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> How the H**L do you

> keep that final pose on the live basic, where we are supposed to

pull

> that leg in to work the abs? I keep falling over!

Angie,

Ha ha.....lots and lots of practice! I couldn't do it at first,

either, but your balance will continue to improve until one day

you'll be doing it and you'll hold your balance the whole time

says to. It just takes lots of patience! Don't be afraid to use a

chair to help you balance at first if you need to! As you get

better, you'll see you rely less and less on the chair and can hold

the position by yourself! Don't worry, you'll get there!

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Hi Randi,

The group you mentioned is for adults with ocd. I have heard that its more

of a complainers and social gathering than a working support group! There is

a kids group at the childrens hospital, but it meets during school time -

and my kids miss enough school as it is! I'm also not sure if the leader is

proficient in ERP (especially since she called me for info!).

Thanks for thinking of me!!

wendy, in canada wb4@...

===================================

>Hi ,

>

>I was just looking around the net & found a support group that meets

>every 2nd Wednesday in Ottawa. They meet at the Hintonburg Community

>Centre at 1064 Wellington St. You can call Rolland 613-722-3607 or

>Mark 613-736-7364. If you already knew this then NEVER MIND. LOL

>>To everyone, keep your sense of humour! We need it!!!

>>Bye for now. To everyone, have as grreat a day as you can! Lots of

>hugs from Randi in Toronto, Canada.

________________________________________________________________________

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Gail -

I have been watching this site on a passive basis. I too have an 11 yo

daughter who has OCD. We became aware of her OCD symptoms last year when

she entered middle school as a 6th grader. She became very dysfunctional -

here issues are contamination. She has been in therapy for a little over a

year and is successfully taking prozac (zoloft did not work - made her

hyper). I have two other daughters both younger. It has been a very

stressful road for us all. My husband didn't know how to deal with the

problems so he choose not to do anything. My younger daughters were mad at

all the attention given my 11 yo plus were confused by all of the symptoms,

etc. We made some changes (changed middle schools this year ) which I

believe are positive for my daughter. But I know this fight will be a

lifetime event. All I can hope is that we can provide the support and

understanding that Jen will need to cope with this over her lifetime. She

has recently exhibited more OCD signs again and says it's under control. I

wonder though when I see raw hands, etc. She gets angry if I bring it up, I

still never know if I can trust her she has lied so much to us in the past

and I still get frustrated. I sometimes wonder how I keep my sanity.

One of the best things I did for myself was to get into individual

counseling as well with her CBT therapist. I am taking paxil in mild doses

to deal with my anixety level (it helps) so that I can function for all my

family. The counseling and meds have helped me a great deal. I finally

came to the conculsion that if I feel apart over this then no one would be

there to support Jen and the rest of the family. I think this is really

important.

And, I found that I don't have OCD and no - it's not my fault that Jen does.

And I now know more productive and positive ways to deal with this.

Take care.

Temie

To

>,

> Thanks for joining our discussions. As Kathy said, all of us would

like

>for our children's OCD problems to go away - just as I want my other

child's

>ADD to go away, my extra pounds to go away and Ed McMahon to knock on my

door

>with a million bucks! It is natural for us to want only the best life for

>our children. While we have grown accustomed to OCD storms over the past

>year and a half, when , my 11 year old, is in the throes of one, I

still

>resist labeling it as OCD in hopes that it will go away. Naturally, when

it

>does not, we both buckle down and work on the obsession/compulsion in

>progress. It DOES get easier - you both learn skills to use and gain

>confidence that you can handle this.

>

> Let us know how things are going.

>

>Gail in N'Awlins

>

>------------------------------------------------------------------------

>Remember four years of good friends, bad clothes, explosive chemistry

>experiments.

>1/4051/5/_/531051/_/958064288/

>------------------------------------------------------------------------

>

>You may subscribe to the OCD-L by emailing listserv@... . In

the body of your message write: subscribe OCD-L your name. The Archives,

Files, and Features List for the may be accessed by

going to , enter your email address and password,

then point and click. Subscription issues, problems, or suggestions may be

addressed to Louis Harkins, list owner, at harkins@... .

>

>

>

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Hi Gail and :

This issue of dad keeping his cool is one in our family too. and I

were talking about it when I filled him in on how Tom is doing. What

Steve's CBT therapist has advised me to do is not criticize for this

in front of Steve. Sometimes I get caught up in the middle trying to get

them to calm down and this is not good. I am working on taking aside

and reminding him of our agreement to remain as calm as possible and give

ourselves time out when things start to escalate.

What other strategies to parents on the list find help to help keep the

calm while coparenting? Aloha, Kathy (H)

kathyh@...

At 02:09 PM 06/18/2000 EDT, you wrote:

>,

>

> Sounds like you've managed another tough situation with Tom. He is so

>lucky to have you as his mother! A less competent, dedicated parent would

>surely have not been able to offer him the help that you have - even if that

>help is NOT helping him.

>

> You're right about keeping your cool and setting an example for Tom. I

>have an easier time doing this than Harold does. Last night he almost lost

>it over a relatively insignificant thing with . I vaciliate between

>feeling that he really needs to remain calm while also wanting to

>understand that she has crossed the line. He has a difficult time

expressing

>his disapproval without losing his temper. Then he gets frustrated because

>she tunes him out and he becomes upset with me. quite an unproduction

>pattern!

>

> Hang in there!

>

>Gail in N'Awlins

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,

Please reconsider, as Louis has mentioned, staying on the list. How

about meeting us on the chat? Each member offers a personal insight into

their expereince that is similar, but unique.

wendy, in canada

====================================

>Hi ,

>

>Please give the list another chance. If you wish I can unsubsribe you

>in the future. I know that you sent ten posts to the list on 3 Jun with

>links to various sites that I could not get to work. The descriptions

>under the URL's were garbled and I stopped opening the posts after the

>first few messages. Having reviewed the posts I saw that you introduced

>yourself as the mother of twins with OCD. I am a twin and my twin

>brother has OCD and my older son has OCD. I started this list in Jan of

>99 as a sanctuary for parents of children with OCD. I hope that you

>will accept my invitation to remain and tell us about yourself and your

>twins. I know that all of our members will benefit if you are willing

>to give us another try. I would suggest not sending links and just

>telling us about yourself. I believe that your initial introductory

>post would have been responded to had it not been buried in the ten posts

>with links that for me did not work.

>

>Again, please accept my apology and give us another chance. I believe

>that you, your twins, and all the members of this list will be blessed if

>you choose to stay.

>

>Take care. Louis harkins@...

> Remove from list

>

>

> Please remove me,i asked before, about 6 months ago, please, i have

>tried to share on this list with no response PLEEZE REMOVE ME PLEASE

________________________________________________________________________

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Hi ,

Congratulations on your success with getting Gracie to poop on the pottie. One

of the things that is important about the CBT though is " consistent " success to

increase your child's confidence that they can do it every time. If you're going

to work on this behavior while you look for a CBT therapist, one suggestion

would be to start a little smaller.

For instance, you could ask her if she could tell you whenever she felt she had

to make a BM and go sit on the pottie in her diaper. Then, after a week or so of

this, once she had no anxiety about this new method, you could maybe even hold

the diaper in the toliet (but off of her) while she pooped as an intermediate

step to actually having her go in the potty.

When working on CBT with my daughter, one of the things that made her so

successful was always finding ways to make exposures " easier " like I've

described above. Of course, you know your daughter best and if you feel like

she's willing to keep trying to go on the potty, don't go backwards! If she

starts to relapse though, try it!

Take care,

in San Diego

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Hi ,

Congratulations on your success with getting Gracie to poop on the pottie. One

of the things that is important about the CBT though is " consistent " success to

increase your child's confidence that they can do it every time. If you're going

to work on this behavior while you look for a CBT therapist, one suggestion

would be to start a little smaller.

For instance, you could ask her if she could tell you whenever she felt she had

to make a BM and go sit on the pottie in her diaper. Then, after a week or so of

this, once she had no anxiety about this new method, you could maybe even hold

the diaper in the toliet (but off of her) while she pooped as an intermediate

step to actually having her go in the potty.

When working on CBT with my daughter, one of the things that made her so

successful was always finding ways to make exposures " easier " like I've

described above. Of course, you know your daughter best and if you feel like

she's willing to keep trying to go on the potty, don't go backwards! If she

starts to relapse though, try it!

Take care,

in San Diego

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HI !

You obviously know more about email lists that you realized! I received 3

posts from you! I added the address to my address book so I

have it for original posts. Otherwise, I click on reply, delete what is not

necessary, and type away!

I like your ideas for michaels perfectionism. I am curious if his marking

things wrong and answering incorrectly made any difference on his overall

grade? You mention that was in grade 6 last year, at least his high

school marks arent a factor! Breaking things down to small bits does help

with the perfectionism. My daughter adi used to hand in assignments early,

keep re-testing until she got a high enough mark (in her opinion), etc. We

helped her by not allowing her to hand things in early, and cut out

retesting. She was very upset when the honour rolls came out and she didnt

make it - but we explained that her goal was not to be on the honour roll,

but just to do her best.

Avoiding school makes sense if his is not allowed to work to his

potential. Keep bringing him and be there to support him when he comes home.

If its necessary, reduce the hours and let him work at home. I wouldnt

arrange for the school to send a tutor because it would be encouraging him

to avoid the school. We had a simiilar situation when my son tom was in

grade 8. He had to go to the school to pick up his work from the teacher,

stay there for an hour, and then return home.

take care, wendy in canada wb4@...

_________________________________________________________________________

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Hi ,

Congratulations on your med change with Joe and good luck with . In the

past, when I expressed my fears to Dr. Hat about having OCD, he reminded me

that we now have a powerful culture in our family of bossing back and that doing

CBT for mild symptoms the way that you described can go a long way towards

heading OCD off at the pass.

I guess we just have to tell ourselves, that our other children are lucky

because we know what to do!

Take care,

in San Diego

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Hi Stacey,

I went through just what you describe a few weeks ago. Even though my

son had had symptoms on and off for a while I had no idea what it was

related to. I felt that it was very sudden when I did find out. I was

unlucky enough to get psychologists who did a real stuff up of a job. I

suppose they are used to dealing with behaviour which results from

disorders so they look at everything through that lens and can't see a

bit of objectivity for what it is. Dealing with them was made worse by

how I felt about the OCD myself. I got a book from the library on OCD in

adults and the case-stories made me sick. It didn't seem to reflect the

severity of my son's problem and I have come to realise that it probably

doesn't.

I have learned to take each day one step at a time and deal with what I

have here today rather than all the unknowns. Like you I wondered

whether my son's goals would still be appropriate but I can only act as

if they are. They are his goals and as long as I am supporting what he

wants in his life then I am doing my job regardless of OCD or whatever.

I didn't have the internet on when I was first aware of the problem (it

has been one of the results of it) so I didn't have anyone to talk to at

all. I tried to keep it to myself but that made me more tense about it.

Anyway goodluck.

Rosie

To

> -------------------------- eGroups

Sponsor -------------------------~-~>

> Get a FREE Olan Mills portrait -- visit ibelieve.com today!

> 1/7801/17/_/531051/_/968737185/

> ---------------------------------------------------------------------_

->

>

> Dear ,

>

> It's very late at night here in New Orleans. But when I read your

post,

> I had to respond. The heartache you feel is so very natural and

expected

> when we first learn about our child having OCD. When we are pregnant,

we

> think of all the wonderful things we will do for and with our child -

dream

> amazing dreams of closeness, love and deep contentment for all. Then,

BAM,

> it seems shattered b/c of an unwelcome invader who cloaks itself in

such

> sneaky ways that make our child unrecognizable and unable to be

him/herself.

> We want to protect out child and to make it all go away.

>

> Finding out that your child has OCD is not unlike the same

grieving

> process people go through when they experience any major and profound

loss.

> You are greiving for the dream and for your child's dream. Like

> Kubler-Ross explained, there are 5 distinct steps to grieving. You

have

> hurdled beyond the first one, denial, and are rapidly approaching the

> remainig 4 steps: anger, bargaining, depression and acceptance. Most

of us

> are somewhere in those last 3 steps. My daughter, , (age 11) was

> diagnosed 2 years ago and I still struggle with my emotions about OCD.

> You're right, of course, that there are worse, more life-threatening

> conditions, but that really doesn't negate your own pain and sadness.

>

> What to do? Read all you can - Tamar Chansky, our own resident

expert,

> has a new, excelletn book geared just for all of us. Join the OCF,

post

> here, and mostly, get some support for YOU. It is so important that

you take

> care of yourself and not allow yourself to also become overwhelmed by

> unnecessary committments. Utilize your support system - both

professional

> and friends. Ask questions on the OCF site.

>

> I, too, was so alarmed by the statistics of doom and gloom. But

I

> learned at the OC conference that it has been only recently that

intervention

> has begun with children at such an early age, enabling them to benefit

> tremendously and live more conventional lives. The news at the

conference

> was optimistic and very hopeful.

>

> Mostly, hang in there, keep writing us and know that when you are

in the

> closet weeping, we are here waiting to give you a hug when you come

out.

>

> Gail in N'Awlins

>

>

> You may subscribe to the OCD-L by emailing listserv@... .

In the body of your message write: subscribe OCD-L your name. You may

subscribe to the Parents of Adults with OCD List at

parentsofadultswithOCD . You may access

the files, links, and archives for our list at

. Our list advisors are

Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list

moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses,

Roman, and Jackie Stout. Subscription issues, problems, or

suggestions may be addressed to Louis Harkins, list owner, at

harkins@... .

>

>

>

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Guest guest

Rosie~

Your situation sounds alot like mine. I am mellowing about all of the negative possibilities associated with this disorder. Thanks to this list I realize that things are not as bad as they first appeared in the books I read. Hopefully we can work really hard at making things as good as possible and then he can go on to have a normal life. I still have my dreams for him and he still dreams of being a hockey player someday. I am not going to let this thing take away all of our dreams for him.

Rose <rm@...> wrote:

Hi Stacey,I went through just what you describe a few weeks ago. Even though myson had had symptoms on and off for a while I had no idea what it wasrelated to. I felt that it was very sudden when I did find out. I wasunlucky enough to get psychologists who did a real stuff up of a job. Isuppose they are used to dealing with behaviour which results fromdisorders so they look at everything through that lens and can't see abit of objectivity for what it is. Dealing with them was made worse byhow I felt about the OCD myself. I got a book from the library on OCD inadults and the case-stories made me sick. It didn't seem to reflect theseverity of my son's problem and I have come to realise that it probablydoesn't.I have learned to take each day one step at a time and deal with what Ihave here today rather than all the unknowns. Like you I wonderedwhether my son's goals would still be appropriate but I can only act asif they are. They are his goals and as long as I am supporting what hewants in his life then I am doing my job regardless of OCD or whatever.I didn't have the internet on when I was first aware of the problem (ithas been one of the results of it) so I didn't have anyone to talk to atall. I tried to keep it to myself but that made me more tense about it.Anyway goodluck.Rosie To > -------------------------- eGroupsSponsor -------------------------~-~>> Get a FREE Olan Mills portrait -- visit ibelieve.com today!> 1/7801/17/_/531051/_/968737185/> ---------------------------------------------------------------------_->>> Dear ,>> It's very late at night here in New Orleans. But when I read yourpost,> I had to respond. The heartache you feel is so very natural andexpected> when we first learn about our child having OCD. When we are pregnant,we> think of all the wonderful things we will do for and with our child -dream> amazing dreams of closeness, love and deep contentment for all. Then,BAM,> it seems shattered b/c of an unwelcome invader who cloaks itself insuch> sneaky ways that make our child unrecognizable and unable to behim/herself.> We want to protect out child and to make it all go away.>> Finding out that your child has OCD is not unlike the samegrieving> process people go through when they experience any major and profoundloss.> You are greiving for the dream and for your child's dream. Like> Kubler-Ross explained, there are 5 distinct steps to grieving. Youhave> hurdled beyond the first one, denial, and are rapidly approaching the> remainig 4 steps: anger, bargaining, depression and acceptance. Mostof us> are somewhere in those last 3 steps. My daughter, , (age 11) was> diagnosed 2 years ago and I still struggle with my emotions about OCD.> You're right, of course, that there are worse, more life-threatening> conditions, but that really doesn't negate your own pain and sadness.>> What to do? Read all you can - Tamar Chansky, our own residentexpert,> has a new, excelletn book geared just for all of us. Join the OCF,post> here, and mostly, get some support for YOU. It is so important thatyou take> care of yourself and not allow yourself to also become overwhelmed by> unnecessary committments. Utilize your support system - bothprofessional> and friends. Ask questions on the OCF site.>> I, too, was so alarmed by the statistics of doom and gloom. ButI> learned at the OC conference that it has been only recently thatintervention> has begun with children at such an early age, enabling them to benefit> tremendously and live more conventional lives. The news at theconference> was optimistic and very hopeful.>> Mostly, hang in there, keep writing us and know that when you arein the> closet weeping, we are here waiting to give you a hug when you comeout.>> Gail in N'Awlins>>> You may subscribe to the OCD-L by emailing listserv@... .In the body of your message write: subscribe OCD-L your name. You maysubscribe to the Parents of Adults with OCD List atparentsofadultswithOCD . You may accessthe files, links, and archives for our list at . Our list advisors areTamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our listmoderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses,Roman, and Jackie Stout. Subscription issues, problems, orsuggestions may be addressed to Louis Harkins, list owner, atharkins@... .>>>You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Roman, and Jackie Stout. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... .

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Guest guest

Hi Stacey,

Thanks for replying. My son is profoundly gifted which means (after a

rough few early years) that I had become very positive about his future.

Then I realised he is not quite normal so it is an adjustment. Reading

this list has let me know that so far I am lucky in this OCD thing as my

son's OCD doesn't really impair his enthusiasm to do things. I am still

new at it all though, and trying to notice when he is better or worse to

find triggers and remedies. It is hard without pdocs to go to who are

supportive. Brenton has been a bit better over the last week so I am

feeling positive right now.

Best wishes,

Rosie

To

>

>

> > -------------------------- eGroups

> Sponsor -------------------------~-~>

> > Get a FREE Olan Mills portrait -- visit ibelieve.com today!

> > 1/7801/17/_/531051/_/968737185/

>

> ---------------------------------------------------------------------_

> ->

> >

> > Dear ,

> >

> > It's very late at night here in New Orleans. But when I read

your

> post,

> > I had to respond. The heartache you feel is so very natural and

> expected

> > when we first learn about our child having OCD. When we are

pregnant,

> we

> > think of all the wonderful things we will do for and with our

child -

> dream

> > amazing dreams of closeness, love and deep contentment for all.

Then,

> BAM,

> > it seems shattered b/c of an unwelcome invader who cloaks itself in

> such

> > sneaky ways that make our child unrecognizable and unable to be

> him/herself.

> > We want to protect out child and to make it all go away.

> >

> > Finding out that your child has OCD is not unlike the same

> grieving

> > process people go through when they experience any major and

profound

> loss.

> > You are greiving for the dream and for your child's dream. Like

>

> > Kubler-Ross explained, there are 5 distinct steps to grieving. You

> have

> > hurdled beyond the first one, denial, and are rapidly approaching

the

> > remainig 4 steps: anger, bargaining, depression and acceptance.

Most

> of us

> > are somewhere in those last 3 steps. My daughter, , (age 11)

was

> > diagnosed 2 years ago and I still struggle with my emotions about

OCD.

> > You're right, of course, that there are worse, more life-threatening

> > conditions, but that really doesn't negate your own pain and

sadness.

> >

> > What to do? Read all you can - Tamar Chansky, our own resident

> expert,

> > has a new, excelletn book geared just for all of us. Join the OCF,

> post

> > here, and mostly, get some support for YOU. It is so important that

> you take

> > care of yourself and not allow yourself to also become overwhelmed

by

> > unnecessary committments. Utilize your support system - both

> professional

> > and friends. Ask questions on the OCF site.

> >

> > I, too, was so alarmed by the statistics of doom and gloom.

But

> I

> > learned at the OC conference that it has been only recently that

> intervention

> > has begun with children at such an early age, enabling them to

benefit

> > tremendously and live more conventional lives. The news at the

> conference

> > was optimistic and very hopeful.

> >

> > Mostly, hang in there, keep writing us and know that when you

are

> in the

> > closet weeping, we are here waiting to give you a hug when you come

> out.

> >

> > Gail in N'Awlins

> >

> >

> > You may subscribe to the OCD-L by emailing listserv@... .

> In the body of your message write: subscribe OCD-L your name. You

may

> subscribe to the Parents of Adults with OCD List at

> parentsofadultswithOCD . You may access

> the files, links, and archives for our list at

> . Our list advisors are

> Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list

> moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses,

> Roman, and Jackie Stout. Subscription issues, problems, or

> suggestions may be addressed to Louis Harkins, list owner, at

> harkins@... .

> >

> >

> >

>

>

> You may subscribe to the OCD-L by emailing listserv@... .

In the body of your message write: subscribe OCD-L your name. You may

subscribe to the Parents of Adults with OCD List at

parentsofadultswithOCD . You may access

the files, links, and archives for our list at

. Our list advisors are

Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list

moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses,

Roman, and Jackie Stout. Subscription issues, problems, or

suggestions may be addressed to Louis Harkins, list owner, at

harkins@... .

>

>

>

>

>

>

> ---------------------------------

>

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Guest guest

Kristy,

How are you feelings after the antibiotics? That does seem like a short

coarse. My brain is dead here latley--what were you getting them for. The

PICC line was a horror to put in, but I guess I am glad it was done. I was

getting stuck everyday because my IVs don't last. this one can stay in for

how ever long I need it (which I am praying won't be till Christmas)

I am glad your is done and I really hope that you don't have to have it again.

Love and hugs

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,

It's Kristy again. My dr had me on Levaquin in IV form b/c

of this last infection, and apparently with this particular

drug it only takes three days at least that was what she

wanted for me hoping that this would knock out whatever the

infection is. I have just made my next appt for the

additional culture so we shall see whether or not the

antibiotic took care of the problem for me.

Also when my dr said that it would be a 3 day course I was

kind of surprised too even though I've heard of doing IV

antibiotics for 3 days before. But I thought that I might

end up with a longer course. I did ask my dr about what

would happen if this antibiotic didn't take care of the

problem and she told me that I would be on the IV

antibiotics for a little longer.

I will keep everyone posted on how I do.

=====

Kristy :)

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

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Dear ,

Medication has been a tremendous help to my daughter, as has CBT

(therapy.) She is only seven years old; diagnosed with OCD at age

five. The meds manage her anxiety and make her able to function and do

the necessary therapy. I'm not saying meds are for everyone, but in our

case they have been a real blessing and life saver.

Take care,

Lesli

james111@... wrote:

>

> Thanks Judy for sharing your experiences with me.

>

> I joined this list yesterday - I think I have learned more in one day

> than that which I have learned over the past two years.

>

> I also saw a ref on this list somewhere in a old post about another

> eGroup list called " drugawareness " - does anyone visit this list?

>

> There is some ferocious posting going on over there about Prozac,

> Zoloft - basically damning all SSRIs in general - and saying that the

> side-effects of SSRIs are far worse that the conditions that they are

> intended to treat.

>

> We have not started on any form of medication for our nine-year-old

> as yet - and the more I read about SSRIs, the more apprehensive I

> become about introducing my child to SSRIs.

>

> Needless to say, I welcome any advice or any comments.

>

> , in Sydney.

>

>

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Hi Kristy,

I have never heard of that antibiotic. I really hoped that it worked for

you. I saw the infectious disease doc today and my ulcer is starting to look

better. He won't give me any idea of how long he figures I'll be on the

antibiotics. The PICC line is bothering me more than the ulcer. The

radiologist pulled the sutures too tight and when the nurse was cleaning it

she ripped the skin some. Needless to say she won't be cleaning it again.

It doesn't hurt (only when they clean) it's just a constant nagging picking.

Plus driving the 50-60 miles a day to get a dose is a real pain. I'm hoping

that it will be done for Christmas--keep your fingers crossed!!

Hope you're doing well and had a nice Thanksgiving.

Love

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,

I'm sorry to hear that the dr pulled the sutures too tight,

and that the nurse ripped some of the skin while trying to

clean you up. I really do hope that the PICC comes out

soon. Have you ever had to have this done before, and if

so for how long with the others?

My dr is bound and determined to get rid of these

infections. I think in time that this will all stop once

the Medrol is fully out of my system. And I can guarantee

that it will be a very, very long time before I have a need

for that stuff again. I'm going to make sure that I stick

with my sitz baths b/c that also seems to be helping this

itching. The warm sitz baths work well for the itching but

when I start having burning b/c of the vulvodynia my dr

wants me to do sitz baths in cool water for 15 minutes.

I am sick and tired of doing sitz baths, and if I can get

away with doing them once a day (usually when I'm ready to

go to bed) then I'm happy.

Other than that I'm hanging in there. I think that I will

close this now as I think that I've babbled enough.

Take care and feel better soon.

=====

Kristy :)

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

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Kristy,

This is the first time that I have had to have the PICC. My viens are just

too shot from the years of use.

Isn't there any type of creams or Benadryl or anything that you can use to

even cut down the itching? That sounds so uncomfortable.

I guess things could be worse with the line, it is just such a bother not

being able to lift etc. Plus I always sleep on that side so I spend a lot of

time waking up wich doesn't help.

Fingers are crossed that your infections are cleared. When are you going for

the cultures--I swear all the meds are kiling my brain cells cuz I can't

remember anything.

Later.

love

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Question,

whats a sitz bath? and whats it for?

melinda

Re: To

Kristy,

This is the first time that I have had to have the PICC. My viens are just

too shot from the years of use.

Isn't there any type of creams or Benadryl or anything that you can use to

even cut down the itching? That sounds so uncomfortable.

I guess things could be worse with the line, it is just such a bother not

being able to lift etc. Plus I always sleep on that side so I spend a lot

of

time waking up wich doesn't help.

Fingers are crossed that your infections are cleared. When are you going for

the cultures--I swear all the meds are kiling my brain cells cuz I can't

remember anything.

Later.

love

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Hi Melinda,

A sitz bath is a special kind of bath that is done for

therapuetic purposes such as for treating hemorrhoids. It

can be done in the tub or on the toilet in a special pan

designed for sitz baths. I have the special pan and do

mine on the toilet b/c of the fact that I have to pay for

water here.

I only do them for about 20 minutes at a time so I really

can't get that uncomfortable. I do the sitz baths to help

with the itching and pain that I get as a result of the

vulvodynia (will be glad to send some links on it for you

to look at if you are interested.

I do hope that this is of some help to you.

=====

Kristy :)

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

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,

The sitz baths are doing me quite well when I do them on a

schedule. But yes there is a steroid cream that I

sometimes use. It's called Diprolene but I try not to use

it if I can help it. Another thing that I have is the

lidocaine ointment that I use to control my vulvar pain. I

also have a spray bottle that has water in it that I have

mixed with the same solution that I use in my sitz baths.

That solution is of sea salt and baking soda. It is a big

help to me.

And it's also b/c of that itching that my dr put me on the

Medrol earlier this year. And unfortunately itching is one

of the symptoms of vulvodynia. I can't use Benadryl b/c it

makes me very, very sleepy and my dr who saw me thru the

Grand Mal Seizure that I had in 1992 thanks to the Voltaren

said that I can't take OTC meds for most stuff like that

anymore.

Well, I guess I've blabbed enough for now that I'm going to

go ahead and close this note for now.

Feel better soon.

=====

Kristy :)

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

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Thanks for the info. they sound like they feel good. but i think id get

annoyed if i had to do them so often.

Melinda

Re: To

Hi Melinda,

A sitz bath is a special kind of bath that is done for

therapuetic purposes such as for treating hemorrhoids. It

can be done in the tub or on the toilet in a special pan

designed for sitz baths. I have the special pan and do

mine on the toilet b/c of the fact that I have to pay for

water here.

I only do them for about 20 minutes at a time so I really

can't get that uncomfortable. I do the sitz baths to help

with the itching and pain that I get as a result of the

vulvodynia (will be glad to send some links on it for you

to look at if you are interested.

I do hope that this is of some help to you.

=====

Kristy :)

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

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Melinda,

You are so welcome, and yes it does feel good. For a time

I did get annoyed with doing them every day but it's the

only other thing in addition to the pain meds and sometimes

the meds for itching that I can do to try to keep both of

those under control. If you have other questions about

vulvodynia please let me know and I will be glad to help

you out.

I had to do a sitz bath earlier b/c the pain was getting to

me again. Yes, I caught the flare as it was coming on.

That's the first time that I did that. I'm glad that I was

able to do it. Now to get myself feeling better soon from

that.

Please feel free to e-mail me privately any time. Take

care and talk to you later.

=====

Kristy :)

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

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