Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 What meds can be given monthly? My son is on daily meds.Sent from my iPhone Every three weeks and now monthly for the past three years. We see a psychiatrist who specializes in kids. I tried about four before I found this one. I was so scared to start medication at first too. All of the things we try to keep out of their system, but his little neurosensors connect better now. It worked for us at least.Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:31:27 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... constant as in monthly? or more often? To: autism-aspergers Sent: Thursday, April 26, 2012 7:27 PM Subject: Re: I give up...... Low dosage, constant med checks and less yelling and fighting has worked for us. Sammy has had none of the side effects minus dry mouth. A good psychiatrist can mentor you if you wish to investigate it.Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:24:05 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... Wish my son was on mood stabilizers!! but I'm worried about side effects! To: autism-aspergers Sent: Thursday, April 26, 2012 7:22 PM Subject: Re: I give up...... My Sammy (ASD, age 9) used to tell me he hated me all of the time. Remember we don't define ourselves by our children. And for Sammy, he was frustrated that he didn't know how to properly express his anger. We had a special pillow that was only used when one of us was frustrated-he'd hit and yell at instead of me and with mood stabilizers, I can't remember the last time he said he hated me. Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:07:57 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... You know that is not the case. They love you. They are just angry or manipulative!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:00 PM Subject: Re: I give up...... i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. --- Original Message --- Sent: April 26, 2012 4/26/12 To: autism-aspergers Subject: Re: I give up...... Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PM Subject: Re: I give up...... Hi Sara, You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues Ashton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 Oh I am sorry, I wasn't clear, we see the psychiatrist on a monthly basis, but he does take the meds on a daily basis. Seroquel 25mg plus Zoloft 50mg every night at dinner time. For ADHD he takes Vyanse, 40mg daily. It really is a lifesave to us. To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 8:45 PM Subject: Re: I give up...... What meds can be given monthly? My son is on daily meds.Sent from my iPhone Every three weeks and now monthly for the past three years. We see a psychiatrist who specializes in kids. I tried about four before I found this one. I was so scared to start medication at first too. All of the things we try to keep out of their system, but his little neurosensors connect better now. It worked for us at least.Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:31:27 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... constant as in monthly? or more often? To: autism-aspergers Sent: Thursday, April 26, 2012 7:27 PM Subject: Re: I give up...... Low dosage, constant med checks and less yelling and fighting has worked for us. Sammy has had none of the side effects minus dry mouth. A good psychiatrist can mentor you if you wish to investigate it.Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:24:05 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... Wish my son was on mood stabilizers!! but I'm worried about side effects! To: autism-aspergers Sent: Thursday, April 26, 2012 7:22 PM Subject: Re: I give up...... My Sammy (ASD, age 9) used to tell me he hated me all of the time. Remember we don't define ourselves by our children. And for Sammy, he was frustrated that he didn't know how to properly express his anger. We had a special pillow that was only used when one of us was frustrated-he'd hit and yell at instead of me and with mood stabilizers, I can't remember the last time he said he hated me. Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:07:57 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... You know that is not the case. They love you. They are just angry or manipulative!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:00 PM Subject: Re: I give up...... i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. --- Original Message --- Sent: April 26, 2012 4/26/12 To: autism-aspergers Subject: Re: I give up...... Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PM Subject: Re: I give up...... Hi Sara, You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues Ashton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 monthly as in monthly med checks not monthly meds To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 9:45 PM Subject: Re: I give up...... What meds can be given monthly? My son is on daily meds.Sent from my iPhone Every three weeks and now monthly for the past three years. We see a psychiatrist who specializes in kids. I tried about four before I found this one. I was so scared to start medication at first too. All of the things we try to keep out of their system, but his little neurosensors connect better now. It worked for us at least.Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:31:27 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... constant as in monthly? or more often? To: autism-aspergers Sent: Thursday, April 26, 2012 7:27 PM Subject: Re: I give up...... Low dosage, constant med checks and less yelling and fighting has worked for us. Sammy has had none of the side effects minus dry mouth. A good psychiatrist can mentor you if you wish to investigate it.Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:24:05 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... Wish my son was on mood stabilizers!! but I'm worried about side effects! To: autism-aspergers Sent: Thursday, April 26, 2012 7:22 PM Subject: Re: I give up...... My Sammy (ASD, age 9) used to tell me he hated me all of the time. Remember we don't define ourselves by our children. And for Sammy, he was frustrated that he didn't know how to properly express his anger. We had a special pillow that was only used when one of us was frustrated-he'd hit and yell at instead of me and with mood stabilizers, I can't remember the last time he said he hated me. Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:07:57 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... You know that is not the case. They love you. They are just angry or manipulative!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:00 PM Subject: Re: I give up...... i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. --- Original Message --- Sent: April 26, 2012 4/26/12 To: autism-aspergers Subject: Re: I give up...... Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PM Subject: Re: I give up...... Hi Sara, You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues Ashton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 the dual formula of Adderall/ and Vyvanse made my son agitated and nasty. He works well on Concerta 54. He was on a daily anti-depressant but when we weened him off of it we notice no difference. It certainly didn't make his mood better/ worse. I'm wondering if the Seraquel would be any different?? To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 10:11 PM Subject: Re: I give up...... Oh I am sorry, I wasn't clear, we see the psychiatrist on a monthly basis, but he does take the meds on a daily basis. Seroquel 25mg plus Zoloft 50mg every night at dinner time. For ADHD he takes Vyanse, 40mg daily. It really is a lifesave to us. To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 8:45 PM Subject: Re: I give up...... What meds can be given monthly? My son is on daily meds.Sent from my iPhone Every three weeks and now monthly for the past three years. We see a psychiatrist who specializes in kids. I tried about four before I found this one. I was so scared to start medication at first too. All of the things we try to keep out of their system, but his little neurosensors connect better now. It worked for us at least.Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:31:27 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... constant as in monthly? or more often? To: autism-aspergers Sent: Thursday, April 26, 2012 7:27 PM Subject: Re: I give up...... Low dosage, constant med checks and less yelling and fighting has worked for us. Sammy has had none of the side effects minus dry mouth. A good psychiatrist can mentor you if you wish to investigate it.Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:24:05 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... Wish my son was on mood stabilizers!! but I'm worried about side effects! To: autism-aspergers Sent: Thursday, April 26, 2012 7:22 PM Subject: Re: I give up...... My Sammy (ASD, age 9) used to tell me he hated me all of the time. Remember we don't define ourselves by our children. And for Sammy, he was frustrated that he didn't know how to properly express his anger. We had a special pillow that was only used when one of us was frustrated-he'd hit and yell at instead of me and with mood stabilizers, I can't remember the last time he said he hated me. Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:07:57 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... You know that is not the case. They love you. They are just angry or manipulative!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:00 PM Subject: Re: I give up...... i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. --- Original Message --- Sent: April 26, 2012 4/26/12 To: autism-aspergers Subject: Re: I give up...... Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PM Subject: Re: I give up...... Hi Sara, You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues Ashton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 > > Hmmmm....well, I will have a discussion, but I'm still so worried. There will probably be side effects. If you aren't to a place yet where that's OK, then you probably aren't ready to try meds yet. KWIM? It's a trade off. I think most of us who use medications didn't jump into the pharmacy as a first line of attack. We all do the best we can. But you have to weigh your child's ability to function and thrive with medicines vs the downsides of the side effects. That is such a very individual analysis. I think if you are worried about trying them, you need to set up some guidelines for yourself. If the doctor says try it for X days or weeks, are you going to be able to stick it out? You don't want to go back and forth too much or you will end up with self-fulfilling negative results. :/ I know it is a really tough decision. That's why it is often hurtful when folks who " would never " use medications share that little tidbit (I don't mean you, I know you are legitimately concerned). I'm sure many of us are having to learn to accept things that we thought we " would never. " Wish it was easy, but it's not. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 Very well said!Sent from my iPhone > > Hmmmm....well, I will have a discussion, but I'm still so worried. There will probably be side effects. If you aren't to a place yet where that's OK, then you probably aren't ready to try meds yet. KWIM? It's a trade off. I think most of us who use medications didn't jump into the pharmacy as a first line of attack. We all do the best we can. But you have to weigh your child's ability to function and thrive with medicines vs the downsides of the side effects. That is such a very individual analysis. I think if you are worried about trying them, you need to set up some guidelines for yourself. If the doctor says try it for X days or weeks, are you going to be able to stick it out? You don't want to go back and forth too much or you will end up with self-fulfilling negative results. :/ I know it is a really tough decision. That's why it is often hurtful when folks who "would never" use medications share that little tidbit (I don't mean you, I know you are legitimately concerned). I'm sure many of us are having to learn to accept things that we thought we "would never." Wish it was easy, but it's not. = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 My daughter has been on 15mg Abilify for quite some time. It is the drug that works the best. We've tried twice to lower the dose with disastrous results. I will never allow her to come off that drug or lower it's dose as long as I have a say. I'd give up most anything to keep her on that one. A month after she started Abilify, we went back to the Dr. I cried and thanked him for giving me my daughter back. I know that isn't the case for everyone but it is a miracle drug. She is also on Vyvanse 40mg twice a day...yes twice! Then she takes a small dose of ritalin if she has homework. Unfortunately, the vyvanse only kind of works.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up...... Hi Sara,You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me."Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issuesAshton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is= = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 Thank you for your thoughtful analysis! This does help me put stuff into perspective,however like you said I'm still not ready I'm wondering if this will help during the periods he is not on his ADHD med like the morning and late at night to keep him calm. The worst time is first thing in the morning = AWFUL!!!! To: autism-aspergers Sent: Thursday, April 26, 2012 11:24 PM Subject: Re: I give up...... > > Hmmmm....well, I will have a discussion, but I'm still so worried. There will probably be side effects. If you aren't to a place yet where that's OK, then you probably aren't ready to try meds yet. KWIM? It's a trade off. I think most of us who use medications didn't jump into the pharmacy as a first line of attack. We all do the best we can. But you have to weigh your child's ability to function and thrive with medicines vs the downsides of the side effects. That is such a very individual analysis. I think if you are worried about trying them, you need to set up some guidelines for yourself. If the doctor says try it for X days or weeks, are you going to be able to stick it out? You don't want to go back and forth too much or you will end up with self-fulfilling negative results. :/ I know it is a really tough decision. That's why it is often hurtful when folks who "would never" use medications share that little tidbit (I don't mean you, I know you are legitimately concerned). I'm sure many of us are having to learn to accept things that we thought we "would never." Wish it was easy, but it's not. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 At that first appt. other than being very emotional (understood) what other side effects did you notice at 15 mg. or did you start at a lower dosage? To: autism-aspergers Sent: Friday, April 27, 2012 3:16 AM Subject: Re: I give up...... My daughter has been on 15mg Abilify for quite some time. It is the drug that works the best. We've tried twice to lower the dose with disastrous results. I will never allow her to come off that drug or lower it's dose as long as I have a say. I'd give up most anything to keep her on that one. A month after she started Abilify, we went back to the Dr. I cried and thanked him for giving me my daughter back. I know that isn't the case for everyone but it is a miracle drug. She is also on Vyvanse 40mg twice a day...yes twice! Then she takes a small dose of ritalin if she has homework. Unfortunately, the vyvanse only kind of works.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up...... Hi Sara,You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me."Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issuesAshton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is= = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 It took about three weeks to see anything, but something happened and instead of screaming and going wild, he handled it with less intensity. Other than dry mouth we don't see any side effects. Sent from my Verizon Wireless BlackBerrySender: autism-aspergers Date: Fri, 27 Apr 2012 05:42:22 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... At that first appt. other than being very emotional (understood) what other side effects did you notice at 15 mg. or did you start at a lower dosage? To: autism-aspergers Sent: Friday, April 27, 2012 3:16 AM Subject: Re: I give up...... My daughter has been on 15mg Abilify for quite some time. It is the drug that works the best. We've tried twice to lower the dose with disastrous results. I will never allow her to come off that drug or lower it's dose as long as I have a say. I'd give up most anything to keep her on that one. A month after she started Abilify, we went back to the Dr. I cried and thanked him for giving me my daughter back. I know that isn't the case for everyone but it is a miracle drug. She is also on Vyvanse 40mg twice a day...yes twice! Then she takes a small dose of ritalin if she has homework. Unfortunately, the vyvanse only kind of works.   Only two defining forces have ever offered to die for you;Jesus Christ and the American Soldier.One died for your soul; the other for your freedom.-- Re: I give up...... Hi Sara,You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. Heis trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead ofhit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me."Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issuesAshton(Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything fromdevelopmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe thereis= = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 It is bad for Chase in the AM too. I can always tell if he hasn't had his meds yet! ;-)LoriPlease BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! https://www.facebook.com/BoycottMovie21JumpStreetForAutism--- Subject: Re: Re: I give up......To: "autism-aspergers " <autism-aspergers >Date: Friday, April 27, 2012, 5:39 AM Thank you for your thoughtful analysis! This does help me put stuff into perspective,however like you said I'm still not ready I'm wondering if this will help during the periods he is not on his ADHD med like the morning and late at night to keep him calm. The worst time is first thing in the morning = AWFUL!!!! To: autism-aspergers Sent: Thursday, April 26, 2012 11:24 PM Subject: Re: I give up...... > > Hmmmm....well, I will have a discussion, but I'm still so worried. There will probably be side effects. If you aren't to a place yet where that's OK, then you probably aren't ready to try meds yet. KWIM? It's a trade off. I think most of us who use medications didn't jump into the pharmacy as a first line of attack. We all do the best we can. But you have to weigh your child's ability to function and thrive with medicines vs the downsides of the side effects. That is such a very individual analysis. I think if you are worried about trying them, you need to set up some guidelines for yourself. If the doctor says try it for X days or weeks, are you going to be able to stick it out? You don't want to go back and forth too much or you will end up with self-fulfilling negative results. :/ I know it is a really tough decision. That's why it is often hurtful when folks who "would never" use medications share that little tidbit (I don't mean you, I know you are legitimately concerned). I'm sure many of us are having to learn to accept things that we thought we "would never." Wish it was easy, but it's not. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 I am 44yrs old and still find myself sucking my tongue. I was a thumb sucker but my mom would put that hot stuff on my thumb nails to try to deter me but it didn't stop me. Evenually, I took to tongue sucking and was constantly smacked for it. None of my boys sucked their thumbs but both gnawed on their fingers, my 7 yo still does and I catch him chewing tissue. I'm a gum chewer. I make friends aware of why and will appologize if it bothers them. If it does I'll get rid of it but then I find myself stimming more than usual. Ashton (mom with Apergers with 2 autistic sons) Lori Yurtin wrote: >Yes and Chase would make this sucking sound but he wasn't sucking on his hand...more like on his own tongue. He would do this alot when he was tired.... > >Sent from my iPhone > > > >> YOU WROTE: He would also rub the back of his hand against his lips >> That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. >> >> >> To: autism-aspergers >> Sent: Thursday, April 26, 2012 3:18 PM >> Subject: Re: I give up...... >> >> >> My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!) >> >> He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet. >> >> He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet. >> >> Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming.... >> >> Lori >> >> Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >> https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so.And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 Both my boys did not speak until about 5 and a half. I taught my oldest to read at 3 but when he put the book down it was back to babbling. My now 7 yo is in speech therapy and it has helped him tremendously but he still mixes up his sentences or will call things by either a different name or by its description. My favorite "Ethanism" is "soft waffles" for "pancakes". Ashton ( mom with Asperhers with 2 autistic sons) sara degeer wrote: >Lol. I keep thinking about how Colton might act as he gets older and its really hard to imagine him being able to actually talk one day..... hopefully. I hope he has nice things to say, i doubt it though as angry as he is. > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 4:38 PM >Subject: Re: I give up...... > > > >Lol! I tell my 10 yr old that. He will say things like " what are you a dummy?". I say " nope but maybe you ate for calling ME that?". He gets it now! Lol > >Sent from my iPhone > > > > > >>i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. >> >> >> >>________________________________ >> >>To: autism-aspergers >>Sent: Thursday, April 26, 2012 3:55 PM >>Subject: Re: I give up...... >> >> >> >>If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. >> >>--- Original Message --- >> >> >>Sent: April 26, 2012 4/26/12 >>To: autism-aspergers >>Subject: Re: I give up...... >> >> >> >>Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because > everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. >> >> >>To: autism-aspergers >>Sent: Wednesday, April 25, 2012 6:10 PM >>Subject: Re: I give up...... >> >> >> >> >> >>Hi Sara, >> >>You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. >> >>I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. >> >>My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. >> >>My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." >> >>Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues >> >>Ashton (Aspie Mom with 2 Autistic sons) >> >> >> >> >> >> >> >> >>So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive > government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is >> >> > Lol. I keep thinking about how Colton might act as he gets older and its really hard to imagine him being able to actually talk one day..... hopefully. I hope he has nice things to say, i doubt it though as angry as he is. To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:38 PM Subject: Re: I give up...... Lol! I tell my 10 yr old that. He will say things like " what are you a dummy?". I say " nope but maybe you ate for calling ME that?". He gets it now! LolSent from my iPhone i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either.--- Original Message ---Sent: April 26, 2012 4/26/12To: autism-aspergers Subject: Re: I give up...... Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Becauseeverything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. :(To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PMSubject: Re: I give up...... Hi Sara,You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me."Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issuesAshton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receivegovernment benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 My son tells me when he's mad at me that he hates me but I just tell him no you don't you are just mad. When he is done being mad I will say "I love you" and he will say "I love you too", so just remember it's anger not hatred. Ashton " R. Tucker" wrote: >You know that is not the case. They love you. They are just angry or manipulative!!! > > > > > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 4:00 PM >Subject: Re: I give up...... > > > >i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. > > >________________________________ > >To: autism-aspergers >Sent: Thursday, April 26, 2012 3:55 PM >Subject: Re: I give up...... > > > >If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. > >--- Original Message --- > > >Sent: April 26, 2012 4/26/12 >To: autism-aspergers >Subject: Re: I give up...... > > > >Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because > everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. > > >To: autism-aspergers >Sent: Wednesday, April 25, 2012 6:10 PM >Subject: Re: I give up...... > > > > > >Hi Sara, > >You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. > >I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. > >My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. > >My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." > >Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues > >Ashton (Aspie Mom with 2 Autistic sons) > > > > > > > > >So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive > government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is > > > You know that is not the case. They love you. They are just angry or manipulative!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:00 PM Subject: Re: I give up...... i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either.--- Original Message ---Sent: April 26, 2012 4/26/12To: autism-aspergers Subject: Re: I give up...... Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Becauseeverything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. :(To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PMSubject: Re: I give up...... Hi Sara,You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me."Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issuesAshton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receivegovernment benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 OMG! I'm sorry. lol To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 7:04 PM Subject: Re: I give up...... It was hard, very hard. My oldest started Early Intervention pre-school at 3 yrs. and 10 mo. 2 wks after my third was born and my baby was in the infant car seat and my middle child couldn't yet do stairs and my son's classroom was on the second floor (no elevator).....gee that was fun times twice a day M-F!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 3:27 PM Subject: Re: I give up...... Wow, I couldn't do that. This right here is killin me. To: autism-aspergers Sent: Wednesday, April 25, 2012 8:57 PM Subject: Re: I give up...... I wish I could have spaced mine out like that! I had baby #1 ( child with AS) and when he was 15 mo. I was pregnant again (easy easy baby) and then pregnant again when baby #2 was 12 mo. On an IUD that "supposedly" was there to prevent pregnancy long enough to space them out a bit. 3 kids in 3 yrs. 10 mo. I had one in pullups and two in diapers! Glad they are all out of that phase now! --- Original Message --- Sent: April 25, 2012 4/25/12 To: autism-aspergers Subject: Re: I give up...... I missed that pouch after Ben started walking. When your kid sleeps regularly for 4 hours a day (2am-6am) and needs to be either held, sitting on your lap, or within 5cm of you at all times when he is awake, you get a bit inventive. You can do most things while holding a child. Although it is probably no surprise we didn't have another for 3 years, and then it came as a surprise to both of us. And I agree - they won't stop crying, and they won't eat the food, no matter how long you wait. That sounds like my . I couldn't put him down either. I told my cousin that I wore the front pouch thing to do my chores just so that he was happy. She said she's put him down and let him scream......that is like the theory you hear about food....."if they are hungry enough they'll eat" ummmm.....no, mine will keep screaming and he'll starve too. To: autism-aspergers Sent: Tuesday, April 24, 2012 8:20 PM Subject: Re: I give up...... Yeah, I attached a picture of colton when he fell into the table. And he just simply looked at me like what the hell is that table doing there? And walked off. Coltons younger brother will be 3 months old tomorrow and I literally can not put him down fir even a second or hes screaming his head off. Almost like hes in pain its very strange and he has a milk allergy and hes got acid reflux, so he has to sit up all the time. ------------------------------ >I think it may be a matter of not being engaged with our own bodies. I know if I get up in the morning and it is cold and I dress warmly, if it comes out warm - even if it gets over 30C - I probably won't notice i need to remove any clothes. I have also been known to dress for warm weather and then need reminding (this is why we have mothers and wives ) to put something else on. I don't always notice small things that cause pain. I am just focused on other things. My son is much the same. But when it comes to emotional or mental discomfort - that is another thing! My son cried almost constantly if not being held for the first 10 months of his life. But after that, if he fell over, sometimes he cried, sometimes he didn't. Usually not much at all - nothing like from the distress of not being held. He took years to learn to put out his hands to break his fall, but even when he put his teeth through his lips and there was blood everywhere, it was more a whimper than a cry. The only time he really cried was if he couldn't see me when it happened. Once I was there, it was fine. > >Strange thing is, if I cut my nails and there is even the slightest 'catch' on anything it drives me mad. My wife has often commented I fuss over my nails worse than any woman. It's just that if they are not smooth, then any contact with anything is like fingernails screeching on a blackboard. Did anyone else have a teacher who did that to get attention? Not sure how I survived a year without getting up and hitting her hard. Maybe because I was only 7 at the time > > > > >> �Just piggy-backing on what said- my son with Asperger's has an incredibly high tolerance for pain.� He's now 10. If he cried (as a baby, toddler, or even now) we knew it was very bad... usually involving blood or worse.� It's bizarre the level of pain he can handle!!� >> >> >> On Tue, Apr 24, 2012 at 3:57 PM, sara degeer <bradleysmommy1@... wrote: >> >> � >> [Attachment(s) <#136e5ee3c4d375be_TopText> from sara degeer >> included below] >> Yes he rocks all the time It took the sores a couple months to >> heal because he would keep rocking. Colton has a very high pain >> tolerance as well just the other day he was sitting in my lap and >> started throwing a fit and did the limp noodle thing and slid out >> of my lap and when his knees hit the floor he kinda lunged forward >> and hit his forehead on the coffee table that is in the videos and >> didn't even cry. Just looked at me funny and walked away with a >> lump sticking out of his head about a 1/4 of an inch. It was huge >> and he should've cried. Here is a picture of it seconds after it >> happened. He was more upset that I was trying to hold him still to >> take the pic. >> >> ---------------------------------------------------------- >> *From:* and <alexandriairma@... >> >> *To:* "autism-aspergers >> <mailto:autism-aspergers >" >> <autism-aspergers >> <mailto:autism-aspergers > >> *Sent:* Tuesday, April 24, 2012 3:47 PM >> *Subject:* Re: I give up...... >> >> � >> You mentioned the scars on his back from rocking? When the scars >> are sores does it sto Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 7:06 PM Subject: Re: I give up...... OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 3:49 PM Subject: Re: I give up...... YOU WROTE: He would also rub the back of his hand against his lips That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. To: autism-aspergers Sent: Thursday, April 26, 2012 3:18 PM Subject: Re: I give up...... My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!)He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet.He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet.Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming....LoriPlease BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! https://www.facebook.com/BoycottMovie21JumpStreetForAutism--- Subject: Re: I give up......To: "autism-aspergers " <autism-aspergers >Date: Thursday, April 26, 2012, 12:07 PM Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PM Subject: Re: I give up...... Hi Sara,You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues Ashton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 I know but it hurts non the less. ------------------------------ >You know that is not the case. They love you. They are just angry or manipulative!!! > > > > > > >________________________________ > >To: " autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 4:00 PM >Subject: Re: I give up...... > > > >i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. > > >________________________________ > >To: autism-aspergers >Sent: Thursday, April 26, 2012 3:55 PM >Subject: Re: I give up...... > > > >If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. > >--- Original Message --- > > >Sent: April 26, 2012 4/26/12 >To: autism-aspergers >Subject: Re: I give up...... > > > >Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really  paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because > everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. > > >To: autism-aspergers >Sent: Wednesday, April 25, 2012 6:10 PM >Subject: Re: I give up...... > > > > > >Hi Sara, > >You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. > >I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. > >My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. > >My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us " I stab you. " He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, " No, you don't hate me, you are mad at me. " > >Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues > >Ashton (Aspie Mom with 2 Autistic sons) > > > > > > > > >So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is " talking " about " certain parents " that only want their child dx so they can receive > government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2012 Report Share Posted April 28, 2012 Do your children get tics from anti-pshycotics? Resperidal worked well for my son but he gained a lot of weight and started getting tics.Same thing happened with Depakote. He is currently on Celelxa (which I don't think is working) Busperone for anxiety, and Trazadone for sleep. After he takes the trazadone, he eats and eats. Mostly carbs. He has gained about 40 lbs. We talked to the doc about this and he said my son should take it and go to bed. Uh..........he would if he could. We have tried everything but Ambien. Doc won't prescribe it. Melatonin has never worked for him. He just can't shut down. His last doctor said, not in front of my son, years ago they would have put my son in an institution. That's why he was his LAST doctor. I can't get that out of my mind though.Eileen To: autism-aspergers Sent: Friday, April 27, 2012 10:37 AM Subject: Re: I give up...... It took about three weeks to see anything, but something happened and instead of screaming and going wild, he handled it with less intensity. Other than dry mouth we don't see any side effects. Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Fri, 27 Apr 2012 05:42:22 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... At that first appt. other than being very emotional (understood) what other side effects did you notice at 15 mg. or did you start at a lower dosage? To: autism-aspergers Sent: Friday, April 27, 2012 3:16 AM Subject: Re: I give up...... My daughter has been on 15mg Abilify for quite some time. It is the drug that works the best. We've tried twice to lower the dose with disastrous results. I will never allow her to come off that drug or lower it's dose as long as I have a say. I'd give up most anything to keep her on that one. A month after she started Abilify, we went back to the Dr. I cried and thanked him for giving me my daughter back. I know that isn't the case for everyone but it is a miracle drug. She is also on Vyvanse 40mg twice a day...yes twice! Then she takes a small dose of ritalin if she has homework. Unfortunately, the vyvanse only kind of works.   Only two defining forces have ever offered to die for you; Jesus Christ and the American Soldier. One died for your soul; the other for your freedom. -- Re: I give up...... Hi Sara,You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me."Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issuesAshton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is= = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2012 Report Share Posted April 28, 2012 Whenever our daughter is in trouble she will say " But Mommy I love you" "Please Hold me". I know she loves us but the manipulation is hard especially when you have a kid who is not too affectionate to begin with. I usually end up holding her while she is being reprimanded, I take what I can get. It's hard because when we are having a normal time she never shows affection. If guns kill people then pencils cause misspelled words To: "autism-aspergers " <autism-aspergers > Sent: Friday, April 27, 2012 12:43 PM Subject: Re: I give up...... My son tells me when he's mad at me that he hates me but I just tell him no you don't you are just mad. When he is done being mad I will say "I love you" and he will say "I love you too", so just remember it's anger not hatred. Ashton " R. Tucker" wrote: >You know that is not the case. They love you. They are just angry or manipulative!!! > > > > > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 4:00 PM >Subject: Re: I give up...... > > > >i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. > > >________________________________ > >To: autism-aspergers >Sent: Thursday, April 26, 2012 3:55 PM >Subject: Re: I give up...... > > > >If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. > >--- Original Message --- > > >Sent: April 26, 2012 4/26/12 >To: autism-aspergers >Subject: Re: I give up...... > > > >Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because > everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. > > >To: autism-aspergers >Sent: Wednesday, April 25, 2012 6:10 PM >Subject: Re: I give up...... > > > > > >Hi Sara, > >You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. > >I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. > >My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. > >My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." > >Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues > >Ashton (Aspie Mom with 2 Autistic sons) > > > > > > > > >So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive > government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is > > > You know that is not the case. They love you. They are just angry or manipulative!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:00 PM Subject: Re: I give up...... i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. --- Original Message --- Sent: April 26, 2012 4/26/12 To: autism-aspergers Subject: Re: I give up...... Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PM Subject: Re: I give up...... Hi Sara, You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues Ashton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2012 Report Share Posted April 28, 2012 No, ha ha, no meowing! Thank goodness! To: "autism-aspergers " <autism-aspergers > Sent: Friday, April 27, 2012 3:22 PM Subject: Re: I give up...... Does he meow too, cause my older daughter taught colton how to and he has been doing it ever since over and over and over To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 7:06 PM Subject: Re: I give up...... OMG!!! My son licks the back of his hand!! We call him kitty cat! What makes someone do this?????? I gotta hear why!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 3:49 PM Subject: Re: I give up...... YOU WROTE: He would also rub the back of his hand against his lips That is what colton does. And sometimes will have his tongue sticking out so that he's licking the back of his hand. To: autism-aspergers Sent: Thursday, April 26, 2012 3:18 PM Subject: Re: I give up...... My son showed signs of autism almost from birth. He would stare at bright lights, trees moving and anything that spun. He never turned to our voices like his twin sister did from a very early age. I told his Ped that he had autism during a 7/8week well care visit! Yes, things got worse before they got better. Before intensive therapy (25-30 hours each week!)He never moved so much so that he developed a flat back of his head. We had to move him to his side several times in the middle of the night but, he just kept flopping over to his back. Almost had to wear a helmet.He couldn't sit up or do tummy time because he didn't have the strength to lift his head up...he would just scream bloody murder with his head smashed into the carpet.Anyway...my son would flip his hand over and suck on the outside of his pinky when he would get upset. He would also rub the back of his hand against his lips. Totally for sensory calming....LoriPlease BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! https://www.facebook.com/BoycottMovie21JumpStreetForAutism--- Subject: Re: I give up......To: "autism-aspergers " <autism-aspergers >Date: Thursday, April 26, 2012, 12:07 PM Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PM Subject: Re: I give up...... Hi Sara,You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues Ashton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2012 Report Share Posted April 28, 2012 Yes, it does, but the point is that it gets easier with time. To: autism-aspergers Sent: Friday, April 27, 2012 4:06 PM Subject: Re: I give up...... I know but it hurts non the less. ------------------------------ >You know that is not the case. They love you. They are just angry or manipulative!!! > > > > > > >________________________________ > >To: "autism-aspergers " <autism-aspergers > >Sent: Thursday, April 26, 2012 4:00 PM >Subject: Re: I give up...... > > > >i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. > > >________________________________ > >To: autism-aspergers >Sent: Thursday, April 26, 2012 3:55 PM >Subject: Re: I give up...... > > > >If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. > >--- Original Message --- > > >Sent: April 26, 2012 4/26/12 >To: autism-aspergers >Subject: Re: I give up...... > > > >Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because > everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. > > >To: autism-aspergers >Sent: Wednesday, April 25, 2012 6:10 PM >Subject: Re: I give up...... > > > > > >Hi Sara, > >You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. > >I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. > >My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. > >My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." > >Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues > >Ashton (Aspie Mom with 2 Autistic sons) > > > > > > > > >So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive > government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2012 Report Share Posted April 28, 2012 yeah, colton isin the 4th percentile for his age or so im told. But they told me with all my kids that their under weight and to tall. Seriously, Who ever told them a child of any age should be a certain size. I could understand if they were completely overweight or to skinny that their life was in danger. To: "autism-aspergers " <autism-aspergers >; "loriyurtin@..." Sent: Thursday, April 26, 2012 3:09 PM Subject: Re: I give up...... I lurk here a lot but felt like I needed to respond here this time. Lol. Those people at WIC are nuts!!! They told me that the reason my son was on the 5% for height was because he was a picky eater and not eating properly. Could be cause he is built just like his dad who is maybe 5'8'' with shoes. For diet to affect height take generations!!! Don't listen to them. Sent from Yahoo! Mail on Android From: Lori Yurtin ; To: <autism-aspergers >; Subject: Re: I give up...... Sent: Thu, Apr 26, 2012 7:01:23 PM How RUDE!!!!!!! There are enough people in this world who are overweight....if his Dr isn't concerned...no worries!LoriPlease BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! https://www.facebook.com/BoycottMovie21JumpStreetForAutism--- Subject: Re: I give up......To: "autism-aspergers " <autism-aspergers >Date: Thursday, April 26, 2012, 11:54 AM Colton is so little he is only 21 pounds and he is 20 months. The people at WIC told me he needs to be on an all fat diet and I need to add a tablespoon of butter to all of his food to make him gain weight. YEAH RIGHT!!!! I will never do such a thing. Maybe this is just who he is and how he is suppose to be. Before I got pregnant I was 98 lbs. and 5 foot. Those people are crazy. To: "autism-aspergers " <autism-aspergers > Sent: Wednesday, April 25, 2012 3:46 PM Subject: Re: I give up...... That is so awesome! I want to homeschool next year!My son was 30lbs at 10 months! No way could I carry him! Lol!Sent from my iPhone My son is on the spectrum. I believe in attachment parenting & my son too cried often as a baby if he was t held. I carried him on me for the first year of his life! He was then ready to do his own thing. If he cried I always rushed to his side to help him. It wasn't enabling him but more of showing him I was there. My son is 6 now & when he's hurt he will hop around saying ouch but generally no tears at all. Only reason he ever cries is if he is interrupted when speaking. I feel that with autistic children the parents are tired & trying to 'fix' their child. I have embraced that my son is not typical but when I treat him with respect & really take the time to learn how he is feeling then we go without any issues! My son was in traditional kindergarten & each day he flipped further into himself. I pulled him out. We unschool & homeschool & My sin is more typical than ever!!!Bless,Breanna Schultz Mine was happy as long as he was held. He didn't cry when I held him! To: "autism-aspergers " <autism-aspergers > Cc: "autism-aspergers " <autism-aspergers > Sent: Wednesday, April 25, 2012 11:17 AM Subject: Re: I give up...... My Chase was like that and he screamed even if I held him. Plus, he is a twin. I had no choice but to let him scream on many occasions. :(Sent from my iPhone That sounds like my . I couldn't put him down either. I told my cousin that I wore the front pouch thing to do my chores just so that he was happy. She said she's put him down and let him scream......that is like the theory you hear about food....."if they are hungry enough they'll eat" ummmm.....no, mine will keep screaming and he'll starve too. To: autism-aspergers Sent: Tuesday, April 24, 2012 8:20 PM Subject: Re: I give up...... Yeah, I attached a picture of colton when he fell into the table. And he just simply looked at me like what the hell is that table doing there? And walked off. Coltons younger brother will be 3 months old tomorrow and I literally can not put him down fir even a second or hes screaming his head off. Almost like hes in pain its very strange and he has a milk allergy and hes got acid reflux, so he has to sit up all the time. ------------------------------ >I think it may be a matter of not being engaged with our own bodies. I know if I get up in the morning and it is cold and I dress warmly, if it comes out warm - even if it gets over 30C - I probably won't notice i need to remove any clothes. I have also been known to dress for warm weather and then need reminding (this is why we have mothers and wives ) to put something else on. I don't always notice small things that cause pain. I am just focused on other things. My son is much the same. But when it comes to emotional or mental discomfort - that is another thing! My son cried almost constantly if not being held for the first 10 months of his life. But after that, if he fell over, sometimes he cried, sometimes he didn't. Usually not much at all - nothing like from the distress of not being held. He took years to learn to put out his hands to break his fall, but even when he put his teeth through his lips and there was blood everywhere, it was more a whimper than a cry. The only time he really cried was if he couldn't see me when it happened. Once I was there, it was fine. > >Strange thing is, if I cut my nails and there is even the slightest 'catch' on anything it drives me mad. My wife has often commented I fuss over my nails worse than any woman. It's just that if they are not smooth, then any contact with anything is like fingernails screeching on a blackboard. Did anyone else have a teacher who did that to get attention? Not sure how I survived a year without getting up and hitting her hard. Maybe because I was only 7 at the time > > > > >> �Just piggy-backing on what said- my son with Asperger's has an incredibly high tolerance for pain.� He's now 10. If he cried (as a baby, toddler, or even now) we knew it was very bad... usually involving blood or worse.� It's bizarre the level of pain he can handle!!� >> >> >> On Tue, Apr 24, 2012 at 3:57 PM, sara degeer <bradleysmommy1@... wrote: >> >> � >> [Attachment(s) <#136e5ee3c4d375be_TopText> from sara degeer >> included below] >> Yes he rocks all the time It took the sores a couple months to >> heal because he would keep rocking. Colton has a very high pain >> tolerance as well just the other day he was sitting in my lap and >> started throwing a fit and did the limp noodle thing and slid out >> of my lap and when his knees hit the floor he kinda lunged forward >> and hit his forehead on the coffee table that is in the videos and >> didn't even cry. Just looked at me funny and walked away with a >> lump sticking out of his head about a 1/4 of an inch. It was huge >> and he should've cried. Here is a picture of it seconds after it >> happened. He was more upset that I was trying to hold him still to >> take the pic. >> >> ---------------------------------------------------------- >> *From:* and <alexandriairma@... >> >> *To:* "autism-aspergers >> <mailto:autism-aspergers >" >> <autism-aspergers >> <mailto:autism-aspergers > >> *Sent:* Tuesday, April 24, 2012 3:47 PM >> *Subject:* Re: I give up...... >> >> � >> You mentioned the scars on his back from rocking? When the scars >> are sores does it stop him from rocking? My daughter has what I >> think is an incredibly high tolerance for pain. When she has >> skinned her knees and does this weird sound thing but won't cry. >> She does freak out at the sight of blood even if it is not her >> own. I think it is all part of the sensory issues.� >> >> Ella did not speak until after her second birthday, but she did a >> lot of stuff early. When she finally did speak she was very >> articulate (well for a 26 -27 month old) if you or anyone wants to >> look at her videos let me know, I will give you the link. >> >> As for toys Ella has/has the�opposite�of the Midas Touch, she >> intentionally took apart or broke most of her toys.� >> � >> */If guns kill people then pencils cause misspelled words/* >> >> ---------------------------------------------------------- >> *From:* sara degeer <bradleysmommy1@... >> >> *To:* "autism-aspergers >> <mailto:autism-aspergers >" >> <autism-aspergers >> <mailto:autism-aspergers > >> *Sent:* Tuesday, April 24, 2012 1:35 PM >> *Subject:* Re: I give up...... >> >> � >> No Colton doesn't talk. He babbles like a little baby, but no real >> words. He talks to himself almost constantly. And the rocking is >> all day and all night. He has scars from rocking, on his back he >> has like these lesion things from rocking against hard surfaces >> and it wont ever heal cause he continues to do it so often. I have >> been trying to get him to point at stuff since before he was a >> year old. And I wish he played normal with his toys seeing as how >> he has so many of them. I feel like half the time we just waste >> our money on toys because he doesn't play with them instead he >> just carries them around the house in his hand and/or throws them >> at people.� >> >> ---------------------------------------------------------- >> *From:* Lori Yurtin <loriyurtin@... >> >> *To:* autism-aspergers >> <mailto:autism-aspergers > >> *Sent:* Tuesday, April 24, 2012 2:06 PM >> *Subject:* Re: I give up...... >> >> � >> One more thing. �He is darling! �And, although in isolation, >> rocking and spinning can be perfectly normal...if he isn't >> talking...isn't pointing...doesn't play appropiately with most >> toys...doesn't reference....etc, etc...he is on the spectrum. >> �Please don't doubt yourself. �If I waited, my son would never >> have learned to talk...NEVER! �My son also is "gifted" but has >> classic autism. �And, he is currently mainstreamed in 3rd grade. >> �I may homeschool him next year, though. � >> >> >> >> Please BOYCOTT the movie 21 Jump Street! It makes fun of those >> with autism! >> https://www.facebook.com/BoycottMovie21JumpStreetForAutism >> >> >> >> >> From: sara degeer <bradleysmommy1@... >> >> Subject: I give up...... >> To: "autism-aspergers >> <mailto:autism-aspergers >" >> <autism-aspergers >> <mailto:autism-aspergers > >> Date: Tuesday, April 24, 2012, 10:48 AM >> >> � >> So for the last 7 weeks that Coltons therapist has been coming >> to see him he has only showed up 3 times. He is suppose to >> come once a week for an hour. When he cancels he texts me >> minutes away from the appt. time. Which I find ridiculous. So >> I called yesterday to have Early Steps try and get me a >> different Therapist. And to have Colton tested for ASD. And to >> get him into a Gifted school. They accept children that have >> anything from developmental delays to Severe Retardation. And >> you can start at 18 months old. Everything went good til >> today. When The old Therapist comes to my house and is like >> well can you tell me why I'm not on your case anymore? And I >> calmly explained to him that I need someone more reliable. He >> mentioned that I should not seek a dx and that I should wait a >> few years if I am told to do so. And then he goes on to talk >> about how everyone at the office is "talking" about "certain >> parents" that only want their child dx so they can receive >> government benefits. And said that they don't say names cause >> they aren't allowed to but didn't think any of it was about >> me. I in no way shape or form want anything from the >> government only the right kind of care for my child. I am >> extremely hurt by what he said. And Think that you know maybe >> there isn't anything wrong with him. Maybe he's just weird and >> quirky. I can't stop thinking about it. I don't know what to >> do. I am really starting to question if there is anything >> wrong at all. :-/ >> >> >> P.S. This is my Son >> Colton�http://www.youtube.com/user/bradleysmommy1?feature=mhee >> >> >> >> >> >> >> >> >> >> >> No virus found in this message. >> Checked by AVG - www.avg.com <http://www.avg.com> >> Version: 2012.0.1913 / Virus Database: 2411/4957 - Release Date: 04/24/12 >> = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2012 Report Share Posted April 28, 2012 I took zoloft before for my bipolar and it didn do anything, The seraquel is ridiculous I hated it it made me feel drunk at first then I almost passed out. Hated it. To: autism-aspergers Sent: Thursday, April 26, 2012 7:38 PM Subject: Re: I give up...... Sammy is on Seraquel and zoloft.Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:33:26 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... Hmmmm....well, I will have a discussion, but I'm still so worried. I've heard ambilify has less side effects vs. Risperdone. My cousin's daughter, severe autism (not high functioning) was on Risperdone, but I don't know what dosage. She was 8 and wearing a girls 16!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 7:28 PM Subject: Re: I give up...... I was also worried about side effects but sometimes you get to a point where nothing works. We tried yrs of ABA, floortime, RDI, special diets, supplements, even injections and we finally had to try the big guns-Risperadone. He now takes a cocktail of abilify and Risperadone and something for anxiety. Best therapy we ever did! LolSent from my iPhone Wish my son was on mood stabilizers!! but I'm worried about side effects! To: autism-aspergers Sent: Thursday, April 26, 2012 7:22 PM Subject: Re: I give up...... My Sammy (ASD, age 9) used to tell me he hated me all of the time. Remember we don't define ourselves by our children. And for Sammy, he was frustrated that he didn't know how to properly express his anger. We had a special pillow that was only used when one of us was frustrated-he'd hit and yell at instead of me and with mood stabilizers, I can't remember the last time he said he hated me. Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:07:57 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... You know that is not the case. They love you. They are just angry or manipulative!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:00 PM Subject: Re: I give up...... i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. --- Original Message --- Sent: April 26, 2012 4/26/12 To: autism-aspergers Subject: Re: I give up...... Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PM Subject: Re: I give up...... Hi Sara, You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues Ashton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2012 Report Share Posted April 28, 2012 Wow, that a big difference. I was to on Abilify but had to be taken off of it quickly it made my blood sugar drop and I almost passed out from it. To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 7:39 PM Subject: Re: I give up...... Yes, I will say many many kids gain a good amount of weight on Risperadone. Abilify can do that too but less likely.My son gained. Then lost when he went on Abilify. And had stabilized since being on both.He is 52 inches tall and weighs 86lbs. He has always been a "full" kid. He was 30lbs at just 10 months if age! His twin sister is s skinny mini..,same height but weighs 23lbs less. They have always been like that. At 10 months, only weighed 18lbs to his 30lbs!Sent from my iPhone Hmmmm....well, I will have a discussion, but I'm still so worried. I've heard ambilify has less side effects vs. Risperdone. My cousin's daughter, severe autism (not high functioning) was on Risperdone, but I don't know what dosage. She was 8 and wearing a girls 16!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 7:28 PM Subject: Re: I give up...... I was also worried about side effects but sometimes you get to a point where nothing works. We tried yrs of ABA, floortime, RDI, special diets, supplements, even injections and we finally had to try the big guns-Risperadone. He now takes a cocktail of abilify and Risperadone and something for anxiety. Best therapy we ever did! LolSent from my iPhone Wish my son was on mood stabilizers!! but I'm worried about side effects! To: autism-aspergers Sent: Thursday, April 26, 2012 7:22 PM Subject: Re: I give up...... My Sammy (ASD, age 9) used to tell me he hated me all of the time. Remember we don't define ourselves by our children. And for Sammy, he was frustrated that he didn't know how to properly express his anger. We had a special pillow that was only used when one of us was frustrated-he'd hit and yell at instead of me and with mood stabilizers, I can't remember the last time he said he hated me. Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 26 Apr 2012 16:07:57 -0700 (PDT)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: I give up...... You know that is not the case. They love you. They are just angry or manipulative!!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, April 26, 2012 4:00 PM Subject: Re: I give up...... i keep thinkin about it and I still don't think I could do that. It breaks my heart every time he hits me. I just want to cry. It makes me feel like he doesn't like me. To: autism-aspergers Sent: Thursday, April 26, 2012 3:55 PM Subject: Re: I give up...... If your children say it often enough you get use to it. my youngest with know ASD. he said that to manipulate me. you get use to it and then say oh well I don't like you either. --- Original Message --- Sent: April 26, 2012 4/26/12 To: autism-aspergers Subject: Re: I give up...... Wow, thats crazy I think if Colton ever told me He hated me, I think a piece of me would just die. I love all of my kids the same I would do anything in the world for anyone one of them but Colton just has a really special place in my heart. And his anger hurts me the most. I never really paid much attention to the nose rubbing thing I knew he did it a lot. Even when he just gets excited he rubs his nose. Even if he doesn't have snot. And everyone keeps asking me if he ways his hands in front of his face but he didn't use to but have been noticing that when he is holding his brush he waves that like on the side of his face. and now he has started taking the back of his hand and rubbing it back and forth really fast against his lips. but he usually only does that when he is mad and crying. I feel like everyday he starts something new. I used to think he was just mildly autistic if at all. but now i feel like it may be getting much worse. Because everything i have read and from what people tell me is usually kids dont start showing signs til about right now where as he has had them almost his whole life, and are just getting worse. To: autism-aspergers Sent: Wednesday, April 25, 2012 6:10 PM Subject: Re: I give up...... Hi Sara, You ARE seeing what you think you are seeing in your son. I watched your vodeos of him and it's like looking at me and my youngest. His nerves are in overdrive and he's responding to that by melting down. If you notice, he rubs his nose a lot, not just because it's running from crying but because it is tingling. The stimming he does is his way of trying to calm down the sensations his little body is going through, neurologically and anxiety. I see him lashing out then he'll hug you. He is trying to tell you what is going on inside him and that he is sorry. I've lived this my entire life inside, it's like a war inside, and you cannot stop it, so you just want to scream. I'm 44 years old and I still have these same issues, and have learned to be by myself when I feel out of control. My son melted down like this, and at 7, still does, but not as often. Now it comes out in defiance against his brother and me. My son wears a compression suit from the time he wakes up, until bedtime. His school and occupational therapist said that they notice a big difference in him since he got his SPIO suit. I notice that he's able to calm himself more now than prior. I would love to have an adult sized SPIO suit myself, but I don't have the money or the insurance to get one. My youngest's meltdowns were violent toward me and my son, they still are, but now his is more able to talk instead of hit/punch/shove first. I think the difference was when he gained his ability speak better. He still struggles but he can tell me better what has upset him. Until that happened, it was so bad, we had to remove all knives from the kitchen because he would go get one and either throw it at me or my oldest, or threaten to stab us "I stab you." He hasn't done that in a long time. He mostly tells me he hates me when he's mad, and I remind him, "No, you don't hate me, you are mad at me." Please don't let this therapist stop you from pursuing what Colton needs most, intervention and help as early as possible. Keep seeking until someone will listen. I had friends tell me nothing was wrong with my sons or me, that, Ethan was just acting out for attention. I finally got him evaluated and now he is in IEP and Speech/Occu therapy. They are helping so much, especially with the behavioral and eating issues Ashton (Aspie Mom with 2 Autistic sons) So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there is = = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2012 Report Share Posted April 28, 2012 Ugh, dogs! lol, Ok will do. To: autism-aspergers Sent: Thursday, April 26, 2012 7:41 PM Subject: Re: I give up...... The suit is called a SPIO suit. It's lycra, stretcny, long sleeves, and is warn under the clothes. We got it with the help of his occupational therapist. Do a google search for the name I typed. I'd give you the link but I am typing this on my nook color. My dog chewed my laptop cord. sara degeer wrote: >hmmmm, that is interesting. I would like to know more about this compression suit. > > >________________________________ > >To: autism-aspergers >Sent: Wednesday, April 25, 2012 6:26 PM >Subject: Re: I give up...... > > > >Yes, my son does this upside down thing all the time on the couch. I tell him couches are for sitting not standing on your head, and the only reason is because he gets so wild when he does it, his feet flail. He does the same thing in his bed when trying to calm down to sleep. It's a pressure need on his head, like his compression suit does for him. > >Ashton > > > > > >> >>Well everyone keeps telling me that he clearly can't have ASD because of the eye contact. But I keep coming into contact with people who have ASD or know someone that does and they are telling me different. And one person then pointed out the very extreme or intense eye contact almost like he is starring you down isn't so great either. And since I have had the baby, I have been noticing the same things in him and I am terrified. I don't wanna do this again. Only this time the new baby is not nearly as happy as Colton was as a baby. And Colton now has this new thing where he wants to watch everything upside down, like all the time and will walk bent over with his head on the floor. Its kinda funny actually... And thank you I love it when he smiles it's so contagious. >> >> >> >>________________________________ >> >>To: "autism-aspergers " <autism-aspergers > >>Sent: Tuesday, April 24, 2012 3:01 PM >> >>Subject: Re: I give up...... >> >> >> >> >>Chase always made good eye contact! . >> >>Sent from my iPhone >> >> >> >> >> >>>Yea Colton was the same way he didn't learn how to roll over until he was 7 1/2 months old. Which is fairly late as it is in your case as well. He also couldn't crawl, sit up. He would smile at you all day long but never babbled or anything he didnt start that til about a year old. The only thing is with Colton he has amazing eye contact with his immediate family and my mom. But for strangers its very intense staring or he wont look at you at all. and when he stares at people i have noticed it make some people upset. I think it makes them feel uncomfortable. >>> >>> >>> >>>________________________________ >>> >>>To: autism-aspergers >>>Sent: Tuesday, April 24, 2012 1:59 PM >>>Subject: Re: I give up...... >>> >>> >>> >>>I heard the same thing! We are in CA and used Early Intervention when my son was 10 months old and still wasn't rolling over, crawling, couldn't sit, etc. He also was VERY clearly on the spectrum as he wasn't babbling, didn't respond to his name, wasn't pointing, flapped and didn't play with any toys. Just stared at them from different angles. >>> >>> >>>He started with PT. A shrink came to our home and told me "You are just looking for a dx. Everyone just wants a dx to get more services. It isn't right." I responded with "Are you kidding me? My kid has ever sign of autism there is...and, you think I want this? I don't want this....I just want help for my child!" >>> >>> >>>She proceeded to tell me "Well, if you want a dx, go get it." I flipping did. He was 20 months and there was NO questioning it. CLASSIC AUTISM! I got 25 hours per week of playbased ABA from that "B* & C^", OT and speech therapy. Not from her directly...but, she had to approve it. >>> >>> >>>She wasn't happy. Basically, they say this because many parents will listen and then they don't have to shell out the cash for these kids. ;-( >>> >>> >>>Don't listen to that wackadoodle! >>> >>> >>>Lori >>> >>>Please BOYCOTT the movie 21 Jump Street! It makes fun of those with autism! >>>https://www.facebook.com/BoycottMovie21JumpStreetForAutism >>> >>> Subject: I give up...... To: "autism-aspergers " <autism-aspergers > Date: Tuesday, April 24, 2012, 1:48 PM So for the last 7 weeks that Coltons therapist has been coming to see him he has only showed up 3 times. He is suppose to come once a week for an hour. When he cancels he texts me minutes away from the appt. time. Which I find ridiculous. So I called yesterday to have Early Steps try and get me a different Therapist. And to have Colton tested for ASD. And to get him into a Gifted school. They accept children that have anything from developmental delays to Severe Retardation. And you can start at 18 months old. Everything went good til today. When The old Therapist comes to my house and is like well can you tell me why I'm not on your case anymore? And I calmly explained to him that I need someone more reliable. He mentioned that I should not seek a dx and that I should wait a few years if I am told to do so. And then he goes on to talk about how everyone at the office is "talking" about "certain parents" that only want their child dx so they can receive government benefits. And said that they don't say names cause they aren't allowed to but didn't think any of it was about me. I in no way shape or form want anything from the government only the right kind of care for my child. I am extremely hurt by what he said. And Think that you know maybe there isn't anything wrong with him. Maybe he's just weird and quirky. I can't stop thinking about it. I don't know what to do. I am really starting to question if there is anything wrong at all. :-/ P.S. This is my Son Colton http://www.youtube.com/user/bradleysmommy1?feature=mhee Quote Link to comment Share on other sites More sharing options...
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