Guest guest Posted July 14, 2008 Report Share Posted July 14, 2008 , Which sort of injections are you looking at? Cortisone? Synvisc? Prolotherapy? I have chondro and OA in both knees and have found some benefit from Synvisc. They're not 100% pain free, but my pain is better than it was before the shots and I've been able to get out of my knee braces. Your mileage may vary. It seems like a very individual thing seeing what will work for each person. The one thing I've learned from folks on these lists is that if you do go for them, ask the doctor to find a way to give them to you pain-free. It can be done. My doc didn't numb the area first, even when I asked. They were pretty tough to go through. But I've talked to others whose regular osteos gave them pain-free or people who've had pain management docs administer them and I think that's the way I'll go next time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Wow, I didn't have that experience with the Euflexxa. I was a little sore after the 2nd and 3rd injections, but that went away within a couple of hours. I walked home easily after each injection and was able to walk several miles up and down hills the following day. My doc had such bad experiences with Synvisc that he said he would never use it again. Anne **************Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com! (http://www.tourtracker.com?NCID=aolmus00050000000112) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Interesting info on Syvisc vs. Euflexxa. When I got mine, I did some researching and none of that was showing up. I may check into that for next time. However, I don't see that a topical numbing spray would help me with my injection pain. Pain wasn't from the pin prick, but from the fact that there's gel pushing into the knee. It has the eerie feeling of solid things moving around in there while they're doing the injection, then they were so sore and " full " feeling for the rest of the day that I was very uncomfortable (and after the second set could barely stand that day). Yet they've helped enough I think I would definitely do them again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 hi, welcome 2 th group audrey. u'll find nice ppl here to say whatever n whenever. wishing you well Sunny > > Hello my name is Audrey. I am a 54 (soon to be 55 on Saturday) female > that was diagnosed last September with Sjogren's Syndrome, > Fibromayglia and Osteo-Arthritis. > > Since my diagnosed it seems that I've been going downhill. I've had > to quit my job and file for Social Security Disability. Thank God I > was approved for it in April. I don't know how I can ever work again. > > I was recently weaned off of Lyrica (in June). It worked for my pain > but I was gaining so much weight. As soon as I started cutting the > dose of Lyrica I was taken more problems started. I immediately > started having terrible hot flashes and night sweats, then I got a > terrible sinus infection (which I still have after a round of > antibotics), now the doctor thinks I have irratible bowel syndrome. I > think it's celiac disease and have asked my doctor to be tested for > it. > > I'm so tried of being exhausted, having a headache, having hot > flashes, having night sweats and feeling bloated I just want some > relief! > > I wanted to be a part of a group where people don't look at me like > I'm dreaming up these illnesses. I wanted to have a place to truly > vent. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 I absolutely agree. People have totally different reactions to different meds., supplements, etc. Your doc may not have tried the Euflexxa. From what I hear, most of the docs at HSS switched to Euflexxa because of the better results it achieved from Synvisc. I also read something about Synvisc's negative side effects being much higher (50%) than other products. So, as you say, " Give it a shot! " Good luck! Anne **************Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com! (http://www.tourtracker.com?NCID=aolmus00050000000112) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Mike, My Physiatrist also stopped using Synvisc. He said that Euflexxa has literally " changed his practice " in his ability to help people. Euflexxa also does not contain any chicken product, which was a major problem with chicken/dairy allergic people and Synvisc. Anne **************Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com! (http://www.tourtracker.com?NCID=aolmus00050000000112) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 WELCOME ABOARD ;;AUDREY;; YOU HAVE COME TO THE RIGHT PLACE;; THIS IS A GROUP WITH WONDERFUL FOLKS WHO A LOT OF THEM ;; INCLUDING MYSELF ,WHO HAVE SIMILAR AILMENTS TO WHAT YOU HAVE;; A GOOD PLACE TO VENT & LIKE YOU SAID ;YOU DONT HAVE TO WORRY ABOUT BEING MADE FUN OF HERE ;WE KNOW WHAT PAIN WE LIVE WITH DAILY;;EVEN THOUGH WITH A LOT OF US IT DOESNT SHOW ON THE OUTSIDE SO FOLKS THINK WE MAKE IT UP;;; WE ALL CAN FEEL FREE TO VENT;; ALSO THERE IS A LOT OF INFORMATION GIVEN HERE;; TAKE CARE;; HEALING ((HUGS)) DORT FROM MICH;;Audrey <a_grey@...> wrote: Hello my name is Audrey. I am a 54 (soon to be 55 on Saturday) female that was diagnosed last September with Sjogren's Syndrome, Fibromayglia and Osteo-Arthritis. Since my diagnosed it seems that I've been going downhill. I've had to quit my job and file for Social Security Disability. Thank God I was approved for it in April. I don't know how I can ever work again.I was recently weaned off of Lyrica (in June). It worked for my pain but I was gaining so much weight. As soon as I started cutting the dose of Lyrica I was taken more problems started. I immediately started having terrible hot flashes and night sweats, then I got a terrible sinus infection (which I still have after a round of antibotics), now the doctor thinks I have irratible bowel syndrome. I think it's celiac disease and have asked my doctor to be tested for it.I'm so tried of being exhausted, having a headache, having hot flashes, having night sweats and feeling bloated I just want some relief!I wanted to be a part of a group where people don't look at me like I'm dreaming up these illnesses. I wanted to have a place to truly vent. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Heh, definitely shows how everyone's experiences are so different. My doc has a number of patients who've had really great experience on Synvisc and have been using it for several years to put off surgery. I will certainly investigate Euflexxa as another option, too. Thanks for the scoop. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 My OS told me four years ago he didn't have good luck with Synvisc, and wasn't recommending it for his patients. If and when I go back, I need to ask him about Euflexxa. Mike MT Re: Re: New to the group I absolutely agree. People have totally different reactions to different meds., supplements, etc. Your doc may not have tried the Euflexxa. From what I hear, most of the docs at HSS switched to Euflexxa because of the better results it achieved from Synvisc. I also read something about Synvisc's negative side effects being much higher (50%) than other products. So, as you say, " Give it a shot! " Good luck! Anne **************Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com! (http://www.tourtracker.com?NCID=aolmus00050000000112) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 I have an appointment Monday with my primary physician to try to get a referral. I hope they have it here and will let me try it. LIke I said the oral HA is the only supplement that has given me any relief. > > Mike, > > My Physiatrist also stopped using Synvisc. He said that Euflexxa has > literally " changed his practice " in his ability to help people. Euflexxa also does > not contain any chicken product, which was a major problem with chicken/dairy > allergic people and Synvisc. > > Anne > > > > **************Get the scoop on last night's hottest shows and the live music > scene in your area - Check out TourTracker.com! > (http://www.tourtracker.com?NCID=aolmus00050000000112) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 hi linda - how much oral HA do you take and what brand? thx, heather fresno lindox5 <lstowe1@...> wrote: I have an appointment Monday with my primary physician to try to get a referral. I hope they have it here and will let me try it. LIke I said the oral HA is the only supplement that has given me any relief. > > Mike, > > My Physiatrist also stopped using Synvisc. He said that Euflexxa has > literally " changed his practice " in his ability to help people. Euflexxa also does > not contain any chicken product, which was a major problem with chicken/dairy > allergic people and Synvisc. > > Anne > > > > **************Get the scoop on last night's hottest shows and the live music > scene in your area - Check out TourTracker.com! > (http://www.tourtracker.com?NCID=aolmus00050000000112) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 I just used what I got at Wal-Mart but you need to take several a day which I could never remember, so I got Dr. Best and am trying them. Only need to take 2 of them a day. I'm not sure they are doing as well though. > > > > Mike, > > > > My Physiatrist also stopped using Synvisc. He said that Euflexxa > has > > literally " changed his practice " in his ability to help people. > Euflexxa also does > > not contain any chicken product, which was a major problem with > chicken/dairy > > allergic people and Synvisc. > > > > Anne > > > > > > > > **************Get the scoop on last night's hottest shows and the > live music > > scene in your area - Check out TourTracker.com! > > (http://www.tourtracker.com?NCID=aolmus00050000000112) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 What is HA? Joi Gizmo, Yoda, Max, Jazzy, Artemis, Maui <http://www.toolady.com/www/breeders/joyfulfeathers/index.html> Joyful Feathers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 hyaluronic acid . . . i believe it's supposed to help cushion and lubricate joints, among other things. heather fresno, ca wildwest <wildwest@...> wrote: What is HA? Joi Gizmo, Yoda, Max, Jazzy, Artemis, Maui <http://www.toolady.com/www/breeders/joyfulfeathers/index.html> Joyful Feathers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Thanks . I'm going to give it a try as my doctors won't do anything more for me. Joi Gizmo, Yoda, Max, Jazzy, Artemis, Maui <http://www.toolady.com/www/breeders/joyfulfeathers/index.html> Joyful Feathers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Welcome Tara!! My Noah (now 6) also had a screaming reaction aroun 4 months after his shots. I called the nurses office and they told me to just give him Tylenol as he probably had a sore leg. It was definitely a hysterical cry and I was worried but didn't know to question. Thankfully he seems fine today. Sadly I didn't stop vaxing until my third was born. She and my fourth are healthy nonvaxed children and will remain that way. Alice > > My name is Tara Nicholson and I'm new to this egroup. I have a son who's 16 months old and who has received three vaccines prior to my cancelling all of them. Two Hib, one at 4 and 6 months and one DTaP at 4 months to which he had a classic site reaction, my otherwise mellow child turned into a screaming miserable little being for several hours until the reaction went away. Obviously by my delay to 4 months, I was already aware of vaccine concerns but was still in the process of deciding if I was a selective vaccinating mom or none at all. I chose to be none-at-all until 2 years and by then will probably still be none-at-all though keeping my ears pealed for generating an opinion about tetanus in the event of an accident (really just hoping there's a better TIG by the time I have to make the decision). > > I was raised rather holistically and I myself am selectively vaccinated (smart mom). > > I'm joining the group because I feel compelled to keep up with current information about the vaccine world, the " safety " of the civil rights surrounding the right to chose against vaccinating (I'm in TN and don't seem to encounter exemption challenges), as well as opportunities to be an advocate (outside of sending my feedback everytime the local news reports on vaccinations). > > (Secretly wishing I could quit my day job to be an active advocate.) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Welcome, Tara! Smart of you to take an interest in the vaccine issue. There is a lot of info out there so read, read, read! Winnie New to the Group Vaccinations > My name is Tara Nicholson and I'm new to this egroup. I have a > son who's 16 months old and who has received three vaccines > prior to my cancelling all of them. Two Hib, one at 4 and 6 > months and one DTaP at 4 months to which he had a classic site > reaction, my otherwise mellow child turned into a screaming > miserable little being for several hours until the reaction went > away. Obviously by my delay to 4 months, I was already aware of > vaccine concerns but was still in the process of deciding if I > was a selective vaccinating mom or none at all. I chose to be > none-at-all until 2 years and by then will probably still be > none-at-all though keeping my ears pealed for generating an > opinion about tetanus in the event of an accident (really just > hoping there's a better TIG by the time I have to make the > decision). > > I was raised rather holistically and I myself am selectively > vaccinated (smart mom). > > I'm joining the group because I feel compelled to keep up with > current information about the vaccine world, the " safety " of the > civil rights surrounding the right to chose against vaccinating > (I'm in TN and don't seem to encounter exemption challenges), as > well as opportunities to be an advocate (outside of sending my > feedback everytime the local news reports on vaccinations). > > (Secretly wishing I could quit my day job to be an active advocate.) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 At 07:52 PM 7/29/2008, you wrote: >Welcome Tara!! > >My Noah (now 6) also had a screaming reaction aroun 4 months after >his shots. I called the nurses office and they told me to just give >him Tylenol as he probably had a sore leg. It was definitely a >hysterical cry and I was worried but didn't know to question. You and so many others. It isn't because of a sore leg - it is from brain inflammation, I'm so sorry to say Sheri -------------------------------------------------------- Sheri Nakken, former R.N., MA, Hahnemannian Homeopath Vaccination Information & Choice Network, Nevada City CA & Wales UK Vaccines - http://www.wellwithin1.com/vaccine.htm Vaccine Dangers & Homeopathy Online/email courses Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 whoops i just spotted a spelling mistake it should say crohn's disease not drohn's disease, sorry i forgot to check spelling before posting mandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 whoops i just spotted a spelling mistake it should say crohn's disease not drohn's disease, sorry i forgot to check spelling before posting mandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 whoops i just spotted a spelling mistake it should say crohn's disease not drohn's disease, sorry i forgot to check spelling before posting mandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 you came to a great group to find support. there are tons of kind people here and we look forward to hearing more from you. evelyncure cystic fibrosis From: -kathryn <amandanewell06@...>Subject: New to the group Date: Sunday, October 5, 2008, 10:18 AM Hi allI just thought i better say hi and introduce myself,My name is Mandy and i live in England, I suffer from quite a few illnesses. i suffer from fibromyalgia, chronic fatigue, near synkensis syndrome (double vision that will never be cured, Drohn's disease, arthritis and something else which i can't remember.i share my flat with most handsome 3 legged no tail black and white cat called Felix. i'm suppose to be doing a degree to keep brain active but been so sick this year i'm having a break. i'm learning to play the piano/keyboard which is more fun than studying.my family live over 200 miles from me and friends don't seem to care or understand, so computer is sometimes the only contact i have with the outside world when i'm really sick specially with the crohn's disease. and i look forward to making new friends.loveMandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 you came to a great group to find support. there are tons of kind people here and we look forward to hearing more from you. evelyncure cystic fibrosis From: -kathryn <amandanewell06@...>Subject: New to the group Date: Sunday, October 5, 2008, 10:18 AM Hi allI just thought i better say hi and introduce myself,My name is Mandy and i live in England, I suffer from quite a few illnesses. i suffer from fibromyalgia, chronic fatigue, near synkensis syndrome (double vision that will never be cured, Drohn's disease, arthritis and something else which i can't remember.i share my flat with most handsome 3 legged no tail black and white cat called Felix. i'm suppose to be doing a degree to keep brain active but been so sick this year i'm having a break. i'm learning to play the piano/keyboard which is more fun than studying.my family live over 200 miles from me and friends don't seem to care or understand, so computer is sometimes the only contact i have with the outside world when i'm really sick specially with the crohn's disease. and i look forward to making new friends.loveMandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2008 Report Share Posted October 5, 2008 you came to a great group to find support. there are tons of kind people here and we look forward to hearing more from you. evelyncure cystic fibrosis From: -kathryn <amandanewell06@...>Subject: New to the group Date: Sunday, October 5, 2008, 10:18 AM Hi allI just thought i better say hi and introduce myself,My name is Mandy and i live in England, I suffer from quite a few illnesses. i suffer from fibromyalgia, chronic fatigue, near synkensis syndrome (double vision that will never be cured, Drohn's disease, arthritis and something else which i can't remember.i share my flat with most handsome 3 legged no tail black and white cat called Felix. i'm suppose to be doing a degree to keep brain active but been so sick this year i'm having a break. i'm learning to play the piano/keyboard which is more fun than studying.my family live over 200 miles from me and friends don't seem to care or understand, so computer is sometimes the only contact i have with the outside world when i'm really sick specially with the crohn's disease. and i look forward to making new friends.loveMandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2008 Report Share Posted October 6, 2008 thank-you for the welcome evelyn Quote Link to comment Share on other sites More sharing options...
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