hello

[Guest guest]

Hi ,

I just wanted to say a quick " Welcome " !

I think you'll really enjoy this group. The people here are my lifeline!!!!!!

(((Hugs))))

"

Judy

mom to Brittany-11-NT -going into 6th gr-high honor student

-Brittany's twin-3-29-95--4-7-95

-9-bp,ocd,adhd,odd,pdd-nos, 50 mg seroquel 75mg trazadone 75mg zoloft

going into reg 5th gr class-504plan

iel 4-ocd, speech problem-going into kindergarten-speech therapy, 2.5mg

prozac

[Guest guest]

Hi ,

This site REALLY helps, but if you ever find sanity while still being a

parent of eg OCD child then please let us all know how & you can prob make a

£million. (or $million) I'm afraid Im not much use with advice but enjoy the

site

& find it very helpful. Sorry its hard at the mo. Most of us seem to find

that we have bad, very bad & not so bad periods. The very bad are awful. Its

not so bad for me at mo, and although things can change daily, it hasnt been

very bad for me for a couple of months. So hang on in there, things WILL get

easier. I just wish I knew how to help or at least speed it up for you !!! but

lots of folks here will be thinking of you, & they can be great at giving

practicle tips,advice & information(or where you can get info from).

Good luck

Lesley xxx

[Guest guest]

hi amy,

i`m patie, 26 (almost), sma II, from poland. welcome to the chat

love & light

patie

http://patie80.multiply.com

http://patie.tripod.com

[Guest guest]

Welcome aboard! -a

midnitesweetiepie <midnitesweetiepie@...> wrote:

Hey everyone,

I am new to this group and thought i would intoduce myself ,i am 26 I

was just diagnosed with sma in may i saw many doctors before and was

always told that everything was fine and it was in my head that i was

tripping over things and my balance had nothing to do with me falling .I

had given up went and seen a psychiatrist I was really begining to

think they were right . When i fell down the stairs i would say well i

must have missed a step or maybe the cat jumped in the way.I saw the

psychiatrist for about 1 yr and he told me i should get another opinon

..he believed there was something more so i did and i finally got

answeres .It has been very rough since the day i found out I have 4

children and my two older daughters left me to live with their father

they say they want to be with someone who can walk better as they find

it embarrassing to be with me .I think they just need time to adjust and

understand . I went for ot and pt last week for my first consult they

tried me with a walker and cane and decided it was not for me they

said they have to look at other options in my head i know what the

other option is but i dont think i am ready for that emotionally It

seems like everything is happening so fast .Well thats it for now I

hope you all have a Great day []

[Guest guest]

Hi a

I am new to the SMA friends group. I did belong to the SMA Support Group which

I'm sure is very beneficial for parents of children with SMA. However, I was

hoping to talk to some adults with SMA. Your message was the first one I have

read which I can relate to. I think I understand the emotions you're feeling.

I am 50 yrs old. I have a 15 yr old daughter who lives with me. I do sometimes

worry about whether she is embarrassed by me. High school is a rough age.

Reading about your daughters was a little emotional for me. I understand your

reluctance to hear what your options will be after finding the walker and cane

unacceptable. I have been using a mobility scooter for about 10 years. I am

now reaching a point where I am not able to put my scooter on the car myself.

I'm also beginning to have difficulty getting out of the shower. Although each

time I begin having more difficulty with a task- I know I'm so much better off

now that I'm aware of what I'm dealing with. My SMA was not diagnosed for many

years. I'd love to hear more about your status. If you want to e-mail me

directly my E-mail is

mbc543@... Thanks for sharing. Take care for now.

Peace to You,

Beth

P.S. How old are your children? See ya.

Re: Hello

Welcome aboard! -a

midnitesweetiepie <midnitesweetiepie@...> wrote:

Hey everyone,

I am new to this group and thought i would intoduce myself ,i am 26 I

was just diagnosed with sma in may i saw many doctors before and was

always told that everything was fine and it was in my head that i was

tripping over things and my balance had nothing to do with me falling .I

had given up went and seen a psychiatrist I was really begining to

think they were right . When i fell down the stairs i would say well i

must have missed a step or maybe the cat jumped in the way.I saw the

psychiatrist for about 1 yr and he told me i should get another opinon

.he believed there was something more so i did and i finally got

answeres .It has been very rough since the day i found out I have 4

children and my two older daughters left me to live with their father

they say they want to be with someone who can walk better as they find

it embarrassing to be with me .I think they just need time to adjust and

understand . I went for ot and pt last week for my first consult they

tried me with a walker and cane and decided it was not for me they

said they have to look at other options in my head i know what the

other option is but i dont think i am ready for that emotionally It

seems like everything is happening so fast .Well thats it for now I

hope you all have a Great day []

[Guest guest]

That is one of the main problems.. but there are others. We have

finally after years of therapy made it so we can understand him 75% of

the time! Funny that I can say that to this group and people realise

how big of an accomplishment this is, but my everyday friends just

want to know why it's not compleatly " fixed " yet.

You mentioned a

> speech impediment with your son, is his problem in that area?

[Guest guest]

That is one of the main problems.. but there are others. We have

finally after years of therapy made it so we can understand him 75% of

the time! Funny that I can say that to this group and people realise

how big of an accomplishment this is, but my everyday friends just

want to know why it's not compleatly " fixed " yet.

You mentioned a

> speech impediment with your son, is his problem in that area?

[Guest guest]

Thank you so much for your encouraging words. Finding a group that can

jsut say.. been there done that.got the teeshirt, cup, pen AND the mug

helps out a ton.

Hope yours gets better too!

Thanks again..

[Guest guest]

Thank you so much for your welcome

[Guest guest]

welcome !! sorry I have no meds info -to all others with skin

issues can't wait to hear from Dr Chansky :-)

Quoting " N. Gatcomb " <sismidngt@...>:

> That is one of the main problems.. but there are others. We have

> finally after years of therapy made it so we can understand him 75% of

> the time! Funny that I can say that to this group and people realise

> how big of an accomplishment this is, but my everyday friends just

> want to know why it's not compleatly " fixed " yet.

>

>

>

> You mentioned a

>> speech impediment with your son, is his problem in that area?

>

>

>

>

>

>

[Guest guest]

Hello Leah:i am not a doctor but if it is because of your blood pressure he could do one of two things i guess one would be lower your medications that lower your BP or (i don't know how much you are paced) adjust your icd if it is caused because of it. Either case you'll be better off. What you should do is slow down your activities try to rest a little, RELAX and try to get in touch with your doctor. We are here if you'd like to talk about it. Regards TURKleah <leah131@...> wrote: Hello all! I have an ICD and am 26 years old. Last

night I experice the dizziness, racing heart shakness. I feel this way today too. I spoke to other doctor cuz my cardio was not in today and he said it was due to dropping blood pressure. My cardio will be calling me tomorrow. What do you think he will do for me? Hope everyone here is well. Write Back Soon Leah

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

----- Original Message -----

From: " leah "

> I have an ICD and am 26 years old.

> Last night I experice the dizziness,

> racing heart shakness. I feel this way

> today too. I spoke to other doctor

> cuz my cardio was not in today and

> he said it was due to dropping blood

> pressure.

Leah:

Two weeks ago today I was sitting in a pizza restaurant with a grup of

friends. It was very hot inside and I quickly became tired and sleepy. I

remember holding my head with my hands and suddenly I felt a sharp pain in

my right shoulder. I looked up and I was on the floor next to the table. I

assumed that I had just passed out.

Someone called the EMT's and my vitals were exactly where they should be,

and strangely I felt really good, rejuvenated, better than I had for several

hours. I declined a trip to the ER, and continued to spend a pleasant, if

somewhat subdued with my friends. Later I thught that maybe my AICD had

gone off, but I had felt none of the immediate after-effects that follow a

firing. I called my cardio and she said to keep an eye on how I was feeling

and to go to the ER (three blocks away) if I felt bad again. Six days later

at 4 am while awake in bed my AICD did go off. Again my cardio told me to

monitor myself, and if it went off again to go to the ER. This was only the

third firing episode I had in eight years.

Simultaneously with all this I had a growing boil on my . . . how does one

say " butt " politely? I had an appointment with my GP that afternoon to

check it out.

My GP looked at it and said it needed to be lanced and he would rather have

me do it in the hospital, so off to

odesto I went. My cardio where I was admitted. My cardio came in and read

the AICD, and I had indeed had a firing at the restaurant. Sudden cardiac

death in both instances. I felt really weak and tired, and my blood

pressure was down from its usual 115/70 to about 80/50. Docs attributed

that to my meds and the infection whic turned ot to be a serious staph

strain.. Four days later I left the hospital still feeling lousy and with

no appetite. The weather in California's Central Valley has been running in

the mid 100's for several weeks, and that hasn't helped. As my infection

clears up I am slowly feeling better, but a long way from even wanting to

chase Pamela . (I'm scared I might catch her, and then what would I

do?)

I think the low blood pressure and the infection have worked symbiotically

to make me feel this way, but both seem to be improving steadily.

I write all this to give others an insight as to what might happen if they

do get an infection--even on one's hairy-dairy-air. Staph infections are,

apparently a widespread phenomenon as the strains become more and more

resistant. Personally I know two people who have developed stsph infections

while at hospitals with very good reputations. Extra hand-washing and using

liquid instead of bar soap is recommended. The lower blood pressure makes

one feel bad enough that even the wife doesn't expect you to do housework.

Not that I would do it anyway. And if I don't want visitors I just ask them

if they want to see my infection.

Finally for the newbies here who have concerns about their AICD's, I offer

the following: No device around saves more lives by itself than an AICD.

Two separate cardiologists told me that some docs estimate that about forty

percent of those " massive heart attacks " that unexpectedly take lives were

likely to have been ventrical fibrillation (been there, done that) and an

AICD would have prevented death. Twice this past month my AICD saved my

life, and my prognosis is so good my wife is saving my housework for me to

do. (I'm still not going to do it. Against the Husbands' Code.)

From California where I think I got that infection from ordering a

Chicago-style staphed pizza.

Bill

>

>

>

>

>

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

[Guest guest]

Bill, just reading your letter made me glad to be on this list.

Lynn S.

------

Mama, homeschooler, writer, activist, spinner & knitter

http://www.siprelle.com

NOTICE: The National Security Agency may have read this email without

warning, warrant, or notice.

[Guest guest]

Hi Bill,

So sorry to hear you are having some troubles lately....it really points out though that we are lucky to have these little life savers in our bodies. The would not be the same without you and your humor.

Take good care of yourself and hope things continue to improve.

also in CA

Two weeks ago today I was sitting in a pizza restaurant with a grup of friends. It was very hot inside and I quickly became tired and sleepy. I remember holding my head with my hands and suddenly I felt a sharp pain in my right shoulder. I looked up and I was on the floor next to the table. I assumed that I had just passed out.Someone called the EMT's and my vitals were exactly where they should be, and strangely I felt really good, rejuvenated, better than I had for several hours. I declined a trip to the ER, and continued to spend a pleasant, if somewhat subdued with my friends. Later I thught that maybe my AICD had gone off, but I had felt none of the immediate after-effects that follow a firing. I called my cardio and she said to keep an eye on how I was feeling and to go to the ER (three blocks away) if I felt bad again. Six days later at 4 am while awake in bed my AICD did go off. Again my cardio told me to monitor myself, and if it went off again to go to the ER. This was only the third firing episode I had in eight years.Simultaneously with all this I had a growing boil on my . . . how does one say "butt" politely? I had an appointment with my GP that afternoon to check it out.My GP looked at it and said it needed to be lanced and he would rather have me do it in the hospital, so off toodesto I went. My cardio where I was admitted. My cardio came in and read the AICD, and I had indeed had a firing at the restaurant. Sudden cardiac death in both instances. I felt really weak and tired, and my blood pressure was down from its usual 115/70 to about 80/50. Docs attributed that to my meds and the infection whic turned ot to be a serious staph strain.. Four days later I left the hospital still feeling lousy and with no appetite. The weather in California's Central Valley has been running in the mid 100's for several weeks, and that hasn't helped. As my infection clears up I am slowly feeling better, but a long way from even wanting to chase Pamela . (I'm scared I might catch her, and then what would I do?)I think the low blood pressure and the infection have worked symbiotically to make me feel this way, but both seem to be improving steadily.I write all this to give others an insight as to what might happen if they do get an infection--even on one's hairy-dairy-air. Staph infections are, apparently a widespread phenomenon as the strains become more and more resistant. Personally I know two people who have developed stsph infections while at hospitals with very good reputations. Extra hand-washing and using liquid instead of bar soap is recommended. The lower blood pressure makes one feel bad enough that even the wife doesn't expect you to do housework. Not that I would do it anyway. And if I don't want visitors I just ask them if they want to see my infection.Finally for the newbies here who have concerns about their AICD's, I offer the following: No device around saves more lives by itself than an AICD. Two separate cardiologists told me that some docs estimate that about forty percent of those "massive heart attacks" that unexpectedly take lives were likely to have been ventrical fibrillation (been there, done that) and an AICD would have prevented death. Twice this past month my AICD saved my life, and my prognosis is so good my wife is saving my housework for me to do. (I'm still not going to do it. Against the Husbands' Code.)From California where I think I got that infection from ordering a Chicago-style staphed pizza.Bill

[Guest guest]

Bill

WoW ! I am glad that you are alright. It makes one think a little more about everything. Thanks for that info. It helps to know what may happen if my ICD ever goes off.

Sincerely,

Toni PS. Why not do a little house cleaning. I still have to do it. LOL

[Guest guest]

Bill,

As I stated in an earlier message, my ICD fired for the first time in 9 years. I too was at a restaurant and my wife thought that I had been stung by a bee. The EMT's came and while they were there, I fired again. I was then taken to the hospital. After being transported to another hospital an hour away, it fired a third time in the hospital at 2:15 am. The last one caused me to let out a scream that woke up half of the hospital!! I feel very lucky that I had my implanted EMT(that is what my EP calls it) it saved my live three times that evening.

Sorry to hear about your BUTT-boil! In 1998 I had a staph

sepsis that had me hospitalized for over 100 days and resulted in removal of my AICD for 30 days to clear the infection. Be really careful of that infection it can cause

havoc with implanted devices. I am glad that you are starting to feel better now and I hope you continue to improve. Let me know when you want to chase Pamela I will fly out and help you catch her.(then neither of us would know what to do!!)

From Upstate NY where you worry about stepping in the exhaust of a horse drawn buggy.

Doug

Re: Hello

----- Original Message ----- From: "leah"> I have an ICD and am 26 years old.> Last night I experice the dizziness,> racing heart shakness. I feel this way> today too. I spoke to other doctor> cuz my cardio was not in today and> he said it was due to dropping blood> pressure.Leah:Two weeks ago today I was sitting in a pizza restaurant with a grup of friends. It was very hot inside and I quickly became tired and sleepy. I remember holding my head with my hands and suddenly I felt a sharp pain in my right shoulder. I looked up and I was on the floor next to the table. I assumed that I had just passed out.Someone called the EMT's and my vitals were exactly where they should be, and strangely I felt really good, rejuvenated, better than I had for several hours. I declined a trip to the ER, and continued to spend a pleasant, if somewhat subdued with my friends. Later I thught that maybe my AICD had gone off, but I had felt none of the immediate after-effects that follow a firing. I called my cardio and she said to keep an eye on how I was feeling and to go to the ER (three blocks away) if I felt bad again. Six days later at 4 am while awake in bed my AICD did go off. Again my cardio told me to monitor myself, and if it went off again to go to the ER. This was only the third firing episode I had in eight years.Simultaneously with all this I had a growing boil on my . . . how does one say "butt" politely? I had an appointment with my GP that afternoon to check it out.My GP looked at it and said it needed to be lanced and he would rather have me do it in the hospital, so off toodesto I went. My cardio where I was admitted. My cardio came in and read the AICD, and I had indeed had a firing at the restaurant. Sudden cardiac death in both instances. I felt really weak and tired, and my blood pressure was down from its usual 115/70 to about 80/50. Docs attributed that to my meds and the infection whic turned ot to be a serious staph strain.. Four days later I left the hospital still feeling lousy and with no appetite. The weather in California's Central Valley has been running in the mid 100's for several weeks, and that hasn't helped. As my infection clears up I am slowly feeling better, but a long way from even wanting to chase Pamela . (I'm scared I might catch her, and then what would I do?)I think the low blood pressure and the infection have worked symbiotically to make me feel this way, but both seem to be improving steadily.I write all this to give others an insight as to what might happen if they do get an infection--even on one's hairy-dairy-air. Staph infections are, apparently a widespread phenomenon as the strains become more and more resistant. Personally I know two people who have developed stsph infections while at hospitals with very good reputations. Extra hand-washing and using liquid instead of bar soap is recommended. The lower blood pressure makes one feel bad enough that even the wife doesn't expect you to do housework. Not that I would do it anyway. And if I don't want visitors I just ask them if they want to see my infection.Finally for the newbies here who have concerns about their AICD's, I offer the following: No device around saves more lives by itself than an AICD. Two separate cardiologists told me that some docs estimate that about forty percent of those "massive heart attacks" that unexpectedly take lives were likely to have been ventrical fibrillation (been there, done that) and an AICD would have prevented death. Twice this past month my AICD saved my life, and my prognosis is so good my wife is saving my housework for me to do. (I'm still not going to do it. Against the Husbands' Code.)From California where I think I got that infection from ordering a Chicago-style staphed pizza.Bill>>>>>>>> Please visit the Zapper homepage at> http://www.ZapLife.org>

[Guest guest]

Thank you for these interesting insights Judy. best wishes

Hayri Kara wrote:

Hi,

Thank you for allowing me to rejoin Senate. I did belong to the

group a few years ago but I left Health Visiting and I left the UK to

live in Turkey however, I am back for the foreseeable future but still

going backwards and forwards because my husband and dog are over there.

I have been working as a bank health visitor during the winters

(UK) to earn some money and keep up my practice (where is the bank

agenda for change pay increase and why are we not getting back pay)?.

Life in Turkey is very different for women than here. They are

very much second class citizens and in fact, the male children can tell

them what to do!

Needless to say my husband and I have had quite a few cultural

clashes! He thinks European women are very loud, talk too much and he

has always asked me why do they hit their men, even if it is in fun! I

will say when I have watched the tourist women on holiday they do hit

their men alot!

I know that part of Turkey's agreement to entry into the EU is

to recognise women as equals and reduce the incidence of Domestic

Violence.

I can see "Turkish"women being allowed to be treated as equal by

Turkish men but I can never see the Kurdish women being allowed or in

actual fact wanting equality with their men! These women run the home

and the family. The men may think that they are in charge but really

it's the wife!

The womens movement is happening but it is mainly in the large

towns and cities and is very middle class and Turkish. This has no

reflection on those women living in the small towns and villages and

who are Kurdish. For these women to not wear their head scarves could

mean that they have to leave their home and village, not because

they've offended the men but because they've offended the other women!

The Turkish government banned the men from having more than one

wife (Attaturk) that's ok but the muslim religion does not and if you

live in a remote village half way up a mountain there isn't much reason

to take note of the government, you do what you're told by your father

or you leave with nothing!

Until the Turkish government introduces a system of benifits so

that women can care for themselves and their children nothing will

change.

I thought I new what poverty was until I lived in Turkey but I

was wrong, I didn't know anything!

Turkey has a good economy, it has good export and import but if

you don't have work then you don't eat, pay the bills etc. Last year

the government instructed that all children should attend school, girls

had not had legislative right to attend until then but how can they

attend if there is no money? The parents have to pay for their child to

attend school.

If you have no money you have to beg for money for food. Often

the children are sent out to beg because it is hoped that tourists will

be more sympathetic toward them. Many children, as in 3rd world

countries live on the street, foraging for food in the rubbish bins,

looking for leftovers thrown away by the tourists. It is a very sad

sight. Older, more street wise children will take what ever they can

from smaller children!

I have found all this has jaded my view of the UK. Here they

think they are poor but they are not in comparison with these families,

here we don't seem to value the family however,in Turkey it is all

about the family. They still honour their elders, many want their

children to attend higher education and most parents do work hard to

provide for everyone. Life is hard and you are often retired due to ill

health by the time you're 55 and you have to rely on your children to

support you.

I do support the changes being initiated for Turkey's entry into

the EU but I'm not sure I support Turkey entering the EU. I think only

a few will reap the benifits and for many it could create greater

hardship than they are already experiencing.

Judy Kara

Greeting from Hayri & Judy Kara, Lush

Restaurant, Kusadasi, Turkey.

Judy won't be at the restaurant very much this year she

is setting up a Turkish fed business in the UK.

She is trying to sell beautiful crafted soft

furnishings from Turkey. If you have a possible outlet please contact

her.

Inbox

full of spam? Get leading spam protection and 1GB storage with All

New .

[Guest guest]

Thanks Judy for your thoughts on Turkey, as someone working with some Kurdish Turkish women it is really helpful to get a vew from someone who has lived in the country. The women in the this country that I work with feel isolated as their family values do not seem to be shared. Home and children is everthing and they cannot understand why we do not value homelife as muchas t hey do. however, they find it hard to understand married women who have not got children, or women who survive on their own for whatever reason. Most have had arranged marriages, and have children within the first year of married life. They are married very young and anyone over 50 is considered ancient. It is interesting the emphasis placed on male children. Good to get a comparison of thoughts and fresh perspective on returning to the UK, useful thoughts. JeanetteHayri Kara <lushrestaurant@...> wrote: Hi, Thank you for allowing me to rejoin Senate. I did belong to the group a few years ago but I left Health Visiting and I left the UK to live in Turkey however, I am back for the foreseeable future but still going backwards and forwards because my husband and dog are over there. I have been working as a bank health visitor during the winters (UK) to earn some money and keep up my practice (where is the bank agenda for change pay increase and why are we not getting back pay)?. Life in Turkey is very different for women than here. They are very much second class citizens and in fact, the male children can tell them what to do! Needless to say my husband and I have had quite a few cultural clashes! He thinks European women are very loud, talk too

much and he has always asked me why do they hit their men, even if it is in fun! I will say when I have watched the tourist women on holiday they do hit their men alot! I know that part of Turkey's agreement to entry into the EU is to recognise women as equals and reduce the incidence of Domestic Violence. I can see "Turkish"women being allowed to be treated as equal by Turkish men but I can never see the Kurdish women being allowed or in actual fact wanting equality with their men! These women run the home and the family. The men may think that they are in charge but really it's the wife! The womens movement is happening but it is mainly in the large towns and cities and is very middle class and Turkish. This has no reflection on those women living in the small towns and villages and who are Kurdish. For these women to not wear their head scarves could mean

that they have to leave their home and village, not because they've offended the men but because they've offended the other women! The Turkish government banned the men from having more than one wife (Attaturk) that's ok but the muslim religion does not and if you live in a remote village half way up a mountain there isn't much reason to take note of the government, you do what you're told by your father or you leave with nothing! Until the Turkish government introduces a system of benifits so that women can care for themselves and their children nothing will change. I thought I new what poverty was until I lived in Turkey but I was wrong, I didn't know anything! Turkey has a good economy, it has good export and import but if you don't have work then you don't eat, pay the bills etc. Last year the government instructed that all children

should attend school, girls had not had legislative right to attend until then but how can they attend if there is no money? The parents have to pay for their child to attend school. If you have no money you have to beg for money for food. Often the children are sent out to beg because it is hoped that tourists will be more sympathetic toward them. Many children, as in 3rd world countries live on the street, foraging for food in the rubbish bins, looking for leftovers thrown away by the tourists. It is a very sad sight. Older, more street wise children will take what ever they can from smaller children! I have found all this has jaded my view of the UK. Here they think they are poor but they are not in comparison with these families, here we don't seem to value the family however,in Turkey it is all about the family. They still honour their elders, many want their children to attend

higher education and most parents do work hard to provide for everyone. Life is hard and you are often retired due to ill health by the time you're 55 and you have to rely on your children to support you. I do support the changes being initiated for Turkey's entry into the EU but I'm not sure I support Turkey entering the EU. I think only a few will reap the benifits and for many it could create greater hardship than they are already experiencing. Judy Kara Greeting from Hayri & Judy Kara, Lush Restaurant, Kusadasi, Turkey. Judy won't be at the restaurant very much this year she is setting up a Turkish fed business in the UK. She is trying to sell beautiful crafted soft furnishings from Turkey. If you have a possible outlet please contact her. Inbox full of spam? Get leading spam protection and 1GB storage with All New .

All New – Tired of Vi@gr@! come-ons? Let our SpamGuard protect you.

[Guest guest]

Hi and welcome to the group,, Im sorry to say that there is no other meds available today to rid yourself of Hep,, WHAT do you mean, the meds were to strong? They HAVE to be in order to work... The sides can be hard but there are meds to help with those.. please explain what you mean by the meds being too strong.. are you saying that you just 'couldnt take the side effects'? The only other thing that I know that 'might' be helpful would be milk thistle to help your liver maintain itself but it wont get rid of the virus and over time, the virus will eat your liver,, so if you have much damage,, you might want to consider getting back on treatment..alnetia mcclendon <alnetiamcclendon@...> wrote: hi my name is alnetia mcclendon, i have hep c and i would like to know what medication i can take to help me with this diesease. I toke inferon and pegatron, but those were too strong, so my dr. toke me off of them. so i praying that anybody can help me out, it would be a blessing if u can. __________________________________________________

[Guest guest]

Have you tried Infergen ? It is much easier to tolerate than the interferon . There are also some things in clinical trial that will be available in a few years .

hello

hi my name is alnetia mcclendon, i have hep c and i would like to know what medication i can take to help me with this diesease. I toke inferon and pegatron, but those were too strong, so my dr. toke me off of them. so i praying that anybody can help me out, it would be a blessing if u can.

__________________________________________________

[Guest guest]

>

>

>

> Hello everyone

>

> My name is janita haan morris and I am a natural perfumer based

> around the black mountains in the welsh border in the uk....

>

> I look forward to reading your notes and hopefully contributing to

> this site.

>

> With every good wish

>

> janita

>

Hi Janita!

Welcome! I am relatively new myself. I'm all the way over in Galway

Ireland.

Enjoy!

TTFN

Ruth

[Guest guest]

>

> hi you all,

> my name is debora leia, i'm from brazil but live now in miami. i love

> natural fragrances, specially because i am alergic to the majority of

> synthetic ones.

> i'm really new in the art of blending essential oils, i think i don't

> know any thing really and hope to learn a lot in this group. have many

> question, but now i just wanted to say hello.

> peace

> leia

>

Hiya Debora, (I should be in bed!!!)

Welcome from Ruth in Galway, Ireland.

I've only been here a few months and I feel like an old time member

thanks to Anya our wonderful hostess!

TTFN

Ruth

[Guest guest]

>

> Hi Anya;

> I joined this group back in November, but just now getting around to

> checking it out. I've been working with EO's for 18 years, but the

> natural perfumery 'bug' really bit me about a year ago, and I'm

> starved for info., so must be at the right place.

> I have nearly memorized Mandy Aftel's book and now want to take a

> course, but having a hard time deciphering the best

> place/person/workshop to invest my time and money. Mandy A. has some

> courses, as well as Gail . Any feedback or suggestions?

> Great Group!

> Thank You

> Barbara

>

Hello Barbara,

Welcome! I would recommend Mandy Aftels Level 1 Workbook to start. It

is very well thought out and it really works. When I first got it I

didn't think much of it. I thought it seemed like a very ordinary

workbook with a lot of practical work to cover. I wasn't impressesed

until I started using it. Thats when I realised how each step the book

takes you through is carefully chosen. By the time I reached the

chapter on making actual simple perfume blends of my own (solid

perfume) the penny had dropped and I suddenly understood everything

which went before it. I have been using essential oils for

aromatherapy for years but to make an analogy between the perfumer

and the aromatherapist I think its a bit like the difference between

being a painter who paints buildings as opposed to a person who paints

pictures.

I know a good deal about the properties of my ingredients but little

about turning them into a work of art.

I am nearly finished the workbook and I know there is more for me to

learn. Wish I could go to california and do the practical other levels.

Oh ya one last thing...even if you have loads of essential oils

already I think it's worth it to buy the kit that goes with level one,

I don't know why I think it just makes it much easier.

HTH

Ruth

[Guest guest]

At 10:03 AM 8/21/2006, you wrote:

>

>Hi,

>I've been lurking in the shadows and am fairly new to the group. My name is

> and I have been studying aromatherapy and perfumery for about 10

>years. (Perfumery off and on within those 10 years.) The last yearor so I

>have become more serious about perfumery and am now madly obsessed....lol I

>recently started reading Jeanne Rose's blending and perfumery manuals and am

>hoping to be able to take her Perfumery intensive in March, 2007.

>

>You'll find that I am quite partial to the Grande Dame Jeanne Rose

>

>I am looking forward to interacting with the group!

>

>

>

>Dirty Roses

> " The only way to get rid of temptation is to yield to it. "

>http://www.dirtyroses.com/

Ach! -- one of my oldest buds from the internet - I knew her

before kidlets~

She finally managed to stumble her way over here to open our eyes all to

the beautifully twisted world of dirtyroses and vintage sassy cards and her

apothecarian perfumes, although, strangely (her favorite world) she is shy

about sharing them. Now I have exposed all her secrets, she will blossom

forth, a rose by any other name....or a Jeanne Rose prole, as the need be....

Anya

http://anyasgarden.com/perfumes.htm Parfums Natural

http://artisannaturalperfumers.com The Artisan Natural Perfumers Guild

http://.com The Premier Natural Perfume Site Gateway

[Guest guest]

At 12:56 PM 8/21/2006, you wrote:

>Hello everyone,

>

> my name is melinda. i am new to perfumery. although i've been making

> soaps and bath & body products for several years. as for perfumes, i have

> only made perfumes with very simple notes and mostly for aromatherapy

> purpose. i am interested in learning more about natural perfumery.

>

> i enjoy the pics of workshops that some of you put up in the album.

> thank you very much for sharing. they all look neat, well organized and

> peaceful.

>

> melinda

Welcome to the group, Melinda -- if you have a website, link it in your

signature. Enjoy your membership, and get to know folks..it's a friendly place.

Anya

http://anyasgarden.com/perfumes.htm Parfums Natural

http://artisannaturalperfumers.com The Artisan Natural Perfumers Guild

http://.com The Premier Natural Perfume Site Gateway