New here

[Guest guest]

If is very difficult to interpret renin and aldo without 24 hr urine. See the Endo guidelines and my outline of the perfect test for PA in my Welcome.CE Grim MDOn Feb 27, 2010, at 3:31 AM, Vicki Ritchie wrote:The only other 24 hr urine rest I had was for creatinine and that was normal.Weds. can not come fast enough (that is when I will have renin/Aldo test re done)Sent from my iPodOn Feb 26, 2010, at 8:20 PM, Clarence Grim <lowerbp2mac> wrote: You have P based on your Paldo, your renin and your 24 hr urine aldo. How much Na was in the urine and K? Need those to interpret urine aldo and PRA and aldo.I don't recall you whole story but you are in the classical stage (advance) stage of PA.CE Grim MDOn Feb 25, 2010, at 12:46 PM, Vicki Ritchie wrote:Sorry, I guess for some reason I thought my ARR was 1.86 but it was my Renin that was 1.86. Normal for the lab I had it done at is 1.31-3.95It didn't say what the ARR was. I am not sure why my doctor was talking about my ARR not being low enough for me to have Hyperaldosteronism unless he meant my RENIN was not low enough. I am off of the ACE Inhibitor now and will be rechecked next weds. I have also cut way back on my caffeine because I read somewhere that it can also affect RENIN levels. Thanks for your reply . I am glad I went back to look at that. BTW My Serum Aldo was High at 45.9 and my 24 hour urine aldo was High at 28From: Valarie <val@...>hyperaldosteronism Sent: Thu, February 25, 2010 1:15:52 PMSubject: RE: new here If your aldo/renin ratio is 1.86, you probably don’t have PA unless you are using a different definition than we are familiar with. ARR > 20 or 30 is usually suspect for PA. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Vicki Ritchie Thanks for the response Val. My Aldo/renin ratio was 1.86I am pretty new to all this so I am kinda learning as I go. I will be rechecked for Aldo renin on March 3rd and if I am diagnosed withhyperaldo, I will have a 4 hour salt test on march 9th. My doc is at the Cleveland Clinic.

[Guest guest]

If is very difficult to interpret renin and aldo without 24 hr urine. See the Endo guidelines and my outline of the perfect test for PA in my Welcome.CE Grim MDOn Feb 27, 2010, at 3:31 AM, Vicki Ritchie wrote:The only other 24 hr urine rest I had was for creatinine and that was normal.Weds. can not come fast enough (that is when I will have renin/Aldo test re done)Sent from my iPodOn Feb 26, 2010, at 8:20 PM, Clarence Grim <lowerbp2mac> wrote: You have P based on your Paldo, your renin and your 24 hr urine aldo. How much Na was in the urine and K? Need those to interpret urine aldo and PRA and aldo.I don't recall you whole story but you are in the classical stage (advance) stage of PA.CE Grim MDOn Feb 25, 2010, at 12:46 PM, Vicki Ritchie wrote:Sorry, I guess for some reason I thought my ARR was 1.86 but it was my Renin that was 1.86. Normal for the lab I had it done at is 1.31-3.95It didn't say what the ARR was. I am not sure why my doctor was talking about my ARR not being low enough for me to have Hyperaldosteronism unless he meant my RENIN was not low enough. I am off of the ACE Inhibitor now and will be rechecked next weds. I have also cut way back on my caffeine because I read somewhere that it can also affect RENIN levels. Thanks for your reply . I am glad I went back to look at that. BTW My Serum Aldo was High at 45.9 and my 24 hour urine aldo was High at 28From: Valarie <val@...>hyperaldosteronism Sent: Thu, February 25, 2010 1:15:52 PMSubject: RE: new here If your aldo/renin ratio is 1.86, you probably don’t have PA unless you are using a different definition than we are familiar with. ARR > 20 or 30 is usually suspect for PA. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Vicki Ritchie Thanks for the response Val. My Aldo/renin ratio was 1.86I am pretty new to all this so I am kinda learning as I go. I will be rechecked for Aldo renin on March 3rd and if I am diagnosed withhyperaldo, I will have a 4 hour salt test on march 9th. My doc is at the Cleveland Clinic.

[Guest guest]

Yes, I will. I'll let you know how it goes.

> > > > > >> >

> > > > > >> > Sorry, I guess for some reason I thought my ARR was 1.86

> > but it

> > > > > >> was my Renin that was 1.86. Normal for the lab I had it

> > done at

> > > > is

> > > > > >> 1.31-3.95

> > > > > >> > It didn't say what the ARR was. I am not sure why my

> > doctor was

> > > > > >> talking about my ARR not being low enough for me to have

> > > > > >> Hyperaldosteronism unless he meant my RENIN was not low

> > enough. I

> > > > > >> am off of the ACE Inhibitor now and will be rechecked next

> > > > weds. I

> > > > > >> have also cut way back on my caffeine because I read

> > somewhere

> > > > that

> > > > > >> it can also affect RENIN levels.

> > > > > >> > Thanks for your reply . I am glad I went back to

> > look at

> > > > > >> that.

> > > > > >> > BTW My Serum Aldo was High at 45.9 and my 24 hour urine

> > aldo

> > > > was

> > > > > >> High at 28

> > > > > >> >

> > > > > >> >

> > > > > >> >

> > > > > >> > ________________________________

> > > > > >> > From: Valarie <val@>

> > > > > >> > hyperaldosteronism

> > > > > >> > Sent: Thu, February 25, 2010 1:15:52 PM

> > > > > >> > Subject: RE: new here

> > > > > >> >

> > > > > >> >

> > > > > >> > If your aldo/renin ratio is 1.86, you probably donââ

> > ‚¬â„¢t

> > > > have PA

> > > > > >> > unless you are using a different definition than we are

> > > > familiar

> > > > > >> with. ARR > 20 or 30 is usually suspect for PA.

> > > > > >> >

> > > > > >> > Val

> > > > > >> >

> > > > > >> >

> > > > > >> > From:hyperaldosteronism

> > > > > >> > [mailto:hyperaldost eronism@gro ups.com] On Behalf Of

> > > > Vicki

> > > > > >> Ritchie

> > > > > >> >

> > > > > >> > Thanks

> > > > > >> > for the response Val. My Aldo/renin ratio was 1.86

> > > > > >> > I am

> > > > > >> > pretty new to all this so I am kinda learning as I

> > > > > >> > go. I will be rechecked for Aldo renin on March 3rd and

> > if I am

> > > > > >> diagnosed with hyperaldo, I will have a 4 hour salt test on

> > march

> > > > > >> 9th. My

> > > > > >> > doc is at the Cleveland Clinic.

> > > > > >> >

> > > > > >>

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Yes, I will. I'll let you know how it goes.

> > > > > >> >

> > > > > >> > Sorry, I guess for some reason I thought my ARR was 1.86

> > but it

> > > > > >> was my Renin that was 1.86. Normal for the lab I had it

> > done at

> > > > is

> > > > > >> 1.31-3.95

> > > > > >> > It didn't say what the ARR was. I am not sure why my

> > doctor was

> > > > > >> talking about my ARR not being low enough for me to have

> > > > > >> Hyperaldosteronism unless he meant my RENIN was not low

> > enough. I

> > > > > >> am off of the ACE Inhibitor now and will be rechecked next

> > > > weds. I

> > > > > >> have also cut way back on my caffeine because I read

> > somewhere

> > > > that

> > > > > >> it can also affect RENIN levels.

> > > > > >> > Thanks for your reply . I am glad I went back to

> > look at

> > > > > >> that.

> > > > > >> > BTW My Serum Aldo was High at 45.9 and my 24 hour urine

> > aldo

> > > > was

> > > > > >> High at 28

> > > > > >> >

> > > > > >> >

> > > > > >> >

> > > > > >> > ________________________________

> > > > > >> > From: Valarie <val@>

> > > > > >> > hyperaldosteronism

> > > > > >> > Sent: Thu, February 25, 2010 1:15:52 PM

> > > > > >> > Subject: RE: new here

> > > > > >> >

> > > > > >> >

> > > > > >> > If your aldo/renin ratio is 1.86, you probably donââ

> > ‚¬â„¢t

> > > > have PA

> > > > > >> > unless you are using a different definition than we are

> > > > familiar

> > > > > >> with. ARR > 20 or 30 is usually suspect for PA.

> > > > > >> >

> > > > > >> > Val

> > > > > >> >

> > > > > >> >

> > > > > >> > From:hyperaldosteronism

> > > > > >> > [mailto:hyperaldost eronism@gro ups.com] On Behalf Of

> > > > Vicki

> > > > > >> Ritchie

> > > > > >> >

> > > > > >> > Thanks

> > > > > >> > for the response Val. My Aldo/renin ratio was 1.86

> > > > > >> > I am

> > > > > >> > pretty new to all this so I am kinda learning as I

> > > > > >> > go. I will be rechecked for Aldo renin on March 3rd and

> > if I am

> > > > > >> diagnosed with hyperaldo, I will have a 4 hour salt test on

> > march

> > > > > >> 9th. My

> > > > > >> > doc is at the Cleveland Clinic.

> > > > > >> >

> > > > > >>

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Hi!

Welcome Cheryl.  You couldn't find a better place!  I am not that new, but

since I joined this group I have learned a lot from all the wonderful parents

and their experiences with their children.  You will have a lot of support,

great ideas, and most of all encouragement. 

Wish you all the best and enjoy your pregnancy.

Bonnie (Mom to Ana 17 years with DS)

from Belgium

--- El vie 5-mar-10, Cheryl TRAVIS <bossymom1969@...> escribió:

De:: Cheryl TRAVIS <bossymom1969@...>

Asunto: New Here

A: " downs group " < >

Fecha: viernes, 5 de marzo de 2010, 19:43

 

hi my name is Cheryl and I am currently 20 weeks pregnant with a little

girl, whom has been diagnosed with Downs Syndrome. My hubby and I are doing alot

of reading, but to me alot of what we need or want to know you can only learn

from other parents/care takers with hands on experience. At first I had friends

telling me how sorry they were, like we were handed a death sentence. I did

finally loose it and tell them all , I don't need sorry. What we need is

encouragement and positive vibes. If they can not do that, it was nice knowing

them. Our focus is on the little one and making sure she has a full life. From

the postings that I have read so far, and the one I just read I am really

encouraged! We go in on the 22 for the fetal echo to make sure all is good with

her heart. and if not where we go from there. We also have four other children

ages,23 years, 21 years,15 years and 13 years old. This is going to be our

second girl! Right now we are trying

to

figure out what medical we are going to be able to get for her!

http://www.usgennet .org/usa/ ok/county/ muskogee/ cemeteries/ ceml_list. htm

http://freepages. genealogy. rootsweb. ancestry. com/~mysurnamere searches/

sanbernardino. htm

http://freepages. genealogy. rootsweb. ancestry. com/~unioniowa/

[Guest guest]

thanks for the nice welcome! So far I have thoroughly enjoyed the emails that

have come through so far!

http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm

http://freepages.genealogy.rootsweb.ancestry.com/~mysurnameresearches/sanbernard\

ino.htm

http://freepages.genealogy.rootsweb.ancestry.com/~unioniowa/

From: B. <bonniand@...>

Subject: Re: New Here

" downs group " < >, bossymom1969@...

Date: Friday, March 5, 2010, 10:53 AM

Hi!

Welcome Cheryl.  You couldn't find a better place!  I am not that new, but

since I joined this group I have learned a lot from all the wonderful parents

and their experiences with their children.  You will have a lot of support,

great ideas, and most of all encouragement. 

Wish you all the best and enjoy your pregnancy.

Bonnie (Mom to Ana 17 years with DS)

from Belgium

--- El vie 5-mar-10, Cheryl TRAVIS <bossymom1969@...> escribió:

De:: Cheryl TRAVIS <bossymom1969@...>

Asunto: New Here

A: " downs group " < >

Fecha: viernes, 5 de marzo de 2010, 19:43

 

hi my name is Cheryl and I am currently 20 weeks pregnant with a little

girl, whom has been diagnosed with Downs Syndrome. My hubby and I are doing alot

of reading, but to me alot of what we need or want to know you can only learn

from other parents/care takers with hands on experience. At first I had friends

telling me how sorry they were, like we were handed a death sentence. I did

finally loose it and tell them all , I don't need sorry. What we need is

encouragement and positive vibes. If they can not do that, it was nice knowing

them. Our focus is on the little one and making sure she has a full life. From

the postings that I have read so far, and the one I just read I am really

encouraged! We go in on the 22 for the fetal echo to make sure all is good with

her heart. and if not where we go from there. We also have four other children

ages,23 years, 21 years,15 years and 13 years old. This is going to be our

second girl! Right now we are

trying to

figure out what medical we are going to be able to get for her!

http://www.usgennet .org/usa/ ok/county/ muskogee/ cemeteries/ ceml_list. htm

http://freepages. genealogy. rootsweb. ancestry. com/~mysurnamere searches/

sanbernardino. htm

http://freepages. genealogy. rootsweb. ancestry. com/~unioniowa/

[Guest guest]

Granny,

thanks for the very nice email, I know I am going to be educating alot of

ignorant people. I am not one to sit back and let the little ones to be picked

on. I do know I am going to have to find a lot of patience, something I was not

born with. I have seen so many postings of praise and the hard times that come

with  having a special needs child. I totally blamed myself at first for all

that was going on, but from what I have read it has nothing to do with age. I

saw one girl 15 when she got pregnant and 16 when she had her son and he has

downs too. then I found this book on amazon that I want to order that seems to

stop laying blame on one partner or the other. Are there certain books that the

board likes more then the others?

 

hi my name is Cheryl and I am currently 20 weeks pregnant with a little girl,

whom has been diagnosed with Downs Syndrome. My hubby and I are doing alot of

reading, but to me alot of what we need or want to know you can only learn from

other parents/care takers with hands on experience. At first I had friends

telling me how sorry they were, like we were handed a death sentence. I did

finally loose it and tell them all , I don't need sorry. What we need is

encouragement and positive vibes. If they can not do that, it was nice knowing

them. Our focus is on the little one and making sure she has a full life. From

the postings that I have read so far, and the one I just read I am really

encouraged! We go in on the 22 for the fetal echo to make sure all is good with

her heart. and if not where we go from there. We also have four other children

ages,23 years, 21 years,15 years and 13 years old. This is going to be our

second girl! Right now we are trying to

figure out what medical we are going to be able to get for her!

http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm

http://freepages.genealogy.rootsweb.ancestry.com/~mysurnameresearches/sanbernard\

ino.htm

http://freepages.genealogy.rootsweb.ancestry.com/~unioniowa/

[Guest guest]

Again thanks for the nice response! I know now that she is a baby no matter

what, that downs is just another thing that makes her special. I was really

thinking of getting a shirt when she was born stating " don't stare at us, just

ask us if you want to know more " My hubby says knowing you, you would get one!

lol

From: lyndara@... <lyndara@...>

Subject: Re: New Here

bossymom1969@...

Date: Friday, March 5, 2010, 10:59 AM

Hi Cheryl

Congrads on your pregnancy. My daughter is 18 this April she is very healthy and

enjoys life to the fullest. Most important thing I can pass along just remember

she is a baby not a syndrome. Sometimes in the beginning we get hung up with the

syndrome and forget to enjoy the baby.

Get your early intervention started as soon as possible and look into the home

and community waivers that are available in your state and get her on the

waiting lists. Praying that heart echo is negative for her. Praying also for an

uneventful pregnancySent from my Verizon Wireless BlackBerryFrom: Cheryl TRAVIS

<bossymom1969@...>

Date: Fri, 5 Mar 2010 10:43:38 -0800 (PST)downs

group< >Subject: New Here

 

hi my name is Cheryl and I am currently 20 weeks pregnant with a little

girl, whom has been diagnosed with Downs Syndrome. My hubby and I are doing alot

of reading, but to me alot of what we need or want to know you can only learn

from other parents/care takers with hands on experience. At first I had friends

telling me how sorry they were, like we were handed a death sentence. I did

finally loose it and tell them all , I don't need sorry. What we need is

encouragement and positive vibes. If they can not do that, it was nice knowing

them. Our focus is on the little one and making sure she has a full life. From

the postings that I have read so far, and the one I just read I am really

encouraged! We go in on the 22 for the fetal echo to make sure all is good with

her heart. and if not where we go from there. We also have four other children

ages,23 years, 21 years,15 years and 13 years old. This is going to be our

second girl! Right now we are trying

to

figure out what medical we are going to be able to get for her!

http://www.usgennet .org/usa/ ok/county/ muskogee/ cemeteries/ ceml_list. htm

http://freepages. genealogy. rootsweb. ancestry. com/~mysurnamere searches/

sanbernardino. htm

http://freepages. genealogy. rootsweb. ancestry. com/~unioniowa/

[Guest guest]

I remember when my little boy (4) was born and we got his diagnosis (at 6

mos!)....an old friend met me on the street and was genuinely distraught, and

" I'm so sorry about the baby " I thought something had happened that I wasn't

aware of! I was so startled by her response, but have learned to just simply

answer people to not be sorry, heavens, he's the BEST! Enjoy your special gift

and know that you were chosen as her parents, what a great deal for you!

> lyndara@...;

> From: bossymom1969@...

> Date: Fri, 5 Mar 2010 11:14:14 -0800

> Subject: Re: New Here

>

> Again thanks for the nice response! I know now that she is a baby no matter

what, that downs is just another thing that makes her special. I was really

thinking of getting a shirt when she was born stating " don't stare at us, just

ask us if you want to know more " My hubby says knowing you, you would get one!

lol

>

>

>

>

>

>

>

>

> From: lyndara@... <lyndara@...>

> Subject: Re: New Here

> bossymom1969@...

> Date: Friday, March 5, 2010, 10:59 AM

>

>

>

>

>

>

>

> Hi Cheryl

> Congrads on your pregnancy. My daughter is 18 this April she is very healthy

and enjoys life to the fullest. Most important thing I can pass along just

remember she is a baby not a syndrome. Sometimes in the beginning we get hung up

with the syndrome and forget to enjoy the baby.

>

> Get your early intervention started as soon as possible and look into the home

and community waivers that are available in your state and get her on the

waiting lists. Praying that heart echo is negative for her. Praying also for an

uneventful pregnancySent from my Verizon Wireless BlackBerryFrom: Cheryl TRAVIS

<bossymom1969@...>

> Date: Fri, 5 Mar 2010 10:43:38 -0800 (PST)downs

group< >Subject: New Here

>

>

>

>

>

>

>

>

>

>

>

> hi my name is Cheryl and I am currently 20 weeks pregnant with a little girl,

whom has been diagnosed with Downs Syndrome. My hubby and I are doing alot of

reading, but to me alot of what we need or want to know you can only learn from

other parents/care takers with hands on experience. At first I had friends

telling me how sorry they were, like we were handed a death sentence. I did

finally loose it and tell them all , I don't need sorry. What we need is

encouragement and positive vibes. If they can not do that, it was nice knowing

them. Our focus is on the little one and making sure she has a full life. From

the postings that I have read so far, and the one I just read I am really

encouraged! We go in on the 22 for the fetal echo to make sure all is good with

her heart. and if not where we go from there. We also have four other children

ages,23 years, 21 years,15 years and 13 years old. This is going to be our

second girl! Right now we are trying

> to

>

> figure out what medical we are going to be able to get for her!

>

>

>

> http://www.usgennet .org/usa/ ok/county/ muskogee/ cemeteries/ ceml_list. htm

>

>

>

> http://freepages. genealogy. rootsweb. ancestry. com/~mysurnamere searches/

sanbernardino. htm

>

>

>

> http://freepages. genealogy. rootsweb. ancestry. com/~unioniowa/

>

>

>

>

[Guest guest]

Welcome Cheryl. I, too, found out that my son was going to have DS before he

was born. My son is 11 now and a force of nature. The biggest potential issue

is heart defects, but as my son's pediatric cardiologist told me before he was

born, there's almost no heart problem caused by the extra chromosone that they

can't fix today. I had multiple fetal echo cardiograms before he was born to

make sure everything was developing well, He arrived 3 weeks early with a

slight VSD (ventricular septal defect), hypertrophic right ventricle (due in

part to my gestational diabetes - a little more common in mom's carrying a baby

with DS) and a PDA (patent ductus arteriosis). The first two conditions

resolved on their own in his first six months. The PDA was closed when he was

16 months old, by an overnight procedure -- was much harder on me than him.

I'll never forget trying to stop him from jumping up and down in his crib as

soon as the anesthesia wore off.

I have to say that the delivery room was a very happy place. All the doctors

and nurses were prepared ahead of time. I had adjusted so they were very

relaxed. He arrived hale and hearty with Apgars of 9/9. There were at least 4

pediatric residents, fellows or interns for him and just 2 doctors for me. They

put him in the NICU because I had gestational diabetes and shot a temperature

during delivery. At 7lbs 7oz he was the jolly green baby among the premies.

The nurses paid lots of attention to him because he was in great shape, they

could pick him up and walk around with him. I pumped breast milk and brought it

in. He had to stay in the NICU for 9 days.

So for now try and get some sleep. Relax and try not to worry. What's her

name? If you want, let us know where you live so we can recommend resources.

Your daughter is a gift. UNfortunately not everyone understands.

Kathy, Liam's mom

New Here

hi my name is Cheryl and I am currently 20 weeks pregnant with a little girl,

whom has been diagnosed with Downs Syndrome. My hubby and I are doing alot of

reading, but to me alot of what we need or want to know you can only learn from

other parents/care takers with hands on experience. At first I had friends

telling me how sorry they were, like we were handed a death sentence. I did

finally loose it and tell them all , I don't need sorry. What we need is

encouragement and positive vibes. If they can not do that, it was nice knowing

them. Our focus is on the little one and making sure she has a full life. From

the postings that I have read so far, and the one I just read I am really

encouraged! We go in on the 22 for the fetal echo to make sure all is good with

her heart. and if not where we go from there. We also have four other children

ages,23 years, 21 years,15 years and 13 years old. This is going to be our

second girl! Right now we are trying to

figure out what medical we are going to be able to get for her!

http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm

http://freepages.genealogy.rootsweb.ancestry.com/~mysurnameresearches/sanbernard\

ino.htm

http://freepages.genealogy.rootsweb.ancestry.com/~unioniowa/

[Guest guest]

Congratualtion Cheryl!  A new baby is a reason to celebrate here.  My son is 9

and we adopted him.  He is our special angel and I feel honored that God

allowed us to parent him.  He makes us laugh every single day with his sunny

and funny outlooks. I also have 4 other children 34, 32, 24 and almost 15 and so

have done a lot of parenting.  You will enjoy this little bit of sunshine in

your lives more than you can even imagine right now.  Love her and treat her as

you did your other 4 and you will have no problems.  Your gut instinct will

tell you what she needs.  Of course there is early intervention to access to

dstart her on the right road if you want.  To be quite honest I think if I had

it to do all over again I might just have had the physical therapist come. 

Really raising your new little one is the same as your other four.  You ut in

the time and energy with her and you will get back so much more than you put

in.  Be encoraged because there is much to be encouraged about.  My husband

and I say all the time that God let us in on a secret that others just have no

clue about.  You just wait and see if I am not right!  Keep us all informed. 

We will be as excited as you are when your big day arrives.  Welcome!!

Loree

New Here

  hi my name is Cheryl and I am currently 20 weeks pregnant with a little girl,

whom has been diagnosed with Downs Syndrome. My hubby and I are doing alot of

reading, but to me alot of what we need or want to know you can only learn from

other parents/care takers with hands on experience. At first I had friends

telling me how sorry they were, like we were handed a death sentence. I did

finally loose it and tell them all , I don't need sorry. What we need is

encouragement and positive vibes. If they can not do that, it was nice knowing

them. Our focus is on the little one and making sure she has a full life. From

the postings that I have read so far, and the one I just read I am really

encouraged! We go in on the 22 for the fetal echo to make sure all is good with

her heart. and if not where we go from there. We also have four other children

ages,23 years, 21 years,15 years and 13 years old. This is going to be our

second girl! Right now we are trying to

figure out what medical we are going to be able to get for her!

http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm

http://freepages.genealogy.rootsweb.ancestry.com/~mysurnameresearches/sanbernard\

ino.htm

http://freepages.genealogy.rootsweb.ancestry.com/~unioniowa/

[Guest guest]

Welcome Cheryl,

You made a wise choice to get on this listserv. You'll meet some of the

greatest most supportive people there are.

You will learn that there is no right or wrong way to raise, educate, potty

train your child. You will learn that your child is an individual that is a

child first, a girl second and oh yes, by the way she does have down syndrome.

I say this NOT because you should be in denial, but because that is the way you

should look at your daughter. If you treat her as a normal part of your family,

others will also (for the

most part).

Also, you will learn that of all the people you meet and need to educate or

steer clear from, there are many more there to help you, support you, and

totally accept your daughter. You will find a great new set of friends.

I am the mother of 9, guardian of three and currently have 9 children at home.

I have a 7, 19, and 48 year old with down syndrome. They are all as different

as night and day and very happy and successful in their lives as we could ask.

Good luck on the pregnancy and keep us posted.

[Guest guest]

I know when they told me that, I was like she isn't dieing!~ She is going to be

special in all ways! they are still stuck back in the dark ages that is for

sure.

http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm

http://freepages.genealogy.rootsweb.ancestry.com/~mysurnameresearches/sanbernard\

ino.htm

http://freepages.genealogy.rootsweb.ancestry.com/~unioniowa/

>

> From: lyndara@... <lyndara@...>

> Subject: Re: New Here

> bossymom1969@...

> Date: Friday, March 5, 2010, 10:59 AM

>

>

>

>

>

>

>

> Hi Cheryl

> Congrads on your pregnancy. My daughter is 18 this April she is very healthy

and enjoys life to the fullest. Most important thing I can pass along just

remember she is a baby not a syndrome. Sometimes in the beginning we get hung up

with the syndrome and forget to enjoy the baby.

>

> Get your early intervention started as soon as possible and look into the home

and community waivers that are available in your state and get her on the

waiting lists. Praying that heart echo is negative for her. Praying also for an

uneventful pregnancySent from my Verizon Wireless BlackBerryFrom: Cheryl TRAVIS

<bossymom1969@...>

> Date: Fri, 5 Mar 2010 10:43:38 -0800 (PST)downs

group< >Subject: New Here

>

>  

>

>

>

>

>

>

>

>

>

> hi my name is Cheryl and I am currently 20 weeks pregnant with a little girl,

whom has been diagnosed with Downs Syndrome. My hubby and I are doing alot of

reading, but to me alot of what we need or want to know you can only learn from

other parents/care takers with hands on experience. At first I had friends

telling me how sorry they were, like we were handed a death sentence. I did

finally loose it and tell them all , I don't need sorry. What we need is

encouragement and positive vibes. If they can not do that, it was nice knowing

them. Our focus is on the little one and making sure she has a full life. From

the postings that I have read so far, and the one I just read I am really

encouraged! We go in on the 22 for the fetal echo to make sure all is good with

her heart. and if not where we go from there. We also have four other children

ages,23 years, 21 years,15 years and 13 years old. This is going to be our

second girl! Right now we are trying

> to

>

> figure out what medical we are going to be able to get for her!

>

>

>

> http://www.usgennet .org/usa/ ok/county/ muskogee/ cemeteries/ ceml_list. htm

>

>

>

> http://freepages. genealogy. rootsweb. ancestry. com/~mysurnamere searches/

sanbernardino. htm

>

>

>

> http://freepages. genealogy. rootsweb. ancestry. com/~unioniowa/

>

>

>

>

[Guest guest]

From what I have been reading it matches to a T what you went through minus the

GD. I haven't had that diagnosed as of yet and don't expect too but you never

know!

I picked a boys name since i have three so I assumed this was a boy too, boys

name was going to be Peyton Wayne, but now I am going with Peyton ,

for some reason that Peyton stuck in my head and hubby and I have always liked

the name . Actually last night was the first night in a long time that I

didn't wake up twice to go to the bathroom! I got up this morning and was like

wow did I really sleep through the night! lol

From: mom2lfm@... <mom2lfm@...>

Subject: Re: New Here

bossymom1969@...,

Date: Friday, March 5, 2010, 11:47 AM

Welcome Cheryl.  I, too, found out that my son was going to have DS before he

was born.  My son is 11 now and a force of nature.  The biggest potential

issue is heart defects, but as my son's pediatric cardiologist told me before he

was born, there's almost no heart problem caused by the extra chromosone that

they can't fix today.  I had multiple fetal echo cardiograms before he was born

to make sure everything was developing well,  He arrived 3 weeks early with a

slight VSD (ventricular septal defect), hypertrophic right ventricle (due in

part to my gestational diabetes - a little more common in mom's carrying a baby

with DS) and a PDA (patent ductus arteriosis).  The first two conditions

resolved on their own in his first six months.  The PDA was closed when he was

16 months old, by an overnight procedure -- was much harder on me than him. 

I'll never forget trying to stop him from jumping up and down in his crib as

soon as the anesthesia wore

off. 

 

I have to say that the delivery room was a very happy place.  All the doctors

and nurses were prepared ahead of time.  I had adjusted so they were very

relaxed.  He arrived hale and hearty with Apgars of 9/9.  There were at least

4 pediatric residents, fellows or interns for him and just 2 doctors for me.

They put him in the NICU because I had gestational diabetes and shot a

temperature during delivery.  At 7lbs 7oz he was the jolly green baby among the

premies.  The nurses paid lots of attention to him because he was in great

shape, they could pick him up and walk around with him.  I pumped breast milk

and brought it in.  He had to stay in the NICU for 9 days. 

 

So for now try and get some sleep.  Relax and try not to worry.  What's her

name?  If you want, let us know where you live so we can recommend resources. 

Your daughter is a gift.  UNfortunately not everyone understands.

Kathy, Liam's mom 

New Here

 

hi my name is Cheryl and I am currently 20 weeks pregnant with a little girl,

whom has been diagnosed with Downs Syndrome. My hubby and I are doing alot of

reading, but to me alot of what we need or want to know you can only learn from

other parents/care takers with hands on experience. At first I had friends

telling me how sorry they were, like we were handed a death sentence. I did

finally loose it and tell them all , I don't need sorry. What we need is

encouragement and positive vibes. If they can not do that, it was nice knowing

them. Our focus is on the little one and making sure she has a full life. From

the postings that I have read so far, and the one I just read I am really

encouraged! We go in on the 22 for the fetal echo to make sure all is good with

her heart. and if not where we go from there. We also have four other children

ages,23 years, 21 years,15 years and 13 years old. This is going to be our

second girl! Right now we are trying to

figure out what medical we are going to be able to get for her!

http://www.usgennet .org/usa/ ok/county/ muskogee/ cemeteries/ ceml_list. htm

http://freepages. genealogy. rootsweb. ancestry. com/~mysurnamere searches/

sanbernardino. htm

http://freepages. genealogy. rootsweb. ancestry. com/~unioniowa/

[Guest guest]

I will say this is a GREAT  GROUP. I was telling my hubby that I knew in my gut

that she had downs before they told me. For some  reason When I was 8 weeks

pregnant and finally able to leave my bed! Every where I turned or if I was

watching tv there was a downs child! God was preparing me I know. But when they

told me that I tested high for Trisomy 13 and 18 I was scared and floored at the

same time! Sleep was not in the books. Hubby and I decided if she came back with

Downs we were going to have her no matter what. It was the others that we didn't

want to put her through that pain. So yes we were very blessed to get the

results that we did get. Hubby has been great through this whole pregnancy so

far, he has gone to all the appointments. On one he had to leave early and that

was the one where I got the 13 and 18 results, he swore he won't leave me again.

And he hasn't, he has even gotten in his head that I am going too pump my breast

so that at night

she is sleeping with him. He said he would go to the couch, and if she woke up

he was laying her on his chest! lol lol Now mind you this is the same man that

didn't go to any of the appointments with the others! Nor was he there when our

son was born, our daughters birth scared him good! She was 8 weeks early, but

weighed in at 4 lbs 6oz. and came home at 4 pounds with no problems! So we are

on the right road at this time!

http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm

http://freepages.genealogy.rootsweb.ancestry.com/~mysurnameresearches/sanbernard\

ino.htm

http://freepages.genealogy.rootsweb.ancestry.com/~unioniowa/

From: loree5@... <loree5@...>

Subject: Re: New Here

bossymom1969@...,

Date: Friday, March 5, 2010, 12:02 PM

Congratualtion Cheryl!  A new baby is a reason to celebrate here.  My son is 9

and we adopted him.  He is our special angel and I feel honored that God

allowed us to parent him.  He makes us laugh every single day with his sunny

and funny outlooks. I also have 4 other children 34, 32, 24 and almost 15 and so

have done a lot of parenting.  You will enjoy this little bit of sunshine in

your lives more than you can even imagine right now.  Love her and treat her as

you did your other 4 and you will have no problems.  Your gut instinct will

tell you what she needs.  Of course there is early intervention to access to

dstart her on the right road if you want.  To be quite honest I think if I had

it to do all over again I might just have had the physical therapist come. 

Really raising your new little one is the same as your other four.  You ut in

the time and energy with her and you will get back so much more than you put

in.  Be encoraged because

there is much to be encouraged about.  My husband and I say all the time that

God let us in on a secret that others just have no clue about.  You just wait

and see if I am not right!  Keep us all informed.  We will be as excited as

you are when your big day arrives.  Welcome!!

Loree

New Here

 

hi my name is Cheryl and I am currently 20 weeks pregnant with a little girl,

whom has been diagnosed with Downs Syndrome. My hubby and I are doing alot of

reading, but to me alot of what we need or want to know you can only learn from

other parents/care takers with hands on experience. At first I had friends

telling me how sorry they were, like we were handed a death sentence. I did

finally loose it and tell them all , I don't need sorry. What we need is

encouragement and positive vibes. If they can not do that, it was nice knowing

them. Our focus is on the little one and making sure she has a full life. From

the postings that I have read so far, and the one I just read I am really

encouraged! We go in on the 22 for the fetal echo to make sure all is good with

her heart. and if not where we go from there. We also have four other children

ages,23 years, 21 years,15 years and 13 years old. This is going to be our

second girl! Right now we are trying to

figure out what medical we are going to be able to get for her!

http://www.usgennet .org/usa/ ok/county/ muskogee/ cemeteries/ ceml_list. htm

http://freepages. genealogy. rootsweb. ancestry. com/~mysurnamere searches/

sanbernardino. htm

http://freepages. genealogy. rootsweb. ancestry. com/~unioniowa/

[Guest guest]

Congratulations Cherly!!! :-)

I didn't know before my now 9 year old daughter was born, but that was our

choice since I had complications and didn't want to risk losing her just to

find out.

Don't believe much the 'experts' have to say regarding the DS. Expect her

to do the same things as any other child, just maybe on a different

schedule and in a different way.

Mine is on a typical cheer team, a team for differently abled kids, just

got back from a trip to Florida with us where she held a tarantula, an

alligator, a couple of snakes, a cockatil and fought off greedy seagulls

to 'save' her 27 year old sister! LOL

Tonight we went to a b-day party at a water park with her typical peers,

and I didn't have to put on my swim suit!! Now she is at the sleep over. :-)

No one can say how your child is going to grow and develop, just as they

could not predict how your other children would.

On Mar 5, 2010 9:08pm, Cheryl TRAVIS <bossymom1969@...> wrote:

> I know when they told me that, I was like she isn't dieing!~ She is going

> to be special in all ways! they are still stuck back in the dark ages

> that is for sure.

> http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm

>

http://freepages.genealogy.rootsweb.ancestry.com/~mysurnameresearches/sanbernard\

ino.htm

> http://freepages.genealogy.rootsweb.ancestry.com/~unioniowa/

>

> >

> > From: lyndara@... lyndara@...>

> > Subject: Re: New Here

> > bossymom1969@...

> > Date: Friday, March 5, 2010, 10:59 AM

> >

> >

> >

> >

> >

> >

> >

> > Hi Cheryl

> > Congrads on your pregnancy. My daughter is 18 this April she is very

> healthy and enjoys life to the fullest. Most important thing I can pass

> along just remember she is a baby not a syndrome. Sometimes in the

> beginning we get hung up with the syndrome and forget to enjoy the baby.

> >

> > Get your early intervention started as soon as possible and look into

> the home and community waivers that are available in your state and get

> her on the waiting lists. Praying that heart echo is negative for her.

> Praying also for an uneventful pregnancySent from my Verizon Wireless

> BlackBerryFrom: Cheryl TRAVIS bossymom1969@...>

> > Date: Fri, 5 Mar 2010 10:43:38 -0800 (PST)downs

> group >Subject: New Here

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > hi my name is Cheryl and I am currently 20 weeks pregnant with a little

> girl, whom has been diagnosed with Downs Syndrome. My hubby and I are

> doing alot of reading, but to me alot of what we need or want to know you

> can only learn from other parents/care takers with hands on experience.

> At first I had friends telling me how sorry they were, like we were

> handed a death sentence. I did finally loose it and tell them all , I

> don't need sorry. What we need is encouragement and positive vibes. If

> they can not do that, it was nice knowing them. Our focus is on the

> little one and making sure she has a full life. From the postings that I

> have read so far, and the one I just read I am really encouraged! We go

> in on the 22 for the fetal echo to make sure all is good with her heart.

> and if not where we go from there. We also have four other children

> ages,23 years, 21 years,15 years and 13 years old. This is going to be

> our second girl! Right now we are trying

> > to

> >

> > figure out what medical we are going to be able to get for her!

> >

> >

> >

> > http://www.usgennet .org/usa/ ok/county/ muskogee/ cemeteries/

> ceml_list. htm

> >

> >

> >

> > http://freepages. genealogy. rootsweb. ancestry. com/~mysurnamere

> searches/ sanbernardino. htm

> >

> >

> >

> > http://freepages. genealogy. rootsweb. ancestry. com/~unioniowa/

> >

> >

> >

> >

[Guest guest]

wow you have your hands full with that many children! I know all well worth it!

And I do plan only having positive people around me and our daughter. If they

want to be negative there is the door. thanks for the email. I see that I joined

the wright group!

http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm

http://freepages.genealogy.rootsweb.ancestry.com/~mysurnameresearches/sanbernard\

ino.htm

http://freepages.genealogy.rootsweb.ancestry.com/~unioniowa/

From: and FRANK <michdock@...>

Subject: Re: New Here

bossymom1969@..., " downs group " < >

Date: Friday, March 5, 2010, 12:51 PM

Welcome Cheryl,

You made a wise choice to get on this listserv.  You'll meet some of

the greatest most supportive people there are.

You will learn that there is no right or wrong way to raise, educate, potty

train your child.  You will learn that your child is an individual that is

a child first, a girl second and oh yes, by the way she does have down

syndrome.  I say this NOT because you should be in denial, but because that

is the way you should look at your daughter.  If you treat her as a normal

part of your family, others will also (for the

most part).

Also, you will learn that of all the people you meet and need to educate or

steer clear from, there are many more there to help you, support you, and

totally accept your daughter.  You will find a great new set of friends.

I am the mother of 9, guardian of three and currently have 9 children at

home.  I have a 7, 19, and 48 year old with down syndrome.  They are

all as different as night and day and very happy and successful in their lives

as we could ask.

Good luck on the pregnancy and keep us posted.

[Guest guest]

That's th4 way Goid works!  When we were praying about adoptimg a child with

DS... God brought before us probably a half dozen children with DS & gt;  Ih ad

never before nor since seen so many children with DS cross my path.   There

was no doubt God was bringing them into our path to show us his way for us and

so I understand exactly what you are saying.  God has a special nplan for you

and your little girl and I will be veru interested to see how it all unfolds.

 

Loree

New Here

  hi my name is Cheryl and I am currently 20 weeks pregnant with a little girl,

whom has been diagnosed with Downs Syndrome. My hubby and I are doing alot of

reading, but to me alot of what we need or want to know you can only learn from

other parents/care takers with hands on experience. At first I had friends

telling me how sorry they were, like we were handed a death sentence. I did

finally loose it and tell them all , I don't need sorry. What we need is

encouragement and positive vibes. If they can not do that, it was nice knowing

them. Our focus is on the little one and making sure she has a full life. From

the postings that I have read so far, and the one I just read I am really

encouraged! We go in on the 22 for the fetal echo to make sure all is good with

her heart. and if not where we go from there. We also have four other children

ages,23 years, 21 years,15 years and 13 years old. This is going to be our

second girl! Right now we are trying to

figure out what medical we are going to be able to get for her!

http://www.usgennet .org/usa/ ok/county/ muskogee/ cemeteries/ ceml_list. htm

http://freepages. genealogy. rootsweb. ancestry. com/~mysurnamere searches/

sanbernardino. htm

http://freepages. genealogy. rootsweb. ancestry. com/~unioniowa/

[Guest guest]

Welcome to the group. My son with ds is now a young adult and doing fine.

You mentioned people's reactions. Don't feel like you need to tell anyone,

unless YOU want to. After you have the baby and they see you loving and

accepting her, most people will take the clues and react the same way.

Be sure to feel free to express whatever or ask anything you want to the

group....It's a large group and several have probably been through whatever it

is.

Best wishes to you and your family.

Shirley, mom to Josiah, 21yo

[Guest guest]

Hi Cheryl,

Congratulations on your pregnancy and so love your attitude. This group is

a wealth of knowledge and friendship - I wish it was around when my son was

little. Trent is now 25 yo and is the third of four. Of all the

wonderful 'nice' things strangers would say on my telling them of Trent's

diagnosis,(which I got really tired of - think 'they are such loving

children) one old lady told me she had a brother with DS and she believed

strongly that there was someone looking over them. That was the truest

thing anyone said to me in those early days.

Trent is a person with low verbal skills but can communicate very well, he

is also very good at mimicking others. He is very clever and loves to be

independent, he really does not like being in groups of others with 'strong'

disabilities, maybe that is because he likes to be centre of attention.

When people comment on things such as - it must be so hard, I feel for you

etc. - I usually remind them either that when you consider time away from

the house with school/program and travelling, meal times and bed times, I

don't actually have him around that many hours of the day and when he is, he

is quite capable of amusing himself like any other young adult. Okay, when

he was younger, we use to keep a closer eye on him but that was probably

more for our own sense of mind than his safety.

I also remind people, that Trent is a male and a lymer male at that, the DS

makes up about 1% of who he really is.

Keep smiling

Jan, mother of Trent 25yo w/DS from the LandDownUnder

From: [mailto: ] On Behalf

Of Cheryl TRAVIS

Sent: Saturday, 6 March 2010 5:44 AM

downs group

Subject: New Here

hi my name is Cheryl and I am currently 20 weeks pregnant with a little

girl, whom has been diagnosed with Downs Syndrome. My hubby and I are doing

alot of reading, but to me alot of what we need or want to know you can only

learn from other parents/care takers with hands on experience. At first I

had friends telling me how sorry they were, like we were handed a death

sentence. I did finally loose it and tell them all , I don't need sorry.

What we need is encouragement and positive vibes. If they can not do that,

it was nice knowing them. Our focus is on the little one and making sure she

has a full life. From the postings that I have read so far, and the one I

just read I am really encouraged! We go in on the 22 for the fetal echo to

make sure all is good with her heart. and if not where we go from there. We

also have four other children ages,23 years, 21 years,15 years and 13 years

old. This is going to be our second girl! Right now we are trying to

figure out what medical we are going to be able to get for her!

http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm

http://freepages.genealogy.rootsweb.ancestry.com/~mysurnameresearches/sanber

nardino.htm

http://freepages.genealogy.rootsweb.ancestry.com/~unioniowa/

[Guest guest]

Hi Cheryl,

I just realized I've been with this group for 11+ years now... how did

that happen? Time really flies!

I am , mom to 3 teen/tween girls, so our house is loud and

emotional :-) I did know had DS before she was born, which

was good for us because as a scientist (in my former life, I've been a

SAHM for 11 years now!) I would have read and obsessed about everything,

and really, there are so many variables amongst children with DS, I

would have driven myself nuts for nothing! But, that's just me! Had

triple screen and it came out fine, I was (only) 34, so no more testing

needed (or so they thought!.) Now, although I had a stress-free

pregnancy, the delivery room was totally different from our first. No

one said anything, but we could tell immediately that something was

odd. Very stressful for 4-5 hours until someone finally spoke to us

(literally, we no one came in the room for hours except a quick check on

me, and had been whisked away for normal newborn stuff). So,

that part would have been a huge bonus if we'd known.

We were fortunate that does not have any of the more serious

health issues associated with DS. She has had her tonsils out and ear

tubes in, may have reflux, and wears glasses.. pretty easy to deal

with! She did have a little trouble breastfeeding with her suck:swallow

pattern mixed up, and did better with breast milk in a bottle where I

could easily let her suck a couple times then take the bottle out and

let her swallow. Once I figured that out, she was much happier! Pretty

much her entire baby-toddler years were quite similar to her sisters,

although at a slightly slower pace. We have always treated her just

like everyone else in the family, as much as possible, and just like

everyone else, she's got her quirks that we try and accommodate (just

like everyone else.) She likes her routines and rules, which I think

help her to be comfortable.

is now 12 and fully included in her neighborhood middle

school. This has been working well for her, and academically she does

fairly well... she really likes school, which helps. She also loves

computer and Wii games, watching her favorite TV shows and movies, and

playing basketball and soccer (both are challenger leagues, she doens't

like to get sweaty or bumped around, LOL.) She goes to Sunday school

and loves to sing, but it too shy to sing in a choir (but we are working

on that). This year she is going to be my co-teacher for Vacation Bible

School, since she's " aged out " of the classes, and she loves to play

with little kids, so we'll see how that goes this summer.

Enjoy your pregnancy and you will soon learn who is worth educating and

who is better left alone. We have been lucky that most of our friends

and family have been fabulous, and I really do think that for some

folks, they are just waiting to see your attitude/response to know what

to say or how to react to you/your daughter. I've found that many times

" beating them to the punch " smooths a potential awkward situation. For

example, when was a toddler and not walking at the " normal "

age, I would notice mom's staring at her at the play areas. I would

strike up a conversation with something like " you know, kids with Downs

often walk a little later than the other kids, but we're really proud of

, she's doing really well " or something like that... but I'm

pretty open, and it was easy for me to do that... I know that doesn't

work for everyone.

OK, too long, but I've got draft IEP goals for next week that I just got

today calling my name.... how long can I procrastinate?

, mom to (14), (12 DS), and Sammy(10)

On 3/5/2010 7:53 PM, Cheryl TRAVIS wrote:

>

> wow you have your hands full with that many children! I know all well

> worth it! And I do plan only having positive people around me and our

> daughter. If they want to be negative there is the door. thanks for

> the email. I see that I joined the wright group!

>

> http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm

<http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm>

>

>

http://freepages.genealogy.rootsweb.ancestry.com/~mysurnameresearches/sanbernard\

ino.htm

>

<http://freepages.genealogy.rootsweb.ancestry.com/%7Emysurnameresearches/sanbern\

ardino.htm>

>

> http://freepages.genealogy.rootsweb.ancestry.com/~unioniowa/

> <http://freepages.genealogy.rootsweb.ancestry.com/%7Eunioniowa/>

>

>

>

> From: and FRANK <michdock@... <mailto:michdock%40msn.com>>

> Subject: Re: New Here

> bossymom1969@... <mailto:bossymom1969%40sbcglobal.net>,

> " downs group " <

> <mailto:%40>>

> Date: Friday, March 5, 2010, 12:51 PM

>

> Welcome Cheryl,

> You made a wise choice to get on this listserv. You'll meet some of

> the greatest most supportive people there are.

> You will learn that there is no right or wrong way to raise, educate,

> potty

> train your child. You will learn that your child is an individual

> that is

> a child first, a girl second and oh yes, by the way she does have down

> syndrome. I say this NOT because you should be in denial, but because

> that

> is the way you should look at your daughter. If you treat her as a

> normal

> part of your family, others will also (for the

> most part).

> Also, you will learn that of all the people you meet and need to

> educate or

> steer clear from, there are many more there to help you, support you, and

> totally accept your daughter. You will find a great new set of friends.

>

> I am the mother of 9, guardian of three and currently have 9 children at

> home. I have a 7, 19, and 48 year old with down syndrome. They are

> all as different as night and day and very happy and successful in

> their lives

> as we could ask.

> Good luck on the pregnancy and keep us posted.

>

>

>

[Guest guest]

You have a very good point there! I am not going to tell anyone else. I was

trying to get a hold my grandparents to tell them but they don't return the

calls(they have always been that way) so now I am not going to say anything and

when they see her (they live in OK i live in CA) they will know then! To me she

is a living and breathing person no matter if she has the extra marker or not.

They (sono gram doctors) thought at 13 weeks she had downs so from then on we

knew we could be dealing with this. It was the blood work that scared us bad! At

my last ob appointment they wanted me to do the second blood work, I just looked

at the paper and said why? I already know what I need to know so it would be a

waste of money and time for all involved. As of right now I am not on the high

risk status yet~! they said they won't put me on high risk til they find out if

she has a problem with her heart. That is where we are at right now. At this

time I am making baby

quilts and can finally enjoy her being with me. With the placenta being in

front, it is hard for me to feel her. I mainly getting little jabs at the lower

part of my stomach on the right hand side. but she is still the size of a mango!

lol So I am sure when she get's bigger I will feel her more!

http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm

http://freepages.genealogy.rootsweb.ancestry.com/~mysurnameresearches/sanbernard\

ino.htm

http://freepages.genealogy.rootsweb.ancestry.com/~unioniowa/

From: cshos <cshos@...>

Subject: Re: New Here

Date: Friday, March 5, 2010, 8:14 PM

Welcome to the group.  My son with ds is now a young adult and doing fine.

You mentioned people's reactions.  Don't feel like you need to tell anyone,

unless YOU want to.  After you have the baby and they see you loving and

accepting her, most people will take the clues and react the same way. 

Be sure to feel free to express whatever or ask anything you want to the

group....It's a large group and several have probably been through whatever it

is.

Best wishes to you and your family. 

Shirley, mom to Josiah, 21yo

[Guest guest]

I think parents and grandparents and other family members are concerned about

us....that we will be ok and that we won't encounter serious problems in our

lives. I know I feel that way for my adult children. These desires for our

good may cause them to fear...and maybe act negatively.

The other thing I believe affects their attitude is the negative stereotypes

from the past. It hasn't been that long ago that sometimes when a child with ds

was born that he/she was whisked away to an institution and everyone was told

that the baby died.

Just our " example " educates people....and that's a wonderful thing.

I can see that you have NO problem accepting and loving her.....(and believe

me....loving them is no problem).

So glad you are a part of the group.

I live in OK also....

Shirley, mom to Josiah

Re: New Here

Date: Friday, March 5, 2010, 8:14 PM

Welcome to the group. My son with ds is now a young adult and doing fine.

You mentioned people's reactions. Don't feel like you need to tell anyone,

unless YOU want to. After you have the baby and they see you loving and

accepting her, most people will take the clues and react the same way.

Be sure to feel free to express whatever or ask anything you want to the

group....It's a large group and several have probably been through whatever it

is.

Best wishes to you and your family.

Shirley, mom to Josiah, 21yo

[Guest guest]

What you and the other poster says makes sense when it came to my sister n law.

But the grandparents only know that I am pregnant. I myself have not told them

that she has Downs. They have been this way my entire life, I call, very seldom

and I mean seldom do they ever call me. But I have to remember that they have

seven daughters, and then there are the 40 plus grandchildren and numerous great

and great great grandkids! So I have come to accept it. But once in awhile it

would be good to get the call from them. By the way I don't know if this makes a

difference but they are Pencostal Preachers! lol lol But I do remember when I

was about 8 or 9 years old they would stop by this assisted place and pick up

this man, (who had downs) and take him to church. I remember one time grandpa

make him get back out of the car since he would not behave (his words) and I

thought he was the meanest man on earth to do that!  I did find out later (like

in the last few

years) that this same guy was later hit by a car and passed away. But I told

grandpa that story of how mean I thought he was and he told me then it was

because he was bad mouthing someone? Any how . Yes this one is going to be loved

and for those who can't accept her family included they know where the door is.

We can do it, and we have plenty of friends whom are already making her

blankets! I started a quilt for her the other day , right now I am doing all the

embroidery on it!  That will keep me busy that is for sure. lol

http://www.usgennet.org/usa/ok/county/muskogee/cemeteries/ceml_list.htm

http://freepages.genealogy.rootsweb.ancestry.com/~mysurnameresearches/sanbernard\

ino.htm

http://freepages.genealogy.rootsweb.ancestry.com/~unioniowa/

  From: cshos <cshos@...>

  Subject: Re: New Here

 

  Date: Friday, March 5, 2010, 8:14 PM

  Welcome to the group.  My son with ds is now a young adult and doing fine.

  You mentioned people's reactions.  Don't feel like you need to tell anyone,

unless YOU want to.  After you have the baby and they see you loving and

accepting her, most people will take the clues and react the same way. 

  Be sure to feel free to express whatever or ask anything you want to the

group....It's a large group and several have probably been through whatever it

is.

  Best wishes to you and your family. 

  Shirley, mom to Josiah, 21yo

 

[Guest guest]

Tricia,

I've been at this for the past 6 years and here are a few of the important pieces of educational materials that i use all the time. Deane PeckMS,RD,LD/N.

From: Tricia Ruth <triciaruth38@...> Sent: Wed, March 17, 2010 1:19:27 PMSubject: New Here

Hello Everyone,

I have been a R.D. for 6 years and have been working with weight management and eating disorder patients. The hospital I work for is starting to do lap band and I am responsible for seeing the patients and putting together the nutrition education pieces. I really have no idea where to start or where I can find good resources. Any help/info you can give me would be great.

Thanks

Tricia

10 of 10 File(s)

Vegetarian Protein foods.doc

High Protein Snack List.rtf

Weight Loss Surgery Dietary Phases.doc

Protein Train.doc

Bariatric recommendations for protein,calories,fluids.rtf

High Protein Shakes-1.rtf

MIX & MATCH SMOOTHIES.doc

power point Preventing+or+Reversing+Weight+Regain.ppt

Bariatric Diet Phases for hospital.doc

Protein Sparing Diet with pictures.rtf