Hair Loss

[Guest guest]

Hello Everyone and Welcome to all the new comers.

I have been mostly lurking, just not enough time in a

day for me.

, Vinnie has Alopecia.

He is totally bald, no hair brows and now losing his

eye lashes. I took him to a dermatogolist last year

when he only had some spots missing. I pretty much

knew what it was before we went. We tried the topical

steriods, but it burns and irrates him. So, I didn't

see any point in putting him through that anymore.

Hope everyone is well and loved all the pictures!

~, moma to (DS) & Sloan {3 1/2 years old}

--- Rusty and Medrano <rmedrano@...>

wrote:

> Hey... I am looking for any info on the hair loss

> thing.. can't remember what it is called...

> something apleico? something in that nature..

>

> I need so web-site.... anyone out there.. please

> help me..

>

> thanks..

>

>

__________________________________________________

[Guest guest]

Hi ,

Alopecia Areata (AA) is hair loss seen in DS children. There are two different kinds. It is an autoimmune disease. Our kids are more likely to have these autoimmune diseases. AA can cause bald spots on the scalp or complete loss of scalp and facial hair. In some cases even body hair is lost. Some children may also have pitting in their nails. It is hard to treat in DS children because steroids are just about the only way to treat it and has aggrivating side effects. Our kids can't tolerate them. Are you seeing bald spots? I would start treating now if you can. Also. if I remember right, you have a child with eczema. My has it, well I think that's what it is. How do you keep it under control? I have been bathing her in mild cleanser and soaking her down in Cetaphil lotion.. I guess I need to take her to the doctor and get some meds. Take care, Mom to Hannah and DS age 6

Rusty and Medrano <rmedrano@...> wrote:

Hey... I am looking for any info on the hair loss thing.. can't remember what it is called... something apleico? something in that nature..

I need so web-site.... anyone out there.. please help me..

thanks..

http://DSyndrome.com/Multiples

[Guest guest]

Cyn,

Do you suspect one of your kids has AA? Here is a cut and paste of one of

my old posts somewhere else:

" Alopecia Areata (AA), which is more common in children with DS than the

" regular " population. It is a specific type of hair loss characterized by

sudden appearing well-defined bald spots, without a rash or bumps. In a

matter of fact, 10% of all people with DS will develop AA at some point

throughout their lives.

Thinning of the hair maybe present, as well as are short stubby hairs

called " exlamation point hairs. " The hair around the bald spots are

probably easy to pull out as well.

Total loss of the hair on the face and scalp is called " Alopecia totalis "

and hair loss on the body and scalp is called " Alopecia universalis. "

The reason why a person develops AA is unknown. The cause is unknown.

However, some MDs think it maybe an immune response to the hair follicles.

It can usually be diagnosised by a physical exam. If there is any doubt, a

scalp biopsy will confirm the diagnosis.

Treatment is usually cream. Topical steroids, or anthralin are often used

in children with DS and AA. Anthralin may stain the scalp brown. But be

careful ! It also stains sheets, toys, clothing, etc !! Steroids can also

be injected at 1 to 2 month intervals, but this is too painful for most

children. "

The way one can usually tell the difference between AA and other hair loss

(and there are tons of reasons for hair loss... some more common in kids

with DS!!!) is that AA is one of the very few hair losses without a rash,

redness, or bumps. If bumps or a rash is present it maybe just a yeast or

bacterial skin infection (which is more common in kids with eczema, which I

believe Dayton has, right?).

Hope this helps some. Let me know if you need more info. Also, is is

listening... her handsome lil' Vinnie has AA and she can help!

Cheers!

Sara

[Guest guest]

In a message dated 5/19/2003 4:09:07 AM Pacific Daylight Time,

s4052475@... writes:

> P.S The pain in my back has stopped. I did get my labs back though. Low on

> iron and B12, VERY low on Vit D, and high parathyroid. Doc prescribed

> liquid iron, B12, Vits A, D, E and calcium.

Hi Kristy!

Were you taking ADEKs before your labs? I am just curious because NOW you

will be taking something of that sort! If you are not familiar with ADEKs,

they are a water miscible? (I think that is the word) vitamin A, D, E and K

that is chewable and some doctors recommend them from after the first month

for DS patients.

Hugs and blessings, Ann

[Guest guest]

Ann

No I wasnt really taking anything let alone ADEKs. So I guess I will see if

they help..

Kristy

[Guest guest]

> ya know what? my hair is still all attached to my head. im 4

months

> out. doesnt it usually start about now?/

>

> vicki

> who bought some really cute hats to prepare for baldness

LOL! You asked for it, now you will get it!

marta

I only lost hair for six weeks.

[Guest guest]

> > ya know what? my hair is still all attached to my head. im 4

> months

> > out. doesnt it usually start about now?/

> >

> > vicki

> > who bought some really cute hats to prepare for baldness

>

> LOL! You asked for it, now you will get it!

>

> marta

> I only lost hair for six weeks.

**********************************

i jinxed myself huh......lol. i dont know anyone who hasnt lost

their hair so im expecting it. you lost for 6 weeks?? how far out

were you when it started??

vicki

[Guest guest]

> i jinxed myself huh......lol. i dont know anyone who hasnt lost

> their hair so im expecting it. you lost for 6 weeks?? how far out

> were you when it started??

>

> vicki

I think four months sounds about right. I didnt' keep a diary and

don't remember very well, but that sounds right. I was just getting

nervous when it stopped. It got mighty thin, I could see my head

through my hair easily. You know how short I wear my hair so you

know it didnt' take long for all the short hairs to catch up.

marta

[Guest guest]

> i jinxed myself huh......lol. i dont know anyone who hasnt lost

> their hair so im expecting it. you lost for 6 weeks?? how far out

> were you when it started??

>

> vicki

===============

Vicki i didn't lose a hair on my head the first 4 months...I was

beginning to think I had dodged that bullet....then boing, boing

they started popping out of my head...I thought my bathroom floor

was a made of hair...I lost hair from just past 4 months to 8 months

post-op....I lost at least 1/2 the volume of hair on my head..lucky

me I had really thick hair and no body but me could tell the

difference. I've regained about 80% of what I lost back. I seem to

recall your hair being real thick....you should be fine. It becomes

more of a pain in the butt always having loose hair flying into

everything....

Jo

[Guest guest]

Shucky,

If you are looking for something to help with hair loss, I have read in

several places that Polysorbate 80 massaged into the scalp for 10 mins

before washing the hair, is supposed to help with hair loss, and actually

help some hair to regrow....

If you are interested in the info.....email me offlist, and I will find all

the links, and pass them on to you!

HTH a bit!

Candy in AL

cdlucas@...

Hair Loss

>

>

> There's a discussion at another site on hair loss. One of the participants

> says she got a book on hair loss written by a physician which tells you

> how

> to prepare herbal tinctures to add to shampoos, and which says sodium

> lauryl

> sulphate is one of the big environmental contributors (all the old-timers

> know how I feel about that, anyway).

>

> Does anyone have this book, or know what the tinctures are made from?

>

> Also, I haven't been able to find over-the-counter progesterone cream in

> Ontario. I'm assuming it is not available, but if any of the good

> herbalists

> out there know how much wild yam to use to approach standardized dosages,

> I

> d sure love to hear about it.

>

> Shucky 8-) +

>

>

[Guest guest]

Candy - why don't you post those links here, I bet there are alot of

people intersted. My husband is loosing hair quickly!

Sagescript Institute, LLC

>

> If you are looking for something to help with hair loss, I have

read in

> several places that Polysorbate 80 massaged into the scalp for 10

mins

> before washing the hair, is supposed to help with hair loss, and

actually

> help some hair to regrow....

>

> If you are interested in the info.....email me offlist, and I will

find all

> the links, and pass them on to you!

>

> HTH a bit!

> Candy in AL

> cdlucas@f...

[Guest guest]

It would be important to check her daily total protein intake to see if it even comes close to 60g daily. She may work, but she still needs to work needed foods and beverages in. My patients start their work days by drinking their 1 c. of high-protein supplement, then waiting about 1/2 hour, then eating a Breakfast that contains a high-protein food. If nothing else, she could nibble a slice of cheese or some peanut butter as she dashed out the door. Each one cup of milk has at least 8 g of protein. She needs liquids daily, and some of those liquids can be milk or soy milk. My patients also tolerate "high-protein" milk, our familiar 1 c. NFDM added to 1 qt of skim or 1% milk. It boosts the protein to about 14 g/cup. It boosts the carb, too, but they tolerate it when it is consumed slowly. They also tolerate the simple SF CIB well. Some of my patients who cannot tolerate the more potent high-protein liquid supplements do just fine with 3 c. of CIB daily in addition to about 4 oz. of soft-cooked meat, fish, or poultry.

Discussion between pts has mentioned selenium supplementation, but I have not seen recommendations. Maybe others will share in this area.

I have read suggestions for zinc supplementation, but not specific levels. If anyone has ever taken zinc supplements, they will be able to attest to the difficulty in tolerating them--they cause GI upset. I'd check the amount in any supplement she may be taking--it may be close to 25 mg. I'm not sure, from a clinical perspective, that I'd go much beyond that. I've seen 50mg daily cause distress in a large male outpatient that was not even a bariatric surgical patient. Cold-eeze lozengers also change taste perception. Sometimes it is so difficult to get pts to successfully eat what they need, that I'd hate to jeoporadize it w/zinc supplementation.

Kim Knopp

[Guest guest]

Sure Debbie, unfortunately I have only had one response which was posted to the list-serve. I certainly will forward any information I find.

Take care

BethDebbie Pfeiffer <Debbie_Pfeiffer@...> wrote:

Beth, I was going to ask the same question, regarding any recommendations for Biotin and dosage amount. I received information from a presentation given by a dietitian that did recommend megadoes daily of Biotin for the 1st y6 months post-op for hair loss but would like to know if there is a specific amount of biotin being recommended. If you do get replies that are not posted to the web site can you forward to me. Thank you.

Debbie Pfeiffer

Dkpfeiff40@...

From: Beth Taschuk [mailto:bethhanne@...] Sent: Sunday, January 16, 2005 7:54 PM Subject: hair loss

Good Evening..

I have a patient S/P revisional gastric bypass 10/04 who called me this weekend in tears because of excessive hair loss. She reports her hair is coming out in "clumps" leaving her scalp exposed. She is taking her MVI and eating her protein foods first. Numerous supplements have been trialed without success. She works full time and has difficulty getting her scheduled snacks in.

Are your patients taking Biotin and if so, what is the recommended dosage?

Thank you for your time and assistance.

Beth Taschuk RD

St. Luke Hospitals

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[Guest guest]

Pretty much anyone who loses weight rapidly (with or without surgery) will experience hair loss. 99% of patients experience some type of loss. I tell our patients they can try add'l zinc & biotin and make sure they are getting their daily protein, but the hair loss still happens regardless. The add'l vitamins & adequate protein just keep it from being worse than it could be. They have to tough it out for a few months.

Kristyn Lassek

Omaha, NEmelissa miceli <melmiceli@...> wrote:

this is great! thanks..the only thing i have read is that biotin helps but i cant remember at this time how much..

please post all responses

thanks

melissa"Laschkwitsch, :LPH Obes Inst" <KLaschke@...> wrote:

I have had a million questions about hair loss and found some mixed messages in the limited research that I have done. I have one chapter from a text book titled Surgery for the morbidly obese which discusses vitamins after surgery ( The article was in a file of a previous employee so I don't know much about the book!) It suggest the following in addition to a daily multi-vitamin for hair loss:

Zinc chelate 15 mg qd

Copper chelate 1 mg qd

Silica 20 mg qd

Vitamin C 2000 mg qd

Vitamin A 5000 IU qd

Flaxseed oil 15 cc (1 Tbsp) qd (for essential fatty acids)

I know traditionally hair loss can be caused by essential fatty acid deficiency but I wonder if my patients really have that as they do not have the dry flaky skin or infections, decreased wound healing etc. that would go along with that. I wonder what others thoughts are on the above vitamin regimen and what if anything you all tell patients about hair loss post-op. I appreciate any help with this matter!

Laschkewitsch RD LDDietitian, Legacy Obesity Institute

IMPORTANT NOTICE: This communication, including any attachment, contains information that may be confidential or privileged, and is intended solely for the entity or individual to whom it is addressed. If you are not the intended recipient, you should contact the sender and delete the message. Any unauthorized disclosure, copying, or distribution of this message is strictly prohibited. Nothing in this email, including any attachment, is intended to be a legally binding signature. Miceli MA, RD, LDCenter for Weight ManagementGalveston, TX 77554409-747-8962memiceli@...

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[Guest guest]

I found the following website:

http://www.ahlc.org/female.htm

which is from the American Hair Loss Council.

They address some of the causes such as surgery, illness, anemia,

rapid weight change which these individuals are going through.

, " Laschkwitsch, :LPH Obes Inst "

<KLaschke@L...> wrote:

> I have had a million questions about hair loss and found some mixed

messages

> in the limited research that I have done. I have one chapter from

a text

> book titled Surgery for the morbidly obese which discusses vitamins

after

> surgery ( The article was in a file of a previous employee so I

don't know

> much about the book!) It suggest the following in addition to a

daily

> multi-vitamin for hair loss:

>

> Zinc chelate 15 mg qd

> Copper chelate 1 mg qd

> Silica 20 mg qd

> Vitamin C 2000 mg qd

> Vitamin A 5000 IU qd

> Flaxseed oil 15 cc (1 Tbsp) qd (for essential fatty acids)

>

> I know traditionally hair loss can be caused by essential fatty acid

> deficiency but I wonder if my patients really have that as they do

not have

> the dry flaky skin or infections, decreased wound healing etc. that

would go

> along with that. I wonder what others thoughts are on the above

vitamin

> regimen and what if anything you all tell patients about hair loss

post-op.

> I appreciate any help with this matter!

>

> Laschkewitsch RD LD

> Dietitian, Legacy Obesity Institute

>

>

>

>

>

> IMPORTANT NOTICE: This communication, including any attachment,

contains

> information that may be confidential or privileged, and is intended

solely

> for the entity or individual to whom it is addressed. If you are

not the

> intended recipient, you should contact the sender and delete the

message.

> Any unauthorized disclosure, copying, or distribution of this

message is

> strictly prohibited. Nothing in this email, including any

attachment, is

> intended to be a legally binding signature.

[Guest guest]

I found the following website:

http://www.ahlc.org/female.htm

which is from the American Hair Loss Council.

They address some of the causes such as surgery, illness, anemia,

rapid weight change which these individuals are going through.

, " Laschkwitsch, :LPH Obes Inst "

<KLaschke@L...> wrote:

> I have had a million questions about hair loss and found some mixed

messages

> in the limited research that I have done. I have one chapter from

a text

> book titled Surgery for the morbidly obese which discusses vitamins

after

> surgery ( The article was in a file of a previous employee so I

don't know

> much about the book!) It suggest the following in addition to a

daily

> multi-vitamin for hair loss:

>

> Zinc chelate 15 mg qd

> Copper chelate 1 mg qd

> Silica 20 mg qd

> Vitamin C 2000 mg qd

> Vitamin A 5000 IU qd

> Flaxseed oil 15 cc (1 Tbsp) qd (for essential fatty acids)

>

> I know traditionally hair loss can be caused by essential fatty acid

> deficiency but I wonder if my patients really have that as they do

not have

> the dry flaky skin or infections, decreased wound healing etc. that

would go

> along with that. I wonder what others thoughts are on the above

vitamin

> regimen and what if anything you all tell patients about hair loss

post-op.

> I appreciate any help with this matter!

>

> Laschkewitsch RD LD

> Dietitian, Legacy Obesity Institute

>

>

>

>

>

> IMPORTANT NOTICE: This communication, including any attachment,

contains

> information that may be confidential or privileged, and is intended

solely

> for the entity or individual to whom it is addressed. If you are

not the

> intended recipient, you should contact the sender and delete the

message.

> Any unauthorized disclosure, copying, or distribution of this

message is

> strictly prohibited. Nothing in this email, including any

attachment, is

> intended to be a legally binding signature.

[Guest guest]

Somebody else posted on this recently on another list - I forget which and Biotin Deficiency was suggested. There is info here which mentions the link with Alopecia

http://www.anyvitamins.com/biotin-info.htm

the other thing mentioned was Selenium toxicity

Toxicity and symptoms of high intake

As mentioned earlier - selenium is toxic and too large quantities may result in hair loss, tooth decay, brittle nails, white spots, poor appetite, sour taste in the mouth, loss of feeling in the hands and feet, change in skin pigmentation and the breath may have a garlic smell.

from here

http://www.anyvitamins.com/selenium-info.htm

This says toxic doses of Vitamin A may cause it

http://www.dermatologychannel.net/alopecia/causes.shtml

http://www.afraidtoask.com/hair/causesofhairloss.html

HTH

MAndi in Dorset

My 7yr old has developed bald circles in his hair, just like Alopecia, anyone know what might be causing this? Iv'e looked it up on the web but nothing seems to apply.

[Guest guest]

Thanks Mandi, lots to think about there, Vit A is interesting because recent tests done on NHS showed high Vit A and D, and gastro said she would not wish to see them any higher!

Vicky

[Guest guest]

Mine

fell out in spots so I never went totally bald, I had some bald spots and some

thin spots in the front & top (ears up). Most of the back stayed put

except for a few spots that were covered pretty well. And it wasn’t

all at once. One spot would be growing back in while another was still

falling out. I think it was more noticeable to me than others –

that’s what they told me at least. But when it grew back it came

back pure white – you can see it in to photos. I gets lots of

compliments now.

Re:

Good morning

Can you give me an idea

how much hair I would be likely to lose? I don't mind the baldy look, but

I would HATE for it to be " clumpy " .

Love,

Di

I'm

not where I want to be,

but I'm well on my way

godsowndi@...

[Guest guest]

Mine

fell out in spots so I never went totally bald, I had some bald spots and some

thin spots in the front & top (ears up). Most of the back stayed put

except for a few spots that were covered pretty well. And it wasn’t

all at once. One spot would be growing back in while another was still

falling out. I think it was more noticeable to me than others –

that’s what they told me at least. But when it grew back it came

back pure white – you can see it in to photos. I gets lots of

compliments now.

Re:

Good morning

Can you give me an idea

how much hair I would be likely to lose? I don't mind the baldy look, but

I would HATE for it to be " clumpy " .

Love,

Di

I'm

not where I want to be,

but I'm well on my way

godsowndi@...

[Guest guest]

Have you tried googling it? What supplements/treatments are you on?

Natasa

>

> We are seeing some hair loss again, similar to male pattern baldness

at

> the crown, nowhere else, the rest of his hair is lovely, any thought

> please.

> TIA

> Vicky

> xx

>

[Guest guest]

Thanks Natasa, Iv'e done a search and come up with 2 possibles, hypothyroidism and a fungal scalp condition, the second would tie in with his recent boil on his scalp, although nowhere near the bald patch.

I will go and check out the other symptoms of hypothyroidism, seen it mentioned here before.

He is on, Selenium, Probios, Colostrum. MB12, L Glutamine, Taurine, Vit C, Magnesium, Folinic Acid, Calcium, Zinc, Vit E and Enzymes.

Vicky

xx

[Guest guest]

Just looked at hypothyroidism and have found short stature, is only on the 2nd percentile for height, late eruption of teeth, his teeth didn't come through until last Spring when he turned 8 yrs old, severe mental retardation, has severe LD, now I'm not saying he has this condition, but with all these symptoms am I half crazy of shouldn't his paed have ruled it out already. Where can I have him tested for this, I will assume his Doctors won't want to order a test.

TIA

Vicky

[Guest guest]

In a message dated 22/02/2006 07:01:24 GMT Standard Time, MaddiganV@... writes:

Where can I have him tested for this, I will assume his Doctors won't want to order a test.

>>>Ask your GP - you want full thyorid function tests - TSH, T4 and T3 - the results will come back normal but because they don't do children ranges but I have them saved somewhere. If I can;t find them then will know I am sure. worth a shot - take written details of why you want this

Mandi in Dorset

[Guest guest]

Thanks Ladies, I will make an appointment with G.P. and ask for the tests you mentioned, I don't know how many times I argued with 's Gastro about his tumbling down from 25th to 2nd percentile for height and his lack of teeth, always the same response he was healthy and wouldn't be as active if anything were seriously wrong!

Vicky

xx