Seroquel

[Guest guest]

It was a dream come true for my doctor's son as well. Because of this, he was

sure it would help my son. It was the worst drug ever, and Clonidine ran a

close second. So far, we have never discovered anything that has been a dream

come true. Celexa has been quite helpful for the compulsiveness and anxiety.

a

--- " Best Jr " <bettwice33@...> wrote:

In the course of not sleeping for 5 years, we tried clonidine once

which turned our son into a screaming, biting, kicking lunatic.

Since we discovered seroquel a year ago, Sam has slept without

episode every night. It has been a dream come true for us.

[Guest guest]

a,

What was the problem with Seroquel? What symptoms were you looking to treat?

JR

[Guest guest]

Behavior. He has always been driven and impulsive. He was having great

difficulty in school and I was being called 24/7. At the time, we were seeing a

doctor who happened to have a son with Asperger's, which is my son's dx. He had

seen miracles when he placed his son on Seroquel. He was sure my son would do

equally well on it. Well, he didn't. After two weeks I stopped the med,

because he basically started acting like someone with a psychotic disorder. He

became very Dr. Jeckyl/Mr. Hyde. It was awful. The other meds we tried were to

help with the impulsiveness, lack of attention span, and hyperactivity. Nothing

has helped. Most have just brought out other negative things. At the time he

was on Seroquel, I very much feel (in hindsight) that the teacher/class was

causing more of the behavior than anything. This winter I helped out with

fullfillment day. The kids get to do various activities in different classes,

with different kids. Well, the aide that had been in my son's class when he was

on Seroquel was in a room with us, and one of her current students. After

overhearing the way she treated this girl and spoke to her, I knew they weren't

nice to my son. I've sworn off the med route and will never put him through

that crap again. He is on his second day without Strattera, and doing much

better.

a

--- " & Jack Rawlings " <jamaraw@...> wrote:

a,

What was the problem with Seroquel? What symptoms were you looking to treat?

JR

=======================================================

[Guest guest]

We had the same experience with clonidine and seroquel with our son. It's

been a godsend. What is your child's weight and dosage, if you don't mind my

asking?

[Guest guest]

I did'nt comment the last time someone asked about Seroquel, but I will this time I guess. Please remember each child is different. Our experience with it was not good. Whitney, age 9, became more aggressive, very controlling, could not be pleased, would not listen, had major tantrums. She was so aweful I refused to leave the house if she had to come with me.Let me also say that the lowest dose of Seroquel is too much for young kids, and if you decide to use it, cut it at least in 4s and start low. Even 1/4 was too much for Whit.

3 of my support groups have discussed Seroquel here lately, and most people had bad expierences with it. You did'nt say why you were considering meds, but it seems to me that this would be an aweful strong medication for a 1st choice. You might want to discuss other choices with your Dr., or look into natural supplements. Also know that if you decide to try it & it has a bad affect, that it can take up to 4 weeks for the medication to totally leave her system, and the bad effects stay until its all out.

Just my bad experience,

Robin

[Guest guest]

We tried Seroquel with my daughter a few years back when she started

developing TD from Risperdol. She was only on 25 mg of Seroquel and it made

my daughter psychotic. She started attacking everyone in school and at home

and it just made her miserable. We got her right off of it. Why is your

daughter being put on it?

seroquel

Hi we started Machaela on seroquel recently..she is only on 100mg at

night and 50 in am..she has been having accidents with urination the

last 2 or 3 days and excessive small amounts of bm..has anyone else

had this happen to there children..she also seems very moody and upset

and headaches..the doctors wants to see if we can gradually increase

it but I dont think she can do it anylonger..she has been on lower

doses for 2 weeks..any suggestion??

[Guest guest]

Basically, medications can be very helpful if you get an appropriate

one for person. However, if she isn't doing well on a low dose, a

higher one isn't necessarily better. Ask the doctor about trying a

different med if this one isn't working. And please watch out if the

doctor prescribes another med to control the symptoms caused by the

first one. This can be the same for supplements.

My son did horrble on one medication, while another revolutionized

his life. And with the 'horrible' one, the doctor wanted to increase

the dose more. I tossed the med and the doctor out, and increased my

effort to find a new specialist. We did find a new specialist, a

traditional neurologist at that, who prescribed a very different med

which was great...and some nutrients and lifestyle changes. It was

this doctor who pointed us on the route to nutritional approaches

which eventually led to enzymes.

If the wetting and irritability are not common and well-known

adjustments that you read about all the time related to the

medication, personally, I take that as not tolerating it.

.

[Guest guest]

Hi we started her on seroquel to see if we could get to to stop

from screaming and becoming upset when a demand is placed on her..we

have tried luvox, geodon and a few others but it all comes back to

this..she is now up and its 0230 in the am, she had diarrhea from

4pm untill she fell asleep at 1000pm. I am lowering her dose over

the next few days and will take her off the seroquel..she is also

deaf and nonverbal, low functioning autism and also has had a few

seizures..its really hit or miss with her...Did the Risperdol help

your daughter?? what is she on now? thanks jule

> We tried Seroquel with my daughter a few years back when she

started

> developing TD from Risperdol. She was only on 25 mg of Seroquel

and it made

> my daughter psychotic. She started attacking everyone in school

and at home

> and it just made her miserable. We got her right off of it. Why is

your

> daughter being put on it?

>

>

> seroquel

>

> Hi we started Machaela on seroquel recently..she is only on 100mg

at

> night and 50 in am..she has been having accidents with urination

the

> last 2 or 3 days and excessive small amounts of bm..has anyone

else

> had this happen to there children..she also seems very moody and

upset

> and headaches..the doctors wants to see if we can gradually

increase

> it but I dont think she can do it anylonger..she has been on lower

> doses for 2 weeks..any suggestion??

>

>

>

>

>

>

>

[Guest guest]

Hi ,

Yes I think this is happening. I am looking for a new doctor in

the area but when I ask around everyone says to go to the doctor I

am already using..We have had her on luvox, geodon and a few others

but it always seems once the dosage is increased symptons get worse

and she never is able to tolerate the medication.. she had had

diarrhea for 6 hours last night and is now awake at 0230.. very

hungry..I am letting her eat dry bread..

We do have her on Houston enzymes, but Im not sure anymore how

much they are helping...We also have her on brainchild vit and

minerals but not seeing much improvement with those also..I think we

will take her off the brainchild after this month also..Very

expensive..I know they work well for some but not sure in our case

they are helping..

I feel we are hitting a brickwall, we have tried to much and not

much is helping..Machaela is also deaf, nonverbal, low functioning

autism and had a few seizures...I think I may suggest putting her on

tegretol to see if this will help with the seizures and help relieve

some anxiety...Do you have anyother suggestions???

Thanks for your message.

> Basically, medications can be very helpful if you get an

appropriate

> one for person. However, if she isn't doing well on a low dose, a

> higher one isn't necessarily better. Ask the doctor about trying a

> different med if this one isn't working. And please watch out if

the

> doctor prescribes another med to control the symptoms caused by

the

> first one. This can be the same for supplements.

>

> My son did horrble on one medication, while another revolutionized

> his life. And with the 'horrible' one, the doctor wanted to

increase

> the dose more. I tossed the med and the doctor out, and increased

my

> effort to find a new specialist. We did find a new specialist, a

> traditional neurologist at that, who prescribed a very different

med

> which was great...and some nutrients and lifestyle changes. It was

> this doctor who pointed us on the route to nutritional approaches

> which eventually led to enzymes.

>

> If the wetting and irritability are not common and well-known

> adjustments that you read about all the time related to the

> medication, personally, I take that as not tolerating it.

>

> .

[Guest guest]

I was on Seroquel and went off of it b/c it gave me TERRIBLE nightmares and

stomach aches.

Sue Chapman <chapmn47@...> wrote:

My P-doc didn't like the fact that I was given Xanax by my Medical Doctor.

So, she prescribed Seroquel 25 mg for me.

I'd be interested in hearing about anyones' experiences with it, both bad

and good.

Thanks,

Sue C

[Guest guest]

I take xanax with the lex and it works out to be a great combo for me...the only

thing is, it is HIGHLY addictive. if i go out and realize that i forgot my pill

bottle, i actually get nervous and panic and get the " shakes " ...

Moser <ashmo27510@...> wrote:I was on Seroquel and went off of it

b/c it gave me TERRIBLE nightmares and stomach aches.

Sue Chapman <chapmn47@...> wrote:

My P-doc didn't like the fact that I was given Xanax by my Medical Doctor.

So, she prescribed Seroquel 25 mg for me.

I'd be interested in hearing about anyones' experiences with it, both bad

and good.

Thanks,

Sue C

[Guest guest]

I take the generic of Xanax . What mg. did you start with and did you

suffer any side effects? Larissa

[Guest guest]

The Doctors I see now don't ask if another Doctor is giving me

something.

[Guest guest]

Evalyn,

My daughter is only 9 1/2, but was on 200mg of seroquel when she was 7. It

actually petered out, and at the time she was too young to raise up the dose

again safely. I just started her back on it. She is on 50mg with 75 mg zoloft,

but only weighs 64lbs. My daughter also has bipolar disorder, and that was the

initial reason for the antipsychotic.

She did fine when we tapered her off. I don't think your son will have any

problems.If he happens to encounter problems he could always restart the

seroquel or perhaps add another anti-depressant.

hugs

Judy in CT

[Guest guest]

Hi Evalyn. I am the mom of a dd who has " pure obsessional " ocd and

is 15 going on 30! She takes medicine, not seroquel though. She is

on buspar and luvox. Right now she is at the point where the

medicine isn't working as well, but since she is willing to do

imaginal exposures, her p-doc hasn't suggested changing meds.

Why does the specialisist want him to cut back on the seroquel? Are

there long term effects she is concerned with?

My dd's therapist, who also has ocd, feels very strongly about

staying on top of ocd with ERP and CBT. Facing the fears, even

though they are " intolerable " helps so much in the long run in

managing this disease. My dd told me it is very hard, but she is

glad her therapist stood by her as she struggled and though it is

very difficult to force yourself to think about killing yourself or

someone you love, the thoughts do become boring and go away quicker.

We use alot of humour too. I tell her how proud I am of her that she

has the courage to do it and I see how far she has come and it

amazes me! She also attended the ocd conference last summer and

talking to other teens with ocd helped her too.

I understand your son not wanting to face those thoughts and I know

you can't make him. Or even convince him. It is so hard as the mom,

watching our children suffer. Has your son gone to any support

groups or chatted online to other people with ocd? That seems to

really help my daughter too.

I worry alot about the future and one thing I know, it does not

change anything! So now I try to just get through each day, pray

alot for strength, and celebrate even the smallest of

accomplishments!

Sandy

>

> I'm the Mom of a recent college grad with " pure obsessional " OCD,

> which is, fortunately, managed with meds. He has seen a CBT

> specialist who apparently agrees with my son's decision not to do

ERP

> unless the medication stops working, as the " intolerable " thoughts

> are quite tolerable, with the meds.

>

> The psychiatric nurse specialist who has followed him for the past

4

> or 5 years, here in Massachusetts, is suggesting that he find an

OCD

> clinic or practitioner in NYC, where he is currently living, and

to

> try cutting back on the Seroquel he takes (200 mg., along w/200

mg.

> Zoloft). While she and I are encouraging him to find a

professional

> first, he feels no need to do so,preferring to deal with it if he

> feels the need. He is doing very well on the meds, and feels that,

> should cutting back on the Seroquel bring back what he has

described

> as " intolerable thoughts, " he will just go back on the Seroquel

and

> then look for professional help. I worry that, should he need to

get

> back up on the Seroquel, it might not work as well as he expects

it

> to.

>

> I am wondering what experiences any of your children might have had

> in cutting back on Seroquel. How did they do it? Did the thoughts

> come back? How did they handle that? His psych nurse specialist

> recommends going down 50 mg. at a time.

>

> I would greatly appreciate hearing about your children's

experiences,

> which I will pass on to my son.

>

> Thank you so much.

> Evalyn

>

[Guest guest]

Hi Sandy,

Thanks for your reply. The specialist wants him to cut back because

(1)nobody yet knows the possible long-term effects of Seroquel, and

(2)she would like to see him learn ERP/CBT. I have been encouraging him

to do this for the past couple of years (he was diagnosed the summer

after his sophomore year in college), but he feels strongly about not

wanting to stir up the thoughts. Since going on Seroquel, other than a

72-hour breakthrough, the following March, that he told me about the

following May, and said was intolerable, the OCD seems not to have

interfered with his life. I was able to convince him to see an ERP/CBT

therapist who was listed on the OC Foundation's list, but the first time

he went he told me the therapist suggested that he come back if he felt

that he wanted to do the work; the 2d time (after I prevailed on him to

go back and see the therapist), he said that the therapist agreed with

him that it didn't make sense to do it if he wasn't bothered by the

thoughts. I don't know whether that was my son's interpretation, the

therapist's way of saying " you're obviously not ready..., " or an

agreement by the therapist that my son is handling it OK.

Surprisingly, my son had 2 friends at school who also have OCD, but not

the same type. He talked with them, but I'm not sure to what extent.

Also, he seems uninterested in chatting online. He did come with me to

a support group for those with OCD and their families, but felt that it

wasn't helpful. He is willing to cut back on the Seroquel, but said

that he would just go back up if the thoughts came back. I'm actually

grateful that he's willing to take the meds, and quite responsible about

taking them. He's a great kid - did very well in school, took part in

activities, and has many friends. At his age, it's not appropriate for

me to be too involved in his life, unless the OCD becomes too much for

him to handle alone. He tells me a lot, but will not tell me the

content of the thoughts - having told me, when they first came on - that

they were too horrible to tell anyone. He did, eventually, tell a

therapist and at least one or two other professionals.

You're right - worry isn't helpful; I try to talk about my fears for my

son, then distract myself with all of the wonderful people and things in

my life. It's wonderful that your dd is so willing to do the ERP/CBT

and get and use support! These young people are so courageous. I get

teary, sometimes, thinking of all that my son goes through (he has other

medical issues, as well), and wishing that life could be easier for him.

But mostly, I appreciate and am grateful for how well he is doing; I

love chatting with him and seeing him occasionally; and I grumble about

the little things that mothers of sons like to grumble about!

Keep on praying, and celebrating all those incredible little

accomplishments!

Evalyn

> >

> > I'm the Mom of a recent college grad with " pure obsessional " OCD,

> > which is, fortunately, managed with meds. He has seen a CBT

> > specialist who apparently agrees with my son's decision not to do

> ERP

> > unless the medication stops working, as the " intolerable " thoughts

> > are quite tolerable, with the meds.

> >

> > The psychiatric nurse specialist who has followed him for the past

> 4

> > or 5 years, here in Massachusetts, is suggesting that he find an

> OCD

> > clinic or practitioner in NYC, where he is currently living, and

> to

> > try cutting back on the Seroquel he takes (200 mg., along w/200

> mg.

> > Zoloft). While she and I are encouraging him to find a

> professional

> > first, he feels no need to do so,preferring to deal with it if he

> > feels the need. He is doing very well on the meds, and feels that,

> > should cutting back on the Seroquel bring back what he has

> described

> > as " intolerable thoughts, " he will just go back on the Seroquel

> and

> > then look for professional help. I worry that, should he need to

> get

> > back up on the Seroquel, it might not work as well as he expects

> it

> > to.

> >

> > I am wondering what experiences any of your children might have had

> > in cutting back on Seroquel. How did they do it? Did the thoughts

> > come back? How did they handle that? His psych nurse specialist

> > recommends going down 50 mg. at a time.

> >

> > I would greatly appreciate hearing about your children's

> experiences,

> > which I will pass on to my son.

> >

> > Thank you so much.

> > Evalyn

> >

>

[Guest guest]

Hi Judy,

Thanks for your reply. I'm not sure what you meant when you said, " it

actually petered out. " Did it stop working? I've heard that it can.

My son takes it for relief from the disturbing thoughts, and it seems to

work for that. He, too, feels that he could just start taking it again

if he encounters problems. Like Moms of children of any age, I don't

want to see my son having to take an antipsychotic; but, more

importantly, I'm grateful that there are medications available that can

help him!

Thanks for the hugs.

Evalyn

>

> Evalyn,

> My daughter is only 9 1/2, but was on 200mg of seroquel when she was

7. It actually petered out, and at the time she was too young to raise

up the dose again safely. I just started her back on it. She is on 50mg

with 75 mg zoloft, but only weighs 64lbs. My daughter also has bipolar

disorder, and that was the initial reason for the antipsychotic.

> She did fine when we tapered her off. I don't think your son will have

any problems.If he happens to encounter problems he could always restart

the seroquel or perhaps add another anti-depressant.

> hugs

>

> Judy in CT

>

>

>

[Guest guest]

Evalyn wrote:

" He tells me a lot, but will not tell me the

content of the thoughts - having told me, when they first came on - that

they were too horrible to tell anyone. He did, eventually, tell a

therapist and at least one or two other professionals. "

Evalyn,

It is not uncommon for people who have OCD to not want to share the

thoughts with anyone. My husband also has OCD, and although I have

read a lot on the subject and have asked him about different types of

thoughts that are common for OCDers to have, he will only confirm the

type but not the content most of the time. He tells me he doesn't want

me to ever have to testify against him in court if he were go crazy and

follow through on some of his thoughts. Now, I think he knows this

really wouldn't happen, but he still feels better keeping many of his

thoughts to himself. However, talking has helped him recognize they

are OCD thoughts, and I think he is able to deal with them better

because of it, so ultimately, knowing the specific content hasn't

turned out to be a problem.

I hope things work out well for your son. My husband began having OCD

thoughts when he was only 4 years old, and when we were married at 18,

neither I nor his family ever knew about his OCD. However, I will say

that he had probably self-medicated for a few years (alcohol) to slow

the thoughts, which helped him hide it from his family and me. After

we married, the alcohol use decreased dramatically (as I told him I

would not continue to put up with it), but his anxiety increased. It

has been very difficult at times, and I've always known he was " high

strung " and impossible to deal with at times, but for the most part he

has always functioned very well, in that he went to college, holds a

fulltime job as a quality/systems manager, and is an adjucnt teacher at

a community college. He only began to take medication for OCD in the

past several months, which has helped tremendously, and he has never

had any therapy other than what I have worked with him on here at home

since finding out our youngest son has OCD. This is my husband finally

confessed to his own OCD - he never knew what it was until then. He is

now 42.

Your son sounds like he has a pretty good handle on his and he may do

very well. Anyway, I just thought I would share with you to give you

some hope that if your son is doing well, he may continue to do well -

or at least well enough to function and have a good life. It sounds as

if he knows you love him and are there to support him. If things begin

to slip, he at least already knows what it is and what he needs to do.

Good luck.

[Guest guest]

,

Thank you for sharing your husband's story. It does give me such

hope to hear of other adults with OCD thoughts who are doing well.

You're right: my son is handling it well, and knows what to do/where

to go should he need more help.

Continued good luck to you, your husband, and son!

Evalyn

>

> " He tells me a lot, but will not tell me the

> content of the thoughts - having told me, when they first came on -

that

> they were too horrible to tell anyone. He did, eventually, tell a

> therapist and at least one or two other professionals. "

>

>

> Evalyn,

>

> It is not uncommon for people who have OCD to not want to share the

> thoughts with anyone. My husband also has OCD, and although I have

> read a lot on the subject and have asked him about different types

of

> thoughts that are common for OCDers to have, he will only confirm

the

> type but not the content most of the time. He tells me he doesn't

want

> me to ever have to testify against him in court if he were go crazy

and

> follow through on some of his thoughts. Now, I think he knows this

> really wouldn't happen, but he still feels better keeping many of

his

> thoughts to himself. However, talking has helped him recognize

they

> are OCD thoughts, and I think he is able to deal with them better

> because of it, so ultimately, knowing the specific content hasn't

> turned out to be a problem.

>

> I hope things work out well for your son. My husband began having

OCD

> thoughts when he was only 4 years old, and when we were married at

18,

> neither I nor his family ever knew about his OCD. However, I will

say

> that he had probably self-medicated for a few years (alcohol) to

slow

> the thoughts, which helped him hide it from his family and me.

After

> we married, the alcohol use decreased dramatically (as I told him I

> would not continue to put up with it), but his anxiety increased.

It

> has been very difficult at times, and I've always known he

was " high

> strung " and impossible to deal with at times, but for the most part

he

> has always functioned very well, in that he went to college, holds

a

> fulltime job as a quality/systems manager, and is an adjucnt

teacher at

> a community college. He only began to take medication for OCD in

the

> past several months, which has helped tremendously, and he has

never

> had any therapy other than what I have worked with him on here at

home

> since finding out our youngest son has OCD. This is my husband

finally

> confessed to his own OCD - he never knew what it was until then.

He is

> now 42.

>

> Your son sounds like he has a pretty good handle on his and he may

do

> very well. Anyway, I just thought I would share with you to give

you

> some hope that if your son is doing well, he may continue to do

well -

> or at least well enough to function and have a good life. It

sounds as

> if he knows you love him and are there to support him. If things

begin

> to slip, he at least already knows what it is and what he needs to

do.

> Good luck.

>

>

>

[Guest guest]

In a message dated 5/6/07 7:01:38 PM, kyrik@... writes:

> When the Welbutrin gave me a

> panic attack (which I never have normally) she told me to just take

> Xanax. Needless to say I ditched her quick. But to her credit it

> was a *very* small dose of Seroquel...

>

I get panic attacks early in the morning while asleep! MUCH worse than a

nightmare....heart is racing, sweating, etc.

what causes those?

Is it clonezepam? A lovely way to start the day, hahaha!

Pris

**************************************

See what's free at http://www.aol.com.

[Guest guest]

How could a psych nurse give drugs without the DRs orders? My Mom was in

the psych ward a few times with nerves and depression big time and I know

the that the nurses could not give drugs without orders from a Dr. Of

course there are some DRs that don't oversee their patients and rely too

much on the nurse's report and not from visiting with the patient and their

family.

Laurie

On 5/6/07, <kyrik@...> wrote:

>

> I know Seroquel is very strong, an anti-psychotic for one; my

> schizophrenic brother took it for a while. The reason I took it was

> because when I first got depressed (in retrospect that's when the RA

> started big time) a crazy, totally inappropriate psych nurse gave me

> Welbutrin, Seroquel and Xanax all at once. When the Welbutrin gave me a

> panic attack (which I never have normally) she told me to just take

> Xanax. Needless to say I ditched her quick. But to her credit it

> was a *very* small dose of Seroquel...

>

>

>

>

>

[Guest guest]

I know that the Seroquel is sedating to most and would affect her

sleep. When my DD takes her anti-psychotic, she's out cold.

Dina

[Guest guest]

Seroquel is classified as an anti-psychotic. It's used in the threatment of

schizophrenia and bipolar disorder.

Take this link with a grain of salt as it comes from the maker of Seroquel:

http://www.seroquel.com/cbip/on/seroquel/understanding-seroquel.aspx?sid=18763

For more info google Seroquel. Of if you're having difficulties in finding the

precise info you're looking for please let me know and I'll see what I can find.

I've been doing all kinds of research on the internet for years and not to toot

my own horn but I've gotten pretty good at it. ;-)

Barbara

: Seroquel

Just wonder if anyone ever take Seroquel before? Any info? ._,___

[Guest guest]

Thanks.. She said it help you to calm down..

: Seroquel

Just wonder if anyone ever take Seroquel before? Any info? ._,___

[Guest guest]

Perhaps she's using it as a mood stablizer? Many of these drugs have uses other

than what's commonly listed.

Barbara

: Seroquel

Just wonder if anyone ever take Seroquel before? Any info? ._,___