New here

[Guest guest]

Terry:

My ocder used to forget to hand things in, too. I finally started clipping them

all together and putting them in his hand as he went out the door. It worked

last year, anyway.

Jule

[Guest guest]

Unfortunately, getting lower grades is unlikely to " motivate " him.

Discourage him is more likely. I have ADD myself, and punishment (or

" consequences " ) does not help me or other ADDers to remember. What does

help is to teach an organization system and system of physical reminders

that enable one to remember. For myself, I have an elaborate computer

calendar which synchronizes at home and work and with the Palm Pilot I

carry everywhere. Nothing can be safely left to " memory " , so all action

items are entered in the daily schedule with reminder audible alarms.

It is especially important for me to have alarms to remind me to take my

ritalin!

My son is almost 15, and I am trying to teach him some of the tricks of

the ADD battle. I have an ADD therapist myself, but he doesn't have

time for one because his OCD therapy takes so much time. Last year he

had an ADD tutor twice a week, but she is unavailable this year. So he

is learning organizational and coping skills from me. The most

effective is a system of immediate rewards for completion of goals and

tasks. I have been giving him the rewards myself, but I am teaching him

to give himself the rewards so they will be more immediate and so he can

become more independent.

Judy Lovchik

[Guest guest]

Hi Lori and welcome! I chuckled (in sympathy) when I read about the sock

problems and Michigan winter. I came to hate our Indiana winters when my

daughter was having her sensory problems. She will be 7 next month and had

sensory problems (touch, sound, clothing certainly) nearly from birth. Then

she had an abrupt onset of OCD two years ago. I have since learned that

many young kids with OCD have sensory troubles, and that socks with seams

seem to lead the list.

Since you don't yet have a diagnosis and have yet to see a psych, you may

want to check the list's files for seamless sock sources. These socks were

a godsend in the early months of my daughter's treatment, she wore them

exclusively for about a year while we were waiting for relief from various

meds and getting up to speed with Exposure and Response Prevention therapy.

If it turns out your daughter does have OCD, once she enters treatment she

may choose to begin bossing back the sock problem rather than accomodating

it with seamless socks.

Little kids with OCD may tantrum because their rituals are inadvertantly

thwarted by Mom, say, who insists it's bath time *now* when the child is

desperately trying to get her socks " just so " --or whatever the child's

rituals are. Kids, especially young ones, sometimes have a very hard time

saying what the problem is, a situation just feels wrong or yuck, and they

lose it. I'm glad to hear removing dyes helped with tantruming, some of

this may have been due to just not feeling well, an allergy?

Some of the things you describe, the ritual with the cup and so on, do IMO

seem OCDish and I think you are on the right track to suspect it.

> She doesn't have a lot of the typical symptoms that I

> would think of as being OCD. And life isn't really that

> bad for us, compared to what a lot of you are probably

> going through. But I hope that by attacking this early in

> life, it will save us a lot of grief later on.

If by typical symptoms you mean excessive handwashing, this is but one

compulsion among several that a person with contamination OCD may have. My

daughter has some contamination fears but so far she doesn't wash her hands,

even at usual times, without a struggle. :-)

I'm glad things aren't too bad yet, but unfortunately untreated OCD has a

tendency to get worse over time. You are absolutely correct that

determining whether your daughter is OCD now will save both her and your

whole family grief later.

BTW, I am not a doctor, just Mom to a child with OCD.

Kathy R in Indiana

[Guest guest]

HI Lori:

Thank you for writing about your daughter and her struggles.

You are quite right, early treatment is the way to go. The difficult part

may be finding a therapist who can customize and adapt cognitive behavior

therapy (CBT) including exposure and response prevention (E & RP) for a child

of four.

Just so obsessions and compulsions about clothin and grooming activities

are very common in OCD. OTher parents on here will undoubtedly share about

SID which can appear with OCD (SID = sensory integration disorder). We

also have quite a few parents who have been the primary therapist for their

young child based on the March protocol. Our two list docs also have

written great books which are invaluable resources for our family. Dr.

Chansky has written, " Freeing YOur Child from OBsessive Compulsive

Disorder, and Dr. Pinto Wagner has written " UP and Down the Worry Hill " .

Good luck at the doctor appointment. Take care, aloha, Kathy (H)

kathyh@...

At 02:51 PM 12/17/2000 -0500, you wrote:

>I just thought I'd give a short intro while I have a few

>minutes. I suspect that my 4 yr old daughter may

>have OCD. I'm not sure if its OCD, or some kind of

>sensory problem, or maybe a combination....or maybe

>something I haven't even thought of. We have an

>appointment with a psychotherapist on January 3 to

>start to figure out exactly what's wrong with her. I

>guess I've known since she was 2 that something

>just wasn't right. Life the past 2 or so years has not

>been easy, and it's been getting worse and worse over

>time. I figured out that she was sensitive to red dye in

>foods, and that did make a world of difference in her.

>Before taking her off red dye she'd have tantrums like

>you wouldn't believe, several times a day. Since

>removing red dye from her diet, her tantrums have

>lessened to a manageable number. But I think that

>since removing the red dye factor, I've seen a lot more

>of the OCD coming out.

>

>Why do I think she has OCD? The main thing is her

>socks. Man I hate winter here in Michigan! There's

>a certain process that has to be followed when putting

>on her socks and shoes. I won't type it out because

>it makes me cringe to think about. :-) It's bad enough

>I have to deal with it one or more times a day. There

>are other things, such as after she's done brushing her

>teeth, she has to wash the bottom of the rinse cup off

>first, then fill up the cup and pour the water out, then

>fill it with the water she's going to rinse with. There

>are lots of other little things she does that I'll be

>discussing with the therapist to determine exactly

>what's going on with her.

>

>She doesn't have a lot of the typical symptoms that I

>would think of as being OCD. And life isn't really that

>bad for us, compared to what a lot of you are probably

>going through. But I hope that by attacking this early in

>life, it will save us a lot of grief later on.

>

>Thanks for listening!

>

>Lori

[Guest guest]

Hi Lori,

My daughter is 4 yrs old and was diagnosed with ocd.

She has had sensory problems since birth and I also

took out red and orange dye from her diet and her

tantrums were slightly improved. She fiddles around

with all her clothes until they feel just right. We

had just started to be able to get her to wear

sneakers with laces when the dreaded Ontario winter

started and a whole bunch of other issues popped up.

She has very difficult time with food textures as well

and has a very limited diet and has recently started

to develop hoarding compulsions and contamination

issues. I guess I wanted to tell you that this is a

great place to be and that you are not alone. Hugs Teela

_______________________________________________________

[Guest guest]

Hi Lori,

Welcome. I am the mom of a girl, now seven, who also had OCD symptoms

from a very young age. You are absolutely right: OCD symptoms in the

little ones often don't look like the " typical, " OCD described in older

kids. I think this is why young children are frequently misdiagnosed

with other disorders, or are not diagnosed at all.

You are so wise to be seeking medical advice and attention for your

daughter while she is young. My daughter, andra, was diagnosed

w/OCD at age five, and that diagnosis and subsequent treatment was the

best thing that ever happened to us. Sure explained a lot, too. At

last we could define the problem and take steps to relieve my daughter's

suffering.

When my daughter was three, we lived in Indiana, and I well remember the

winters and the endless struggles with socks, tights, coats,

aaaaaaggggghhhhh! What a nightmare!

Keep us posted on what you learn from the psychotherapist. Always try

to seek out professionals who are knowledgeable about OCD; it's a

specialty and not all mental health professionals are well versed in

this disorder.

Best wishes to you,

Lesli (SF Bay)

Lori S LaRowe wrote:

>

> I just thought I'd give a short intro while I have a few

> minutes. I suspect that my 4 yr old daughter may

> have OCD. I'm not sure if its OCD, or some kind of

> sensory problem, or maybe a combination....or maybe

> something I haven't even thought of. We have an

> appointment with a psychotherapist on January 3 to

> start to figure out exactly what's wrong with her. I

> guess I've known since she was 2 that something

> just wasn't right. Life the past 2 or so years has not

> been easy, and it's been getting worse and worse over

> time. I figured out that she was sensitive to red dye in

> foods, and that did make a world of difference in her.

> Before taking her off red dye she'd have tantrums like

> you wouldn't believe, several times a day. Since

> removing red dye from her diet, her tantrums have

> lessened to a manageable number. But I think that

> since removing the red dye factor, I've seen a lot more

> of the OCD coming out.

>

> Why do I think she has OCD? The main thing is her

> socks. Man I hate winter here in Michigan! There's

> a certain process that has to be followed when putting

> on her socks and shoes. I won't type it out because

> it makes me cringe to think about. :-) It's bad enough

> I have to deal with it one or more times a day. There

> are other things, such as after she's done brushing her

> teeth, she has to wash the bottom of the rinse cup off

> first, then fill up the cup and pour the water out, then

> fill it with the water she's going to rinse with. There

> are lots of other little things she does that I'll be

> discussing with the therapist to determine exactly

> what's going on with her.

>

> She doesn't have a lot of the typical symptoms that I

> would think of as being OCD. And life isn't really that

> bad for us, compared to what a lot of you are probably

> going through. But I hope that by attacking this early in

> life, it will save us a lot of grief later on.

>

> Thanks for listening!

>

> Lori

>

>

> You may subscribe to the OCD-L by emailing listserv@... . In the

body of your message write: subscribe OCD-L your name. You may subscribe to

the Parents of Adults with OCD List at

parentsofadultswithOCD . You may access the

files, links, and archives for our list at

. Our list advisors are Tamar

Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are

Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , Roman,

and Jackie Stout. Subscription issues or suggestions may be addressed to Louis

Harkins, list owner, at harkins@... .

[Guest guest]

Hi,

I would like to be removed from this list for this period to meet you after

christmas & new year holiday. I like to wish you all happy & peacefull

holidays, as well a happy new year, may God bless all of you.

Huda

>From: " Kathy " <klr@...>

>Reply-egroups

><egroups>

>Subject: Re: New here

>Date: Sun, 17 Dec 2000 21:17:29 -0500

>

>Hi Lori and welcome! I chuckled (in sympathy) when I read about the sock

>problems and Michigan winter. I came to hate our Indiana winters when my

>daughter was having her sensory problems. She will be 7 next month and had

>sensory problems (touch, sound, clothing certainly) nearly from birth.

>Then

>she had an abrupt onset of OCD two years ago. I have since learned that

>many young kids with OCD have sensory troubles, and that socks with seams

>seem to lead the list.

>

>Since you don't yet have a diagnosis and have yet to see a psych, you may

>want to check the list's files for seamless sock sources. These socks were

>a godsend in the early months of my daughter's treatment, she wore them

>exclusively for about a year while we were waiting for relief from various

>meds and getting up to speed with Exposure and Response Prevention therapy.

>If it turns out your daughter does have OCD, once she enters treatment she

>may choose to begin bossing back the sock problem rather than accomodating

>it with seamless socks.

>

>Little kids with OCD may tantrum because their rituals are inadvertantly

>thwarted by Mom, say, who insists it's bath time *now* when the child is

>desperately trying to get her socks " just so " --or whatever the child's

>rituals are. Kids, especially young ones, sometimes have a very hard time

>saying what the problem is, a situation just feels wrong or yuck, and they

>lose it. I'm glad to hear removing dyes helped with tantruming, some of

>this may have been due to just not feeling well, an allergy?

>

>Some of the things you describe, the ritual with the cup and so on, do IMO

>seem OCDish and I think you are on the right track to suspect it.

>

> > She doesn't have a lot of the typical symptoms that I

> > would think of as being OCD. And life isn't really that

> > bad for us, compared to what a lot of you are probably

> > going through. But I hope that by attacking this early in

> > life, it will save us a lot of grief later on.

>

>If by typical symptoms you mean excessive handwashing, this is but one

>compulsion among several that a person with contamination OCD may have. My

>daughter has some contamination fears but so far she doesn't wash her

>hands,

>even at usual times, without a struggle. :-)

>

>I'm glad things aren't too bad yet, but unfortunately untreated OCD has a

>tendency to get worse over time. You are absolutely correct that

>determining whether your daughter is OCD now will save both her and your

>whole family grief later.

>

>BTW, I am not a doctor, just Mom to a child with OCD.

>

>Kathy R in Indiana

>

>

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

[Guest guest]

My oldest son has autism, so he has some similar characteristics to Fragile X. When will you get the results??

Welcome to our group. There are parents here. We are willing to support you.

Lee

wolfj001@... wrote:

Hello everyone,My name is Jackie and i am a mother of a 21 month old. Our doctor has just put in a blood test to see if he may have Fragile X. I am so scared.... i knew he was behind but never thought that i would be going thow this... I am really looking for other parents to talk with. I live very far away from family and having a really hard time with this.I hope you all are well and having a good night too.take care,Jackie~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityHelp with Merger/files/Visual problems with colors?Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts./joinMembers Lounge:-Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things.http://www.elderwyn.com/members Message Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at # on IRC DALnet./files/chat.htmBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator either via email or visit:- /files/Moderators.htmSubscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings, subscribe or unsubscribe, please visit /join~~~~ *** ~~~ *** ~~~ *** ~~~~“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer

[Guest guest]

> Hello everyone,

>

> My name is Jackie and i am a mother of a 21 month old. Our doctor

has

> just put in a blood test to see if he may have Fragile X. I am so

> scared.... i knew he was behind but never thought that i would be

> going thow this... I am really looking for other parents to talk

> with. I live very far away from family and having a really hard

time

> with this.

> I hope you all are well and having a good night too.

> take care,

> Jackie

Hi Jackie,

Let me be the first to welcome you to our wonderful group!

When will you know about the results? I have two children both of

whom are not well, as yet undiagnosed (but still trying) What is your

sons name? Is he your first child?

Where do you live - I am in Canberra Australia, and dont have any

friends here to speak of, as I am housebound with my ill son much of

the time. The friends I have made in this group are my lifeline!

You will love it here. Please let us know as soon as you have heard

about the results hope it is neg. What are your sons symptoms, that

made them suspect this? OHH, too many questions, sorry!

Anyhow, welcome!

:-)

[Guest guest]

Welcome Jackie! Sorry that you have to be here, but you have found the

right place to be for love & support! My prayers are with you & your little

one! Love, Barb

new here

Hello everyone,

My name is Jackie and i am a mother of a 21 month old. Our doctor has

just put in a blood test to see if he may have Fragile X. I am so

scared.... i knew he was behind but never thought that i would be

going thow this... I am really looking for other parents to talk

with. I live very far away from family and having a really hard time

with this.

I hope you all are well and having a good night too.

take care,

Jackie

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Being Sick Community

Help with Merger

/files/

Visual problems with colors?

Click the link below and select the modify link to your right. Then select

the **Send Plain Text Email** option. This will stop you receiving emails

with colored or enlarged fonts.

/join

Members Lounge:-

Photo Album, memorial page, members profiles, birthdays, locations, medical

resources, counselling via email and a whole bunch of free things.

http://www.elderwyn.com/members

Message Archives and Digest Attachment Pictures:-

/messages

Chat:-

Scheduled Daily Chats at # on IRC DALnet.

/files/chat.htm

Bookmarks:-

Add a website URL you have found useful.

/links

Personal Complaints or problems:-

Please contact a moderator either via email

<-owner > or visit:-

/files/Moderators.htm

Subscription Details:-

1) Individual email - means that every email sent to the list you receive.

2) Daily Digest - sends you 25 messages in one single email for you to

browse. This is an excellent option if you receive alot of email.

3) Web only/No mail - means that you can pop into eGroups at your

convenience and receive no email.

To modify your subscription settings, subscribe or unsubscribe, please visit

/join

~~~~ *** ~~~ *** ~~~ *** ~~~~

" Hold on to what is good, even if it's a handful of earth. Hold on to what

you believe, even if it's a tree that stands by itself. Hold on to what you

must do even, if it's a long way from here. Hold on to your life, even if

it's easier to let go. " - Pueblo Prayer

_________________________________________________________

[Guest guest]

Joe_@... writes: I was wondering if anyone has used xenadrine RFA-1 I got some today and would like some advice on it.

Don't know much about it, other than you cannot tqke this sort of product if you have high blood pressure or if you take any drugs to counter depression. Just a word of caution.

Let us know what your goals are and in what specific ways you need help.

Like

Glenda said, "Ask questions" and then its easier for people here to offer valid support. Love the expression about opportunity and temptation.

Very appropriate in this forum! Leaner.

[Guest guest]

Hi, my name is Beverly. I just joined this week, too. I have been on

BFL program for 2 weeks and just lost my first pounds this week! I

weighed 230, so down to 225 and looking forward to under 200 soon! I

recently quit work to stay with my children and then gained 40+ lbs.

But this weight problem has been a life long struggle for me. When my

second child was born 4 years ago, I came home from the hospital at

280! Within a year I was down to 165, by walking 5-6 miles per day

and eating practically nothing. But recently, my willpower left me

and depression set in after I quit work. Now, I feel great, mostly

because I have gotten started with something. And my strength is

greatly increasing. Just today, I went to buy 25 lb and 30 lb

dumbbells (I started 2 weeks ago with 5 lbs!) I plan on using this

plan for the rest of my life, as long as I get the results others have

gotten. My husband has used xenadrine before. If I recall correctly,

he didn't like it because it made him very nervous. Kinda like too

much coffee. Keep us posted on your progress!

[Guest guest]

I have just started also. A friend who is my inspiration and completed the last BFL challenge (her first) and she HIGHLY recommends Xenadrine. She says it is a thermogenic and will help melt the pounds away as well as giving you a real kick!

I'm getting some this weekend. Have my second session with my trainer tomorrow and telling him I am definitely doing the BFL challenge! God, I hate the thought of taking that first picture, though!! With that in mind - those of you who have had gastroplasty - what did you wear for the picture that didn't show your scar so much?

Thanks,

Cheryl

[Guest guest]

>hate the thought of taking that first picture, though!! With that in mind -

>those of you who have had gastroplasty - what did you wear for the picture

>that didn't show your scar so much?

To be honest, I really don't give a rip about my scar anymore. In addition to

the good sized scar from the RNY, I also have a 15 inch scar from hip to hip

from my abdominoplasty, and two large T-shaped scars under my boobs from my

breast lift, not to mention the 1 inch scars on each side of my trunk from

having chest tubes inserted and various and sundry other scars. I call them

battle scars and think of them as proof that I've lived a full life. <G> They

don't embarass me, I don't let them.

I just wore a sports bra and bike shorts for my pictures. Hard to find a bikini

in stores in Wisconsin during the winter. I'm more embarassed at the shape

that my body is in than the scars themselves. heheh

Tina

[Guest guest]

>hate the thought of taking that first picture, though!! With that in mind -

>those of you who have had gastroplasty - what did you wear for the picture

>that didn't show your scar so much?

To be honest, I really don't give a rip about my scar anymore. In addition to

the good sized scar from the RNY, I also have a 15 inch scar from hip to hip

from my abdominoplasty, and two large T-shaped scars under my boobs from my

breast lift, not to mention the 1 inch scars on each side of my trunk from

having chest tubes inserted and various and sundry other scars. I call them

battle scars and think of them as proof that I've lived a full life. <G> They

don't embarass me, I don't let them.

I just wore a sports bra and bike shorts for my pictures. Hard to find a bikini

in stores in Wisconsin during the winter. I'm more embarassed at the shape

that my body is in than the scars themselves. heheh

Tina

[Guest guest]

Hi, Cheryl,

I would love to hear about how you feel after taking Xenadrine for a few

days. Please post and let us know!

:-)

Cristi

C1W8D4

[Guest guest]

Hi ,

You came to the right place. My name is Mabel, I'm 31 and the proud mom

of a set of 25 months old triplets, g-b-g, Carolina, Cristian and a,

a has DS. It was a big surprise for us at first but God knows why He

did it. And like you at first I thought I was the only mom with triplets and

one with DS. The people in here are great, caring and loving people. Wow I

bet you keep yourself pretty busy. I will love to hear more from you. Where

do you live? Take care.

Mabel, mom to Carolina, Cristian and a-ds (25 months old)

>From: rozalind_@...

>Reply-Multiples-DS

>Multiples-DS

>Subject: new here

>Date: Tue, 24 Apr 2001 08:20:48 -0000

>

>Hi,I was really surprised to find this place.My name is ,Im

>28,I have four kids,Gwen 3(w/Ds),Killian 2,Ava 1,and Rozalind 3 months

>(w/DS).I had no idea so many people had more than one kid w/ down

>syndrome,cool.

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

,Hello... I am ..mom to 7.7yrs

and Dayton 2.10yr.Both are translocation 13/21. We

live in Georgia,USA. Where are you from, would love to

hear about your kids!

__________________________________________________

[Guest guest]

Hi - Welcome! I'm Judi, Mom to Sam & .

They are 4 year old identical twins w/DS.

So glad you found us. Can't wait to hear more about

you and your family.

Judi

__________________________________________________

[Guest guest]

Hi ,

Carolyn here from New Zealand and we also have 2 with Ds (trisomy 21). We

have 4 children and Emma and Nicki are our youngest 2 girls.

It is just a chance thing that we should have 2 with Ds. You can 'meet'

them on our website - the link is below.

Welcome to the group!

Carolyn

Mum to on, , Emma (Ds) 5 and Nicki (Ds) 3

http://www.geocities.com/nz_mom/sykesfamily.html

new here

> Hi,I was really surprised to find this place.My name is ,Im

> 28,I have four kids,Gwen 3(w/Ds),Killian 2,Ava 1,and Rozalind 3 months

> (w/DS).I had no idea so many people had more than one kid w/ down

> syndrome,cool.

>

>

>

> http://DSyndrome.com/Multiples

>

>

[Guest guest]

Hi ,

Welcome to the group! I find it a lot of help, even when I don't think I need any help! I have boy/girl twins that will be 18 months next week.

is walking and talking, and is crawling and doing all she can to imitate her brother. I look forward to hearing more about your family.

Casey, mom to (DS) and , 17 mo.

[Guest guest]

Anne! Glad ya made it!!

CONGRATULATIONSSSSSSSSSSSSSSSSSSS on your new babies-to-be (well.... babies

to come I should say!)!! Your e-mail almost made me cry (happy tears)! Your

twins are soooooo lucky to have such an educated and accepting mother so

early on! It makes a huge difference (in your entire family's life)! Callie

sounds fully prepared to be the best of big sisters!! Please keep us

updated on how the pregnancy goes (and test results)! I can't wait to

" meet " Hannah and Noah when they are born! (BTW, I LOVE the name Noah!!)

Again, welcome to the crew! You'll find that you are in the majority on

this list as far as having b/g twins one with DS.

Cheers!

Sara

--On Sunday, May 06, 2001, 7:21 AM -0700 anne simms <baby_smile9@...>

wrote:

> Hello everyone,

> My name is Anne. I am currently 21 weeks pregnant with

> boy/girl twins, hannah and noah. Hannah appears to

> have DS, we will get the test results back next week

> and will know for sure. I am no longer nervous about

> having a DS child, I am excited and just want the

> babies to be healthy. I also have a 5 year old adopted

> daughter callie, we have already begun reading her

> books about DS and she has become friends with a girl

> her age that has DS. anyways, I hope to get to know

> everyone soon.

> Anne

>

> __________________________________________________

>

[Guest guest]

Hi Anne,

I too have boy girl twins, and my daughter has DS. Noah was almost my son's name also! Welcome to the club. I just moved into a new house yesterday, so my postings might be few and far between right now, but we welcome you and hope you find a lot of support and friendship here.

Casey, mom to (DS) and , 18 mo.

[Guest guest]

Hi Anne - I just posted a reply to you over at ROA!

Glad you joined this group too. You'll get more

" been there done that " info from all these experienced

mom's (and the occasional dad) here at multiples!!

Sounds like you have a positive attitude and it's good

you are " arming yourself " with knowledge. The other

thing I'd suggest doing is find a local support group

in your area. I'm on the New Parent/Infant committee

for our group here in Dallas and we have lots of

expectant parents join when they have a prenatal

diagnosis. It helps make things a little less " scary "

when you see our kids in person just running around

being little kids!! A local support group is also

beneficial for " networking " w/other parents in your

area for things like Doctors, therapies, Early

intervention, etc.

Glad you found us and I look forward to hearing more

about you and your family!

Judi-Mom to Sam & , 4, Identical Twins

__________________________________________________

[Guest guest]

Welcome Sharon and Anne,

I'm Katy I have a four year old son and 17month old twins

and Tyler. Unlike you Anne I did not have a clue that my son was

going to be born with DS, it was a ruff in the beginning but I

would not change him for anything. It is great that you are

preparing you older child, my first was to young to understand

when Tyler was born and know I do not think he even have a clue

that Tyler has DS even though I have tried to explain it to him.

He just can't wait until Tyler can walk.

Sharon you are a very special person to open up your home to so

many that need love and caring.

On a quick note about the twins does not talk much still

has only five words that she uses but she also use signs for six

other words. She seems to hear everything and understand she just

does not want to talk or babble. Tyler(DS) on the other hand is

the very vocal one, he has says about 6 or 7 words, refuses to use

signs, he is very good at changing the inflextion of is voice to tell

me what he wants. Tyler is pulling up and crusing all over the place,

he has even gotten himself into a standing position without help from

any person or thing. He probably will be walking before I know it.

Next, has anyone have orthodics for the children? I am going to have

to put all three in orthodics, it seems that my kids all inherited my

overpronation due to over flexible muscles and ligaments in the feet.

Actually and are worst than Tyler.

Katy Touve

mom to 4yrs and twins and Tyler(DS) 17months