Newbie

August 4, 2003

Welcome to the list Tim!

I'm Melisa, I live in Lancaster, I'm a Post-Op of 18 months this month! I

feel fantastic and everyone says I look great! Ask all the questions you

want, we're all open books and very supportive of our little family!

Melisa in CA

I've lost 147 pounds with the Gastric Reduction with Duodenal Switch weight

loss surgery, Performed by Dr. Ara Keshishian, 3/26/02 in Delano California

www.gr-ds.com

Check out:

ldsfamilyrecipes/

The recipe exchange list, following the Word of Wisdom!

ds4lds/

The Duodenal Switch Support list for members of the LDS Faith!

family-recipes/

Another recipe exchange list! Anything goes here!

latterdaymoms/

The list for Moms of the LDS faith to meet & make friends!

August 4, 2003

> > Hi Tim,

> > Does your email name mean that you fly helicoptors?? cause I

love

> to fly in

> > them..

> > Janice

> > 6-25-03

> > - 36 lbs.... so far

August 5, 2003

> Nope, it means I'm a private investigator. Spent many years

sitting

> in catwalks all alone doing surveillances.

++++++++++++++++++++=

Interesting...tell me more! What type of PI work? What kind of

cases did you do surveillances on. Also, I'm an innocent, what

exactly is a Catwalk?

Welcome to our little corner of the world...I think your going to

like it here.

Jo

August 5, 2003

> Interesting...tell me more! What type of PI work? What kind of

> cases did you do surveillances on. Also, I'm an innocent, what

> exactly is a Catwalk?

>

> Jo

Sounds industrial to me, Jo! Um, unless he was at my house...you

know, with all the cats.

Marta

August 5, 2003

Catwalk -- the very high scaffolding in the upper recesses of the

theatre, or the high, treacherous small walks around buildings or other

structures.

I know what you two were thinking, you perves. But, no, it is not the

sidewalk in front of a cathouse.

Jim

Who wishes Jo and Marta would just grow up and stop being 14 year old

boys. LOLOLOLOLOL

Re: newbie

> Interesting...tell me more! What type of PI work? What kind of

> cases did you do surveillances on. Also, I'm an innocent, what

> exactly is a Catwalk?

>

> Jo

Sounds industrial to me, Jo! Um, unless he was at my house...you

know, with all the cats.

Marta

August 5, 2003

Hi Tim,

Welcome to this helpful, crazy and fun group. I am 3 months out and have

had a wonderfully unremarkable recover. Dr. K is the best. I am going to

my 3 month apt in Vegas and I can't wait to see him. Ask us anything,

everybody is helpful and very open. Since I live in Wisconsin, I can't

attend any support group meeting and these guys are my support group.

Good luck to you,

in Wisconsin

GR-DS on May 14th

Down 51 lbs, 29.5 inches (and finally in the terrific 2's)

newbie

> Hi, my name is Tim. I'm pre-op but not for long. Have been approved

> and will have surgery end of this month. I live in Sacramento, Ca.

> I'm 5'10 " and weigh 307 pounds, about 43 BMI, I'm 47 yrs old,

> divorced (sigh) with three beautiful sons. I've been considering DS

> for about a year now.

> I have a lot to get prepared for so I will be searching previous

> posts to see what I can learn.

>

> Thanks, nice to meet everyone.

>

> TD

>

August 5, 2003

Hi ya Tim! Welcome and congrats!

Cinda

> Hi, my name is Tim. I'm pre-op but not for long. Have been

approved

> and will have surgery end of this month.

September 13, 2003

There are scattered journal articles about puberty being a time of immune system

restart. Something to do with the

hormones that are released. But we have also heard of children who lose

function and develop a deficiency at puberty.

So basically nothing could happen or it could make or break a PID child (whom we

affectionately call our PID

" Pumpkins " ).

Ursula Holleman

mom to (10 yrs old) and Macey (8 yr. old with CVID, Diabetes Insipidus,

colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

/

September 26, 2003

Hi Trina !!!

I'm Helen 52 yrs., From Ohio, U S A... We have folks on here from all over the world ) We even have a couple from Australia ) It is one great group of folks here... We have all kinds of illnesses on here... You sound like a young Mother with her hands very full... How do you cope with so much to handle... Maybe you can give us some info also...

Come talk to us whenever you can, someone will show up eventually...

I sent on a couple of links for you, maybe you will get something from them to help you ... will look for others tomorrow night... Its almost three a.m. here and I will be getting back up around 7 / 8 am, so I'm heading to bed )

Hugs

Helen

Illnesses I Have:

1~Mitral Valve Prolapse 2~Hypothyroidism 3~Hyatal Hernia 4~Acid Reflux 5~Fibromyalgia 6~Chronic Fatigue Syndrome 7~Systematic Lupus Erthematosis 8~Migrains 9~Poly Neuropathy10~Osteoporosis11~Osteoarthritis12~Hypertention13~Degenerative Arthritis14~Restless Leg Syndrome15~Arrhythmia, several different kinds-PAC's-PBC's- Ventricular Tachycardia- can't remember the other one- I have an electrical problem )16~Emphysema17~Myofacial Pain Syndrome18~T.M.J.19~Hypoglycemia20~Irritable Bowel Syndrome21~Polymyalgia

WHAT I DID HAVE WRONG

RHEUMATIC FEVER 1968PERICARDITIS 1968FULL HYSTERECTOMY 1992GALL BLADDER OUT diseased JAN 1998ANEMIC BAD 1971 & 1992GOITER - RADIATION 1977BLIND IN LEFT EYE 1954

Hi all,

I stumbled upon this group yesterday when I was looking for information on Aspergers Syndrome. My eldest son (aged 5) had recently had a preliminary diagnosis of having this and a personality disorder *sigh* Life sure knows how to kick us in the guts. this groups apealed to me as within our family I am sure we could write a medical textbook or two. Besides my son, I have two other children. My daughter (4 years in October) has congenital hip displaysia. She was cleared of it after 18 months treatment, it is now starting to show its head again and she is looking at surgery as soon as we can find an orthopedic surgeon we are happy with. Our baby boy (2.3) has major allergies, he reacts to smells and has an extremely restricted diet. He is also one of only 5 children diagnosed in Tasmania (this statistic was 12 months ago so could be more that we haven't been made aware of) with multiple food protein intollerance syndrome. Meaning basically what he isn't allergic to he is intollerant to.. makes feeding the tribe "interesting" He is also suspected of missing a growth hormone but at the moment he is pretty young and the docs are more concerned with his allergies and diet, his height can hold off just a bit. He is turning 3 in February and still wearing size 0 clothing.. almost size 1s but not quite.... My husband has a history of allergies himself and epilepsy (been cleared 5 years yaaayy!!!) and myself, I have endometriosis and adenomyosis. What a mix hey!!!

I just realised I haven't intro'd myself, I am Katrina (treena to my friends). I am married to , recently celebrated our 6th wedding anniversary.. doesn't time fly!!! We have 3 children, Aleksandir 5yrs, Kahli almost 4 and 2.5yrs. we all live in Tasmania, Aust (not sure where this list is based so better mention that heheh) We basically try to stick to ourselve, with problems with airborne allergies it makes visiting and roaming a bit difficult. Anyways this is us, I look forward to "meeting" other people in this group and hopefully finding a home where I can glean a bit of information and a little support

Take care all, I look forward to finding more about you all soon..

hugs treena

Helenangelbear1129@...

September 27, 2003

Hello Treena ) and Welcome to the group!!!!!!! My you have your hands full!!! Post as much and as often as you want/need! No post too long or too short here!!!My name is Jessi, i'm 19 years old and live in North Carolina USA with Nana (mom/grandma). I have a little mini farm with 26 monsters...errr sweet animals lol most of them are rescues and have special needs. There are some pictures of the monsters in the photo section for our group i think it's like "Jessi's animals" or maybe it says monsters lol. I haven't updated it in a long time i'll try to do that next week!! You are more then welcome to add some pics in the "members" album, and if you have any trouble let me know or email me the pics at shanes_maaa@... and i'll get them up for you. That goes for everyone guys!! There aren't very many members pics in that members photo album!!! Lets change that k!!!! Take care!!!!JessiGERD, POTS, NCS, Gastro Paresis (sp?), Severe Asthma, Migraines, a mean Pancreas every now and then, i'm tube fed for half of my daily Cals., and a few other little things thrown in for fun as Nana likes to say lol. I hope you enjoy this group!!!

October 22, 2003

Welcome!

Every state has a different home care delivery system. First, find out what

kind of long-term care your goddaughter's insurance covers. Most cover nothing

beyond short-term hospice or convelescence care, but you never know. If they do

cover long-term home care, find out if they require a CNA or a LVN, etc. Most

would only hire through a registry.

Otherwise there are ways to access Medicaid-funded homecare. The most common

way to do this without the parents quitting thier jobs to become finanially

eligible, is to use a Beckett Model Waiver (called CDCSP [formerly TEFRA]

in WV). Then you jump through whatever hoops to become a service provider.

Here are some links to explore:

http://www.familyreunion.org/health/arango/fccare.html

http://www.wvddc.org/children_resources.html

http://www.thearc.org/familyguide/WestVirginia.pdf

My niece, age 11, is now financially independent of her parents here in CA under

the Model Waiver and so has Medi-Cal (Medicaid) and home care. A nurse comes in

and also Grandma gets paid as her attendant through In-Home Supportive Services

(a CA program).

Good luck!

Alana

October 23, 2003

In NY it's a Medicaid Waiver. I have been independent of my parents

under this since age 14. It's really the only way to receive the

necessary services unless the parents have a really really nice

insurance plan - even with that, it's difficult to receive long-term

care.

~Kendra

> Otherwise there are ways to access Medicaid-funded homecare. The

most common way to do this without the parents quitting thier jobs to

become finanially eligible, is to use a Beckett Model Waiver

(called CDCSP [formerly TEFRA] in WV). Then you jump through

whatever hoops to become a service provider.

>

> Here are some links to explore:

>

> http://www.familyreunion.org/health/arango/fccare.html

> http://www.wvddc.org/children_resources.html

> http://www.thearc.org/familyguide/WestVirginia.pdf

>

> My niece, age 11, is now financially independent of her parents

here in CA under the Model Waiver and so has Medi-Cal (Medicaid) and

home care. A nurse comes in and also Grandma gets paid as her

attendant through In-Home Supportive Services (a CA program).

>

> Good luck!

> Alana

October 23, 2003

You need the proper respiratory equipment right away, as a start. At

her condition level I would think as a minimum she should have a

pulse-oximeter, cough machine, and something like a BiPAP (to expand her

chest cavity to prevent that deformity caused by a lack of lung

expansion). You should pursue that stuff immediately!!! Also, have the

PT stretch her hips, knees, etc. to minimize contractures.

Jay

Newbie

HI everyone,

I will admit I'm new to the list and a lurker, or WAS a lurker..but

not anymore. When I wrote to to tell her why I wanted to become

a part of this wonderful list my god-daugther () was in the

process of having tests run to find out if she has SMA. We got the DNA

results on Monday. It was positive. I'm her god-mother and babysitter

2-3 days a week. To tell you a little about her, she's 6 months old. She

moves her hands, arms, legs, feet and head. Her head is normally in a

forward or backward position..but in the past few weeks of working with

her, she will now swing her head to one side to get it upright. She has

no sucking problems nor eating problems. She even just started jar baby

food and LOVES it. She has a con-caved chest (sorry...don't know the

exact medical name) and has not had any colds or have had to be

hospitalized. She blows bubbles, rasberry's, and likes movements (like

her swing)and bats a toys in front of her. She can sit up right with

assistance and we are getting her to slowly work her neck muscles. She

does not roll over or bring her feet up to play with them or anything.

She is in the process of getting into a program with a PT, OT amd dev

specialist. I want to know how I can continue to take care of her..and

make it more like a profession. Her mom and dad both work (and need to

work to have medical insurance). I work with her each day I'm here and

am really looking forward to finding out what exercises they recommend I

do with her. I was laid off from work one month after she was born so, I

take care of her with her grandmother (on the days I'm not here). My

unemployment is running out and knowing that she will need someone here

to take care of her has me thinking of becoming a CNA. BUt I'm not sure

how i would get paid. I just keep thinking...I don't want her to be

somebody's 9-5 job..I have a vested interest and personal love to help

her. I have been doing non-stop internet research on SMA since her

neurologist suspected it was SMA. I just got a thick packet from the

families of SMA and have continued to read though out the nights. Any

suggestions anyone has would be GREATLY apperciated!!! Sorry to make

this introduction so long!! Have a great day. Kathy Young from WV

February 3, 2004

Maggiebee40...Great of you to join. I have to tell you that last

night at the gym, I noticed this older woman there and she really

inspired me. She was looking GREAT. I commend you for taking the

challenge...good for you. YOU GO GIRL!!!

> Hi, my name is Maggiebee40. I started the BFL program 10 days ago

> and am loving it. I am 63 years older, likely the elder of this

> group. I do not have weight to lose, and exercised extensively

> aerobically, but have found myself looking " flabby. " I need a

> routine and a healthy diet, so BFL works perfect for me. I work

out

> at home with treadmill, stairstepper, workbench and free weights.

>

> I have been surfing many sites and find this one to be one of the

> best. I need the support and will post on a regular basis with

stats

> and support of others. One of my goals is to join a challenge,

> however, I HATE myself in a swimsuit, and believe me that would be

a

> huge risk, having my hubby take a picture of me in a swimsuit.

Ugh!

>

> Thanks for all the good info, and success to everyone here.

> Maggiebee40

February 23, 2004

Welcome to the gang Ann!

I just started my challenge last Monday so I am kinda new here too

altho I lurked around for a couple of weeks first!

Anything you need is right here and whenever you feel like spouting

off you can do that too! LOL(note my earlier post!!!)

Congratulations on starting today!

Good Luck

Dorina

> Hi--

> I'm another newbie--great list BTW. I've been lurking for about a

week and getting my feet wet with BFL, but my official start date is

TODAY! I took the photos (hmmm...didn't realize my butt looked quite

that big!) and my starting BF is 31%, so I'm looking for some big

changes. I'm not going for a perfect body...I just want to lose

about 12 lbs of fat and get down to about 23% BF eventually. I also

recently tested high for cholesterol for the first time in my life,

so I'd like to get that under control too. I made my hubbers get his

BF done too, and he was also shocked. I can't convince him to lift

weights, but I think I've convinced him to watch his diet a bit

more.

> I'm 36 and live in Ohio where I'm a WAHM for our own business

(industrial sales) and I have 3 kids 10, 7, and 6.

>

> Ann

>

February 23, 2004

awesome, welcome :-) Don't worry that you haven't convinced your

husband to start yet, when he sees how well you are doing he won't be

able to help himself after a while :-) And the eating is such a big

part of it, that it's a good thing he's at least started that.

Looking forward to hearing more about your progress!

in NZ