New to the group

[Guest guest]

, I have a house full of halogen lights - what effect do they have?

From: JULIE GRIFFITHS <moppett1@...>Autism Treatment Sent: Wednesday, 7 October, 2009 10:39:03Subject: Re: New to the Group

Or is there something in the house which is bothering her system, paint (VOCs), outgassing of furniture, halogen lights etc.Just trying to cover all bases:-))Sally Eva schrieb:> >> Hi ,>> I've been thinking about your comment that her autistic behaviours have> seemed to get worse with home ed. I wonder if they really have done or> if her general behaviour/learning has improved so much that your> expectations have risen and so you see the autism more? Or I wonder if> you are putting pressure on her (no bad thing, I'm not against it)> instead of managing her behaviour by giving in to it (maybe like the> school) and so more autism-like behaviour appears.>> She won't be getting more autistic (in my opinion because autism> moderates with age) but she may be expressing it more (I tell myself> stuff like that from time

to time) which may or may not be a bad thing> because now you see it you can try and manage it.>> Is she sleeping OK? Can she tell you things like that because poor sleep> contributes to lethargy (well duh as my NT daughter would say at this> point)/. I'm full of obvious remarks like that>> Sally>> Kidson wrote:> >> >> > Hi Sally,> >> > Thankyou for replying.> >> > The home education is going great. My dd came out off school at> > Christmas and we haven't looked back since. What has become more> > obvious since then though is her autistic behaviours which seem to get> > worse rather than better and I was expecting improvements. Also her> > overall health has improved, but we are still left with this real> > tiredness and lethargy which contribute to her behaviour and

ability> > to do things.> >> > > >> > * Re: New to the Group> >> >> >> > Hi, I home-educate and I think a few people do on this list. How> > do you> > find it's going?> >> > Tracey is very pleased with the Scotson Therapy and there are> > loads of> > other ideas to try -- some quite pricey so it's worth reading lots> > before you leap. Looking on the files is a good idea and also a site> > called Treating Autism has lots of background to get you thinking.> >> > In my personal opinion, the most important things is to think for> > yourself -- only you know your child and our children are very> > different. I'm sure you can do that and you will find everyone> > here very> > helpful and willing to give you their ideas and success

stories.> >> > BWs> >> > Sally> >> > Tracey Clewer wrote:> > >> > >> > > Dear > > >> > > Welcome to the group. This is a really good home for you as it> > is the> > > place of real success stories and real Mums and Dads dealing with> > > health issues where the NHS often has little support to give.> > >> > > My DD has been really tired and bloated all her life, She has been> > > underoxygenated from being a little foetus and it has only been> > since> > > we have been using Scotson Therapy that we have noticed huge changes> > > in her energy, sleep quality and her ability to fit in well with her> > > peer group. Scotson works from Advance Centres and has a> > lot of> > >

experience with Autistic Children. There is a separate file on this> > > group which gives an essence of how this very gentle therapy> > > works> > >> > > Best Wishes> > >> > > Tracey> > >> > > On 10/5/09, M <m.kidson60@btintern et.com > <mailto:m.kidson60% 40btinternet. com>> > <mailto:m.kidson60% 40btinternet. com>> > > <mailto:m.kidson60% 40btinternet. com>> wrote:> > > > Hi, I am , Mum to 2 ASD children. My DS who is 12.5 yrs> > also has IgA> > > > Nephropathy. My DD who is 11 I home educate aas she couldn't> > cope with> > > > school. My DS generally refuses all supplements, but My DD takes>

> > enzymes. I> > > > know that she is just not well, something is making her feel> > ill and so> > > > tired, but the NHS can't seem to find anything. I'm not quite> > sure> > > where to> > > > start, but I know that I need to find out more.> > > >> > > > > > > >> > > >> > >> > >> > > ------------ --------- --------- --------- --------- --------- -> > >> > >> > > No virus found in this incoming message.> > > Checked by AVG - www.avg.com> > > Version: 8.5.420 / Virus Database: 270.14.4/2416 - Release Date:> > 10/05/09 18:23:00> > >> > >> >> >> > ------------ --------- --------- --------- --------- --------- -> >>

>> > No virus found in this incoming message.> > Checked by AVG - www.avg.com> > Version: 8.5.420 / Virus Database: 270.14.4/2416 - Release Date: > 10/05/09 18:23:00> >> >>> > ------------ --------- --------- --------- --------- --------- ->>> No virus found in this incoming message.> Checked by AVG - www.avg.com > Version: 8.5.420 / Virus Database: 270.14.5/2419 - Release Date: 10/07/09 05:18:00>>

[Guest guest]

Thanks - I haven't tried that. Most of the time it is very difficult to get her to move at all, she can be in so much discomfort from pains in muscles and between joints.

From: "cmdsdias@..." <cmdsdias@...>Autism Treatment Sent: Wednesday, 7 October, 2009 10:50:59Subject: Re: New to the Group

,

welcome Although I am a new to the form as well but have you tried to introduce sensory integration exercises into the routine especially before activities that are stressful, this helps my son in witting activities as he also has dyspraxia by consequence hiperactivity escalates and his stims increase but with this exercises specially proprioceptive it really helps him to organise.

[Guest guest]

hi mary

my son has been constipated on and off for yrs if you email me I will tell you

how to help your child with a hopmeopathic remedy, its not something you want to

post publicly, so if you are interested please email me on isobelwiza@...

other useful things are oxy powder from mandimart.co.uk

arsenicum album

allium

all at 30c homeopathic from helios

heel isopathic pro biotic suppositories avail. from iherb.com

and lots of pure bottled water in glass bottles also green coconut water...

> >

> > Hi, I am , Mum to 2 ASD children. My DS who is 12.5 yrs also has IgA

Nephropathy. My DD who is 11 I home educate aas she couldn't cope with school.

My DS generally refuses all supplements, but My DD takes enzymes. I know that

she is just not well, something is making her feel ill and so tired, but the NHS

can't seem to find anything. I'm not quite sure where to start, but I know that

I need to find out more.

> >

> >

> >

>

[Guest guest]

Hey Welcome. We have some in common. I am 42, 2 DD, overweight, HBP, and have PCOS. I am blessed that even though I have pcos I never had fertility issues. Dr. thinks it is due to being on the pill and getting preggers right off of BC.

I am not going to preach because I have no room to speak because I am still at 250. BUT just eating 2 meals a day cant be good for your sugar. Unless you eat something late to tide you over until PM the next day. Have you tried fruit in AM OR oatmeal?

For me portions are huge. So watching them is good. Do you test your sugar? Gotta go throw DD #1 on bus.

N.H.

[Guest guest]

Welcome !

I am Diane from PA. (Nic) is 12 w/ DS and I have a 26 (soon to be

27) year old son, Jake.

I am looking forward to getting to know you and your family better. This is

a wonderful group, I'm sure you will enjoy reading everyday.

Di

New to the group

> Hi,

> I am new to the group. Sorry, I didn't take the time to introduce myself

> sooner all my kids have been sick for the past two weeks so I have been

> very busy. My name is and we live in WA. My husband, and I

> have four children. Our latest addition is who just turned 1 and has

> DS. Our other children are 8, 5, and 2.

> had a lot of medical problems when she was born, had to have three

> surgeries and was in and out of the hospital for the first five months of

> her life. She had throat, stomach and open heart surgery. It was a very

> hard first six months and very stressful but life is calming down now.

> She still is on a G-tube and needs oxygen when she is sleeping. She is

> getting in home speech and occupational therapies.

> I joined because I thought it would be good to connect with other

> families who have a child or children with DS. recently began being

> able to sit up on her own, plays with lots of toys, babbles a lot, signs

> and says a few words, adores her siblings (and they adore her, they make

> her laugh a lot, which brings me such joy) and just a few months ago she

> began being able to take food by mouth again!

> I need to go off to bed. Thanks for being there.

> Sincerely,

>

>

>

>

> ------------------------------------

>

> Click reply to all for messages to go to the list. Just hit reply for

> messages to go to the sender of the message.

[Guest guest]

Hi !

 

Thanks for joining. You will be so glad you did.

Your life sounds like mine when Olivia was in her first year. She had three

major surgeries too! We were in the hospital all the time. Then, things got

better. Olivia didn't sit up until 16 months though. But she is 8 now, and loves

being the center of attention, and she is doing great in 1st grade.

I live in Ohio, and also have a 10, almost 13, 25, and 2 stepsons, 29 and 32.

Looking forward to hearing more from you, whenever you get a chance.

Take care,

Patty

From: <nicole.tucker@...>

Subject: New to the group

Date: Monday, October 26, 2009, 1:42 AM

 

Hi,

I am new to the group. Sorry, I didn't take the time to introduce myself sooner

all my kids have been sick for the past two weeks so I have been very busy. My

name is and we live in WA. My husband, and I have four children.

Our latest addition is who just turned 1 and has DS. Our other children are

8, 5, and 2.

had a lot of medical problems when she was born, had to have three

surgeries and was in and out of the hospital for the first five months of her

life. She had throat, stomach and open heart surgery. It was a very hard first

six months and very stressful but life is calming down now. She still is on a

G-tube and needs oxygen when she is sleeping. She is getting in home speech and

occupational therapies.

I joined because I thought it would be good to connect with other families who

have a child or children with DS. recently began being able to sit up on

her own, plays with lots of toys, babbles a lot, signs and says a few words,

adores her siblings (and they adore her, they make her laugh a lot, which brings

me such joy) and just a few months ago she began being able to take food by

mouth again!

I need to go off to bed. Thanks for being there.

Sincerely,

[Guest guest]

Welome .? You will meet a lot of great, wise parents here.? All with

different stories to share.? It sounds as if your is doing pretty darn good

despite her first five months of surgeries.? I look forward to hearing more

about your family

?

Loree

New to the group

?

Hi,

I am new to the group. Sorry, I didn't take the time to introduce myself sooner

all my kids have been sick for the past two weeks so I have been very busy. My

name is and we live in WA. My husband, and I have four children.

Our latest addition is who just turned 1 and has DS. Our other children are

8, 5, and 2.

had a lot of medical problems when she was born, had to have three

surgeries and was in and out of the hospital for the first five months of her

life. She had throat, stomach and open heart surgery. It was a very hard first

six months and very stressful but life is calming down now. She still is on a

G-tube and needs oxygen when she is sleeping. She is getting in home speech and

occupational therapies.

I joined because I thought it would be good to connect with other families who

have a child or children with DS. recently began being able to sit up on

her own, plays with lots of toys, babbles a lot, signs and says a few words,

adores her siblings (and they adore her, they make her laugh a lot, which brings

me such joy) and just a few months ago she began being able to take food by

mouth again!

I need to go off to bed. Thanks for being there.

Sincerely,

[Guest guest]

Dave, welcome aboard. You probably don't really need any thing to help your

mung beans grow. I use nothing but filtered water. However, if you want

something, use liquid kelp. About a tablespoon to a gallon of water. Don't use

tap water if your country puts chlorine or other chemicals in the water. Don't

forget to check with local authorities about permits.

ew

New to the group

Hi all,

My name is and I'm from the Island of Curacao (Next to Aruba)

I just started a small sprouting company.

It was a Chinese friend of mine that did introduce me to the sprouting world.The

only down side in my opinion is that they do use a kind of a chemical or maybe

hormone to get a nice thick sprout.

I did buy some bottles of the stuff for my sprouting experience (don't know what

it is cause it is in chinese)

I always did everything I do as Organic as possible and I'm wondering if there

is a way to do the mung beans sprouting organic commercially.

Thank you all,

Warm regards,

Dave.

[Guest guest]

Hi everyone!

I say a " one-minute infomercial " on the Food Network channel. I saw where you

can put the rooting bulbs of green onions in water for the greens to grow back

again. I love it. I tried it, and indeed they do re-sprout. I put the little jar

in the window, so they " green up " , like I do my sprouts. Cool way to have onions

on hand.

[Guest guest]

Well, that is very interesting to know. Thank you for sharing.

Jackie Thipthorpe

JT Transcripts

www.jttranscripts.com

jttranscripts@...

[Guest guest]

Hi and welcome to CAST! I know you don't really want to belong to a group for the reasons you're joining, but just know that this is a wonderful one to be a part of. There are so many families full of support and information. First off, do you know if your daughter's IS is idiopathic (no known cause) or congenital (born with it)? Has she had an MRI of her brain and spine done yet? If not, this is something you'll want to get set up right away to rule out any other issues that could be causing it or that could be going on. Second, have you seen a pediatric orthopaedic dr yet or was it diagnosed by the pediatrician? Where do you live? I ask bc/you should see an orthopaedic dr trained in the Mehta method. Most of the kiddos here have what is called an EDF Mehta Plaster Cast. It's the only known

treatment to help cure our little ones with IS. Once you find a dr trained in this method you can be assured you'll get the proper treatment. My daughter was diagnosed a little over a year ago at 8 months old. She had her first cast applied when she was 9 1/2 months old. She had a series of 2 casts and 1 brace. We go back to Salt Lake City, Utah Shriners next month to see how her little spine is holding up. You are right when you said all kids are different and for my baby, her spine was extremely flexible and we caught it so early that her treatment didn't take as long as some of the others here. You're in the right spot and you've caught it so early that she can be on the path to having her precious little spine grow straight. For resources, have you visisted the files section of the website yet? If not, there are a few articles in there worth reading. Please don't hesistate to ask

ANYTHING. This is an emotional and scary time since you're just beginning, but we are here to help.

(mother to - 22 months old - 2 casts - 1 brace - treated at SLC)

From: shirley_flannery <shirley_flannery@...>Subject: New to the groupinfantile scoliosis treatment Date: Wednesday, April 14, 2010, 1:17 PM

Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!Shirley

[Guest guest]

Thanks for the advice, I will be checking into the file section! We have not

found out if it is idiopathic or congenital at this point. She has an

appointment next Friday with a pediatric ortho spine specialist in Indianapolis,

but I have also submitted an application to the Shriner's. We live in southern

Indiana and I can drive to Chicago or St. Louis to the Shriner's hospital. I

was the one that actually noticed the curve, I work for First Steps so I try and

be mindful but not overly cautious with her (she is my first and only little

one). She has had an MRI of the neck and brain because she also has an internal

hemagioma at the base of her skull. It was at that follow up visit that I asked

the doctor to check her just in case. Thanks for sharing about little, a lot of

what I have found talked about her being in a cast for at least a year so that

makes me feel better. Thanks again and good luck with !

>

>

> From: shirley_flannery <shirley_flannery@...>

> Subject: New to the group

> infantile scoliosis treatment

> Date: Wednesday, April 14, 2010, 1:17 PM

>

>

>  

>

>

>

> Hi Everyone! My name is Shirley and I joined the group on behalf of my

daughter Adelyn. She is the most beautiful seven month old with a personality

that is just as fabulous. We recently found out that her spine has a 33 degree

curve to the left so we are just starting our journey. I know that every child

and every circumstance is different but I would like to have an idea of what is

ahead for her. I would also greatly appreciate any resources that you have found

helpful or supportive. Thanks so much!

>

> Shirley

>

[Guest guest]

Hi Shirely,

Welcome! Glad to hear you live close to Chicago Shriners. In the files section there is an article entitled "Derotational Casting..." and one of the authors is located at Chicago Shriners. There are parents on here that go to Chicago for casting and I'm sure they'll chime in soon with advice.

Ask any and all questions that you have.~Noah 4 1/2 years old9 months of casting in SLC; Currently on 2 years of bracing at 6* in braceAnd Mariella 15 months old - resolved Infantile Scoliosis

infantile scoliosis treatment From: shirley_flannery@...Date: Wed, 14 Apr 2010 18:41:21 +0000Subject: Re: New to the group

Thanks for the advice, I will be checking into the file section! We have not found out if it is idiopathic or congenital at this point. She has an appointment next Friday with a pediatric ortho spine specialist in Indianapolis, but I have also submitted an application to the Shriner's. We live in southern Indiana and I can drive to Chicago or St. Louis to the Shriner's hospital. I was the one that actually noticed the curve, I work for First Steps so I try and be mindful but not overly cautious with her (she is my first and only little one). She has had an MRI of the neck and brain because she also has an internal hemagioma at the base of her skull. It was at that follow up visit that I asked the doctor to check her just in case. Thanks for sharing about little, a lot of what I have found talked about her being in a cast for at least a year so that makes me feel better. Thanks again and good luck with !> > > From: shirley_flannery <shirley_flannery@...>> Subject: New to the group> infantile scoliosis treatment > Date: Wednesday, April 14, 2010, 1:17 PM> > > Â > > > > Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!> > Shirley>

The New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started.

[Guest guest]

Shirley,

Welcome to the group! How did you know she had an internal hemangioma? I ask

only because Londynn has an external hemangioma, and although the pediatrician

says they are common and resolve on their own - I often wonder if there is any

correlation between one thing and another - such as hemangioma's and scoliosis?

I have talked to another mother on this site about this, as a picture she posted

showed her daughter having an external hemangioma also. Her doctor also said

" No Correlation " - just food for thought.

Cyndy

GMa of Londynn (1st cast Shriners SLC - 15 months)

> >

> >

> > From: shirley_flannery <shirley_flannery@>

> > Subject: New to the group

> > infantile scoliosis treatment

> > Date: Wednesday, April 14, 2010, 1:17 PM

> >

> >

> >  

> >

> >

> >

> > Hi Everyone! My name is Shirley and I joined the group on behalf of my

daughter Adelyn. She is the most beautiful seven month old with a personality

that is just as fabulous. We recently found out that her spine has a 33 degree

curve to the left so we are just starting our journey. I know that every child

and every circumstance is different but I would like to have an idea of what is

ahead for her. I would also greatly appreciate any resources that you have found

helpful or supportive. Thanks so much!

> >

> > Shirley

> >

>

[Guest guest]

Welcome to CAST Shirley. Eveyone here is full of knowledge and kindness and support. You are NOT alone on this journey and you can ask any and all questions. Which hospital is treating your daughter?? Joanmom to Hayden 339 degrees down from 62Cast number 4Treated at ish Rite Hospital Dallas, TX

From: shirley_flannery <shirley_flannery@...>infantile scoliosis treatment Sent: Wed, April 14, 2010 12:17:55 PMSubject: New to the group

Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!Shirley

[Guest guest]

Hi Shirley, welcome!Have you had a chance to look at the www.infantilescoliosis.org website? That is a great place to start. The most fabulous news is that time is on your side, as your daughter is so young. The earlier proper treatment begins, the best chance for a complete cure with Mehta Method EDF casting. Progressive cases can progress fast, so, you are doing the right thing to be on top of this now, in case your child is progressive. The stories section of the website is very helpful. My son's story is on the top left side of the home page in blue, just click on the link that says Crooked Love- it also has some photos. Most casting doctors will need an MRI done before beginning treatment, and

in some cities like ours, that can take 2 months to get in for an appointment. The best first thing would be to get your daughter's X-ray to an Mehta trained doctor near you for their opinion. You may first want to do a follow up X-ray first to determine if and how fast the curve is progressing, but I wouldn't wait too long to do so...if your ortho wants to wait 3 months, for example, I would personally not want to wait for more than a month. Ask any and all questions you have of this wonderful group!Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: shirley_flannery <shirley_flannery@...>infantile scoliosis treatment Sent: Wed, April 14, 2010 10:17:55 AMSubject: New to the group

Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!

Shirley

[Guest guest]

It is a verry small world. Shirley is case worker at First Steps of Indiana. It was a Physical Therapist from First Stpes who evaluted 's torticollis that noticed his curve and started us on the path to Chicago and casting. He is in first step for his Torticollis as his scoliosis alone did not qualify him for physical therapy under the current program. I am so sad Adelyn is having to go through this at such an early age, but overjoyed she can follow foot steps to casting and Chicago Shriners. I have spent the past 2 weeks writing pediatricians and the media trying to get 's story out there. The statistics show our Tri-State area should have at least 6 cases of the Progressive form of Infantile Scoliosis. Currently and now Adelyn are the only ones I know of who have been diagnosed under the age of 3 and are in or about to start treatment. Crazy

turn of events!

Catie,Cody(8) & 's(16mo)mom (in 2nd cast 67 degrees-47 out of cast correction) Chicago Shriners

From: shirley_flannery <shirley_flannery@...>infantile scoliosis treatment Sent: Wed, April 14, 2010 12:17:55 PMSubject: New to the group

Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!Shirley

[Guest guest]

Great job spreading the word, Catie!!! Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: Chad And Catie Diefenbaugh <chadandcatie@...>infantile scoliosis treatment Sent: Wed, April 14, 2010 4:05:15 PMSubject: Re: New to the group

It is a verry small world. Shirley is case worker at First Steps of Indiana. It was a Physical Therapist from First Stpes who evaluted 's torticollis that noticed his curve and started us on the path to Chicago and casting. He is in first step for his Torticollis as his scoliosis alone did not qualify him for physical therapy under the current program. I am so sad Adelyn is having to go through this at such an early age, but overjoyed she can follow foot steps to casting and Chicago Shriners. I have spent the past 2 weeks writing pediatricians and the media trying to get 's story out there. The statistics show our Tri-State area should have at least 6 cases of the Progressive form of Infantile Scoliosis. Currently and now Adelyn are the only ones I know of who have been diagnosed under the age of 3 and are in or about to start treatment. Crazy

turn of events!

Catie,Cody(8) & 's(16mo) mom (in 2nd cast 67 degrees-47 out of cast correction) Chicago Shriners

From: shirley_flannery <shirley_flannery>infantile scoliosis treatment @groups. comSent: Wed, April 14, 2010 12:17:55 PMSubject: [infantile_scoliosi s] New to the group

Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!Shirley

[Guest guest]

Welcome to the group. I have recently joined myself and already have got a lot of useful information. My daughter is set to get her first cast April 23rd. My only advice is not to wait to long to have something done. We were with a doctor originally that did the wait and see and I finally got a second opinion to make sure I was doing the right thing and it was almost too late. Good luck and don't hesitate to ask questions.Alyssa mom to 16 months 28* curve, RVAD 8From: Sullivan <elizsullivan6@...>infantile scoliosis treatment Sent: Wed, April 14, 2010 12:49:21 PMSubject: Re: New to the group

Hi and welcome to CAST! I know you don't really want to belong to a group for the reasons you're joining, but just know that this is a wonderful one to be a part of. There are so many families full of support and information. First off, do you know if your daughter's IS is idiopathic (no known cause) or congenital (born with it)? Has she had an MRI of her brain and spine done yet? If not, this is something you'll want to get set up right away to rule out any other issues that could be causing it or that could be going on. Second, have you seen a pediatric orthopaedic dr yet or was it diagnosed by the pediatrician? Where do you live? I ask bc/you should see an orthopaedic dr trained in the Mehta method. Most of the kiddos here have what is called an EDF Mehta Plaster Cast. It's the

only known

treatment to help cure our little ones with IS. Once you find a dr trained in this method you can be assured you'll get the proper treatment. My daughter was diagnosed a little over a year ago at 8 months old. She had her first cast applied when she was 9 1/2 months old. She had a series of 2 casts and 1 brace. We go back to Salt Lake City, Utah Shriners next month to see how her little spine is holding up. You are right when you said all kids are different and for my baby, her spine was extremely flexible and we caught it so early that her treatment didn't take as long as some of the others here. You're in the right spot and you've caught it so early that she can be on the path to having her precious little spine grow straight. For resources, have you visisted the files section of the website yet? If not, there are a few articles in there worth reading. Please don't hesistate to ask

ANYTHING. This is an emotional and scary time since you're just beginning, but we are here to help.

(mother to - 22 months old - 2 casts - 1 brace - treated at SLC)

From: shirley_flannery <shirley_flannery>Subject: [infantile_scoliosi s] New to the groupinfantile scoliosis treatment @groups. comDate: Wednesday, April 14, 2010, 1:17 PM

Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!Shirley

[Guest guest]

Hi Shirley,

Welcome to our group. I'm glad that you found us and that you caught the scoliosis so early. Please feel free to contact me with any questions and we can also chat by phone if you like. You can e-mail me privately with your number....- Noelle's mommy, 3 years oldRochester NYCasted 8 times for 1 1/2 years and in first brace!reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: shirley_flannery <shirley_flannery@...>Subject: New to the groupinfantile scoliosis treatment Date: Wednesday, April 14, 2010, 5:17 PM

Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!Shirley

[Guest guest]

Ironically she found the group on her own. She met Chad last week for our quarterly eval, but until I noticed her post today I didn't realize who it was or that her sweet girl was going through this. She was on maternity leave when Will started this crazy ride. She is the superstar doing all this on her own. Sent from my iPhoneOn Apr 14, 2010, at 8:51 PM, NIck Guthe <nickguthe@...> wrote:

Great job spreading the word, Catie!!! Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: Chad And Catie Diefenbaugh <chadandcatie >infantile scoliosis treatment Sent: Wed, April 14, 2010 4:05:15 PMSubject: Re:

New to the group

It is a verry small world. Shirley is case worker at First Steps of Indiana. It was a Physical Therapist from First Stpes who evaluted 's torticollis that noticed his curve and started us on the path to Chicago and casting. He is in first step for his Torticollis as his scoliosis alone did not qualify him for physical therapy under the current program. I am so sad Adelyn is having to go through this at such an early age, but overjoyed she can follow foot steps to casting and Chicago Shriners. I have spent the past 2 weeks writing pediatricians and the media trying to get 's story out there. The statistics show our Tri-State area should have at least 6 cases of the Progressive form of Infantile Scoliosis. Currently and now Adelyn are the only ones I know of who have been diagnosed under the age of 3 and are in or about to start treatment. Crazy

turn of events!

Catie,Cody(8) & 's(16mo) mom (in 2nd cast 67 degrees-47 out of cast correction) Chicago Shriners

From: shirley_flannery <shirley_flannery>infantile scoliosis treatment @groups. comSent: Wed, April 14, 2010 12:17:55 PMSubject: [infantile_scoliosi s] New to the group

Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!Shirley

[Guest guest]

Ironically she found the group on her own. She met Chad last week for our quarterly eval, but until I noticed her post today I didn't realize who it was or that her sweet girl was going through this. She was on maternity leave when Will started this crazy ride. Shirley is the superstar doing all this on her own. Sent from my iPhoneOn Apr 14, 2010, at 8:51 PM, NIck Guthe <nickguthe@...> wrote:

Great job spreading the word, Catie!!! Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: Chad And Catie Diefenbaugh <chadandcatie >infantile scoliosis treatment Sent: Wed, April 14, 2010 4:05:15 PMSubject: Re:

New to the group

It is a verry small world. Shirley is case worker at First Steps of Indiana. It was a Physical Therapist from First Stpes who evaluted 's torticollis that noticed his curve and started us on the path to Chicago and casting. He is in first step for his Torticollis as his scoliosis alone did not qualify him for physical therapy under the current program. I am so sad Adelyn is having to go through this at such an early age, but overjoyed she can follow foot steps to casting and Chicago Shriners. I have spent the past 2 weeks writing pediatricians and the media trying to get 's story out there. The statistics show our Tri-State area should have at least 6 cases of the Progressive form of Infantile Scoliosis. Currently and now Adelyn are the only ones I know of who have been diagnosed under the age of 3 and are in or about to start treatment. Crazy

turn of events!

Catie,Cody(8) & 's(16mo) mom (in 2nd cast 67 degrees-47 out of cast correction) Chicago Shriners

From: shirley_flannery <shirley_flannery>infantile scoliosis treatment @groups. comSent: Wed, April 14, 2010 12:17:55 PMSubject: [infantile_scoliosi s] New to the group

Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!Shirley

[Guest guest]

Wow, what a truly small world! Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: Chad And Catie <chadandcatie@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Wed, April 14, 2010

7:03:33 PMSubject: Re: New to the group

Ironically she found the group on her own. She met Chad last week for our quarterly eval, but until I noticed her post today I didn't realize who it was or that her sweet girl was going through this. She was on maternity leave when Will started this crazy ride. She is the superstar doing all this on her own. Sent from my iPhoneOn Apr 14, 2010, at 8:51 PM, NIck Guthe <nickguthe (DOT) com> wrote:

Great job spreading the word, Catie!!! Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: Chad And Catie Diefenbaugh <chadandcatie >infantile scoliosis treatment @groups. comSent: Wed, April 14, 2010 4:05:15 PMSubject: Re:

[infantile_scoliosi s]

New to the group

It is a verry small world. Shirley is case worker at First Steps of Indiana. It was a Physical Therapist from First Stpes who evaluted 's torticollis that noticed his curve and started us on the path to Chicago and casting. He is in first step for his Torticollis as his scoliosis alone did not qualify him for physical therapy under the current program. I am so sad Adelyn is having to go through this at such an early age, but overjoyed she can follow foot steps to casting and Chicago Shriners. I have spent the past 2 weeks writing pediatricians and the media trying to get 's story out there. The statistics show our Tri-State area should have at least 6 cases of the Progressive form of Infantile Scoliosis. Currently and now Adelyn are the only ones I know of who have been diagnosed under the age of 3 and are in or about to start treatment. Crazy

turn of events!

Catie,Cody(8) & 's(16mo) mom (in 2nd cast 67 degrees-47 out of cast correction) Chicago Shriners

From: shirley_flannery <shirley_flannery>infantile scoliosis treatment @groups. comSent: Wed, April 14, 2010 12:17:55 PMSubject: [infantile_scoliosi s] New to the group

Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!Shirley

[Guest guest]

Hey Shirley!

My little one is 9 months old. He got his first cast last Thursday and is doing great in it. We are NEW to all of this also and this group is incredibly helpful! Its really the only thing that has gotten me through this...that and Logan's happy disposition =) His curve started at 33 (at 5 months old) then progressed to 45 one month later. We started doing tummy time ALL the time! We took everything sitting up away, walkers and jumperoos also left. We were told (by a chiropracter of all people) that the more Logan keeps crawling and more tummy time would help his spine until he could get treatment. When we got xrays again...he measured at 30! So we were REALLY pleased he didnt progress. The second xray was taken standing up and may have been a little skewed on the number. BUT when they casted Logan last week...they were able to get him down to 14 degrees! YEAH flexy babies =) I dont know what part in the process you are or where you

live, but if you a ton of questions let us know! Just dont fall in the hole of "waitng." We live in NC and got no support on alternative treatment. They didnt even tell us about casting. They told us to brace until surgery. NC doesnt offer casting, so we travel down to SC for logans casts. I was REALLY scared because Logan is still a baby about the casting stuff. But this group ensured that the growth potential HAS to be harnessed to get great results. They are right on! Its is completely comforting to know you are not the only one going through this and this group has not only been there and done that...they give GREAT adivice!

Logan's mama (Down to 14 degrees in 1st cast =)))

From: shirley_flannery <shirley_flannery@...>infantile scoliosis treatment Sent: Wed, April 14, 2010 1:17:55 PMSubject: New to the group

Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!Shirley

[Guest guest]

HEY SHIRLEY! WE HAVE AN 11 MO. OLD LITTLE BABY GIRL NAMED SIERRA. I NOTICED HER CURVE AROUND 9 MO. OR I NOTICED SOMETHING WAS JUST NOT RIGHT! I FORGOT TO POINT OUT TO MY PED. AT HER 9 MO. CHECK UP & MY PED. DID NOT NOTICE IT. ANYWAY, I TOOK HER IN ON MARCH 29TH AND POINTED IT OUT! SHE IMMEDIATELY ORDERED X-RAYS. MY PED CALLED BACK & SAID SIERRA HAD SCOLIOSIS!!!!! I HAVE NEVER HEARD OF IT IN AN INFANT AND NEITHER HAD SHE OR HER PARTNERS OF 25 YRS. SO I IMMEDIATELY GOT ON LINE STARTED RESEARCHING & FOUND HEATHER & THIS GROUP. I FOUND DR. K IN BIRMINGHAM, ALABAMA THAT DOES CASTING! THE ONLY ONE EVEN CLOSE TO US. WE LIVE IN LOWER SOUTH ALABAMA NEAR GULF SHORES! WE SAW DR. K & HE MEASURED SIERRA'S CURVE AT 33 DEGREES & RVAD AT 25 ON APRIL 5TH. WE ARE SCHEDULED FOR HER 1ST CAST ON APRIL 23RD. THEY WANTED TO CAST THE WEEK WE WERE 1ST THERE BUT WE WERE NOT PREPARED! WE ALSO HAVE ANOTHER DAUGHTER THAT WILL BE 3 IN JULY. THIS SITE HAS BEEN SOOOO HELPFUL AND I HAVE BEEN GATHERING AS MUCH INFO. AS I CAN. EVERYONE ON HERE IS WONDERFUL. WE TRYING TO GET PREPARED FOR FRIDAY APRIL 23RD.....WE JUST WANT TO GET THIS PROCESS GOING SO WE CAN CORRECT SIERRA'S CURVE! GIVE ME A CALL IF U LIKE. 251-228-0431 CELL. TAKE CARE & STAY STRONG! KRISTI MOMMY TO SIERRA ANNE JONES 33 DEGREE & RVAD OF 25

From: shirley_flannery

Sent: Wednesday, April 14, 2010 1:41 PM

infantile scoliosis treatment

Subject: Re: New to the group

Thanks for the advice, I will be checking into the file section! We have not found out if it is idiopathic or congenital at this point. She has an appointment next Friday with a pediatric ortho spine specialist in Indianapolis, but I have also submitted an application to the Shriner's. We live in southern Indiana and I can drive to Chicago or St. Louis to the Shriner's hospital. I was the one that actually noticed the curve, I work for First Steps so I try and be mindful but not overly cautious with her (she is my first and only little one). She has had an MRI of the neck and brain because she also has an internal hemagioma at the base of her skull. It was at that follow up visit that I asked the doctor to check her just in case. Thanks for sharing about little, a lot of what I have found talked about her being in a cast for at least a year so that makes me feel better. Thanks again and good luck with !> > > From: shirley_flannery <shirley_flannery@...>> Subject: New to the group> infantile scoliosis treatment > Date: Wednesday, April 14, 2010, 1:17 PM> > > Â > > > > Hi Everyone! My name is Shirley and I joined the group on behalf of my daughter Adelyn. She is the most beautiful seven month old with a personality that is just as fabulous. We recently found out that her spine has a 33 degree curve to the left so we are just starting our journey. I know that every child and every circumstance is different but I would like to have an idea of what is ahead for her. I would also greatly appreciate any resources that you have found helpful or supportive. Thanks so much!> > Shirley>