New member

[Guest guest]

That's too bad it's so far. I used to live in Texas and I know what it's like

to drive across the state and feel you drove halfway across the country and you

still have hours to the state border. Maybe you could have a goat in your

backyard. There are people around me that raise goats and they don't need a lot

of room. The local ordinances may even allow it.

I just started raising chickens and people said that you can't have them or

roosters where I live. They were wrong. I checked and they were wrong, I could

even have a rooster. I just needed to keep the coop smaller than 10x10 and

couldn't have a massive chicken production going.

Al

Re: New Member

>> >

>> >I am sooo jealous! My nearest raw milk is 4 hr away and it's $10-12 per

gallon. I am trying Organic Valley pasteurized (not ultra) from Sprouts at $5.99

per HALF gallon.

>> >Lala in RGV

>> >

>>

>

>

[Guest guest]

Welcome to the group, .

wrote:

>

> ... I cannot say 100% that I have Achalasia. ...

>

Most people with problems swallowing do not have achalasia. It has a

prevalence of 1 in 10,000 people so it is rare. It is not considered to

be inherited so the fact that your cousin has it does not imply anything

about you having it. Hiatal hernia is one of the conditions that is

sometime misdiagnosed when people do have achalasia. Most people seem to

progress faster than you are, but it took decades for me to get to where

I had surgery. I can't be sure though that all those years were just

achalasia because I did not get tested until late. You may want to get

another barium swallow to see if the esophagus is getting dilated. If it

is you may want to do something before the dilating progresses, whatever

it is caused by. If it could be achalasia the best test to confirm it is

a manometry test where the motility of the esophageal muscles is

measured by pressure sensors. If you ever have heartburn, common with

hiatal hernia, it could actually be spasms from achalasia. Not everyone

with achalasia has spasms, heartburn or other NCCPs (Non-Cardiac Chest

Pain).

notan

[Guest guest]

Welcome . I hope for you that you do NOT have achalasia.  You're right -

this is a wonderful group of people - I'm blessed to have found them. We're here

to help if we can.

Kim

________________________________

From: <scottsegall@...>

achalasia

Sent: Thursday, March 1, 2012 4:00 PM

Subject: New Member

 

Hello everyone!

My name is , and I am 52 and live in New Jersey.

I fist want to say how terrific it is to find this group - and I am very moved

by the support and care all of you have for each other.

I cannot say 100% that I have Achalasia. I have had " trouble " swallowing

probably since I was about 30 years old. I can't recall the onset. Over the past

20+ years, I'd have to say that it has not gotten any better, nor worse. It

seems to happen more with meats that I do not chew enough. Also tends to happen

more with apples. I suspect it has to do more with the size of what I am

swallowing rather than the texture.

Around 8 years ago I had a test done where I drank some fluid and they put me in

some kind of machine to watch my swallowing etc.

They did NOT tell me I had Achalasia. Rather, I was told I had a Hiatal Hernia.

(spelling?)

I had not heard of Achalasia until last week when I was with a cousin of mine

who told me he had this 'swallowing problem' and that he had surgery to correct

it. That is the first time I heard the word Achalasia.

When I read up on it, it seems more of what I have than a Hiatal Hernia. But I

am unsure.

It does seem to me that some people on this list (and in the general public)

have it much more severe than I do. I don't have spasms. I am able to eat most

of the time. Yes, there have been many times in the past 22 years that I have to

'wait' for the food to 'go down'. And on occasion, I have to vomit up my food to

clear my esophagus. (Well, that is what I think I am doing).

As I said above, it has not gotten any better or worse over the years.

I just try to chew really well to avoid the whole problem.

You all may be wondering why I am sharing my story...

I guess I am interested in getting feedback as to whether I need to investigate

further if I indeed have Achalasia, or, since I am not getting any worse and

able to eat, if getting a true diagnosis would be helpful in some way?

Perhaps I should seek out a specialist in New York City to at least have someone

that can verify and also watch how I change (or not change) from year to year?

I would love to get any feedback - and if anyone knows of a good specialist in

New York City - that would be good information to have, whether I need the

specialist now, or in X amount of time.

Thanks again to everyone on this supportive group!

[Guest guest]

Nolan,

Thank you for your response!

I think you are right, I need to see if I have Achalasia.

Can you or someone else in this group let me know how to go about finding the

right 'expert' in New York City?

I might as well go to the most experienced and best I can find from the 'get

go'.

Thanks again!

> >

> > ... I cannot say 100% that I have Achalasia. ...

> >

>

> Most people with problems swallowing do not have achalasia. It has a

> prevalence of 1 in 10,000 people so it is rare. It is not considered to

> be inherited so the fact that your cousin has it does not imply anything

> about you having it. Hiatal hernia is one of the conditions that is

> sometime misdiagnosed when people do have achalasia. Most people seem to

> progress faster than you are, but it took decades for me to get to where

> I had surgery. I can't be sure though that all those years were just

> achalasia because I did not get tested until late. You may want to get

> another barium swallow to see if the esophagus is getting dilated. If it

> is you may want to do something before the dilating progresses, whatever

> it is caused by. If it could be achalasia the best test to confirm it is

> a manometry test where the motility of the esophageal muscles is

> measured by pressure sensors. If you ever have heartburn, common with

> hiatal hernia, it could actually be spasms from achalasia. Not everyone

> with achalasia has spasms, heartburn or other NCCPs (Non-Cardiac Chest

> Pain).

>

> notan

>

>

>

>

[Guest guest]

Hi, ! Try this link:

achalasia/message/60248

Also: put NYC in the search box at the top of this page. . . .

Good luck!

in the Wilds of Wonderful West Virginia

> > >

> > > ... I cannot say 100% that I have Achalasia. ...

> > >

> >

> > Most people with problems swallowing do not have achalasia. It has a

> > prevalence of 1 in 10,000 people so it is rare. It is not considered to

> > be inherited so the fact that your cousin has it does not imply anything

> > about you having it. Hiatal hernia is one of the conditions that is

> > sometime misdiagnosed when people do have achalasia. Most people seem to

> > progress faster than you are, but it took decades for me to get to where

> > I had surgery. I can't be sure though that all those years were just

> > achalasia because I did not get tested until late. You may want to get

> > another barium swallow to see if the esophagus is getting dilated. If it

> > is you may want to do something before the dilating progresses, whatever

> > it is caused by. If it could be achalasia the best test to confirm it is

> > a manometry test where the motility of the esophageal muscles is

> > measured by pressure sensors. If you ever have heartburn, common with

> > hiatal hernia, it could actually be spasms from achalasia. Not everyone

> > with achalasia has spasms, heartburn or other NCCPs (Non-Cardiac Chest

> > Pain).

> >

> > notan

> >

> >

> >

> >

[Guest guest]

Hello . I am glad that you found our group. Being you are in New York you

are not to far from the Cleveland Clinic and Dr Rice. That is one of the best

places to go if you can get over there. If you have any questions or want to

talk I am always free and you can contact me anytime.

in Georgia

Sent from my iPhone

On Mar 1, 2012, at 16:00, " " <scottsegall@...> wrote:

> Hello everyone!

> My name is , and I am 52 and live in New Jersey.

>

> I fist want to say how terrific it is to find this group - and I am very moved

by the support and care all of you have for each other.

>

> I cannot say 100% that I have Achalasia. I have had " trouble " swallowing

probably since I was about 30 years old. I can't recall the onset. Over the past

20+ years, I'd have to say that it has not gotten any better, nor worse. It

seems to happen more with meats that I do not chew enough. Also tends to happen

more with apples. I suspect it has to do more with the size of what I am

swallowing rather than the texture.

>

> Around 8 years ago I had a test done where I drank some fluid and they put me

in some kind of machine to watch my swallowing etc.

> They did NOT tell me I had Achalasia. Rather, I was told I had a Hiatal

Hernia. (spelling?)

>

> I had not heard of Achalasia until last week when I was with a cousin of mine

who told me he had this 'swallowing problem' and that he had surgery to correct

it. That is the first time I heard the word Achalasia.

>

> When I read up on it, it seems more of what I have than a Hiatal Hernia. But I

am unsure.

>

> It does seem to me that some people on this list (and in the general public)

have it much more severe than I do. I don't have spasms. I am able to eat most

of the time. Yes, there have been many times in the past 22 years that I have to

'wait' for the food to 'go down'. And on occasion, I have to vomit up my food to

clear my esophagus. (Well, that is what I think I am doing).

> As I said above, it has not gotten any better or worse over the years.

> I just try to chew really well to avoid the whole problem.

>

> You all may be wondering why I am sharing my story...

>

> I guess I am interested in getting feedback as to whether I need to

investigate further if I indeed have Achalasia, or, since I am not getting any

worse and able to eat, if getting a true diagnosis would be helpful in some way?

>

> Perhaps I should seek out a specialist in New York City to at least have

someone that can verify and also watch how I change (or not change) from year to

year?

>

> I would love to get any feedback - and if anyone knows of a good specialist in

New York City - that would be good information to have, whether I need the

specialist now, or in X amount of time.

>

> Thanks again to everyone on this supportive group!

>

>

>

>

>

>

> TODAY(Beta) • Powered by

> Man's forehead rebuilt using stomach fat

> A few years after surgery left Tim Barter with a dented skull, he has

experienced an amazing recovery.

> Privacy Policy

[Guest guest]

:

 

I have been to Dr. Traube in NYC.  Very knowledgeable and caring.

 530 1st Avenue

New York, NY 10016

 

212-263-3095

 

NYU Medical Center.

 

________________________________

From: <scottsegall@...>

achalasia

Sent: Friday, March 2, 2012 12:07 AM

Subject: Re: New Member

 

Nolan,

Thank you for your response!

I think you are right, I need to see if I have Achalasia.

Can you or someone else in this group let me know how to go about finding the

right 'expert' in New York City?

I might as well go to the most experienced and best I can find from the 'get

go'.

Thanks again!

> >

> > ... I cannot say 100% that I have Achalasia. ...

> >

>

> Most people with problems swallowing do not have achalasia. It has a

> prevalence of 1 in 10,000 people so it is rare. It is not considered to

> be inherited so the fact that your cousin has it does not imply anything

> about you having it. Hiatal hernia is one of the conditions that is

> sometime misdiagnosed when people do have achalasia. Most people seem to

> progress faster than you are, but it took decades for me to get to where

> I had surgery. I can't be sure though that all those years were just

> achalasia because I did not get tested until late. You may want to get

> another barium swallow to see if the esophagus is getting dilated. If it

> is you may want to do something before the dilating progresses, whatever

> it is caused by. If it could be achalasia the best test to confirm it is

> a manometry test where the motility of the esophageal muscles is

> measured by pressure sensors. If you ever have heartburn, common with

> hiatal hernia, it could actually be spasms from achalasia. Not everyone

> with achalasia has spasms, heartburn or other NCCPs (Non-Cardiac Chest

> Pain).

>

> notan

>

>

>

>

[Guest guest]

Thank you , , and ,

for your recommendations!

I will report back when I have ascertained whether

I indeed have Achalasia and what the doctor says.

Thanks again,

[Guest guest]

Hello ,

Your symptoms sound exactly like mine: 20+ years of difficulty swallowing but

you are still able to eat and not lose weight, difficulty especially with some

foods (also steak and apples for me), never had any spasms, sometimes had to

wait/force food to go down, on occasions needed to " clear " the esophagus.

Ended up in the ER one day from severe dehydration and found out I had A.

When I first discovered this web site I was also surprised how debilitating this

condition is for some people. I can tell you that even though I thought I had a

relatively normal life in my case surgery helped immensely, solved problems I

didn't realize I had.

You can see my story at:

http://f1.grp.fs.com/v1/0LhUT58CKdK4KKQRK0FKE9RzruwMDmaX7HIuBmlTCCVH1btH_EV\

cvxi29MQnyjUGEIdLZxEPmsY_qnQgHp-3Vfxqh_Ikb84AKA/Member%20Stories%20%26%20History\

/s_Achalasia_Story.txt

Also if Boston is convenient I can tell you first hand there are great doctors

(Rattner, Hutter) and top notch facilities here.

>

> Hello everyone!

> My name is , and I am 52 and live in New Jersey.

>

> I fist want to say how terrific it is to find this group - and I am very moved

by the support and care all of you have for each other.

>

> I cannot say 100% that I have Achalasia. I have had " trouble " swallowing

probably since I was about 30 years old. I can't recall the onset. Over the past

20+ years, I'd have to say that it has not gotten any better, nor worse. It

seems to happen more with meats that I do not chew enough. Also tends to happen

more with apples. I suspect it has to do more with the size of what I am

swallowing rather than the texture.

>

> Around 8 years ago I had a test done where I drank some fluid and they put me

in some kind of machine to watch my swallowing etc.

> They did NOT tell me I had Achalasia. Rather, I was told I had a Hiatal

Hernia. (spelling?)

>

> I had not heard of Achalasia until last week when I was with a cousin of mine

who told me he had this 'swallowing problem' and that he had surgery to correct

it. That is the first time I heard the word Achalasia.

>

> When I read up on it, it seems more of what I have than a Hiatal Hernia. But I

am unsure.

>

> It does seem to me that some people on this list (and in the general public)

have it much more severe than I do. I don't have spasms. I am able to eat most

of the time. Yes, there have been many times in the past 22 years that I have to

'wait' for the food to 'go down'. And on occasion, I have to vomit up my food to

clear my esophagus. (Well, that is what I think I am doing).

> As I said above, it has not gotten any better or worse over the years.

> I just try to chew really well to avoid the whole problem.

>

> You all may be wondering why I am sharing my story...

>

> I guess I am interested in getting feedback as to whether I need to

investigate further if I indeed have Achalasia, or, since I am not getting any

worse and able to eat, if getting a true diagnosis would be helpful in some way?

>

> Perhaps I should seek out a specialist in New York City to at least have

someone that can verify and also watch how I change (or not change) from year to

year?

>

> I would love to get any feedback - and if anyone knows of a good specialist in

New York City - that would be good information to have, whether I need the

specialist now, or in X amount of time.

>

> Thanks again to everyone on this supportive group!

>

>

>

[Guest guest]

Hi ,

And thank you for your message!

The link you provided did not work, it kept going to a web page that

said the document was not there, or some kind of error.

Maybe it's no longer on the web?

I have a question..how did you go from being somewhat of a mild case

of swallowing issues to being in the ER dehydrated?

Is it that with Achalasia that you can go from mild to extreme very quickly?

Thanks,

>

> Hello ,

> Your symptoms sound exactly like mine: 20+ years of difficulty swallowing but

you are still able to eat and not lose weight, difficulty especially with some

foods (also steak and apples for me), never had any spasms, sometimes had to

wait/force food to go down, on occasions needed to " clear " the esophagus.

> Ended up in the ER one day from severe dehydration and found out I had A.

> When I first discovered this web site I was also surprised how debilitating

this condition is for some people. I can tell you that even though I thought I

had a relatively normal life in my case surgery helped immensely, solved

problems I didn't realize I had.

>

> You can see my story at:

>

http://f1.grp.fs.com/v1/0LhUT58CKdK4KKQRK0FKE9RzruwMDmaX7HIuBmlTCCVH1btH_EV\

cvxi29MQnyjUGEIdLZxEPmsY_qnQgHp-3Vfxqh_Ikb84AKA/Member%20Stories%20%26%20History\

/s_Achalasia_Story.txt

>

> Also if Boston is convenient I can tell you first hand there are great doctors

(Rattner, Hutter) and top notch facilities here.

>

[Guest guest]

wrote:

>

> Is it that with Achalasia that you can go from mild to extreme very

> quickly?

>

We are all different some just progress slowly but some have these

events where all of a sudden the esophagus just seem to shut down. Often

these events are temporary but sometimes people end up in the ER for

dehydration and then sometimes remain in the hospital waiting for

treatment.

notan

[Guest guest]

Notan, I agree. I did just fine, no real pain or anything, just the

inconvenience of having to force food into my stomach for 19 years. Then, one

day I regurgutate what I think is some stuck pizza and all that comes out was

blood! We just never know when things can go from seemingly harmless to life

threatening! Heroldachalasia

From: notan_ostrich@...

Date: Mon, 5 Mar 2012 08:52:04 -0700

Subject: Re: Re: New Member

wrote:

>

> Is it that with Achalasia that you can go from mild to extreme very

> quickly?

>

We are all different some just progress slowly but some have these

events where all of a sudden the esophagus just seem to shut down. Often

these events are temporary but sometimes people end up in the ER for

dehydration and then sometimes remain in the hospital waiting for

treatment.

notan

[Guest guest]

Maybe the long linkd didn't make it through. You can navigate to my story (and

others) directly on the left pane of this groups web site:

" Files " -> " Member Stories & History " -> " s_Achalasia_Story.txt "

My Achalasia didn't suddenly get worse, it just to an combination of

circumstsnces to discover I had Achelasia.

I often had troble swallowing, and about once a month food wouldn't go down,

even if I tried to force it. I couldn't eat or drink any more and I'd wait for

a few hours for the food pass on its own.

By chance one of those days was a hot summer day when I had a very competetive

ultimate frisbee game (requires a lot of sprinting). I was playing quite hard,

tried to stay hydrated, but the water kept coming up. Near the end I almost

passed out; I never got to that point before so my wife brought me to the ER.

When they saw I couldn't swallow water they put me on IV to re-hydrate and

called in an available GI (who just happened to be the head of the department).

He saw the impacted food and immediately suspected achalasia. By next morning

the food passed through and I was able to eat again, so was back to what was

" normal " for me - difficulty swallowing but it would go down.

The tests confirmed his diagnosis, and I scheduled a Heller Myotomy for about 5

months later. In the 5 months between the ER and surgery I made sure to chew

more fully and drink plenty of liquid before, with, and after any food. In

those months I never had another " would not go down " episode, and since surgery

I've had no difficulty swallowing.

> >

> > Hello ,

> > Your symptoms sound exactly like mine: 20+ years of difficulty swallowing

but you are still able to eat and not lose weight, difficulty especially with

some foods (also steak and apples for me), never had any spasms, sometimes had

to wait/force food to go down, on occasions needed to " clear " the esophagus.

> > Ended up in the ER one day from severe dehydration and found out I had A.

> > When I first discovered this web site I was also surprised how debilitating

this condition is for some people. I can tell you that even though I thought I

had a relatively normal life in my case surgery helped immensely, solved

problems I didn't realize I had.

> >

> > You can see my story at:

> >

http://f1.grp.fs.com/v1/0LhUT58CKdK4KKQRK0FKE9RzruwMDmaX7HIuBmlTCCVH1btH_EV\

cvxi29MQnyjUGEIdLZxEPmsY_qnQgHp-3Vfxqh_Ikb84AKA/Member%20Stories%20%26%20History\

/s_Achalasia_Story.txt

> >

> > Also if Boston is convenient I can tell you first hand there are great

doctors (Rattner, Hutter) and top notch facilities here.

> >

>

[Guest guest]

wrote:

>

> By chance one of those days was a hot summer day when I had a very

> competetive ultimate frisbee game (requires a lot of sprinting). I was

> playing quite hard, tried to stay hydrated, but the water kept coming

> up. Near the end I almost passed out; I never got to that point before

> so my wife brought me to the ER.

>

Before my myotomy I used to climb the mountain trails around this city.

I found it like clock work that part ways up I would no longer be able

to drink. I would start early but here it can get very hot fast and

often by the time I got back home I was fairly dehydrated. Kind of scary

but I didn't want to give it up. Back home it didn't take long for

things to calm down to where I could start drinking slowly again and

then faster a little later. I suspect that the hard breathing on the

steep climbs stimulated the trachea, lungs and heart so also stimulating

the vagus nerve which then aggravated the achalasia. Just a guess but

that is how it seemed to me. Another theory would be that all the hard

impact on the feet caused trapped food to become more impacted in the

bird beak. To me it seems things were worse on the way up where the

breathing was hard, but the impact on the feet was not as hard as on the

way down when breathing would be easier. So I go with the breathing not

the hard foot impacts.

Perhaps there are other ways of stimulating achalasia to be worse that

don't involve physical exertion. A stuck pill irritating the esophagus

for example. Whatever the causes, I think many of us have had these kind

of episodes. Some like mine are short but others can last for days.

notan

[Guest guest]

,

Thanks for the feedback.

I have scheduled my initial appointment with Dr. Traube in NYC.

Reading tons of past posts in this group - so much great info!

Thanks to everyone..

>

> Maybe the long linkd didn't make it through. You can navigate to my story (and

others) directly on the left pane of this groups web site:

>

> " Files " -> " Member Stories & History " -> " s_Achalasia_Story.txt "

>

> My Achalasia didn't suddenly get worse, it just to an combination of

circumstsnces to discover I had Achelasia.

> I often had troble swallowing, and about once a month food wouldn't go down,

even if I tried to force it. I couldn't eat or drink any more and I'd wait for

a few hours for the food pass on its own.

>

> By chance one of those days was a hot summer day when I had a very competetive

ultimate frisbee game (requires a lot of sprinting). I was playing quite hard,

tried to stay hydrated, but the water kept coming up. Near the end I almost

passed out; I never got to that point before so my wife brought me to the ER.

>

> When they saw I couldn't swallow water they put me on IV to re-hydrate and

called in an available GI (who just happened to be the head of the department).

He saw the impacted food and immediately suspected achalasia. By next morning

the food passed through and I was able to eat again, so was back to what was

" normal " for me - difficulty swallowing but it would go down.

>

> The tests confirmed his diagnosis, and I scheduled a Heller Myotomy for about

5 months later. In the 5 months between the ER and surgery I made sure to chew

more fully and drink plenty of liquid before, with, and after any food. In

those months I never had another " would not go down " episode, and since surgery

I've had no difficulty swallowing.

>

>

> -

[Guest guest]

Hi

I am taking 150mcg Levothyroxine daily and have been taking it for approx 15yrs.

My symptoms are thinning hair, chilliness, dry skin, pain in joints, extreme

exhaustion and weight gain. I put on 3 stone. I eat a very healthy diet, lots of

fruit and veg, I dont like sweet things or fizzy drinks. When I feel low I take

a liquid vitamin and mineral supplement for a week or two. I am aged 63 and

have also had menopause symptoms for the last 10 yrs approx, with hot flushes.

My Gp has in the past advised diet and excercise. He referred me to a

nutritionist who looked at my food diary and told me I was not eating enough. I

cannot swim and my joints are painful so when I went to the gym they made it

clear did not want me to join. I am too exhausted anyway. Several years ago I

told my GP I wanted to stop taking Levothyroxin and he was horrified , and

panicked me so I carried on with it. I had a hysterectomy (not ovaries) approx

20 yrs ago and gall bladder removal approx 6yrs ago. I have Sarcoidosis of the

lungs (which is inflamation of the lymph glands) since I was in my twenties and

it flares up from time to time with Erythemia of the legs, and I have been

hospitalised and treated with Prednisilone. My history is complicated and I

have been treated for bouts of depression in the past. I am begining to realise

all these things add up. I have started taking my temperature at night and

morning and have ordered some T3 online and intend to start taking it when it

arrives. All the information from TPA is daunting but I will make an appt to

see my GP and ask for the blood tests. It is hard to take it all on board, but I

really appreciate your help, Terry

[Guest guest]

Hi Terry

Before you change your

thyroid hormone replacement for T3, please check out the details below and go

through all of these to ensure you are not suffering with any of these. Any of

these could stop your thyroid hormone from working, and it will be of no use

you changing to T3 if this is the case. You need to go through each one of

these by way of a process of elimination, and you have to be really strict

about this. Doctors are not even aware that any of these could be a problem,

but we have done our research and know that they are.

There are MANY reasons

and many medical conditions associated with thyroid disease that stop thyroid

hormone from getting into the cells, where it does its work. I mention these

over and over and over again - ad nauseum - people must be bored with the same

old stuff, but as each new member joins us, they need to know about these.

The main condition

responsible for stopping thyroid hormone from working is, quite simply, a

patient’s thyroid hormone dose is too low because the doctor or

consultant refuses to increase it, because the serum thyroid function test

results appear OK. Sometimes, the thyroxine dose is too high, yet patients

still don't feel well. They continue to suffer. Some reasons for this:

1. You may be suffering with low adrenal

reserve. The production of T4, its conversion to T3, and the receptor uptake

requires a normal amount of adrenal hormones, notably, of course, cortisone.

(Excess cortisone can shut production down, however.) This is what happens if

the adrenals are not responding properly, and provision of cortisone usually

switches it on again. But sometimes it doesn’t. If the

illness has been going on for a long time, the enzyme seems to fail. This

conversion failure (inexplicably denied by many endocrinologists) means the

thyroxine builds up, unconverted. So it doesn’t work, and T4

toxicosis results. This makes the patient feel quite unwell, toxic, often with

palpitations and chest pain. If provision of adrenal support doesn’t

remedy the situation, the final solution is the use of the active thyroid

hormone, already converted, T3 - either synthetic or natural. You can check for

such a possibility by going to the FILES SECTION of our forum http://health.grouops//thyroid treatment/files/

and scroll down to the folder entitled 'Medical Questionnaires' and complete

the Adrenal one. Let us know how you score. You can also get the 24 hour

salivary adrenal profile from Genova Diagnostics. See the File entitled

'Discounts on Tests and Supplements'. When ordering, write that Thyroid Patient

Advocacy is your medical practitioner. They will send out a kit to you and the

results will be sent direct to you. When you receive these, post the results on

the forum with the reference ranges and we will help with their interpretation.

2. Then, we have systemic candidiasis. This is

where candida albicans, yeast, which causes skin infections almost anywhere in

the body, invades the lining of the lower part of the small intestine and the

large intestine. Here, the candida sets up residence in the warmth and

the dark, and demands to be fed. Loving sugars and starches, candida can

make you suffer terrible sweet cravings. Candida can produce toxins which

can cause very many symptoms of exhaustion, headache, general illness, and

which interfere with the uptake of thyroid and adrenal treatment.

Sometimes the levels - which we usually test for - can be very high, and make

successful treatment difficult to achieve until adequately treated. As above,

do the 'Candida Questionnaire' and let us know how you score, and again, you

can be tested by Genova Diagnostics to give you diagnosis.

3. Then there is receptor resistance which

could be a culprit. Being hypothyroid for some considerable time may

mean the biochemical mechanisms which permit the binding of T3 to the

receptors, is downgraded - so the T3 won’t go in. With slow build

up of T3, with full adrenal support and adequate vitamins and minerals, the

receptors do come on line again. But this can be quite a slow process,

and care has to be taken to build the dose up gradually.

4. And then there are Food allergies. The most

common food allergy is allergy to gluten, the protein fraction of wheat. The

antibody generated by the body, by a process of molecular mimicry, cross reacts

with the thyroperoxidase enzyme, (which makes thyroxine) and shuts it

down. So allergy to bread can make you hypothyroid. There may be other

food allergies with this kind of effect, but information on these is

scanty. Certainly allergic response to certain foods can affect adrenal

function and imperil thyroid production and uptake.

5. Then we have hormone imbalances. The whole

of the endocrine system is linked; each part of it needs the other parts to be

operating normally to work properly. An example of this we have seen

already, with cortisone. But another example is the operation of sex

hormones. The imbalance that occurs at the menopause with progesterone

running down, and a relative dominance of oestrogen is a further case in point

– oestrogen dominance downgrades production, transportation and uptake of

thyroid hormones. This is why hypothyroidism may first appear at the

menopause; the symptoms ascribed to this alone, which is then treated –

often with extra oestrogen, making the whole thing worse. Deficiency in

progesterone most especially needs to be dealt with, since it reverses

oestrogen dominance, improves many menopausal symptoms like sweats and mood swings,

and reverses osteoporosis. Happily natural progesterone cream is easily

obtained: when used it has the added benefit of helping to stabilise adrenal

function.

6. Then, there is the possibility of mercury

poisoning, caused through amalgam fillings - these might need to be removed but

you need to seek a Dentist who specialises in the removal of amalgam fillings.

7. One of the main reasons why thyroid hormone

is not being utilised at the cellular level is because you might be suffering

with low levels of iron, transferring saturation%, ferritin, vitamin B12,

vitamin D3, magnesium, folate, copper and zinc - these have to be tested

for, and treated.

When you have been quite

unwell for a long time, all these problems have to be dealt with, and since

each may affect the other, it all has to be done very carefully.

Ask your doctor to work

with you to help you find the cause. The balancing of these variables is as

much up to you as to your doctor – which is why a check of morning, day

and evening temperatures and pulse rates, together with symptoms, good and bad,

can be so helpful. To this end, check out Dr Rind's Metabolic Metabolic

Temperature Graph http://www.drrind.com/therapies/metabolic-temperature-graph

If your doctor tries to

tell you that low levels of the above mentioned nutrients have nothing to do

with your low thyroid state, copy out the following of just a few references to

the research/studies that have been done to show that there is a very big

connection. Doctors are not taught about this at medical school, so we have to

help them where we can - so they, in turn, can help their other patients.

Low iron/ferritin: Iron deficiency is shown

to significantly reduce T4 to T3 conversion, increase reverse T3 levels, and

block the thermogenic (metabolism boosting) properties of thyroid hormone

(1-4). Thus, iron deficiency, as indicated by an iron saturation below 25 or a

ferritin below 70, will result in diminished intracellular T3 levels.

Additionally, T4 should not be considered adequate thyroid replacement if iron

deficiency is present (1-4)).

1.

Dillman E, Gale C, Green W, et al. Hypothermia in iron deficiency due to

altered triiodithyroidine metabolism. Regulatory, Integrative and Comparative

Physiology 1980;239(5):377-R381.

2.

SM, PE, Lukaski HC. In vitro hepatic thyroid hormone deiodination

in iron-deficient rats: effect of dietary fat. Life Sci 1993;53(8):603-9.

3.

Zimmermann MB, Köhrle J. The Impact of Iron and Selenium Deficiencies on Iodine

and Thyroid Metabolism: Biochemistry and Relevance to Public Health. Thyroid

2002;12(10): 867-78.

4.

Beard J, tobin B, Green W. Evidence for Thyroid Hormone Deficiency in

Iron-Deficient Anemic Rats. J. Nutr. 1989;119:772-778.

Low vitamin B12: http://www.ncbi.nlm.nih.gov/pubmed/18655403

Low vitamin D3: http://www.eje-online.org/cgi/content/abstract/113/3/329

and http://www.goodhormonehealth.com/VitaminD.pdf

Low magnesium: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC292768/pdf/jcinvest00264-0105.pdf

Low folate: http://www.clinchem.org/cgi/content/full/47/9/1738

and http://www.liebertonline.com/doi/abs/10.1089/thy.1999.9.1163

Low copper http://www.ithyroid.com/copper.htm

http://www.drlwilson.com/articles/copper_toxicity_syndrome.htm

http://www.ithyroid.com/copper.htm

http://www.rjpbcs.com/pdf/2011_2(2)/68.pdf

http://ajplegacy.physiology.org/content/171/3/652.extract

Low zinc:http://www.istanbul.edu.tr/ffdbiyo/current4/07%20Iham%20AM%C4%B0R.pdf

and http://articles.webraydian.com/article1648-Role_of_Zinc_and_Copper_in_Effective_Thyroid_Function.html

· NOTE: When

your blood tests come back, ask your doctor for a copy and remember to always

get the reference range and post them on the forum. This is because doctors

will often tell you that there is not a problem because blood tests have come

back within the reference range. You need to know where about in the reference

range they are. We will again, help with their interpretation.

· Vitamin B12

levels for both men and women need to be at the top of the range in a reference

interval of around 175 -900.

· Vitamin D3

levels need to be about 50.

· Magnesium

levels need to be at the top of the range

Luv - Sheila

My history is complicated and I have been

treated for bouts of depression in the past. I am begining to realise all these

things add up. I have started taking my temperature at night and morning and

have ordered some T3 online and intend to start taking it when it arrives. All

the information from TPA is daunting but I will make an appt to see my GP and

ask for the blood tests. It is hard to take it all on board, but I really

appreciate your help, Terry

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[Guest guest]

Hi Sheila

I have made an appointment to see my gp next week to get blood tests done and

have filled in the adrenal and candida questionaires.

The Adrenal questionaire scores as follows:

Questions answered 37

Points:

Key signs and symptoms 25

Energy patterns 12

Frequently Observed 4

Food Patterns __8___

Aggravating Factors _6____

Relieving Factors __1___

Total Points _69____

Asterisk 2

Candida:

A 49

B 57

C 24

Total 130

Many thanks Terry

[Guest guest]

welcome! I am obsessed too!! I havent gone out of town since I got my vitamix but I know I would be taking it with me too!! I LOVE mine!! Patti From: swirlam <dollbuyer@...> Sent: Monday, March 12, 2012 12:20 PM Subject: New Member

Hi Everyone!

I joined a couple of weeks ago. You guys are a busy group to keep up with. I can see I'm going to learn a lot. After looking at a VitaMix for a couple of years, I finally splurged a few weeks ago and bought one a Costco. I was looking forward to making a variety of whole food smoothies. I use it at least once a day. I recently went out-of-town for a few days and had to take my machine with me. I guess I'm still a little obsessed with it.

Rai