Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 What Company sells this? I'd love to see it. (hoping there is a website) Caty is using (well, actually ignoring) her TechSpeak and she uses a StepbyStep for small naratives between home and school. I just asked for her to be evaluated so we could find something else. We've added keyboarding to her IEP next year, did you do that with Mav? I'm hoping that at some point she'll be able to type in what she wants to say and the device (with voice output) will help her get her point across. Re: questions > The vantage is a augmentive communication device. You push the button and it > says the words. There are alot of different styles and types. When he was > younger, Mav had the Alphatalker. The Vantage is smaller and " more mature " . > They both are based on the minspeak symbols. You can set the pages to the > number of pics that you want.... 4 to 64 is what Mav's is set at.....I'm not sure > if it can be more...we are using 32 for most pages. You can set different > pages for different subjects.....like I made a page just for FAIR info when he > was at the county fair....and they made a page to go with his Power Point > presentation at school. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 In a message dated 5/29/2003 3:50:05 PM Central Standard Time, web4mom@... writes: > Anyway folks, I need your input for a response. > Bev HI Bev You may have already been asked this question but is your name on the notification letter, notifying the parents of your attendance? Also what role are you going to take lol and what happens if your school pulls something shiesty on the parents or wants you to .......... just curious I wonder if parent/teachers are at risk of job security if they tell the truth Kathy mom to Sara 11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 In a message dated 5/29/03 10:40:00 PM, web4mom@... writes: << At this point, I need a snappy, tough-neighborhood-of-Brooklyn come-back. ??????? Ralph???????? Help! >> Bev, us the tough neighborhood of brooklyn??? naw ask kathy- shes got hip boots!! in scary brooklyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 OK, needed to read this one first- i think you should definately recluse ( is that the right word) yourself from the spanish IEP because they need to provide a translator thats not you. I also think you should some how inform him of your knowledge of ieps without telling him but by pointing some inacurracy in it that you can get him on. I do that all the time with amanda's principal just a gentle reminder about how if blah blah they could possibly be out of compliance blah blah.... Keeps her on her toes, but you should not explain yourself to your principal at all, but not do anything else to save anyone time, effort, energy, etc. Sorry, still no snappy comebacks here we just tell people to (oops what i want to say i cant on the list!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 We had some weird experiences with speech therapists. Of course in 's day we had to find, and pay for, private therapy. We had one session with a gal who talked about horsies and doggies, and such. You get the idea. Didn't go back. He went 3 days a week for 6 weeks to a summer program at the Rehab Institute. I was able to watch part of the time through a special mirror. I think they were 1-hour sessions, I don't remember for sure. She spent most of the time with some little toys teaching him ON, UNDER, that kind of thing. He knew those things before they started but he was bored with the whole thing so would give her wrong answers. That was obvious to me but she never caught on. So that was mostly a waste of effort. Finally we found a woman who was very good, she worked in her home. Every now and then she would come out of the room and double up laughing, then straighten her face and go back in. kept breaking her up. She said he gave he answers she never thought of. He went to her for some time and she was good. Eventually he did have some therapy at school, that we paid extra for. This was a man and he would give me things to work on with him too. In our experience there were a lot of different ideas on what to work on and what " speech " therapy consists of. Jessie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 From another Brooklynite tell to get with the program you a** wipe. Or my favorite bite me you a**wipe. Unless you want street talk. Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Wait till you hear I question I was asked by my principal! I'm a school librarian. In my continually shrinking non-school life, I am a mom of a son with DS, (which my principal knows), an owner of the book Better IEP's, long-time listserv member, attendee at a gazillion SpEd parent education meetings and conferences, etc. For the past five or six years I have basically written my son's IEP; his teachers have appeared sincerely grateful that I've saved them so much work. This morning I was asked to translate (I was a Spanish teacher before I became a librarian.) for an IEP meeting--for no compensation, of course. I had to remind the administrative designee that the parent needed to be advised of her rights before she signed the IEP. So... the subject of IEPs came up at a conversation with my principal, and in his usual somewhat abrasive streets-of-Brooklyn style (which I usually enjoy), he said to me, " What would you know about writing IEPs? " I usually really like this guy, but I am really P.O.ed at this comment, and am thinking it deserves a response. If I didn't feel so strongly that the Spanish-speaking parents needed the assistance of someone who could explain the process and their rights, I would just tell him to inform the Special Ed department that I am not comptetent to be at their IEP meetings. Anyway folks, I need your input for a response. Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 ROFLOL this is usually my problem > (oops what i > want to say i cant on the list!) > > L -- Leis.... Aussie mum to 5 ,Natasha 1 and Jellybean due Oct 03 An adventure is only an inconvenience rightly considered. An inconvenience is an adventure wrongly considered. G. K. Chesterton (1874 - 1936) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Why didn't you tell him you have written your son's IEPs for the past 5 years. If he is surprised, tell him he should talk to your son's teachers. Also, you should tell the Spec Ed Dept they need to pay you for translating. I would call the hospital admissions and ask if they get paid extra when they translate for a patient. mom to Bridget 10 RE: questions Wait till you hear I question I was asked by my principal! I'm a school librarian. In my continually shrinking non-school life, I am a mom of a son with DS, (which my principal knows), an owner of the book Better IEP's, long-time listserv member, attendee at a gazillion SpEd parent education meetings and conferences, etc. For the past five or six years I have basically written my son's IEP; his teachers have appeared sincerely grateful that I've saved them so much work. This morning I was asked to translate (I was a Spanish teacher before I became a librarian.) for an IEP meeting--for no compensation, of course. I had to remind the administrative designee that the parent needed to be advised of her rights before she signed the IEP. So... the subject of IEPs came up at a conversation with my principal, and in his usual somewhat abrasive streets-of-Brooklyn style (which I usually enjoy), he said to me, " What would you know about writing IEPs? " I usually really like this guy, but I am really P.O.ed at this comment, and am thinking it deserves a response. If I didn't feel so strongly that the Spanish-speaking parents needed the assistance of someone who could explain the process and their rights, I would just tell him to inform the Special Ed department that I am not comptetent to be at their IEP meetings. Anyway folks, I need your input for a response. Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Boy, do yours and my " great minds " work alike! My actual words to him were, " You should ask the teachers my son has had for the last five years or so. I write my son's IEPs every year and they will tell you that I write very good ones! " We are definitly going to have to discuss the translating. I not sure he even knows that the SpEd department has suckered me into doing it. Think of the legal liability! A parent that is unhappy with the IEP or the services could say that it wasn't explained to them correctly, that they weren't told such & such, that they were told something else, etc. At this point, I need a snappy, tough-neighborhood-of-Brooklyn come-back. ??????? Ralph???????? Help! Bev Re: questions Why didn't you tell him you have written your son's IEPs for the past 5 years. If he is surprised, tell him he should talk to your son's teachers. Also, you should tell the Spec Ed Dept they need to pay you for translating. I would call the hospital admissions and ask if they get paid extra when they translate for a patient. mom to Bridget 10 RE: questions Wait till you hear I question I was asked by my principal! I'm a school librarian. In my continually shrinking non-school life, I am a mom of a son with DS, (which my principal knows), an owner of the book Better IEP's, long-time listserv member, attendee at a gazillion SpEd parent education meetings and conferences, etc. For the past five or six years I have basically written my son's IEP; his teachers have appeared sincerely grateful that I've saved them so much work. This morning I was asked to translate (I was a Spanish teacher before I became a librarian.) for an IEP meeting--for no compensation, of course. I had to remind the administrative designee that the parent needed to be advised of her rights before she signed the IEP. So... the subject of IEPs came up at a conversation with my principal, and in his usual somewhat abrasive streets-of-Brooklyn style (which I usually enjoy), he said to me, " What would you know about writing IEPs? " I usually really like this guy, but I am really P.O.ed at this comment, and am thinking it deserves a response. If I didn't feel so strongly that the Spanish-speaking parents needed the assistance of someone who could explain the process and their rights, I would just tell him to inform the Special Ed department that I am not comptetent to be at their IEP meetings. Anyway folks, I need your input for a response. Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 The liability concerns me greatly! Isn't it interesting that I was the one to bring up explaining the parent's rights to her in Spanish! I won't be doing this again without a very serious discussion with the administration. Bev Re: questions In a message dated 5/29/2003 3:50:05 PM Central Standard Time, web4mom@... writes: > Anyway folks, I need your input for a response. > Bev HI Bev You may have already been asked this question but is your name on the notification letter, notifying the parents of your attendance? Also what role are you going to take lol and what happens if your school pulls something shiesty on the parents or wants you to .......... just curious I wonder if parent/teachers are at risk of job security if they tell the truth Kathy mom to Sara 11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 I like " bite me. " That one I do use.......occasionally. Jackie, Mom to 15ds, 12, and Bradley 9 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 In a message dated 5/30/2003 6:21:42 AM Central Standard Time, jbocci55@... writes: > I like " bite me. " That one I do use.......occasionally. > > > Jackie, Mom to 15ds, 12, and Bradley 9 HI Sara did too last week, hubby has said it on rare occasions ............. I think to me lol Kathy mom to Sara 11 ............... We REALLY have to watch what we say around here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 I have spent enough time in NY to know that not all of Brooklyn is tough neighborhoods with gangs & high crime. However, due to your proximity to them, I thought you gentle folk might be familiar with the culture. Bev Re: questions In a message dated 5/29/03 10:40:00 PM, web4mom@... writes: << At this point, I need a snappy, tough-neighborhood-of-Brooklyn come-back. ??????? Ralph???????? Help! >> Bev, us the tough neighborhood of brooklyn??? naw ask kathy- shes got hip boots!! in scary brooklyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 In a message dated 5/29/2003 11:19:57 PM Eastern Daylight Time, linman42@... writes: > Bev, > us the tough neighborhood of brooklyn??? naw ask kathy- shes got hip boots!! > > in scary brooklyn The only people who need to be scared up here are those that mess with our kids! Kathy, Liam's mom( 5) (from almost brooklyn) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Oh I can so relate. I accidentally said " s*** " in front of Jordan, who then proceeded to say the word all day when ever she got the chance. Judi Kathy mom to Sara 11 ............... We REALLY have to watch what we say around here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 I would reply as I am not a professional IEP writer I am a parent of a special needs child and have been involved in writing my childs IEP's for years. I am also an advocate at IEP meetings. Thanks ... Nettie619 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 I place an onion on 's plate. She told me " hell no. " According to teacher she only says three words no,yes and something else. Maureen Mom to 8yr nda 3y ds a 1y Jillian 3/12/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 In a message dated 6/1/2003 1:05:37 AM Eastern Daylight Time, modoyo@... writes: > I place an onion on 's plate. She told me " hell no. " According to > teacher she only says three words no,yes and something else. > We should ask nne, the music therapist how many words our kids know. Liam has said more for her and I'll bet has too. Kathy, Liam's mom( 5) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2003 Report Share Posted June 15, 2003 In a message dated 6/15/2003 7:14:05 PM Pacific Standard Time, uahollem1@... writes: > > Is the doctor giving the " antibiotic " speech her pediatrician or her > immunologist? > > He's the infectious disease doctor. Before he started treating Lacey, her > pulmonologist was the one mostly handling her infections, and his primary > concern was trying to prevent further damage to her lungs from all the infections, > therefore he used antibiotics more freely, which is what the ID feels caused > the resistance. All I know is that when my angel is sick and it's pretty > clear she has a bacterial infection, I'm not willing to wait around and see > which way things will turn....unfortunately she's answered that question for us > on more than one occasion in the past! > Thank you for your help and information~~ Belinda Lacey's mom, (15, CdLS, IgG deficient, IVIG) <A HREF= " http://www.cdls-support.org/family/aug2001/index.html " >CdLS OSG: Featured Family of August 2001</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2003 Report Share Posted June 15, 2003 Belinda - Macey has a protocol with her pediatrician for Rocephin and she gets 750 to 2000 mg depending on where the infection is and if the white count is elevated (which has only happened once so she got the big whopping 2 gms). Rocephin works well for her and she's received it IM and IV. Sometimes just the shots in the office and sometimes for weeks at a time through a line or her port. The office shots are more like loading doses to get her over the hump and set her up for the oral meds. This way a line doesn't have to be put in (which involves conscious sedation, hospital time and scheduling nightmares with the ped intensivist). Just last week she got 750 mg for her cellulitis and then 10 days of oral Vantin (which is the same generation of antibiotic as Rocephin and to me just the same as oral Rocephin). Vantin is our big oral med gun and she's probably only had it 3 or so times in her life. Is the doctor giving the " antibiotic " speech her pediatrician or her immunologist? I hate to say it but antibiotics tend to become a way of life for these patients and if he thinks she will ever get away from them then he needs some re-education. Rocephin is about the only antibiotic that I've never heard of anyone developing a resistance or superbug to. I'm not sure why or when it will probably start happening but until then and as long as it still busts through the bacteria to let the oral meds do their job then I say go for it. I hope she feels better soon and the new ENT has some ideas on how to deal with the last set of CT's. Ursula Holleman mom to (10 yrs old) and Macey (8 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation's 2003 National Conference http://www.execinc.com/idf/ Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Amy, OSEP's report to congress will have what you want in the Data tables http://www.ed.gov/offices/OSERS/OSEP/Products/OSEP2001AnlRpt/ Tonya Questions Okay - I'm having brain fog. Can someone help me to find information for one of our new members, Liz. She is curious about how Texas ranks based upon # of children with autism and how Texas is responding to their needs. What is it that so many other states are doing for children with autism that Texas is not? I have found the data from the Children's Defense Org but it does not break out the info based upon disability. Who can help me out here? http://www.childrensdefense.org/states/state_profiles.htm Amy " I don't suffer from stress.....I'm a carrier! " North Central Texas Federation of Families for Children's Mental Health (NCTFFCMH) Website: <http://pages.ivillage.com/nctffcmh/index.html> http://pages.ivillage.com/nctffcmh/index.html NCTFFCMH Email: nctffcmh.tx@... Amy A. Sosa Executive Director amy.sosa@... Phone: 972.462.9265 Fax: 972.462.1002 Cell: 214.334.4020 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Amy, OSEP's report to congress will have what you want in the Data tables http://www.ed.gov/offices/OSERS/OSEP/Products/OSEP2001AnlRpt/ Tonya Questions Okay - I'm having brain fog. Can someone help me to find information for one of our new members, Liz. She is curious about how Texas ranks based upon # of children with autism and how Texas is responding to their needs. What is it that so many other states are doing for children with autism that Texas is not? I have found the data from the Children's Defense Org but it does not break out the info based upon disability. Who can help me out here? http://www.childrensdefense.org/states/state_profiles.htm Amy " I don't suffer from stress.....I'm a carrier! " North Central Texas Federation of Families for Children's Mental Health (NCTFFCMH) Website: <http://pages.ivillage.com/nctffcmh/index.html> http://pages.ivillage.com/nctffcmh/index.html NCTFFCMH Email: nctffcmh.tx@... Amy A. Sosa Executive Director amy.sosa@... Phone: 972.462.9265 Fax: 972.462.1002 Cell: 214.334.4020 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Thank you so much this is perfect. Liz --- Tonya Hettler <purecntry@...> wrote: --------------------------------- Amy, OSEP's report to congress will have what you want in the Data tables http://www.ed.gov/offices/OSERS/OSEP/Products/OSEP2001AnlRpt/ Tonya Questions Okay - I'm having brain fog. Can someone help me to find information for one of our new members, Liz. She is curious about how Texas ranks based upon # of children with autism and how Texas is responding to their needs. What is it that so many other states are doing for children with autism that Texas is not? I have found the data from the Children's Defense Org but it does not break out the info based upon disability. Who can help me out here? http://www.childrensdefense.org/states/state_profiles.htm Amy " I don't suffer from stress.....I'm a carrier! " North Central Texas Federation of Families for Children's Mental Health (NCTFFCMH) Website: <http://pages.ivillage.com/nctffcmh/index.html> http://pages.ivillage.com/nctffcmh/index.html NCTFFCMH Email: nctffcmh.tx@... Amy A. Sosa Executive Director amy.sosa@... Phone: 972.462.9265 Fax: 972.462.1002 Cell: 214.334.4020 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Thank you so much this is perfect. Liz --- Tonya Hettler <purecntry@...> wrote: --------------------------------- Amy, OSEP's report to congress will have what you want in the Data tables http://www.ed.gov/offices/OSERS/OSEP/Products/OSEP2001AnlRpt/ Tonya Questions Okay - I'm having brain fog. Can someone help me to find information for one of our new members, Liz. She is curious about how Texas ranks based upon # of children with autism and how Texas is responding to their needs. What is it that so many other states are doing for children with autism that Texas is not? I have found the data from the Children's Defense Org but it does not break out the info based upon disability. Who can help me out here? http://www.childrensdefense.org/states/state_profiles.htm Amy " I don't suffer from stress.....I'm a carrier! " North Central Texas Federation of Families for Children's Mental Health (NCTFFCMH) Website: <http://pages.ivillage.com/nctffcmh/index.html> http://pages.ivillage.com/nctffcmh/index.html NCTFFCMH Email: nctffcmh.tx@... Amy A. Sosa Executive Director amy.sosa@... Phone: 972.462.9265 Fax: 972.462.1002 Cell: 214.334.4020 Quote Link to comment Share on other sites More sharing options...
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