.  

Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism!

https://www.facebook.com/BoycottMovie21JumpStreetForAutism---

Subject: I give up......

To: " autism-aspergers " <autism-aspergers >

Date: Tuesday, April 24, 2012, 10:48 AM

 

So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a

few years if I am told to do so.

And then he goes on to talk about how everyone at the office is " talking " about " certain parents " that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/

P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee

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Yes, my son does this upside down thing all the time on the couch. I tell him couches are for sitting not standing on your head, and the only reason is because he gets so wild when he does it, his feet flail. He does the same thing in his bed when trying to calm down to sleep.  It's a pressure need on his head, like his compression suit does for him. 

Ashton

 

Well everyone keeps telling me that he clearly can't have ASD because of the eye contact. But I keep coming into contact with people who have ASD or know someone that does and they are telling me different. And one person then pointed out the very extreme or intense eye contact almost like he is starring you down isn't so great either. And since I have had the baby, I have been noticing the same things in him and I am terrified. I don't wanna do this again. Only this time the new baby is not nearly as happy as Colton was as a baby. And Colton now has this new thing where he wants to watch everything upside down, like all the time and will walk bent over with his head on the floor. Its kinda funny actually... And thank you I love it when he

smiles it's so contagious. :)

To: " autism-aspergers " <autism-aspergers >

Sent: Tuesday, April 24, 2012 3:01 PM Subject: Re: I give up......

 

Chase always made good eye contact!  :). Sent from my iPhone

 

Yea Colton was the same way he didn't learn how to roll over until he was 7 1/2 months old. Which is fairly late as it is in your case as well. He also couldn't crawl, sit up. He would smile at you all day long but never babbled or anything he didnt start that til about a year old. The only thing is with Colton he has amazing eye contact with his immediate family and my mom. But for strangers its very intense staring or he wont look at you at all. and when he stares at people i have noticed it make some people upset. I think it makes them feel uncomfortable.

To: autism-aspergers Sent: Tuesday, April 24, 2012 1:59 PM

Subject: Re: I give up......

 

I heard the same thing!  We are in CA and used Early Intervention when my son was 10 months old and still wasn't rolling over, crawling, couldn't sit, etc.  He also was VERY clearly on the spectrum as he wasn't babbling, didn't respond to his name, wasn't pointing, flapped and didn't play with any toys.  Just stared at them from different angles.  

He started with PT.  A shrink came to our home and told me " You are just looking for a dx.  Everyone just wants a dx to get more services.  It isn't right. "  I responded with " Are you kidding me?  My kid has ever sign of autism there is...and, you think I want this?  I don't want this....I just want help for my child! "  

She proceeded to tell me " Well, if you want a dx, go get it. "  I flipping

did.  He was 20

months and there was NO questioning it.  CLASSIC AUTISM!  I got 25 hours per week of playbased ABA from that " B* & C^ " , OT and speech therapy.  Not from her directly...but, she had to approve it. 

She wasn't happy.  Basically, they say this because many parents will listen and then they don't have to shell out the cash for these kids. ;-(Don't listen to that wackadoodle!

LoriPlease BOYCOTT the movie 21 Jump Street! It makes fun of those with autism!

https://www.facebook.com/BoycottMovie21JumpStreetForAutism

Subject: I give up......

To: " autism-aspergers " <autism-aspergers >

Date: Tuesday, April 24, 2012, 1:48 PM

 

So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am

told to do so. And then he

goes on to talk about how everyone at the office is " talking " about " certain parents " that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/

P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee

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Posted

Yet another thing my kid does..... We are constantly telling our daughter to get off her head! If guns kill people then pencils cause misspelled words To: autism-aspergers Sent: Wednesday, April 25, 2012 5:26 PM Subject: Re: I give up......

Yes, my son does this upside down thing all the time on the couch. I tell him couches are for sitting not standing on your head, and the only reason is because he gets so wild when he does it, his feet flail. He does the same thing in his bed when trying to calm down to sleep. It's a pressure need on his head, like his compression suit does for him.

Ashton

Well everyone keeps telling me that he clearly can't have ASD because of the eye contact. But I keep coming into contact with people who have ASD or know someone that does and they are telling me different. And one person then pointed out the very extreme or intense eye contact almost like he is starring you down isn't so great either. And since I have had the baby, I have been noticing the same things in him and I am terrified. I don't wanna do this again. Only this time the new baby is not nearly as happy as Colton was as a baby. And Colton now has this new thing where he wants to watch everything upside down, like all the time and will walk bent over with his head on the floor. Its kinda funny actually... And thank you I love it when he

smiles it's so contagious. :)

To: "autism-aspergers " <autism-aspergers >

Sent: Tuesday, April 24, 2012 3:01 PM Subject: Re: I give up......

Chase always made good eye contact! :). Sent from my iPhone

Yea Colton was the same way he didn't learn how to roll over until he was 7 1/2 months old. Which is fairly late as it is in your case as well. He also couldn't crawl, sit up. He would smile at you all day long but never babbled or anything he didnt start that til about a year old. The only thing is with Colton he has amazing eye contact with his immediate family and my mom. But for strangers its very intense staring or he wont look at you at all. and when he stares at people i have noticed it make some people upset. I think it makes them feel uncomfortable.

To: autism-aspergers Sent: Tuesday, April 24, 2012 1:59 PM

Subject: Re: I give up......

I heard the same thing! We are in CA and used Early Intervention when my son was 10 months old and still wasn't rolling over, crawling, couldn't sit, etc. He also was VERY clearly on the spectrum as he wasn't babbling, didn't respond to his name, wasn't pointing, flapped and didn't play with any toys. Just stared at them from different angles.

He started with PT. A shrink came to our home and told me "You are just looking for a dx. Everyone just wants a dx to get more services. It isn't right." I responded with "Are you kidding me? My kid has ever sign of autism there is...and, you think I want this? I don't want this....I just want help for my child!"

She proceeded to tell me "Well, if you want a dx, go get it." I flipping

did. He was 20

months and there was NO questioning it. CLASSIC AUTISM! I got 25 hours per week of playbased ABA from that "B* & C^", OT and speech therapy. Not from her directly...but, she had to approve it.

She wasn't happy. Basically, they say this because many parents will listen and then they don't have to shell out the cash for these kids. ;-(Don't listen to that wackadoodle!

LoriPlease BOYCOTT the movie 21 Jump Street! It makes fun of those with autism!

https://www.facebook.com/BoycottMovie21JumpStreetForAutism

Subject: I give up......

To: "autism-aspergers " <autism-aspergers >

Date: Tuesday, April 24, 2012, 1:48 PM

So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am

told to do so. And then he

goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/

P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee

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Posted

I missed that pouch after Ben started walking.  When your kid sleeps

regularly for 4 hours a day (2am-6am) and needs to be either held,

sitting on your lap, or within 5cm of you at all times when he is

awake, you get a bit inventive.  You can do most things while

holding a child.  Although it is probably no surprise we didn't have

another for 3 years, and then it came as a surprise to both of us. 

And I agree - they won't stop crying, and they won't eat the food,

no matter how long you wait.

 

That sounds like my .  I couldn't put him

down either.  I told my cousin that I wore the front

pouch thing to do my chores just so that he was

happy.  She said she's put him down and let him

scream......that is like the theory you hear about

food....."if they are hungry enough they'll eat" 

ummmm.....no, mine will keep screaming and he'll

starve too. 

 

From:

sara degeer

To:

autism-aspergers

Sent:

Tuesday, April 24, 2012 8:20 PM

Subject:

Re: I give up......

 

Yeah, I attached a picture of colton when he

fell into the table. And he just simply looked

at me like what the hell is that table doing

there? And walked off. Coltons younger brother

will be 3 months old tomorrow and I literally

can not put him down fir even a second or hes

screaming his head off. Almost like hes in

pain its very strange and he has a milk

allergy and hes got acid reflux, so he has to

sit up all the time.

------------------------------

On Tue, Apr 24, 2012 7:44 PM EDT Riley

wrote:

>I think it may be a matter of not being

engaged with our own bodies. I know if I get

up in the morning and it is cold and I dress

warmly, if it comes out warm - even if it gets

over 30C - I probably won't notice i need to

remove any clothes. I have also been known to

dress for warm weather and then need reminding

(this is why we have mothers and wives :) ) to

put something else on. I don't always notice

small things that cause pain. I am just

focused on other things. My son is much the

same. But when it comes to emotional or mental

discomfort - that is another thing! My son

cried almost constantly if not being held for

the first 10 months of his life. But after

that, if he fell over, sometimes he cried,

sometimes he didn't. Usually not much at all -

nothing like from the distress of not being

held. He took years to learn to put out his

hands to break his fall, but even when he put

his teeth through his lips and there was blood

everywhere, it

was more a whimper than a cry. The only time

he really cried was if he couldn't see me when

it happened. Once I was there, it was fine.

>

>Strange thing is, if I cut my nails and

there is even the slightest 'catch' on

anything it drives me mad. My wife has often

commented I fuss over my nails worse than any

woman. It's just that if they are not smooth,

then any contact with anything is like

fingernails screeching on a blackboard. Did

anyone else have a teacher who did that to get

attention? Not sure how I survived a year

without getting up and hitting her hard. Maybe

because I was only 7 at the time :)

>

>

>

>On 25/04/2012 8:46 AM, Ristau

wrote:

>> �Just piggy-backing on what

said- my son with Asperger's has an incredibly

high tolerance for pain.� He's now 10. If he

cried (as a baby, toddler, or even now) we

knew it was very bad... usually involving

blood or worse.� It's bizarre the level of

pain he can handle!!�

>>

>>

>> On Tue, Apr 24, 2012 at 3:57 PM, sara

degeer <bradleysmommy1@...

wrote:

>>

>> �

>> [Attachment(s)

<#136e5ee3c4d375be_TopText> from sara

degeer

>> included below]

>> Yes he rocks all the time It took the

sores a couple months to

>> heal because he would keep rocking.

Colton has a very high pain

>> tolerance as well just the other day

he was sitting in my lap and

>> started throwing a fit and did the

limp noodle thing and slid out

>> of my lap and when his knees hit the

floor he kinda lunged forward

>> and hit his forehead on the coffee

table that is in the videos and

>> didn't even cry. Just looked at me

funny and walked away with a

>> lump sticking out of his head about a

1/4 of an inch. It was huge

>> and he should've cried. Here is a

picture of it seconds after it

>> happened. He was more upset that I

was trying to hold him still to

>> take the pic. :(

>>

>>

----------------------------------------------------------

>> *From:* and <alexandriairma@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 3:47

PM

>> *Subject:* Re: I

give up......

>>

>> �

>> You mentioned the scars on his back

from rocking? When the scars

>> are sores does it stop him from

rocking? My daughter has what I

>> think is an incredibly high tolerance

for pain. When she has

>> skinned her knees and does this weird

sound thing but won't cry.

>> She does freak out at the sight of

blood even if it is not her

>> own. I think it is all part of the

sensory issues.�

>>

>> Ella did not speak until after her

second birthday, but she did a

>> lot of stuff early. When she finally

did speak she was very

>> articulate (well for a 26 -27 month

old) if you or anyone wants to

>> look at her videos let me know, I

will give you the link.

>>

>> As for toys Ella has/has

the�opposite�of the Midas Touch, she

>> intentionally took apart or broke

most of her toys.�

>> �

>> */If guns kill people then pencils

cause misspelled words/*

>>

>>

----------------------------------------------------------

>> *From:* sara degeer <bradleysmommy1@...

>>

>> *To:* "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 1:35

PM

>> *Subject:* Re: I

give up......

>>

>> �

>> No Colton doesn't talk. He babbles

like a little baby, but no real

>> words. He talks to himself almost

constantly. And the rocking is

>> all day and all night. He has scars

from rocking, on his back he

>> has like these lesion things from

rocking against hard surfaces

>> and it wont ever heal cause he

continues to do it so often. I have

>> been trying to get him to point at

stuff since before he was a

>> year old. And I wish he played normal

with his toys seeing as how

>> he has so many of them. I feel like

half the time we just waste

>> our money on toys because he doesn't

play with them instead he

>> just carries them around the house in

his hand and/or throws them

>> at people.�

>>

>>

----------------------------------------------------------

>> *From:* Lori Yurtin <loriyurtin@...

>>

>> *To:* autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 2:06

PM

>> *Subject:* Re: I

give up......

>>

>> �

>> One more thing. �He is darling! �And,

although in isolation,

>> rocking and spinning can be perfectly

normal...if he isn't

>> talking...isn't pointing...doesn't

play appropiately with most

>> toys...doesn't reference....etc,

etc...he is on the spectrum.

>> �Please don't doubt yourself. �If I

waited, my son would never

>> have learned to talk...NEVER! �My son

also is "gifted" but has

>> classic autism. �And, he is currently

mainstreamed in 3rd grade.

>> �I may homeschool him next year,

though. �

>>

>>

>>

>> Please BOYCOTT the movie 21 Jump

Street! It makes fun of those

>> with autism!

>> https://www.facebook.com/BoycottMovie21JumpStreetForAutism

>>

>>

>>

>>

>> From: sara degeer <bradleysmommy1@...

>>

>> Subject: I give

up......

>> To: "autism-aspergers

>> <mailto:autism-aspergers >"

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> Date: Tuesday, April 24, 2012, 10:48

AM

>>

>> �

>> So for the last 7 weeks that Coltons

therapist has been coming

>> to see him he has only showed up 3

times. He is suppose to

>> come once a week for an hour. When he

cancels he texts me

>> minutes away from the appt. time.

Which I find ridiculous. So

>> I called yesterday to have Early

Steps try and get me a

>> different Therapist. And to have

Colton tested for ASD. And to

>> get him into a Gifted school. They

accept children that have

>> anything from developmental delays to

Severe Retardation. And

>> you can start at 18 months old.

Everything went good til

>> today. When The old Therapist comes

to my house and is like

>> well can you tell me why I'm not on

your case anymore? And I

>> calmly explained to him that I need

someone more reliable. He

>> mentioned that I should not seek a dx

and that I should wait a

>> few years if I am told to do so. And

then he goes on to talk

>> about how everyone at the office is

"talking" about "certain

>> parents" that only want their child

dx so they can receive

>> government benefits. And said that

they don't say names cause

>> they aren't allowed to but didn't

think any of it was about

>> me. I in no way shape or form want

anything from the

>> government only the right kind of

care for my child. I am

>> extremely hurt by what he said. And

Think that you know maybe

>> there isn't anything wrong with him.

Maybe he's just weird and

>> quirky. I can't stop thinking about

it. I don't know what to

>> do. I am really starting to question

if there is anything

>> wrong at all. :-/

>>

>>

>> P.S. This is my Son

>> Colton�http://www.youtube.com/user/bradleysmommy1?feature=mhee

>>

>>

>>

>>

>>

>>

>>

>>

>>

>>

>> No virus found in this message.

>> Checked by AVG - www.avg.com <http://www.avg.com>

>> Version: 2012.0.1913 / Virus

Database: 2411/4957 - Release Date: 04/24/12

>>

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1913 / Virus Database: 2411/4959 - Release Date:

04/25/12

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Posted

My mostly NT son does probably 50-100 handstands a day. We think she has some sensory issues..well we know he does but it's not diagnosed. He is not on the spectrum but he is ADHD.

  Only two defining forces have ever offered to die for you;

Jesus Christ and the American Soldier.

One died for your soul; the other for your freedom.

-- I give up......To: "autism-aspergers " <autism-aspergers >Date: Tuesday, April 24, 2012, 1:48 PM

So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/

P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee

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Posted

I wish I could have spaced mine out like that! I had baby #1 ( child with AS)

and when he was 15 mo. I was pregnant again (easy easy baby) and then pregnant

again when baby #2 was 12 mo. On an IUD that " supposedly " was there to prevent

pregnancy long enough to space them out a bit. 3 kids in 3 yrs. 10 mo. I had

one in pullups and two in diapers! Glad they are all out of that phase now!

--- Original Message ---

Sent: April 25, 2012 4/25/12

To: autism-aspergers

Subject: Re: I give up......

 

I missed that pouch after Ben started walking.  When your kid sleeps regularly

for 4 hours a day (2am-6am) and needs to be either held, sitting on your lap, or

within 5cm of you at all times when he is awake, you get a bit inventive.  You

can do most things while holding a child.  Although it is probably no surprise

we didn't have another for 3 years, and then it came as a surprise to both of

us.  And I agree - they won't stop crying, and they won't eat the food, no

matter how long you wait.

 

That sounds like my .  I couldn't put him down either.  I told my cousin

that I wore the front pouch thing to do my chores just so that he was happy. 

She said she's put him down and let him scream......that is like the theory you

hear about food..... " if they are hungry enough they'll eat "   ummmm.....no, mine

will keep screaming and he'll starve too. 

 

To: autism-aspergers

Sent: Tuesday, April 24, 2012 8:20 PM

Subject: Re: I give up......

 

Yeah, I attached a picture of colton when he fell into the table. And he just

simply looked at me like what the hell is that table doing there? And walked

off. Coltons younger brother will be 3 months old tomorrow and I literally can

not put him down fir even a second or hes screaming his head off. Almost like

hes in pain its very strange and he has a milk allergy and hes got acid reflux,

so he has to sit up all the time.

------------------------------

>I think it may be a matter of not being engaged with our own bodies. I know if

I get up in the morning and it is cold and I dress warmly, if it comes out warm

- even if it gets over 30C - I probably won't notice i need to remove any

clothes. I have also been known to dress for warm weather and then need

reminding (this is why we have mothers and wives :) ) to put something else on.

I don't always notice small things that cause pain. I am just focused on other

things. My son is much the same. But when it comes to emotional or mental

discomfort - that is another thing! My son cried almost constantly if not being

held for the first 10 months of his life. But after that, if he fell over,

sometimes he cried, sometimes he didn't. Usually not much at all - nothing like

from the distress of not being held. He took years to learn to put out his hands

to break his fall, but even when he put his teeth through his lips and there was

blood everywhere, it

was more a whimper than a cry. The only time he really cried was if he couldn't

see me when it happened. Once I was there, it was fine.

>

>Strange thing is, if I cut my nails and there is even the slightest 'catch' on

anything it drives me mad. My wife has often commented I fuss over my nails

worse than any woman. It's just that if they are not smooth, then any contact

with anything is like fingernails screeching on a blackboard. Did anyone else

have a teacher who did that to get attention? Not sure how I survived a year

without getting up and hitting her hard. Maybe because I was only 7 at the time

:)

>

>

>

>

>> �Just piggy-backing on what said- my son with Asperger's has an

incredibly high tolerance for pain.� He's now 10. If he cried (as a baby,

toddler, or even now) we knew it was very bad... usually involving blood or

worse.� It's bizarre the level of pain he can handle!!�

>>

>>

>> On Tue, Apr 24, 2012 at 3:57 PM, sara degeer <bradleysmommy1@...

wrote:

>>

>> �

>> [Attachment(s) <#136e5ee3c4d375be_TopText> from sara degeer

>> included below]

>> Yes he rocks all the time It took the sores a couple months to

>> heal because he would keep rocking. Colton has a very high pain

>> tolerance as well just the other day he was sitting in my lap and

>> started throwing a fit and did the limp noodle thing and slid out

>> of my lap and when his knees hit the floor he kinda lunged forward

>> and hit his forehead on the coffee table that is in the videos and

>> didn't even cry. Just looked at me funny and walked away with a

>> lump sticking out of his head about a 1/4 of an inch. It was huge

>> and he should've cried. Here is a picture of it seconds after it

>> happened. He was more upset that I was trying to hold him still to

>> take the pic. :(

>>

>> ----------------------------------------------------------

>> *From:* and <alexandriairma@...

>>

>> *To:* " autism-aspergers

>> <mailto:autism-aspergers > "

>> <autism-aspergers

>> <mailto:autism-aspergers >

>> *Sent:* Tuesday, April 24, 2012 3:47 PM

>> *Subject:* Re: I give up......

>>

>> �

>> You mentioned the scars on his back from rocking? When the scars

>> are sores does it sto

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Posted

When my son was a baby and wouldn't stop crying we would walk and walk - one day my husband turned the water on at the kitchen sink and he stopped! Guess he liked the sound of the water! With my oldest daughter I used to sit her on the dryer in an infant seat while the clothes were drying. I know some people who drive their kids around - never tried that one, though.

To: "autism-aspergers " <autism-aspergers > Sent: Wednesday, April 25, 2012 11:27 AMSubject: Re: I give up......

Does anything comfort him? make him stop screaming? How old is he? My had to be on a pre-digested formula called Nutramiguen....(spelling this wrong, I know)

To: autism-aspergers Sent: Wednesday, April 25, 2012 12:03 PMSubject: Re: I give up......

Yea peyton has been screaming so much he has completely lost his voice. And when I asked the dr about it she said hes just colicy, so idk------------------------------>That sounds like my . I couldn't put him down either. I told my cousin that I wore the front pouch thing to do my chores just so that he was happy. She said she's put him down and let him scream......that is like the theory you hear about food....."if they are hungry enough they'll eat" ummmm.....no, mine will keep screaming and he'll starve too. >> > >>>>________________________________> >To: autism-aspergers >Sent: Tuesday, April 24, 2012 8:20 PM>Subject: Re: I give up......> >> >>>Yeah, I attached a picture of colton when he fell into the table. And he just simply looked at me like what the hell is that table doing there? And walked off. Coltons younger brother will be 3 months old tomorrow and I literally can not put him down fir even a second or hes screaming his head off. Almost like hes in pain its very strange and he has a milk allergy and hes got acid reflux, so he has to sit up all the time.>>------------------------------>>>>I think it may be a matter of not being engaged with our own bodies. I know if I get up in the

morning and it is cold and I dress warmly, if it comes out warm - even if it gets over 30C - I probably won't notice i need to remove any clothes. I have also been known to dress for warm weather and then need reminding (this is why we have mothers and wives :) ) to put something else on. I don't always notice small things that cause pain. I am just focused on other things. My son is much the same. But when it comes to emotional or mental discomfort - that is another thing! My son cried almost constantly if not being held for the first 10 months of his life. But after that, if he fell over, sometimes he cried, sometimes he didn't. Usually not much at all - nothing like from the distress of not being held. He took years to learn to put out his hands to break his fall, but even when he put his teeth through his lips and there was blood everywhere, it>was more a whimper than a cry. The only time he really cried was if he couldn't see me when it

happened. Once I was there, it was fine.>>>>Strange thing is, if I cut my nails and there is even the slightest 'catch' on anything it drives me mad. My wife has often commented I fuss over my nails worse than any woman. It's just that if they are not smooth, then any contact with anything is like fingernails screeching on a blackboard. Did anyone else have a teacher who did that to get attention? Not sure how I survived a year without getting up and hitting her hard. Maybe because I was only 7 at the time :)>>>>>>>>>> �Just piggy-backing on what said- my son with Asperger's has an incredibly high tolerance for pain.� He's now 10. If he cried (as a baby, toddler, or even now) we knew it was very bad... usually involving blood or worse.� It's bizarre the level of pain he can handle!!�>> >> >>

On Tue, Apr 24, 2012 at 3:57 PM, sara degeer <bradleysmommy1@... wrote:>> >> �>> [Attachment(s) <#136e5ee3c4d375be_TopText> from sara degeer>> included below]>> Yes he rocks all the time It took the sores a couple months to>> heal because he would keep rocking. Colton has a very high pain>> tolerance as well just the other day he was sitting in my lap and>> started throwing a fit and did the limp noodle thing and slid out>> of my lap and when his knees hit the floor he kinda lunged forward>> and hit his forehead on the coffee table that is in the videos

and>> didn't even cry. Just looked at me funny and walked away with a>> lump sticking out of his head about a 1/4 of an inch. It was huge>> and he should've cried. Here is a picture of it seconds after it>> happened. He was more upset that I was trying to hold him still to>> take the pic. :(>> >> ---------------------------------------------------------->> *From:* and > >> *To:* "autism-aspergers >> <mailto:autism-aspergers >">> <autism-aspergers >> <mailto:autism-aspergers >>> *Sent:* Tuesday, April 24, 2012 3:47 PM>> *Subject:* Re: I give up......>> >> �>> You mentioned the scars on his back from rocking? When the scars>> are sores does it stop him from rocking? My daughter has what

I>> think is an incredibly high tolerance for pain. When she has>> skinned her knees and does this weird sound thing but won't cry.>> She does freak out at the sight of blood even if it is not her>> own. I think it is all part of the sensory issues.�>> >> Ella did not speak until after her second birthday, but she did a>> lot of stuff early. When she finally did speak she was very>> articulate (well for a 26 -27 month old) if you or anyone wants to>> look at her videos let me know, I will give you the link.>> >> As for toys Ella has/has the�opposite�of the Midas Touch, she>> intentionally took apart or broke most of her toys.�>> �>> */If guns kill people then pencils cause misspelled words/*>> >> ---------------------------------------------------------->> *From:* sara degeer

> >> *To:* "autism-aspergers >> <mailto:autism-aspergers >">> <autism-aspergers >> <mailto:autism-aspergers >>> *Sent:* Tuesday, April 24, 2012 1:35 PM>> *Subject:* Re: I give up......>> >> �>> No Colton doesn't talk. He babbles like a little baby, but no real>> words. He talks to himself almost constantly. And the rocking is>> all day and all night. He has scars from rocking, on his back he>> has like these lesion things from rocking against hard surfaces>> and it wont ever heal cause he continues to do it so often. I have>> been trying to get him to point at stuff since before he was a>> year old. And I wish he played normal with his toys seeing as how>> he has so many of them. I feel like half the time we just waste>> our money on toys because he doesn't play with them instead he>>

just carries them around the house in his hand and/or throws them>> at people.�>> >> ---------------------------------------------------------->> *From:* Lori Yurtin >> *To:* autism-aspergers >> <mailto:autism-aspergers >>> *Sent:* Tuesday, April 24, 2012 2:06 PM>> *Subject:* Re:

I give up......>> >> �>> One more thing. �He is darling! �And, although in isolation,>> rocking and spinning can be perfectly normal...if he isn't>> talking...isn't pointing...doesn't play appropiately with most>> toys...doesn't reference....etc, etc...he is on the spectrum.>> �Please don't doubt yourself. �If I waited, my son would never>> have learned to talk...NEVER! �My son also is "gifted" but has>> classic autism. �And, he is currently mainstreamed in 3rd grade.>> �I may homeschool him next year, though. �>> >> >> >> Please BOYCOTT the movie 21 Jump Street! It makes fun of those>> with autism!>> https://www.facebook.com/BoycottMovie21JumpStreetForAutism>> >> >> >> >> > >> Subject: I give up......>> To: "autism-aspergers >> <mailto:autism-aspergers >">> <autism-aspergers >> <mailto:autism-aspergers >>> Date: Tuesday, April 24, 2012, 10:48 AM>> >> �>> So for the last 7 weeks that Coltons therapist has been coming>> to see him he has only showed up 3 times. He is suppose to>> come once a week for an hour. When he

cancels he texts me>> minutes away from the appt. time. Which I find ridiculous. So>> I called yesterday to have Early Steps try and get me a>> different Therapist. And to have Colton tested for ASD. And to>> get him into a Gifted school. They accept children that have>> anything from developmental delays to Severe Retardation. And>> you can start at 18 months old. Everything went good til>> today. When The old Therapist comes to my house and is like>> well can you tell me why I'm not on your case anymore? And I>> calmly explained to him that I need someone more reliable. He>> mentioned that I should not seek a dx and that I should wait a>> few years if I am told to do so. And then he goes on to talk>> about how everyone at the office is "talking" about "certain>> parents" that only want their child dx so they can

receive>> government benefits. And said that they don't say names cause>> they aren't allowed to but didn't think any of it was about>> me. I in no way shape or form want anything from the>> government only the right kind of care for my child. I am>> extremely hurt by what he said. And Think that you know maybe>> there isn't anything wrong with him. Maybe he's just weird and>> quirky. I can't stop thinking about it. I don't know what to>> do. I am really starting to question if there is anything>> wrong at all. :-/>> >> >> P.S. This is my Son>> Colton�http://www.youtube.com/user/bradleysmommy1?feature=mhee>> >> >> >> >> >> >> >> >>

>> >> No virus found in this message.>> Checked by AVG - www.avg.com <http://www.avg.com>>> Version: 2012.0.1913 / Virus Database: 2411/4957 - Release Date: 04/24/12>> >>>

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