Guest guest Report post Posted January 30, 2006 What is your major?? *being nosy* Lori wrote: > Dr. Ashwal huh? I'm supposed to be transferring from Riverside > Community College to Cal-State San Bernardino for the fall, at which > point I've decided to live on campus in San Bernardino, so maybe if my > Riverside neurologist hasn't figured this out before I transfer, then > I can get IEHP to assign me to Ashwal. > > > > Sincerely, > R. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 30, 2006 English/Language Arts. I want to be a high school teacher. Those Two <those2@...> wrote: What is your major?? *being nosy* Lori wrote: > Dr. Ashwal huh? I'm supposed to be transferring from Riverside > Community College to Cal-State San Bernardino for the fall, at which > point I've decided to live on campus in San Bernardino, so maybe if my > Riverside neurologist hasn't figured this out before I transfer, then > I can get IEHP to assign me to Ashwal. > > > > Sincerely, > R. > A FEW RULES * The list members come from many backgrounds, ages and beliefs So all members most be tolerant and respectful to all members. * Some adult language and topics (like sexual health, swearing..) may occur occasionally in emails. Over use of inappropriate language will not be allowed. If your under 16 ask your parents/gaurdian before you join the list. * No SPAMMING or sending numerous emails unrelated to the topics of spinal muscular atrophy, health, and the daily issues of the disabled. Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe List manager: (Sexy Mature Artist) Email: Esma1999@... oogroups.com List manager: (Sexy Mature Artist) Email: Esma1999@... Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 31, 2006 Hello - That is with me they have not found none of the mutations in me but they put me on colchine and I have did well on it. As for my son Nick we tried him on colchine and it did nothing for him, he still had fevers and all that and he was on it for months. Right now were in the process to see if Dr.Kastner would see him and have him on the study. I haven't heard back yet. They called a week ago saying they would be viewing his records last week and would be in contact, I haven't heard nothing as of yet. As for Nicki I have been reading the post about her and they have not been positive. I see some people saying it could take 18 months to get to the NIH clinic that is a long time to wait. My son I worry so much about him. He is so pale sucken and dark eyes he just don't look good. Since he had his toncils out we haven't had fever but alot of joint pain, abdomen pain and other symtoms just not fevers. My middle child has been braking out in bad canker sores in his mouth and feeling fatiged but no fevers could that mean something too? I broke out as well with canker sore and I have been aching every where lately. Does any one know how long the waiting list is for the clinical studies? Thanks so much everyone Bombardier <petish44@...> wrote: Hello Sacora! My son has been diagnosed with 'Clinical' FMF. That means that Dr. Kastner is convinced that PJ has FMF even though so far they have found none of the known mutations in him. He has responded very well to the Colchicine which is another indicator for FMF. You know, if you have been on Colchicine for the past few years and it has helped and now your son has these periodic fevers, to me personally, that just screams out FMF for your son. Have you tried to get him into the fever study? I would do so as soon as possible, if only to be tested. I'll bet that since NIH has tested you and found you to be probable FMF, Dr. Kastner would be very interested in seeing your son. Has he ever tried Colchicine? If you do try to get him into the study and find that you will have to wait a few months to get in, maybe you could see if one of his docs would be willing to try Colchicine for him. I don't believe that you can " get immune " to the Colchicine but I know that for my son, he has periods where it is not as effective for him as others. The episodes try to come back more often or a little stronger. I think that that is just the nature of the disease. He too, is still growing and as he does, he needs to have his dose increased. I wish I could be of more help! As I said, I think that you both need to go be seen at NIH, he to be tested and you to be followed up on. I want to be able to say, 'go ahead, call Nicky, she'll help guide you', but if you've been reading previous posts, it may not be that simple. Try! Good luck. Pat --------------------------------- Bring words and photos together (easily) with PhotoMail - it's free and works with . Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 31, 2006 Sacora: I am so sad to hear that you and two of your children are not feeling well. As for getting into the study at the NIH, everyone has a different experience and time frame. Some people say it takes up to 18 months, which may be true. However, I think that is on the long side and not everyone waits that long. I heard within 6 weeks of mailing my application and medical records and then got an appt. in 2 weeks. I recommend to anyone applying - obtain the required medical records from your doctor and mail them yourself with the application. That way you know when everything was sent out. Your doctor's office may say they will send them out on a certain date and it never gets done and you are waiting to hear . . . Also when the NIH calls, take the first available appt. they offer that you can make it to. Good luck hearing - and don't be afraid to call and check the status of your application. in Tampa with Jonah, (awaiting genetic testing results), almost 5 years old. > Hello Sacora! My son has been diagnosed with 'Clinical' FMF. That means that Dr. Kastner is convinced that PJ has FMF even though so far they have found none of the known mutations in him. He has responded very well to the Colchicine which is another indicator for FMF. > You know, if you have been on Colchicine for the past few years and it has helped and now your son has these periodic fevers, to me personally, that just screams out FMF for your son. Have you tried to get him into the fever study? I would do so as soon as possible, if only to be tested. I'll bet that since NIH has tested you and found you to be probable FMF, Dr. Kastner would be very interested in seeing your son. > Has he ever tried Colchicine? If you do try to get him into the study and find that you will have to wait a few months to get in, maybe you could see if one of his docs would be willing to try Colchicine for him. > I don't believe that you can " get immune " to the Colchicine but I know that for my son, he has periods where it is not as effective for him as others. The episodes try to come back more often or a little stronger. I think that that is just the nature of the disease. He too, is still growing and as he does, he needs to have his dose increased. > I wish I could be of more help! As I said, I think that you both need to go be seen at NIH, he to be tested and you to be followed up on. I want to be able to say, 'go ahead, call Nicky, she'll help guide you', but if you've been reading previous posts, it may not be that simple. Try! Good luck. > > Pat > > > > > > > > > --------------------------------- > Bring words and photos together (easily) with > PhotoMail - it's free and works with . > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 31, 2006 lynne llerrom wrote: from dale, Good to see you back, Lynne. How's sis? In His service, dale Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 2, 2006 hello my name is julie i have a daughter with sma type 1to type 2 she as just spent the last 9 weeks in hospital on a lifesurrport machine,she is ok now but was touch and go.i just dont know how docs can tell u its the end of the line and to turn surrport off it just shows u what sma kids can do <laotianrose@...> wrote: Hi everyone, my name is and I'm 21 and there is a very real possibility that I have Type 3 Spinal Muscular Atrophy. When I was 11, I was misdiagnosed with Syringomyelia. I have all of the symptoms and motor skill problems but my neurologist must do a biopsy to be sure. More than likely, I do have SMA. I can stand up on my own but with extreme difficulty when I'm sitting on the floor. My shoulders are not very functional, I have much difficulty in raising my outstretched arms up to my chest or higher. I'm also quite talkative so I hope someone else here is too. Sincerely, R. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 2, 2006 Sacora, You should ask Bev or Nikki and Rhonda the coordinator for you to stay at the Childrens Inn... www.childrensinn.org Fran Fran A Bulone Mom to ph 6 yrs old Waxhaw, NC Owner & Moderator Group Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 3, 2006 - Hello I did get an appointment but I had to take the second choice so I can make all the arrangements and with me being across the United States it has been hard so far unless I want to pay for them.I wish we could of went on their first choice but I don't think i can have finances and all that ready. Take care Thank you Sacora -- In , " nchad1967 " <nancy.chad@...> wrote: > > Sacora: > > I am so sad to hear that you and two of your children are not > feeling well. > > As for getting into the study at the NIH, everyone has a different > experience and time frame. Some people say it takes up to 18 > months, which may be true. However, I think that is on the long > side and not everyone waits that long. I heard within 6 weeks of > mailing my application and medical records and then got an appt. in > 2 weeks. I recommend to anyone applying - obtain the required > medical records from your doctor and mail them yourself with the > application. That way you know when everything was sent out. Your > doctor's office may say they will send them out on a certain date > and it never gets done and you are waiting to hear . . . Also when > the NIH calls, take the first available appt. they offer that you > can make it to. > > Good luck hearing - and don't be afraid to call and check the status > of your application. > in Tampa with Jonah, (awaiting genetic testing results), > almost 5 years old. > > > > > > > Hello Sacora! My son has been diagnosed with 'Clinical' FMF. > That means that Dr. Kastner is convinced that PJ has FMF even though > so far they have found none of the known mutations in him. He has > responded very well to the Colchicine which is another indicator for > FMF. > > You know, if you have been on Colchicine for the past few years > and it has helped and now your son has these periodic fevers, to me > personally, that just screams out FMF for your son. Have you tried > to get him into the fever study? I would do so as soon as possible, > if only to be tested. I'll bet that since NIH has tested you and > found you to be probable FMF, Dr. Kastner would be very interested > in seeing your son. > > Has he ever tried Colchicine? If you do try to get him into the > study and find that you will have to wait a few months to get in, > maybe you could see if one of his docs would be willing to try > Colchicine for him. > > I don't believe that you can " get immune " to the Colchicine > but I know that for my son, he has periods where it is not as > effective for him as others. The episodes try to come back more > often or a little stronger. I think that that is just the nature of > the disease. He too, is still growing and as he does, he needs to > have his dose increased. > > I wish I could be of more help! As I said, I think that you > both need to go be seen at NIH, he to be tested and you to be > followed up on. I want to be able to say, 'go ahead, call Nicky, > she'll help guide you', but if you've been reading previous posts, > it may not be that simple. Try! Good luck. > > > > Pat > > > > > > > > > > > > > > > > > > --------------------------------- > > Bring words and photos together (easily) with > > PhotoMail - it's free and works with . > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 3, 2006 Sacora, I am sooo happy for you and ! I honestly feel that both you and your son are headed in the right direction by being seen at NIH! Pat Bombardier, mom to PJ, 13yo, Virginia --------------------------------- Relax. virus scanning helps detect nasty viruses! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 3, 2006 Thank you , I hope this will give us some answers but it also scarries me too. Thank you for being here that is great. I think we are too heading in the right direction. Again thanks everyone for supporting me and my son. Sacora mom of Nicolas 12 Redmond, OR Bombardier <petish44@...> wrote: Sacora, I am sooo happy for you and ! I honestly feel that both you and your son are headed in the right direction by being seen at NIH! Pat Bombardier, mom to PJ, 13yo, Virginia --------------------------------- Relax. virus scanning helps detect nasty viruses! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 3, 2006 -Hi Fran- I was wondering said that they let the Children's Inn know about the appointment and makes the reservations for us is that true? I have seen some postings on her and I don't want to get there and be stuck with no place to stay. What arrangements do I need to do any? thanks so much Sacora -- In , " Fran Bulone " <fbulone@...> wrote: > > Sacora, > You should ask Bev or Nikki and Rhonda the coordinator for you to stay at > the Childrens Inn... > www.childrensinn.org > Fran > Fran A Bulone > Mom to ph 6 yrs old > Waxhaw, NC > Owner & Moderator Group > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 9, 2006 At 10:41 PM 2/8/2006, you wrote: >hi you all, >my name is debora leia, i'm from brazil but live now in miami. i love >natural fragrances, specially because i am alergic to the majority of >synthetic ones. >i'm really new in the art of blending essential oils, i think i don't >know any thing really and hope to learn a lot in this group. have many >question, but now i just wanted to say hello. >peace Hi Debora I'm in Miami, too, and am synthetic to *some* synthetics, enough that I avoid going near perfume counters in stores. I recommend you get some good books, sample a lot of raw aromatics, and start systematically training your nose. Read through the archives, and you'll find it's like a mini-lesson in perfumery. Most of all, have fun, experiment and enjoy yourself. Anya http://.com The premier site on the Web to discover the beauty of Natural Perfume / Join to study natural perfumery Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 11, 2006 > >hi you all, > >my name is debora leia, i'm from brazil but live now in miami. i love > >natural fragrances, specially because i am alergic to the majority of > >synthetic ones. > >i'm really new in the art of blending essential oils, i think i don't > >know any thing really and hope to learn a lot in this group. have many > >question, but now i just wanted to say hello. > >peace > > Hi Debora > I'm in Miami, too, and am synthetic to *some* synthetics, enough that I > avoid going near perfume counters in stores. > > I recommend you get some good books, sample a lot of raw aromatics, and > start systematically training your nose. Read through the archives, and > you'll find it's like a mini-lesson in perfumery. > > Most of all, have fun, experiment and enjoy yourself. > > > Anya > http://.com > The premier site on the Web to discover the beauty of Natural Perfume > / > Join to study natural perfumery > Hi Anya i am doing that already. actually i am in the process of opening a small spa and gift shop in Miami Beach. I am going to sell natural and organic, and environmentally safe products. We also intend to have workshops about aromatherapy, wellness, natural fragrances and other related subjects. Do you have a store in Miami? If so, what is your experience with people here? thanks débora Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 12, 2006 At 11:03 AM 2/11/2006, you wrote: > > >Hi Anya >i am doing that already. actually i am in the process of opening a >small spa and gift shop in Miami Beach. I am going to sell natural and >organic, and environmentally safe products. We also intend to have >workshops about aromatherapy, wellness, natural fragrances and other >related subjects. >Do you have a store in Miami? If so, what is your experience with >people here? >thanks >débora Hi débora: There is a receptive audience there for naturally-fragranced products, so I'm sure you'll do well. Let me know when you open. By experience with people, well, all I had was with the owners, as I'm not in retail. The tourists and Beach residents are wonderful, from my perspective, which is the feedback from the store owners (and hotel owners.) Anya http://.com The premier site on the Web to discover the beauty of Natural Perfume / Join to study natural perfumery Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 15, 2006 Hi - I believe my daughter may have . She will be 4 yrs old on March 17th, 2006 and for the past two and a half years has had the monthly fevers that are only diagnosed as " viral. " I found out about by doing a web search on her symptoms. >>>Some background: I adopted her from China when she was 10 months old and therefore have no medical history from her family and minimal from the orphanage, except that she was " healthy. " She has tubes in her ears (since age 15 mos.) due to frequent ear infections. She is otherwise very healthy and physically/developmentally on track (or ahead) in some areas. She has been having the fevers every three weeks now for the past 7 months along with swollen tonsils and sometimes mouth sores. She has never had strep throat, although many times I've had her throat cultured to rule that out. I'm concerned because it's very frustrating to watch her continue in this cycle with no apparent cause or treatment. I am very interested in seeing if a tonsillectomy would improve things. >>> Betsy, Take time to browse the archives and check out the files. There are more Periodic Fever disorders than ... although rare we have many children here who came to us thinking or being mis-diagnosed with ... and with the new genome project and the ability for the research centers to isolate mutations which are the culprits causing some of the periodic fever syndromes... diagnosing has become much more complex. Read the past few postings... we have had a good amount of new members and we have discussed the need for DNA studies. By the way... my angel was adopted domestically too!! <smile> God Bless Fran Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 19, 2006 Being scared is good. It'll motivate you to do the right things. I wasn't scared enough. It took years for the reality to sink in and for me to realize that I was on death's door. I still consider it more of a nuisance than a life threatening condition. (except when I feel really sick because the heart isn't working properly) Good luck with your doctor visit. Write down your questions and when he/she answers your questions, right down the answers. I keep a notebook listing everything....daily weight, blood pressure, medications, how I'm feeling, and bring that to the appointments. My short term memory seems to be fading. Mike On Feb 18, 2006, at 2:21 PM, Lansing wrote: > Last Tues, Feb 14th, I had my procedure. I now an a joey and scared of > being a kangaroo. My injection fraction was 25% so that's haow I > became a candidate. > > Well I see my doctor on Monday the 20th at noon and he will then give > me all the info I need, I hope. Glad I ran across this list. Hope I > don't come across as being domb but I didn't realize just how scared I > am until I read this. Anyway hope to learn from you guys. > > > > > > > > > > > Please visit the Zapper homepage at > http://www.ZapLife.org > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 20, 2006 have you contacted mercy medical???? here is their website sacora http://www.mercymedical.org/ vanessa mom to kiara 5 off to nih march 7 Hello Hello Everyone Nicolas is getting sick again with his glands swelling, face puffy, headaches, sore throat, all that. I havent been feeling well either so maybe were catching a virus or something. So is everyone getting all the arrangements done for their trips to the NIh. I still haven't heard nothing about flights I know alot of them were saying they only travel 1000 miles and for me it is over 3000 miles, so i am not sure yet about how we are flying there. Any advice? So is there any one that lives close to Oregon in the group?? I thank those who I have chatted with and has given me advice thanks. I wish I could meet with some of you that are going to the NIH that would be very nice. Have a good day and take care all. Sacora mom of Nicolas 12 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 21, 2006 -Thanks Vanissa I will see what they say if they help with that. Thanks so much Sacora -- In , " Bisson " <proudmom@...> wrote: > > have you contacted mercy medical???? > > here is their website sacora > http://www.mercymedical.org/ > > vanessa mom to kiara 5 off to nih march 7 > Hello > > > Hello Everyone > Nicolas is getting sick again with his glands swelling, face puffy, > headaches, sore throat, all that. I havent been feeling well either so > maybe were catching a virus or something. So is everyone getting all > the arrangements done for their trips to the NIh. I still haven't heard > nothing about flights I know alot of them were saying they only travel > 1000 miles and for me it is over 3000 miles, so i am not sure yet about > how we are flying there. Any advice? So is there any one that lives > close to Oregon in the group?? I thank those who I have chatted with > and has given me advice thanks. I wish I could meet with some of you > that are going to the NIH that would be very nice. Have a good day and > take care all. > Sacora mom of Nicolas 12 > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 4, 2006 > > > > hi-i am new here.i have a 16 year old son with severe ocd. he has > been > > in treatment for many years-recently a 30 day stay at the menninger > > clinic in texas. he has improved a great deal over the last couple of > > months as he is really commited to doing treatment now.he is also > > attending a special high school here that has a theraputic component > > to it.his ocd has to do with perfectionism and scrupulosity.this is > > the first time i have lokked for support from other parents going > > through this.it has been a long journey.i also have a 21 year old son > > who is bi-polar. it seemed as soon as we got him good treatment and > > feeling much better, the ocd began in earnest for our 16 year old! i > > am always interested in others experiances and hopefully can help > > others with information i might have. thank you, mary > >hi! thank you for welcoming me. i have heard that rogers memorial has a wonderful program also. tony learned a lot at menninger- but was also very depressed when the reality of it all hit him. he was very homesick-we live in pa. he was very willing to go-but i think he thought at first it was going to be a " quick fix " . when he came home he regressed some at first-which they say is not uncommon. i have learned that eating disorders are a form of ocd.i have had bulimia for 24 years and have my first therapy appointment on monday! i will be happy to share what info i find out about it all. mary > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 4, 2006 > > > > hi-i am new here.i have a 16 year old son with severe ocd. he has > been > > in treatment for many years-recently a 30 day stay at the menninger > > clinic in texas. he has improved a great deal over the last couple of > > months as he is really commited to doing treatment now.he is also > > attending a special high school here that has a theraputic component > > to it.his ocd has to do with perfectionism and scrupulosity.this is > > the first time i have lokked for support from other parents going > > through this.it has been a long journey.i also have a 21 year old son > > who is bi-polar. it seemed as soon as we got him good treatment and > > feeling much better, the ocd began in earnest for our 16 year old! i > > am always interested in others experiances and hopefully can help > > others with information i might have. thank you, mary > >hi! thank you for welcoming me. i have heard that rogers memorial has a wonderful program also. tony learned a lot at menninger- but was also very depressed when the reality of it all hit him. he was very homesick-we live in pa. he was very willing to go-but i think he thought at first it was going to be a " quick fix " . when he came home he regressed some at first-which they say is not uncommon. i have learned that eating disorders are a form of ocd.i have had bulimia for 24 years and have my first therapy appointment on monday! i will be happy to share what info i find out about it all. mary > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 13, 2006 My name is Navin and I'm new to the group. I'm familiar with essential oils, natural Indian Attars and aromatic synthetic perfumes. It is great to be associated with natural perfumery group. Sincerely, Navin Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 21, 2006 Subject: Re: helloKathy Brunow <kathy-boo@...> Yes, of course, please do forward. , Re: hello Then we might be the right group for you.. We have a lot of members with a lot of different problems.. We also have alot to give emotionally. Can I forward your intro to the group?? Kathy Brunow <annalivia4@...> wrote: Kathy, I need emotional support too. I have been going through a lot lately, I am a very active person and a single mom. I started my own business (medical billing) so I could be a stay-at-home mom. I have been with my spouse (daughter's step-dad) for nearly 4 years. I told him I have hep C before we got together, he has been very supportive. However, he didn't feel comfortable with his family knowing about it because of their attitudes toward hep C. Problem is someone I know, who I trusted betrayed my confidence and told members of his family and now they all know. they are not being very supportive, they are instead suggesting that he leave me. he would never do that but he is going through a lot with his family. So, especially recently I have been looking for the right group to talk about THESE kind of things to. I have been having a lot of emotional and social issues lately and I don't seem to want to socialize like I used to. I have been very discouraged and apprehensive about making friends and trusting others to be sensitive. Because what I have found is that they are really not very sensitive when it comes to stuff like this. Anyway, what I have done is to join several groups in hopes of find the "right" one or two that I can stay with and be very active in. I am hoping to find compassion and friendship. I also endeavor to learn about Hep C issues and get ideas from others and support from others about things to do to take care of myself with natural remedies and life-style changes, exercise and healthy diet etc. I have no medical insurance and not enough income for adequate medical care at this time, so that is an issue to me as well. The link to my support group is: , Also, I am sending another email with my "Intro." hepatitis Moderatorhepatitis/ Kathy Brunow Kathy Brunow Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 23, 2006 Hey Boo, is Wisconson in the U.S. or is it in southern Canada? dannyKathy Brunow <kathy-boo@...> wrote: ..Hello , just saying hello.. Let me introduce you to me.. I am Kathy Brunow aka Kathy Boo or Boo..At the end of the month I'll be 2 years post transplant.. Grandmother of 6 beautiful grandchildren..Married for almost 23 years..Live in Milwaukee WI, I know consider myself a Wisconsinite.. Yippeee..Was diagnosed with Hepatitis C in 2000, but at the time the damage was to great for treatment ..Took a long time for me to go on the transplant list.. I was so hard headed about it.. But once on the list it took only two weeks to get a new liver..I am still clear of disease after 2 years..Rare but not unheard of, I am a miracle..I have never had any problems with rejection, or any thing else related to my transplant..Though it gets rather harried around my house lately, I am very busy.. We have custody of 3 of my grandchildren ..ages 11, 6 and 2 years.. My house looks like hell but I am happy with my life so far..Not an expert on Hepatitis C but will but in my two cents when the mood strikes me..Would like to get to know you and any feed back you might impart to us as a group..Kathy Boo Kathy Brunow Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 23, 2006 Danny my dear, I've been assured it is a part of the United States.. Though at times I wonder!! It's a diferent world.. Boocaptdanny <captdankw@...> wrote: Hey Boo, is Wisconson in the U.S. or is it in southern Canada? dannyKathy Brunow <kathy-boo@...> wrote: ..Hello , just saying hello.. Let me introduce you to me.. I am Kathy Brunow aka Kathy Boo or Boo..At the end of the month I'll be 2 years post transplant.. Grandmother of 6 beautiful grandchildren..Married for almost 23 years..Live in Milwaukee WI, I know consider myself a Wisconsinite.. Yippeee..Was diagnosed with Hepatitis C in 2000, but at the time the damage was to great for treatment ..Took a long time for me to go on the transplant list.. I was so hard headed about it.. But once on the list it took only two weeks to get a new liver..I am still clear of disease after 2 years..Rare but not unheard of, I am a miracle..I have never had any problems with rejection, or any thing else related to my transplant..Though it gets rather harried around my house lately, I am very busy.. We have custody of 3 of my grandchildren ..ages 11, 6 and 2 years.. My house looks like hell but I am happy with my life so far..Not an expert on Hepatitis C but will but in my two cents when the mood strikes me..Would like to get to know you and any feed back you might impart to us as a group..Kathy Boo Kathy Brunow Kathy Brunow Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 23, 2006 Boo, just wondering my love, I'm not the brightest crayon in the box but at times I can be colorful, just have to learn to color within the lines. Hopefully that will never happen, Love and Hugs , dannyKathy Brunow <kathy-boo@...> wrote: Danny my dear, I've been assured it is a part of the United States.. Though at times I wonder!! It's a diferent world.. Boocaptdanny <captdankw@...> wrote: Hey Boo, is Wisconson in the U.S. or is it in southern Canada? dannyKathy Brunow <kathy-boo@...> wrote: ..Hello , just saying hello.. Let me introduce you to me.. I am Kathy Brunow aka Kathy Boo or Boo..At the end of the month I'll be 2 years post transplant.. Grandmother of 6 beautiful grandchildren..Married for almost 23 years..Live in Milwaukee WI, I know consider myself a Wisconsinite.. Yippeee..Was diagnosed with Hepatitis C in 2000, but at the time the damage was to great for treatment ..Took a long time for me to go on the transplant list.. I was so hard headed about it.. But once on the list it took only two weeks to get a new liver..I am still clear of disease after 2 years..Rare but not unheard of, I am a miracle..I have never had any problems with rejection, or any thing else related to my transplant..Though it gets rather harried around my house lately, I am very busy.. We have custody of 3 of my grandchildren ..ages 11, 6 and 2 years.. My house looks like hell but I am happy with my life so far..Not an expert on Hepatitis C but will but in my two cents when the mood strikes me..Would like to get to know you and any feed back you might impart to us as a group..Kathy Boo Kathy Brunow Kathy Brunow Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Share this post Link to post Share on other sites