Re: Lois this is so long

October 23, 2009

Pat,

That is incredible you foresight and dediation in a very volitair (sp)

situation. You an amazing woman!

Lois this is so long

It was really rough when Karac had aggression when he was withdrawn from the

Geodon.

I wore a heavy wool coat and boxing glove mittens when I saw it coming on and I

would tell

him to get in the tub in the bathroom and I would give him an Epson Salt bath.

I would think he

was going to break the glass door or slosh water all over the floor

because he would rage until it calmed him down. When he got out I would tell

him to go

upstairs and lay down on a pallet that I made between his bed and the wall. I

would play his music

and get him a toasted pop tart or a hot dog to eat. Usually we would go through

this at least twice

in a day. Sometimes I could just tell him to go upstairs and lay down on the

pallet, and I wouldn't

go up until he had calmed down; then I would go up and turn on the music and

take him something

warm to eat like a garlic bun (which he loved; I made it with half a hot dog bun

spread with garlic butter

and toasted in the toaster oven).

I wore that hot coat practically the entire hot summer.even when I

took him for a walk. We walked every day. I live next to a church, and we

would walk over there because

I wanted to keep him away from other people. I was afraid to get too far from

the house. I also taught Karac

to pray, " God help me be calm " . I also would sing songs with him. I bought

him a tire swing and sometimes

that would help. Fortunately, with Karac I could tell when he was losing

control. The first three weeks I had

to sleep in that coat with the hood on and the gloves because he would wake up

in the night and attack me.

Sometimes I would take him riding in my minivan and I felt safe there because he

always sat buckled in the

back and I would play his Sheryl Crow CD. I keep his blanket in the car and

snacks in the back for him .(Usually

a Granny Apple and water).

I also kept a crushed half of Clonidine pill .in my purse at all times which I

would give him in an emergency in a sippy cup. of water;

It would enter the blood stream faster and calm him down in about 20 minutes.

There were times that I would lock myself in the bedroom or bathroom and through

the door

October 24, 2009

Pat,

That is great how you got him to calm down. I think J is having a lot of anxiety from bring off the zpraxa. And I don't think the lithium is helping......In fact I think it is causeing him to get worse.

When we give it to him within 15min. he starts hitting. I was told today that Lithium has an acid in it. J can't take stuff with acid in it.

A few years ago The DAN! Dr. said J was low in an acid thru a blood test he had. He told me to give J this acid supplment. I did and J got real mean! When we had tried Depacote (sp)? he got real mean.......I hear it has an acid in it.

We have cut a good deal of suger out of his diet and I might try the zpraxa back and see if he calms down. I know the zpraxa caused sugar problems but we are not letting him have the suger he was getting before. I know I can't keep living like this. He came into the kitchen tonight and started hitting me and Jake (DH) came in and grabbed him away from me. Lois

Re: Lois this is so long

October 24, 2009

Pat,

That is great how you got him to calm down. I think J is having a lot of anxiety from bring off the zpraxa. And I don't think the lithium is helping......In fact I think it is causeing him to get worse.

When we give it to him within 15min. he starts hitting. I was told today that Lithium has an acid in it. J can't take stuff with acid in it.

A few years ago The DAN! Dr. said J was low in an acid thru a blood test he had. He told me to give J this acid supplment. I did and J got real mean! When we had tried Depacote (sp)? he got real mean.......I hear it has an acid in it.

We have cut a good deal of suger out of his diet and I might try the zpraxa back and see if he calms down. I know the zpraxa caused sugar problems but we are not letting him have the suger he was getting before. I know I can't keep living like this. He came into the kitchen tonight and started hitting me and Jake (DH) came in and grabbed him away from me. Lois

Re: Lois this is so long

October 24, 2009

Awwww that story makes me want to cry. I can relate. I wish Caleb could calm himself down.Sent from my iPhoneGwen HebertOn Oct 22, 2009, at 11:18 PM, pkuenstler@... wrote:

It was really rough when Karac had aggression when he was withdrawn from the Geodon.

I wore a heavy wool coat and boxing glove mittens when I saw it coming on and I would tell

him to get in the tub in the bathroom and I would give him an Epson Salt bath. I would think he

was going to break the glass door or slosh water all over the floor

because he would rage until it calmed him down. When he got out I would tell him to go

upstairs and lay down on a pallet that I made between his bed and the wall. I would play his music

and get him a toasted pop tart or a hot dog to eat. Usually we would go through this at least twice

in a day. Sometimes I could just tell him to go upstairs and lay down on the pallet, and I wouldn't

go up until he had calmed down; then I would go up and turn on the music and take him something

warm to eat like a garlic bun (which he loved; I made it with half a hot dog bun spread with garlic butter

and toasted in the toaster oven).

I wore that hot coat practically the entire hot summer.even when I

took him for a walk. We walked every day. I live next to a church, and we would walk over there because

I wanted to keep him away from other people. I was afraid to get too far from the house. I also taught Karac

to pray, "God help me be calm". I also would sing songs with him. I bought him a tire swing and sometimes

that would help. Fortunately, with Karac I could tell when he was losing control. The first three weeks I had

to sleep in that coat with the hood on and the gloves because he would wake up in the night and attack me.

Sometimes I would take him riding in my minivan and I felt safe there because he always sat buckled in the

back and I would play his Sheryl Crow CD. I keep his blanket in the car and snacks in the back for him .(Usually

a Granny Apple and water).

I also kept a crushed half of Clonidine pill .in my purse at all times which I would give him in an emergency in a sippy cup. of water;

It would enter the blood stream faster and calm him down in about 20 minutes.

There were times that I would lock myself in the bedroom or bathroom and through the door tell Karac to go upstairs until he calmed down, and he would go upstairs and rage and I wouldn't come out until he got quiet and then I would ask him if it was safe for me to come upstairs and

he would tell me yes or no

During that that summer I prayed constantly, "God help me". Now I realize that he di

Gradually I was wearing the coat less and less. Karac got to where when he felt himself losing control he would ask for a bath, or to

go to the swing, or go for a walk or for a pop tart or hot dog. I had to tell any therapist who worked with him when he asked for any

of these things to respect it or they would be attacked. Ermil got attacked very badly just one time before she learned.

It has been two years since I have used any Clonidine. I have probably had that old wool coat on only a couple of times in the last

two years and then only briefly because Karac seems to be conditioned to calming down when he sees me in it.

I wish that Karac didn't have these times when he has to calm himself down, but at least he knows how. I'll hear him bouncing himself against the back seat of the car and praying, "God help me calm down", and I feel sorry for him, but in a matter of minutes he calms down.

The majority of the time now he is happy at least with me and at school.

Re: Drs......JJ

Pat,

I think a long time ago J took Seraquil for a bit. Dr. Bedoy wants me to try a low dose of albilify with the litium. You know, J has had a cough all week. I don't know if that has anything to do with all this agression or not.

I am about ready to have a panic attack over it all. About 4 years ago I started getting panic attacks and had to go to the Hosp. for 3 days...........I think it was me going thru menopause and my Hormones (Or lack thereof) that was causing it. I sure don't want that back again.

What did Karac do when he had agression? Lois

Re: Drs......JJ

October 24, 2009