New here

[Guest guest]

Skip the dilations. They don't address the neurochemical mechanisms which

increase LES pressure, and only provide limited - if any - efficacy.

The HM is thought to be the first line of treatment, although it too doesn't

address the main etiologies of achalasia or why the LES fails to relax. It's

merely an outside technique for ripping muscle fibers.

Steve

> >

> > Hi guys,

> >

> > My name is and I'm new here. I'm 36 female married +3. suffering for

about 4 months. I got my final diagnosis for Achalasia last week after having

all the tests done. (barium, gastroscopy and monometry). My doctor advised

surgery and I am waiting consultation on Monday.

> >

> > By chance I had to take one of my children to the doctor last week and I

told him about my problem his advice was not to have the surgery and that I

should do the balloon dilation first. Of course he's not a specialist but he

knew right away what achalasia is and he new the exact details for the HM

surgery.....

> >

> > I assume my Achalasia is full blown I cannot eat or drink ANYTHING!!! when I

do I have chest pains and I throw up ALL night....

> >

> > I can hardly take care of my 3 kids I am totally weak... probably soon to be

dehydrated as full summer is in view.

> >

> > Sorry for venting soooooo much I feel very alone in this, though my husband

is supportive he has no idea the feeling I have all day..... I find it hard to

bend over and clean after the kids and he just likes walking over their stuff

:-)

> >

> > now I have tons of questions to all you " experienced " here:

> >

> > 1. I feel that I'm still young and have (i hope) at least 40 more years to

live..... and see my children grow up, Did anyone have this surgery many years

ago and is everything still OK?!??! Is the surgery, (if successful), for

good?...

> >

> > 2. do you think the vitamin B thing can help?

> >

> > 3. should I start with balloon dilation?.... I now it can leave scares and

even rip the esophagus....

> >

> > I know you guys are not doctors and I need to ask doctors all my questions

but I want to hear your experience.

> >

> > also I still want more children...... can that hurt the surgery? can it make

things worse?

> >

> > HELP ;-(

> >

> > so many more questions but this post was just meant to introduce myself....

guess I got carried away :-)

> >

> > So happy to know I'm not alone and will be able to meet more people with my

problem.

> >

> > Thank you all for " listening " !!!

> >

> >

> >

>

[Guest guest]

I understand you totally. I was diagnosed and had surgery at 25. I would have

the surgery. I have 2 children and 2 step children buy wondered about having

more kids too. Starting to have trouble now almost 7 years later not sure what

next step will be but I felt better in he past 7 years then the 25 before. Good

luck.

Sent from my Kindle Fire

_____________________________________________

From: nailheader <stevenakamichi@...>

Sent: Sun May 06 18:45:18 CDT 2012

achalasia

Subject: Re: New here

Skip the dilations. They don't address the neurochemical mechanisms which

increase LES pressure, and only provide limited - if any - efficacy.

The HM is thought to be the first line of treatment, although it too doesn't

address the main etiologies of achalasia or why the LES fails to relax. It's

merely an outside technique for ripping muscle fibers.

Steve

> >

> > Hi guys,

> >

> > My name is and I'm new here. I'm 36 female married +3. suffering for

about 4 months. I got my final diagnosis for Achalasia last week after having

all the tests done. (barium, gastroscopy and monometry). My doctor advised

surgery and I am waiting consultation on Monday.

> >

> > By chance I had to take one of my children to the doctor last week and I

told him about my problem his advice was not to have the surgery and that I

should do the balloon dilation first. Of course he's not a specialist but he

knew right away what achalasia is and he new the exact details for the HM

surgery.....

> >

> > I assume my Achalasia is full blown I cannot eat or drink ANYTHING!!! when I

do I have chest pains and I throw up ALL night....

> >

> > I can hardly take care of my 3 kids I am totally weak... probably soon to be

dehydrated as full summer is in view.

> >

> > Sorry for venting soooooo much I feel very alone in this, though my husband

is supportive he has no idea the feeling I have all day..... I find it hard to

bend over and clean after the kids and he just likes walking over their stuff

:-)

> >

> > now I have tons of questions to all you " experienced " here:

> >

> > 1. I feel that I'm still young and have (i hope) at least 40 more years to

live..... and see my children grow up, Did anyone have this surgery many years

ago and is everything still OK?!??! Is the surgery, (if successful), for

good?...

> >

> > 2. do you think the vitamin B thing can help?

> >

> > 3. should I start with balloon dilation?.... I now it can leave scares and

even rip the esophagus....

> >

> > I know you guys are not doctors and I need to ask doctors all my questions

but I want to hear your experience.

> >

> > also I still want more children...... can that hurt the surgery? can it make

things worse?

> >

> > HELP ;-(

> >

> > so many more questions but this post was just meant to introduce myself....

guess I got carried away :-)

> >

> > So happy to know I'm not alone and will be able to meet more people with my

problem.

> >

> > Thank you all for " listening " !!!

> >

> >

> >

>

TODAY(Beta) • Powered by

America's fastest-growing cities

Privacy Policy

[Guest guest]

>

> Skip the dilations. They don't address the neurochemical mechanisms which

increase LES pressure, and only provide limited - if any - efficacy.

My last dilation was in 1998. Never had a heller, and only need a miniscule

amount of SSRI daily to keep NCCPs at bay.

There is no " miracle " cure, nor is there any one treatment that works equally

well for everyone.

Beware of people (doctors, other achalasians, family/friends) trying to tell you

that you " have " to do anything. It's your body, and you have a right to

information and a right to make your own decisions.

Debbi in Michigan

[Guest guest]

WOW,

thank you guys for all the replies, I didn't expect so many.

It's funny but I already feel that I'm not alone in this!

Today I have my first consultation for HM. no balloon or Botox done yet. after

research and talking on the phone with a few specialists they all advised HM

because of my age (36). And all of you here have reassured me that this is the

way to go.

I haven't been eating or drinking in 3 days. (i do the 2 teaspoons of water

every 5 minutes) and even that is painful in my chest, and feel that I'm getting

dehydrated. Hope to go into surgery soon.

Well thanks again for all the support will update after the consultation today.

>

> Hi guys,

>

> My name is and I'm new here. I'm 36 female married +3. suffering for

about 4 months. I got my final diagnosis for Achalasia last week after having

all the tests done. (barium, gastroscopy and monometry). My doctor advised

surgery and I am waiting consultation on Monday.

>

> By chance I had to take one of my children to the doctor last week and I told

him about my problem his advice was not to have the surgery and that I should do

the balloon dilation first. Of course he's not a specialist but he knew right

away what achalasia is and he new the exact details for the HM surgery.....

>

> I assume my Achalasia is full blown I cannot eat or drink ANYTHING!!! when I

do I have chest pains and I throw up ALL night....

>

> I can hardly take care of my 3 kids I am totally weak... probably soon to be

dehydrated as full summer is in view.

>

> Sorry for venting soooooo much I feel very alone in this, though my husband is

supportive he has no idea the feeling I have all day..... I find it hard to

bend over and clean after the kids and he just likes walking over their stuff

:-)

>

> now I have tons of questions to all you " experienced " here:

>

> 1. I feel that I'm still young and have (i hope) at least 40 more years to

live..... and see my children grow up, Did anyone have this surgery many years

ago and is everything still OK?!??! Is the surgery, (if successful), for

good?...

>

> 2. do you think the vitamin B thing can help?

>

> 3. should I start with balloon dilation?.... I now it can leave scares and

even rip the esophagus....

>

> I know you guys are not doctors and I need to ask doctors all my questions but

I want to hear your experience.

>

> also I still want more children...... can that hurt the surgery? can it make

things worse?

>

> HELP ;-(

>

> so many more questions but this post was just meant to introduce myself....

guess I got carried away :-)

>

> So happy to know I'm not alone and will be able to meet more people with my

problem.

>

> Thank you all for " listening " !!!

>

>

>

[Guest guest]

Welcome to the group. If you have any question or want to just talk please feel

free to do so. I am also willing to take phone calls.

on Georgia

Sent from my iPhone

On May 6, 2012, at 23:39, " bigbrillohead " <imahockeymom@...> wrote:

>

> >

> > Skip the dilations. They don't address the neurochemical mechanisms which

increase LES pressure, and only provide limited - if any - efficacy.

>

> My last dilation was in 1998. Never had a heller, and only need a miniscule

amount of SSRI daily to keep NCCPs at bay.

>

> There is no " miracle " cure, nor is there any one treatment that works equally

well for everyone.

>

> Beware of people (doctors, other achalasians, family/friends) trying to tell

you that you " have " to do anything. It's your body, and you have a right to

information and a right to make your own decisions.

>

> Debbi in Michigan

>

>

>

>

> TODAY(Beta) • Powered by

> Unlikely history made in marathon game

> Privacy Policy

>

>

[Guest guest]

Hi ,

Welcome to the group! Just chiming in, FWIW. I had my HM almost exactly 4 years

ago after having been diagnosed in early 2008 - I was 58 at the time. I spent a

lot of time researching the options, and decide to go with the operation vs.

other treatments. I'm not totally without issues, but it was definitely the

right thing for me.

You have to make your own choices, but there's a wealth of experience on this

board. My personal advice is to keep asking questions until you're comfortable

with the path you take.

It seems that the folks with the fewest problems have been those who were able

to work with doctors who have treated hundreds of achalasia patients, and do so

on a regular basis. In my case, I went to the chief Thoracic surgeon at Emory

University in Atlanta for my HM - I interviewed a few others in the area before

going that route.

Good luck, and feel free to ask away.

Lee in Santa Barbara

[Guest guest]

,

 

What works for some of us doesn't necessarily work for all of us. Just be

informed of all the possibilities, and there aren't many, and hopefully you have

a very knowledgeable GI.

My prayers are with you!@

Kim A

________________________________

From: <katir@...>

achalasia

Sent: Monday, May 7, 2012 12:14 AM

Subject: Re: New here

 

WOW,

thank you guys for all the replies, I didn't expect so many.

It's funny but I already feel that I'm not alone in this!

Today I have my first consultation for HM. no balloon or Botox done yet. after

research and talking on the phone with a few specialists they all advised HM

because of my age (36). And all of you here have reassured me that this is the

way to go.

I haven't been eating or drinking in 3 days. (i do the 2 teaspoons of water

every 5 minutes) and even that is painful in my chest, and feel that I'm getting

dehydrated. Hope to go into surgery soon.

Well thanks again for all the support will update after the consultation today.

>

> Hi guys,

>

> My name is and I'm new here. I'm 36 female married +3. suffering for

about 4 months. I got my final diagnosis for Achalasia last week after having

all the tests done. (barium, gastroscopy and monometry). My doctor advised

surgery and I am waiting consultation on Monday.

>

> By chance I had to take one of my children to the doctor last week and I told

him about my problem his advice was not to have the surgery and that I should do

the balloon dilation first. Of course he's not a specialist but he knew right

away what achalasia is and he new the exact details for the HM surgery.....

>

> I assume my Achalasia is full blown I cannot eat or drink ANYTHING!!! when I

do I have chest pains and I throw up ALL night....

>

> I can hardly take care of my 3 kids I am totally weak... probably soon to be

dehydrated as full summer is in view.

>

> Sorry for venting soooooo much I feel very alone in this, though my husband is

supportive he has no idea the feeling I have all day..... I find it hard to

bend over and clean after the kids and he just likes walking over their stuff

:-)

>

> now I have tons of questions to all you " experienced " here:

>

> 1. I feel that I'm still young and have (i hope) at least 40 more years to

live..... and see my children grow up, Did anyone have this surgery many years

ago and is everything still OK?!??! Is the surgery, (if successful), for

good?...

>

> 2. do you think the vitamin B thing can help?

>

> 3. should I start with balloon dilation?.... I now it can leave scares and

even rip the esophagus....

>

> I know you guys are not doctors and I need to ask doctors all my questions but

I want to hear your experience.

>

> also I still want more children...... can that hurt the surgery? can it make

things worse?

>

> HELP ;-(

>

> so many more questions but this post was just meant to introduce myself....

guess I got carried away :-)

>

> So happy to know I'm not alone and will be able to meet more people with my

problem.

>

> Thank you all for " listening " !!!

>

>

>