New member

Report post · December 31, 2001

G'day Tony,

Welcome to the new year & remotemedics

I've not been on the list long myself & have found it useful ...! makes you

realise that there is always some one else out there with you - as it can be

a bit lonely sometimes.

good luck with your course - sounds interesting!

best wishes for the new year

Ninian Northern Platform

new member

Hi guys,

Just replying to the acceptance to the group, a bit of history about myself.

I am an Australian Registered Nurse who is presently working in the middle

east on a two year contract off shore.

I have worked in the hospital systems in Australia and do 1-2 days a week on

my time off to keep up a few skills. I have woked in the acciedent and

emergency department of a teaching hospital in Perth as well as in high

dependency and general medical and surgical

units.

I am currently doing a grad. dip. in occupational health and safety at a uni

in Perth (external).

I have worked in construction on shore and off shore in various locations

and find this work interesting.

I was told about the group by a British medic that i meet just recently and

it sounded interesting as it is always good to be able to ask people

questions if and when the need arises.

Look forward to hearing from you in the future.

Cheers

Tony B

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Report post · January 1, 2002

G'day

Happy new year mate, its definately good to know that other people are out

here and you can call if needed and use as a resource. The course is 2 years

and i am half way through at the moment, it's pretty full on but should be

worth it in the long run.

Have a good one

Cheers

Tony B

>From: " Parkinson, " <gparkinson@...>

>Reply-

> " ' ' "

>< >

>Subject: RE: new member

>Date: Tue, 1 Jan 2002 01:01:47 -0600

>

>G'day Tony,

>Welcome to the new year & remotemedics

>I've not been on the list long myself & have found it useful ...! makes you

>realise that there is always some one else out there with you - as it can

>be

>a bit lonely sometimes.

>

>good luck with your course - sounds interesting!

>

>best wishes for the new year

>

>Ninian Northern Platform

>

> new member

>

>Hi guys,

>Just replying to the acceptance to the group, a bit of history about

>myself.

>I am an Australian Registered Nurse who is presently working in the middle

>east on a two year contract off shore.

>I have worked in the hospital systems in Australia and do 1-2 days a week

>on

>

>my time off to keep up a few skills. I have woked in the acciedent and

>emergency department of a teaching hospital in Perth as well as in high

>dependency and general medical and surgical

>units.

>I am currently doing a grad. dip. in occupational health and safety at a

>uni

>

>in Perth (external).

>I have worked in construction on shore and off shore in various locations

>and find this work interesting.

>I was told about the group by a British medic that i meet just recently and

>it sounded interesting as it is always good to be able to ask people

>questions if and when the need arises.

>Look forward to hearing from you in the future.

>Cheers

>Tony B

>

>_________________________________________________________________

>Join the world's largest e-mail service with MSN Hotmail.

>http://www.hotmail.com

>

>Member Information:

>

>List owner: Ian Sharpe Owner@...

>Editor: Ross Boardman Editor@...

>

>Post message: egroups

>Subscribe: -subscribeegroups

>Unsubscribe: -unsubscribeegroups

>

>Thank you for supporting Remote Medics Online.

>

Report post · January 22, 2002

Sorry, , but it's the MDs (Merchants of Death) who are in denial. If

you relative believed in the virus (which it sounds like he did; why else get

tested?) he was doomed -- with or without the toxic treatments. The treatments

would only help him go faster.

If he wants to learn how to take contol his health, check out sobehealthy.com

In a message dated Tue, 22 Jan 2002 11:55:05 AM Eastern Standard Time,

" victoriasor " <victoriasor@...> writes:

> Hi list,

> I have a close relative who was diagnosed as HIV+ about 10 years ago.

> He was in denial and kept his treatment a sacred secret. Last Sep he suffered

> a severe encephalitis with bad prognosis.

> He survived but has not recovered his right mind, he has memory problems

> and lost toilet control. He walks as an old man and often gets lost is his own

> house.

> Now his treatment is a family problem and I would like to get some guidance.

> Is there anyone that could give a hint?

> Thanks a lot.

>

> Read AIDS-Cured

Report post · January 23, 2002

In a message dated 1/23/02 3:00:34 AM Eastern Standard Time, curedaids@... writes:

Sorry, , but it's the MDs (Merchants of Death) who are in denial. If you relative believed in the virus (which it sounds like he did; why else get tested?) he was doomed -- with or without the toxic treatments. The treatments would only help him go faster.

you call this help? a family member reaches out and you slap them in the face?

believe what you may, but it is your responsibility, to give factual and accurate information. i joined this site for support and information, and i have to tell you, i am very concerned on the information you are giving people. the way it sounds i am lead to believe you people are leading the lambs to slaughter. oh i can't wait to get slammed by the members of this site,

FYI, my children are in remission due to the cocktails they are on. i have had questions about the toxins we are putting in their systems, and i wonder if there is a safer way to fight the virus. If any of you had any viable points I must have missed them, all i hear is "throw away your meds and you will be cured" how irresponsible! how deadly!

My opinon is once these toxins are in your system, it's irreversible, but I wouldn't put my childrens lives on the line to prove that.

Forgive me but this site sounds like a group of people trying to speed up the death of millions infected. Do you think if this happens the disease will be gone? No I am afraid not. Just my opinion.

Angelhrt

Report post · January 23, 2002

In a message dated 1/23/02 12:13:01 PM Eastern Standard Time, davidwennerberg@... writes:

It seems you are convinced (as we all were at one time) to accept the staus-quo and follow

Dear ,

There was a time I was convinced the "study" my children were on was giving them more virus, actually we are still convinced of this. My son R had t-cell counts of 200 and VL of 770,000. We took him of the "study" after his adoption and put him on a 3 med cocktail and he is now undetectable with a t-cell count of 2400, and has been for 5yrs. These are facts.

Thank you for your kind words and I am sorry to come off sounding so harsh, but I worry people get the wrong information and do harm to their health. I fight everyday to keep my children healthy and alive.

Mom

Report post · January 23, 2002

This site is for folks who think outside of the box, more or less. They are opinions only; testimonial to what has worked for us individually. It seems you are convinced (as we all were at one time) to accept the staus-quo and follow the dogma of HIV=AIDS, and toxic meds fix the problem. There are many sites that will validate your mind set. I hope you find comfort there, but also hope that you expand your mind and give you (your children) a fighting chance. My personal opinion. Peace and best of luck/health.

>From: MOMCHEVY69@... >Reply-cures for AIDS >cures for AIDS >Subject: Re: New member >Date: Wed, 23 Jan 2002 11:41:52 EST > >In a message dated 1/23/02 3:00:34 AM Eastern Standard Time, >curedaids@... writes: > > > > Sorry, , but it's the MDs (Merchants of Death) who are in denial. > > If you relative believed in the virus (which it sounds like he did; why > > else get tested?) he was doomed -- with or without the toxic treatments. > > The treatments would only help him go faster. > > > >you call this help? a family member reaches out and you slap them in the >face? >believe what you may, but it is your responsibility, to give factual and >accurate information. i joined this site for support and information, and i >have to tell you, i am very concerned on the information you are giving >people. the way it sounds i am lead to believe you people are leading the >lambs to slaughter. oh i can't wait to get slammed by the members of this >site, >FYI, my children are in remission due to the cocktails they are on. i have >had questions about the toxins we are putting in their systems, and i wonder >if there is a safer way to fight the virus. If any of you had any viable >points I must have missed them, all i hear is "throw away your meds and you >will be cured" how irresponsible! how deadly! >My opinon is once these toxins are in your system, it's irreversible, but I >wouldn't put my childrens lives on the line to prove that. >Forgive me but this site sounds like a group of people trying to speed up the >death of millions infected. Do you think if this happens the disease will be >gone? No I am afraid not. Just my opinion. >Angelhrt Send and receive Hotmail on your mobile device: Click Here

Report post · January 23, 2002

Mom,

It is a tough road for sure. Although I had horrific experiences with the meds and don't believe in the numbers (tests), if they work for you - then that is best for you. I sincerely hope the best for you and your family. Best of health.

>From: MOMCHEVY69@... >Reply-cures for AIDS >cures for AIDS >Subject: Re: New member >Date: Wed, 23 Jan 2002 12:40:30 EST > >In a message dated 1/23/02 12:13:01 PM Eastern Standard Time, >davidwennerberg@... writes: > > > > It seems you are convinced (as we all were at one time) to accept the > > staus-quo and follow > >Dear , >There was a time I was convinced the "study" my children were on was giving >them more virus, actually we are still convinced of this. My son R had t-cell >counts of 200 and VL of 770,000. We took him of the "study" after his >adoption and put him on a 3 med cocktail and he is now undetectable with a >t-cell count of 2400, and has been for 5yrs. These are facts. >Thank you for your kind words and I am sorry to come off sounding so harsh, >but I worry people get the wrong information and do harm to their health. I >fight everyday to keep my children healthy and alive. >Mom MSN Photos is the easiest way to share and print your photos: Click Here

Report post · January 24, 2002

G'day Joann

I am just writing to say how blown away I am from reading your story

and shocked a how you were treated due to such a lack of your doctors

knowledge of this disease. It helps me realise that although I have

my problems there is always someone worse off than me.

Very best regards from .

Report post · January 24, 2002

Joann,

Your story made me cry. I read it right before I went to sleep

last night. I am SO SORRY that you have had to endure the gross

negligence and insensitivites from your doctors that you have

encountered. You must have the brightest halo in the achalasian angel

army by now. Injustice is a word that creeps up in my mind as I read

your beautifully written account of your life with " A " . Your husband

sounds like your best friend. Thank God you have had him to walk with

you throughout your experiences. You deserve the very best that life

has to offer. Your story touched my heart so deeply. God bless you,

welcome to the group, and THANK YOU for posting your story. We do care.

Report post · January 24, 2002

, thank you for your kind words. Yes, I do have the most wonderful husband. He bought me an adjustable bed because I have to sit up at night or I still choke bad. (The food and liquid stays in my esophagus because of its twisted state.) I remember my heart breaking because I did not want to sleep in separate beds. When he heard me tell him why I put off having the adjustable bed his reply to me was, "Jo, you must have this bed to help you. We will just get a queen size adjustable bed and I will sit up with you. It is the least I can do for you and I will be happy to do it for you." That made me cry. That he would be willing to sit up in the bed every night along with me just so we would not have to sleep in separate beds.

What was funny was when I got in the bed and not only sat up, but put my knees up also. His reply then was, "Jo, I really don't mind at all sitting up with you. But your really pushing it with the knees up too. (He was lying on his side.) God did not make a man's body like a woman's and I just can't bend like that. I got a good laugh out of that.

I suffered through 8 miscarriages due to my inability to carry through to term. I am sure because my body could not feed them. With much prayer I was able to carry one pregnancy and deliver a healthy baby boy. (My Dr. said he would be disformed and most likely brain damaged due to my disease. So kind they are. Nothing like getting an encouraging word!) He was barely 5 pounds but perfectly healthy. That's when my teeth started breaking apart because he took the calcium from my body that I couldn't get from food. And my bones degenerated. He is now 21 and the best son ever. He is serving our country in the Army military intelligence. God blessed us with a 3 yr. old little girl from the South Pacific whom we adopted 7 years ago. She has brought us much joy. Truly a gift from the Lord. We needed each other. Thanks again for the warm welcome. I look forward to reading the posts. I don't know if your allowed to put an email address in here but if you can, mine is jptoyz3@.... I would love hearing anyone's stories who would like to share with me. Joann

Report post · January 25, 2002

Hi Joann, Having read the rest of your story I am even more amazed

with your wonderful attitute to life and angry with the treatment you

have received. I know after all you have been through this may be a

stupid question but with the current day treatments have you looked

into any further surgery to try and make life easier for you.

I am lucky to also have a wonderful supportive wife and 2 great boys

( 9 and 12).Your husband (to use an aussie term) sounds like a great

bloke and you, A VERY SPECIAL LADY.

I am going to see a surgeon on Tuesday and discuss my next move.

Best wishes for your future

Report post · January 26, 2002

Thanks for your note.

Don`t be sorry, maybe it is myself instead who should be sorry for not being

educated on aids.

So HIV+ is not the culprit, then what is?

I read in your testimonials that medications are toxic or worse.

Be patient with me, I wanted to say that my relative came back from the

hospital by late November 2001, he had been so sick that doctors did not

prescribe any retroviral medication, they expected him to die in a short while.

He endured for two months.

Last week they finally agreed on a new checkup. They found him in good

health, his blood test was almost normal, except for a few values that were

short of the norm, but close to it.

One value is CD4 31, what does that mean?

The point is, he was prescribed a lot of retrovirals, several types and with

repeated doses during the day. In only two days he had a sort of maniac atack.

As doctors do not comment on that, I wonder: are the retrovirals neuro toxic or

this is because ha had encephalitis?

An educated opinion would be welcome.

Thanks a lot,

> Sorry, , but it's the MDs (Merchants of Death) who are in denial. If

you relative believed in the virus (which it sounds like he did; why else get

tested?) he was doomed -- with or without the toxic treatments. The treatments

would only help him go faster.

>

> If he wants to learn how to take contol his health, check out sobehealthy.com

>

> In a message dated Tue, 22 Jan 2002 11:55:05 AM Eastern Standard Time,

" victoriasor " <victoriasor@h...> writes:

>

> > Hi list,

> > I have a close relative who was diagnosed as HIV+ about 10 years ago.

> > He was in denial and kept his treatment a sacred secret. Last Sep he

suffered

> > a severe encephalitis with bad prognosis.

> > He survived but has not recovered his right mind, he has memory problems

> > and lost toilet control. He walks as an old man and often gets lost is his

own

> > house.

> > Now his treatment is a family problem and I would like to get some

guidance.

> > Is there anyone that could give a hint?

> > Thanks a lot.

> >

> > Read AIDS-Cured

Report post · January 29, 2002

Hi. I had originally posted this message a few weeks ago and I don't think it got posted. So I will post my story again being I am new and hope to meet others like me. I have been enjoying reading the posts. It is comforting to read of others who suffer as I do. Having to drink 2 liters of warm water with every meat etc. Here goes my story:

Hi. My name is Joann. This is my first time writing on this board. I was very happy to have found it. I will tell you about myself.

I am 46 years old. (Still feel like 20 in my head, but in my body more like 70!)

When I was about 19 or 20 and in college I was under a tremendous amount of stress. I remember having severe chest pains, even pulling off the side of the road thinking I would drop dead of a heart attack. I remember fleeing from a Chemistry class with these chest pains. Dr. said it was stress. I noticed food sticking in my chest as I ate. Mostly bread, meat, starchy things. My face would turn all red and I couldn't get it down. It was more of an embarrassment than anything. I forced warm water down to push the food down. I started waking up in the middle of the night choking on food I had eaten hours earlier or liquid. Almost choked to death more times than I could count. Never put these symptoms together thinking they all had something to do with the other. At 23 I married and while on my honeymoon I developed a very strange cough. Very deep and loud that sounded very abnormal. I thought of it as a goose honk. My dear groom and I actually thought this "weird" sounding cough was quite funny. We also laughed as we heard the gurgling sounds of the food and liquid making its way down my chest. Thought it was a virus that would go away. Within a few weeks I couldn't even swallow water without vomiting it up. Saw another Dr. He gave me valium and told me it was honeymoon jitters. I insisted it was not and he sent me for an upper GI. I remember the radiologist coming in to the room with this very grave look on his face asking me had I ever drank scalding hot water. I said no, but he would not tell me any news. A specialist called me to his office soon afterwards and told me I had a very rare disease called Achalasia. He told me there was no cure for it and it would continue to get worse and would kill me. I could have an operation called a Heller procedure which would mean an incision from my shoulder blade, down my back and across my ribs to open up the muscle of my esophagus. This would not be a cure, just help cut down on my pain. He also mentioned he never saw anyone with this and had never done this surgery. I went home to my new groom and we cried together wondering how long I had to live. Why have this horrible surgery if it wouldn't make me better? So I suffered and came close to death over and over and over. Food in my lungs, constant state of aspiration pneumonia with fever. The food would fill up my esophagus, staying there for days. It would ferment and I would wake up to foam tasting of beer pouring out of my mouth. I had no hope I thought. I vomited every bite of food I ate. I felt all alone in the world. Never hearing of this or knowing anyone in the world who knew anything about it.

Over the years, my esophagus stretched from the food. Nine years later, I found a Dr. who knew much of this disease and had done this surgery in London. It was a matter of life and death. I put my life in this mans hands literally and had the Heller procedure. I almost starved to death, lost hair and my teeth were breaking due to malnourishment. Today I sufferer severely with degenerative disc disease I know because of the nine years of malnourishment. The surgeon opened me up with a 17" incision from my left shoulder blade down and around my rib cage. Cut all the muscle and did the myotomy which saved my life. The surgery was barbaric and I remember calling out to God to please take me and spare me the pain of breathing. My ribs were broken and cut apart so every breath I breathed was searing pain. I still have nightmares of it now 13 yrs. later. But it saved my life. My esophagus was 8"wide and twisted like a Drano pipe to be able to fit in my chest. (It got this way due to enormous amounts of food sticking in it and suffering for 9 years till the surgery was done.) It moved to the right side of my chest to get away from my heart. I have no motility at all. It is still like that so food must be pushed down with warm water. I do suffer with bad spasms and spasms across the muscle that had to be cut over my rib cage. I carry water with me at all times. Achalasia is my way of life. No one still has ever heard of it if I mention it. I am married now almost 23 years and my dear husband has helped me through many tough times. I think it is wonderful that medical technology can now do this procedure with a few small incisions. Consider yourselves blessed to be diagnosed at a time such as this. It is a horrible disease. But via the Internet it is a wonderful thing to meet others around the world who suffer the same as you do. When all these years I have felt so alone in my suffering. No, the surgery did not make me well, but it did save my life. Had a proper Dr. explained the surgery to me 9 years earlier I would not be suffering with such a disformed esophagus today. It was waiting all those years which took its toll and twisted my esophagus up. But I am alive and grateful to God. Would love to hear from fellow sufferers and what you have gone through. Please email me your stories if you have the time. Joann

Report post · January 29, 2002

ps-my email address is jptoyz3@... thank you. Joann

Report post · January 29, 2002

> Hi. I had originally posted this message a few weeks ago and I

don't think it

> got posted. So I will post my story again being I am new and hope

to meet

> others like me. I have been enjoying reading the posts. It is

comforting to

> read of others who suffer as I do. Having to drink 2 liters of warm

water

> with every meat etc. Here goes my story:

> Hi. My name is Joann. This is my first time writing on this board.

I was very

> happy to have found it. I will tell you about myself.

> I am 46 years old. (Still feel like 20 in my head, but in my body

more like

> 70!)

> When I was about 19 or 20 and in college I was under a tremendous

amount of

> stress. I remember having severe chest pains, even pulling off the

side of

> the road thinking I would drop dead of a heart attack. I remember

fleeing

> from a Chemistry class with these chest pains. Dr. said it was

stress. I

> noticed food sticking in my chest as I ate. Mostly bread, meat,

starchy

> things. My face would turn all red and I couldn't get it down. It

was more of

> an embarrassment than anything. I forced warm water down to push

the food

> down. I started waking up in the middle of the night choking on

food I had

> eaten hours earlier or liquid. Almost choked to death more times

than I could

> count. Never put these symptoms together thinking they all had

something to

> do with the other. At 23 I married and while on my honeymoon I

developed a

> very strange cough. Very deep and loud that sounded very abnormal.

I thought

> of it as a goose honk. My dear groom and I actually thought

this " weird "

> sounding cough was quite funny. We also laughed as we heard the

gurgling

> sounds of the food and liquid making its way down my chest. Thought

it was a

> virus that would go away. Within a few weeks I couldn't even

swallow water

> without vomiting it up. Saw another Dr. He gave me valium and told

me it was

> honeymoon jitters. I insisted it was not and he sent me for an

upper GI. I

> remember the radiologist coming in to the room with this very grave

look on

> his face asking me had I ever drank scalding hot water. I said no,

but he

> would not tell me any news. A specialist called me to his office

soon

> afterwards and told me I had a very rare disease called Achalasia.

He told me

> there was no cure for it and it would continue to get worse and

would kill

> me. I could have an operation called a Heller procedure which would

mean an

> incision from my shoulder blade, down my back and across my ribs to

open up

> the muscle of my esophagus. This would not be a cure, just help cut

down on

> my pain. He also mentioned he never saw anyone with this and had

never done

> this surgery. I went home to my new groom and we cried together

wondering how

> long I had to live. Why have this horrible surgery if it wouldn't

make me

> better? So I suffered and came close to death over and over and

over. Food in

> my lungs, constant state of aspiration pneumonia with fever. The

food would

> fill up my esophagus, staying there for days. It would ferment and

I would

> wake up to foam tasting of beer pouring out of my mouth. I had no

hope I

> thought. I vomited every bite of food I ate. I felt all alone in

the world.

> Never hearing of this or knowing anyone in the world who knew

anything about

> it.

> Over the years, my esophagus stretched from the food. Nine years

later, I

> found a Dr. who knew much of this disease and had done this surgery

in

> London. It was a matter of life and death. I put my life in this

mans hands

> literally and had the Heller procedure. I almost starved to death,

lost hair

> and my teeth were breaking due to malnourishment. Today I sufferer

severely

> with degenerative disc disease I know because of the nine years of

> malnourishment. The surgeon opened me up with a 17 " incision from

my left

> shoulder blade down and around my rib cage. Cut all the muscle and

did the

> myotomy which saved my life. The surgery was barbaric and I

remember calling

> out to God to please take me and spare me the pain of breathing. My

ribs were

> broken and cut apart so every breath I breathed was searing pain. I

still

> have nightmares of it now 13 yrs. later. But it saved my life. My

esophagus

> was 8 " wide and twisted like a Drano pipe to be able to fit in my

chest. (It

> got this way due to enormous amounts of food sticking in it and

suffering for

> 9 years till the surgery was done.) It moved to the right side of

my chest to

> get away from my heart. I have no motility at all. It is still like

that so

> food must be pushed down with warm water. I do suffer with bad

spasms and

> spasms across the muscle that had to be cut over my rib cage. I

carry water

> with me at all times. Achalasia is my way of life. No one still has

ever

> heard of it if I mention it. I am married now almost 23 years and

my dear

> husband has helped me through many tough times. I think it is

wonderful that

> medical technology can now do this procedure with a few small

incisions.

> Consider yourselves blessed to be diagnosed at a time such as this.

It is a

> horrible disease. But via the Internet it is a wonderful thing to

meet others

> around the world who suffer the same as you do. When all these

years I have

> felt so alone in my suffering. No, the surgery did not make me

well, but it

> did save my life. Had a proper Dr. explained the surgery to me 9

years

> earlier I would not be suffering with such a disformed esophagus

today. It

> was waiting all those years which took its toll and twisted my

esophagus up.

> But I am alive and grateful to God. Would love to hear from fellow

sufferers

> and what you have gone through. Please email me your stories if you

have the

> time. Joann

Joann, Welcome to the group. I am also new to the group. I was sorry

to read what a horrible experience that you have been through with

your Achalasia. I am glad that you are at least better now. I just

had a Thoracotomy and another Heller Myotomy this month. Best wishes

to you. Connie

Report post · January 31, 2002

JaeLee,

I am glad you found this group. I happy to see you helping your mom. It is

very hard with Achalasia to find people who will at least try to understand

what you are going through.

I think alot of the depression the people with Achalasia have is due to not

getting the right nutrition. If she can swallow it, your mom might try

getting a good protein drink for the health food store. They have lots of

vitamins minerals stuff like that. I use one called Spiru-tein. You mix it

with water or milk (never mix protein with juice). If she can get that down

and start feeling better I am positive some of the depression would lift.

Another thing is if you tell us what area you are in, we may be able to help

you with a doctor. Usually you have to go to a Gastro doc for them to even

have a clue what you are talking about. Even some Gastro's don't know much

about Achalasia. If you go to a doc who does not seem informed or in not

really concerned the word for him is NEXT! Keep looking until you find a

doctor you can trust that has a idea what you are talking about.

Tell your mom, we would like to hear from her in this group.

I will be praying for you and your mom. Feel free to email me anytime.

J.C.

New Member

> Hello,

> My name is JaeLee. I just joined this group. I have joined because

> my mother is sick with achalasia and we are kind of new to this. Her

> symptoms started just about 1 year ago when she lost her job. We are

> thinking that this all came about due to stress? She didn't go to

> the doctor because she thought this was something that would pass and

> she kept putting it off thinking that it would go away as well as

> being scared to hear bad news. Just recently, about 2-3 months ago

> she finally went in because he symptoms got worse to where she has

> dropped almost 100 lbs and can barely swallow water. It has been

> very hard for our family to deal with. It is something we never

> heard about before nor had to experience such a medical problem. She

> is very depressed from this, on a daily basis it's very hard for her

> to deal with and I thought that by joining a group it would help her

> to know that she is not alone and there are other people out there

> that she can maybe relate to and talk with for some emotional

> support. I look forward to meeting you all. I do not have any such

> symptoms as you have but I see my mother everyday and I see what she

> goes through and it just tears me up inside to see what a person with

> this achalasia disease has to go through. I am very interested in any

> stories anyone may have, info, or anything that pertains to this. If

> you have any questions yourself, feel free to e-mail and I will get

> back to you right away. I look forward to talking to you all and

> hope that we can all help out eachother in any way.

>

Report post · January 31, 2002

Hi, I agree with you about the depression, specially, because eating is the most common social act in our everyday life. That's why most of us prefer to keep our disorder in secret. But I must say that when I have explained to the people around me, about my problem, even if they don't understand, they are patient and understanding. I think your mom would feel better if she can share with other people other kind of "social moments", such as going to the movies, exercising, ....

JaeLee, I can say that Ensure is the most effective product to maintein weight and strenght (at least in my case). All my bood tests have been ok since I took this supplement. I hope this will help you both.

.

JC Elder <jc_elder@...> wrote: JaeLee,I am glad you found this group. I happy to see you helping your mom. It isvery hard with Achalasia to find people who will at least try to understandwhat you are going through.I think alot of the depression the people with Achalasia have is due to notgetting the right nutrition. If she can swallow it, your mom might trygetting a good protein drink for the health food store. They have lots ofvitamins minerals stuff like that. I use one called Spiru-tein. You mix itwith water or milk (never mix protein with juice). If she can get that downand start feeling better I am positive some of the depression would lift.Another thing is if you tell us what area you are in, we may be able to helpyou with a doctor. Usually you have to go to a Gastro doc for them to evenhave a clue what you are talking about. Even some Gastro's don't know muchabout Achalasia. If you go to a doc who does not seem informed or in notreally concerned the word for him is NEXT! Keep looking until you find adoctor you can trust that has a idea what you are talking about.Tell your mom, we would like to hear from her in this group.I will be praying for you and your mom. Feel free to email me anytime.J.C. New Member> Hello,> My name is JaeLee. I just joined this group. I have joined because> my mother is sick with achalasia and we are kind of new to this. Her> symptoms started just about 1 year ago when she lost her job. We are> thinking that this all came about due to stress? She didn't go to> the doctor because she thought this was something that would pass and> she kept putting it off thinking that it would go away as well as> being scared to hear bad news. Just recently, about 2-3 months ago> she finally went in because he symptoms got worse to where she has> dropped almost 100 lbs and can barely swallow water. It has been> very hard for our family to deal with. It is something we never> heard about before nor had to experience such a medical problem. She> is very depressed from this, on a daily basis it's very hard for her> to deal with and I thought that by joining a group it would help her> to know that she is not alone and there are other people out there> that she can maybe relate to and talk with for some emotional> support. I look forward to meeting you all. I do not have any such> symptoms as you have but I see my mother everyday and I see what she> goes through and it just tears me up inside to see what a person with> this achalasia disease has to go through. I am very interested in any> stories anyone may have, info, or anything that pertains to this. If> you have any questions yourself, feel free to e-mail and I will get> back to you right away. I look forward to talking to you all and> hope that we can all help out eachother in any way.>>>>>>>

Report post · February 4, 2002

The damage done by doctors and AIDS drugs is not irreversible. I've known

people on the meds for almost 15 years before quitting who have recovered must

about everything but the facial wasting in less than 2 years on a healty

regimen. You are putting your children at risk by giving them the meds and

letting the Merchants of Death touch them. Check the recent issue of Mothering

Magazine with a cover story on the growing number of mothers who are questioning

the system and refusing to put their kids on these toxic treatments.

This group is about is for and about people who have seen through the lies,

propaganda and virus myth and are living in health with no medical interference.

If you can't get over your faith in the church of orthodox medicine, maybe this

group is not for you.

And the " millions " of lives you talk about are a fantasy. THere have never been

a cumulative total of 1 million people with hiv here in the US. The third world

figures are pure propaganda worst case estimates designed to keep the AIDS lies

alive long after AIDS in the US is history.

And throwing away your meds isn't enough. You have to question your doctor,

challenge your doctor, and, when necessary FIRE YOUR DOCTOR and learn to take

responsibility for your own (and you children's) health. Practicing health is

very simple, but it isn't easy in a world of misinformation, fast food and quick

cures.

I hope this group does give enough of a slamming to wake you up before it's too

late for your childen.

Ed

http://hometown.aol.com/aidsisover

See the CDC numbers, graphed on my page. It is over!

In a message dated Wed, 23 Jan 2002 11:47:15 AM Easte

rn Standard Time, MOMCHEVY69@... writes:

>

> In a message dated 1/23/02 3:00:34 AM Eastern Standard Time, curedaids@...

writes:

>

> Sorry, , but it's the MDs (Merchants of Death) who are in denial. If

you relative believed in the virus (which it sounds like he did; why else get

tested?) he was doomed -- with or without the toxic treatments. The treatments

would only help him go faster.

>

> you call this help? a family member reaches out and you slap them in the face?

>

> believe what you may, but it is your responsibility, to give factual and

accurate information. i joined this site for support and information, and i have

to tell you, i am very concerned on the information you are giving people. the

way it sounds i am lead to believe you people are leading the lambs to

slaughter. oh i can't wait to get slammed by the members of this site,

>

> FYI, my children are in remission due to the cocktails they are on. i have had

questions about the toxins we are putting in their systems, and i wonder if

there is a safer way to fight the virus. If any of you had any viable points I

must have missed them, all i hear is " throw away your meds and you will be

cured " how irresponsible! how deadly!

>

> My opinon is once these toxins are in your system, it's irreversible, but I

wouldn't put my childrens lives on the line to prove that.

>

> Forgive me but this site sounds like a group of people trying to speed up the

death of millions infected. Do you think if this happens the disease will be

gone? No I am afraid not. Just my opinion.

>

> Angelhrt

>

Report post · February 5, 2002

Helen,

Personally, the only way my son would be vaccinated is over my dead body, and

then they'd still have a fight as I have educated him to not allow anyone to

give him a needle, (he is now seven).

As far as your son 'spirited away' at birth, did he have a Vitamin k injection

at birth and what about hep B? I was coerced into giving my son Vitamin k at

birth with all the nurses at me while I was in the middle of labour, not the

best time for decision making...though the decision should have been made before

I went into labour. However, like many in this room I believed that the doctors

where there to protect us, not be the instruments by which the next generation

is being destroyed, allowing themselves to be used and this only comes about by

their own arrogance and inability to admit to themselves that they have been set

up from day one. They have allowed themselves to be placed on pedestals and now

believe it to be their righful place and are above us mere mortals.

Doctors in my opinion know nothing of health, only of illness, which they

promote with their teensy little closed minds that contain nothing more than

regurgitated pharmaceutical propaganda. I will give them something though, they

must have great memories to remember all that bull.....!!!!! Which is

surprising when you look at the drug addiction rate amongst doctors!!!

Pardon the outburst, I've been bottling up for days!!!!!

Joanna

Mrs Helen Forster <helen_forster@...> wrote: Hi,

I've just joined this group and want to introduce myself. I'm 37, married

for 16 years with 4 boys aged 13, 10, 4 and 13 months. My older two

children have both had all the vaccinations done. Upto now my 4 year

old has had them all too, but is now due his pre-school booster and my

13 month old is due for his MMR. With the current debate raging about

the MMR I am confused to say the least, and am not prepared to let my

two younger ones be vaccinated until the situation becomes clearer.

Even though my two eldest have both had the MMR, and my 4 year old

has had one, (with no ill effects that I can see), I still have my

concerns and would be very interested to hear from parents in a

similar situation. My 4 year old is 'spirited' anyway, but was

this way from birth!

I look forward to learning more.

Helen

Report post · February 5, 2002

Joanna,

Thats 'spirited' anyway, not spirited away LOL. Yes all 4 of my kids

have had the vit k injection, haven't really thought about the effects of

that. Like you I believed that the doctors know the best thing for our

health, but you are right they only know about illness. My four boys

have entirely different temperaments and personalities, so I really

couldn't say if they've been affected or not but vaccinations, I'm just

interested to learn more about it.

My 4 year old is the wildest of them all, but I believe he was born this

way, he came out screaming his head off and has never stopped. This

is what puts me off him having the MMR.

Helen

On 5 Feb 2002 at 15:57, joanna athome wrote:

>

> Helen,

> Personally, the only way my son would be vaccinated is over my dead body, and

then they'd still have a fight as I have educated him to not allow anyone to

give him a needle, (he is now seven).

> As far as your son 'spirited away' at birth, did he have a Vitamin k

injection at birth and what about hep B?

Report post · February 5, 2002

Helen,

Oops, my turn for a faux pax. What a difference a word can make. Sorry thought

you meant 'spirited away' not 'spirited'. Those Vitamin k injections at birth

contain thimersol (ethylmercury). Worth looking into.

Welcome aboard!!!!!!!!

Joanna

Mrs Helen Forster <helen_forster@...> wrote: Joanna,

Thats 'spirited' anyway, not spirited away LOL. Yes all 4 of my kids

have had the vit k injection, haven't really thought about the effects of

that. Like you I believed that the doctors know the best thing for our

health, but you are right they only know about illness. My four boys

have entirely different temperaments and personalities, so I really

couldn't say if they've been affected or not but vaccinations, I'm just

interested to learn more about it.

My 4 year old is the wildest of them all, but I believe he was born this

way, he came out screaming his head off and has never stopped. This

is what puts me off him having the MMR.

Helen

On 5 Feb 2002 at 15:57, joanna athome wrote:

>

> Helen,

> Personally, the only way my son would be vaccinated is over my dead body, and

then they'd still have a fight as I have educated him to not allow anyone to

give him a needle, (he is now seven).

> As far as your son 'spirited away' at birth, did he have a Vitamin k

injection at birth and what about hep B?

Report post · February 6, 2002

In a message dated 2/6/02 4:16:33 PM Eastern Standard Time, aspen@...

writes:

> Welcome K. I'm also a K. (K. being my midddle name) and new

> to the list.

>

> ~Mel ( sure is a popular name

>

I am as well, I guess we should start adding our middle name or last

initial. Funny, I hardly ever meet a but I guess they are out there.

Rae

260/180/140-150

Report post · February 6, 2002

PLEASE REMOVE ME FROM THIS GROUP

New Member

Hi,