hello

November 10, 2005

Good Luck to Kylie tomorrow - Hoping for improvement (first)or at

least no change, in the brace...

Looking forward to seeing you in SLC in just a few days...

Big Hugs to Kylie from her friend Siobhan xxx

Jacki

>

> > Hi,

> > I'm so glad you found your new house! I bet you've

> > been really

> > stressed, sounds like you've had a crazy month. If

> > you do get time to

> > come for a visit I'd love to chat and catch up in

> > person. Eliana is

> > walking now and will be able to interact with the

> > other kids more this

> > time. Please tell Kylie that her little friend

> > " with kyphosis too "

> > says hi,(that was so cute) and hopefully they will

> > get to play. That

> > is so awesome that her brace has held her so well! I

> > just found out

> > that Eliana's appt. at Primary has been moved till

> > later in the day.

> > Now it's at 3:30 on the 14th. Hopefully we can all

> > catch up soon.

> >

> > Take care,

> > and Eliana

> >

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

November 10, 2005

Good luck and Kylie,

I hope to see you both next week too.

Bert and Bridget Lether <nlether@...> wrote:

Hi ,We will come and visit you and Eliana. I can't waitto catch up on everything. Kylie will be so happy tosee Eliana again. She has her big appointmenttomorrow at Shriner's. I'm so nervous! So far she'sbeen in this brace for 2 days shy of a year, and hashad no progression at all! I'll let you know how itgoes.We'll see you next week!!--- <cjhnelson@...> wrote:> Hi,> I'm so glad you found your new house! I bet you've> been really > stressed, sounds like you've had a crazy month. If> you do get time to > come for a visit I'd love to chat and catch up in> person. Eliana is > walking now and will be able to interact with the> other kids more this > time. Please tell

Kylie that her little friend> "with kyphosis too" > says hi,(that was so cute) and hopefully they will> get to play. That > is so awesome that her brace has held her so well! I> just found out > that Eliana's appt. at Primary has been moved till> later in the day. > Now it's at 3:30 on the 14th. Hopefully we can all> catch up soon.> > Take care,> and Eliana> > > > > __________________________________ - PC Magazine Editors' Choice 2005 http://mail.

FareChase - Search multiple travel sites in one click.

November 10, 2005

>

> > Hi,

> > I'm so glad you found your new house! I bet you've

> > been really

> > stressed, sounds like you've had a crazy month. If

> > you do get time to

> > come for a visit I'd love to chat and catch up in

> > person. Eliana is

> > walking now and will be able to interact with the

> > other kids more this

> > time. Please tell Kylie that her little friend

> > " with kyphosis too "

> > says hi,(that was so cute) and hopefully they will

> > get to play. That

> > is so awesome that her brace has held her so well! I

> > just found out

> > that Eliana's appt. at Primary has been moved till

> > later in the day.

> > Now it's at 3:30 on the 14th. Hopefully we can all

> > catch up soon.

> >

> > Take care,

> > and Eliana

> >

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

November 12, 2005

Hi Jacki,

Well Kylie will be doing number 3! This time with the

possibility of a burnbuckle cast. I knew it was

coming, I can't believe it wasn't sooner. I'm not

looking forward to another 2 months with a halo, but I

am so thankful we still have it as an option!!! Right

now it's just halo then brace w/neck support. One day

she might be accepted for the TRP.

Sunday won't be good for us, Monday either, Kylie has

dance class Monday night. Tuesday after Kylie and

Ariel get out of school will be the best. Will that

work for you?

I'm looking forward to visiting with you,Burt,and

!

Later,

--- jabostock <jabostock@...> wrote:

> Good Luck to Kylie tomorrow - Hoping for improvement

> (first)or at

> least no change, in the brace...

>

> Looking forward to seeing you in SLC in just a few

> days...

>

> Big Hugs to Kylie from her friend Siobhan xxx

>

> Jacki

>

> >

> > > Hi,

> > > I'm so glad you found your new house! I bet

> you've

> > > been really

> > > stressed, sounds like you've had a crazy month.

> If

> > > you do get time to

> > > come for a visit I'd love to chat and catch up

> in

> > > person. Eliana is

> > > walking now and will be able to interact with

> the

> > > other kids more this

> > > time. Please tell Kylie that her little friend

> > > " with kyphosis too "

> > > says hi,(that was so cute) and hopefully they

> will

> > > get to play. That

> > > is so awesome that her brace has held her so

> well! I

> > > just found out

> > > that Eliana's appt. at Primary has been moved

> till

> > > later in the day.

> > > Now it's at 3:30 on the 14th. Hopefully we can

> all

> > > catch up soon.

> > >

> > > Take care,

> > > and Eliana

> > >

> >

> > __________________________________

> > - PC Magazine Editors' Choice 2005

> > http://mail.

> >

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

November 12, 2005

Hey

I'm soooo happy for Kylie LOL! Seriously, I know she enjoys the halo

(crazy kid), but its hard for the whole family to go through this a

3rd time. Hopefully this halo will really help, and then you could

all go and talk with Dr at PCMC.

Tuesday would be great to come up and see us. Siobhan has her CT and

PFT at PCMC in the early afternoon, but after that we'll be around.

Looking forward to catching up proper soon.

Hugs to you all

Jacki and Siobhan

> > >

> > > > Hi,

> > > > I'm so glad you found your new house! I bet

> > you've

> > > > been really

> > > > stressed, sounds like you've had a crazy month.

> > If

> > > > you do get time to

> > > > come for a visit I'd love to chat and catch up

> > in

> > > > person. Eliana is

> > > > walking now and will be able to interact with

> > the

> > > > other kids more this

> > > > time. Please tell Kylie that her little friend

> > > > " with kyphosis too "

> > > > says hi,(that was so cute) and hopefully they

> > will

> > > > get to play. That

> > > > is so awesome that her brace has held her so

> > well! I

> > > > just found out

> > > > that Eliana's appt. at Primary has been moved

> > till

> > > > later in the day.

> > > > Now it's at 3:30 on the 14th. Hopefully we can

> > all

> > > > catch up soon.

> > > >

> > > > Take care,

> > > > and Eliana

> > > >

> > >

> > > __________________________________

> > > - PC Magazine Editors' Choice 2005

> > > http://mail.

> > >

> >

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

November 21, 2005

Welcome Back Sharon Im so glad you came back,,and Im glad you are doing ok,, Im sorry you didnt clear on treatment but we have to never give up,, newer drugs should be comeing out soon,, we hope! Anyway, just wanted to say that we are glad you are home now with us,, hang around,, we missed you! jaxSHARON CROSBY <csharonxoxo@...> wrote: Hello every one. I am Sharon, was a member of this group around the same time as Anita. Went away and am now back. Hello to all. I have HCV, for thirty years now. Failed first round of treatment and dropped out of the second with deep depression. I'm fine, as far as I know, but it's past time for the round of tests to be repeated. It's been about 5 years now, so I'll have to insist I guess. I'll see my gastro doc tomorrow, been sick for a month with some kind of stomach ailment, hope it\'s "just" the flu. lol A laugh a day keeps the blues away. Sharon Jackie

November 21, 2005

I just came back the otherday Welcome back to us

I have an infection in upper gi I take flagyl for it took two rounds

of that now I am on my third it kept coming back each time. Tomorrow

I will start another med for the remainder of 2 weeks along with

flagyl total of a month. 10 days each time was not enought let us know

how it goes?

>

> Hello every one. I am Sharon, was a member of this group around

the same time as Anita. Went away and am now back. Hello to all.

>

> I have HCV, for thirty years now. Failed first round of treatment

and dropped out of the second with deep depression.

>

> I'm fine, as far as I know, but it's past time for the round of

tests to be repeated. It's been about 5 years now, so I'll have to

insist I guess.

>

> I'll see my gastro doc tomorrow, been sick for a month with some

kind of stomach ailment, hope it\'s " just " the flu. lol

>

> A laugh a day keeps the blues away.

>

> Sharon

>

November 22, 2005

I will, I'm getting tired if "ill" not ny thang, don't ya know.

A laugh a day keeps the blues away.

Sharon

Re: Hello

I just came back the otherday Welcome back to usI have an infection in upper gi I take flagyl for it took two rounds of that now I am on my third it kept coming back each time. Tomorrow I will start another med for the remainder of 2 weeks along with flagyl total of a month. 10 days each time was not enought let us knowhow it goes?>> Hello every one. I am Sharon, was a member of this group around the same time as Anita. Went away and am now back. Hello to all.> > I have HCV, for thirty years now. Failed first round of treatment and dropped out of the second with deep depression.> > I'm fine, as far as I know, but it's past time for the round of tests to be repeated. It's been about 5 years now, so I'll have to insist I guess.> > I'll see my gastro doc tomorrow, been sick for a month with some kind of stomach ailment, hope it\'s "just" the flu. lol> > A laugh a day keeps the blues away.> > Sharon>

November 22, 2005

Soon I hope,. The next generation promises to do good things for usns

A laugh a day keeps the blues away.

Sharon

Re: Hello

Welcome Back Sharon

Im so glad you came back,,and Im glad you are doing ok,, Im sorry you didnt clear on treatment but we have to never give up,, newer drugs should be comeing out soon,, we hope!

Anyway, just wanted to say that we are glad you are home now with us,, hang around,, we missed you!

jaxSHARON CROSBY <csharonxoxo@...> wrote:

Hello every one. I am Sharon, was a member of this group around the same time as Anita. Went away and am now back. Hello to all.

I have HCV, for thirty years now. Failed first round of treatment and dropped out of the second with deep depression.

I'm fine, as far as I know, but it's past time for the round of tests to be repeated. It's been about 5 years now, so I'll have to insist I guess.

I'll see my gastro doc tomorrow, been sick for a month with some kind of stomach ailment, hope it\'s "just" the flu. lol

A laugh a day keeps the blues away.

Sharon

Jackie

November 22, 2005

Hiya Sharon, I'm pretty new here, sounds as if you've been here before. My husband has had HCV for about 25 yrs too. His has done alot of damage but were almost at week 12 of treatment. Nov 30th they check his viral loads, he's had some serious complications along the way, but each new thing we take the hurdle and jump over it. It's alot of positive thinking, taking proper care of yourself and knowing there is a light at the en d of the tunnel, as long as it isn't a freight train coming our way....lol. Hope all goes well at the Gastro. SHARON CROSBY <csharonxoxo@...> wrote: Hello every

one. I am Sharon, was a member of this group around the same time as Anita. Went away and am now back. Hello to all. I have HCV, for thirty years now. Failed first round of treatment and dropped out of the second with deep depression. I'm fine, as far as I know, but it's past time for the round of tests to be repeated. It's been about 5 years now, so I'll have to insist I guess. I'll see my gastro doc tomorrow, been sick for a month with some kind of stomach ailment, hope it\'s "just" the flu. lol A laugh a day keeps the blues away. Sharon

FareChase - Search multiple travel sites in one click.

November 22, 2005

Hi Doug,

are you still interested in German Scrabble?

http://www.bytespiel.de/scrabble.html

Your teacher will be delighted. ;-)

Auf Wiedersehen,

Camilla

schrieb am 21.11.05 21:43:04:

> Hey , I had 3 yrs of German in high school too. I still exchange

> Christmas cards with my German teacher 30 years later. She took a shine to

> me for some reason LOL, maybe because I won the German Scrabble tournament

> she held!!. She's quite old now (I should talk!). Welcome Camilla, might

> send you a email later this week. Auf Wiedersehen, Doug

>

______________________________________________________________

Verschicken Sie romantische, coole und witzige Bilder per SMS!

Jetzt bei WEB.DE FreeMail: http://f.web.de/?mc=021193

November 23, 2005

Thanks ,

Doc is doing the usual preliminary elimination tests. I think they'll end up finding an ulcer, from how I feel and from what my husband, an ulcer survivor tells me. But it's dangerous to try to diagnose one self, so I'll do the tests and hope to feel better. In the mean time, I've lost 8 lbs, can't be all bad, huh?

A laugh a day keeps the blues away.

Sharon

Re: Hello

Hiya Sharon, I'm pretty new here, sounds as if you've been here before. My husband has had HCV for about 25 yrs too. His has done alot of damage but were almost at week 12 of treatment. Nov 30th they check his viral loads, he's had some serious complications along the way, but each new thing we take the hurdle and jump over it. It's alot of positive thinking, taking proper care of yourself and knowing there is a light at the en d of the tunnel, as long as it isn't a freight train coming our way....lol. Hope all goes well at the Gastro.

SHARON CROSBY <csharonxoxo@...> wrote:

Hello every one. I am Sharon, was a member of this group around the same time as Anita. Went away and am now back. Hello to all.

I have HCV, for thirty years now. Failed first round of treatment and dropped out of the second with deep depression.

I'm fine, as far as I know, but it's past time for the round of tests to be repeated. It's been about 5 years now, so I'll have to insist I guess.

I'll see my gastro doc tomorrow, been sick for a month with some kind of stomach ailment, hope it\'s "just" the flu. lol

A laugh a day keeps the blues away.

Sharon

FareChase - Search multiple travel sites in one click.

November 29, 2005

Hi and welcome to the group! There’s so many wonderful

people here, ready to share their experiences and help you to understand this

journey your on.

You’ve got friends here. Get comfortable.

Johanna

Read Dr. Palmers article on

" Liver-friendly Holidays " at htttp://www.hepcmo.org

”When we

fail to recognize the lives of those around us, we invariably diminish

ourselves.” – Ursula Copeland

---------------------------------------------------------------

Johanna Koskinen

Executive Director/Outreach Coordinator

Hepatitis C Multicultural Outreach

P.O. Box 35033

Kansas

City, Missouri 64134

1.888.436.HEP C (4372)

1.816.763.4766

Email: johanna@...

Website: http://www.hepcmo.org

From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of darker_goddess

Sent: Tuesday, November 29, 2005

1:09 PM

Hepatitis C

Subject:

Hello

Hi I just joined this site

and wanted to pop in to say hey. My name is

stephanie, I am 20 I was dxed with HepC when I was

sixteen. I am end

stage chirrossis and end stage of the disease it

self. I am hoping to

make some friends who understand what having hep

is like.

November 29, 2005

Welcome to the group . I'm so sorry you've had to deal with this Dragon but I'm very glad you found us!

anne

Hello

Hi I just joined this site and wanted to pop in to say hey. My name is stephanie, I am 20 I was dxed with HepC when I was sixteen. I am end stage chirrossis and end stage of the disease it self. I am hoping to make some friends who understand what having hep is like.

January 3, 2006

Day 5 was the worst for my son after his surgery. Try giving Tylenol and

waiting an hour then offer food.

Good luck-for us it was worth it. Surgery was 7/20/05 and no fevers!

Hello

Hi Hope everyone had a nice New Year.My son had sugery on his tonsils

and adnoids last week so far no fevers but he has been having a hard,

he is not wanting to eat or drink.The ENT doctor has never heard of

until my son. Well hope every one a Happy New Year.

January 3, 2006

Great the poor kids but if this helps with the it will be worth it. The

doctor says Day 5 the scabes start coming off and that is when you need to watch

for hemmoriging. That is what I have been doing he just says it hurts to swollow

and his glads are swollen in his neck but no fevers. Thanks for the imput. I

hope your son the best.

Thanks

obricy@... wrote:

Day 5 was the worst for my son after his surgery. Try giving Tylenol and

waiting an hour then offer food.

Good luck-for us it was worth it. Surgery was 7/20/05 and no fevers!

Hello

Hi Hope everyone had a nice New Year.My son had sugery on his tonsils

and adnoids last week so far no fevers but he has been having a hard,

he is not wanting to eat or drink.The ENT doctor has never heard of

until my son. Well hope every one a Happy New Year.

January 3, 2006

Don't under estimate day 5! We used the Tylenol with Coedine on that day

for sure (with coaxing). That pain only lasted about 36 hours total. Good

luck!

Hello

Hi Hope everyone had a nice New Year.My son had sugery on his tonsils

and adnoids last week so far no fevers but he has been having a hard,

he is not wanting to eat or drink.The ENT doctor has never heard of

until my son. Well hope every one a Happy New Year.

January 4, 2006

Hi

My name is Cheryl and we are right their with you!!

My 3 year old had her tonsils out on Dec 30th and she hit a wall yesterday.

No eating and drinking and now she refuses to even take the pain med. THe Dr

had me give her tylenol suppositorys this afternoon -- A first for both of us.

I have to give it again and she still refuses anything by mouth. Dr wants to

see her in the AM. Is you son spiting out alot of white curd?? Its SOO GROSS

Dr says its the scabs sloughing off her throat.

She screams and trys to spit and wipe it off her cheeks and tounge.

Shes having some diareha w/ the med I guess- Now I know why they say a Two

week recovery - THis is HORRIBLE.

I would be soo scared if she started bleeding like your son - how did they

stop it ??

After all this it better stop the cycles

Good luck- I'll be thinking of you guys tonight as Im trying to get Madison to

drink something.

I'll check in with you tomm

Cheryl

Sacora <sacoracasselman@...> wrote:

Well is Day 6 since my sons tonsils and adnoids were removed and he is

in alot of pain. He woke up last night choking on blood and was

coughing blood up I took him to the ER and by then the blood stopped.

They gave him 1/2 hour worth of IV fluid. He don't still want to eat

or drink, he is pale, sucken and dark eyes, his urinated maybe 4 times

in 3 days but the ENT says he should be fine since they gave him some

IV fluid. He looks horrible. I haven't slept cause now it worries me.

The doctor says he should be feeling better soon.

January 4, 2006

HI Cheryl my name is Sacora. My son is name Nicolas he goes by Nick he is 12

years old. This has been very rough on all of us, I don't want to leave him

cause he scares me.He just stopped bleeding so I don't know if a scab came off

and that is why he bleed or what but he isnt spiting white stuff up as of yet.

Yeah this is horrible the poor kids. I hear you about stopping those cycles that

would be great. My son is missing school so this is gona put him behind, so i

hope things get better so he can go back. Well I hope your daughter starts doing

better. Keep me informed.Well be thinkging of you guys as well.

Sacora

cheryl hollyfield <chniki88@...> wrote:

Hi

My name is Cheryl and we are right their with you!!

My 3 year old had her tonsils out on Dec 30th and she hit a wall yesterday.

No eating and drinking and now she refuses to even take the pain med. THe Dr

had me give her tylenol suppositorys this afternoon -- A first for both of us.

I have to give it again and she still refuses anything by mouth. Dr wants to

see her in the AM. Is you son spiting out alot of white curd?? Its SOO GROSS

Dr says its the scabs sloughing off her throat.

She screams and trys to spit and wipe it off her cheeks and tounge.

Shes having some diareha w/ the med I guess- Now I know why they say a Two

week recovery - THis is HORRIBLE.

I would be soo scared if she started bleeding like your son - how did they

stop it ??

After all this it better stop the cycles

Good luck- I'll be thinking of you guys tonight as Im trying to get Madison to

drink something.

I'll check in with you tomm

Cheryl

Sacora <sacoracasselman@...> wrote:

Well is Day 6 since my sons tonsils and adnoids were removed and he is

in alot of pain. He woke up last night choking on blood and was

coughing blood up I took him to the ER and by then the blood stopped.

They gave him 1/2 hour worth of IV fluid. He don't still want to eat

or drink, he is pale, sucken and dark eyes, his urinated maybe 4 times

in 3 days but the ENT says he should be fine since they gave him some

IV fluid. He looks horrible. I haven't slept cause now it worries me.

The doctor says he should be feeling better soon.

January 5, 2006

>

> I am 29 and on my 3rd day of the BfL challenge, as this is my first

> challenge I appreciate any encouragement. I have been reading back

> logs of the group and have learned a lot. Tonight is my UBWO I

should

> get a good work out just moving all of the boxes stacked on and

around

> the weight machine.

> Thanks

> JG

>

hi , i am 30 and on my first challenge " day one " .... yea !!!! i did

my cardio this morning , it was a great work out. good luck! i also

need all the encouragement i can get .... have a great day , Angie

oh and i also had to move boxes.... lol ......

January 5, 2006

Oh my goodness!!! How is he doing today?!? Praying for him!!! Keep us

posted!!! Do you go to a " Children's Hospital " or just a regular one? Our

regular hospital here isn't very good, and if we want anything descent done...we

go to St. Louis where there are Childrens Hospitals!!! Good luck!!!

Shumate

---------------------------------

Photos

Ring in the New Year with Photo Calendars. Add photos, events, holidays,

whatever.

January 16, 2006

At 09:52 PM 1/16/2006, you wrote:

>Hi Anya;

>I joined this group back in November, but just now getting around to

>checking it out. I've been working with EO's for 18 years, but the

>natural perfumery 'bug' really bit me about a year ago, and I'm

>starved for info., so must be at the right place.

Hi Barbara

Thanks for introducing yourself, and yes, you have found the right place.

>I have nearly memorized Mandy Aftel's book and now want to take a

>course, but having a hard time deciphering the best

>place/person/workshop to invest my time and money. Mandy A. has some

>courses, as well as Gail . Any feedback or suggestions?

I'm not familiar with their courses, not having taken them. Can anyone

assist Barbara with first-hand experience?

Anya

http://.com

The premier site on the Web to discover the beauty of Natural Perfume

/

Join to study natural perfumery

January 20, 2006

She has told me nothing will get presented without a drs letter .. she has told

me and told me that this week

HELLO

Hello everyone-

Well I am Sacora mother of Nicolas. He is finally doing better after

having his tonsils out 12/29 so far no fevers for him but he has been

complaining of stomach pain and his legs aching. I scheduled an

appointment for him with a cardioligist so they can check him out and

just to make sure his heart is okay. I had taken him and my oldest

son to a children's hospital last week to see another doctor on their

kidney's cause my oldest has kidney scarring and kidney disease with

high blood pressure, I found out his kidney's are functioning at 39%

and 61% then Nicolas has kidney scarring functioning is 47% and 53%

he has built stones since he was 3 or 4 and has had them every since

then.Anyways I talked to the cardioligist cause Nick is always tired,

fatigued, he just has not been his self lately and his pediatrician

wouldnt refer us so they told us that I can just refer him and they

will check things out since they never check his blood pressure or

anything out. I seen his pedrician the other day cause of his

stomache pains and she said she thinks it may be acid or an ulcer so

she just gave us medicine to see if that would help. I am just

getting frustrated that my son lately is just never hisself and the

doctors here just never listen and they rush you out. I sent paper

work in to Plass at the NIH but they are waiting on his doctor

now then she said she would present it to DR.Kastner so who knows how

long that will take. I see people are asking about airlines to get

there, I don't know what I will do cause I am in Oregon and if the

Angel flights and the other ones only go 1000 miles then they won't

help us cause were about 3000 miles from there. But I guess that is

even if they except my son.

Thanks

January 20, 2006

Yeah that is what she told me so who knows what will happen. She recieved the

500 pages of medical records on my son though and that is not even half of them.

Bisson <proudmom@...> wrote: She has told me nothing will get

presented without a drs letter .. she has told me and told me that this week