New member

[Guest guest]

At 13:13 21/01/01 +0000, Kris Levario wrote:

>Hello,

>

>I'm Kris, new mom to Meghan Leigh born December 11th, 2000 with DS and

>VSD, floppy windpipe and a delight every day and night.

>

>Meghan is our 6th baby together, DH (Tom) and I have been married

>since 1978. We also have four sons and another daughter. The boys are all

>young men; Fred 23, Terry 21, 18, and 14 and our older daughter

>is 8.

>

> is having a hard time dealing with all the attention her little

>sister gets. In addition to getting a new sister, she also had to get

>her first pair of glasses. We have tried to help her with her jealous

>feelings but we are getting annoyed because she milks the situation.

>Any suggestions?

>

>Kris

May I suggest that you contact the sibs list?

They have two separate lists, one for adult sibs and one for children.

You might find them helpful.

sibnet@...

Israela

[Guest guest]

Dear Adrienne

You poor thing, you must be the youngest of us all! I am a fello sufferer

and I am very well at the moment, as are many on this site, so do not be

disheartened - there is hope!

I had two dilations with no improvement whatsoever but the third did give me

complete relief. That did only last a couple of years but things have

improved so enormously and also what you must appreciate is that they do not

want to dilate the cardiac spincter too much so at first they dilate just a

little and the second they try a little bit more. It is better that they do

it this way rather than over dilate.

If your surgeon does not have the relevant experience then I think you should

ask for recommendations from the fello sufferers on this site. I am sure

that they will be able to direct you to the very best that there is in this

field because that is what you you deserve - you are far too young to be

suffering from this condition and also no-one should carry on suffering if

there is relief on offer - the surgery option does appear to be very popular

with everyone here so I would recommend that you investigate all the

available options

I really am feeling for you and wishing you well

Take care

[Guest guest]

Hi Adrienne. Welcome! I just want to tell you that if it comes down to

surgery, you really want to find a good surgeon who knows how to do it

laproscopically. Mine started out like that, and turned in to thoracic

surgery (lack of knowledge on the surgeons part possibly). I was in

extreme pain and have a huge scar. I opted to get mine done with that

surgeon because it was close to home and convenient...don't do that. Go

as far away as you need to to get the proper care. I'm 25, I bounced

back fairly quickly, 2-3 weeks, but others who have it " the right way "

have a much shorter recovery. I don't mean to scare you in any way,

just speaking from experience (one I never want to go through again).

Research you surgeon! The extra effort really pays in the long run!!

Good luck with all and keep us posted!!

andi637@... wrote:

> Hi, my name is Adrienne, and I just joined the e-group. I'm so excited to

> know that there are other people out there who have Achalasia. I'm sixteen

> and was diagnosed in December with the motility test through my nose, which,

> as you guys probably know, was lots of fun I had one pneumotic dilation

> (the balloon) and that lasted a week. Then they did another one, on this past

> Friday. I was wondering, what have been some of your experiences with the

> pneumotic dilation? Did it work for very long. My doctor told me 3-9 months,

> and the first one lasted one week. Also, we were considering surgery, but my

> surgeon doesn't know how to do it laproscopically, so he'd be drilling

> through my sternum and leaving a big scar. Have any of you tried the surgery,

> and how did that go. I'm in the middle of my junior year in high school, so

> this is obviously somewhat of an inopportune time for me. Thanks so much, and

> I'm so glad I found this! I don't know anyone with Achalasia, not to mention

> anyone who's ever heard of it!

> sincerely

> adrienne

>

>

>

>

[Guest guest]

Hi Adrienne,

Welcome to the group! It is always comforting to know that there are other

people who understand what you are going through. I too have had a

dilatation that was completely unsuccessful. I am coming up on the one year

anniversary of my myotomy surgery. I have to tell you it was definately the

right decision for me. I eat with only a fraction of the dificultly that I

did before and I am eating just about anything I want. The only thing that

concerns me about you having surgery is that you aren't going to have it

done laproscopically. I don't know anyone who has had the surgery the other

way, but I have heard that there is a lot more recovery involved. Isn't

there someone that your doctor could refer you to that is able to do the

surgery laproscopically?

Keep us posted.

[Guest guest]

Hello, Adrienne.

>I was wondering, what have been some of your experiences with the

>pneumotic dilation? Did it work for very long. My doctor told me 3-9 months,

>and the first one lasted one week.

Mine lasted about two weeks and was not much of an improvement. There are

different sizes of the device they use. My doctor did not want to use the

next larger size because of risks of injury. You may want to discuss that

with your's. I have not had the surgery. If I do a lot of hiking my

problems are minimal. If I don't get my walks, then I suffer.

Jerry

[Guest guest]

Hello, Adrienne! I had the surgery about 3 months ago and I am doing great. I eat anything I want to, including soft bread. I am amazed at the difference! The dilations never lasted more than a few weeks with me. The ring of muscle just closed my throat up again. Do not have your surgeon do the operation! Go to someone with laparoscopic experience. Cracking the sternum will put you out of things for weeks. The laparoscopic type is only an overnight stay and you are home again. On a side note, I see that many people have not had a bad time with the manometry. My own experience was different, to say the least! My esophageal sphincter was so narrow that the tube would not pass through. It was the worst procedure I ever had and I will not, under any circumstances, have it done again. Anyway, good luck Adrienne and please consider the surgery, but only with an experienced surgeon.

Alan

new member

Hi, my name is Adrienne, and I just joined the e-group. I'm so excited to know that there are other people out there who have Achalasia. I'm sixteen and was diagnosed in December with the motility test through my nose, which, as you guys probably know, was lots of fun I had one pneumotic dilation (the balloon) and that lasted a week. Then they did another one, on this past Friday. I was wondering, what have been some of your experiences with the pneumotic dilation? Did it work for very long. My doctor told me 3-9 months, and the first one lasted one week. Also, we were considering surgery, but my surgeon doesn't know how to do it laproscopically, so he'd be drilling through my sternum and leaving a big scar. Have any of you tried the surgery, and how did that go. I'm in the middle of my junior year in high school, so this is obviously somewhat of an inopportune time for me. Thanks so much, and I'm so glad I found this! I don't know anyone with Achalasia, not to mention anyone who's ever heard of it!sincerelyadrienne

[Guest guest]

We talk about it ALL. From the cold to Lupus to Cancer. Mostly we talk

about our life, crab, cry, laugh, about whats going on with us.

melinda

At 01:19 AM 1/31/01 +0000, you wrote:

>I'm new to this group. I guess I'm trying to find out what exactly

>is talked about in this group. Is it general sickness, like colds,

>asthma, etc. or do you talk about more serious illnesses like cancer,

>etc.?

>

>Please let me know. Trying to find out if this group is the right

>one for me.

>

>Thanks,

>

>

>

>~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Being Sick Community

>

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>

> " Hold on to what is good, even if it's a handful of earth. Hold on to what

>you believe, even if it's a tree that stands by itself. Hold on to what

>you must do even, if it's a long way from here. Hold on to your life, even

>if it's easier to let go. " - Pueblo Prayer

[Guest guest]

Hi,

Welcome. We talk about different kinds of illnesses. I

have endometriosis, vulvodynia, Polycystic Ovarian

Syndrome, osteoarthritis, Generalized Anxiety Disorder,

Irritable Bowel Syndrome.

I hope that this gives you an idea of some of the illnesses

that we talk about on here, but we also have a lot of fun

by sending funny stories and things like that.

=====

Kristy

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

Get personalized email addresses from - only $35

a year! http://personal.mail./

[Guest guest]

Hello,

Welcome. I guess I will also list my current sicknesses followed by

what I have had in the past which will be followed by what my doctor

suspects. Current sicknesses first: osteoarthritis, almost-osteoporosis aka

osteopenia, TMJ, weak thumb/wrist joints, asthma, allergies up the yin/yang

and fibrocystic breasts. Past sicknesses: pyloric stenosis (cured by

surgery when 9-months-old), chronic ear infections as a child/teenager

(cured by surgery which involved enlarging the affected Eustachian tube),

uterine fibroids and swollen left Fallopian tube (cured on 8/23/00 by

removal of uterus and affected tube) and extra bone in ligament of the arch

of my left foot (cured by surgery on 12/14/95). Suspected illnesses are

lupus and fibromyalgia. I have been known to discuss any/all of these as

well as my infrequent colds/flus (overactive immune system, apparently) and

how family/friends/acquaintances treat me differently from before I got my

current sicknesses and how my life has changed since I got sick and how I

feel about it.

T. aka Pegasus

_______________________________________________________

Send a cool gift with your E-Card

http://www.bluemountain.com/giftcenter/

[Guest guest]

New Member

<<I'm new to this group. I guess I'm trying to find out what exactly

is talked about in this group. Is it general sickness, like colds,

asthma, etc. or do you talk about more serious illnesses like cancer,

etc.? >>

First off I wanted to say welcome! If you find this list is for you, you will really love it! I have severe asthma and I'm not trying to be rude but asthma is a very serious illness! I have lost two very close friends to asthma and I have almost died three times from it just within that last year I have lost count of all the other times! I have also lost three friends to cancer and almost my cousin, and one to cystic fibroses. Again I'm not trying to be rude, but I'm tired of people (family, teachers, friends, ect...) not taking asthma seriously! Again welcome, this is a wonderful group and all of the people here are great at lifting our spirits when their down! Take care.

Jessi () 16 y/o

Please let me know. Trying to find out if this group is the right

one for me.

Thanks,

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Being Sick Community

Help with Merger

/files/

Visual problems with colors?

Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts.

/join

Members Lounge:-

Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things.

http://www.elderwyn.com/members

Message Archives and Digest Attachment Pictures:-

/messages

Chat:-

Scheduled Daily Chats at # on IRC DALnet.

/files/chat.htm

Bookmarks:-

Add a website URL you have found useful.

/links

Personal Complaints or problems:-

Please contact a moderator either via email <-owner > or visit:- /files/Moderators.htm

Subscription Details:-

1) Individual email - means that every email sent to the list you receive.

2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.

3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.

To modify your subscription settings, subscribe or unsubscribe, please visit

/join

~~~~ *** ~~~ *** ~~~ *** ~~~~

“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer

--- Dorothy Rush

--- jmducky@...

--- EarthLink: It's your Internet.

[Guest guest]

Kim, The main problem I had was with olive oil soap. I make it first and

put in large mold for several days, and then remill to put in my fance molds

and add color and fragrances. The last couple of batches seem to seperate

when re-melting it. The oil seems to come away from the soap. I don't have

any idea what is happening to it.

Kathy

[Guest guest]

Hi Kathy,

Welcome to the Group.

What kind of problems are you having with your soap?

Kim

Kim Fuoco

www.honeybearsoap.com

New Member

> Hi everyone, My name is Kathy and I am 's cousin. I live in Niagara

> Falls, and have only been making soap for about two months. I started

with

> the M & P soaps and have moved on to CP. I have been having a few problems

> with the CP, so maybe I can get some help from someone. I belong to a

couple

> other groups, but said this was a great group, and I think it would

be

> more fun talking with people that live in my area. So I hope I will hear

> from you all, and who knows, I just might be able to help some of you.

> Kathy

>

>

>

[Guest guest]

I haven't had too much trouble Kim with the remelting my soap, most of the

time it comes out creamy. I do get that tough batch that I have to cram into

molds. Those go in the bathroom and no body knows I screwed up again.

I haven't tried the HP yet. But I am sure I will as soon as I figure out all

the problems with the CP. Thanks for your letter, Kathy

[Guest guest]

Hi Kathie.

I would try to use another recipe for rebatching,

Olive oil soap can be a little more difficult than other soaps, I would use

a recipe that produce a hard bar of soap.You would get better detail.

Why are you rebatching and putting your soap into fancy molds? It is pretty

hard to get a smooth bar of soap that is rebatched .

I have not had any luck at it .

MP is good for that .

If you make HP soap you can add herbs and things and the lye will not hurt

them have you look into that yet?

Kathey has a real nice web site that you can learn a lot from do you

have her web site? I don't have it on my new Computer. ( COULD SOME ONE GIVE

HER THE WEB ADDRESS FOR HER SITE?) lol.

I hope I helped a little.

Kim

Kim Fuoco

www.honeybearsoap.com

Re: New Member

> Kim, The main problem I had was with olive oil soap. I make it first and

> put in large mold for several days, and then remill to put in my fance

molds

> and add color and fragrances. The last couple of batches seem to seperate

> when re-melting it. The oil seems to come away from the soap. I don't

have

> any idea what is happening to it.

> Kathy

>

>

>

[Guest guest]

quick note here before I run my son to school....all those CP problems disapear

if you switch over to HP.

I do only HP now and would never switch back to CP.

Only problem I've had with HP is when I slipped with the green food coloring and

I came out with " Grinch Soap " lol

Terri...on my way out the door BRB

[Guest guest]

I dont have any trouble w/ CP. The results are worth the cure wait to me...

But thats me. We all have out own opinions, thats what makes life so

interesting. I also have a buddy who swears by rebatching. We tease each

other about our different ways but we totaly respect each other as well.

Today I'm giving a CPHP a try.. Wish me luck! Gonna make that

teatree/lavender pet soap with the milky way molds. I have my oils measured

in the crock and basically am waiting for hubby to get his butt out of bed

and to work before I really get into it.

Welcome New Members!!!!!!

Shaye

The Soap Shack

www.mysoapshack.com

Re: New Member

quick note here before I run my son to school....all those CP problems

disapear if you switch over to HP.

I do only HP now and would never switch back to CP.

Only problem I've had with HP is when I slipped with the green food coloring

and I came out with " Grinch Soap " lol

Terri...on my way out the door BRB

[Guest guest]

Hello fellow rambler.<br><br>Congratulations on

what sounds like a pretty good recovery from surgery.

It sounds like you feel better than before it, even

though you have to treat yourself like your're made of

eggshell.<br><br>I know how that feels! I used to exercise every

day, sometimes twice a day, and a few months ago I was

very proud of my strength, particularly in my thighs.

I teach exercise for a living (ironic) and had

worked on my bod for four years, relentlessly. It tuns

out that was part of the problem- overuse.<br><br>So

I totally understand the " getting used to the new

me " part. I really miss the days I used to be able to

work out normally, really work up a sweat, enjoy my

strength and flexibility. It's like my body belongs to

someone else now. I try to focus on good posture, strong

abs. But some days you just feel like a big lump,

right?<br><br>I'm 30, married with no kids. Dishes and laundry

totally piled up, a very busy husband who tries to

understand but I'm sure is wishing he had the " old me " back,

as much as I want the old me back, too!<br><br>What

we need to do is find ways to distract ourselves.

You are in Alaska? I've never been there, but I bet

it's amazing, even if you are standing still. (Or

laying down.) Have you ever considered painting

landscapes? I live in New York City. Lots of subway stairs to

contend with. Never thought I'd consider them a

workout!!<br><br>I hope every message I post won't be this long.

Nobody will read mine! Good luck,<br><br>J.

[Guest guest]

Hello toasted!<br><br>Yep, I know what you mean.

I'm 42 and was always proud of my fitness, at 39 I

had a fitness test and was told that had I been 40

(not 39) I would have rated olympically fit. I used to

" gym " regularly and did heavy leg work to build up my

legs. I could do single-leg squats easy and was

(unjustly as you say) proud of it, could run, ski, bike

everything like a 25 year old even when I was 41 (last

year). Didn't know I was wearing my body out. Then 6

months ago I was hit with knee pain, and it got steadily

worse. Ankles hurt now also. The sight of a staircase

now gets me panicking! <br><br>So it's a complete

turnaround for me too. I do look around and long to walk and

run properly like other people again. Even just

climbing stairs pain free would be a blessing. I still

hope that one day I will be doing those things

again!!<br><br>Anyway, this is a great site, and I hope you get a lot

out of it. (You too Jeannine!) Don't worry about

rambling... I'll always read your posts!<br><br>Keep taking

the glucosamine and be sure to do the

quad-strengthening excercises!<br><br>Joe

[Guest guest]

Chris..welcome to the group. I also have breast cancer and am looking for possible tx. Please let me know about the info you are waiting to recieve.Maybe we can compare notes.Thanks Judy Hoffman PS How much Flax seed oil is your wife taking? Thanks Judy Hoffman

New Member

Hello:

My name is Chris.My wife was recently diagnosed with stage 4 metastatic breast cancer.We were told that since there is no cure for this any chemo or other treatments they had would be palliative in effect and she agreed to chemo as we both were terrified.

However,I immediately bought a computer and am trying to learn about alternative therapies.She is currently using essiac tea,a vitamin regimen suggested by DR.Ralph Moss from a book about anti-oxidants and,thanks to info from Cliff B. , flaxseed oil and cottage cheese. Any success that others have had that pertains to this kind of cancer would be much appreciated,although I have not as yet had time to read all the archival info on this message board.

I am currently trying to find out about the anti-tumor properties of mercenene; a substance derived from the quahog clam.Has anyone heard of this? Some studies have been done by a Dr.Arlene Schmeer and am awaiting a fax from her concening this.Thanks and God bless all cancer sufferers and their families.

from CanadaGet HUGE info at http://www.cures for cancer.ws, and post your own links there. Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by visiting http://www.bobhurt.com/subunsub.mv

[Guest guest]

Hi Tess,

Good to hear from you. I've been sick with CFS for 30 years and did spend

my share of the time bedridden. I'm ambulatory now and use a scooter when

necessary. I hope you have an understanding doctor. That's a big help in

dealing with this unpredictable illness.

Welcome! You're in the right place. You will find a lot of medical, as

well as spiritual, support here.

Love,

Carol D. in NY

> Hi everyone, >

> Just a short note to say that I am a new member of this group. I live

> in the UK and I have suffered with CFS for 11 years now. I seem to

> get worse on a 3 monthly basis (every 3 months I go downhill

> drastically) and am now confined to a wheelchair when I want to get

> around and bed the rest of the time.

>

> Anyway, I hope I will be able to feel more at home here, with people

> who truely understand.

>

> Gentle Hugs to you all

>

> Tess

[Guest guest]

--

On Wed, 28 Feb 2001 11:10:40

Nazumi4 wrote:

>Hi everyone,

>

>Just a short note to say that I am a new member of this group. I live

>in the UK and I have suffered with CFS for 11 years now. I seem to

>get worse on a 3 monthly basis (every 3 months I go downhill

>drastically) and am now confined to a wheelchair when I want to get

>around and bed the rest of the time.

>

>Anyway, I hope I will be able to feel more at home here, with people

>who truely understand.

>

>Gentle Hugs to you all

>

>Tess

>

>

Hello & Welcome Tess

In the UK Dr. Ian Hyams would be your best bet.

He uses a simular protocol like Dr. Ali & Dr. Cheney.

I don't have an address for him but could get it from Dr. Ali if you can't

locate him.

I believe his clinic is in London

Best Wishes, Mike

http://www.fatigue.net

Get 250 color business cards for FREE! at Lycos Mail

http://mail.lycos.com/freemail/vistaprint_index.html

[Guest guest]

In a message dated 2/28/01 1:27:27 PM Pacific Standard Time,

mike_hellrazor@... writes:

<<

Yes I am a patient of Dr. Ali's. I am currently

writing up my protocol so others might see it.

I am interested in knowing what tests & treatments

Dr. Hyams uses. I'd like to compare protocols.

I've been working with Dr. Ali for about 9 months

now and I feel about 80 % recovered. I came down

with CFS in 1990. So despite 10+ years I'm coming

out of it. Dr Ali says that time doesn't matter.

You can still recover even if you've had it a decade

or more.

Mike

>>

Hi Mike, I am very excited to see your entired protocol. Are you doing any

intramuscular injections of vitamins? Not IV but injections of vitamins as

part of your protocol? I can't believe are you really 80% recovered!! That

is great! Are you using all different types are supplement brands or mainly

just the ones that Dr. Ali uses? PS. I am also interested in Dr. Hyams

protocols.

[Guest guest]

Hi Tess and Mike

>Hello & Welcome Tess

>In the UK Dr. Ian Hyams would be your best bet.

>He uses a simular protocol like Dr. Ali & Dr. Cheney.

I've recently become a patient of Dr Hyams and agree he is one of the

best in the UK if you want to follow the Cheney/Teitlebaum type regimes

(as I do). I really respect his knowledge and expertise in this field

and I like him as a person too.

However it should also be pointed out that he's a private doctor and one

of the most expensive. I'm very lucky to have a supportive husband who

is working and most of his earnings disappear straight into my numerous

tests and treatments. We go in and out of debt too because of it all!

However not all PWMEs can afford these doctors (most of my ME friends

have to survive on benefits because of their illness) and for example Dr

H charges £250 for each one hour consultation and that's without any of

the tests or treatments. He charges the same amount for phone

consultations. If you have less time with him, he does charge

accordingly though.

There is also Dr in Bolton who is also private but somewhat less

expensive and follows similar treatment regimes (a friend of mine has

just been tested for mycoplasma via him and is having GH treatment from

him).

There is also another similar doctor, Dr Myhill.

Both Dr and Dr Myhill have a lot of telephone patients.

Tess if you are still interested (I'm not trying to put anyone off, just

wanting to pass on the facts) you can find the details of these three

doctors on the MEChat website at http://www.mechat.freeserve.co.uk Go

to Jo and Von's section.

You may of course know about all these already!

I decided to see Dr Hyams rather than the others because I wanted to see

him in person once in a while and I'm in the South of England. Mind you

even that journey nearly kills me as I'm predominantly bedbound.

Mike are you a patient of Dr Ali? I'd be really interested to hear what

tests and treatments you're having. Is he helping you?

take care

Vicky

[Guest guest]

Hi again Mike

Out of interest, if you're a patient of Dr Ali, what makes you recommend

Dr Hyams and not Dr Ali himself?

Just wondered.

take care

Vicky

In message <OJPDIBEILODAAAAA@...>, Mike Hell Razor

<mike_hellrazor@...> writes

>

>--

>

>On Wed, 28 Feb 2001 11:10:40

> Nazumi4 wrote:

>>Hi everyone,

>>

>>Just a short note to say that I am a new member of this group. I live

>>in the UK and I have suffered with CFS for 11 years now. I seem to

>>get worse on a 3 monthly basis (every 3 months I go downhill

>>drastically) and am now confined to a wheelchair when I want to get

>>around and bed the rest of the time.

>>

>>Anyway, I hope I will be able to feel more at home here, with people

>>who truely understand.

>>

>>Gentle Hugs to you all

>>

>>Tess

>>

>>

>

>Hello & Welcome Tess

>

>

>In the UK Dr. Ian Hyams would be your best bet.

>

>He uses a simular protocol like Dr. Ali & Dr. Cheney.

>

>I don't have an address for him but could get it from Dr. Ali if you can't

>locate him.

>

>

>I believe his clinic is in London

>

>

>Best Wishes, Mike

>

>

>http://www.fatigue.net

>

>

>

>Get 250 color business cards for FREE! at Lycos Mail

>http://mail.lycos.com/freemail/vistaprint_index.html

>

>This list is intended for patients to share personal experiences with each

>other, not to give medical advice. If you are interested in any treatment

>discussed here, please consult your doctor.

>

>

[Guest guest]

--

On Wed, 28 Feb 2001 16:42:05

Vicky Gifford wrote:

>Hi Tess and Mike

>

>>Hello & Welcome Tess

>>In the UK Dr. Ian Hyams would be your best bet.

>>He uses a simular protocol like Dr. Ali & Dr. Cheney.

>

>I've recently become a patient of Dr Hyams and agree he is one of the

>best in the UK if you want to follow the Cheney/Teitlebaum type regimes

>(as I do). I really respect his knowledge and expertise in this field

>and I like him as a person too.

>

>However it should also be pointed out that he's a private doctor and one

>of the most expensive. I'm very lucky to have a supportive husband who

>is working and most of his earnings disappear straight into my numerous

>tests and treatments. We go in and out of debt too because of it all!

>

>However not all PWMEs can afford these doctors (most of my ME friends

>have to survive on benefits because of their illness) and for example Dr

>H charges #250 for each one hour consultation and that's without any of

>the tests or treatments. He charges the same amount for phone

>consultations. If you have less time with him, he does charge

>accordingly though.

>

>There is also Dr in Bolton who is also private but somewhat less

>expensive and follows similar treatment regimes (a friend of mine has

>just been tested for mycoplasma via him and is having GH treatment from

>him).

>

>There is also another similar doctor, Dr Myhill.

>

>Both Dr and Dr Myhill have a lot of telephone patients.

>

>Tess if you are still interested (I'm not trying to put anyone off, just

>wanting to pass on the facts) you can find the details of these three

>doctors on the MEChat website at http://www.mechat.freeserve.co.uk Go

>to Jo and Von's section.

>

>You may of course know about all these already!

>

>I decided to see Dr Hyams rather than the others because I wanted to see

>him in person once in a while and I'm in the South of England. Mind you

>even that journey nearly kills me as I'm predominantly bedbound.

>

>Mike are you a patient of Dr Ali? I'd be really interested to hear what

>tests and treatments you're having. Is he helping you?

>

>take care

>

>Vicky

>

Vicky -- Thanks for posting the info on Dr. Hyams.

Yes I am a patient of Dr. Ali's. I am currently

writing up my protocol so others might see it.

I am interested in knowing what tests & treatments

Dr. Hyams uses. I'd like to compare protocols.

I've been working with Dr. Ali for about 9 months

now and I feel about 80 % recovered. I came down

with CFS in 1990. So despite 10+ years I'm coming

out of it. Dr Ali says that time doesn't matter.

You can still recover even if you've had it a decade

or more.

Mike

http://www.majidali.com

or

http://www.fatigue.net

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