New member

[Guest guest]

Welcome aboard Teacherzap;

Glad to hear from you and we're here for you should you need us. This group is responsible for getting rid of my anxieties. Its a wonderful one. Good Luck and Good Heart

TURK

Re: new member

> Hi,board. I am a new AICD patient. I received my converter last Weds. > at Lutheran Hospital, Ft. Wayne, Ind. I live in Ohio approx. 45 > miles from Ft. Wayne. I am a retired school teacher, 53 yrs. of age > and have a history of heart problems since Sept. 1996. I was an > exercise person until that time,I had just finished jogging when my > major infraction occurred. Since then I have had various hospital > Admissions including, Atherectomies, stents and now an AICD. I am > having a mental block with this addition. It's very difficult to > accept and my wife and children are also having trouble with the > acceptance. I have read on the board that some have had trouble > breathing. Let me quicking what has happened to me on this most > recent hospital stay. I was taken by emergency to the hospital on > Tues, two weeks today. My blood pulse rate dropped to 16 at one > point and another time as well on the way. I had been taking a drug > called Coreg for approx. 9 mons. previous and had experienced > difficuty in breathing, shortness of breath, back ache, joint > ache,and tiredness. I just thought this all was due to "heart > problems". While in the hospital, they took me off of the Coreg and > I was off of it for ten days. All of the symptoms left. I thought > that this was because of the stent addition and the AICD. Upon > return home, I was instructed to begin Coreg again(6.25 twice a day) > and within one and a half days all of the symptoms returned! I even > started to loose my voice. My lungs hurt. I called the doctor on > call(mine was on vacation) and he advised me to reduce the dosage. I > did reduce to half and the symptoms began to subside. I still do not > feel like I did in the hospital but I can put up with this till I see > the nurse for stiches on Fri. I also had palpations of the heart > that I had experienced more and more before the admission and in the > hospital and had brachycardia and tachycardia for 3 days. That's why > the AICD implant. Then it subsided until I came home and the second > night my heart again began racing and jumping. Since the reduction, > I have not experienced that. I am aware that this is common practice > to treat CHF and high blood pressure with Coreg but I think I am one > that cannot tolerate it. Hope I don't scare anyone, but I'm just > telling what happened to me. I will see what happens next on Fri. I > ma also taking Norvasc, aldactone and avapro, along with aspirin, > plavix and several vitamins. I hope that God's blessings will be on > all and pray that he will help those how ask in his name. He will not > Fail. I know that first hand God Bless, teacherzapPlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

How much Betapace do you take a day?

[Guest guest]

Hey Teach!

Not uncommon to read:

> I am having a mental block with this [iCD] addition.

First of all... I hope there's an ICD support group that you can

attend. Lutheran Hospital is pretty well known for its cardiology

work (my mom and dad both were patients there MANY years ago.. and my

mom was a nurse there LONG ago) and should have such a program.

If not, perhaps Saint Joe or Parkview might offer a support

group.. and if not... tell them they SHOULD.

For plane fare, *I* would love to come up there to launch one.

Or maybe they should contact famous Zapper consultant, Beth York, in

the Indianapolis area: EAYSRM-at sign-aol.com

> I live in Ohio approx. 45

> miles from Ft. Wayne.

Near Defiance or Van Wert? As a kid in the 60's, my friends

and I around New Haven made frequent 3-2 beer runs across the border!

Great memories.

I am a retired school teacher, 53 yrs. of age

> Upon return home, I was instructed to begin Coreg again

Personally... I LOVE coreg.. it boosted my EF 5%-20%. But, sadly,

many people can not tolerate it. Our friends, Mel in Seattle and

Trapper in Nova Scotia, both had trouble with it at first... but got

better after a while on very low doses. I think both are up to

regular level now.

Recent research results also show it is among the best solutions

for - not only only CHF - but B/P and some arrhythmias. Again, it's

great if your body can handle the transition period.. but if not, it

may not be worth the hassle.

> I am also taking... Norvasc, aldactone and avapro,

> along with aspirin, plavix and several vitamins.

Maybe the problem is from coreg behaving in conjunction with one

or more of those meds. Personally... (NOT medical advice) I would

ask docs if that's possible.. and if so, can you stop taking one of

the other pills to be able to continue with coreg.

Stay well... and keep chin up!

Duffey

[Guest guest]

Dear Duff,

Live near ding which is near Defiance and Van Wert. Actually, I

live right in the middle of both. 14 mi one way and 17 mi the other. I

will be talking to the nurse on Fri. and they do have a support group at

Lutheran. I have not been contacted yet, but it is in the works. Thanks

for the support. teacherzap

Re: new member

> Hey Teach!

>

> Not uncommon to read:

>

> > I am having a mental block with this [iCD] addition.

>

> First of all... I hope there's an ICD support group that you can

> attend. Lutheran Hospital is pretty well known for its cardiology

> work (my mom and dad both were patients there MANY years ago.. and my

> mom was a nurse there LONG ago) and should have such a program.

> If not, perhaps Saint Joe or Parkview might offer a support

> group.. and if not... tell them they SHOULD.

> For plane fare, *I* would love to come up there to launch one.

> Or maybe they should contact famous Zapper consultant, Beth York, in

> the Indianapolis area: EAYSRM-at sign-aol.com

>

> > I live in Ohio approx. 45

> > miles from Ft. Wayne.

>

> Near Defiance or Van Wert? As a kid in the 60's, my friends

> and I around New Haven made frequent 3-2 beer runs across the border!

> Great memories.

>

> I am a retired school teacher, 53 yrs. of age

>

> > Upon return home, I was instructed to begin Coreg again

>

> Personally... I LOVE coreg.. it boosted my EF 5%-20%. But, sadly,

> many people can not tolerate it. Our friends, Mel in Seattle and

> Trapper in Nova Scotia, both had trouble with it at first... but got

> better after a while on very low doses. I think both are up to

> regular level now.

> Recent research results also show it is among the best solutions

> for - not only only CHF - but B/P and some arrhythmias. Again, it's

> great if your body can handle the transition period.. but if not, it

> may not be worth the hassle.

>

> > I am also taking... Norvasc, aldactone and avapro,

> > along with aspirin, plavix and several vitamins.

>

> Maybe the problem is from coreg behaving in conjunction with one

> or more of those meds. Personally... (NOT medical advice) I would

> ask docs if that's possible.. and if so, can you stop taking one of

> the other pills to be able to continue with coreg.

>

> Stay well... and keep chin up!

> Duffey

>

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

[Guest guest]

Dear Sharon,

Thanks for the encouraging words. We also live in Ohio. I am feeling

better with the lower dosage but am still going to quiz the doctors.

Teacherzap

Re: new member

> Welcome, Thanks for sharing your story. I have never had to take the

drug.

> I know that many heart medications can cause severe reactions and I hope

they

> will find one that you can tolerate. I take beta pace as it is the only

one

> I have ever been able to tolerate. That Anaramaonie (excuse spelling)

nearly

> wiped me out for good.

>

> Please believe that in the end you will do fine! I am one of the ones who

> had a very hard time dealing with my icd. I have had a total of 4. Truly

> you may never love the idea of it being there but you will learn to be

glad

> it is and know that you need it. I m one of the loonies who even tried to

go

> without one for 2 years and let me tell you it is by the Grace of God that

I

> am here and living.

>

> So much happens so fast I don't know if it the age we are or what but it

was

> hard for me to adjust to all I couldn't do. I have always been a goer and

a

> doer. Different people will react in different ways.

>

> Know that you are never alone with this group. We allhave different

> conditions and different life styles but we all have one thing in common

and

> that is are friend the zapper.

>

> Take each day one at a time look for the funny things and the good things.

> Someday that maybe hard to find but then you can look at it like this,

this

> is only today tomorrow could be better so you got to keep it together and

try.

>

> Blessing to you and your family please know that you are in my prayers.

>

> Sharon in Ohio

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

[Guest guest]

Thanks for a greeting reply. I will continue to stay at half dosage till I

talk to the doctors. I haven,t been tested yet so I don.t really know what

the " zap " is. I did feel the paddles though. That was really a jolt!

teacherzap

Re: new member

> Welcome to the Zapper board...

>

> Re: coping w/ICD... w/out zaps it took me just about 1 yr to come

> full circle in " dealing w/feelings " w/regard to ICD placement... and

> in talking w/others online, I think if you recieve a " zap " it will

> take a little longer... often one tends to lose ground after a " zap "

> if what I gather from chatting w/those that have been " zapped " is

> correct. May I suggest that you try to find a support group either

> here on this board, in another online heart chat or in person... this

> has been of tremendous help in dealing w/the ICD for many other

> ICD'ers. You can e-mail me at Naojeca@... for some links

> to 'chats if you're interested.

>

> Re: Coreg... I know others that are on this med... some have a

> difficult time in the beginning... some aren't able to continue

> taking it... and others have had great success w/it... one in

> particular couldn't take " full doesage " in the beginning so they let

> him continue at 1/2 dose for quite some time and then eventually got

> him to full dosage... and in the 2+ yrs he's been on it his EF has

> risen from 20% to 60% ... it just doesn't get much better So if

> it's at all possible, stick w/Coreg and hopefully you'll have great

> results as well... Good luck to you

>

> JES in NJ, USA

> God created your face... You create the expression

>

>

> > Hi,board. I am a new AICD patient. I received my converter last

> Weds.

> > at Lutheran Hospital, Ft. Wayne, Ind.

>

> I am aware that this is common practice to treat CHF and high blood

> pressure with Coreg but I think I am one that cannot tolerate it.

> Hope I don't scare anyone, but I'm just telling what happened to

> me. I will see what happens next on Fri. I ma also taking Norvasc,

> aldactone and avapro, along with aspirin, plavix and several

> vitamins. I hope that God's blessings will be on all and pray that

> he will help those how ask in his name. He will not Fail. I know

> that first hand God Bless, teacherzap

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

[Guest guest]

Teach...

I doubt if you will know what " Zap " is after testing ... when they

test you they make sure you aren't aware by giving you nice

meds ... I can't really tell you how " zap " compares w/Paddles

cause I've never been " zapped " outside of EP lab under controlled

setting ... I have had the paddles numerous times and it's quiet an

experience to say the least ... not my idea of fun for sure ... those

that have gone thru each tell me there is no comparing the

two... " zap " is suppose to be much more consumer friendly

Again, welcome aboard and I hope we're able to help you in finding

comfort dealing w/this new " buddy " of yours ...

Take care...

JES in NJ, USA

God created your face... You create the expression

> Thanks for a greeting reply. I will continue to stay at half

dosage till I

> talk to the doctors. I haven,t been tested yet so I don.t really

know what

> the " zap " is. I did feel the paddles though. That was really a

jolt!

> teacherzap

> ----- Original Message -----

[Guest guest]

Who d you want to know about on the Betapace. I take betapace.

[Guest guest]

Don't know what Betapace is. Sorry.

Re: new member

How much Betapace do you take a day? Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Dear Teach, I know that this hard;y seem possible but in a few months you

will actually look back on these times and smile to yourself. I believe

although there are many days and sometimes weeks that I go to Th. back of the

bus and try to hide that my icd and eve my negative experience have made a

better person. I have more patience and compassion. My whole life strutucer

changes as well as my value system.

Yes, people have pulled back their friendships and people have shook their

heads. My husband still wonders around in a fog. My one son e-mails me

everyday to make sure that I am alive.

We are expecting our first grandchild in late November and somehow that seems

more important than anything for the time being. I am not the most religious

person in the world but I do believe that one we lose something we gain

something else sometimes we must stand in the dark and wait for the light to

shine on the new thing.

I think that I have stood in the dark along time,

Ps while typing this note to you I just got zapped and see I am still here!

Sharon outside Akron

[Guest guest]

Dear Sharon,

Thanks for the words of encouragement. I agree that it does make you

think differently. I think that God has to hit me in the head with a ballbat

once in awhile just to get me thinking and appreciating what I do have. I

don't think that I have been zapped but I don't really know yet. I don't

get my Zapper checked out for two more weeks. If I have, it has been a very

mild one. I do alot of jerking at night while I sleep and I thought that I

may have got a shock but it could have been a nerve jerk that woke me up.

Anyway I still kicking and feel pretty darn good . Hope you are feeling

good and don't get down, were're still kicking!

God bless,teacherzap near Toledo.

Re: new member

> Dear Teach, I know that this hard;y seem possible but in a few months you

> will actually look back on these times and smile to yourself. I believe

> although there are many days and sometimes weeks that I go to Th. back of

the

> bus and try to hide that my icd and eve my negative experience have made a

> better person. I have more patience and compassion. My whole life

strutucer

> changes as well as my value system.

>

> Yes, people have pulled back their friendships and people have shook their

> heads. My husband still wonders around in a fog. My one son e-mails me

> everyday to make sure that I am alive.

>

> We are expecting our first grandchild in late November and somehow that

seems

> more important than anything for the time being. I am not the most

religious

> person in the world but I do believe that one we lose something we gain

> something else sometimes we must stand in the dark and wait for the light

to

> shine on the new thing.

>

> I think that I have stood in the dark along time,

>

> Ps while typing this note to you I just got zapped and see I am still

here!

>

> Sharon outside Akron

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

[Guest guest]

Teach... couldn't help but notice your comment 'bout " alot of jerking

at night while I sleep " ... have you ever heard of sleep apnea and

it's correlation to arrhythymia and other heart problems? If you know

that you snore a lot ask your cardio/internist about this... maybe an

evaluation would be in order. Just a thought as I know of more than a

few heart patients w/sleep apnea and have read about the connection

between the two in the news in the last several months.

JES in NJ, USA

God created your face... You create the expression

> Dear Sharon,

> Thanks for the words of encouragement. I agree that it does

make you

> think differently. I think that God has to hit me in the head with

a ballbat

> once in awhile just to get me thinking and appreciating what I do

have. I

> don't think that I have been zapped but I don't really know yet. I

don't

> get my Zapper checked out for two more weeks. If I have, it has

been a very

> mild one. I do alot of jerking at night while I sleep and I thought

that I

> may have got a shock but it could have been a nerve jerk that woke

me up.

> > >

[Guest guest]

hi sharon,

what an attitude you have. i am so trying to develop the same. and i have to say im getting there. and i pretty much am just like you with religion. i cant seem to find the way to gather much faith that there is something after death. seems to me it is like going under anesthesia, nothing, nada, zip.

that alone has given me the incentive to try and get as good as i can and last as long as i can. i sure hope there isnt something wrong with my new attitude.

i was diagnosed with an ejection fraction of 10, three months ago but i feel 200% better than i did then. i have no idea if that has improved yet or not. i havent even had a doctors appointment since the diagnosis. i start seeing them again late this month and early next month. guess i will find out then.

sorry to hear about your zap, and the next time i get one ill try and deal with it just as you do. i got nailed twice in march and not since. but i did learn that waiting and fearing its arrival was worse than the actual zap. im thankful that it doesnt knock me unconsious and i recover physically almost instantly. thinking about it is another matter.

good for you on the grandchild on the way, i have five of those little critters two of which i see often and three in colorado.

my two oldest are coming sunday for a week. they will spend a whole week swimming and riding the big tube behind the boat. and pop-pop will do okay just driving the boat and watching them enjoy. it is also a week that i wont be alone and that always makes my day.

keep making that lemonade of the lemons youve been handed.

bob in ap

-- Re: new member

Dear Teach, I know that this hard;y seem possible but in a few months you will actually look back on these times and smile to yourself. I believe although there are many days and sometimes weeks that I go to Th. back of the bus and try to hide that my icd and eve my negative experience have made a better person. I have more patience and compassion. My whole life strutucer changes as well as my value system. Yes, people have pulled back their friendships and people have shook their heads. My husband still wonders around in a fog. My one son e-mails me everyday to make sure that I am alive.We are expecting our first grandchild in late November and somehow that seems more important than anything for the time being. I am not the most religious person in the world but I do believe that one we lose something we gain something else sometimes we must stand in the dark and wait for the light to shine on the new thing.I think that I have stood in the dark along time,Ps while typing this note to you I just got zapped and see I am still here!Sharon outside Akron Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hi Teach,

I have had those jerks at night too. They mainly happen just as I'm falling

asleep - between the stages of asleep and awake or vice versa. They wake me

up - and have woken up my boyfriend also. I think that they're phantom zaps

- as my doctors can't find any reason why I have them.

Best of luck to you!

>From: " Arden R. Peck " <aspeck@...>

>Reply-

>< >

>Subject: Re: new member

>Date: Thu, 7 Jun 2001 11:09:16 -0400

>

>Dear Sharon,

> Thanks for the words of encouragement. I agree that it does make you

>think differently. I think that God has to hit me in the head with a

>ballbat

>once in awhile just to get me thinking and appreciating what I do have. I

>don't think that I have been zapped but I don't really know yet. I don't

>get my Zapper checked out for two more weeks. If I have, it has been a

>very

>mild one. I do alot of jerking at night while I sleep and I thought that I

>may have got a shock but it could have been a nerve jerk that woke me up.

>Anyway I still kicking and feel pretty darn good . Hope you are feeling

>good and don't get down, were're still kicking!

>God bless,teacherzap near Toledo.

> Re: new member

>

>

> > Dear Teach, I know that this hard;y seem possible but in a few months

>you

> > will actually look back on these times and smile to yourself. I believe

> > although there are many days and sometimes weeks that I go to Th. back

>of

>the

> > bus and try to hide that my icd and eve my negative experience have made

>a

> > better person. I have more patience and compassion. My whole life

>strutucer

> > changes as well as my value system.

> >

> > Yes, people have pulled back their friendships and people have shook

>their

> > heads. My husband still wonders around in a fog. My one son e-mails me

> > everyday to make sure that I am alive.

> >

> > We are expecting our first grandchild in late November and somehow that

>seems

> > more important than anything for the time being. I am not the most

>religious

> > person in the world but I do believe that one we lose something we gain

> > something else sometimes we must stand in the dark and wait for the

>light

>to

> > shine on the new thing.

> >

> > I think that I have stood in the dark along time,

> >

> > Ps while typing this note to you I just got zapped and see I am still

>here!

> >

> > Sharon outside Akron

> >

> > Please visit the Zapper homepage at

> > http://www.ZapLife.org

> >

> >

[Guest guest]

Dear ,

Its good to hear that someone else has some of the same symptoms. It

can be kinda scarey not knowing what exactly is going on. I know exactly

what you mean inbetween stages of sleep. I wish the best to you and

continue kicking! Teacherzap in Ohio

Re: new member

> >

> >

> > > Dear Teach, I know that this hard;y seem possible but in a few months

> >you

> > > will actually look back on these times and smile to yourself. I

believe

> > > although there are many days and sometimes weeks that I go to Th. back

> >of

> >the

> > > bus and try to hide that my icd and eve my negative experience have

made

> >a

> > > better person. I have more patience and compassion. My whole life

> >strutucer

> > > changes as well as my value system.

> > >

> > > Yes, people have pulled back their friendships and people have shook

> >their

> > > heads. My husband still wonders around in a fog. My one son e-mails

me

> > > everyday to make sure that I am alive.

> > >

> > > We are expecting our first grandchild in late November and somehow

that

> >seems

> > > more important than anything for the time being. I am not the most

> >religious

> > > person in the world but I do believe that one we lose something we

gain

> > > something else sometimes we must stand in the dark and wait for the

> >light

> >to

> > > shine on the new thing.

> > >

> > > I think that I have stood in the dark along time,

> > >

> > > Ps while typing this note to you I just got zapped and see I am still

> >here!

> > >

> > > Sharon outside Akron

> > >

> > > Please visit the Zapper homepage at

> > > http://www.ZapLife.org

> > >

> > >

[Guest guest]

Dear Jes,

Thanks for the information. I'll try to look into it and see what I

can find out. Teacherzap in Ohio

Re: new member

> Teach... couldn't help but notice your comment 'bout " alot of jerking

> at night while I sleep " ... have you ever heard of sleep apnea and

> it's correlation to arrhythymia and other heart problems? If you know

> that you snore a lot ask your cardio/internist about this... maybe an

> evaluation would be in order. Just a thought as I know of more than a

> few heart patients w/sleep apnea and have read about the connection

> between the two in the news in the last several months.

>

> JES in NJ, USA

> God created your face... You create the expression

>

>

>

> > Dear Sharon,

> > Thanks for the words of encouragement. I agree that it does

> make you

> > think differently. I think that God has to hit me in the head with

> a ballbat

> > once in awhile just to get me thinking and appreciating what I do

> have. I

> > don't think that I have been zapped but I don't really know yet. I

> don't

> > get my Zapper checked out for two more weeks. If I have, it has

> been a very

> > mild one. I do alot of jerking at night while I sleep and I thought

> that I

> > may have got a shock but it could have been a nerve jerk that woke

> me up.

> > > >

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

[Guest guest]

Brad,<br><br>Take a look at message #1127. It will start you on your

way.<br><br>Tom

[Guest guest]

Hi brad~ my name is Ann. I have had many

surgeries for my knee pain without much relief. From basic

scopes, to tibial tubercle transfers and lateral

releases, and as a Physical Therapist, I am not an advocate

of surgery for chondromalacia. I found out the hard

way~ it generally makes you worse before you get

better. If better even happens. If I can answer any

questions, it would be my pleasure.

[Guest guest]

Hi Toni. My name is Jule, Mom to (30 y/o w/ds and deaf). Bless you

heart for being 's wonderful big sister. 's big sister will be

33 next Dec., so we have a lot in common with your family. You are right,

there are a lot of younger ds folks/families on this list, but there are a

few older ones too. Depending on your needs, there are other ds support

groups too. They are all friendly and contain very informed members, so you

will get a lot of support and information, even a " shoulder " if you need one.

We live in MD, but are originally from OH, almost neighbors back then. ;o)

went to school in OH, but was too old once we moved here. She works

part time but is out everyday attending a deaf day program for multi

handicapped adults. I can't wait to learn more about you and . Does

he live with you, or nearby I hope? Sweetheart, feel free to email me

directly if you want.

Jule, Mom to

[Guest guest]

Hey Toni! Welcome! I would love to hear about your brother and think this

list will be perfect for any concerns or brags! I would be most interested

in hearing what it's like to be the sibling of a special needs adult. I

think about 's future all the time and wonder how his brothers will feel

about things later in life pertaining to . You could probably offer

great insight. Once again, welcome and do stay!

Jackie, Mom to 13ds, 10, and Bradley 7

[Guest guest]

Dear Jule:

Thank you for the warm words of welcome and for sharing a little about

yourself. Your & my Stevie are the same age! How cool.

I'm glad to hear this is such a supportive place; I could really use that

support at this time in our lives, as I just wrote in a little bio about

Stevie.

Thanks again,

~Toni, mom to (age 2) and big sis to (age 30, DS)

Everything you put in your way

is just a method of putting off the hour

when you could actually be doing your dream.

~Barbara Sher

" Change how you see, not how you look. "

" You can't give what you don't have. "

" Deal with emotions emotionally. "

[Guest guest]

Hi there, Jackie!

Thanks for the words of welcome.

I've written a little intro about Stevie and my relationship with him.

I don't know if I can offer great insights, but perhaps your other boys can

learn from some of my mistakes and watch me as I progress in my relationship

with my brother. And hopefully I can learn from you as well. It must be

such a different perspective from parent to sibling, don't you think?

Best regards,

~Toni

[Guest guest]

Toni,

Hi and welcome. I think we would be interested in hearing about you and your

brother. If you can put up with us and our kids! I'm teasing.

i think you will find this group informative and interesting and with some

really good stories.

Hope to hear more from you!

~ Mom to 10 1/2 DS and jesse 7

[Guest guest]

Dear Teach,

It was good hearing from you and please if you would like e-mail me

privately. I hope that you your reading will be a great one with no zaps or

that they were light zaps and you sailed through it.

Since my last implant July of 99, things have been better as far as the icd

goes. The one I have now behaves itself very well. I had a problem awhile

back with a broken wire but they got that under control.

As I have been zapped so often and I have other health problems they keep a

pretty close eye on me. I see my doctors regular and I have a great doctor

and EP right here in Akron. They still make me go to the Cleveland Clinic

about every three months for check ups and they do that darn EP study every

fourteen months. I always have a problem with that one and come home with

lots of burn marks on my chest from being jump started. Thing is if they

know that I am going to have trouble why do they keep doing it. They tell me

they keep looking for reason and trying to find cures, and they like me!

Imagine what they would do to someone they didn't like.

I have had a heck of a time with meds and trying to get them adjusted. I am

allergic to almost every heart med on the market so I have taken some pretty

weird stuff and it has left its mark. What I don't understand is why they

just keep adding more and more meds. Its seems to me that I am taking a pill

to correct what other pills are doing.

This new deal with Lupus is that I have taken so many drugs over my life time

(RX drugs) that they have damaged my system and caused me to have lupus. My

deal with the aniandronine (spelled wrong) was it effected my eye sight and

my immune system.

They also tell me that because of the number of times that I have been

shocked that it did some damage to my electrolytes. Also when I get shocked

for several times it cause me to get sugar and they can't figure that out.

It goes away in a week or two.

Sometimes I get the feeling they just like to experiment on me. I don't

care if it will help someone in the future although sometimes I get down and

think poor me.

They are now trying to tell me that I have RSD or RDS does anyone know

anything about this they are sending me to the Clinic for a study to find out.

For now I am still here and still kicking and that beats the alternative!

Sharon

[Guest guest]

Sharon... I thought I'd had enough EP Studys... you've got me beat by

far ... when you mention you get burn marks I'm assuming they are

using paddles on you... why are they doing so when you have an ICD?

Here is a site I found on RSD if you've not already looked for same

online http://www.rsds.org/contents.htm I hope it helps... good

luck to you.

JES in NJ, USA

God creted your face... You create the expression

I had a problem awhile back with a broken wire but they got that

under control.

>

> As I have been zapped so often and I have other health problems

they keep a

> pretty close eye on me. I see my doctors regular and I have a

great doctor

> and EP right here in Akron. They still make me go to the Cleveland

Clinic

> about every three months for check ups and they do that darn EP

study every

> fourteen months. I always have a problem with that one and come

home with

> lots of burn marks on my chest from being jump started.

> They are now trying to tell me that I have RSD or RDS does anyone

know

> anything about this they are sending me to the Clinic for a study

to find out.

>

> For now I am still here and still kicking and that beats the

alternative!

>

> Sharon