Intro and Question

[Guest guest]

I am sorry - the way my yahpoo has been backloading

lately...

anyway, did you get an answer to your question???

Super fine, cosmetic grade glitters are made to add to

lotions, liquid soap etc. so check with your regular

supplier and see if they carry it.

if not i am sure you can google super fine glitter

cosmetic grade glitter...

you get the picture... ;o)

and then can find a supplier nearest you! the nice

thing, it doesn't way much so shipping is minimal!

HTH

WIllow

--- Crouso Shiroff <l.shiroff@...> wrote:

> Hi all! I'm so excited to find you! I've been

> making natural, non-

> toxic lotions for my daughter and have since

> branched out to selling

> it to the mom's of her friends. I'm loving it all

> and plan on

> creating new items soon.

>

> I do have a question, though. I would like to put a

> glitter in the

> lotion. I've tried using mica, but it turned into

> more of a

> pearlescent look and what I want the end result to

> be is of sparkles

> on the skin. Does anyone have any suggestions?

>

> Thank you so much for all your help! I've been

> peaking in the files

> and am so excited to be hear learning from you.

>

> -

> in NJ

>

>

[Guest guest]

In a message dated 12/11/2007 10:02:00 A.M. Eastern Standard Time,

lanegrasoledad@... writes:

My biggest problem is finding lye. Does anyone know if Saratoga Scents

plans on opening up for orders soon? The website says it's not taking

any orders.

~~~~~~~~~~~~~~~~~~~~~

Hi , welcome to posting! ;-)

I don't believe SS will be opening again anytime soon. I've heard different

stories about what's happened to Bill, but I don't anticipate seeing him

around. Do you have a Lowe's or a hardware store nearby? You can order it

online, too.

If you'd like, I think I can send you 2 lbs. USPS without incurring any

difficulties or hazmat fees. Email me if you can't find it, and I'll check

into

it.

Beth

_www.soapandgarden.com_ (http://www.soapandgarden.com/)

www.saponifier.com

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

[Guest guest]

, I would not count on Saratoga Scents to open up anytime soon. You

may be better ordering from a local chemical company, or there are a few

sites online that will ship I believe under 2 pounds if thats all you need.

I have heard that you can find lye at lowes however under the Robeic brand I

think.

Congratulations on your two boys and welcome to the list!

Shaye

Intro and question

Hi, I'm and I make soap as a hobby. I haven't made soap in

close to 3 years and I would like to begin(I've been busy making

babies-2 boys)

My biggest problem is finding lye. Does anyone know if Saratoga Scents

plans on opening up for orders soon? The website says it's not taking

any orders. I'm having a hard time finding it locally.

Thanks

(p.s I do lurk but I'm trying to quit)

[Guest guest]

Hi ! Welcome to the group.

I've had great service from Salt City Soap Works. The owner is a member here

AND donated a door prize to our gathering this year. I had to file a hazmat

form, but now that it's on file she ships super quickly. Her price is good but

mention that you are a member here and ask if there is a discount code.... you

never know! LOL

www.BlueMountainBotanicals.com

Intro and question

Hi, I'm and I make soap as a hobby. I haven't made soap in

close to 3 years and I would like to begin(I've been busy making

babies-2 boys)

My biggest problem is finding lye. Does anyone know if Saratoga Scents

plans on opening up for orders soon? The website says it's not taking

any orders. I'm having a hard time finding it locally.

Thanks

(p.s I do lurk but I'm trying to quit)

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.503 / Virus Database: 269.17.1/1181 - Release Date: 12/11/2007

5:05 PM

[Guest guest]

Read my evolution of PA and take to your Dr. Recall that coreg and verap don't

work very well in PA.

You are on a very low dose of spiro so that would be my first step to get better

BP control and perhaps get you off other meds.

Are you DASHing as well to get no only the low sodium but also the high K in

your diet. I would have your MD do a 24 hr urine for Na and K to see where you

are.

Have you ever had a low K?

Awakening at night? Is your CPAP working OK?

Clarence E. Grim, BS, MS, MD

On Monday, February 25, 2008, at 11:20PM, " smcmom84 " <jane@...> wrote:

>Hi, I just joined this group today, and have been reading old

>messages. This sounds like a very knowledgeable and supportive group,

>so I thought I'd introduce myself and also ask a question.

>

>I am 64 years old, live in NYC. and was diagnosed with either PA or

>secondary aldosteronism (I think it was Primary) about 5 years ago. I

>had originally been diagnosed with essential hypertension 27 years ago

>and had been pretty stable for all those years until five years ago

>when my BP got way out of control (despite being on several BP drugs

>at very high doses). It turned out that my renin was very low. I had

>been eating a low sodium diet since originally being diagnosed with

>hypertension 27 years ago, but ss soon as I went on spironolactone my

>BP dramatically improved, and stayed rock solidly in normal range for

>these last 5 years.

>

>Recently, for no apparent reason, I've started to have spikes again. I

>wish I knew why. I am eating very low sodium, no change there, and in

>addition to the spironolactone, still take verapramil and coreg. I

>have obstructive sleep apnea, and have been on a cpap for 7 years. The

>only thing I can think of that might be related to the spiking is that

>for whatever reason, I'm waking up for several hours in the middle of

>the night, between approximately 2 and 5 a.m. and have a difficult

>time getting back to sleep. It's nothing to do with having to urinate,

>as I usually get through the night without having to (although during

>the day I feel like a sieve, drinking leads to my having to urinate

>within the hour). My dr. is thinking of increasing the spironolactone

>because my renin level is again quite low (I'm currently taking 25 mg.

>5 days a week, because when I was taking it every day my creatinine

>level went above normal, and dropped back down to normal when I

>decreased the spiro to only 5 days a week). I'm a little worried about

>having the creatinine level go up again. Any thoughts on this?

>

>I also have diabetes and have really good blood glucose control.

>

>Thank you for allowing me to post.

>

>Jane

>

>

[Guest guest]

Thank you for your response. I'll try to answer your questions as

best I can:

I have had low K, but had it tested last week and it's normal. I make

sure I get plenty of K in my diet, as well as low sodium, yes. The

dr. has done a 24 hour urine, but not for a while. I can ask him to

do another 24 hour urine.

He's doing an echocardiogram next week, as it's been several years

since I had one. The reason for the low dose of spiro is because my

creatinine went up above normal when I took a higher dose, but he's

going to try to raise it again and check what happens this time.

It seems that my CPAP is working, but I'm definitely more agitated,

more anxious than usual for no apparent reason. That seems to be why,

when I awaken in the middle of the night, I have trouble slipping

easily back to sleep.

Thank you again,

Jane

On Feb 26, 2008, at 1:35 AM, lowerbp2 wrote:

> Read my evolution of PA and take to your Dr. Recall that coreg and

> verap don't work very well in PA.

>

> You are on a very low dose of spiro so that would be my first step

> to get better BP control and perhaps get you off other meds.

>

> Are you DASHing as well to get no only the low sodium but also the

> high K in your diet. I would have your MD do a 24 hr urine for Na

> and K to see where you are.

>

> Have you ever had a low K?

>

> Awakening at night? Is your CPAP working OK?

>

> Clarence E. Grim, BS, MS, MD

>

> On Monday, February 25, 2008, at 11:20PM, " smcmom84 "

> <jane@...> wrote:

> >Hi, I just joined this group today, and have been reading old

> >messages. This sounds like a very knowledgeable and supportive group,

> >so I thought I'd introduce myself and also ask a question.

> >

> >I am 64 years old, live in NYC. and was diagnosed with either PA or

> >secondary aldosteronism (I think it was Primary) about 5 years ago. I

> >had originally been diagnosed with essential hypertension 27 years

> ago

> >and had been pretty stable for all those years until five years ago

> >when my BP got way out of control (despite being on several BP drugs

> >at very high doses). It turned out that my renin was very low. I had

> >been eating a low sodium diet since originally being diagnosed with

> >hypertension 27 years ago, but ss soon as I went on spironolactone my

> >BP dramatically improved, and stayed rock solidly in normal range for

> >these last 5 years.

> >

> >Recently, for no apparent reason, I've started to have spikes

> again. I

> >wish I knew why. I am eating very low sodium, no change there, and in

> >addition to the spironolactone, still take verapramil and coreg. I

> >have obstructive sleep apnea, and have been on a cpap for 7 years.

> The

> >only thing I can think of that might be related to the spiking is

> that

> >for whatever reason, I'm waking up for several hours in the middle of

> >the night, between approximately 2 and 5 a.m. and have a difficult

> >time getting back to sleep. It's nothing to do with having to

> urinate,

> >as I usually get through the night without having to (although during

> >the day I feel like a sieve, drinking leads to my having to urinate

> >within the hour). My dr. is thinking of increasing the spironolactone

> >because my renin level is again quite low (I'm currently taking 25

> mg.

> >5 days a week, because when I was taking it every day my creatinine

> >level went above normal, and dropped back down to normal when I

> >decreased the spiro to only 5 days a week). I'm a little worried

> about

> >having the creatinine level go up again. Any thoughts on this?

> >

> >I also have diabetes and have really good blood glucose control.

> >

> >Thank you for allowing me to post.

> >

> >Jane

> >

> >

>

>

[Guest guest]

Hi Miriam,

I would say that not every mother would pass on the protein into her breast

milk but only those mothers who did not completely digest the nuts. Nuts are

hard to digest for most people, hence the allergies, but soaked nuts are a

different story. You probably read a study where the protein was passed into

the breast milk amongst all the mothers so the researchers jumped to

confusion as they always do.

Same with goats. An unhealthy goat with poor digestion would pass all manner

of undigested proteins into the milk. But healthy animals...I doubt it. That

said, listen to your body and you will find out soon enough, won't you?

I read an interesting discussion once on the chicken feed forum. There were

people there who avoid eating unclean meats. Now understand that chicken is

a clean food according to Bible law.but these folks were concerned that they

were eating worms and bugs, etc because that's what their chickens were

eating. The answer was: All those worms and bugs turns to chicken.

Thanks,

Marilyn

On Sun, May 18, 2008 at 1:20 PM, Miriam Bollinger <brasilmom2@...>

wrote:

> Greetings everyone,

>

> I just joined the group and also ordered some kefir grains. I have never

> deal with the grains themselves, but i am most certainly looking forward to

> learning all about it and drinking the goodness.

>

> I have a 2 1/2 yo daughter whom has multiple several food allergies, and

> cow's milk is one of them. She has only had breast milk and raw goat's milk.

> I can hardly wait to offer her kefir.

>

> My question to you is: if a goat is fed peanuts or tree nuts, will the

> protein of the peanuts/nuts be intact in the goat's milk? I did some

> research on the internet, but cannot find one single piece of information. I

> know that it will remain intact in breast milk, so it is logic to me that it

> would also be the case for any milk. However, I have no knowledge to know

> for sure. Do you know? Do you have any source where I can be directed to to

> learn more?

>

> Thank you for allowing me to became a member and I am looking forward to

> learning from all of you.

>

> Be well

>

> Miriam

>

>

[Guest guest]

Hello Marilyn,

Thanks for the education. Since I was one passing the protein to my milk, I

ignorantly assumed it was how things went. My daughter is allergic to peanuts

and I found out after eating it and feeding her about 20 minutes later just to

see her having a reaction.

That's interesting about the goat. I sure hope that the goats are very healthy

and therefore able to completely digest the milk. Do you have any links or books

or sources of information that I can do further reading about it all?

Oh, and yet another question. The kefir grains eat the protein of the milk? So,

let's say that the peanut protein passed through the milk, will the kefir grains

eliminate it then?

Thanks again. Be well

Miriam

Marilyn Kefirlady <marilynjarz@...> wrote: Hi

Miriam,

I would say that not every mother would pass on the protein into her breast

milk but only those mothers who did not completely digest the nuts. Nuts are

hard to digest for most people, hence the allergies, but soaked nuts are a

different story. You probably read a study where the protein was passed into

the breast milk amongst all the mothers so the researchers jumped to

confusion as they always do.

Same with goats. An unhealthy goat with poor digestion would pass all manner

of undigested proteins into the milk. But healthy animals...I doubt it. That

said, listen to your body and you will find out soon enough, won't you?

I read an interesting discussion once on the chicken feed forum. There were

people there who avoid eating unclean meats. Now understand that chicken is

a clean food according to Bible law.but these folks were concerned that they

were eating worms and bugs, etc because that's what their chickens were

eating. The answer was: All those worms and bugs turns to chicken.

Thanks,

Marilyn

On Sun, May 18, 2008 at 1:20 PM, Miriam Bollinger <brasilmom2@...>

wrote:

> Greetings everyone,

>

> I just joined the group and also ordered some kefir grains. I have never

> deal with the grains themselves, but i am most certainly looking forward to

> learning all about it and drinking the goodness.

>

> I have a 2 1/2 yo daughter whom has multiple several food allergies, and

> cow's milk is one of them. She has only had breast milk and raw goat's milk.

> I can hardly wait to offer her kefir.

>

> My question to you is: if a goat is fed peanuts or tree nuts, will the

> protein of the peanuts/nuts be intact in the goat's milk? I did some

> research on the internet, but cannot find one single piece of information. I

> know that it will remain intact in breast milk, so it is logic to me that it

> would also be the case for any milk. However, I have no knowledge to know

> for sure. Do you know? Do you have any source where I can be directed to to

> learn more?

>

> Thank you for allowing me to became a member and I am looking forward to

> learning from all of you.

>

> Be well

>

> Miriam

>

>

[Guest guest]

Hi Miriam,

I don't know the answers to your questions. But you will know when you drink

the kefir, right?

Marilyn

On Sun, May 18, 2008 at 9:06 PM, Miriam Bollinger <brasilmom2@...>

wrote:

> Hello Marilyn,

>

> Thanks for the education. Since I was one passing the protein to my milk, I

> ignorantly assumed it was how things went. My daughter is allergic to

> peanuts and I found out after eating it and feeding her about 20 minutes

> later just to see her having a reaction.

>

> That's interesting about the goat. I sure hope that the goats are very

> healthy and therefore able to completely digest the milk. Do you have any

> links or books or sources of information that I can do further reading about

> it all?

>

> Oh, and yet another question. The kefir grains eat the protein of the milk?

> So, let's say that the peanut protein passed through the milk, will the

> kefir grains eliminate it then?

>

> Thanks again. Be well

>

> Miriam

>

> Marilyn Kefirlady <marilynjarz@...> wrote:

> Hi Miriam,

>

> I would say that not every mother would pass on the protein into her

> breast

> milk but only those mothers who did not completely digest the nuts. Nuts

> are

> hard to digest for most people, hence the allergies, but soaked nuts are a

> different story. You probably read a study where the protein was passed

> into

> the breast milk amongst all the mothers so the researchers jumped to

> confusion as they always do.

>

> Same with goats. An unhealthy goat with poor digestion would pass all

> manner

> of undigested proteins into the milk. But healthy animals...I doubt it.

> That

> said, listen to your body and you will find out soon enough, won't you?

>

> I read an interesting discussion once on the chicken feed forum. There

> were

> people there who avoid eating unclean meats. Now understand that chicken

> is

> a clean food according to Bible law.but these folks were concerned that

> they

> were eating worms and bugs, etc because that's what their chickens were

> eating. The answer was: All those worms and bugs turns to chicken.

>

> Thanks,

> Marilyn

>

>

>

[Guest guest]

Mikhail,

First of all, welcome to the group, I'm new also and can't tell you the

relief that this has brought me. You will find some of your new friends to

have

more knowledge on this topic than some doctors!!!

Also, the emotional support is amazing and makes a great difference in how

we cope.

And let me also say I Love you for " clicking " !!!!! I now do not feel alone

in my oddity! And see! If I hadn't mentioned it, you wouldn't have chimed

in, and I'd still feel alone in my clicking! So next time you click, just

know that I am clicking right along with you!!!!

PS, keeping a journal of your symptoms on a daily basis is a good idea and

you can share that with your doctor. Include your temps and what time of day

you are taking it, as well as what hurts, etc...

So welcome, I hope we see you around!!!

-Jo

In a message dated 10/1/2008 12:18:28 P.M. Eastern Daylight Time,

mgarber@... writes:

Terrible sore throat and pain around larynx with " clicking " , just like

someone else described;

Chest discomfort, not the heart-attack type but feeling full and " coughy " .

However, I do _NOT_ have:

High fever;

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

Mikhail,

First of all, welcome to the group, I'm new also and can't tell you the

relief that this has brought me. You will find some of your new friends to

have

more knowledge on this topic than some doctors!!!

Also, the emotional support is amazing and makes a great difference in how

we cope.

And let me also say I Love you for " clicking " !!!!! I now do not feel alone

in my oddity! And see! If I hadn't mentioned it, you wouldn't have chimed

in, and I'd still feel alone in my clicking! So next time you click, just

know that I am clicking right along with you!!!!

PS, keeping a journal of your symptoms on a daily basis is a good idea and

you can share that with your doctor. Include your temps and what time of day

you are taking it, as well as what hurts, etc...

So welcome, I hope we see you around!!!

-Jo

In a message dated 10/1/2008 12:18:28 P.M. Eastern Daylight Time,

mgarber@... writes:

Terrible sore throat and pain around larynx with " clicking " , just like

someone else described;

Chest discomfort, not the heart-attack type but feeling full and " coughy " .

However, I do _NOT_ have:

High fever;

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

Mikhail,

First of all, welcome to the group, I'm new also and can't tell you the

relief that this has brought me. You will find some of your new friends to

have

more knowledge on this topic than some doctors!!!

Also, the emotional support is amazing and makes a great difference in how

we cope.

And let me also say I Love you for " clicking " !!!!! I now do not feel alone

in my oddity! And see! If I hadn't mentioned it, you wouldn't have chimed

in, and I'd still feel alone in my clicking! So next time you click, just

know that I am clicking right along with you!!!!

PS, keeping a journal of your symptoms on a daily basis is a good idea and

you can share that with your doctor. Include your temps and what time of day

you are taking it, as well as what hurts, etc...

So welcome, I hope we see you around!!!

-Jo

In a message dated 10/1/2008 12:18:28 P.M. Eastern Daylight Time,

mgarber@... writes:

Terrible sore throat and pain around larynx with " clicking " , just like

someone else described;

Chest discomfort, not the heart-attack type but feeling full and " coughy " .

However, I do _NOT_ have:

High fever;

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

Welcome Mikhail,

I have heard a few members say they haven't had elevated labs with Still's.

I don't know the statistics of this occurrence though. But you are welcomed

here and I hope with treatment and time, you will get better.

_____

On Behalf Of Garber, Mikhail

Sent: Wednesday, October 01, 2008 9:15 AM

Subject: intro and question

So based on this info, what do you think? Do I have Stills? What else should

I ask my doctor? She seems to be very knowledgeable.

Mikhail

____________________________________________________________

Click here to find Medical Transcription Training programs.

http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4uAmTGuUHFQ5RmkVbPEzt7jaCwi\

e4sUuAPynnjnn930O4sSy/

[Guest guest]

I've never had elevated labs. My RBC and WBC are always normal.

Houston, TX

[Guest guest]

In a message dated 10/1/2008 3:42:34 P.M. Eastern Daylight Time,

a_cone@... writes:

I've never had elevated labs. My RBC and WBC are always normal.

Hey ,

I've not had some of the more popular labs either, although WBC has been

through the roof, and my liver enzymes (my liver and spleen are enlarged)

but I've never had the Ferritin (which I guess is something they consider

specific to Still's)

and I've never had the sed rate or CRP elevated (altholugh that could be

that I'm on the meds to control the inflammation since I got diagnosed a yr

ago.

-Jo

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

In a message dated 10/1/2008 3:42:34 P.M. Eastern Daylight Time,

a_cone@... writes:

I've never had elevated labs. My RBC and WBC are always normal.

Hey ,

I've not had some of the more popular labs either, although WBC has been

through the roof, and my liver enzymes (my liver and spleen are enlarged)

but I've never had the Ferritin (which I guess is something they consider

specific to Still's)

and I've never had the sed rate or CRP elevated (altholugh that could be

that I'm on the meds to control the inflammation since I got diagnosed a yr

ago.

-Jo

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

In a message dated 10/1/2008 3:42:34 P.M. Eastern Daylight Time,

a_cone@... writes:

I've never had elevated labs. My RBC and WBC are always normal.

Hey ,

I've not had some of the more popular labs either, although WBC has been

through the roof, and my liver enzymes (my liver and spleen are enlarged)

but I've never had the Ferritin (which I guess is something they consider

specific to Still's)

and I've never had the sed rate or CRP elevated (altholugh that could be

that I'm on the meds to control the inflammation since I got diagnosed a yr

ago.

-Jo

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

Hi there Mikhail!

Welcome home darling, now sit down and relax, put your feet up if you

can (I certainly can't), would you care for a something to drink?

I'm Ellen from South Florida. You're story, my dear, isn't all that

unusual from some others here. I'm sorry you've had to join us but

I'm very happy you're here and part of the family. Yes, I said

family. Odd as it may seem that's exactly what we are.

No one can answer your question for you honey. At least none of us

can. You have to talk with your RD and be as open as you can be

about it. I know it sounds or feels ridiculous but you must tell the

doctor about EVERYTHING that's going on no matter how small it may

seem to you. Even perhaps, noticing that you're losing more hair

(sheading), or you've noticed your finger nails are brittle. Though

it doesn't seem important to you it may mean something to the doctor.

Now, enough of this. It's time to rest. Go on, we'll be here when

you get up. Welcome to the family dear.

Take care and be well.

Ellen

[Guest guest]

Hi there Mikhail!

Welcome home darling, now sit down and relax, put your feet up if you

can (I certainly can't), would you care for a something to drink?

I'm Ellen from South Florida. You're story, my dear, isn't all that

unusual from some others here. I'm sorry you've had to join us but

I'm very happy you're here and part of the family. Yes, I said

family. Odd as it may seem that's exactly what we are.

No one can answer your question for you honey. At least none of us

can. You have to talk with your RD and be as open as you can be

about it. I know it sounds or feels ridiculous but you must tell the

doctor about EVERYTHING that's going on no matter how small it may

seem to you. Even perhaps, noticing that you're losing more hair

(sheading), or you've noticed your finger nails are brittle. Though

it doesn't seem important to you it may mean something to the doctor.

Now, enough of this. It's time to rest. Go on, we'll be here when

you get up. Welcome to the family dear.

Take care and be well.

Ellen

[Guest guest]

Hi there Mikhail!

Welcome home darling, now sit down and relax, put your feet up if you

can (I certainly can't), would you care for a something to drink?

I'm Ellen from South Florida. You're story, my dear, isn't all that

unusual from some others here. I'm sorry you've had to join us but

I'm very happy you're here and part of the family. Yes, I said

family. Odd as it may seem that's exactly what we are.

No one can answer your question for you honey. At least none of us

can. You have to talk with your RD and be as open as you can be

about it. I know it sounds or feels ridiculous but you must tell the

doctor about EVERYTHING that's going on no matter how small it may

seem to you. Even perhaps, noticing that you're losing more hair

(sheading), or you've noticed your finger nails are brittle. Though

it doesn't seem important to you it may mean something to the doctor.

Now, enough of this. It's time to rest. Go on, we'll be here when

you get up. Welcome to the family dear.

Take care and be well.

Ellen

[Guest guest]

Welcome Mikhail.

You asked about Ferritin. Some time ago I posted something on Ferritin

(elevated or not) that included a reference from s Hopkins hospital.

If you go to the main Stills Yahoo site, you can find it be searching

on Item #65162.

Uncle Fuzzy

>

> Hi there Mikhail!

>

> Welcome home darling, now sit down and relax,

[Guest guest]

Welcome Mikhail.

You asked about Ferritin. Some time ago I posted something on Ferritin

(elevated or not) that included a reference from s Hopkins hospital.

If you go to the main Stills Yahoo site, you can find it be searching

on Item #65162.

Uncle Fuzzy

>

> Hi there Mikhail!

>

> Welcome home darling, now sit down and relax,

[Guest guest]

I'm another one who's blood work has never shown any abnormalities. That's

so discouraging, as some Dr's have acctually insinuated that it's all in muy

head. Most don't know HOW to work any other way than go by the " book protoco " l

of ruliing things out by eliminating right down the " bood work list! For

them once they marked evry thing off, we're DONE. " normal " . Go live your life.

VIVI

**************New MapQuest Local shows what's happening at your destination.

Dining, Movies, Events, News & more. Try it out!

(http://local.mapquest.com/?ncid=emlcntnew00000001)

[Guest guest]

>

> Hello,

> After reading this list for a while, I think I am ready to drink

from the fountain of its collective wisdom ;-)

>

> I am 39yo male. Around June 1st I went to local emergency room with

progressing muscle pains in my legs and sore throat. Pain got to the

point where I had problems walking. I had very invasive dental

surgery few weeks before so from the beginning doctors suspected some

sort of auto-immune reaction. In subsequent weeks symptoms came and

went while I underwent complete neurological evaluation (they

suspected GBS). All neuro stuff including million bucks worth of

MRIs came out clean. Additional symptoms appeared later and warranted

visit to the RD (my PCP is a nice guy but this is way over his head).

> My blood was totally normal on all counts. RD introduced me to the

AOSD and symptoms to watch for and took me off my blood pressure meds

and Lipitor both of which _may_ produce muscle pain related symptoms.

>

> In the last two months my symptoms progressed more and currently I

do have:

>

> Faint pink rash coming and going on my arms and chest;

> Well-defined daily cycle - I am a lot worse between 5-8 pm;

> Larger " flare " cycle - about every 4-5 weeks;

> Feeling feverish and then chilly, typically at the same time rash

is present;

> Muscle pains all over body, mostly in feet and legs;

> Joint pain that comes and goes - hips, lower back, knees, elbows,

wrists and weird places like individual finger joint;

> Stiff in the morning;

> Terrible sore throat and pain around larynx with " clicking " , just

like someone else described;

> Chest discomfort, not the heart-attack type but feeling full

and " coughy " .

>

> However, I do _NOT_ have:

> High fever;

> Changes in the blood cell counts.

>

> RD put me on Meloxicam (NSAID), it is hard to tell if it relieves

the symptoms but at least I now move around (barely)

>

> I have another followup visit in a week.

>

> So based on this info, what do you think? Do I have Stills? What

else should I ask my doctor? She seems to be very knowledgeable.

>

> Mikhail

>

>

>

>

[Guest guest]

>

> Hello,

> After reading this list for a while, I think I am ready to drink

from the fountain of its collective wisdom ;-)

>

> I am 39yo male. Around June 1st I went to local emergency room with

progressing muscle pains in my legs and sore throat. Pain got to the

point where I had problems walking. I had very invasive dental

surgery few weeks before so from the beginning doctors suspected some

sort of auto-immune reaction. In subsequent weeks symptoms came and

went while I underwent complete neurological evaluation (they

suspected GBS). All neuro stuff including million bucks worth of

MRIs came out clean. Additional symptoms appeared later and warranted

visit to the RD (my PCP is a nice guy but this is way over his head).

> My blood was totally normal on all counts. RD introduced me to the

AOSD and symptoms to watch for and took me off my blood pressure meds

and Lipitor both of which _may_ produce muscle pain related symptoms.

>

> In the last two months my symptoms progressed more and currently I

do have:

>

> Faint pink rash coming and going on my arms and chest;

> Well-defined daily cycle - I am a lot worse between 5-8 pm;

> Larger " flare " cycle - about every 4-5 weeks;

> Feeling feverish and then chilly, typically at the same time rash

is present;

> Muscle pains all over body, mostly in feet and legs;

> Joint pain that comes and goes - hips, lower back, knees, elbows,

wrists and weird places like individual finger joint;

> Stiff in the morning;

> Terrible sore throat and pain around larynx with " clicking " , just

like someone else described;

> Chest discomfort, not the heart-attack type but feeling full

and " coughy " .

>

> However, I do _NOT_ have:

> High fever;

> Changes in the blood cell counts.

>

> RD put me on Meloxicam (NSAID), it is hard to tell if it relieves

the symptoms but at least I now move around (barely)

>

> I have another followup visit in a week.

>

> So based on this info, what do you think? Do I have Stills? What

else should I ask my doctor? She seems to be very knowledgeable.

>

> Mikhail

>

>

>

>