Re: Re: No Time to Relax

[Guest guest]

I do think that Gloria is on to something.  Most folks are thinking of those who

could work but don't want to. 

Legislators generally know better, although they are aware that there are a few

cheats.

I deeply believe that things will improve when the public is more aware, but I

also suspect that in many cases we are not making the clearest case for our

loved ones when we talk to the public.

What the public cares about, among other things, is its pocketbook.  I talk

about all the thousands of folks with severe disabilities who are at home with

elderly parents and no where to live.  I express concern that in the next 5-10

years the lack of housing will be on everyone's radar because the elderly

parents will be dead and the folks with severe disabilities will be wandering

the streets.

Yes, it can be painful to think that your child will not marry, go to college,

etc., but that doesn't create lots of empathy or concern.  (Everyone has their

own woes.)   Talking about being on duty 24/7 may work, but it takes an amazing

amount of time to explain to folks that in some cases, we are talking about

being available and vigilant to the level of intensity that they experienced

when their kids were infants and toddlers.   

Unless your family is destitute, I don't think that losing funding creates a

concern with the public, either.  What concerns them is their own money or a

social disaster.

A social disaster means people with severe disabilities and health problems

taking up lots of hospital or nursing home rooms because they have nowhere else

to live...and that means that there's no room for the public's parents.  A

social disaster means that all those autistic folks that the public shuns when

they see them out in public with their parents are NOW walking around the

downtown business districts or sleeping on park benches because their parents

are dead.

If the public is squeamish or uncomfortable dealing with our loved ones now,

they are about to get it 24/7 when there is no additional housing and their

parents are gone.

My son is employable, and I don't think he'll need much supervision in his

housing, so in my discussions with typical folks, I deliberately exclude my son

from the topic.  But there are folks who cannot be left alone, and they need a

place to live and some assistance to be safe.  That's where I want to start the

public conversation, not on funding, which hits people where they are sensitive.

-Gail

From: Gloria Kern <prentice50@...>

Subject: Re: No Time to Relax

IPADDUnite

Date: Wednesday, August 5, 2009, 12:19 PM

 

I also will use your questions, but agree with the idea that

it is society that we need to impact. The elected officials will understandably

have a hard time supporting issues that most of their constituency don't care

about. I don't know how we change that. It helps that more and more people

with disabilities are out and about, but most people I talk with can also tell

me stories about those who get benefits as individuals with disabilities and

they are not disabled to the extent of most of our individuals (ADHD is a

biggie, although it is my understanding that is not a disability thru SSI, but

people seem to get it). They fire back that they have to put their kids thru

college which costs more than caring for some of our kids. The only way I get

thru is by talking about the long term effects on the family, if there is

family.

I talk about how hopeless my life is, fearing what will happen to my daughter

when I am gone, about having to keep up " the face " for her sake and being pretty

much alone with no outlet (thank God for this group that I vent to sometimes!!!

). I talk about not having weddings, grandchildren, vacations. I talk about my

retirement which has been, and I suspect will never be, " golden " . The joy that

I am able to provide my daughter thru her support services and workers, and the

sprints of time they allow me to myself, are the only things keeping our heads

above water. Sometimes that strikes a cord to those who begrudge the help we

get, and see it as unnecessary. Yes we would have a roof (although somewhat

crooked) over our heads, and I would be able to feed us, but that would be about

it. I could not afford the services she gets - if I could find someone to

provide them, without the agencies. So when I get the chance I tell the story.

I'm sure some

will disagree with the pessimism I speak of, but this is my story. I still

pray to die with my daughter, even with " services " , because of the instability

of those services and the lack of foreseeable changes that are beneficial. I am

considering moving elsewhere even though that will mean starting over because I

just don't see changes coming and I am getting tired of banging my head against

a wall. Sorry if this is too depressing or offensive to anyone. Thanks for

letting me vent to the choir!!! Gloria

[Guest guest]

I do think that Gloria is on to something.  Most folks are thinking of those who

could work but don't want to. 

Legislators generally know better, although they are aware that there are a few

cheats.

I deeply believe that things will improve when the public is more aware, but I

also suspect that in many cases we are not making the clearest case for our

loved ones when we talk to the public.

What the public cares about, among other things, is its pocketbook.  I talk

about all the thousands of folks with severe disabilities who are at home with

elderly parents and no where to live.  I express concern that in the next 5-10

years the lack of housing will be on everyone's radar because the elderly

parents will be dead and the folks with severe disabilities will be wandering

the streets.

Yes, it can be painful to think that your child will not marry, go to college,

etc., but that doesn't create lots of empathy or concern.  (Everyone has their

own woes.)   Talking about being on duty 24/7 may work, but it takes an amazing

amount of time to explain to folks that in some cases, we are talking about

being available and vigilant to the level of intensity that they experienced

when their kids were infants and toddlers.   

Unless your family is destitute, I don't think that losing funding creates a

concern with the public, either.  What concerns them is their own money or a

social disaster.

A social disaster means people with severe disabilities and health problems

taking up lots of hospital or nursing home rooms because they have nowhere else

to live...and that means that there's no room for the public's parents.  A

social disaster means that all those autistic folks that the public shuns when

they see them out in public with their parents are NOW walking around the

downtown business districts or sleeping on park benches because their parents

are dead.

If the public is squeamish or uncomfortable dealing with our loved ones now,

they are about to get it 24/7 when there is no additional housing and their

parents are gone.

My son is employable, and I don't think he'll need much supervision in his

housing, so in my discussions with typical folks, I deliberately exclude my son

from the topic.  But there are folks who cannot be left alone, and they need a

place to live and some assistance to be safe.  That's where I want to start the

public conversation, not on funding, which hits people where they are sensitive.

-Gail

From: Gloria Kern <prentice50@...>

Subject: Re: No Time to Relax

IPADDUnite

Date: Wednesday, August 5, 2009, 12:19 PM

 

I also will use your questions, but agree with the idea that

it is society that we need to impact. The elected officials will understandably

have a hard time supporting issues that most of their constituency don't care

about. I don't know how we change that. It helps that more and more people

with disabilities are out and about, but most people I talk with can also tell

me stories about those who get benefits as individuals with disabilities and

they are not disabled to the extent of most of our individuals (ADHD is a

biggie, although it is my understanding that is not a disability thru SSI, but

people seem to get it). They fire back that they have to put their kids thru

college which costs more than caring for some of our kids. The only way I get

thru is by talking about the long term effects on the family, if there is

family.

I talk about how hopeless my life is, fearing what will happen to my daughter

when I am gone, about having to keep up " the face " for her sake and being pretty

much alone with no outlet (thank God for this group that I vent to sometimes!!!

). I talk about not having weddings, grandchildren, vacations. I talk about my

retirement which has been, and I suspect will never be, " golden " . The joy that

I am able to provide my daughter thru her support services and workers, and the

sprints of time they allow me to myself, are the only things keeping our heads

above water. Sometimes that strikes a cord to those who begrudge the help we

get, and see it as unnecessary. Yes we would have a roof (although somewhat

crooked) over our heads, and I would be able to feed us, but that would be about

it. I could not afford the services she gets - if I could find someone to

provide them, without the agencies. So when I get the chance I tell the story.

I'm sure some

will disagree with the pessimism I speak of, but this is my story. I still

pray to die with my daughter, even with " services " , because of the instability

of those services and the lack of foreseeable changes that are beneficial. I am

considering moving elsewhere even though that will mean starting over because I

just don't see changes coming and I am getting tired of banging my head against

a wall. Sorry if this is too depressing or offensive to anyone. Thanks for

letting me vent to the choir!!! Gloria

[Guest guest]

Pat is so right...individualized supports and choice are all driven by cost and

there certainly is the rising tide of autism in the mix. Those of us who favor

community supports and services feel that it makes no sense to fund individuals

in institutions at a cost of $150,000 when many individuals need far less than

that to lead a quality life in the community. That said, some individuals WILL

need that much or more, to live safely and with good quality in the

community...and...support needs change and some individuals will need varying

amounts of funding throughout the life continuum...There is never going to be

enough money for everything and everyone. We may need to look at shared cost...

As it is, I was recently having a conversation with someone who stated that

about 80% of human service dollars are spent on developmental disabilities and

other mental health categories are more severely impacted by lack of funding.

How we divide up the limited resources will be a key question in the

future...will the squeaky wheel get the funding? Who will determine who gets

what and how whatever resources are available get divided up? The pot of money

isn't limitless...

We all need to start thinking about viable solutions and position ourselves in

such a way as to help drive the decisions, otherwise, others will make decisions

we will be stuck with for a very long time...

Ellen Garber Bronfeld

egskb@...

Re: No Time to Relax

> IPADDUnite

> Date: Wednesday, August 5, 2009, 12:19 PM

>

>

>

>

>

>

>

>

>

>

>

>

> I also will use your questions, but agree with the idea that it is society

that we need to impact. The elected officials will understandably have a hard

time supporting issues that most of their constituency don't care about. I don't

know how we change that. It helps that more and more people with disabilities

are out and about, but most people I talk with can also tell me stories about

those who get benefits as individuals with disabilities and they are not

disabled to the extent of most of our individuals (ADHD is a biggie, although it

is my understanding that is not a disability thru SSI, but people seem to get

it). They fire back that they have to put their kids thru college which costs

more than caring for some of our kids. The only way I get thru is by talking

about the long term effects on the family, if there is family.

>

> I talk about how hopeless my life is, fearing what will happen to my

daughter when I am gone, about having to keep up " the face " for her sake and

being pretty much alone with no outlet (thank God for this group that I vent to

sometimes!!! ). I talk about not having weddings, grandchildren, vacations. I

talk about my retirement which has been, and I suspect will never be, " golden " .

The joy that I am able to provide my daughter thru her support services and

workers, and the sprints of time they allow me to myself, are the only things

keeping our heads above water. Sometimes that strikes a cord to those who

begrudge the help we get, and see it as unnecessary. Yes we would have a roof

(although somewhat crooked) over our heads, and I would be able to feed us, but

that would be about it. I could not afford the services she gets - if I could

find someone to provide them, without the agencies. So when I get the chance I

tell the story. I'm sure some

> will disagree with the pessimism I speak of, but this is my story. I still

pray to die with my daughter, even with " services " , because of the instability

of those services and the lack of foreseeable changes that are beneficial. I am

considering moving elsewhere even though that will mean starting over because I

just don't see changes coming and I am getting tired of banging my head against

a wall. Sorry if this is too depressing or offensive to anyone. Thanks for

letting me vent to the choir!!! Gloria

>

>

>

>

[Guest guest]

Pat is so right...individualized supports and choice are all driven by cost and

there certainly is the rising tide of autism in the mix. Those of us who favor

community supports and services feel that it makes no sense to fund individuals

in institutions at a cost of $150,000 when many individuals need far less than

that to lead a quality life in the community. That said, some individuals WILL

need that much or more, to live safely and with good quality in the

community...and...support needs change and some individuals will need varying

amounts of funding throughout the life continuum...There is never going to be

enough money for everything and everyone. We may need to look at shared cost...

As it is, I was recently having a conversation with someone who stated that

about 80% of human service dollars are spent on developmental disabilities and

other mental health categories are more severely impacted by lack of funding.

How we divide up the limited resources will be a key question in the

future...will the squeaky wheel get the funding? Who will determine who gets

what and how whatever resources are available get divided up? The pot of money

isn't limitless...

We all need to start thinking about viable solutions and position ourselves in

such a way as to help drive the decisions, otherwise, others will make decisions

we will be stuck with for a very long time...

Ellen Garber Bronfeld

egskb@...

Re: No Time to Relax

> IPADDUnite

> Date: Wednesday, August 5, 2009, 12:19 PM

>

>

>

>

>

>

>

>

>

>

>

>

> I also will use your questions, but agree with the idea that it is society

that we need to impact. The elected officials will understandably have a hard

time supporting issues that most of their constituency don't care about. I don't

know how we change that. It helps that more and more people with disabilities

are out and about, but most people I talk with can also tell me stories about

those who get benefits as individuals with disabilities and they are not

disabled to the extent of most of our individuals (ADHD is a biggie, although it

is my understanding that is not a disability thru SSI, but people seem to get

it). They fire back that they have to put their kids thru college which costs

more than caring for some of our kids. The only way I get thru is by talking

about the long term effects on the family, if there is family.

>

> I talk about how hopeless my life is, fearing what will happen to my

daughter when I am gone, about having to keep up " the face " for her sake and

being pretty much alone with no outlet (thank God for this group that I vent to

sometimes!!! ). I talk about not having weddings, grandchildren, vacations. I

talk about my retirement which has been, and I suspect will never be, " golden " .

The joy that I am able to provide my daughter thru her support services and

workers, and the sprints of time they allow me to myself, are the only things

keeping our heads above water. Sometimes that strikes a cord to those who

begrudge the help we get, and see it as unnecessary. Yes we would have a roof

(although somewhat crooked) over our heads, and I would be able to feed us, but

that would be about it. I could not afford the services she gets - if I could

find someone to provide them, without the agencies. So when I get the chance I

tell the story. I'm sure some

> will disagree with the pessimism I speak of, but this is my story. I still

pray to die with my daughter, even with " services " , because of the instability

of those services and the lack of foreseeable changes that are beneficial. I am

considering moving elsewhere even though that will mean starting over because I

just don't see changes coming and I am getting tired of banging my head against

a wall. Sorry if this is too depressing or offensive to anyone. Thanks for

letting me vent to the choir!!! Gloria

>

>

>

>

[Guest guest]

I am only a tad more hopeful...not a lot more, Ron...

Ellen

Ellen Garber Bronfeld

egskb@...

No Time to Relax

>

>

> I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress ---

http://www.nytimes.com/2009/08/04/opinion/04tue1.html?_r=1 & ref=opinion)

predicting that state budgets will be worse in 2010/2011 than they are today.

Can you imagine what we'll face then?

>

> My plan is to ask my state senator and representative candidates these

questions:

>

> 1) What is your position regarding elimination of pork projects? What are

you going to DO to promote your position?

>

> 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

>

> 3) What is your position regarding funding for state institutions such as

Howe? What are you going to DO to promote your position?

>

> 4) What is your position regarding Illinois funding for small group homes

(fewer than 6 people) where we are 51st (worst) in the nation? What are you

going to DO to promote your position?

>

> Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

>

> Feel free to copy my question (I'd be honored), amend them, and add your

own.

>

> Ron (growing more and more in favor of term limits for state senators, state

representatives and governor.)

>

>

>

>

>

>

[Guest guest]

I am only a tad more hopeful...not a lot more, Ron...

Ellen

Ellen Garber Bronfeld

egskb@...

No Time to Relax

>

>

> I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress ---

http://www.nytimes.com/2009/08/04/opinion/04tue1.html?_r=1 & ref=opinion)

predicting that state budgets will be worse in 2010/2011 than they are today.

Can you imagine what we'll face then?

>

> My plan is to ask my state senator and representative candidates these

questions:

>

> 1) What is your position regarding elimination of pork projects? What are

you going to DO to promote your position?

>

> 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

>

> 3) What is your position regarding funding for state institutions such as

Howe? What are you going to DO to promote your position?

>

> 4) What is your position regarding Illinois funding for small group homes

(fewer than 6 people) where we are 51st (worst) in the nation? What are you

going to DO to promote your position?

>

> Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

>

> Feel free to copy my question (I'd be honored), amend them, and add your

own.

>

> Ron (growing more and more in favor of term limits for state senators, state

representatives and governor.)

>

>

>

>

>

>

[Guest guest]

Hi, I always talk to people about how other states can afford to take good care

of the Develpmentallly disabled in the community, how much it is costing to keep

howe open, and how much cheaper community settings are, with much better care

and opportunity. Illinois continues to be in defiance of the federal law.  In

terms of grants(or pork barrell), i read in the paper about a legislator in

Chicago that got a lot of money for a Jewish Camp. The Tribune was talking

against pork and mentioned that religion organizations should not get money. The

legislator said that he also gives a grant for a camp for Miserocordia. I'm

interested in finding out more about this.  Why aren't our legislators giving

money for Clearbrook, and other agencies. This is a good site just to vent, and

know I am talking to the choir. Juli C..

From: ron_n_luke <roncress@...>

Subject: Re: No Time to Relax

IPADDUnite

Date: Saturday, August 8, 2009, 7:26 AM

 

Just a little elaboration on my bias ... Just think of what the potential impact

could be if, say, Obama, McCain, , L. Madigan, .... plug in any names you

wish .... would come out and strongly advocate for the rights of people with

disabilities. Ahhh, if Walter Cronkite were still around.

Ron

> >

> > I am copying your questions, Ron. They are good ones.

> > I believe we will need quite a few changes in the legislature in order for

priorities to change...and even then, the general population doesn't share our

views or our priorities and their agenda is different. I believe that our main

challenge is in changing the societal perspective on the value of individuals

with disabilities. To date, there is little concern for the needs of our loved

ones in society at large...

> > Ellen

> > Ellen Garber Bronfeld

> > egskb@

> > No Time to Relax

> >

> >

> > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> >

> > My plan is to ask my state senator and representative candidates these

questions:

> >

> > 1) What is your position regarding elimination of pork projects? What are

you going to DO to promote your position?

> >

> > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> >

> > 3) What is your position regarding funding for state institutions such as

Howe? What are you going to DO to promote your position?

> >

> > 4) What is your position regarding Illinois funding for small group homes

(fewer than 6 people) where we are 51st (worst) in the nation? What are you

going to DO to promote your position?

> >

> > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> >

> > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> >

> > Ron (growing more and more in favor of term limits for state senators, state

representatives and governor.)

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi, I always talk to people about how other states can afford to take good care

of the Develpmentallly disabled in the community, how much it is costing to keep

howe open, and how much cheaper community settings are, with much better care

and opportunity. Illinois continues to be in defiance of the federal law.  In

terms of grants(or pork barrell), i read in the paper about a legislator in

Chicago that got a lot of money for a Jewish Camp. The Tribune was talking

against pork and mentioned that religion organizations should not get money. The

legislator said that he also gives a grant for a camp for Miserocordia. I'm

interested in finding out more about this.  Why aren't our legislators giving

money for Clearbrook, and other agencies. This is a good site just to vent, and

know I am talking to the choir. Juli C..

From: ron_n_luke <roncress@...>

Subject: Re: No Time to Relax

IPADDUnite

Date: Saturday, August 8, 2009, 7:26 AM

 

Just a little elaboration on my bias ... Just think of what the potential impact

could be if, say, Obama, McCain, , L. Madigan, .... plug in any names you

wish .... would come out and strongly advocate for the rights of people with

disabilities. Ahhh, if Walter Cronkite were still around.

Ron

> >

> > I am copying your questions, Ron. They are good ones.

> > I believe we will need quite a few changes in the legislature in order for

priorities to change...and even then, the general population doesn't share our

views or our priorities and their agenda is different. I believe that our main

challenge is in changing the societal perspective on the value of individuals

with disabilities. To date, there is little concern for the needs of our loved

ones in society at large...

> > Ellen

> > Ellen Garber Bronfeld

> > egskb@

> > No Time to Relax

> >

> >

> > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> >

> > My plan is to ask my state senator and representative candidates these

questions:

> >

> > 1) What is your position regarding elimination of pork projects? What are

you going to DO to promote your position?

> >

> > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> >

> > 3) What is your position regarding funding for state institutions such as

Howe? What are you going to DO to promote your position?

> >

> > 4) What is your position regarding Illinois funding for small group homes

(fewer than 6 people) where we are 51st (worst) in the nation? What are you

going to DO to promote your position?

> >

> > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> >

> > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> >

> > Ron (growing more and more in favor of term limits for state senators, state

representatives and governor.)

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi :

Most of the bigger agencies get " pork " money which is a very bad name for money

that legislators are allocated to bring back to their communities (aka

legislative initiative funds). It is a way for legislators to do a little extra

good for their own constituents. Of course it also helps " buy " votes vis a vis

goodwill and we also know that legislators often curry favor with their chamber

leaders in order to get the most amount of pork (aka legislative initiative

dollars) but all that aside, it actually does some good for communities.

It is not typically huge money...the Senator in Chicago/Lincolnwood area, who

gave money to Keshet and Misercordia did nothing wrong and he did the same thing

that all of the state Reps and Senators do...they give back where there is a

need in the community. At least the Senator gave money to two different faith

based groups which both happen to have a presence in his District.

Why would any one of us be upset about pork money going to PEOPLE!!! That is

exactly where it should go...and especially to some of OUR people!

Sorry, , but I think Illinois has bigger problems than the legislative

initiative funds.

Ellen

Ellen Garber Bronfeld

egskb@...

No Time to Relax

> >

> >

> > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> >

> > My plan is to ask my state senator and representative candidates these

questions:

> >

> > 1) What is your position regarding elimination of pork projects? What are

you going to DO to promote your position?

> >

> > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> >

> > 3) What is your position regarding funding for state institutions such as

Howe? What are you going to DO to promote your position?

> >

> > 4) What is your position regarding Illinois funding for small group homes

(fewer than 6 people) where we are 51st (worst) in the nation? What are you

going to DO to promote your position?

> >

> > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> >

> > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> >

> > Ron (growing more and more in favor of term limits for state senators,

state representatives and governor.)

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi :

Most of the bigger agencies get " pork " money which is a very bad name for money

that legislators are allocated to bring back to their communities (aka

legislative initiative funds). It is a way for legislators to do a little extra

good for their own constituents. Of course it also helps " buy " votes vis a vis

goodwill and we also know that legislators often curry favor with their chamber

leaders in order to get the most amount of pork (aka legislative initiative

dollars) but all that aside, it actually does some good for communities.

It is not typically huge money...the Senator in Chicago/Lincolnwood area, who

gave money to Keshet and Misercordia did nothing wrong and he did the same thing

that all of the state Reps and Senators do...they give back where there is a

need in the community. At least the Senator gave money to two different faith

based groups which both happen to have a presence in his District.

Why would any one of us be upset about pork money going to PEOPLE!!! That is

exactly where it should go...and especially to some of OUR people!

Sorry, , but I think Illinois has bigger problems than the legislative

initiative funds.

Ellen

Ellen Garber Bronfeld

egskb@...

No Time to Relax

> >

> >

> > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> >

> > My plan is to ask my state senator and representative candidates these

questions:

> >

> > 1) What is your position regarding elimination of pork projects? What are

you going to DO to promote your position?

> >

> > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> >

> > 3) What is your position regarding funding for state institutions such as

Howe? What are you going to DO to promote your position?

> >

> > 4) What is your position regarding Illinois funding for small group homes

(fewer than 6 people) where we are 51st (worst) in the nation? What are you

going to DO to promote your position?

> >

> > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> >

> > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> >

> > Ron (growing more and more in favor of term limits for state senators,

state representatives and governor.)

> >

> >

> >

> >

> >

> >

[Guest guest]

Dear ellen, So why don't the legislaturs in our area give agencies like

Clearrbrook, Avenues for INdependance, etc. People who work for them are not

getting paid, losing their jobs, cutting services, going out of business. I'm

going to get more information about the Misercordia money, and start asking

questions. Especially since Miseracordia fought and won against jthe Legas

suit.  More of the usual clout in Illinois. I know how other states treat their

most vulnerable people, and still venting. JUli C.

From: ron_n_luke <roncressearthlink (DOT) net>

Subject: Re: No Time to Relax

IPADDUnite@gro ups.com

Date: Saturday, August 8, 2009, 7:26 AM

Just a little elaboration on my bias ... Just think of what the potential impact

could be if, say, Obama, McCain, , L. Madigan, .... plug in any names you

wish .... would come out and strongly advocate for the rights of people with

disabilities. Ahhh, if Walter Cronkite were still around.

Ron

> >

> > I am copying your questions, Ron. They are good ones.

> > I believe we will need quite a few changes in the legislature in order for

priorities to change...and even then, the general population doesn't share our

views or our priorities and their agenda is different. I believe that our main

challenge is in changing the societal perspective on the value of individuals

with disabilities. To date, there is little concern for the needs of our loved

ones in society at large...

> > Ellen

> > Ellen Garber Bronfeld

> > egskb@

> > No Time to Relax

> >

> >

> > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> >

> > My plan is to ask my state senator and representative candidates these

questions:

> >

> > 1) What is your position regarding elimination of pork projects? What are

you going to DO to promote your position?

> >

> > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> >

> > 3) What is your position regarding funding for state institutions such as

Howe? What are you going to DO to promote your position?

> >

> > 4) What is your position regarding Illinois funding for small group homes

(fewer than 6 people) where we are 51st (worst) in the nation? What are you

going to DO to promote your position?

> >

> > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> >

> > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> >

> > Ron (growing more and more in favor of term limits for state senators, state

representatives and governor.)

> >

> >

> >

> >

> >

> >

[Guest guest]

Dear ellen, So why don't the legislaturs in our area give agencies like

Clearrbrook, Avenues for INdependance, etc. People who work for them are not

getting paid, losing their jobs, cutting services, going out of business. I'm

going to get more information about the Misercordia money, and start asking

questions. Especially since Miseracordia fought and won against jthe Legas

suit.  More of the usual clout in Illinois. I know how other states treat their

most vulnerable people, and still venting. JUli C.

From: ron_n_luke <roncressearthlink (DOT) net>

Subject: Re: No Time to Relax

IPADDUnite@gro ups.com

Date: Saturday, August 8, 2009, 7:26 AM

Just a little elaboration on my bias ... Just think of what the potential impact

could be if, say, Obama, McCain, , L. Madigan, .... plug in any names you

wish .... would come out and strongly advocate for the rights of people with

disabilities. Ahhh, if Walter Cronkite were still around.

Ron

> >

> > I am copying your questions, Ron. They are good ones.

> > I believe we will need quite a few changes in the legislature in order for

priorities to change...and even then, the general population doesn't share our

views or our priorities and their agenda is different. I believe that our main

challenge is in changing the societal perspective on the value of individuals

with disabilities. To date, there is little concern for the needs of our loved

ones in society at large...

> > Ellen

> > Ellen Garber Bronfeld

> > egskb@

> > No Time to Relax

> >

> >

> > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> >

> > My plan is to ask my state senator and representative candidates these

questions:

> >

> > 1) What is your position regarding elimination of pork projects? What are

you going to DO to promote your position?

> >

> > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> >

> > 3) What is your position regarding funding for state institutions such as

Howe? What are you going to DO to promote your position?

> >

> > 4) What is your position regarding Illinois funding for small group homes

(fewer than 6 people) where we are 51st (worst) in the nation? What are you

going to DO to promote your position?

> >

> > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> >

> > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> >

> > Ron (growing more and more in favor of term limits for state senators, state

representatives and governor.)

> >

> >

> >

> >

> >

> >

[Guest guest]

: I forgot to mention that legislative initiative money is also given to

agencies such as Clearbrook, Glenkirk, Anixter Center...

Ellen

Ellen Garber Bronfeld

egskb@...

No Time to Relax

> >

> >

> > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> >

> > My plan is to ask my state senator and representative candidates these

questions:

> >

> > 1) What is your position regarding elimination of pork projects? What are

you going to DO to promote your position?

> >

> > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> >

> > 3) What is your position regarding funding for state institutions such as

Howe? What are you going to DO to promote your position?

> >

> > 4) What is your position regarding Illinois funding for small group homes

(fewer than 6 people) where we are 51st (worst) in the nation? What are you

going to DO to promote your position?

> >

> > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> >

> > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> >

> > Ron (growing more and more in favor of term limits for state senators,

state representatives and governor.)

> >

> >

> >

> >

> >

> >

[Guest guest]

: I forgot to mention that legislative initiative money is also given to

agencies such as Clearbrook, Glenkirk, Anixter Center...

Ellen

Ellen Garber Bronfeld

egskb@...

No Time to Relax

> >

> >

> > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> >

> > My plan is to ask my state senator and representative candidates these

questions:

> >

> > 1) What is your position regarding elimination of pork projects? What are

you going to DO to promote your position?

> >

> > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> >

> > 3) What is your position regarding funding for state institutions such as

Howe? What are you going to DO to promote your position?

> >

> > 4) What is your position regarding Illinois funding for small group homes

(fewer than 6 people) where we are 51st (worst) in the nation? What are you

going to DO to promote your position?

> >

> > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> >

> > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> >

> > Ron (growing more and more in favor of term limits for state senators,

state representatives and governor.)

> >

> >

> >

> >

> >

> >

[Guest guest]

I understand your anger and frustration, . We are constantly going

backwards in this state and it is an abomination that the Governor and the

legislators are balancing the budget by cutting funding to human services. We

do need to hold those folks accountable and we have at least a little power in

our vote. One thing we can do is make sure our loved ones who have a disability

are registered to vote. My opinion: even if some individuals with disabilities

cannot understand the issues really well, they certainly wouldn't vote for

someone who didn't support their best interests and specific needs. We need to

be meeting with local legislators while they are on summer break and educate

them about the needs of individuals with disabilities. We need to get some

commitment to support a tax increase and to never again agree to a budget that

is based on cuts to human services.

Take steps to meet, educate and advocate. It is one thing we can all do.

Ellen

Ellen Garber Bronfeld

egskb@...

No Time to Relax

> >

> >

> > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> >

> > My plan is to ask my state senator and representative candidates these

questions:

> >

> > 1) What is your position regarding elimination of pork projects? What are

you going to DO to promote your position?

> >

> > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> >

> > 3) What is your position regarding funding for state institutions such as

Howe? What are you going to DO to promote your position?

> >

> > 4) What is your position regarding Illinois funding for small group homes

(fewer than 6 people) where we are 51st (worst) in the nation? What are you

going to DO to promote your position?

> >

> > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> >

> > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> >

> > Ron (growing more and more in favor of term limits for state senators,

state representatives and governor.)

> >

> >

> >

> >

> >

> >

[Guest guest]

I understand your anger and frustration, . We are constantly going

backwards in this state and it is an abomination that the Governor and the

legislators are balancing the budget by cutting funding to human services. We

do need to hold those folks accountable and we have at least a little power in

our vote. One thing we can do is make sure our loved ones who have a disability

are registered to vote. My opinion: even if some individuals with disabilities

cannot understand the issues really well, they certainly wouldn't vote for

someone who didn't support their best interests and specific needs. We need to

be meeting with local legislators while they are on summer break and educate

them about the needs of individuals with disabilities. We need to get some

commitment to support a tax increase and to never again agree to a budget that

is based on cuts to human services.

Take steps to meet, educate and advocate. It is one thing we can all do.

Ellen

Ellen Garber Bronfeld

egskb@...

No Time to Relax

> >

> >

> > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> >

> > My plan is to ask my state senator and representative candidates these

questions:

> >

> > 1) What is your position regarding elimination of pork projects? What are

you going to DO to promote your position?

> >

> > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> >

> > 3) What is your position regarding funding for state institutions such as

Howe? What are you going to DO to promote your position?

> >

> > 4) What is your position regarding Illinois funding for small group homes

(fewer than 6 people) where we are 51st (worst) in the nation? What are you

going to DO to promote your position?

> >

> > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> >

> > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> >

> > Ron (growing more and more in favor of term limits for state senators,

state representatives and governor.)

> >

> >

> >

> >

> >

> >

[Guest guest]

I think it also should be mentioned that Midercordia does not require you to

be Catholic to be supported by that organization.

So while it may look like a church/state conflict, there are no reigion

restirctions. I am not a fan of Midercordia, I just wanted to point out

this one concern.

[Guest guest]

I think it also should be mentioned that Midercordia does not require you to

be Catholic to be supported by that organization.

So while it may look like a church/state conflict, there are no reigion

restirctions. I am not a fan of Midercordia, I just wanted to point out

this one concern.

[Guest guest]

I respectfully disagree, Ron.. There are absentee ballots, early voting...I

cannot believe that any human being at any level of cognitive development would

want to vote for someone who would be counter productive to their issues...

If we believe that every human being has gifts and values, if we say that every

human being has rights and responsibilities, this is one way to demonstrate that

we really believe those things to be true of every human being...

Ellen

Ellen Garber Bronfeld

egskb@...

No Time to Relax

> > >

> > >

> > > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> > >

> > > My plan is to ask my state senator and representative candidates these

questions:

> > >

> > > 1) What is your position regarding elimination of pork projects? What

are you going to DO to promote your position?

> > >

> > > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> > >

> > > 3) What is your position regarding funding for state institutions such

as Howe? What are you going to DO to promote your position?

> > >

> > > 4) What is your position regarding Illinois funding for small group

homes (fewer than 6 people) where we are 51st (worst) in the nation? What are

you going to DO to promote your position?

> > >

> > > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> > >

> > > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> > >

> > > Ron (growing more and more in favor of term limits for state senators,

state representatives and governor.)

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I respectfully disagree, Ron.. There are absentee ballots, early voting...I

cannot believe that any human being at any level of cognitive development would

want to vote for someone who would be counter productive to their issues...

If we believe that every human being has gifts and values, if we say that every

human being has rights and responsibilities, this is one way to demonstrate that

we really believe those things to be true of every human being...

Ellen

Ellen Garber Bronfeld

egskb@...

No Time to Relax

> > >

> > >

> > > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> > >

> > > My plan is to ask my state senator and representative candidates these

questions:

> > >

> > > 1) What is your position regarding elimination of pork projects? What

are you going to DO to promote your position?

> > >

> > > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> > >

> > > 3) What is your position regarding funding for state institutions such

as Howe? What are you going to DO to promote your position?

> > >

> > > 4) What is your position regarding Illinois funding for small group

homes (fewer than 6 people) where we are 51st (worst) in the nation? What are

you going to DO to promote your position?

> > >

> > > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> > >

> > > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> > >

> > > Ron (growing more and more in favor of term limits for state senators,

state representatives and governor.)

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I agree!!

No Time to Relax

> > >

> > >

> > > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> > >

> > > My plan is to ask my state senator and representative candidates these

questions:

> > >

> > > 1) What is your position regarding elimination of pork projects? What

are you going to DO to promote your position?

> > >

> > > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> > >

> > > 3) What is your position regarding funding for state institutions such

as Howe? What are you going to DO to promote your position?

> > >

> > > 4) What is your position regarding Illinois funding for small group

homes (fewer than 6 people) where we are 51st (worst) in the nation? What are

you going to DO to promote your position?

> > >

> > > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> > >

> > > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> > >

> > > Ron (growing more and more in favor of term limits for state senators,

state representatives and governor.)

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I agree!!

No Time to Relax

> > >

> > >

> > > I know that subject line reflects life for most of us, but I really was

referring to our need to continue to hold legislators' feet to a VERY HOT fire

as their reelection campaign heats up this fall. There was an interesting op-ed

piece in to today's New York Times (States in Distress --- http://www.nytimes.

com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion) predicting that state

budgets will be worse in 2010/2011 than they are today. Can you imagine what

we'll face then?

> > >

> > > My plan is to ask my state senator and representative candidates these

questions:

> > >

> > > 1) What is your position regarding elimination of pork projects? What

are you going to DO to promote your position?

> > >

> > > 2) What is your position regarding increasing state taxes? What are you

going to DO to promote your position?

> > >

> > > 3) What is your position regarding funding for state institutions such

as Howe? What are you going to DO to promote your position?

> > >

> > > 4) What is your position regarding Illinois funding for small group

homes (fewer than 6 people) where we are 51st (worst) in the nation? What are

you going to DO to promote your position?

> > >

> > > Obviously, it's my hope to have viable candidates running against the

current incumbents if those incumbents give me their typical crappy responses.

> > >

> > > Feel free to copy my question (I'd be honored), amend them, and add your

own.

> > >

> > > Ron (growing more and more in favor of term limits for state senators,

state representatives and governor.)

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I am most respectful of all angles...and in my book, you are also an angel, Ron

I always enjoy a good, clean debate and on IPADDU we welcome everyone to voice

their opinion.

Ellen

Ellen Garber Bronfeld

egskb@...

No Time to Relax

> > > > >

> > > > >

> > > > > I know that subject line reflects life for most of us, but I really

was referring to our need to continue to hold legislators' feet to a VERY HOT

fire as their reelection campaign heats up this fall. There was an interesting

op-ed piece in to today's New York Times (States in Distress ---

http://www.nytimes. com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion)

predicting that state budgets will be worse in 2010/2011 than they are today.

Can you imagine what we'll face then?

> > > > >

> > > > > My plan is to ask my state senator and representative candidates

these questions:

> > > > >

> > > > > 1) What is your position regarding elimination of pork projects?

What are you going to DO to promote your position?

> > > > >

> > > > > 2) What is your position regarding increasing state taxes? What are

you going to DO to promote your position?

> > > > >

> > > > > 3) What is your position regarding funding for state institutions

such as Howe? What are you going to DO to promote your position?

> > > > >

> > > > > 4) What is your position regarding Illinois funding for small group

homes (fewer than 6 people) where we are 51st (worst) in the nation? What are

you going to DO to promote your position?

> > > > >

> > > > > Obviously, it's my hope to have viable candidates running against

the current incumbents if those incumbents give me their typical crappy

responses.

> > > > >

> > > > > Feel free to copy my question (I'd be honored), amend them, and add

your own.

> > > > >

> > > > > Ron (growing more and more in favor of term limits for state

senators, state representatives and governor.)

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

I am most respectful of all angles...and in my book, you are also an angel, Ron

I always enjoy a good, clean debate and on IPADDU we welcome everyone to voice

their opinion.

Ellen

Ellen Garber Bronfeld

egskb@...

No Time to Relax

> > > > >

> > > > >

> > > > > I know that subject line reflects life for most of us, but I really

was referring to our need to continue to hold legislators' feet to a VERY HOT

fire as their reelection campaign heats up this fall. There was an interesting

op-ed piece in to today's New York Times (States in Distress ---

http://www.nytimes. com/2009/ 08/04/opinion/ 04tue1.html? _r=1 & ref= opinion)

predicting that state budgets will be worse in 2010/2011 than they are today.

Can you imagine what we'll face then?

> > > > >

> > > > > My plan is to ask my state senator and representative candidates

these questions:

> > > > >

> > > > > 1) What is your position regarding elimination of pork projects?

What are you going to DO to promote your position?

> > > > >

> > > > > 2) What is your position regarding increasing state taxes? What are

you going to DO to promote your position?

> > > > >

> > > > > 3) What is your position regarding funding for state institutions

such as Howe? What are you going to DO to promote your position?

> > > > >

> > > > > 4) What is your position regarding Illinois funding for small group

homes (fewer than 6 people) where we are 51st (worst) in the nation? What are

you going to DO to promote your position?

> > > > >

> > > > > Obviously, it's my hope to have viable candidates running against

the current incumbents if those incumbents give me their typical crappy

responses.

> > > > >

> > > > > Feel free to copy my question (I'd be honored), amend them, and add

your own.

> > > > >

> > > > > Ron (growing more and more in favor of term limits for state

senators, state representatives and governor.)

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Here is the angle from no angel....we had this spirited debate a while back

and I will take Ellen's part on this.

At any point in our civilization there have been people who have decided who

can and cant have a voice in their destiny. So very recently some thoughth

only white men had the ability to have a voice .

I can remember in my life time witnessing blind people on the streets of

chicago selling pencils, money into a tin cup...because someone thought

blind people had nothing toffer but a bit more than a street beggar. So now

even blind people can get master's degrees. Now we, the very people who

love these folks are saying my child is uncapable of telling me he wants the

candidate who will care about people with disabilities. We can maybe take a

guess...an educated guess that my son who has Down Syndrome would probably

prefer the candidate that would look kindly on folks with disabilities.For

all the corruption we see in this state/country, I cannot imagine thinking ,

pondering the morals of a person with a DD casting a vote for someone who

cares about people with disabilities. We have taught our children how to

do a great deal of things. We have imposed our morals in evry facet of life,

hands to ourselves, dont touch yourself, , zip your pants, smile..etc. Why

would we ever think it would be immoral to teach them our political values

and coach them on voting. I have two other children without disabilities,

and believe me, we have coached them as well..they are both liberals..I feel

I have done that job well. For the people who want to vote against the

movement, certainly they will do all they can to stop us. IPADD is for

parents of adults, but I am hoping parents with younger children are

starting to get the idea that self advocacy should /must be taken to the

voting booth. Ron, it is your sons right to cast a ballot, and your

responcibility to teach him as you have every thing else, who cares about

the disabled. My mother voted in every election she could. In the end when

she could n o longer read , bad eyesight, she would just ask me, who cares

about the poor people. I would tell her, and that is how she voted. The

bottom line is if we dont do it/ or if our kids dont do it wiht our helpp

and support..who is going to do it. Since I have been in this advocacy

seriously..we have gone from 47 to 51. We have to do it Ron, no one else is

doing it for us. As far as leaving Illinois, the job is here and very

honestly the investment for my sons social lifestyle is here.