Guest guest Report post Posted June 10, 2003 ann, I can't help you with the child care issue since I am in San . I can pass on to you that I took a year of FMLA to help my son. I waited about 8 months after diagnosis, had our doctor fill out the leave slip and then packed up my personal items and left the school district I was working for. After a good year off helping my son, I was able to return to the same district but chose a different position that was more flexible with hours. This leave was unpaid and could have been taken for less than a year. This is the same act my husband and I used after each child was born but that was for only a month of leave. My understanding is that they do not have to hold your position but they do need to have a similar one available if you return within the leave time. Hopefully someone like Jeff Sell or another knowledgeable person can clarify this for you. I was just hoping to ease some of your concern. This is a big transition for all of you. I wish you the best of luck, Theresa in SA > 1) Does anyone know of any child care in the Texas City, TX area? > (north of Galveston and south of Houston) 2) Christian's mother called us at 3:30am last night stating that if we wanted him, we could have him, if not, she was going to put him in an institution b/c she just couldn't handle this anymore. Christian's father and I do not have child care and wanted to know if FMLA (family medical leave act) would cover his father to leave work to take care of him, in order to find out our options. > Thanks for any info. ann Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 10, 2003 ann, I can't help you with the child care issue since I am in San . I can pass on to you that I took a year of FMLA to help my son. I waited about 8 months after diagnosis, had our doctor fill out the leave slip and then packed up my personal items and left the school district I was working for. After a good year off helping my son, I was able to return to the same district but chose a different position that was more flexible with hours. This leave was unpaid and could have been taken for less than a year. This is the same act my husband and I used after each child was born but that was for only a month of leave. My understanding is that they do not have to hold your position but they do need to have a similar one available if you return within the leave time. Hopefully someone like Jeff Sell or another knowledgeable person can clarify this for you. I was just hoping to ease some of your concern. This is a big transition for all of you. I wish you the best of luck, Theresa in SA > 1) Does anyone know of any child care in the Texas City, TX area? > (north of Galveston and south of Houston) 2) Christian's mother called us at 3:30am last night stating that if we wanted him, we could have him, if not, she was going to put him in an institution b/c she just couldn't handle this anymore. Christian's father and I do not have child care and wanted to know if FMLA (family medical leave act) would cover his father to leave work to take care of him, in order to find out our options. > Thanks for any info. ann Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 10, 2003 ann, Is Christian registered as a client with MHMR? MHMR is a statewide agency with county offices. Because of the budget crunch, you may not get much services right now. But they may can refer you to other service resources local to your area. Here is a link to the state website: http://www.mhmr.state.tx.us/ <http://www.mhmr.state.tx.us/> Call them and ask for a local office and how to get registered. Once you are registered with them, a caseworker will be assigned to you (Christian) and you can call this person to get knowledgeable (hopefully) help about services in your area. Also, depending on your income, investigate the possibility of SS benefits for Christian. Also, RIGHT NOW, call about the CLASS list, it is a very helpful state program capable of providing assistance to faimilies, but unfortunately there is a 5 year waiting list. Get his name on the list NOW so that in 5 years he can reap the results. Also, ASK for a receipt showing his date placed on this list and save this to prove he was added to avoid administrative foul ups. Ask your MHMR caseworker how to get on this list which is kept by an agency in Austin. Also, document in writing with MHMR, don't assume they are telling you about all programs available, ASK. Ask about Respite (which could be used to pay some day care expenses). I sympathize with you all. Good Luck, J. P. Reirdon Webmaster http://www.autismtreatment.info/ <http://www.autismtreatment.info/> You CAN treat Autism!! Get treatment tips for children with Autism, PDD and Aperger's Syndrome from parents who have successfully helped their children. HELP Questions: 1) Does anyone know of any child care in the Texas City, TX area? (north of Galveston and south of Houston) 2) Christian's mother called us at 3:30am last night stating that if we wanted him, we could have him, if not, she was going to put him in an institution b/c she just couldn't handle this anymore. Christian's father and I do not have child care and wanted to know if FMLA (family medical leave act) would cover his father to leave work to take care of him, in order to find out our options. 3) Christian's father already called TCISD and they do not have any type of Summer program. We've called the Tullis Farm School for autistic kids; however, they are closed for the summer and are booked up for the next two years for their regular calendar school year. Christian's father and I fought for joint custody and it was granted October of 2002. Now that we have visitation rights, Christian is throwing major tantrums and having behavioral problems when we bring him back home. This only started when his mother came back from Austin TX, she was gone for 3 months, this is a yearly occurance. When Christian's mother was in Austin, Christian's grandmother did not tell us of any major tantrums like this and his school had no major complaints. At 4am last night, his father told his mother that obviously something is bothering Christian at their home and she needs to figure out what it is and change it. We had Christian this weekend and he was fine, no major problems, no tantrums (besides what any other child would do). I hope this makes sense, lack of sleep is creeping up on me. Thanks for any info. ann Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 10, 2003 ann, Is Christian registered as a client with MHMR? MHMR is a statewide agency with county offices. Because of the budget crunch, you may not get much services right now. But they may can refer you to other service resources local to your area. Here is a link to the state website: http://www.mhmr.state.tx.us/ <http://www.mhmr.state.tx.us/> Call them and ask for a local office and how to get registered. Once you are registered with them, a caseworker will be assigned to you (Christian) and you can call this person to get knowledgeable (hopefully) help about services in your area. Also, depending on your income, investigate the possibility of SS benefits for Christian. Also, RIGHT NOW, call about the CLASS list, it is a very helpful state program capable of providing assistance to faimilies, but unfortunately there is a 5 year waiting list. Get his name on the list NOW so that in 5 years he can reap the results. Also, ASK for a receipt showing his date placed on this list and save this to prove he was added to avoid administrative foul ups. Ask your MHMR caseworker how to get on this list which is kept by an agency in Austin. Also, document in writing with MHMR, don't assume they are telling you about all programs available, ASK. Ask about Respite (which could be used to pay some day care expenses). I sympathize with you all. Good Luck, J. P. Reirdon Webmaster http://www.autismtreatment.info/ <http://www.autismtreatment.info/> You CAN treat Autism!! Get treatment tips for children with Autism, PDD and Aperger's Syndrome from parents who have successfully helped their children. HELP Questions: 1) Does anyone know of any child care in the Texas City, TX area? (north of Galveston and south of Houston) 2) Christian's mother called us at 3:30am last night stating that if we wanted him, we could have him, if not, she was going to put him in an institution b/c she just couldn't handle this anymore. Christian's father and I do not have child care and wanted to know if FMLA (family medical leave act) would cover his father to leave work to take care of him, in order to find out our options. 3) Christian's father already called TCISD and they do not have any type of Summer program. We've called the Tullis Farm School for autistic kids; however, they are closed for the summer and are booked up for the next two years for their regular calendar school year. Christian's father and I fought for joint custody and it was granted October of 2002. Now that we have visitation rights, Christian is throwing major tantrums and having behavioral problems when we bring him back home. This only started when his mother came back from Austin TX, she was gone for 3 months, this is a yearly occurance. When Christian's mother was in Austin, Christian's grandmother did not tell us of any major tantrums like this and his school had no major complaints. At 4am last night, his father told his mother that obviously something is bothering Christian at their home and she needs to figure out what it is and change it. We had Christian this weekend and he was fine, no major problems, no tantrums (besides what any other child would do). I hope this makes sense, lack of sleep is creeping up on me. Thanks for any info. ann Quote Share this post Link to post Share on other sites
Guest guest Report post Posted June 24, 2003 Italian is one of the hardest restaurants to eat clean. Any portion of spaghetti on the menu is going to be too much so whatever they give you try to eyeball an authorized portion. Spag and marinara sauce will be fairly safe but then you have to find a protein. Will there be any kind of spaghetti or linguini dish with shrimp that is not a cream and butter based sauce? That would be a good alternative. Also some sort of veal in a non cream sauce would work. Make sure to ask for a " to go " box for the leftovers or share with someone else. Have a large salad too and dip the tines of your fork in the dressing instead of letting them dump it on the salad. Hope this helps. Stasia Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 Have you tried giving him a cup of coffee? I know Caffiene can make our kids crazy, but this always helps me son move his bowels and he gets constipated all the time too. Another thing I will do is buy a low carb sugar free candy bar for him, the sugar alchahols have a laxative effect. My husband gives Charlie a doubleshot from starbucks, it is very sweet strong cold coffee and it works great for constipation. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 Have you tried giving him a cup of coffee? I know Caffiene can make our kids crazy, but this always helps me son move his bowels and he gets constipated all the time too. Another thing I will do is buy a low carb sugar free candy bar for him, the sugar alchahols have a laxative effect. My husband gives Charlie a doubleshot from starbucks, it is very sweet strong cold coffee and it works great for constipation. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 Have you tried giving him a cup of coffee? I know Caffiene can make our kids crazy, but this always helps me son move his bowels and he gets constipated all the time too. Another thing I will do is buy a low carb sugar free candy bar for him, the sugar alchahols have a laxative effect. My husband gives Charlie a doubleshot from starbucks, it is very sweet strong cold coffee and it works great for constipation. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 My son is not on any prescriptions so I dont know if this will help you or if you are already giving him probiotics but that is what my son's ped/geneticist said to give. Within an hour my son was able to go potty and was no longer gripping the edge of the table and standing on his toes then dropping to his knees and twisting his body to the left than to the right (before the probiotics, he'd do this several times because it was too painful, he'd quit trying then he'd try again and quit and try again). In a message dated 7/24/03 11:40:14 AM Eastern Daylight Time, ginam@... writes: > We have used an Rx medication called Miralax. It is tasteless powder. It > is supposed to be safe. Ask your doctor about it. > > > help > > > >can you guys help suggest medication for constipation. ever since my son > >has been put on medication Seroquel and Strattera he's constantly > >constipated. I give him fiber (Benefiber) lots of raisins, he eats > >fruits/veg etc. but still nothing. I don't want him hooked on laxatives > >although I have to resort to giving him ex-lax chocolate almost weekly. > > > >thanks for your help Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 My son is not on any prescriptions so I dont know if this will help you or if you are already giving him probiotics but that is what my son's ped/geneticist said to give. Within an hour my son was able to go potty and was no longer gripping the edge of the table and standing on his toes then dropping to his knees and twisting his body to the left than to the right (before the probiotics, he'd do this several times because it was too painful, he'd quit trying then he'd try again and quit and try again). In a message dated 7/24/03 11:40:14 AM Eastern Daylight Time, ginam@... writes: > We have used an Rx medication called Miralax. It is tasteless powder. It > is supposed to be safe. Ask your doctor about it. > > > help > > > >can you guys help suggest medication for constipation. ever since my son > >has been put on medication Seroquel and Strattera he's constantly > >constipated. I give him fiber (Benefiber) lots of raisins, he eats > >fruits/veg etc. but still nothing. I don't want him hooked on laxatives > >although I have to resort to giving him ex-lax chocolate almost weekly. > > > >thanks for your help Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 Yes, magnesium has also helped my son. The mg brings moisture to the stool so it can be passed. In a message dated 7/24/03 11:39:55 AM Eastern Daylight Time, jreirdon@... writes: > With my son, Magnesium and selenium supplements fixed that problem and he > moves his bowel daily. We use supplements from Kirkmans Labs. > http://www.kirkmanlabs.com/ <http://www.kirkmanlabs.com/> > > But check with your Doctor before making any medical decisions for your son. > I am not a Doctor nor do I have any medical training Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 Yes, magnesium has also helped my son. The mg brings moisture to the stool so it can be passed. In a message dated 7/24/03 11:39:55 AM Eastern Daylight Time, jreirdon@... writes: > With my son, Magnesium and selenium supplements fixed that problem and he > moves his bowel daily. We use supplements from Kirkmans Labs. > http://www.kirkmanlabs.com/ <http://www.kirkmanlabs.com/> > > But check with your Doctor before making any medical decisions for your son. > I am not a Doctor nor do I have any medical training Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 We have used an Rx medication called Miralax. It is tasteless powder. It is supposed to be safe. Ask your doctor about it. help > can you guys help suggest medication for constipation. ever since my son > has been put on medication Seroquel and Strattera he's constantly > constipated. I give him fiber (Benefiber) lots of raisins, he eats > fruits/veg etc. but still nothing. I don't want him hooked on laxatives > although I have to resort to giving him ex-lax chocolate almost weekly. > > thanks for your help > > > > > Unlocking Autism > www.UnlockingAutism.org > > Autism-Awareness-Action > Worldwide internet group for parents who have a > child with AUTISM. > > Schafer Autism Report > News and information on Autism > To Subscribe http://home.sprynet.com/~schafer/index.html > Healing Autism: No Finer Cause on the Planet > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 We have used an Rx medication called Miralax. It is tasteless powder. It is supposed to be safe. Ask your doctor about it. help > can you guys help suggest medication for constipation. ever since my son > has been put on medication Seroquel and Strattera he's constantly > constipated. I give him fiber (Benefiber) lots of raisins, he eats > fruits/veg etc. but still nothing. I don't want him hooked on laxatives > although I have to resort to giving him ex-lax chocolate almost weekly. > > thanks for your help > > > > > Unlocking Autism > www.UnlockingAutism.org > > Autism-Awareness-Action > Worldwide internet group for parents who have a > child with AUTISM. > > Schafer Autism Report > News and information on Autism > To Subscribe http://home.sprynet.com/~schafer/index.html > Healing Autism: No Finer Cause on the Planet > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 With my son, Magnesium and selenium supplements fixed that problem and he moves his bowel daily. We use supplements from Kirkmans Labs. http://www.kirkmanlabs.com/ <http://www.kirkmanlabs.com/> But check with your Doctor before making any medical decisions for your son. I am not a Doctor nor do I have any medical training. J. P. Reirdon Webmaster <http://www.featnt.org/> http://www.featnt.org " Building a Bridge of Hope " Webmaster <http://www.autismtreatment.info/> http://www.AutismTreatment.info/ You CAN treat Autism!! Get treatment tips for children with Autism, PDD and Aperger's Syndrome from parents who have successfully helped their children. Webmaster http://www.StarThrowers.org/ <http://www.starthrowers.org/> Fundraising for In-Home treatment programs help can you guys help suggest medication for constipation. ever since my son has been put on medication Seroquel and Strattera he's constantly constipated. I give him fiber (Benefiber) lots of raisins, he eats fruits/veg etc. but still nothing. I don't want him hooked on laxatives although I have to resort to giving him ex-lax chocolate almost weekly. thanks for your help Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 With my son, Magnesium and selenium supplements fixed that problem and he moves his bowel daily. We use supplements from Kirkmans Labs. http://www.kirkmanlabs.com/ <http://www.kirkmanlabs.com/> But check with your Doctor before making any medical decisions for your son. I am not a Doctor nor do I have any medical training. J. P. Reirdon Webmaster <http://www.featnt.org/> http://www.featnt.org " Building a Bridge of Hope " Webmaster <http://www.autismtreatment.info/> http://www.AutismTreatment.info/ You CAN treat Autism!! Get treatment tips for children with Autism, PDD and Aperger's Syndrome from parents who have successfully helped their children. Webmaster http://www.StarThrowers.org/ <http://www.starthrowers.org/> Fundraising for In-Home treatment programs help can you guys help suggest medication for constipation. ever since my son has been put on medication Seroquel and Strattera he's constantly constipated. I give him fiber (Benefiber) lots of raisins, he eats fruits/veg etc. but still nothing. I don't want him hooked on laxatives although I have to resort to giving him ex-lax chocolate almost weekly. thanks for your help Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 After my daughter was on medications she went through the same problem. I did not like the medications they gave her to help her constipation so I did what my dear old grandmother told me to do and it worked. I snuck in 1/4 to 1/2 teaspoon of sweet oil in my daughter's chocoate milk since she drinks it all day long. I did this right before she went to bed and she had soft stool the next day. I did not have to do this every day but I did this every time she started getting constipated again. After she was prescribed Paxil, the constipation problems went away since one of the side effects for Paxil was diarrhea. However, for my daughter she never has had that but it has softened her stool and made her very regular (thank God!). Good Luck, CL Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 After my daughter was on medications she went through the same problem. I did not like the medications they gave her to help her constipation so I did what my dear old grandmother told me to do and it worked. I snuck in 1/4 to 1/2 teaspoon of sweet oil in my daughter's chocoate milk since she drinks it all day long. I did this right before she went to bed and she had soft stool the next day. I did not have to do this every day but I did this every time she started getting constipated again. After she was prescribed Paxil, the constipation problems went away since one of the side effects for Paxil was diarrhea. However, for my daughter she never has had that but it has softened her stool and made her very regular (thank God!). Good Luck, CL Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 You may try old fashion mineral oil. I used to give that to my SI younger daughter. She was constipated not from meds but from refusing to go and would interpret BM as very painful however they looked normal. It did not matter how much fruit, veggies we gave her, she would continue to hold the BM for days and miserable. It is only recently she can go to the bathroom on her own. Mineral oil helped us at least to initiate a BM pattern w/her but it took alot of praise and coaching. Lots of ASD kids have SI issues that may effect toileting- plus constipating meds only add to the problem. I only learned that recently after attending a conference and after months of struggling. Cod liver oil may be option too w/ benefit of extra vit A but you may want to get that at a HFS. Good luck Jeneane Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 You may try old fashion mineral oil. I used to give that to my SI younger daughter. She was constipated not from meds but from refusing to go and would interpret BM as very painful however they looked normal. It did not matter how much fruit, veggies we gave her, she would continue to hold the BM for days and miserable. It is only recently she can go to the bathroom on her own. Mineral oil helped us at least to initiate a BM pattern w/her but it took alot of praise and coaching. Lots of ASD kids have SI issues that may effect toileting- plus constipating meds only add to the problem. I only learned that recently after attending a conference and after months of struggling. Cod liver oil may be option too w/ benefit of extra vit A but you may want to get that at a HFS. Good luck Jeneane Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 I did not read all the replies to this yet... so this has probably already been said... Seroquel requires the taker to consume a whole lot of fluids... Tons of water and clear liquids... Also it effects the bodies ability to maintain body temp and can induce a lot of sweating... Children on Seroquel should not be outside during the summer much unless they have tons of water... they will dehydrate very easily and overheat very quickly... you can also get fiber powder and put it in anything and everything you can... extra fiber should be harmless... I would not use laxatives unless it is the last resort... use supositories (sorry I cant spell) first if at all possible... if you get fleet for babies it is usually mild enough not to cause any complications and is not adictive... also tons of water!!!!! I hope it gets better for you... Oh and another thing... for some strange reason my son can not have soy or whole milk... for some reason the soy with just stop him right up and so will whole milk... he does best on rice milk or skim milk... *hugs* Christie > can you guys help suggest medication for constipation. ever since my son > has been put on medication Seroquel and Strattera he's constantly > constipated. I give him fiber (Benefiber) lots of raisins, he eats > fruits/veg etc. but still nothing. I don't want him hooked on laxatives > although I have to resort to giving him ex-lax chocolate almost weekly. > > thanks for your help Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 24, 2003 I did not read all the replies to this yet... so this has probably already been said... Seroquel requires the taker to consume a whole lot of fluids... Tons of water and clear liquids... Also it effects the bodies ability to maintain body temp and can induce a lot of sweating... Children on Seroquel should not be outside during the summer much unless they have tons of water... they will dehydrate very easily and overheat very quickly... you can also get fiber powder and put it in anything and everything you can... extra fiber should be harmless... I would not use laxatives unless it is the last resort... use supositories (sorry I cant spell) first if at all possible... if you get fleet for babies it is usually mild enough not to cause any complications and is not adictive... also tons of water!!!!! I hope it gets better for you... Oh and another thing... for some strange reason my son can not have soy or whole milk... for some reason the soy with just stop him right up and so will whole milk... he does best on rice milk or skim milk... *hugs* Christie > can you guys help suggest medication for constipation. ever since my son > has been put on medication Seroquel and Strattera he's constantly > constipated. I give him fiber (Benefiber) lots of raisins, he eats > fruits/veg etc. but still nothing. I don't want him hooked on laxatives > although I have to resort to giving him ex-lax chocolate almost weekly. > > thanks for your help Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 25, 2003 some vaccinations work through t-cell function. The HiB vaccination comes to mind. So doctors look at the response to this to see how the t-cells grow. Other t-cell indicators are the CD4 and CD8 counts and his white blood cell count. Our daughter didn't respond to the Hib and when they gave it again she did. IVIG does not treat t-cell problems because it carries antibodies and b-cells are what produce the antibodies. T-cells come from bone marrow and the thymus. Ursula Holleman mom to (10 yrs old) and Macey (8 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 25, 2003 some vaccinations work through t-cell function. The HiB vaccination comes to mind. So doctors look at the response to this to see how the t-cells grow. Other t-cell indicators are the CD4 and CD8 counts and his white blood cell count. Our daughter didn't respond to the Hib and when they gave it again she did. IVIG does not treat t-cell problems because it carries antibodies and b-cells are what produce the antibodies. T-cells come from bone marrow and the thymus. Ursula Holleman mom to (10 yrs old) and Macey (8 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 25, 2003 His cd 4 and cd 8 were very low they said, and his wbc were low also i believe. So when they respond one time and dont respond the next what do you do?> does that meant that they dont have it or what? all this up and down stuff is frusterating... thank you, brandee uahollem1@... wrote: some vaccinations work through t-cell function. The HiB vaccination comes to mind. So doctors look at the response to this to see how the t-cells grow. Other t-cell indicators are the CD4 and CD8 counts and his white blood cell count. Our daughter didn't respond to the Hib and when they gave it again she did. IVIG does not treat t-cell problems because it carries antibodies and b-cells are what produce the antibodies. T-cells come from bone marrow and the thymus. Ursula Holleman mom to (10 yrs old) and Macey (8 yr. old with CVID, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Share this post Link to post Share on other sites
