Guest guest Posted April 28, 2012 Report Share Posted April 28, 2012 My daughter does that....clings to me for life when she's in trouble (she does not have an ASD) "I love you Mommy, I don't want to go to my room!" She drops to the floor and when we lift her up her feet come with her. I see it as manipulation also!!! I even told our family therapist that and he looked at me funny. I said yes, she is manipulative! I figure I have to be smarter than she is sometimes. I tell her that if she doesn't go to her room quietly and without drama she's going to lose x, y, or z and then I have to follow through which makes me feel bad, but parenting, good parenting, hurts us!! I'd rather tick them off now and have honest, respectful adults rather than tip toe around them now and have bratty adults!! To: "autism-aspergers " <autism-aspergers > Sent: Saturday, April 28, 2012 8:24 AM Subject: Re: I give up...... Whenever our daughter is in trouble she will say " But Mommy I love you" "Please Hold me". I know she loves us but the manipulation is hard especially when you have a kid who is not too affectionate to begin with. I usually end up holding her while she is being reprimanded, I take what I can get. It's hard because when we are having a normal time she never shows affection. If guns kill people then pencils cause misspelled words To: "autism-aspergers " <autism-aspergers > Sent: Friday, April 27, 2012 12:43 PM Subject: Re: I give up...... My son tells me when he's mad at me that he hates me but I just tell him no you don't you are just mad. When he is done being mad I will say "I love you" and he will say "I love you too", so just remember it's anger not hatred. Ashton " R. Tucker" wrote: >You know that is not the case. They love you. They are just angry or manipulative!!! > > > > > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 4:00 PM >Subject: Re: I give up...... > > > >i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. > > >________________________________ > >To: autism-aspergers >Sent: Thursday, April 26, 2012 3:55 PM >Subject: Re: I give up...... > > > >If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. > >--- Original Message --- > > >Sent: April 26, 2012 4/26/12 >To: autism-aspergers >Subject: Re: I give up...... > > > >Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because > everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. > > >To: autism-aspergers >Sent: Wednesday, April 25, 2012 6:10 PM >Subject: Re: I give up...... > > > > > >Hi Sara, > >You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. > >I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. > >My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. > >My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." > >Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues > >Ashton (Aspie Mom with 2 Autistic sons) > > > > > > > > >So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive > government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is > > > You know that is not the case. They love you. They are just angry or manipulative!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:00 PM Subject: Re: I give up...... i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. --- Original Message --- Sent: April 26, 2012 4/26/12 To: autism-aspergers Subject: Re: I give up...... Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PM Subject: Re: I give up...... Hi Sara, You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues Ashton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2012 Report Share Posted April 28, 2012 No tics but yes it is a side effect to watch for. ;(Sent from my iPad Do your children get tics from anti-pshycotics? Resperidal worked well for my son but he gained a lot of weight and started getting tics.Same thing happened with Depakote. He is currently on Celelxa (which I don't think is working) Busperone for anxiety, and Trazadone for sleep. After he takes the trazadone, he eats and eats. Mostly carbs. He has gained about 40 lbs. We talked to the doc about this and he said my son should take it and go to bed. Uh..........he would if he could. We have tried everything but Ambien. Doc won't prescribe it. Melatonin has never worked for him. He just can't shut down. His last doctor said, not in front of my son, years ago they would have put my son in an institution. That's why he was his LAST doctor. I can't get that out of my mind though.Eileen To: autism-aspergers Sent: Friday, April 27, 2012 10:37 AM Subject: Re: I give up...... It took about three weeks to see anything, but something happened and instead of screaming and going wild, he handled it with less intensity. Other than dry mouth we don't see any side effects. Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Fri, 27 Apr 2012 05:42:22 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... At that first appt. other than being very emotional (understood) what other side effects did you notice at 15 mg. or did you start at a lower dosage? To: autism-aspergers Sent: Friday, April 27, 2012 3:16 AM Subject: Re: I give up...... My daughter has been on 15mg Abilify for quite some time. It is the drug that works the best. We've tried twice to lower the dose with disastrous results. I will never allow her to come off that drug or lower it's dose as long as I have a say. I'd give up most anything to keep her on that one. A month after she started Abilify, we went back to the Dr. I cried and thanked him for giving me my daughter back. I know that isn't the case for everyone but it is a miracle drug. She is also on Vyvanse 40mg twice a day...yes twice! Then she takes a small dose of ritalin if she has homework. Unfortunately, the vyvanse only kind of works.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up...... Hi Sara,You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me."Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issuesAshton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is= = = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2012 Report Share Posted April 28, 2012 Amen to that ! you said "but parenting, good parenting, hurts us!! I'd rather tick them off now and have honest, respectful adults rather than tip toe around them now and have bratty adults!! " The other day I reprimanded her sent her to time out. When she calmed down we talked about it. At the end of the conversation I asked "do you understand?" " Yes mommy I understand I was a turd" I never called her a turd! Weeks ago we were out and I sighed "you turd!" under my breath to some lady's obnoxious kids at the store. How they pick up on stuff...... To: "autism-aspergers " <autism-aspergers > Sent: Saturday, April 28, 2012 11:08 AM Subject: Re: I give up...... My daughter does that....clings to me for life when she's in trouble (she does not have an ASD) "I love you Mommy, I don't want to go to my room!" She drops to the floor and when we lift her up her feet come with her. I see it as manipulation also!!! I even told our family therapist that and he looked at me funny. I said yes, she is manipulative! I figure I have to be smarter than she is sometimes. I tell her that if she doesn't go to her room quietly and without drama she's going to lose x, y, or z and then I have to follow through which makes me feel bad, but parenting, good parenting, hurts us!! I'd rather tick them off now and have honest, respectful adults rather than tip toe around them now and have bratty adults!! To: "autism-aspergers " <autism-aspergers > Sent: Saturday, April 28, 2012 8:24 AM Subject: Re: I give up...... Whenever our daughter is in trouble she will say " But Mommy I love you" "Please Hold me". I know she loves us but the manipulation is hard especially when you have a kid who is not too affectionate to begin with. I usually end up holding her while she is being reprimanded, I take what I can get. It's hard because when we are having a normal time she never shows affection. If guns kill people then pencils cause misspelled words To: "autism-aspergers " <autism-aspergers > Sent: Friday, April 27, 2012 12:43 PM Subject: Re: I give up...... My son tells me when he's mad at me that he hates me but I just tell him no you don't you are just mad. When he is done being mad I will say "I love you" and he will say "I love you too", so just remember it's anger not hatred. Ashton " R. Tucker" wrote: >You know that is not the case. They love you. They are just angry or manipulative!!! > > > > > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 4:00 PM >Subject: Re: I give up...... > > > >i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. > > >________________________________ > >To: autism-aspergers >Sent: Thursday, April 26, 2012 3:55 PM >Subject: Re: I give up...... > > > >If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. > >--- Original Message --- > > >Sent: April 26, 2012 4/26/12 >To: autism-aspergers >Subject: Re: I give up...... > > > >Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because > everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. > > >To: autism-aspergers >Sent: Wednesday, April 25, 2012 6:10 PM >Subject: Re: I give up...... > > > > > >Hi Sara, > >You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. > >I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. > >My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. > >My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." > >Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues > >Ashton (Aspie Mom with 2 Autistic sons) > > > > > > > > >So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive > government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is > > > You know that is not the case. They love you. They are just angry or manipulative!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:00 PM Subject: Re: I give up...... i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. --- Original Message --- Sent: April 26, 2012 4/26/12 To: autism-aspergers Subject: Re: I give up...... Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PM Subject: Re: I give up...... Hi Sara, You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues Ashton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2012 Report Share Posted April 29, 2012 That is kinda cute " soft waffles " hehehe. Colton does this really cute hmm, hmm, hmm. Noise and I love it, ill be sad if he quits doing it. ill have to record him doing it. Its kinda cute. ------------------------------ > > >Both my boys did not speak until about 5 and a half. I taught my oldest to read at 3 but when he put the book down it was back to babbling. My now 7 yo is in speech therapy and it has helped him tremendously but he still mixes up his sentences or will call things by either a different name or by its description. My favorite " Ethanism " is " soft waffles " for " pancakes " . >Ashton ( mom with Asperhers with 2 autistic sons) >sara degeer wrote: >>Lol. I keep thinking about how Colton might act as he gets older and its really hard to imagine him being able to actually talk one day..... hopefully. I hope he has nice things to say, i doubt it though as angry as he is. >> >> >>________________________________ >> >>To: " autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 4:38 PM >>Subject: Re: I give up...... >> >> >> >>Lol!  I tell my 10 yr old that.  He will say things like " what are you a dummy? " . I say " nope but maybe you ate for calling ME that? " . He gets it now!  Lol >> >>Sent from my iPhone >> >> >> >> >> >>i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. >> >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:55 PM >>Subject: Re: I give up...... >> >> >> >>If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. >> >>--- Original Message --- >> >> >>Sent: April 26, 2012 4/26/12 >>To: autism-aspergers >>Subject: Re: I give up...... >> >> >> >>Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really  paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because >> everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. >> >> >>To: autism-aspergers >>Sent: Wednesday, April 25, 2012 6:10 PM >>Subject: Re: I give up...... >> >> >> >> >> >>Hi Sara, >> >>You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. >> >>I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. >> >>My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. >> >>My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us " I stab you. " He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, " No, you don't hate me, you are mad at me. " >> >>Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues >> >>Ashton (Aspie Mom with 2 Autistic sons) >> >>On Tue, Apr 24, 2012 at 10:48 AM, sara degeer wrote: >> >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is " talking " about " certain parents " that only want their child dx so they can receive >> government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is >> >> >> > >Lol. I keep thinking about how Colton might act as he gets older and its really hard to imagine him being able to actually talk one day..... hopefully. I hope he has nice things to say, i doubt it though as angry as he is. From: Lori Yurtin To: " autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:38 PM Subject: Re: I give up...... > >Lol!  I tell my 10 yr old that.  He will say things like " what are you a dummy? " . I say " nope but maybe you ate for calling ME that? " . He gets it now!  Lol Sent from my iPhone On Apr 26, 2012, at 1:00 PM, sara degeer < bradleysmommy1@... > wrote: > >i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. From: " srt12780@... " < srt12780@... > To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... > >If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. >--- Original Message --- >From: sara degeer < bradleysmommy1@... > >Sent: April 26, 2012 4/26/12 >To: autism-aspergers >Subject: Re: I give up...... > >Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really  paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because >everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. >From: Ashton S < ashtonca@... > >To: autism-aspergers >Sent: Wednesday, April 25, 2012 6:10 PM >Subject: Re: I give up...... > >Hi Sara, >You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. >I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. >My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. >My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us " I stab you. " He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, " No, you don't hate me, you are mad at me. " >Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues >Ashton (Aspie Mom with 2 Autistic sons) >On Tue, Apr 24, 2012 at 10:48 AM, sara degeer < bradleysmommy1@... > wrote: > >So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is " talking " about " certain parents " that only want their child dx so they can receive >government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2012 Report Share Posted April 29, 2012 Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to " moo " . Lol ------------------------------ >No, ha ha, no meowing! Thank goodness! > > > > > > >________________________________ > >To: " autism-aspergers " <autism-aspergers > >Sent: Friday, April 27, 2012 3:22 PM >Subject: Re: I give up...... > > > >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over > > >________________________________ > >To: " autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 7:06 PM >Subject: Re: I give up...... > > > >OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! > > > > > > >________________________________ > >To: " autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 3:49 PM >Subject: Re: I give up...... > > > > YOU WROTE:  He would also rub the back of his hand against his lips > >That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. > > >________________________________ > >To: autism-aspergers >Sent: Thursday, April 26, 2012 3:18 PM >Subject: Re: I give up...... > > > >My son showed signs of autism almost from birth.  He would stare at bright lights, trees moving and anything that spun.  He never turned to our voices like his twin sister did from a very early age.  I told his Ped that he had autism during a 7/8week well care visit!  Yes, things got worse before they got better.  Before intensive therapy (25-30 hours each week!) > >He never moved so much so that he developed a flat back of his head.  We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back.  Almost had to wear a helmet. > >He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. > >Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset.  He would also rub the back of his hand against his lips.  Totally for sensory calming.... > >Lori > >Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >https://www.facebook.com/BoycottMovie21JumpStreetForAutism > > >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is " talking " about " certain parents " that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2012 Report Share Posted April 29, 2012 I totally agree! I thank science for giving me my son back to me! He is so much happier being "himself" again! To: autism-aspergers Sent: Friday, April 27, 2012 2:16 AM Subject: Re: I give up...... My daughter has been on 15mg Abilify for quite some time. It is the drug that works the best. We've tried twice to lower the dose with disastrous results. I will never allow her to come off that drug or lower it's dose as long as I have a say. I'd give up most anything to keep her on that one. A month after she started Abilify, we went back to the Dr. I cried and thanked him for giving me my daughter back. I know that isn't the case for everyone but it is a miracle drug. She is also on Vyvanse 40mg twice a day...yes twice! Then she takes a small dose of ritalin if she has homework. Unfortunately, the vyvanse only kind of works.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up...... Hi Sara,You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me."Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issuesAshton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is= = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2012 Report Share Posted April 29, 2012 Ha ha!! What if you told him it's ok to meow at home but not in a store/ public? Or maybe if he meows loud people will start feeding cat food vs. human food? I don't know how conceptual he is....I can't help but think there would be someway to get into his head and manipulate the scenario? How old is he? Yeah, the moo-ing would be so much worse! People might take offense to that! LOL From: sara degeer To: autism-aspergers Sent: Saturday, April 28, 2012 11:51 PM Subject: Re: I give up...... Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol ------------------------------ >No, ha ha, no meowing! Thank goodness! > > > > > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Friday, April 27, 2012 3:22 PM >Subject: Re: I give up...... > > > >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 7:06 PM >Subject: Re: I give up...... > > > >OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! > > > > > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 3:49 PM >Subject: Re: I give up...... > > > > YOU WROTE: He would also rub the back of his hand against his lips > >That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. > > >________________________________ > >To: autism-aspergers >Sent: Thursday, April 26, 2012 3:18 PM >Subject: Re: I give up...... > > > >My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) > >He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. > >He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. > >Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... > >Lori > >Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >https://www.facebook.com/BoycottMovie21JumpStreetForAutism > > >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2012 Report Share Posted April 30, 2012 She started at 10mg. She gained a little bit of weight but not too much. She went up to 15mg about 6 months or so after starting it. She has been on the same dose for a couple years now. I was the one emotional, not her. It works so well for her. It was extremely noticeable when we tried to return to a lower dosage.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up...... Hi Sara,You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me."Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issuesAshton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is= = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2012 Report Share Posted April 30, 2012 My 7 yo makes noises all day long. He has done it since he was a baby. He walks in circles making them. I have to think it's cute or go nuts lol. My mom said I did that and moved my hands. She called it cooing. I now know it's stimming and hand flapping. Still do it at 44 but not so cute now lol. Ashton sara degeer wrote: > > That is kinda cute "soft waffles" hehehe. Colton does this really cute hmm, hmm, hmm. Noise and I love it, ill be sad if he quits doing it. ill have to record him doing it. Its kinda cute. > >------------------------------ > > >> >> >>Both my boys did not speak until about 5 and a half. I taught my oldest to read at 3 but when he put the book down it was back to babbling. My now 7 yo is in speech therapy and it has helped him tremendously but he still mixes up his sentences or will call things by either a different name or by its description. My favorite "Ethanism" is "soft waffles" for "pancakes". >>Ashton ( mom with Asperhers with 2 autistic sons) >>sara degeer wrote: >>>Lol. I keep thinking about how Colton might act as he gets older and its really hard to imagine him being able to actually talk one day..... hopefully. I hope he has nice things to say, i doubt it though as angry as he is. >>> >>> >>>________________________________ >>> >>>To: "autism-aspergers " <autism-aspergers > >>>Sent: Thursday, April 26, 2012 4:38 PM >>>Subject: Re: I give up...... >>> >>> >>> >>>Lol! I tell my 10 yr old that. He will say things like " what are you a dummy?". I say " nope but maybe you ate for calling ME that?". He gets it now! Lol >>> >>>Sent from my iPhone >>> >>> >>> >>> >>> >>>i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. >>> >>> >>> >>>________________________________ >>> >>>To: autism-aspergers >>>Sent: Thursday, April 26, 2012 3:55 PM >>>Subject: Re: I give up...... >>> >>> >>> >>>If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. >>> >>>--- Original Message --- >>> >>> >>>Sent: April 26, 2012 4/26/12 >>>To: autism-aspergers >>>Subject: Re: I give up...... >>> >>> >>> >>>Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because >>> everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. >>> >>> >>>To: autism-aspergers >>>Sent: Wednesday, April 25, 2012 6:10 PM >>>Subject: Re: I give up...... >>> >>> >>> >>> >>> >>>Hi Sara, >>> >>>You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. >>> >>>I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. >>> >>>My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. >>> >>>My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." >>> >>>Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues >>> >>>Ashton (Aspie Mom with 2 Autistic sons) >>> >>> >>> >>> >>> >>> >>> >>> >>>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive >>> government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is >>> >>> >>> >> >>Lol. I keep thinking about how Colton might act as he gets older and its really hard to imagine him being able to actually talk one day..... hopefully. I hope he has nice things to say, i doubt it though as angry as he is. To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:38 PM Subject: Re: I give up...... >> >>Lol! I tell my 10 yr old that. He will say things like " what are you a dummy?". I say " nope but maybe you ate for calling ME that?". He gets it now! Lol Sent from my iPhone On Apr 26, 2012, at 1:00 PM, sara degeer < bradleysmommy1@... > wrote: >> >>i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. From: " srt12780@... " < srt12780@... > To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... >> >>If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. >>--- Original Message --- >>From: sara degeer < bradleysmommy1@... > >>Sent: April 26, 2012 4/26/12 >>To: autism-aspergers >>Subject: Re: I give up...... >> >>Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because >>everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. >>From: Ashton S < ashtonca@... > >>To: autism-aspergers >>Sent: Wednesday, April 25, 2012 6:10 PM >>Subject: Re: I give up...... >> >>Hi Sara, >>You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. >>I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. >>My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. >>My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." >>Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues >>Ashton (Aspie Mom with 2 Autistic sons) >>On Tue, Apr 24, 2012 at 10:48 AM, sara degeer < bradleysmommy1@... > wrote: >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive >>government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is >> > That is kinda cute " soft waffles " hehehe. Colton does this really cute hmm, hmm, hmm. Noise and I love it, ill be sad if he quits doing it. ill have to record him doing it. Its kinda cute. ------------------------------>> >Both my boys did not speak until about 5 and a half. I taught my oldest to read at 3 but when he put the book down it was back to babbling. My now 7 yo is in speech therapy and it has helped him tremendously but he still mixes up his sentences or will call things by either a different name or by its description. My favorite " Ethanism " is " soft waffles " for " pancakes " . >Ashton ( mom with Asperhers with 2 autistic sons) >sara degeer wrote: >>Lol. I keep thinking about how Colton might act as he gets older and its really hard to imagine him being able to actually talk one day..... hopefully. I hope he has nice things to say, i doubt it though as angry as he is. >> >> >>________________________________ >> >>To: " autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 4:38 PM >>Subject: Re: I give up...... >> >> >> >>Lol!  I tell my 10 yr old that.  He will say things like " what are you a dummy? " . I say " nope but maybe you ate for calling ME that? " . He gets it now!  Lol >> >>Sent from my iPhone >> >> >> >> >> >>i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. >> >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:55 PM >>Subject: Re: I give up...... >> >> >> >>If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. >> >>--- Original Message --- >> >> >>Sent: April 26, 2012 4/26/12 >>To: autism-aspergers >>Subject: Re: I give up...... >> >> >> >>Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really  paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because >> everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. >> >> >>To: autism-aspergers >>Sent: Wednesday, April 25, 2012 6:10 PM >>Subject: Re: I give up...... >> >> >> >> >> >>Hi Sara, >> >>You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. >> >>I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. >> >>My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. >> >>My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us " I stab you. " He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, " No, you don't hate me, you are mad at me. " >> >>Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues >> >>Ashton (Aspie Mom with 2 Autistic sons) >> >> >> >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is " talking " about " certain parents " that only want their child dx so they canreceive >> government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is >> >> >> > >Lol. I keep thinking about how Colton might act as he gets older and its really hard to imagine him being able to actually talk one day..... hopefully. I hope he has nice things to say, i doubt it though as angry as he is. To: " autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:38 PM Subject: Re: I give up...... > >Lol!  I tell my 10 yr old that.  He will say things like " what are you a dummy? " . I say " nope but maybe you ate for calling ME that? " . He gets it now!  Lol Sent from my iPhone On Apr 26, 2012, at 1:00 PM, sara degeer < bradleysmommy1@... > wrote: > >i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. From: " srt12780@... " < srt12780@... > To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... > >If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. >--- Original Message --- >From: sara degeer < bradleysmommy1@... > >Sent: April 26, 2012 4/26/12 >To: autism-aspergers >Subject: Re: I give up...... > >Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really  paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because>everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. >From: Ashton S < ashtonca@... > >To: autism-aspergers >Sent: Wednesday, April 25, 2012 6:10 PM >Subject: Re: I give up...... > >Hi Sara, >You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. >I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. >My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. >My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us " I stab you. " He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, " No, you don't hate me, you are mad at me. " >Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues >Ashton (Aspie Mom with 2 Autistic sons) >On Tue, Apr 24, 2012 at 10:48 AM, sara degeer < bradleysmommy1@... > wrote: > >So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is " talking " about " certain parents " that only want their child dx so they can receive>government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2012 Report Share Posted April 30, 2012 My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ > > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE: He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >>>>>> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is " talking " about " certain parents " that only want their child dx so they can> receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/>>>>>>>>>>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee>>>>>> >>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2012 Report Share Posted April 30, 2012 My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself. Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next daySent from my HTC smartphone on the Now Network from Sprint!----- Reply message -----To: <autism-aspergers >Subject: I give up......Date: Sun, Apr 29, 2012 11:48 pm My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ > > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE: He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is " talking " about " certain parents " that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 My ten yr old boy with PDD-NOS has been obsessed with cats since a year old. Until this year his room was covered in cat pix and posters. He keeps all his birthday cards, etc with cats on them. His favorite stuffy was a cat. Now he has advanced to having an ocelot poster on his wall! But he meows and hisses, still. To: autism-aspergers Sent: Monday, April 30, 2012 8:44 AM Subject: Re: I give up...... My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself. Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next daySent from my HTC smartphone on the Now Network from Sprint!----- Reply message -----To: <autism-aspergers >Subject: I give up......Date: Sun, Apr 29, 2012 11:48 pm My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ > > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE: He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 My son hisses when he's mad, but he's not pretending to be a cat To: "autism-aspergers " <autism-aspergers > Sent: Tuesday, May 1, 2012 6:34 AM Subject: Re: I give up...... My ten yr old boy with PDD-NOS has been obsessed with cats since a year old. Until this year his room was covered in cat pix and posters. He keeps all his birthday cards, etc with cats on them. His favorite stuffy was a cat. Now he has advanced to having an ocelot poster on his wall! But he meows and hisses, still. To: autism-aspergers Sent: Monday, April 30, 2012 8:44 AM Subject: Re: I give up...... My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself. Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next daySent from my HTC smartphone on the Now Network from Sprint!----- Reply message -----To: <autism-aspergers >Subject: I give up......Date: Sun, Apr 29, 2012 11:48 pm My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ > > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE: He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 My son growls when he is mad but is not a dog! Lmbo!Sent from my iPhone My son hisses when he's mad, but he's not pretending to be a cat To: "autism-aspergers " <autism-aspergers > Sent: Tuesday, May 1, 2012 6:34 AM Subject: Re: I give up...... My ten yr old boy with PDD-NOS has been obsessed with cats since a year old. Until this year his room was covered in cat pix and posters. He keeps all his birthday cards, etc with cats on them. His favorite stuffy was a cat. Now he has advanced to having an ocelot poster on his wall! But he meows and hisses, still. To: autism-aspergers Sent: Monday, April 30, 2012 8:44 AM Subject: Re: I give up...... My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself. Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next daySent from my HTC smartphone on the Now Network from Sprint!----- Reply message -----To: <autism-aspergers >Subject: I give up......Date: Sun, Apr 29, 2012 11:48 pm My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ > > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE: He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 He is 20 months old. but when you talk to him he doesn't understand what your saying. It's like talking to a 9 or 10 month old. I'm hoping this meowing doesn't last very long but it seems to have gotten worse over the weekend... ugh!! To: "autism-aspergers " <autism-aspergers > Sent: Sunday, April 29, 2012 9:38 AM Subject: Re: I give up...... Ha ha!! What if you told him it's ok to meow at home but not in a store/ public? Or maybe if he meows loud people will start feeding cat food vs. human food? I don't know how conceptual he is....I can't help but think there would be someway to get into his head and manipulate the scenario? How old is he? Yeah, the moo-ing would be so much worse! People might take offense to that! LOL From: sara degeer To: autism-aspergers Sent: Saturday, April 28, 2012 11:51 PM Subject: Re: I give up...... Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol ------------------------------ >No, ha ha, no meowing! Thank goodness! > > > > > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Friday, April 27, 2012 3:22 PM >Subject: Re: I give up...... > > > >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 7:06 PM >Subject: Re: I give up...... > > > >OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! > > > > > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 3:49 PM >Subject: Re: I give up...... > > > > YOU WROTE: He would also rub the back of his hand against his lips > >That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. > > >________________________________ > >To: autism-aspergers >Sent: Thursday, April 26, 2012 3:18 PM >Subject: Re: I give up...... > > > >My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) > >He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. > >He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. > >Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... > >Lori > >Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >https://www.facebook.com/BoycottMovie21JumpStreetForAutism > > >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 Colton does all kinds of different things that I used to just think was weird or normal things but excessively. And didn't think much of it then but now I'm like ohhhhh, that's what that is! To: autism-aspergers Sent: Sunday, April 29, 2012 11:40 PM Subject: Re: I give up...... My 7 yo makes noises all day long. He has done it since he was a baby. He walks in circles making them. I have to think it's cute or go nuts lol. My mom said I did that and moved my hands. She called it cooing. I now know it's stimming and hand flapping. Still do it at 44 but not so cute now lol. Ashton sara degeer wrote: > > That is kinda cute "soft waffles" hehehe. Colton does this really cute hmm, hmm, hmm. Noise and I love it, ill be sad if he quits doing it. ill have to record him doing it. Its kinda cute. > >------------------------------ > > >> >> >>Both my boys did not speak until about 5 and a half. I taught my oldest to read at 3 but when he put the book down it was back to babbling. My now 7 yo is in speech therapy and it has helped him tremendously but he still mixes up his sentences or will call things by either a different name or by its description. My favorite "Ethanism" is "soft waffles" for "pancakes". >>Ashton ( mom with Asperhers with 2 autistic sons) >>sara degeer wrote: >>>Lol. I keep thinking about how Colton might act as he gets older and its really hard to imagine him being able to actually talk one day..... hopefully. I hope he has nice things to say, i doubt it though as angry as he is. >>> >>> >>>________________________________ >>> >>>To: "autism-aspergers " <autism-aspergers > >>>Sent: Thursday, April 26, 2012 4:38 PM >>>Subject: Re: I give up...... >>> >>> >>> >>>Lol! I tell my 10 yr old that. He will say things like " what are you a dummy?". I say " nope but maybe you ate for calling ME that?". He gets it now! Lol >>> >>>Sent from my iPhone >>> >>> >>> >>> >>> >>>i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. >>> >>> >>> >>>________________________________ >>> >>>To: autism-aspergers >>>Sent: Thursday, April 26, 2012 3:55 PM >>>Subject: Re: I give up...... >>> >>> >>> >>>If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. >>> >>>--- Original Message --- >>> >>> >>>Sent: April 26, 2012 4/26/12 >>>To: autism-aspergers >>>Subject: Re: I give up...... >>> >>> >>> >>>Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because >>> everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. >>> >>> >>>To: autism-aspergers >>>Sent: Wednesday, April 25, 2012 6:10 PM >>>Subject: Re: I give up...... >>> >>> >>> >>> >>> >>>Hi Sara, >>> >>>You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. >>> >>>I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. >>> >>>My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. >>> >>>My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." >>> >>>Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues >>> >>>Ashton (Aspie Mom with 2 Autistic sons) >>> >>> >>> >>> >>> >>> >>> >>> >>>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive >>> government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is >>> >>> >>> >> >>Lol. I keep thinking about how Colton might act as he gets older and its really hard to imagine him being able to actually talk one day..... hopefully. I hope he has nice things to say, i doubt it though as angry as he is. To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:38 PM Subject: Re: I give up...... >> >>Lol! I tell my 10 yr old that. He will say things like " what are you a dummy?". I say " nope but maybe you ate for calling ME that?". He gets it now! Lol Sent from my iPhone On Apr 26, 2012, at 1:00 PM, sara degeer < bradleysmommy1@... > wrote: >> >>i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. From: " srt12780@... " < srt12780@... > To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... >> >>If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. >>--- Original Message --- >>From: sara degeer < bradleysmommy1@... > >>Sent: April 26, 2012 4/26/12 >>To: autism-aspergers >>Subject: Re: I give up...... >> >>Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because >>everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. >>From: Ashton S < ashtonca@... > >>To: autism-aspergers >>Sent: Wednesday, April 25, 2012 6:10 PM >>Subject: Re: I give up...... >> >>Hi Sara, >>You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. >>I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. >>My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. >>My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." >>Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues >>Ashton (Aspie Mom with 2 Autistic sons) >>On Tue, Apr 24, 2012 at 10:48 AM, sara degeer < bradleysmommy1@... > wrote: >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive >>government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is >> > That is kinda cute "soft waffles" hehehe. Colton does this really cute hmm, hmm, hmm. Noise and I love it, ill be sad if he quits doing it. ill have to record him doing it. Its kinda cute. ------------------------------ > > >Both my boys did not speak until about 5 and a half. I taught my oldest to read at 3 but when he put the book down it was back to babbling. My now 7 yo is in speech therapy and it has helped him tremendously but he still mixes up his sentences or will call things by either a different name or by its description. My favorite "Ethanism" is "soft waffles" for "pancakes". >Ashton ( mom with Asperhers with 2 autistic sons) >sara degeer wrote: >>Lol. I keep thinking about how Colton might act as he gets older and its really hard to imagine him being able to actually talk one day..... hopefully. I hope he has nice things to say, i doubt it though as angry as he is. >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 4:38 PM >>Subject: Re: I give up...... >> >> >> >>Lol! I tell my 10 yr old that. He will say things like " what are you a dummy?". I say " nope but maybe you ate for calling ME that?". He gets it now! Lol >> >>Sent from my iPhone >> >> >> >> >> >>i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. >> >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:55 PM >>Subject: Re: I give up...... >> >> >> >>If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. >> >>--- Original Message --- >> >> >>Sent: April 26, 2012 4/26/12 >>To: autism-aspergers >>Subject: Re: I give up...... >> >> >> >>Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because >> everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. >> >> >>To: autism-aspergers >>Sent: Wednesday, April 25, 2012 6:10 PM >>Subject: Re: I give up...... >> >> >> >> >> >>Hi Sara, >> >>You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. >> >>I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. >> >>My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. >> >>My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." >> >>Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues >> >>Ashton (Aspie Mom with 2 Autistic sons) >> >> >> >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive >> government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is >> >> >> > >Lol. I keep thinking about how Colton might act as he gets older and its really hard to imagine him being able to actually talk one day..... hopefully. I hope he has nice things to say, i doubt it though as angry as he is. To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:38 PM Subject: Re: I give up...... > >Lol! I tell my 10 yr old that. He will say things like " what are you a dummy?". I say " nope but maybe you ate for calling ME that?". He gets it now! Lol Sent from my iPhone On Apr 26, 2012, at 1:00 PM, sara degeer < bradleysmommy1@... > wrote: > >i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. From: " srt12780@... " < srt12780@... > To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... > >If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. >--- Original Message --- >From: sara degeer < bradleysmommy1@... > >Sent: April 26, 2012 4/26/12 >To: autism-aspergers >Subject: Re: I give up...... > >Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because >everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. >From: Ashton S < ashtonca@... > >To: autism-aspergers >Sent: Wednesday, April 25, 2012 6:10 PM >Subject: Re: I give up...... > >Hi Sara, >You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. >I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. >My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. >My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." >Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues >Ashton (Aspie Mom with 2 Autistic sons) >On Tue, Apr 24, 2012 at 10:48 AM, sara degeer < bradleysmommy1@... > wrote: > >So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive >government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 Awe, Have you thought about getting a new kitty? To: autism-aspergers Sent: Sunday, April 29, 2012 11:48 PM Subject: Re: I give up...... My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ > > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE: He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 Wow, Well Colton has been getting worse with the head banging. Just in 3 weeks he's had 2 black eyes and the giant knot on his forehead. I'm so worried about him getting seriously injured because I know he's not. I really worry about his face and his teeth. His teeth are so perfect. Colton doesn't chew his tongue but he sucks on it. I personally because of my anxiety I chew the inside of my mouth to the point that it bleeds. I hate when I get like that. Since this past weekend Colton has been absolutely awful. He has been in bed for almost 2 days because every time I let him out he is so violent and just walks around screaming and crying. But when he's in his crib all alone he's all smiles. But he's happy, I don't know what to do. To: autism-aspergers Sent: Monday, April 30, 2012 8:44 AM Subject: Re: I give up...... My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself. Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next daySent from my HTC smartphone on the Now Network from Sprint!----- Reply message -----To: <autism-aspergers >Subject: I give up......Date: Sun, Apr 29, 2012 11:48 pm My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ > > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE: He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 OMG, So I guess this just means it could possibly get worse. UGH!!! It's very embarrassing. :/ To: "autism-aspergers " <autism-aspergers > Sent: Tuesday, May 1, 2012 6:34 AM Subject: Re: I give up...... My ten yr old boy with PDD-NOS has been obsessed with cats since a year old. Until this year his room was covered in cat pix and posters. He keeps all his birthday cards, etc with cats on them. His favorite stuffy was a cat. Now he has advanced to having an ocelot poster on his wall! But he meows and hisses, still. To: autism-aspergers Sent: Monday, April 30, 2012 8:44 AM Subject: Re: I give up...... My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself. Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next daySent from my HTC smartphone on the Now Network from Sprint!----- Reply message -----To: <autism-aspergers >Subject: I give up......Date: Sun, Apr 29, 2012 11:48 pm My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ > > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE: He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 lol, sorry. To: "autism-aspergers " <autism-aspergers > Sent: Tuesday, May 1, 2012 9:19 AM Subject: Re: I give up...... My son hisses when he's mad, but he's not pretending to be a cat To: "autism-aspergers " <autism-aspergers > Sent: Tuesday, May 1, 2012 6:34 AM Subject: Re: I give up...... My ten yr old boy with PDD-NOS has been obsessed with cats since a year old. Until this year his room was covered in cat pix and posters. He keeps all his birthday cards, etc with cats on them. His favorite stuffy was a cat. Now he has advanced to having an ocelot poster on his wall! But he meows and hisses, still. To: autism-aspergers Sent: Monday, April 30, 2012 8:44 AM Subject: Re: I give up...... My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself. Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next daySent from my HTC smartphone on the Now Network from Sprint!----- Reply message -----To: <autism-aspergers >Subject: I give up......Date: Sun, Apr 29, 2012 11:48 pm My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ > > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE: He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 lol To: "autism-aspergers " <autism-aspergers > Sent: Tuesday, May 1, 2012 11:12 AM Subject: Re: I give up...... My son growls when he is mad but is not a dog! Lmbo!Sent from my iPhone My son hisses when he's mad, but he's not pretending to be a cat To: "autism-aspergers " <autism-aspergers > Sent: Tuesday, May 1, 2012 6:34 AM Subject: Re: I give up...... My ten yr old boy with PDD-NOS has been obsessed with cats since a year old. Until this year his room was covered in cat pix and posters. He keeps all his birthday cards, etc with cats on them. His favorite stuffy was a cat. Now he has advanced to having an ocelot poster on his wall! But he meows and hisses, still. To: autism-aspergers Sent: Monday, April 30, 2012 8:44 AM Subject: Re: I give up...... My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself. Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next daySent from my HTC smartphone on the Now Network from Sprint!----- Reply message -----To: <autism-aspergers >Subject: I give up......Date: Sun, Apr 29, 2012 11:48 pm My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ > > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE: He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can > receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ >> >> >> >> >>P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> > > > > > > > = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 Poor Colton. The world is just too much for him. Sensory overload. That is why he is happy in his crib all alone.Sent from my iPhone Wow, Well Colton has been getting worse with the head banging. Just in 3 weeks he's had 2 black eyes and the giant knot on his forehead. I'm so worried about him getting seriously injured because I know he's not. I really worry about his face and his teeth. His teeth are so perfect. Colton doesn't chew his tongue but he sucks on it. I personally because of my anxiety I chew the inside of my mouth to the point that it bleeds. I hate when I get like that. Since this past weekend Colton has been absolutely awful. He has been in bed for almost 2 days because every time I let him out he is so violent and just walks around screaming and crying. But when he's in his crib all alone he's all smiles. But he's happy, I don't know what to do. To: autism-aspergers Sent: Monday, April 30, 2012 8:44 AM Subject: Re: I give up...... My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself. Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next daySent from my HTC smartphone on the Now Network from Sprint!----- Reply message -----To: <autism-aspergers >Subject: I give up......Date: Sun, Apr 29, 2012 11:48 pm My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. Ashton sara degeer wrote: > > >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol > > >------------------------------ > > >>No, ha ha, no meowing! Thank goodness! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Friday, April 27, 2012 3:22 PM >>Subject: Re: I give up...... >> >> >> >>Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 7:06 PM >>Subject: Re: I give up...... >> >> >> >>OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> >> >> >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Thursday, April 26, 2012 3:49 PM >>Subject: Re: I give up...... >> >> >> >> YOU WROTE: He would also rub the back of his hand against his lips >> >>That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:18 PM >>Subject: Re: I give up...... >> >> >> >>My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >>He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >>He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >>Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >>Lori >> >>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> >No, ha ha, no meowing! Thank goodness! > > > > > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Friday, April 27, 2012 3:22 PM >Subject: Re: I give up...... > > > >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over > > >________________________________ > From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 My head banger had severe food allergies that were making him MISERABLE for the first year of his life. He also has other issues that have come out now that he's older (11), but the food allergies were a big factor in making him cry all the time. We ended up putting him on a hypoallergenic formula from the ages of 1 until 3. I think it helped because of the allergies AND because it gave him a steady intake of balanced carbs and proteins. I started to see more problems with ADHD like behavior once we started foods and his intake wasn't as balance. (Hindsight being 20/20) Now that he's older he has a more varied diet, but I still see problems if he doesn't get food every 2 hours and proteins frequently through the day. I am so sorry your little guy is doing the head banging thing- it is difficult to deal with because you can't stop them. DS liked to watch things spin, small tops, etc. He would also sometimes settle if we gave him a bath. He loved the videos that had music and images - like Celebration of Colors, Baby Mozart, etc. We actually wore out two copies of Celebration of Colors (VHS- wasn't on DVD at the time). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 I wish yall were here to just see him how he is all day. It seems like all day long he just screams and bangs his head and walks on his toes, its like all day he is just stimming. I really do feel like he is in sensory overload like all day long. And I feel like such a bad parent for keeping him in the crib so much but hes so happy in there. What should I do? Any suggestions would help a lot. ------------------------------ >Poor Colton. The world is just too much for him. Sensory overload. That is why he is happy in his crib all alone. > >Sent from my iPhone > > > >> Wow, Well Colton has been getting worse with the head banging. Just in 3 weeks he's had 2 black eyes and the giant knot on his forehead. I'm so worried about him getting seriously injured because I know he's not. I really worry about his face and his teeth. His teeth are so perfect. Colton doesn't chew his tongue but he sucks on it. I personally because of my anxiety I chew the inside of my mouth to the point that it bleeds. I hate when I get like that. Since this past weekend Colton has been absolutely awful. He has been in bed for almost 2 days because every time I let him out he is so violent and just walks around screaming and crying. But when he's in his crib all alone he's all smiles. But he's happy, I don't know what to do. >> >> >> To: autism-aspergers >> Sent: Monday, April 30, 2012 8:44 AM >> Subject: Re: I give up...... >> >> >> My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself. Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next day >> >> Sent from my HTC smartphone on the Now Network from Sprint! >> >> >> ----- Reply message ----- >> >> To: <autism-aspergers > >> Subject: I give up...... >> Date: Sun, Apr 29, 2012 11:48 pm >> >> >> >> My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. >> Ashton >> sara degeer wrote: >> > >> > >> >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to " moo " . Lol >> > >> > >> >------------------------------ >> > >> > >> >No, ha ha, no meowing! Thank goodness! >> > >> > >> > >> > >> > >> > >> >________________________________ >> > >> >To: " autism-aspergers " <autism-aspergers > >> >Sent: Friday, April 27, 2012 3:22 PM >> >Subject: Re: I give up...... >> > >> > >> > >> >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> > >> > >> >________________________________ >> > >> >To: " autism-aspergers " <autism-aspergers > >> >Sent: Thursday, April 26, 2012 7:06 PM >> >Subject: Re: I give up...... >> > >> > >> > >> >OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> > >> > >> > >> > >> > >> > >> >________________________________ >> > >> >To: " autism-aspergers " <autism-aspergers > >> >Sent: Thursday, April 26, 2012 3:49 PM >> >Subject: Re: I give up...... >> > >> > >> > >> > YOU WROTE: He would also rub the back of his hand against his lips >> > >> >That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> > >> > >> >________________________________ >> > >> >To: autism-aspergers >> >Sent: Thursday, April 26, 2012 3:18 PM >> >Subject: Re: I give up...... >> > >> > >> > >> >My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> > >> >He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> > >> >He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> > >> >Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> > >> >Lori >> > >> >Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >> >https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> > >> > >> >> >No, ha ha, no meowing! Thank goodness! >> > >> > >> > >> > >> > >> > >> >________________________________ >> > >> >To: " autism-aspergers " <autism-aspergers > >> >Sent: Friday, April 27, 2012 3:22 PM >> >Subject: Re: I give up...... >> > >> > >> > >> >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> > >> > >> >________________________________ >> > From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 I would try a quite room (not in his crib) with very limited toys, colors, items, etc for periods of time. As soon as he is overwhelmed, I would move him to his crib. I would try a compression vest. I would try a ball pit or a trampoline. Does he have an OT? How many things are in his room? Maybe if you could take everything out but just a ball pit or a 1 person trampoline or some balls or something or even a swing? Just keep it very simple and see if he can be calm in those environments. I would try to add myself into the mix for short periods of time but don't make major demands on him. Just be with him....LoriPlease BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! https://www.facebook.com/BoycottMovie21JumpStreetForAutism--- Subject: Re: I give up......To: autism-aspergers Date: Tuesday, May 1, 2012, 8:05 PM I wish yall were here to just see him how he is all day. It seems like all day long he just screams and bangs his head and walks on his toes, its like all day he is just stimming. I really do feel like he is in sensory overload like all day long. And I feel like such a bad parent for keeping him in the crib so much but hes so happy in there. What should I do? Any suggestions would help a lot. ------------------------------ >Poor Colton. The world is just too much for him. Sensory overload. That is why he is happy in his crib all alone. > >Sent from my iPhone > > > >> Wow, Well Colton has been getting worse with the head banging. Just in 3 weeks he's had 2 black eyes and the giant knot on his forehead. I'm so worried about him getting seriously injured because I know he's not. I really worry about his face and his teeth. His teeth are so perfect. Colton doesn't chew his tongue but he sucks on it. I personally because of my anxiety I chew the inside of my mouth to the point that it bleeds. I hate when I get like that. Since this past weekend Colton has been absolutely awful. He has been in bed for almost 2 days because every time I let him out he is so violent and just walks around screaming and crying. But when he's in his crib all alone he's all smiles. But he's happy, I don't know what to do. >> >> >> To: autism-aspergers >> Sent: Monday, April 30, 2012 8:44 AM >> Subject: Re: I give up...... >> >> >> My daughter who is now 13 , does the hand rubbing , when she gets stressed , almost to the point of rubbing her hands until the skin started to peel on her hands , at one point she began to chew the side of her tongue also. I have also had to deal with head banging ,not from her but my 6 year old grandson is autistic also , and at one point he was so bad we were thinking of getting him a helmet to keep him from injuring himself. Thank goodness for our pediatrician he really helped my family . Things are getting better its all about good days and bad ones . We just roll with the punches and start over the next day >> >> Sent from my HTC smartphone on the Now Network from Sprint! >> >> >> ----- Reply message ----- >> >> To: <autism-aspergers > >> Subject: I give up...... >> Date: Sun, Apr 29, 2012 11:48 pm >> >> >> >> My 7 yo meows and walks on all fours. He does it in response to stress. He'll do it for a week or so then stop. He is also obsessed with all things cat. He brings home book after book on cats and talks about them incessently. When our female passed, had panic attacks off and on for a week. He brings her up alot and says she's with Jesus and our dog. >> Ashton >> sara degeer wrote: >> > >> > >> >Well now this meowing thing is getting out of control. He does it constantly. Even in public really loud and hes not saying the word meow he is more like making the noise and people just stare at us like wth is wrong with your kid? Not to mention its just gettin kinda annoying. And now im scared to teach him any other animal sounds. God forbid he learn how to "moo". Lol >> > >> > >> >------------------------------ >> > >> > >> >No, ha ha, no meowing! Thank goodness! >> > >> > >> > >> > >> > >> > >> >________________________________ >> > >> >To: "autism-aspergers " <autism-aspergers > >> >Sent: Friday, April 27, 2012 3:22 PM >> >Subject: Re: I give up...... >> > >> > >> > >> >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> > >> > >> >________________________________ >> > >> >To: "autism-aspergers " <autism-aspergers > >> >Sent: Thursday, April 26, 2012 7:06 PM >> >Subject: Re: I give up...... >> > >> > >> > >> >OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! >> > >> > >> > >> > >> > >> > >> >________________________________ >> > >> >To: "autism-aspergers " <autism-aspergers > >> >Sent: Thursday, April 26, 2012 3:49 PM >> >Subject: Re: I give up...... >> > >> > >> > >> > YOU WROTE: He would also rub the back of his hand against his lips >> > >> >That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> > >> > >> >________________________________ >> > >> >To: autism-aspergers >> >Sent: Thursday, April 26, 2012 3:18 PM >> >Subject: Re: I give up...... >> > >> > >> > >> >My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> > >> >He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> > >> >He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> > >> >Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> > >> >Lori >> > >> >Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >> >https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> > >> > >> >> >No, ha ha, no meowing! Thank goodness! >> > >> > >> > >> > >> > >> > >> >________________________________ >> > >> >To: "autism-aspergers " <autism-aspergers > >> >Sent: Friday, April 27, 2012 3:22 PM >> >Subject: Re: I give up...... >> > >> > >> > >> >Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over >> > >> > >> >________________________________ >> > From: R. Tucker < Quote Link to comment Share on other sites More sharing options...
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