New here

[Guest guest]

Hi! Thanks to whomever started the list!!!

Rhonda, Just wondering where in Long Island are you in? What types of

services are you receiving for your child. Are any of the intervention

teachers or therapies you have been apporved for, work on behaviors..??

I am in Long Island as well.. I have been blessed with many hours of

services .. With the majority of it being ABA/AVB

PLease note that New York is one of the luckiest places you could be as far

as services are concerned. I am hoping you havent been mis guided ...I am

hoping that you are receieving the services your child does so much deserve.

What town are you in..or county?

I am in Nassau and we have 36 hrs of services plus speech and ot..

Many of the involved proactive parents here on the island have been getting

these types of hours of services..(in both EI and CPSE)

Just though I would let you know.. that perhaps you have not been well

informed.. It would be a tradgedy for you NOT to take advantage of the

generosity of New York's services..

The services they give in other states are a joke. Many have moved here just

for it's advocation AND knowledge in the disorder..

Just thought I would let you know.. Typically , in most of the cases and

families I know of.. we use the ABA or AVB stle of learning..Both deal with

behaviors (as well as language and academics..effectively)..Applied Behavior

Analysis is a SCIENCE

Where you have to look ayt everything your child does as a BEHAVIOR..And

that there must be a function to that behavior before they (your consultant

or whomever is in charge of his porgram book) come up with a good behavior

plan..

If you need any help or would like to talk abit.. you can email me

privatley..

Many Blessings

BTW.. My son is 3.5 has been receiving services for over a year now.. had

made tremendous gains.. the behavior (IF ANYONE COULD PLEASE HELP) is not

aggression, but Vocal peseverations..(though he is somewhat verbal .. He has

spontaneous speech of direct NEEDS (Mommy, come here..open it, I want juice,

pick me up..) ..but doesnt do much spontaneous commenting..Look at me! An

airplane!!!)..

his vocal stimms have been a challenge for us.. since he has really no

PHYSICAL behaviors.. the funny noises he makes does have him stand out.. (we

have a couple of plans that will all be treid.. BUT I would love to have any

other reccommendations ...

The function of the behavior is normally 1 of 4 things..

He vocalizes to either be 1)task avoidant 2) gain attention 3)self

stimulatory 4) he doesnt have the correct words to say..

Anyone ever had a behavior plan that decreased vocal peseverations.. ??

Any suggestions would be grand..Thanks!

[autism] Re: New Here

> Great Ideas ! Thanks so much for the imput.

>

> Im right here with you . I am seeing a side to my son that I

> have NEVER seen in him before moving here to NY. Tommy was diagnosed

> in California at the age of 3.. and has been in early intervention

> since 2.5. Up until a year ago, our biggest concern with tommy, was

> his lack of language/comprehension, and his sensory issues. We then

> moved from California, to NH, and thats when the behaviors started.

> It took us the duration of the summer, to set up what I thought was

> an APPROPRIATE IEP for tommy in NH. During that time, he was only

> going to school Part Time, and was receiving very LITTLE speech and

> OT. He began getting HIGHLY abusive to his younger sister, and also,

> to anyone near him in general. First it was pinching, then

> scratching.. eventually upgraded to biting. And its never

> consistant. We had a really good behavior therapist in NH that put

> together a GREAT behavior plan, for school and also in home.

> However, the techniques are NOT working here in NY. Tommy is having

> a HELL of a time adjusting to this new school. I cant blame him

> either because I REALLY DONT CARE for the people that are working

> with him as well. They act like this is the first time they have

> ever HEARD of autism, let alone, they act like morons on how to deal

> with him. I thought moving to NY, would be a great thing for TOmmy.

> Its actually become my worse nightmare. He's now graduated to

> physically abusing the other kids, which is something new for him.

> Also, throwing desks, chairs, knocking over tables. Completely out

> of control. Im at my whits end with what to do next.

>

> Outta my mind!

> Rhonda Logan

> Long Island, NY

>

[Guest guest]

Debra A Keegan wrote:

> School staff just doesn't get it sometimes!

Debbie:

Can you share what you mentioned you typed for those of us in that boat right

now?

My son's typical preK teacher is speaking of his autistic tendencies as simple

oddities, as if I'm the dumb one and everybody knows these are what typical 4

yr.

olds do. I'd love to handle this crap the way you did after you figured out how

to say it. Avoid some bloodshed....

mom of twins w/PDD/autism

[Guest guest]

: I would be happy to share! I have some errands to run this am, but when I

get

back I will get Pat's folder (I keep copies of everything) and will post!

Debbie in Pa

Pabst wrote:

> Debra A Keegan wrote:

>

> > School staff just doesn't get it sometimes!

>

> Debbie:

> Can you share what you mentioned you typed for those of us in that boat right

> now?

> My son's typical preK teacher is speaking of his autistic tendencies as simple

> oddities, as if I'm the dumb one and everybody knows these are what typical 4

yr.

> olds do. I'd love to handle this crap the way you did after you figured out

how

> to say it. Avoid some bloodshed....

>

> mom of twins w/PDD/autism

>

>

>

[Guest guest]

It is too bad that this strategy did not work better.

Somehow inducing teachers (and parents) to attend differentially to

appropriate behavior is a good general strategy. Sometimes we ask

teachers to take data on the appropriate acts, to count them for a while,

as an additional attention focusing strategy. Of course, if the

appropriate behavior the children have already is somehow off the mark as

appropriate behavior in the particular classroom in which they are

placed, then they have to have prompts and reinforcement devoted to

shaping setting-appropriate behavior for that particular classroom. This

takes much more skill and effort by teachers.

At 06:38 PM 10/12/2001 -0400, you wrote:

School staff just doesn't get it

sometimes! Before started school

this year I typed for the new teachers ALL his behaviors that I could

think

of...good and inappropriate!!! I told them he does..... this and

that....

when this happens first etc......also furnished them with what works

best

with him for positive results!!! I also gave them as much information

on

PDD-NOS. I assumed that they knew all about it because they were

teachers

dealing with children for some 20 years...I was wrong, I was told by

his

<snip>

A. Mulick, Ph.D.

Professor, Departments of Pediatrics & Psychology

The Ohio State

University

Children's Hospital

700 Children's Drive, CHPB-4

Columbus OH 43205

(w) 614-722-4700

(f) 614-722-4718

[Guest guest]

Hi Janelle,

As far as biting goes I would need more information. Some children bite themselves, bite others, bite down hard on objects, or a combination of all three. I want to stress again a functional analysis is best or if you want to do an ABC (antecedent-behavior-consequences) chart to kind of track how and when it is occurring, that would be good also. If you want to email me privately (andreafryer@...) I can go through this more with you and send you a sample ABC attachment so you can see the form I use if you think that may be helpful.

Re: [autism] New Here

-,Great ideas! Do you have any tips for biters?Janelle__________________________________________________

[Guest guest]

,

I saw that you spoke to another parent regarding bitting. My son has AS and he is 8. When he gets up set with himself or nothing goes right he starts to bight himself. I was wondering if you could help me as well?

Have a great day,

hakunana matata, what a wonderful phrase!

Re: [autism] New Here

-,Great ideas! Do you have any tips for biters?Janelle__________________________________________________

[Guest guest]

Hi Jolanda, and welcome. I am Marsha, both my girls have asthma and

allergies and reflux also for the youngest one. We live in Texas USA. What

all do you take for your asthma?? Nice to meet you. Marsha

[Guest guest]

Hi Jolanda !!! my name is Helen from Ohio-USA... Sorry you have asthma so bad and whiplash ( Welcome to the group !!!! We have several on here with asthma ( Some Very nice folks on here too!!! Seen your site, it is very nice... Loved the pics of your Doggies... Sorry you have lost them ( i'm Always full of questions ) Please tell us about yourself and how you cope with your everyday chores !!!!!

{{{ Welcoming Hugs }}}

Helen

hello,My name is jolanda i am 32 years and live in the netherlands.I have asthma since I can remember, last 2 years some worse. Further I have a whiplash given to my by 2 people sepperate of each other. Furst time 1999 someone just hit me while I was standig before a trafic light , second time last year mei someone just didn't thought that re had to go first. (was a big bang) Last time I had also a irritation of my re. big leg muscle (doen't know the exact word for it) that now becomes irritated chronic.Now as sort of last atempt to get it treated, I am seeing an osteophat. I went there 2 times now and my spine is more mobile, so I hope this just does more. When you want to know more just ask :-)greetings,jolandahttp://members1.chello.nl/~aj.bikkel

[Guest guest]

Hi Jolanda,

My name is Jessi i also have asthma. Welcome to the group ) lots of

loving and caring people here )

Jessi

[Guest guest]

Jolanda, reflux is another name for heartburn, or GERD, Aprl takes Serevent,

Pulmicort Turbihaler 2X2, Singulair, Prevacid, Nasonex spray, Zyrtec. Amber

takes Advair 250/50 1X2, Singualir, Rhincort, Zyrtec. They are allergic to

grassess, molds, pollens, every viral infection that comes along, dust. We

have a kitten, they are not allergic to the kitten as for as I know,

although, they both have been sick with an URI since we got him. Man, I hope

that is what it is from. And not the kitty. Marsha

[Guest guest]

Thank you for the welcome :-)

jolanda

>

> My name is Jessi i also have asthma. Welcome to the group )

lots of

> loving and caring people here )

>

> Jessi

[Guest guest]

hello marscha,

I take ventolin (salbutamol) 400Ucg, up to 6 times a day, flixonase

ande zyrtec. Last 2 things both for allergie. Have to take somethimes

some more because I have allergie against dust and... I have 3 dogs.

oops... But the dogs stay, we always had some over the past and it

always worked out, just have to dust and vacuum some more often :-)

What is reflux? I think it's called here an other name doesn't sound

familiar to me.

Nice to meet you too,

jolanda

>

> Hi Jolanda, and welcome. I am Marsha, both my girls have asthma and

> allergies and reflux also for the youngest one. We live in Texas

USA. What

> all do you take for your asthma?? Nice to meet you. Marsha

[Guest guest]

hello hellen,

I'm going to answer it in the mail :-)

> Hi Jolanda !!! my name is Helen from Ohio-USA... Sorry you have

asthma so

> bad and whiplash (

Thanks, just have to go-on from here, I take one day a time and hope

for bether days :-)

> Welcome to the group !!!! We have several on here

> with asthma ( Some Very nice folks on here too!!! Seen your

site, it is

> very nice... Loved the pics of your Doggies... Sorry you have lost

them (

Yep, was a 'heavy' year, lost in exactly 1 year 2 dogs, the oldest

and the youngest :-( Now already it's very crowded here, there now

are two very adolescent young dogs (halfbrothers) in the house. 1 one

very stuborn senior lol.

> i'm Always full of questions ) Please tell us about yourself and

how you

> cope with your everyday chores !!!!!

Take it were it comes, I can't fulfill in the household,but I stille

live with my parents and they now became caretakers again. I started

to drive in my car again after more than a year and have now some

many more freedom to be able to travel for about 7 km up and back to

go to friends or to the woods to walk with my dogs. (previous I had

to ask for everything for my dad to go with my)

I previous worked in a general familie practische for 3 doctors. That

I cant do anymore I have severe concentration and short term

memory 'default'.

Now I'm training in the fitnes toget my condition up to a acceptable

level(goes with ups and downs) and to get my walking straight (I

walked as a drunken men) so my balance and coordination is also gone.

But one thing you learn from such a situation, don't take anything

just for normal. Smal thing you before didn't even see are so

beautifull :-)

jolanda

> {{{ Welcoming Hugs }}}

> Helen

>

>

>

> hello,My name is jolanda i am 32 years and live in the

netherlands.I have

> asthma since I can remember, last 2 years some worse. Further I

have a

> whiplash given to my by 2 people sepperate of each other. Furst

time 1999

> someone just hit me while I was standig before a trafic light ,

second time

> last year mei someone just didn't thought that re had to go first.

(was a big

> bang) Last time I had also a irritation of my re. big leg muscle

(doen't know

> the exact word for it) that now becomes irritated chronic.Now as

sort of last

> atempt to get it treated, I am seeing an osteophat. I went there 2

times now

> and my spine is more mobile, so I hope this just does more. When

you want to

> know more just ask :-)greetings,jolanda<A

HREF= " http://members1.chello.nl/~aj.bikkel " >http://members1.chello.nl/

~aj.bikkel</A>

[Guest guest]

Jolanda, I sure hope it is not from the kitten, she was never allergic to

cats before. She will see her Dr. this afternoon,after school.

Yep, they both take quite a few meds, each one plays a different role. It is

easier now to put up with since we have a Pedi Pulmo who listens and knows

what the heck he is doing.

Talk to you soon. Marsha

[Guest guest]

hello marscha,

>Jolanda, reflux is another name for heartburn, or GERD, Aprl takes

Serevent,

Pulmicort Turbihaler 2X2, Singulair, Prevacid, Nasonex spray, Zyrtec. Amber

takes Advair 250/50 1X2, Singualir, Rhincort, Zyrtec. They are allergic to

grassess, molds, pollens, every viral infection that comes along, dust. We

have a kitten, they are not allergic to the kitten as for as I know,

although, they both have been sick with an URI since we got him. Man, I hope

that is what it is from. And not the kitty.

Thank you for the explanation, i understand now what it is.

Sorry to here they both are on such scale of medication.I think your lives

is higly effect by these conditions.

I hope with you that the fact that they are sick isn't from the kitten.

jolanda

joris, jasper & oscar

http://members1.chello.nl/~aj.bikkel

[Guest guest]

Reflux is also called--Acid reflux and or Gerd...

How are you doing???

{{{ Many Hugs }}}

Helen

hello marscha,I take ventolin (salbutamol) 400Ucg, up to 6 times a day, flixonase ande zyrtec. Last 2 things both for allergie. Have to take somethimes some more because I have allergie against dust and... I have 3 dogs. oops... But the dogs stay, we always had some over the past and it always worked out, just have to dust and vacuum some more often :-)What is reflux? I think it's called here an other name doesn't sound familiar to me.

[Guest guest]

hello hellen,I'm going to answer it in the mail :-)> Hi Jolanda !!! my name is Helen from Ohio-USA... Sorry you have asthma so > bad and whiplash (

Thanks, just have to go-on from here, I take one day a time and hope for bether days :-)>

************** Yes, taking one day at a time is how a lot of us cope with day to day life.....

Welcome to the group !!!! We have several on here > with asthma ( Some Very nice folks on here too!!! Seen your site, it is > very nice... Loved the pics of your Doggies... Sorry you have lost them (

Yep, was a 'heavy' year, lost in exactly 1 year 2 dogs, the oldest and the youngest :-( Now already it's very crowded here, there now are two very adolescent young dogs (halfbrothers) in the house. 1 one very stuborn senior lol.>

**************I know how your heart must feel ( We lost thre of our preasious dogs in a year and a half... Two to cancer and one to old age ( Very trying times (

i'm Always full of questions ) Please tell us about yourself and how you > cope with your everyday chores !!!!!

Take it were it comes, I can't fulfill in the household,but I stille live with my parents and they now became caretakers again. I started to drive in my car again after more than a year and have now some many more freedom to be able to travel for about 7 km up and back to go to friends or to the woods to walk with my dogs. (previous I had to ask for everything for my dad to go with my)I previous worked in a general familie practische for 3 doctors. That I cant do anymore I have severe concentration and short term memory 'default'. Now I'm training in the fitnes toget my condition up to a acceptable level(goes with ups and downs) and to get my walking straight (I walked as a drunken men) so my balance and coordination is also gone. But one thing you learn from such a situation, don't take anything just for normal. Smal thing you before didn't even see are so beautifull :-)jolanda

**************I'm Glad you are able to get around a little bit again !!! It is terrible when you have to depend on others all the time... Why do you have memory and concentration problems and walking and coordination ??? Because of the whiplash???

Yes, Life is Beautiful !!!!!!!!!!!!!!!!!!!!!!!!!

Take care

{{{{{{ Special Hugs }}}}}

Helen

[Guest guest]

hello marsha,

> I sure hope it is not from the kitten, she was never allergic to

cats before. She will see her Dr. this afternoon,after school.

Yep, they both take quite a few meds, each one plays a different role. It is

easier now to put up with since we have a Pedi Pulmo who listens and knows

what the heck he is doing.

I think it's almost after school now ? Hope realy they find what trigert the

reaction and that is wasn't the cat !

Great you found a doctor how listens to what you say. In every speciality

that is the dificultie I think finding a doctor who you feel is the best :-)

jolanda

[Guest guest]

hello helen,

**************I'm Glad you are able to get around a little bit again !!! It is terrible when you have to depend on others all the time... Why do you have memory and concentration problems and walking and coordination ??? Because of the whiplash???

The whiplash has made some damage to a few neurlogical functions. Some body things (pain etc.) and some physical functions don't work as they should.

jolanda

[Guest guest]

Hi Angie,

You make candles?

what kind of base do you use?

parrifin wax? beeswax?

I know very little about making candles... something I would like to learn

someday..

Lucinda

Glenbrook Farms Herbs and Such

Living Healthy! Living Well!

http://www.glenbrookfarm.com/herbs

New Here

> Hi All! I just joined this list and am looking forward to learning

> from you! I make candles and glycerin soaps but after the holidays I

> would like to start making bath and body products as well but I have

> no clue what to do or how to start! I would like to have a whole

> line with shampoo, bubble bath, bath salts and fizzies, hand and body

> lotion and bath powder, etc. I'll be lurking for a bit until I'm

> ready to start then I'll probably come out and ask you all some

> questions! I'm looking forward to meeting you all.

>

> Angie Cyr

> The Cyr House

> www.thecyrhouse.com

>

>

>

>

>

> is brought to you by the folks at Glenbrook Farms Herbs and

Such!

> Over 700 herbs & spices, soapmaking supplies, recipes,books,citric acid

and more!

>

>

[Guest guest]

Hi Lucinda,

I make Parrafin Wax candles. If you want to learn to make them there's a great

group called candlemakingsurvival at . That's where I learned all my

stuff! You should join if you are serious about making candles. Lots of

experienced candlemakers there willing to help you.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Angie Cyr ~ THE CYR HOUSE ~

HANDCRAFTED CANDLES AND SOAPS ~ http://www.thecyrhouse.com

*NEW Whimsical Soaps and Special Occasion Candles!* Come and take a look!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

New Here

> Hi All! I just joined this list and am looking forward to learning

> from you! I make candles and glycerin soaps but after the holidays I

> would like to start making bath and body products as well but I have

> no clue what to do or how to start! I would like to have a whole

> line with shampoo, bubble bath, bath salts and fizzies, hand and body

> lotion and bath powder, etc. I'll be lurking for a bit until I'm

> ready to start then I'll probably come out and ask you all some

> questions! I'm looking forward to meeting you all.

>

> Angie Cyr

> The Cyr House

> www.thecyrhouse.com

>

>

>

>

>

> is brought to you by the folks at Glenbrook Farms Herbs and

Such!

> Over 700 herbs & spices, soapmaking supplies, recipes,books,citric acid

and more!

>

>

[Guest guest]

Just wondering how your Patello Femoral Syndrome

was diagnosed. I was told I had that 2 years ago.. I

was sent to therapy for 4 weeks. 2 Years later I am

recovering from surgery, not 1 but yes my 2nd surgery in 6

months. One was done on the left knee and the other one

the right knee. All I am trying to say is make sure

it is done by tests, not by feel. Sometimes things

are missed. I went to a different DR from the One 2

years ago.. and he ended up finding Chondromalacia,

Torn meniscus had a lateral release and A couple other

things done. <br><br>AJ

[Guest guest]

,

What province are you in? I'm in Ontario.

Andy

:0)

mum to Hannah 5.4 (autism dx) 6.9 (seizure disorder) and Meaghan 8.4 (nt)

new here

Welcome Andy, I have a daughter who is 3.5, who has Autism and it on a waiting

list for ABA therapy. At present she is non verbal. Her name is Adonia and I

live in Canada. yvonne.

[Guest guest]

Hi Andy

I live in Ontario , 2 hrs away from Toronto. I am on the waiting list for

the Autism Initiative -ABA. new here

>

>

> Welcome Andy, I have a daughter who is 3.5, who has Autism and it on a

waiting list for ABA therapy. At present she is non verbal. Her name is

Adonia and I live in Canada. yvonne.

>

>

>

[Guest guest]

,

I, too, am 2 hrs away from Toronto, about 40 minutes from Kingston.

Hannah is in the IBI initiative which I assume that you are speaking of when you

refer to ABA. She receives 20 hours per week of therapy in our home.

Andy

:0)

new here

>

>

> Welcome Andy, I have a daughter who is 3.5, who has Autism and it on a

waiting list for ABA therapy. At present she is non verbal. Her name is

Adonia and I live in Canada. yvonne.

>

>

>