Guest guest Report post Posted August 23, 2009 Every time I see a medical professional now and the ask the standard question " Are you allergic to any medications? " , I always respond that I'm allergic to statins and morphine. I include morphine in the mix since my body seems to treat it like water. If I ever need a strong pain killer, I want something that is more likely to work instead of them trying morphine first. Steve stephen ottridge wrote: > > > You don't need to convince your doctor. Stop the statins and tell the > doc that you will never take a statin or any other cholesterol reducing > medication. I did and I still have my doctor. > > > > > From: mzpz2u <deborahpease@...> > Subject: Hello > Lipitor > Date: Sunday, August 23, 2009, 9:32 AM > > > > I have had issues with extreme fatigue and muscle joint pain since > May of this year. My doctor ran tests for RA..negative, prescribed > NSAIDs..it just got worse. I thougtht about what was the significant > change and it waws in May when my dose of Zocor went from 20mg to > 40mg. It was like night and day.... > > I called my doc and asked if this could be a cause and she > instructed me to go off for three weeks..In those three weeks I felt > much better but still not 100%. I went back on the Zocor with no > clear cut answers. > > During this time I had to stop playing golf because the pain was so > bad in my hands and my legs felt so tight I thought they would > explode. I was getting quite depressed thinking this is how life is > going to be. > > I had another appointment one week ago and I informed my odc of the > same problems...she ran a test for uric acid...it was sky high and > has put me on Allopurinol which lowers the uric acid in the blood. > Mainly people with gout are prescribed this...but I do not have the > gout symptoms...then I ran across this group and VOILA my suspicions > are confirmed. I just need to convince my doc. I am afraid that my > muscles are breaking down thus causing the high uric acid..this is > scary to me... > > Sharing the journey > Deb -- Steve - dudescholar4@... " The Problem with Socialism is that eventually you run out of Other People's Money. " --Margaret Thatcher " Mistrust of Government is the Bedrock of American Patriotism " Take World's Smallest Political Quiz at http://www.theadvocates.org/quiz.html Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 29, 2009 Hi , I was unable to attend but would love to see the survey. Thanks for putting that together! katiethroop@... -- In , " " <laura.greiman@...> wrote: > > Hello everyone! My name is Greiman and I am a Registered > Dietitian at Sharp Memorial Hospital in San Diego, CA. I work with > our Bariatric Program (Lite Futures) part time in addition to working > in the hospital. For those of you at ASBS this year, I was the one > to volunteer to put together a survey of all dietitians working with > Bariatric patients to find out what everyone is doing in terms of > protein, vitamins, etc with the hopes of using this information to > guide future research and forming national guidelines. My goal is to > have this survey out by the end of July from the list of emails > obtained at the ASBS meeting. If you were unable to attend, please > let me know and I will send you a survey. Thanks! > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 29, 2009 Hi , I also was not able to attend this year but would be very interested in the survey results. Thanks, S Birch, RD LD (foodycoach@...) > > > > Hello everyone! My name is Greiman and I am a Registered > > Dietitian at Sharp Memorial Hospital in San Diego, CA. I work with > > our Bariatric Program (Lite Futures) part time in addition to working > > in the hospital. For those of you at ASBS this year, I was the one > > to volunteer to put together a survey of all dietitians working with > > Bariatric patients to find out what everyone is doing in terms of > > protein, vitamins, etc with the hopes of using this information to > > guide future research and forming national guidelines. My goal is to > > have this survey out by the end of July from the list of emails > > obtained at the ASBS meeting. If you were unable to attend, please > > let me know and I will send you a survey. Thanks! > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 29, 2009 me too Diane Olson MS RD CDE UW Health Bariatric Surgery Program University of Wisconsin Hospital and Clinics (608) 265-1718 dolson3@... Re: Hello Hi , I was unable to attend but would love to see the survey. Thanks for putting that together! katiethroop@... -- In , " " <laura.greiman@...> wrote: > > Hello everyone! My name is Greiman and I am a Registered > Dietitian at Sharp Memorial Hospital in San Diego, CA. I work with > our Bariatric Program (Lite Futures) part time in addition to working > in the hospital. For those of you at ASBS this year, I was the one > to volunteer to put together a survey of all dietitians working with > Bariatric patients to find out what everyone is doing in terms of > protein, vitamins, etc with the hopes of using this information to > guide future research and forming national guidelines. My goal is to > have this survey out by the end of July from the list of emails > obtained at the ASBS meeting. If you were unable to attend, please > let me know and I will send you a survey. Thanks! > > > ------------------------------------ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 29, 2009 I would be interested as well Talbot, RD CD Program Coordinator Registered Dietitian Surgical Weight Loss Center of Utah Salt Lake Regional Medical Center atalbot@... phone: 801-746-2885 fax: 801-746-2886 NOTICE: This e-mail may contain PRIVILEGED and CONFIDENTIAL information and is intended only for the use of the specific individual(s) to which it is addressed. IT may contain Protected Health Information that is privileged and confidential. Protected Health Information may be used or disclosed in accordance with law and you may be subject to penalties under law for improper use or further disclosure of the Protected Health Information in this e-mail. If you are not an intended recipient of this e-mail, you are hereby notified that any unauthorized use, dissemination or copying of this e-mail or the information contained in it or attached to it is strictly prohibited. If you have received this e-mail in error, please delete it and immediately notify the person named above by reply e-mail. Thank you. " Olson Diane L " <dolson3@...> Sent by: 09/29/2009 10:37 AM Please respond to To < > cc Subject RE: Re: Hello me too Diane Olson MS RD CDE UW Health Bariatric Surgery Program University of Wisconsin Hospital and Clinics (608) 265-1718 dolson3@... Re: Hello Hi , I was unable to attend but would love to see the survey. Thanks for putting that together! katiethroop@... -- In , " " <laura.greiman@...> wrote: > > Hello everyone! My name is Greiman and I am a Registered > Dietitian at Sharp Memorial Hospital in San Diego, CA. I work with > our Bariatric Program (Lite Futures) part time in addition to working > in the hospital. For those of you at ASBS this year, I was the one > to volunteer to put together a survey of all dietitians working with > Bariatric patients to find out what everyone is doing in terms of > protein, vitamins, etc with the hopes of using this information to > guide future research and forming national guidelines. My goal is to > have this survey out by the end of July from the list of emails > obtained at the ASBS meeting. If you were unable to attend, please > let me know and I will send you a survey. Thanks! > > > ------------------------------------ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 29, 2009 - are you able to send a copy of your survey as an attachment to the entire group? Thanks, Barb Moe, LRD Barbara Moe, LRD Nutrition Therapy MeritCare Health Systems 701-234-2245 E-Mail: barbara.moe@...>>> "foodycoach" <foodycoach@...> 9/29/2009 11:03 AM >>> Hi ,I also was not able to attend this year but would be very interested in the survey results.Thanks,S Birch, RD LD (foodycoach )> >> > Hello everyone! My name is Greiman and I am a Registered > > Dietitian at Sharp Memorial Hospital in San Diego, CA. I work with > > our Bariatric Program (Lite Futures) part time in addition to working > > in the hospital. For those of you at ASBS this year, I was the one > > to volunteer to put together a survey of all dietitians working with > > Bariatric patients to find out what everyone is doing in terms of > > protein, vitamins, etc with the hopes of using this information to > > guide future research and forming national guidelines. My goal is to > > have this survey out by the end of July from the list of emails > > obtained at the ASBS meeting. If you were unable to attend, please > > let me know and I will send you a survey. Thanks!> > > > > >> This e-mail message is intended only for the named recipient(s) above and is covered by the Electronic Communications Privacy Act 18 U.S.C. Section 2510-2521. This e-mail is confidential and may contain information that is privileged or exempt from disclosure under applicable law. If you have received this message in error please immediately notify the sender by return e-mail and delete this e-mail message from your computer. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 29, 2009 I would love to see it as well. Deirdre , MS, RD, LDN>> Hello everyone! My name is Greiman and I am a Registered> Dietitian at Sharp Memorial Hospital in San Diego, CA. I work with > our Bariatric Program (Lite Futures) part time in addition to working > in the hospital. For those of you at ASBS this year, I was the one > to volunteer to put together a survey of all dietitians working with > Bariatric patients to find out what everyone is doing in terms of > protein, vitamins, etc with the hopes of using this information to > guide future research and forming national guidelines. My goal is to > have this survey out by the end of July from the list of emails > obtained at the ASBS meeting. If you were unable to attend, please > let me know and I will send you a survey. Thanks!> > >------------ --------- --------- ------ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 29, 2009 ,Just wanted to mention that the survey can be uploaded to the "Files" section of the website so that any group members can access it. Just select to notify the group of the upload. This listserv does accept attachments, but does not allow them to be saved in the archives, and some members use computers in facilities whose internet security does not allow attachments. It appears that there is a lot of interest.Owner/Moderator, Bariatric Nutrition Dietitians Discussion Group+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Bethel, MS, RD, LD/N, CLTRegistered Dietitian specializing in chronic conditions related to food sensitivities, allergies, and intolerances*1526 Nuremberg Boulevard, Punta Gorda, FL 33983-6015Telephone: 941-624-5002; E-mail: lbethelrd@...; Local and distances services* Irritable bowel, migraines, fibromyalgia, arthralgias, gas, reflux, esophagitis, indigestion, celiac disease,Crohn’s, colitis, sinusitis, psoriasis, eczema, autism spectrum disorders/ADD/ADHD, and others++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Re: Hello Hi , I was unable to attend but would love to see the survey. Thanks for putting that together! katiethroop@... -- In , "" <laura.greiman@...> wrote: > > Hello everyone! My name is Greiman and I am a Registered > Dietitian at Sharp Memorial Hospital in San Diego, CA. I work with > our Bariatric Program (Lite Futures) part time in addition to working > in the hospital. For those of you at ASBS this year, I was the one > to volunteer to put together a survey of all dietitians working with > Bariatric patients to find out what everyone is doing in terms of > protein, vitamins, etc with the hopes of using this information to > guide future research and forming national guidelines. My goal is to > have this survey out by the end of July from the list of emails > obtained at the ASBS meeting. If you were unable to attend, please > let me know and I will send you a survey. Thanks! > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 30, 2009 , This is Eva from Balboa, Can you send me the questionnaire? Eva Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 1, 2010 Carolyn, welcome aboard. Ask questions, you'll learn a lot. ew Hello Just wanted to say Hi! I just joined today. Wanting to do some sprouting in order to eat healthier. My husband has sprouted some wheat before so we could grow our own wheatgrass for juicing, but that is all we've ever done. Hope to learn a lot. carolyn Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 6, 2010 hi group i just have a question i have a bottle of coconut vitamins and they are organinic and i wanted to know if i can take it along with my hiv medications and would it hurt or help. I am just tying to do everything i can to help my self out. the next question is that i suffer from facial wasting so bad until it depresses me from going out the house i am really haveing a hard time dealing with this problem and if anyone had concerns on these issues and help and advise for me please let me know, please! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 7, 2010 I'm not sure what's in your " coconut " vitamins, but the probably won't hurt you, and might even be of benefit. In any case, I wouldn't worry. If you search the archives of this list, you will see lots of information about products to control facial wasting. Check those files, and come back with questions. JB Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 7, 2010 hello to the group and i am cici, i live in tennessee and i been dealing with hiv/aids since feb of 1999! I am feeling really good today as for my health but my appearence has changed drastically, i took zerit and didn't know of it affects for facial wasiting and learnt after i got immune to the medicine it devisating effects on wasting. Presently today i have gotton most of my muscle mass back i am 6.2" and 250lbs a little out of weight but i am happy for the weight because at least that part of my body doen't look like i am effected with the virus. I got the big stomach which i have gotton use to looking 9 months pragneant but the face is just so terrible i have at least three smiles when i smile it is so depressing i am fat everywhere else and fading in my face. I can not afford the fancy expensive medicines i see being discussed in this group but if you or anyone know of some assistance i can get or even help please keep me in mind and thank you so much for you imput. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2010 Dear one, I am so sorry to hear about these sad moments in your life, but I am so happy to see that you are determined to pick yourself up and go forward. You are an inspiration to anyone who has ever suffered any kind of loss. I will be here pulling for you and cheering you on. I believe in you. I have faith in you. I know you can do this. You are not alone. Be blessed, be healthy and take good care, Rashelle Harness the Power of Oxygen. It is Oxygen that burns fat. Age better, look better, feel better. www.oxygenlift.net Hello I have just decided that I MUST get out from under this weight I am carrying. I have had the LL Program for 2 yrs and have yet to use it! How's that for avoidance behavior? I have just learned that my fiance' was seeing several other women at the same time he was seeing me, so after drowning my sorrows in ice cream, I realize I MUST take control of my weight, for my own well-being. I hope to have the strength to make this program successful, and feel better about myself. I've been unemployed for 9 mos. also, so it seems there's not much more negative things that can happen to me. I'm tired of being down. ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.436 / Virus Database: 271.1.1/2748 - Release Date: 03/15/10 07:33:00 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2010 Hi, you sound like me as far as avoidance goes. I have all the LL DVD's too including reflexology and very rarely use them even tho I know how great they are. Everyone on this list is so helpful and friendly. How about if we make a goal to get with this program together. I am sorry too for what you are going through. I am reading a wonderful book right now I would recommend to you. It's called The Best Year of Your Life by Debbie Ford. I really believe I can change my old habits and this book is helping me truly believe it and act on it. Also a little saying I love is Action before Motivation. I also have a few others but they are upstairs so I'll send them later. Glad you're here and let's just do it! Chris On Fri, 05 Mar 2010 00:55:31 -0000 " cyn1293 " <cyndi1293@...> writes: I have just decided that I MUST get out from under this weight I am carrying. I have had the LL Program for 2 yrs and have yet to use it! How's that for avoidance behavior? I have just learned that my fiance' was seeing several other women at the same time he was seeing me, so after drowning my sorrows in ice cream, I realize I MUST take control of my weight, for my own well-being. I hope to have the strength to make this program successful, and feel better about myself. I've been unemployed for 9 mos. also, so it seems there's not much more negative things that can happen to me. I'm tired of being down. ____________________________________________________________ Nutrition Improve your career health. Click now to study nutrition! http://thirdpartyoffers.juno.com/TGL2141/c?cp=KdzF41_ELRW9DFM6tbwMbwAAJ1BARa6yTr\ vSrvK2gU-pk-w7AAYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAASQwAAAAA= Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2010 You can do it Ladies one step at a time . Stress does so much to our bodies renew your mind. I have been through so much last few months and it takes it toll. I have to renew sometimes several times in a day! try not to think where you are more like where you want to be! God's Blessings Rettig (Army Mom of 2) Re: Hello Hi, you sound like me as far as avoidance goes. I have all the LL DVD's too including reflexology and very rarely use them even tho I know how great they are. Everyone on this list is so helpful and friendly. How about if we make a goal to get with this program together. I am sorry too for what you are going through. I am reading a wonderful book right now I would recommend to you. It's called The Best Year of Your Life by Debbie Ford. I really believe I can change my old habits and this book is helping me truly believe it and act on it. Also a little saying I love is Action before Motivation. I also have a few others but they are upstairs so I'll send them later. Glad you're here and let's just do it! Chris On Fri, 05 Mar 2010 00:55:31 -0000 " cyn1293 " <cyndi1293@...> writes: I have just decided that I MUST get out from under this weight I am carrying. I have had the LL Program for 2 yrs and have yet to use it! How's that for avoidance behavior? I have just learned that my fiance' was seeing several other women at the same time he was seeing me, so after drowning my sorrows in ice cream, I realize I MUST take control of my weight, for my own well-being. I hope to have the strength to make this program successful, and feel better about myself. I've been unemployed for 9 mos. also, so it seems there's not much more negative things that can happen to me. I'm tired of being down. __________________________________________________________ Nutrition Improve your career health. Click now to study nutrition! http://thirdpartyoffers.juno.com/TGL2141/c?cp=KdzF41_ELRW9DFM6tbwMbwAAJ1BARa6yTr\ vSrvK2gU-pk-w7AAYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAASQwAAAAA= Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 16, 2010 Hello , You are a great little cheerleader too. I am so sorry you have been under so much stress lately, but so glad that you know what to do to handle it. Be blessed, be healthy and take good care, Rashelle Harness the Power of Oxygen. It is Oxygen that burns fat. Age better, look better, feel better. www.oxygenlift.net Re: Hello Hi, you sound like me as far as avoidance goes. I have all the LL DVD's too including reflexology and very rarely use them even tho I know how great they are. Everyone on this list is so helpful and friendly. How about if we make a goal to get with this program together. I am sorry too for what you are going through. I am reading a wonderful book right now I would recommend to you. It's called The Best Year of Your Life by Debbie Ford. I really believe I can change my old habits and this book is helping me truly believe it and act on it. Also a little saying I love is Action before Motivation. I also have a few others but they are upstairs so I'll send them later. Glad you're here and let's just do it! Chris On Fri, 05 Mar 2010 00:55:31 -0000 " cyn1293 " <cyndi1293@...> writes: I have just decided that I MUST get out from under this weight I am carrying. I have had the LL Program for 2 yrs and have yet to use it! How's that for avoidance behavior? I have just learned that my fiance' was seeing several other women at the same time he was seeing me, so after drowning my sorrows in ice cream, I realize I MUST take control of my weight, for my own well-being. I hope to have the strength to make this program successful, and feel better about myself. I've been unemployed for 9 mos. also, so it seems there's not much more negative things that can happen to me. I'm tired of being down. __________________________________________________________ Nutrition Improve your career health. Click now to study nutrition! http://thirdpartyoffers.juno.com/TGL2141/c?cp=KdzF41_ELRW9DFM6tbwMbwAAJ1BARa6yTr\ vSrvK2gU-pk-w7AAYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAASQwAAAAA= Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 25, 2010 Welcome to Cast! There is always a bit of a transition when they first go into a cast. I think sitting is a bit harder than standing. Try a bean bag chair to help support him a bit while learning to sit again. They do catch on quickly. As far as overheating, we usually stay inside during the hottest parts of the day. Also I know is working on some cooling vests to keep the kids cool outside. I don't know whether you are getting a Mehta style EDF cast or a Risser cast. I would absolutely cast with an EDF mehta cast to get any correction possible. They hold better then braces for progressive infantile scoliosis, are often less hot. Please let me know if you have other questions. Jenn Mommy to Cole, 2.5 years, 1st brace from Rochester after 10 months in 5 casts, 2 degrees down from 47 out of cast/brace How do you keep your little ones from over heating? Do they learn how to do the normal things quickly? When is a brace put on after the cast? I am worried about his decision, but I would do anything for my son! > > Hello all! >  > I am new to the group. My son just had his first cast put on Friday, 5/21. He is 2 years and 4 months, and has many other issues including a heart defect, diabetes, and had a gtube up until a few days ago. I am happy to report that besides this pesky scoliosis, all is well with him. They found his scoliosis last Oct., and we tried the brace, but with the gtube and the fact that he had just learned how to walk, it didn't work. His ortho has put a cast on, even though he feels that Timmy just needs the brace. We have about 3 weeks to decide what to do. >  > His degree is at about 55. He is running around in his cast, but he couldn't sit up, so yesterday they removed a little around his hips to make him more comfy. I just had a few questions about the cast. How do you keep your little ones from over heating? Do they learn how to do the normal things quickly? When is a brace put on after the cast? I am worried about his decision, but I would do anything for my son! >  > Baker > mom to Timmy, 1st cast > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 25, 2010 Hi , First off, have they ruled out that he doesn't have congenital scoliosis (scoliosis caused by a hemi vertebra, fused ribs, etc.) ? With so many other anomalies I would want to be sure it isn't a bone based problem rather than idiopathic (unknown nature) scoliosis. If it is bone based, casting may not work since the root of the problem causing the curves would still be present and may in some circumstances make things worse. Has your son had an MRI to rule out bone malformations? An MRI is the best way to check for that. Other than that, if your son does indeed have idiopathic infantile scoliosis, then yes, he will be back to doing his "normal" things soon, the first cast is the hardest. It took my daughter about a week or 2 to get back to her "old self". Most doctors don't move you to a brace until the curves are under 10 degrees on a standing x-ray out of cast. The time it takes to get to that point varies from child to child. Jane Grace, 3 1/2 yrs, congenital scoliosis (hemi removed 9/09, in 4th cast to "fix" compensatory curves caused by the hemi, moving to a brace on FRIDAY! yeah! ), born with moderate omphalocele containing 3/4 of her liver, fully repaired. From: Baker <tkbaker05@...>infantile scoliosis treatment Sent: Tue, May 25, 2010 8:42:21 AMSubject: Hello Hello all! I am new to the group. My son just had his first cast put on Friday, 5/21. He is 2 years and 4 months, and has many other issues including a heart defect, diabetes, and had a gtube up until a few days ago. I am happy to report that besides this pesky scoliosis, all is well with him. They found his scoliosis last Oct., and we tried the brace, but with the gtube and the fact that he had just learned how to walk, it didn't work. His ortho has put a cast on, even though he feels that Timmy just needs the brace. We have about 3 weeks to decide what to do. His degree is at about 55. He is running around in his cast, but he couldn't sit up, so yesterday they removed a little around his hips to make him more comfy. I just had a few questions about the cast. How do you keep your little ones from over heating? Do they learn how to do the normal things quickly? When is a brace put on after the cast? I am worried about his decision, but I would do anything for my son! Baker mom to Timmy, 1st cast Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 25, 2010 Jane- Yes they did an MRI because at first his ortho did think it was congenital, so the fact that it wasn't stumped him a bit. We did the watch and wait along with the brace. I was not a fan of the brace, but he still believes it is the way to go. Our plan for now is to do the best with the cast, and discuss exactly what his curve is and the best way to help him at our appt in 3 weeks. He is doing better everyday in the cast. It was so hard to put him in it because he just learned to climb up on things and now he can't again. From: Jane Bigler <janemhar@...>Subject: Re: Helloinfantile scoliosis treatment Date: Tuesday, May 25, 2010, 5:56 PM Hi , First off, have they ruled out that he doesn't have congenital scoliosis (scoliosis caused by a hemi vertebra, fused ribs, etc.) ? With so many other anomalies I would want to be sure it isn't a bone based problem rather than idiopathic (unknown nature) scoliosis. If it is bone based, casting may not work since the root of the problem causing the curves would still be present and may in some circumstances make things worse. Has your son had an MRI to rule out bone malformations? An MRI is the best way to check for that. Other than that, if your son does indeed have idiopathic infantile scoliosis, then yes, he will be back to doing his "normal" things soon, the first cast is the hardest. It took my daughter about a week or 2 to get back to her "old self". Most doctors don't move you to a brace until the curves are under 10 degrees on a standing x-ray out of cast. The time it takes to get to that point varies from child to child. Jane Grace, 3 1/2 yrs, congenital scoliosis (hemi removed 9/09, in 4th cast to "fix" compensatory curves caused by the hemi, moving to a brace on FRIDAY! yeah! ), born with moderate omphalocele containing 3/4 of her liver, fully repaired. From: Baker <tkbaker05 (DOT) com>infantile scoliosis treatment @groups. comSent: Tue, May 25, 2010 8:42:21 AMSubject: [infantile_scoliosi s] Hello Hello all! I am new to the group. My son just had his first cast put on Friday, 5/21. He is 2 years and 4 months, and has many other issues including a heart defect, diabetes, and had a gtube up until a few days ago. I am happy to report that besides this pesky scoliosis, all is well with him. They found his scoliosis last Oct., and we tried the brace, but with the gtube and the fact that he had just learned how to walk, it didn't work. His ortho has put a cast on, even though he feels that Timmy just needs the brace. We have about 3 weeks to decide what to do. His degree is at about 55. He is running around in his cast, but he couldn't sit up, so yesterday they removed a little around his hips to make him more comfy. I just had a few questions about the cast. How do you keep your little ones from over heating? Do they learn how to do the normal things quickly? When is a brace put on after the cast? I am worried about his decision, but I would do anything for my son! Baker mom to Timmy, 1st cast Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 26, 2010 Hi Robin, Welcome to the group and congratulations on a new house! I am the mom of 6 children, Hannah is going to be 11 in a few weeks. I am happy to have another mom on the list who has an older child. We learn so much from people who have already experienced so much. I hope that you are able to find the services that you need. Connie In a message dated 5/26/2010 7:39:08 A.M. Eastern Daylight Time, sweetickles2001@... writes: Hello, I'm in this group.I would my Daugter she Down Sndrome and she 31 years old and she will be 32 years oldand lives with us in Florida.Right now we try fine for her to do. Where use live which was Schaumburg,IL and she had work program and got paid for it too. We are right Midwaver waiting list for service. We did place for go but the where full and we working anoter one and we have hear any about one. So right doing thing house and out side too. To me that not enough for her to keep busy. We been in Florida since 2006.We just our first house. I'm stay at home mom. like to bowl and go beach and like lister to her music. Thanjs for the invite to the group.Robin Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 26, 2010 Hi , Where is Timmy being casted? We questioned it ourselves initially but Noelle was in the same ballpark and now she is doing just great! Noelle still overheats in her brace when she is outdoors. A cooling vest may help, lots of cold beverages and alternating between outside and inside activities. Good luck! - Noelle's mommy, 3 years oldRochester NYCasted 8 times for 1 1/2 years and in first brace!reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III From: Baker <tkbaker05@...>Subject: Helloinfantile scoliosis treatment Date: Tuesday, May 25, 2010, 3:42 PM Hello all! I am new to the group. My son just had his first cast put on Friday, 5/21. He is 2 years and 4 months, and has many other issues including a heart defect, diabetes, and had a gtube up until a few days ago. I am happy to report that besides this pesky scoliosis, all is well with him. They found his scoliosis last Oct., and we tried the brace, but with the gtube and the fact that he had just learned how to walk, it didn't work. His ortho has put a cast on, even though he feels that Timmy just needs the brace. We have about 3 weeks to decide what to do. His degree is at about 55. He is running around in his cast, but he couldn't sit up, so yesterday they removed a little around his hips to make him more comfy. I just had a few questions about the cast. How do you keep your little ones from over heating? Do they learn how to do the normal things quickly? When is a brace put on after the cast? I am worried about his decision, but I would do anything for my son! Baker mom to Timmy, 1st cast Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 26, 2010 We live near Milwaukee, and he was casted at Children's hospital. Our ortho is the only doctor that does that in the area. I believe it is a risser cast. His cast looks so similar to the pictures on the website, but I don't know the difference between risser and EDF. We could contact the Shriner's hospital of Chicago, but we wouldn't know who to contact. Does anyone know this info?? From: Baker <tkbaker05 (DOT) com>Subject: [infantile_scoliosi s] Helloinfantile scoliosis treatment @groups. comDate: Tuesday, May 25, 2010, 3:42 PM Hello all! I am new to the group. My son just had his first cast put on Friday, 5/21. He is 2 years and 4 months, and has many other issues including a heart defect, diabetes, and had a gtube up until a few days ago. I am happy to report that besides this pesky scoliosis, all is well with him. They found his scoliosis last Oct., and we tried the brace, but with the gtube and the fact that he had just learned how to walk, it didn't work. His ortho has put a cast on, even though he feels that Timmy just needs the brace. We have about 3 weeks to decide what to do. His degree is at about 55. He is running around in his cast, but he couldn't sit up, so yesterday they removed a little around his hips to make him more comfy. I just had a few questions about the cast. How do you keep your little ones from over heating? Do they learn how to do the normal things quickly? When is a brace put on after the cast? I am worried about his decision, but I would do anything for my son! Baker mom to Timmy, 1st cast Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 26, 2010 Hello , welcome to CAST! It sounds like you have already been through a lot, you have such a positive attitude! Most kids really do bounce back in the casts across the boards, it usually does take a couple of weeks or more to get back to doing everything, but they do improve every day in the first cast and amaze us parents! I agree as someone said that the first cast is the hardest. In progressive cases of infantile scoliosis, bracing often does not hold the curve from getting worse. A risser cast is done or applied on a "flat" table, a regular table, and a Mehta Method/EDF cast is applied on a 3 dimensional traction table, with the idea being to get the spine in the straightest position possible, using their own natural growth to improve the curve (s). Scoliosis is a 3 dimensional problem, it curves and "corkscrews". The younger you start properly casting, the better chance you have of avoiding spinal surgeries, which must be done every 6 months or less. While it's not a complete cure for every child, for many it is, and proper casting can at least put off the surgeries for as long as possible, to allow for precious growth time of the child's body. Mehta casts also have specific window cut-outs, a large, mushroom shaped cut-out in the front and usually a smaller one on the back. I think I saw in a later post that you asked about Chicago Shriners. I have heard great things about that hospital on this group, and I'm sure a member will post the contact info for you soon. We adore Shriners and they are doing the most cutting edge work in this field, to be honest, Shriners docs are among the few top ortho surgeons in the world who are doing casting properly right now. As far as heat, we are 15 months into casts and we have had no big problems. We have air conditioning in our home and stay in malls, etc. on very hot days. Ther will be cooling vests available soon, too, we haven't used one yet. You sound like a wonderful Mom! Heidi, Bexon's Mommy, (2 and a half years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast) From: Baker <tkbaker05@...>infantile scoliosis treatment Sent: Tue, May 25, 2010 8:42:21 AMSubject: Hello Hello all! I am new to the group. My son just had his first cast put on Friday, 5/21. He is 2 years and 4 months, and has many other issues including a heart defect, diabetes, and had a gtube up until a few days ago. I am happy to report that besides this pesky scoliosis, all is well with him. They found his scoliosis last Oct., and we tried the brace, but with the gtube and the fact that he had just learned how to walk, it didn't work. His ortho has put a cast on, even though he feels that Timmy just needs the brace. We have about 3 weeks to decide what to do. His degree is at about 55. He is running around in his cast, but he couldn't sit up, so yesterday they removed a little around his hips to make him more comfy. I just had a few questions about the cast. How do you keep your little ones from over heating? Do they learn how to do the normal things quickly? When is a brace put on after the cast? I am worried about his decision, but I would do anything for my son! Baker mom to Timmy, 1st cast Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 26, 2010 Welcome to the list My son with Down syndrome just turned 13 and we live in Arizona. Take care, Kym...mom to 5 Hello > Hello, > I'm in this group.I would my Daugter she Down Sndrome and she 31 > years old and she will be > 32 years oldand lives with us in Florida.Right now we try fine for > her to do. Where use live > which was Schaumburg,IL and she had work program and got paid for it too. > We are right Midwaver > waiting list for service. We did place for go but the where full and we > working anoter one and we > have hear any about one. So right doing thing house and out side too. To > me that not enough for her > to keep busy. We been in Florida since 2006.We just our first house. I'm > stay at home mom. > like to bowl and go beach and like lister to her music. > Thanjs for the invite to the group.Robin > I' > > .. . .. . .. . .. .. ... .... . . . ... . .. ... . > > > > > > > ________________________________________ > > > type_D > > . ... .. . ... . . . .... ... .. .. . .. . .. . .. > > > > Quote Share this post Link to post Share on other sites
