Questions

[Guest guest]

How do you get it into the bottles?

chris

dump it into a large glass

measuring bowl until it reads ...8 cups....and then I add my scent and

color into it...and stir until it is nice and mixed.....and then..i put

it into individual bottles....

i dont belive that putting

it into a glass bowl could harm the lotion...

i love to answer questions.....god

knows i ask enough of my own..it feels good when i can answer...i feel

like a little girl saying....ooooh oohhh i know the answer lololol

ask any time i will try and

help

patti

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[Guest guest]

try heating in your microwave and then using your stick blender after

wisking a bit-works for me everytime!

DEb

-

>

>

[Guest guest]

how do you get yours into your bottles?

Deb

[Guest guest]

ziploc

Bob & Deb wrote:

how do you get yours into your bottles?Deb

Our members map

http://.homestead.com/locations.html

Our Message Board

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All posts to this list are copyrighted by post author. They may

NOT be forwarded, copied, or used in anyway without the permission of the

post author with the exception of answering posts to this list. Posts are

personal opinions only.

[Guest guest]

Long longevity questions :-),

" Second, I also read recently the claim that gh is not effective

unless it is supplemented with the other hormones that decline with age "

To say that gh is not effective would be in error, but to say it might not

be effective,

or very effective, or even contraindicated, would be more prcise.

It grieves me somewhat to see the topic of longevity and anti-aging, which

at its root

has always been vitalistic/holistic, now being discussed within the

allopathic model

as if there were " majic bullet " solutions to a long and happy life.

Sound anti-aging practices depend on sound theories. Here is the briefest

introductions

" Basic Theories of Aging You Should Know at Any Age! "

There are many theories of aging. But to keep things easy we will start with

two basic categories;

oxidation reactions and sub-optimal hormone levels.

Oxidation reactions occur when essential life processes produce by-products

called free radicals.

However, free radicals are not only produced inside us, but we take them in

through smoking, food,

air and water pollution, x-rays, sun exposure, various poisons to name the

most common.

Free radicals can create " molecular mayhem " , disrupting, damaging and

destroying nearby

healthy cells. (If DNA is involved, mutations occur, a favored theory of a

common cause of cancer!)

When this process occurs in metals we call it rusting. When it happens in us

we call it aging,

which over time may make us feel " rusty " as well!

Deep colored fruits and vegetables are the best source.

(See http://www.GREENSFIRST.com)

The other major theoretical cause of aging is sub- optimal hormone levels.

As we age some hormones begin a precipitous decline that strongly parallels

the

onset of aging signs and symptoms. These include human growth hormone,

melatonin,

DHEA, testosterone, estrogen, progesterone and perhaps thyroid hormone.

Conversly, insulin levels tend to rise, culminating in adult onset diabetes

and

a relative rise in cortisol, the stress hormone, is all too common as well.

HUMAN GROWTH HORMONE (HGH), as the name implies, stimulates the growth

of our tissues. Our internal organs, skin, muscles, nerves and bones are all

stimulated to

grow by HGH. As our levels of growth hormone shrinks, so do we!

MELATONIN helps us sleep and may help prevent cancer.

DHEA boosts our immune systems and protects our cardiovascular and nervous

systems.

TESTOSTERONE, ESTROGEN and PROGESTERONE give us our sex drive,

build muscle, skin and bone, keep our minds sharp, protect our hearts, and

help us

feel and be attractive.

THYROID HORMONE helps keeps us energetic and trim.

THYMUS HOMONES which keep our immune cells strong and active.

Excess INSULIN levels are associated with diabetes, pre-diabetes, and the

mysterious sounding " Syndrome X " .

Unfortunately CORTISOL levels don't decline with age. Excess levels of this

stress hormone are catabolic.

That means it literally " eats us up inside " .

Most scientific anti-aging strategies therefore endeavor to optimize

" antioxidant " nutrition, restore the

hormones of youth, and keep the hormones of age under control.

When one has at least this basic understanding, one can easily see that

anti-aging is more than just

" shooting up " with Hgh.

To learn more about just such a program (commercial free!) see

Dr. Maher's " Five Steps to the 100 Year Health Span "

How to Die Young.at a Ripe Old Age!

at

http://www.topica.com/lists/LRI/read/message.html?sort=d & mid=1604584031 & star

t=66

Vitally yours,

Dr H Maher, A.B.A.A.H.P.

Editor, Longevity News

www.RxforWellness.com

" Your FREE Anti Aging Program Online! "

questions

> Hi guys. I haven't asked any questions in a while, but I have now

> stumbled on a few I hoped you could help me with. First of all, someone

> told me that gh can now be injected via an air injector pen? Any one

> heard of this?

>

> Second, I also read recently the claim that gh is not effective

> unless it is supplemented with the other hormones that decline with age

> -- melatonin, dhea, pregnelone and progesterone -- because things things

> work in tandem. Let me ask, what does would a man take of progesterone

> and pregnelone? I already know about melatonin and dhea, but I am

> confused about taking the latter.

>

> Lastly, does anyone have an opinion on when l-carnosine should be

> taken, morning or night, and whether it should be taken with or without

> food. I don't know when to take this stuff.

>

> ... thanks in advance!

>

>

>

>

[Guest guest]

Has been in the hospital or medical facility lately? pseudomonas can be

a very hospital-acquired bacteria.

Macey had it in her PICC line and was septic from it. It is a gram-negative

bacteria and can be dangerous. She was on

Fortaz and Gentamycin IV to clear it. Pseudomonas that's prevalent in CF is

generally in their lower bronchial

passages. Does he have a chronic cough? A bronchoscopy or reliable sputum

sample would help. I've known several PID

patients who have cultured it in their ear drainage. Good luck with the sweat

test and DNA sampling. Macey's had both

and thankfully they were negative.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

[Guest guest]

Pseudomonas is a pretty common germ, generally seen in immuno-suppressed

patients. Patients generally at risk are Chemotherapy patients, HIV

patients, Primary immune deficient patients, patients on high dose steroids,

i.e., organ transplant recipients. Persons who are immuno-competent generally

do not get Pseudomonas.

[Guest guest]

Pattie,

I used Claritin-D myself. It worked great for awhile. The only problem I

noticed was a extremely dry feeling after about 1 hour of taking it. It

could have just been me, though. . .I know Claritin-D isn't supposed to have

an antihistamine, just a decongestant. I was also pregnant at the time &

constantly dehydrated. I've never used Zyrtec. Tabitha has & it works

great for her. Didn't do a thing for Autumn, though. Ped said she's too

young for Claritin.

Ray, mother to Tabitha (age 6), Autumn, age 4 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan (10 months)

[Guest guest]

Thanks for the input. I am glad to hear that it isn; just my kids Zyrtec

doesn;t work for...nto that I don; want it to work for your child... does

that make sense? Everyone keeps telling me how wonderful it is, but it

doesn;t seem to help S & J.....

Pattie

Pattie,

I used Claritin-D myself. It worked great for awhile. The only problem I

noticed was a extremely dry feeling after about 1 hour of taking it. It

could have just been me, though. . .I know Claritin-D isn't supposed to have

an antihistamine, just a decongestant. I was also pregnant at the time &

constantly dehydrated. I've never used Zyrtec. Tabitha has & it works

great for her. Didn't do a thing for Autumn, though. Ped said she's too

young for Claritin.

Ray, mother to Tabitha (age 6), Autumn, age 4

[Guest guest]

I have a 6 yo son with bad environmental allergies. He

takes Singular and Nasonex daily. He also has Zyrtec

for break through symptoms and eye drops. I am giving

him those daily right now as well. I also got a

prescription for something else but for the life of me

can't find the prescription right now. He prescribed

that because my son will still have breakthrough

symptoms. Poor thing swells up. He also gets three

shots every friday. In six months this will go to every

other week. Not fun, but it should help. Good Luck.

--

> Hi all-- we are back from the ped. ph's sinuses are swollen shut-- but

> not infected..they are pale and swollen which indicates allergies ... so

> the zyrtec (he and are both taking an adult dose of zyrtec daily) is

> not working. She looked in 's ears an nose and it looks like he has a

> cold. Both boys are being switched to Allegra and nasonex. Allegra is

> twice daily.

>

>

>

> My question-- how many of you have had (or your children have had) to be

> switched from Zyrtec to Allegra? Was there a difference? He seems like he

> has a col w/ as much as he is coughing...I guess it is allergies-- she said

> it looks like it.....

>

>

>

> I will talk to the ped next week and if ph isn;t any better, then we

> will be referred to an allergist/immunologist. I requested that we not go

> to 's immunologist b/c I wasn; all that fond of her... anyway..we'll see

> what the week brings.

>

>

>

> ph has been coughing all day and gagging. He can't breathe and he says

> his eyes hurt. Let's hope Allegra helps to Keep him from getting a sinus

> infection. All teh otehr meds and nasal sprays haven't done that-- nasonex

> is good--I have used that one before.

>

>

>

> Any input would be nice. The doc says the neti pot is fine to use... and we

> are going to buy extra HEPA filters. We have one already ... but will get

> more.

>

>

>

> I am so tired of illness.

>

>

>

> Pattie

>

>

[Guest guest]

CVID - generally a deficiency in IgG, IgA and/or IgM and a lack of response or

protective levels to the

pneumovax/Prevnar vaccination.

Ursula Holleman

Macey's mom (7 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

[Guest guest]

Thank you very much for that info. We have a deficiency

in IgA, IgG subclass 4 and no response to prevnar.

Going to do prevnar again and recheck again. Sound like

we are looking in the right direction. Thank you.

--

> CVID - generally a deficiency in IgG, IgA and/or IgM and a lack of response or

> protective levels to the

> pneumovax/Prevnar vaccination.

>

> Ursula Holleman

> Macey's mom (7 yr. old with CVID, asthma, sinus disease, GERD, Sensory

> Integration Disorder, Diabetes Insipidus, colonic

> inertia)

> http://maceyh.home.att.net

>

> /

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

> Primary Immune Deficiency. Opinions or medical advice stated here are the

sole

> responsibility of the poster and should not be taken as professional advice.

>

>

[Guest guest]

In a message dated 8/1/02 3:08:04 PM Eastern Daylight Time,

janisgonzales@... writes:

> ? I have the highest of expectations right now as my baby is doing great

> so far, and we have even started a college fund so we are definitely

> wanting

> to encourage her to do everything her siblings will do,

Janis.

while I understand your desire to do this, you have to look into the

ramifications that it can have in the future. This money should be in an

account that is in only you and your hubbie's name.... if there is any money

in your little one's name. it could be taken when she is an adult under the

cost of care statutes common in the state and federal arena... it could

effect the ability to collect SS, SSI, or SSDI. apparently from my

research, and I am sure that others more conversant in the legalites could

give more info, if part ownership in a house is willed to an individual with

Down syndrome, or part of insurance proceeds name the that individual as a

beneficiary, the state can come and take the money in return for the services

it already supplies... funds that you want to put aside for these children

need to be (at least right now) in what is called a special needs trust....

this is for luxeries only and therefore can not be taken by the state but it

needs to be set up by lawyer...

Ann

Wife to Webb since 4/84

Mom to Webb since 1/91 (nda) and since 6/00 (d/s)

[Guest guest]

Janis,

Hi. i just want to respond to you about having hope and high aspirations for

your daughter. kids with DS have come very far over the years. They can go

to school with their peers, play sports, really be anything they want to be.

My daughter is 11 and she reads all kinds of books, she plays soccer, she's

an actress (has been on Law and Order), she swims, runs, jumps, speaks very

well, writes stories and plays, writes letters, uses a computer including

sending and receiving email.

So many of our kids have great accomplishments. Just get her the services

she needs and treat her like any other kid and she will learn and grow at her

own rate into her own person.

Please try to find a support group in your area where you can meet with other

parents and meet some kids that have DS and then you can see for yourself

that the future will not be so bleak for your daughter. It will be bright

and filled with much joy!

~ Mom to 11 DS and Diabetes Type 1 and 8 NY

[Guest guest]

Thank you! I hope I didn't sound like I see the future as bleak I

certainly don't. I have seen her in my mind doing many of the things you

talk about and I am happy and hopeful for her.

BTW, for those of you who are concerned, we did set up a special needs trust.

Thanks for your interest!

Janis and Cariana

[Guest guest]

,

I am glad that 's kidney results came back normal. Every little bit

counts when it comes to getting normal results for any test.

I know you are worried about your girls and I hope you get the answers at

Duke that you are seeking. I do know that Cassie did not start growing until

she was on IVIG for about a year. She was stuck at a weight forever. Now

she is almost 8 and is at 46 pounds. Still small, but at least she is

starting to gain the weight. We will keep you in our prayers.

Belinda Rose

Mom to Allyssa (10) and Cassie (7), igg immunodeficient, asthma, sinusitis,

IVIG for 5 years

[Guest guest]

Hi Melt,

I have had the shaking for years , long beofre any other " stills " stuff was

caught on to. I have it mostly in my right { nondominant arm } and it

sometimes involves just my thumb jerking uncontrollably, sometimes the

entire arm shaking. My left side gets the shakes but not the jerks. I

always chalked it up to my extra rib but it had gotten more and more

frequent over the past 6 months, and I began thinking there was a reason to

esee a nuerologist, then the entire Stills onset and it became the least of

my troubles...being a painter and can get rather um...funky...thankfully I

work in abstract art....and it isnt my full time job...I know this isn't

much of an answer, but believe me, I can relate!!!

Hang in there !!!

[Guest guest]

Cinthia; thank you for letting me know you share the same problem.

Mine is happening in both sides of the body but I'm sure you can

relate from what you have shared. Thank you for the support, Melt

> Hi Melt,

>

> I have had the shaking for years , long beofre any other " stills "

stuff was

> caught on to. I have it mostly in my right { nondominant arm } and

it

> sometimes involves just my thumb jerking uncontrollably, sometimes

the

> entire arm shaking. My left side gets the shakes but not the

jerks. I

> always chalked it up to my extra rib but it had gotten more and

more

> frequent over the past 6 months, and I began thinking there was a

reason to

> esee a nuerologist, then the entire Stills onset and it became the

least of

> my troubles...being a painter and can get rather

um...funky...thankfully I

> work in abstract art....and it isnt my full time job...I know this

isn't

> much of an answer, but believe me, I can relate!!!

> Hang in there !!!

[Guest guest]

Patty,

I was on that drug for a while and then taken off it because I had too many

" benzodiazepines " in my medicine regimen. I have Restless Leg Syndrome (which

is neurological and treated with Parkinson's drugs). I'm not on that drug

anymore (haven't been for a long time) but I do still have the tremors (in fact,

they are worse now than ever). I don't know what that all means. I did have a

scar last Friday when I couldn't move my foot when I wanted to, and then it

overreacted in movement. I couldn't initiate writing my name for the longest

moment in my life and then did, but it was not my handwriting. In fact, I'm

having a real hard time " writing " anything. It definitely is not my handwriting

and this is all very upsetting and frustrating. The fainting feeling and dizzy

spells have come on at a more frequent and regular schedule.

I don't know if any of this is related to the Stills, but since two of us have

similar symptoms, it does make one wonder what's the cause?!

Your similarly confused friend,

Jul

(lilac_rose@... )

Questions

Hi everyone; I have been having tremmors for quite some time now and

they are only getting worse. My doctor perscibed medication for

Parkinsons disease and is sending me to a neurologist at the end of

the month. The medication is Carbidopa\Levidopa.

I remember when early illness I was hospitalized at one time for I

believe it was charted as Parkinson's symptoms from the Prednisone.

But I have not been on Predisone for over 20 years.

My symptoms are shaking so bad that I can't even function to do thing

with my hands and fainting or dizzy spells. It has become worse over

the past month happening every day now.

Does anyone know of a connection with Still's or medications taken

that may be causing this? I know we are not supposed to ask but I am

too shaky to be able to spend much time looking. It is ok if there

is no known, I will be seeing the neurologist in a couple of weeks,

but this is scaring me.

I will be gone over the weekend to send my car to the junkyard so any

help will be appreciated if not today then later, I love you guys,

Melt

[Guest guest]

My Dear Friend Patty,

No friend, I am so sorry, but I myself have never heard of anything like

this. I too have Restless Leg Syndrome, and at night, when I finally lie

down, my legs will spasm and twitch sometimes uncontrollably in bed. It is

very painful and drives me nuts, but as far as the other symptoms go friend,

I have never experienced such and I am very, very worried about you Patty.

Are you seeing the doc regularly about this? I hope that this will soon

stop and that they will find out what is going on. You must be very scared

and nervous Patty. Please let us know how you are doing friend. My

thoughts are with you Patty, and I am here friend.

Love,sue #2

-- Questions

Hi everyone; I have been having tremmors for quite some time now and

they are only getting worse. My doctor perscibed medication for

Parkinsons disease and is sending me to a neurologist at the end of

the month. The medication is Carbidopa\Levidopa.

I remember when early illness I was hospitalized at one time for I

believe it was charted as Parkinson's symptoms from the Prednisone.

But I have not been on Predisone for over 20 years.

My symptoms are shaking so bad that I can't even function to do thing

with my hands and fainting or dizzy spells. It has become worse over

the past month happening every day now.

Does anyone know of a connection with Still's or medications taken

that may be causing this? I know we are not supposed to ask but I am

too shaky to be able to spend much time looking. It is ok if there

is no known, I will be seeing the neurologist in a couple of weeks,

but this is scaring me.

I will be gone over the weekend to send my car to the junkyard so any

help will be appreciated if not today then later, I love you guys,

Melt

[Guest guest]

Dear Patty,

I hope your feeling better. This sounds scary please keep us posted. I

experience very light tremors but nothing like you are describing. I also

have a mild case of Restless Leg Syndrome. Let us know how the visit to the

Neurologist goes. I will be praying that the Doc's figure this out and that

you will get properly treated for this. I wish I could be of more help.

Take care of your self.

Love,

jatw@...

[Guest guest]

Hi ,

I hope both kids are better soon. How are you holding up? I thought I

would add my two cents about Meagan's sinuses. First of all, many Docs only

give ten days of abx, but with our kids I think at least 14 days are needed.

Often, I would go to 21 day regimen. One thing that always, always works for

the sinus king here at our house is a burst of low dose Prednisone with the

abx. Just five days worth and it attacks the swelling allowing the abx to

work. If she has a lot of swelling in the sinuses, and they don't address

that the abx literally will not get to the sinuses.

An ENT is good sometimes, but they often want to do surgery. I would go if

you can't find adequate care through the Ped, but expect them to want to

operate. I do find that Clindamycin works better than anything else for

. First of all, it is anaerobic (sp?). Secondly, it is a little used

drug in the Ped population so it usually works on whatever bacteria someone

else gave him. Augmentin is a good drug, but used often in Peds, and since

it didn't work the first time--I agree it should be time to switch.

About the pain, Advil works well for that. Warm washcloths over the eyes

when they are infected and right before drops. Those little get filled masks

that you can heat up in warm water or the microwave give Bri excellent pain

relief. Also, a trick I've learned this last year with conjunctivitis--which

may be where the cellulitis starts?? When you are using eye drops, use

erythromycin ointment on the lids at night--the lids help contribute to the

overall infection. I try to get a lot of liquids down at this time as when

is infected, he is also nauseous--the gunk just runs into his stomach.

So, I don't push food--but tempt him with little bites all day and lots of

water. When he is really bad, he can drink coke, but he has to be in the

first few days of an infection.

Please keep us updated.

Sandi--Mom to , age 9. Suspected IgA def., Tetrology of Fallot, chronic

sinusitis, chronic ear infections, asthma, severe allergies, GERD. Ten

surgeries, heart surgery pending.

[Guest guest]

,

What the ????? is right! AYE yi yi!

If you look up info on sinus infections, you will find LOTS of info going into

detail about how sinus infections need to be treated longer than 7-10 days--

sometimes 21 days plus.......

I used to have horrible sinus infections-- then I read an article about Vit C

and started using the Neti pot. Have only had one in several years.

Praying for you guys here,

~Peace Be With You~

Pattie

**Jesus, I want to know you more deeply this year. Let my life become a shining

witness to those around me that you are the Son of God, the King, and the

Messiah.**

[Guest guest]

,

complains of his legs being tired, also. This is a boy with plenty

of energy, so I don't think he's making it up. Also, it seems to be when we

have walked quite a bit--he has literally sat down in the middle of the aisle

of a store before--his legs are just too tired to walk anymore. At first,

they were thinking it was his heart. Now, the current thinking is it's his

PID.

Sandi

[Guest guest]

,

I don't understand but my daughter often says her legs hurt and sometimes

she can't walk. She is 12 and 82 lbs. I hear you but the doctor doesn't

know anything either

Lorri ( 12 CVID)

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