Newbie

[Guest guest]

Yes, I take most of the supplements listed except the ones listed in

#9.However, Dr. Fonorow just published a book and one of the women he

interviews had several heart attacks and swears that this regimen has

kept her alive. Everytime, she got off of the regimen, she had another

heart event. She took a product called Heart Technology that included

most of the major supplements listed.

http://www.practicingmedicinewithoutalicense.com/carolsmith/

phine

> > Hello all!

> > >

> > > I just joined after receiving an invite because of my post on

another

> > > group site for heart related problems.

> > >

> > > I had a heart attack in November and was subsequently put on a

myriad

> > > of drugs - including Lipitor. I was fortunate because I picked

up a

> > > book by Dr. Cohen, " What you must know about Statin drugs & their

> > > natural alternatives " , and learned a few things before my

> problems got

> > > too serious. I was already beginning to have muscle cramps and

> memory

> > > loss so when it advocated taking CoQ10 I started taking the

> supplement

> > > right away. I didn't know how much to take so I began with 100

mg...

> > > only later to increase it to 200 mg. This seemed to take care of

> most

> > > of the problem.

> > >

> > > I recently was told by my Cardiologist that I could discontinue the

> > > plavix I am on and I am now focusing on ridding myself of the

> Lipitor.

> > > I just can't seem to understand why they want to keep me on this

> nasty

> > > drug, even though my cholesterol levels have returned to normal, in

> > > some cases ideal, and I have changed my lifestyle considerably.

> > >

> > > I can't believe that heart disease can't be reversed. I am

currently

> > > taking resveratrol, vitamin D, folic acid, and fish oil, along

> with my

> > > prescription meds (niaspan, Lipitor, aspirin).

> > >

> > > All this being said.. I am afraid to just discontinue the drug by

> > > myself. I hope that perhaps this group can lend me their

experience

> > > and wisdom to help me do so.

> > >

> > > Cheryl

> > >

> >

>

[Guest guest]

Here is the list of ingredients that was in the product that Carol

was taking. Apparently its this combo minimum that can cause

dead heart cells to grow a bypass around clogged arteries :

Vitamin C

L-Ascorbic Acid

3000mg

L-Lysine 2800mg

L-Proline 400mg

Vitamin A 5000iu

Vitamin E 422iu

Vitamin B2 3mg

Arginine 200mg

Vitamin B6 25mg

Folic Acid 400mcg

Stevia Less than 100 mg

> > > Hello all!

> > > >

> > > > I just joined after receiving an invite because of my post on

> another

> > > > group site for heart related problems.

> > > >

> > > > I had a heart attack in November and was subsequently put on a

> myriad

> > > > of drugs - including Lipitor. I was fortunate because I picked

> up a

> > > > book by Dr. Cohen, " What you must know about Statin drugs & their

> > > > natural alternatives " , and learned a few things before my

> > problems got

> > > > too serious. I was already beginning to have muscle cramps and

> > memory

> > > > loss so when it advocated taking CoQ10 I started taking the

> > supplement

> > > > right away. I didn't know how much to take so I began with 100

> mg...

> > > > only later to increase it to 200 mg. This seemed to take care of

> > most

> > > > of the problem.

> > > >

> > > > I recently was told by my Cardiologist that I could

discontinue the

> > > > plavix I am on and I am now focusing on ridding myself of the

> > Lipitor.

> > > > I just can't seem to understand why they want to keep me on this

> > nasty

> > > > drug, even though my cholesterol levels have returned to

normal, in

> > > > some cases ideal, and I have changed my lifestyle considerably.

> > > >

> > > > I can't believe that heart disease can't be reversed. I am

> currently

> > > > taking resveratrol, vitamin D, folic acid, and fish oil, along

> > with my

> > > > prescription meds (niaspan, Lipitor, aspirin).

> > > >

> > > > All this being said.. I am afraid to just discontinue the drug by

> > > > myself. I hope that perhaps this group can lend me their

> experience

> > > > and wisdom to help me do so.

> > > >

> > > > Cheryl

> > > >

> > >

> >

>

[Guest guest]

Hi Bill and SteveI only take 300mg a day do you think I should take more?PamelaSteve <dudescholar4@...> wrote: There are two medical trials that I'm aware of in Parkinson's disease patients. One used 1200 mg/day of CoQ10 and one used 3000 mg/day with few if any side effects. I've gone as high as 1200 mg/day. I use a related product, a variant on CoQ10 that is produced by the body when assimilating CoQ10, a product that raises blood levels 8 time higher than regular CoQ10. I take the

equivalent of 1200 mg/day right now which is 150 mg/day Ubiquinol (reduced from of CoQ10). I'm scheduled to get some blood work done for the first time to see what my blood levels are. The Life Extension Foundation has some recommend blood levels depending on health (cardiovascular disease, etc.) with rational for them. Steve bill morris wrote: > > > Hi Pamela, > I am fixing to start taking CoQ10. But I have a question. What is the > recommended max dosage limit per day?????? I hope you know. I have > found it in stores and dosages run from 50mg-300mg. Thanks Bill > > [TakingLipitorAndHa teIt] Newbie > > Hello all! > > I just joined after receiving an invite because of my post on another > group site

for heart related problems. > > I had a heart attack in November and was subsequently put on a myriad > of drugs - including Lipitor. I was fortunate because I picked up a > book by Dr. Cohen, "What you must know about Statin drugs & their > natural alternatives" , and learned a few things before my problems got > too serious. I was already beginning to have muscle cramps and memory > loss so when it advocated taking CoQ10 I started taking the supplement > right away. I didn't know how much to take so I began with 100 mg... > only later to increase it to 200 mg. This seemed to take care of most > of the problem. > > I recently was told by my Cardiologist that I could discontinue the > plavix I am on and I am now focusing on ridding myself of the Lipitor. > I just can't seem to understand why they want to keep me on this

nasty > drug, even though my cholesterol levels have returned to normal, in > some cases ideal, and I have changed my lifestyle considerably. > > I can't believe that heart disease can't be reversed. I am currently > taking resveratrol, vitamin D, folic acid, and fish oil, along with my > prescription meds (niaspan, Lipitor, aspirin). > > All this being said.. I am afraid to just discontinue the drug by > myself. I hope that perhaps this group can lend me their experience > and wisdom to help me do so. > > Cheryl -- Steve - dudescholar4basicmail (DOT) net Take World's Smallest Political Quiz at http://www.theadvocates.org/quiz.html "If a thousand old beliefs were ruined on our march to truth

we must still march on." --Stopford

[Guest guest]

Hi Bill and SteveI only take 300mg a day do you think I should take more?PamelaSteve <dudescholar4@...> wrote: There are two medical trials that I'm aware of in Parkinson's disease patients. One used 1200 mg/day of CoQ10 and one used 3000 mg/day with few if any side effects. I've gone as high as 1200 mg/day. I use a related product, a variant on CoQ10 that is produced by the body when assimilating CoQ10, a product that raises blood levels 8 time higher than regular CoQ10. I take the

equivalent of 1200 mg/day right now which is 150 mg/day Ubiquinol (reduced from of CoQ10). I'm scheduled to get some blood work done for the first time to see what my blood levels are. The Life Extension Foundation has some recommend blood levels depending on health (cardiovascular disease, etc.) with rational for them. Steve bill morris wrote: > > > Hi Pamela, > I am fixing to start taking CoQ10. But I have a question. What is the > recommended max dosage limit per day?????? I hope you know. I have > found it in stores and dosages run from 50mg-300mg. Thanks Bill > > [TakingLipitorAndHa teIt] Newbie > > Hello all! > > I just joined after receiving an invite because of my post on another > group site

for heart related problems. > > I had a heart attack in November and was subsequently put on a myriad > of drugs - including Lipitor. I was fortunate because I picked up a > book by Dr. Cohen, "What you must know about Statin drugs & their > natural alternatives" , and learned a few things before my problems got > too serious. I was already beginning to have muscle cramps and memory > loss so when it advocated taking CoQ10 I started taking the supplement > right away. I didn't know how much to take so I began with 100 mg... > only later to increase it to 200 mg. This seemed to take care of most > of the problem. > > I recently was told by my Cardiologist that I could discontinue the > plavix I am on and I am now focusing on ridding myself of the Lipitor. > I just can't seem to understand why they want to keep me on this

nasty > drug, even though my cholesterol levels have returned to normal, in > some cases ideal, and I have changed my lifestyle considerably. > > I can't believe that heart disease can't be reversed. I am currently > taking resveratrol, vitamin D, folic acid, and fish oil, along with my > prescription meds (niaspan, Lipitor, aspirin). > > All this being said.. I am afraid to just discontinue the drug by > myself. I hope that perhaps this group can lend me their experience > and wisdom to help me do so. > > Cheryl -- Steve - dudescholar4basicmail (DOT) net Take World's Smallest Political Quiz at http://www.theadvocates.org/quiz.html "If a thousand old beliefs were ruined on our march to truth

we must still march on." --Stopford

[Guest guest]

Unless the CoQ10 is solving problems that you can " feel " or identify,

I'm not sure how you would make a decision to increase or decrease from

300 mg/day. In my case it was counteracting the effects of statins and

also limiting pre-ventricular contractions (PVCs - skipped heart beats).

The life extension foundation has some recommend blood levels of CoQ10

depending on your health condition and I'm going to get some of that

blood work done for the first time. I will have to decide if I'm going

to change anything after I get the results.

If you still have left over side effects from statin drugs, then that

could weigh in on any decision to increase dosage.

Steve

pamela sharp wrote:

>

>

> Hi Bill and Steve

>

> I only take 300mg a day do you think I should take more?

>

> Pamela

>

> */Steve <dudescholar4@...>/* wrote:

>

> There are two medical trials that I'm aware of in Parkinson's disease

> patients. One used 1200 mg/day of CoQ10 and one used 3000 mg/day with

> few if any side effects.

>

> I've gone as high as 1200 mg/day. I use a related product, a variant on

> CoQ10 that is produced by the body when assimilating CoQ10, a product

> that raises blood levels 8 time higher than regular CoQ10. I take the

> equivalent of 1200 mg/day right now which is 150 mg/day Ubiquinol

> (reduced from of CoQ10). I'm scheduled to get some blood work done for

> the first time to see what my blood levels are. The Life Extension

> Foundation has some recommend blood levels depending on health

> (cardiovascular disease, etc.) with rational for them.

>

> Steve

>

> bill morris wrote:

> >

> >

> > Hi Pamela,

> > I am fixing to start taking CoQ10. But I have a question. What is

> the

> > recommended max dosage limit per day?????? I hope you know. I have

> > found it in stores and dosages run from 50mg-300mg. Thanks Bill

> >

> > [TakingLipitorAndHa teIt] Newbie

> >

> > Hello all!

> >

> > I just joined after receiving an invite because of my post on another

> > group site for heart related problems.

> >

> > I had a heart attack in November and was subsequently put on a myriad

> > of drugs - including Lipitor. I was fortunate because I picked up a

> > book by Dr. Cohen, " What you must know about Statin drugs & their

> > natural alternatives " , and learned a few things before my

> problems got

> > too serious. I was already beginning to have muscle cramps and memory

> > loss so when it advocated taking CoQ10 I started taking the

> supplement

> > right away. I didn't know how much to take so I began with 100 mg...

> > only later to increase it to 200 mg. This seemed to take care of most

> > of the problem.

> >

> > I recently was told by my Cardiologist that I could discontinue the

> > plavix I am on and I am now focusing on ridding myself of the

> Lipitor.

> > I just can't seem to understand why they want to keep me on this

> nasty

> > drug, even though my cholesterol levels have returned to normal, in

> > some cases ideal, and I have changed my lifestyle considerably.

> >

> > I can't believe that heart disease can't be reversed. I am currently

> > taking resveratrol, vitamin D, folic acid, and fish oil, along

> with my

> > prescription meds (niaspan, Lipitor, aspirin).

> >

> > All this being said.. I am afraid to just discontinue the drug by

> > myself. I hope that perhaps this group can lend me their experience

> > and wisdom to help me do so.

> >

> > Cheryl

>

> --

>

> Steve - dudescholar4@... <mailto:dudescholar4%40basicmail.net>

--

Steve - dudescholar4@...

Take World's Smallest Political Quiz at

http://www.theadvocates.org/quiz.html

" If a thousand old beliefs were ruined on our march

to truth we must still march on. " --Stopford

[Guest guest]

Unless the CoQ10 is solving problems that you can " feel " or identify,

I'm not sure how you would make a decision to increase or decrease from

300 mg/day. In my case it was counteracting the effects of statins and

also limiting pre-ventricular contractions (PVCs - skipped heart beats).

The life extension foundation has some recommend blood levels of CoQ10

depending on your health condition and I'm going to get some of that

blood work done for the first time. I will have to decide if I'm going

to change anything after I get the results.

If you still have left over side effects from statin drugs, then that

could weigh in on any decision to increase dosage.

Steve

pamela sharp wrote:

>

>

> Hi Bill and Steve

>

> I only take 300mg a day do you think I should take more?

>

> Pamela

>

> */Steve <dudescholar4@...>/* wrote:

>

> There are two medical trials that I'm aware of in Parkinson's disease

> patients. One used 1200 mg/day of CoQ10 and one used 3000 mg/day with

> few if any side effects.

>

> I've gone as high as 1200 mg/day. I use a related product, a variant on

> CoQ10 that is produced by the body when assimilating CoQ10, a product

> that raises blood levels 8 time higher than regular CoQ10. I take the

> equivalent of 1200 mg/day right now which is 150 mg/day Ubiquinol

> (reduced from of CoQ10). I'm scheduled to get some blood work done for

> the first time to see what my blood levels are. The Life Extension

> Foundation has some recommend blood levels depending on health

> (cardiovascular disease, etc.) with rational for them.

>

> Steve

>

> bill morris wrote:

> >

> >

> > Hi Pamela,

> > I am fixing to start taking CoQ10. But I have a question. What is

> the

> > recommended max dosage limit per day?????? I hope you know. I have

> > found it in stores and dosages run from 50mg-300mg. Thanks Bill

> >

> > [TakingLipitorAndHa teIt] Newbie

> >

> > Hello all!

> >

> > I just joined after receiving an invite because of my post on another

> > group site for heart related problems.

> >

> > I had a heart attack in November and was subsequently put on a myriad

> > of drugs - including Lipitor. I was fortunate because I picked up a

> > book by Dr. Cohen, " What you must know about Statin drugs & their

> > natural alternatives " , and learned a few things before my

> problems got

> > too serious. I was already beginning to have muscle cramps and memory

> > loss so when it advocated taking CoQ10 I started taking the

> supplement

> > right away. I didn't know how much to take so I began with 100 mg...

> > only later to increase it to 200 mg. This seemed to take care of most

> > of the problem.

> >

> > I recently was told by my Cardiologist that I could discontinue the

> > plavix I am on and I am now focusing on ridding myself of the

> Lipitor.

> > I just can't seem to understand why they want to keep me on this

> nasty

> > drug, even though my cholesterol levels have returned to normal, in

> > some cases ideal, and I have changed my lifestyle considerably.

> >

> > I can't believe that heart disease can't be reversed. I am currently

> > taking resveratrol, vitamin D, folic acid, and fish oil, along

> with my

> > prescription meds (niaspan, Lipitor, aspirin).

> >

> > All this being said.. I am afraid to just discontinue the drug by

> > myself. I hope that perhaps this group can lend me their experience

> > and wisdom to help me do so.

> >

> > Cheryl

>

> --

>

> Steve - dudescholar4@... <mailto:dudescholar4%40basicmail.net>

--

Steve - dudescholar4@...

Take World's Smallest Political Quiz at

http://www.theadvocates.org/quiz.html

" If a thousand old beliefs were ruined on our march

to truth we must still march on. " --Stopford

[Guest guest]

Hiya,

Thanks, I had a look on the net and assumed they had to be bought. I'm a tad

confused about the growing process :-).

I'm near Swindon UK and would happily pay P & P.

Thank you,

Vera

_____

From: kombucha tea

[mailto:kombucha tea ] On Behalf Of Heinz

Sent: Saturday, July 12, 2008 9:01 PM

kombucha tea

Subject: Re: newbie

Not sure if anyone answered you yet, but , here is a good place for a scoby.

The members of this group live all over the US, UK and other countries as

well. Just let us know where in the UK you live and I am sure someone can

provide a scoby for you - all you do is pay shipping cost.

newbie

Hiya,

I'm a kombucha newbie in the Uk just thought I'd say hi.

If anyone knows a good source for a scoby I'd love to hear about it.

Tia

Vera

[Guest guest]

Not sure if anyone answered you yet, but , here is a good place for a scoby. The

members of this group live all over the US, UK and other countries as well. Just

let us know where in the UK you live and I am sure someone can provide a scoby

for you - all you do is pay shipping cost.

newbie

Hiya,

I'm a kombucha newbie in the Uk just thought I'd say hi.

If anyone knows a good source for a scoby I'd love to hear about it.

Tia

Vera

[Guest guest]

Hi Vera and anyone in the UK

 

I'm new to Kombucha as well, but I'm happy to send scoby if anyone needs one.

 

Bob  :-)

From: Vera Lothian <vera@...>

Subject: RE: newbie

kombucha tea

Date: Saturday, 12 July, 2008, 11:16 AM

Hiya,

Thanks, I had a look on the net and assumed they had to be bought. I'm a tad

confused about the growing process :-).

I'm near Swindon UK and would happily pay P & P.

Thank you,

Vera

_____

From: kombucha tea

[mailto:kombucha tea] On Behalf Of Heinz

Sent: Saturday, July 12, 2008 9:01 PM

kombucha tea

Subject: Re: newbie

Not sure if anyone answered you yet, but , here is a good place for a scoby.

The members of this group live all over the US, UK and other countries as

well. Just let us know where in the UK you live and I am sure someone can

provide a scoby for you - all you do is pay shipping cost.

newbie

Hiya,

I'm a kombucha newbie in the Uk just thought I'd say hi.

If anyone knows a good source for a scoby I'd love to hear about it.

Tia

Vera

[Guest guest]

Welcome, Dovie.

My kiddo is 6 years old and had " hypogam " (with low IgA, IgG, IgM) for years

when the docs were checking to see if she would grow out of it. Over a period

of time and monitoring, the docs classified her as " CVID " . The label of CVID

was not the problem for us. The problem was going without a firm diagnosis and

not getting proper treatment for some time. It will take time to heal and this

group is terrific for answering quality of life related questions (e.g.,

minimizing adverse reactions such as headaches post IVIG, what it's like to do

subcutaneous IgG therapy at home, coping with school, etc.).

I'd take a look at the Immune Deficiency Foundation's website and especially the

Patient and Family Handbook which is on-line. That's a good starting place.

Where are you located? What hospital?

Best wishes,

mom to 6 year old, CVID

newbie

hi all, i'm dovie and my 6 y/o daughter has hypogammaglobuliemi a with

poor pneumovax responce, afew other conditions, she finished her 3rd

ivig, i'm so scared, i need help on where to start, is it the same as

cvid? i'm so lost with the info on the internet, thanks

[Guest guest]

Hi Dovie, it's good to hear from you. My son Mark, 7, has CVID. He

was 3 months old when they started him on IVIG, and his diagnosis was

hypogam until he was about 2 (when they classified him as CVID). He

didn't make vaccine responses and he's low on IGG, IGA & IGM.

It is an extremely scary time, and I can remember all the

fears/worries/stresses I faced. It was overwhelming. I can say that

in the past 7 years, precious little of the things I feared actually

happened. Once started on IVIG, the infections decrease and for Mark,

he has a relatively normal life except for his treatments. The main

thing is being very aware of infections, taking fast action when an

infection begins, and great handwashing skills!

IDF is an excellent resource for both you & your daughter. They have

resources that help explain PID's to you, and books to help your

daughter understand what is going on and that she is not alone. They

also have an excellent resource for school officials.

For infusions, my main recommendation is drink, drink, drink. Pushing

fluids helps with the stick, and can help reduce the headache. We use

emla cream, and we also have a " gift bag " where we put inexpensive

wrapped gifts that he can pick & open one when the cream goes on.

Something positive on an unpleasant experience.

If you have questions, this is a good place to ask. Best wishes to you

& your daughter,

mom to Mark 7 CVID

>

> hi all, i'm dovie and my 6 y/o daughter has hypogammaglobuliemia with

> poor pneumovax responce, afew other conditions, she finished her 3rd

> ivig, i'm so scared, i need help on where to start, is it the same as

> cvid? i'm so lost with the info on the internet, thanks

>

[Guest guest]

Hi Dovie,

My kids have just recently been diagnosed too. Phoenix, 11 has

hypogam. with 8 out 14 of the pneumovax titers, so that wasn't so bad

... he has low IGA and IGG levels, but his subclass levels are all

good. My 6 yr old, Jayden, is the one whose a little more severe. He

has low IGA, IGG, and IGM, he has low subclass 1, 2 and 3 levels (and

4 is borderline) he has low IGG serum levels, he has a low t-cell

level, he only has 2 of the pneumovax titer responses that he is

protected against, and they are just barely. I mean like 3.1 and 3.2

and the Dr said 3 is protected. So yeah, his immune system is pretty

weak. Not as bad as some of the kiddos on here, but it has gotten

progressively worse since January. She hasn't yet changed his

diagnosis to CVID, but I guess technically that's what it is, since

it's in his t-cell and his b-cell and more than one thing is involved,

however, I don't know that the name is as important as the care they

receive. As long as you find a Dr you trust and feel comfortable with,

I think that's the important thing. I think that the name means a lot

sometimes as far as receiving IVIG and such, so I guess when Jayden

starts his IVIG this fall, then officially he will have that

diagnosis. I'm not sure. Some of the other moms that are the " pros " as

I call them on this board could better help you with that. This is a

great board for answers. I hope you feel welcomed here!

Deska - GA

mom to Phoenix (11 hypogam)

Jaden (6 hypogam, possible CVID)

>

> hi all, i'm dovie and my 6 y/o daughter has hypogammaglobuliemia with

> poor pneumovax responce, afew other conditions, she finished her 3rd

> ivig, i'm so scared, i need help on where to start, is it the same as

> cvid? i'm so lost with the info on the internet, thanks

>

[Guest guest]

thanks for the support, will start doing my leg work on how to find

out about all this, i think she might of got this from me, when i was

very young i had to get gamma shots for a year, i keep having

pnemonias and strep throat and sinus inf, that was 40 years ago

thought, thanks again,

> >

> > hi all, i'm dovie and my 6 y/o daughter has hypogammaglobuliemia

with

> > poor pneumovax responce, afew other conditions, she finished her

3rd

> > ivig, i'm so scared, i need help on where to start, is it the

same as

> > cvid? i'm so lost with the info on the internet, thanks

> >

>

[Guest guest]

Hey,

This is the scariest part. Pretty soon, you will be in the swing of things. How

is your child doing on IVIG? Have you noticed a change in his health/energy

level? Where are you located? We are in Alabama. Up in the northern states seems

to be more aggresive in treatment and treatment options. I am so fortunate that

our Dr listens to us and thinks outside of the box. Down here it is still all

new to everyone. Good luck and know that we are all here for you!

www.caringbridge.org/visit/alexsmith

@...: dscism06242002@...: Wed, 23 Jul 2008

18:43:27 +0000Subject: Re: newbie

thanks for the support, will start doing my leg work on how to find out about

all this, i think she might of got this from me, when i was very young i had to

get gamma shots for a year, i keep having pnemonias and strep throat and sinus

inf, that was 40 years ago thought, thanks again, > >> > hi all,

i'm dovie and my 6 y/o daughter has hypogammaglobuliemia with > > poor pneumovax

responce, afew other conditions, she finished her 3rd > > ivig, i'm so scared, i

need help on where to start, is it the same as > > cvid? i'm so lost with the

info on the internet, thanks> >>

_________________________________________________________________

Time for vacation? WIN what you need- enter now!

http://www.gowindowslive.com/summergiveaway/?ocid=tag_jlyhm

[Guest guest]

hi laura,

we are in texas no to far from dallas, allie has had reactions to all

3 of her ivigs, this last on done on monday, to day we had bad head

ach, nausea and vomiting, sorethroat, sensitivity to light, just like

last time but not as bad, they infused her 4 1/2 hrs this last time

and spoke with nurse today and will infuse her 5 1/2 to 6 hrs and

more iv fluids, allie is feeling better this eve, gave meds for n & v

and tylenol, i guess you know the drill..

dovie

>

>> > hi all, i'm dovie and my 6 y/o daughter has hypogammaglobuliemia

with > > poor pneumovax responce, afew other conditions, she finished

her 3rd > > ivig, i'm so scared, i need help on where to start, is it

the same as > > cvid? i'm so lost with the info on the internet,

thanks> >>

>

>

>

>

>

> _________________________________________________________________

> Time for vacation? WIN what you need- enter now!

> http://www.gowindowslive.com/summergiveaway/?ocid=tag_jlyhm

>

>

[Guest guest]

Hey,

had to be infused over 10 hrs to avoid reactions. That made for a long day!

I am sorry you are having such a bad go of it. Hopefully the premeds and slower

rate will do the trick! We'll be thinking about y'all.

www.caringbridge.org/visit/alexsmith

@...: dscism06242002@...: Wed, 23 Jul 2008

21:17:17 +0000Subject: Re: newbie

hi laura,we are in texas no to far from dallas, allie has had reactions to all 3

of her ivigs, this last on done on monday, to day we had bad head ach, nausea

and vomiting, sorethroat, sensitivity to light, just like last time but not as

bad, they infused her 4 1/2 hrs this last time and spoke with nurse today and

will infuse her 5 1/2 to 6 hrs and more iv fluids, allie is feeling better this

eve, gave meds for n & v and tylenol, i guess you know the drill.. dovie > >> > hi all, i'm dovie and my 6 y/o daughter has hypogammaglobuliemia

with > > poor pneumovax responce, afew other conditions, she finished her 3rd >

> ivig, i'm so scared, i need help on where to start, is it the same as > >

cvid? i'm so lost with the info on the internet, thanks> >> > > > > > >

__________________________________________________________> Time for vacation?

WIN what you need- enter now!>

http://www.gowindowslive.com/summergiveaway/?ocid=tag_jlyhm> > [Non-text

portions of this message have been removed]>

_________________________________________________________________

Keep your kids safer online with Windows Live Family Safety.

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safety_072008

[Guest guest]

while i think it is probably possible to start it that way, it would take longer

and run the risk of not turning out. With commercial KT about $4 a bottle, and

you can get a starter scoby with tea for about $5 in postage, why run the risk

of starting without a scoby?

you can make bread without yeast, start yogurt without any starter, and

accomplish other types of fementation without the starter, but the conditions

have to be just right, you have to accept the risk of many 'bad' batches before

you get a good one, and have a greatly increased risk of dangerous or unwanted

yeasts and bacteria getting established before the ones you want. the starter

gives the organisms you want a headstart so they dominate your brew.

hope this is helpful and happy brewing

 

Newbie

Hi guys,

I'm completely new to Kombucha Tea, i actually heard about it from my

friends at the kefir group, so i figured i would give it a shot.

I've seen youtube videos of people making their own mother by simply

brewing tea and just use some of the synergy kombucha (or any other

brand) that you get from stores and use them as the starter (culture)

to help ferment and create their own mother...

however on the other hands, in most written guides, they always say to

either get culture(starter) from a friend, or buy it online...

now is there a difference between the two method? which way will

create the best mother?

============ ========= ========

second,

what tea is best for making kombucha tea? anyone have any special

preference?

[Guest guest]

It can be done because I've seen it on the interwebs a few times. The

instances I saw took over 30 days for the initial scoby to form,

however. Do what I did...buy two scoby's and starter on ebay. $14

with free shipping. The lady is great and will give you tons and tons

of info. http://stores.ebay.com/Stichingtime-Great-Finds Even with

buying a scoby online, your initial batch will take longer because of

the small amount of starter tea you start with. Mine was about 20

days including the secondary ferment. The second batch only took

about half that.

Kurt

>

> Hi guys,

>

> I'm completely new to Kombucha Tea, i actually heard about it from my

> friends at the kefir group, so i figured i would give it a shot.

>

> I've seen youtube videos of people making their own mother by simply

> brewing tea and just use some of the synergy kombucha (or any other

> brand) that you get from stores and use them as the starter (culture)

> to help ferment and create their own mother...

>

> however on the other hands, in most written guides, they always say to

> either get culture(starter) from a friend, or buy it online...

>

> now is there a difference between the two method? which way will

> create the best mother?

>

> =============================

>

> second,

>

> what tea is best for making kombucha tea? anyone have any special

> preference?

>

[Guest guest]

Just a thought, 30 or so years ago there was a man who got me started with

KT, long before it became known to most people. He said that there were

different cultures of KT and if you liked the taste of one you should get a

start from that batch. So if you like a bottled KT, grow your own mother

from that brand and see how it works.

Re: Newbie

while i think it is probably possible to start it that way, it would take

longer and run the risk of not turning out. With commercial KT about $4 a

bottle, and you can get a starter scoby with tea for about $5 in postage,

why run the risk of starting without a scoby?

you can make bread without yeast, start yogurt without any starter, and

accomplish other types of fementation without the starter, but the

conditions have to be just right, you have to accept the risk of many 'bad'

batches before you get a good one, and have a greatly increased risk of

dangerous or unwanted yeasts and bacteria getting established before the

ones you want. the starter gives the organisms you want a headstart so

they dominate your brew.

hope this is helpful and happy brewing

 

Newbie

Hi guys,

I'm completely new to Kombucha Tea, i actually heard about it from my

friends at the kefir group, so i figured i would give it a shot.

I've seen youtube videos of people making their own mother by simply brewing

tea and just use some of the synergy kombucha (or any other

brand) that you get from stores and use them as the starter (culture) to

help ferment and create their own mother...

however on the other hands, in most written guides, they always say to

either get culture(starter) from a friend, or buy it online...

now is there a difference between the two method? which way will create the

best mother?

============ ========= ========

second,

what tea is best for making kombucha tea? anyone have any special

preference?

[Guest guest]

oh i dont really have a particular brand i like, in fact, i've never

had a kombucha tea.

I know that by using different tea, the taste will be a little

different.... but by using a tea with more antioxidant or something,

will it create a kombucha tea that will be more " potent " ? better

quality in terms of its benefit for our body?

what tea do you guys use?

by the way, does anyone know where i can get quality KT culture

(starter) for cheap?

>

> Just a thought, 30 or so years ago there was a man who got me

started with

> KT, long before it became known to most people. He said that there were

> different cultures of KT and if you liked the taste of one you

should get a

> start from that batch. So if you like a bottled KT, grow your own mother

> from that brand and see how it works.

>

> Re: Newbie

>

> while i think it is probably possible to start it that way, it would

take

> longer and run the risk of not turning out. With commercial KT about

$4 a

> bottle, and you can get a starter scoby with tea for about $5 in

postage,

> why run the risk of starting without a scoby?

> you can make bread without yeast, start yogurt without any starter, and

> accomplish other types of fementation without the starter, but the

> conditions have to be just right, you have to accept the risk of

many 'bad'

> batches before you get a good one, and have a greatly increased risk of

> dangerous or unwanted yeasts and bacteria getting established before the

> ones you want. the starter gives the organisms you want a headstart so

> they dominate your brew.

> hope this is helpful and happy brewing

>  

>

>

>

>

> Newbie

>

>

> Hi guys,

>

> I'm completely new to Kombucha Tea, i actually heard about it from my

> friends at the kefir group, so i figured i would give it a shot.

>

> I've seen youtube videos of people making their own mother by simply

brewing

> tea and just use some of the synergy kombucha (or any other

> brand) that you get from stores and use them as the starter (culture) to

> help ferment and create their own mother...

>

> however on the other hands, in most written guides, they always say to

> either get culture(starter) from a friend, or buy it online...

>

> now is there a difference between the two method? which way will

create the

> best mother?

>

> ============ ========= ========

>

> second,

>

> what tea is best for making kombucha tea? anyone have any special

> preference?

>

>

>

>

[Guest guest]

http://stores.ebay.com/Stichingtime-Great-Finds. Nice people full of advice

and info, if you need it. I got beautiful scoby's from them.

On Thu, Sep 11, 2008 at 3:33 PM, mhu001 <mhu001@...> wrote:

> oh i dont really have a particular brand i like, in fact, i've never

> had a kombucha tea.

>

> I know that by using different tea, the taste will be a little

> different.... but by using a tea with more antioxidant or something,

> will it create a kombucha tea that will be more " potent " ? better

> quality in terms of its benefit for our body?

>

> what tea do you guys use?

>

> by the way, does anyone know where i can get quality KT culture

> (starter) for cheap?

>

>

> >

> > Just a thought, 30 or so years ago there was a man who got me

> started with

> > KT, long before it became known to most people. He said that there were

> > different cultures of KT and if you liked the taste of one you

> should get a

> > start from that batch. So if you like a bottled KT, grow your own mother

> > from that brand and see how it works.

> >

> > Re: Newbie

> >

> > while i think it is probably possible to start it that way, it would

> take

> > longer and run the risk of not turning out. With commercial KT about

> $4 a

> > bottle, and you can get a starter scoby with tea for about $5 in

> postage,

> > why run the risk of starting without a scoby?

> > you can make bread without yeast, start yogurt without any starter, and

> > accomplish other types of fementation without the starter, but the

> > conditions have to be just right, you have to accept the risk of

> many 'bad'

> > batches before you get a good one, and have a greatly increased risk of

> > dangerous or unwanted yeasts and bacteria getting established before the

> > ones you want. the starter gives the organisms you want a headstart so

> > they dominate your brew.

> > hope this is helpful and happy brewing

> >

> >

> >

> >

> >

> > Newbie

> >

> >

> > Hi guys,

> >

> > I'm completely new to Kombucha Tea, i actually heard about it from my

> > friends at the kefir group, so i figured i would give it a shot.

> >

> > I've seen youtube videos of people making their own mother by simply

> brewing

> > tea and just use some of the synergy kombucha (or any other

> > brand) that you get from stores and use them as the starter (culture) to

> > help ferment and create their own mother...

> >

> > however on the other hands, in most written guides, they always say to

> > either get culture(starter) from a friend, or buy it online...

> >

> > now is there a difference between the two method? which way will

> create the

> > best mother?

> >

> > ============ ========= ========

> >

> > second,

> >

> > what tea is best for making kombucha tea? anyone have any special

> > preference?

> >

> >

> >

> >

[Guest guest]

Hi EveryOne,

Look in the FILES section of the Original Kombucha list for a folder

called Kombucha for Free....inside that folder you will find the names

and contact information for list members who are willing to share

Kombucha for free or just the cost of shipping.

Please contact them off list to arrange details.

If anyone would like to add their name and email address to the folder

to share Kombucha for free or shipping costs only please feel free to

add your information or send it to me at OM at bestweb.net if you need

help with the listing.

Peace, Love and Harmony,

Bev

-- In kombucha tea , " mhu001 " <mhu001@...> wrote:

>

> oh i dont really have a particular brand i like, in fact, i've never

> had a kombucha tea.

>

> I know that by using different tea, the taste will be a little

> different.... but by using a tea with more antioxidant or something,

> will it create a kombucha tea that will be more " potent " ? better

> quality in terms of its benefit for our body?

>

> what tea do you guys use?

>

> by the way, does anyone know where i can get quality KT culture

> (starter) for cheap?

>

>

>

>

> >

> > Just a thought, 30 or so years ago there was a man who got me

> started with

> > KT, long before it became known to most people. He said that there

were

> > different cultures of KT and if you liked the taste of one you

> should get a

> > start from that batch. So if you like a bottled KT, grow your own

mother

> > from that brand and see how it works.

> >

> > Re: Newbie

> >

> > while i think it is probably possible to start it that way, it would

> take

> > longer and run the risk of not turning out. With commercial KT about

> $4 a

> > bottle, and you can get a starter scoby with tea for about $5 in

> postage,

> > why run the risk of starting without a scoby?

> > you can make bread without yeast, start yogurt without any

starter, and

> > accomplish other types of fementation without the starter, but the

> > conditions have to be just right, you have to accept the risk of

> many 'bad'

> > batches before you get a good one, and have a greatly increased

risk of

> > dangerous or unwanted yeasts and bacteria getting established

before the

> > ones you want. the starter gives the organisms you want a headstart so

> > they dominate your brew.

> > hope this is helpful and happy brewing

> >  

> >

> >

> >

> >

> > Newbie

> >

> >

> > Hi guys,

> >

> > I'm completely new to Kombucha Tea, i actually heard about it from my

> > friends at the kefir group, so i figured i would give it a shot.

> >

> > I've seen youtube videos of people making their own mother by simply

> brewing

> > tea and just use some of the synergy kombucha (or any other

> > brand) that you get from stores and use them as the starter

(culture) to

> > help ferment and create their own mother...

> >

> > however on the other hands, in most written guides, they always say to

> > either get culture(starter) from a friend, or buy it online...

> >

> > now is there a difference between the two method? which way will

> create the

> > best mother?

> >

> > ============ ========= ========

> >

> > second,

> >

> > what tea is best for making kombucha tea? anyone have any special

> > preference?

> >

> >

> >

> >

[Guest guest]

thanks guys.

I know that by using different tea, the taste will be a little

different.... but by using a tea with more antioxidant or something,

will it create a kombucha tea that will be more " potent " ? better

quality in terms of its benefit for our body?

what tea do you guys use?

> > >

> > > Just a thought, 30 or so years ago there was a man who got me

> > started with

> > > KT, long before it became known to most people. He said that there

> were

> > > different cultures of KT and if you liked the taste of one you

> > should get a

> > > start from that batch. So if you like a bottled KT, grow your own

> mother

> > > from that brand and see how it works.

> > >

> > > Re: Newbie

> > >

> > > while i think it is probably possible to start it that way, it would

> > take

> > > longer and run the risk of not turning out. With commercial KT about

> > $4 a

> > > bottle, and you can get a starter scoby with tea for about $5 in

> > postage,

> > > why run the risk of starting without a scoby?

> > > you can make bread without yeast, start yogurt without any

> starter, and

> > > accomplish other types of fementation without the starter, but the

> > > conditions have to be just right, you have to accept the risk of

> > many 'bad'

> > > batches before you get a good one, and have a greatly increased

> risk of

> > > dangerous or unwanted yeasts and bacteria getting established

> before the

> > > ones you want. the starter gives the organisms you want a

headstart so

> > > they dominate your brew.

> > > hope this is helpful and happy brewing

> > >  

> > >

> > >

> > >

> > >

> > > Newbie

> > >

> > >

> > > Hi guys,

> > >

> > > I'm completely new to Kombucha Tea, i actually heard about it

from my

> > > friends at the kefir group, so i figured i would give it a

shot.

> > >

> > > I've seen youtube videos of people making their own mother by simply

> > brewing

> > > tea and just use some of the synergy kombucha (or any other

> > > brand) that you get from stores and use them as the starter

> (culture) to

> > > help ferment and create their own mother...

> > >

> > > however on the other hands, in most written guides, they always

say to

> > > either get culture(starter) from a friend, or buy it online...

> > >

> > > now is there a difference between the two method? which way will

> > create the

> > > best mother?

> > >

> > > ============ ========= ========

> > >

> > > second,

> > >

> > > what tea is best for making kombucha tea? anyone have any special

> > > preference?

> > >

> > >

> > >

> > >

[Guest guest]

Currently, I'm using Salida White, Whole Foods Green Tea, and Tazo

Awake Black Tea Blend. My favorite blend, and one that received rave

reviews tonight at a tasting, 1/3 White, green, black mixture. I also

get the most carbonation this way. With just green and white, the

carbonation is very hard to achieve.

Kurt

> > > >

> > > > Just a thought, 30 or so years ago there was a man who got me

> > > started with

> > > > KT, long before it became known to most people. He said that there

> > were

> > > > different cultures of KT and if you liked the taste of one you

> > > should get a

> > > > start from that batch. So if you like a bottled KT, grow your own

> > mother

> > > > from that brand and see how it works.

> > > >

> > > > Re: Newbie

> > > >

> > > > while i think it is probably possible to start it that way, it

would

> > > take

> > > > longer and run the risk of not turning out. With commercial KT

about

> > > $4 a

> > > > bottle,�and you can get a starter scoby�with tea for about $5 in

> > > postage,

> > > > why�run the risk of starting without a scoby?

> > > > you can make bread without yeast, start yogurt without any

> > starter, and

> > > > accomplish other types of fementation without the starter, but�the

> > > > conditions have to be just right, you have to accept the risk of

> > > many 'bad'

> > > > batches before you get a good one, and have a greatly increased

> > risk of

> > > > dangerous or unwanted yeasts and�bacteria getting�established

> > before the

> > > > ones you want. the starter gives the organisms you want a

> headstart so

> > > > they�dominate your brew.

> > > > hope this is helpful and happy brewing

> > > > �

> > > >

> > > >

> > > >

> > > >

> > > > Newbie

> > > >

> > > >

> > > > Hi guys,

> > > >

> > > > I'm completely new to Kombucha Tea, i actually heard about it

> from my

> > > > friends at the kefir group, so i figured i would give it a

> shot.

> > > >

> > > > I've seen youtube videos of people making their own mother by

simply

> > > brewing

> > > > tea and just use some of the synergy kombucha (or any other

> > > > brand) that you get from stores and use them as the starter

> > (culture) to

> > > > help ferment and create their own mother...

> > > >

> > > > however on the other hands, in most written guides, they always

> say to

> > > > either get culture(starter) from a friend, or buy it online...

> > > >

> > > > now is there a difference between the two method? which way will

> > > create the

> > > > best mother?

> > > >

> > > > ============ ========= ========

> > > >

> > > > second,

> > > >

> > > > what tea is best for making kombucha tea? anyone have any special

> > > > preference?

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Afternoon !

I'm Ellen from South Florida by way of New York. It's lovely to meet

you, sorry it had to be this way. You sound like a positive, upbeat

kind of woman and that will help you tremendously!

Tom is right,by the way, we are a family; odd as it may sound. You

will get used to all the names, don't push knowing it all right now

and you'll get to know us all individually as well. We all have our

stories, some might sound familiar to you through your own experience

and others might leave you scratching your head. We vent here,

celebrate things here, just express ourselves and gain insight and

information. There are other sites you might want as well that are,

in a way, " part " of us. I will send them to you via email if you wish.

Just let me know if you want them. I'm not about to overwhelm you

with all kinds of things.

Anyway, I'm 44 years old and was diagnosed almost 13 years ago now. I

had an eleven day stint in the resort for that one until they finally

decided. By the way, tell me if this sounds familiar; I had five

doctors trying to figure out what was wrong with me. Sound familiar?

We are an unusual select group.

For now, my dear, rest. Take your meds, eat well and correctly and

try to get some activity in your daily routine if you can. Welcome to

the family.

Take care and be well.

Ellen