New member

Report post · September 2, 2007

Yolanda - this response is a little lengthy and I apologize for that but felt it

was necessary to appropriately respond. Of course, I consulted my husband

regarding my response. You inquired about how my husband who is an upper

cervical chiropractor could help your son who has autism.

Upper Cervical Care is a strict discipline of Chiropractic that focuses on

monitoring the cervical spine where the brain and the spinal cord meet forming

the brainstem. The brainstem is the “main power supply” of your body. Just

about every nerve in your body meets and travels through the brainstem.

Irritation to the brainstem will cause the body to malfunction which in turn may

cause sickness and/or disease.

When the first (C1-Atlas) or second (C2-Axis) vertebrae in your spine misalign

(called a subluxation), there is pressure on the brainstem interrupting

brainstem function. Eventually, the brain and/or bodily functions will be

affected.

People with autism have a neurologic and/or chemical imbalance in the brain.

This imbalance is presumably caused by the introduction of toxins to the body

(mercury, vaccines, etc.) As we know, not everyone who receives a vaccine

develops autism. Why is that? Because most people’s immune systems are strong,

functioning properly and able to respond and rid the body of the toxins.

When there is a subluxation, there is nerve interference in the brainstem

affecting the body’s normal functioning and responses to such toxins. Just about

everyone is subluxated to some degree – some more than others. Because there are

trillions of nerves in the brainstem, everyone’s body will be affected in

different ways and to different degrees (hence the over 26,000 different named

diagnoses). My husband had a patient with autism (he saw him from age 5 to 7)

who was non-verbal, introverted and would “flap his hands”. The hand flapping

was his body’s way of getting rid of built up neurologic stimulation in the

brain. After 5 months and 3 UC adjustments, he began speaking, was more

extroverted (could play with kids at school), began participating in sports, and

eventually the hand flapping stopped. (Please note, this is just one example

and not everyone will respond in the same way).

Upper Cervical Chiropractors adjust the C1 cervical vertebrae to relieve the

pressure on the brainstem, allowing the body to function at its optimum (without

drugs or surgery). The intent with the Upper Cervical adjustments is NOT to

“treat” a condition or disease but rather to maximize that person’s own innate

functions.

Autistic children can benefit from UC adjustments (just as anyone can) because

it allows the body its best opportunity to heal itself and function at its

optimum – if a body can degenerate, it must be able to regenerate.

I would love to send you a DVD that my husband created that more fully

explains UC care and/or put you in touch with him directly. We know of 2 UC

docs in OH - one in Portsmouth and one in Waynesville - not sure if they are

close to you or not. Some offices do take insurance while others are cash only.

I hope this answers your question....

St. Louis, MO

Yolanda <hunterandyo@...> wrote:

,

I would like to know more about what a chiropractor like your hubby can do for

my son, Hunter, who is 9 and has autism.

I responded to an ad by a chiropractor last year who put a full size FYI about

the hidden ingredients of ice cream. It made me not to want to eat the stuff

again! He wanted to run some allergy tests on my son, but my insurance wouldn't

cover it. I haven't tried again since I'll probably run into the same thing.

I have taken Hunter to a DAN! doc in Youngstown, OH when we first moved here. He

didn't then, and still doesn't have any issues that need counseling, but part of

the service was to see the therapist first and then see the doc in one week, but

it was an hour drive and that much travel time wasn't possible. We live in a

little bit closer now, maybe I should reconsider. My son is extremely

introverted and his hand flapping and toe walking has not lessoned much at all.

I do not want him on medication.

~ Yolanda

www.hunterweekly.com

---------------------------------

Park yourself in front of a world of choices in alternative vehicles.

Visit the Auto Green Center.

Report post · September 3, 2007

Thanks for your detailed reply. Both Portsmouth and Waynesville are south and

west of Columbus, and from me, Columbus is three hours. Is it possible to get

in touch with them and see if there is anyone else closer?

Do you know if the patient you mentioned was taking any supplements or other

treatments?

~ Yolanda

Marsupium...Where Children Go To Dream

www.marsupiuminc.com

Oh, Brother! Weekly - A place where missed family and friends can read updates

and see pictures of my boys, the oldest living with autism.

www.hunterweekly.com

---------------------------------

Boardwalk for $500? In 2007? Ha!

Play Monopoly Here and Now (it's updated for today's economy) at Games.

Report post · September 12, 2007

Dear ,

As I have written on 's site, vitamin B1and hot drink helps me.

Jurek

On 8/31/07, Marching On <marching.on@...> wrote:

Hi, I'm new here. My name is . I'm in my late 30s and I'm from Somerset in the UK.

After several months of being unable to eat anything in 2003 (and losing some 8 inches around the waist!), I was finally diagnosed with achalasia and underwent two balloon dialtions at my local hospital.

Although I can now eat almost anything I like, meal times are still uncomfortable for me, especially just recently when I've been getting very choked up.

I am not losing any weight at the moment but I am thinking of going back to my doctor to discuss further possible options - another dialtion? an operation perhaps?

The only things I try to do to counteract the problems are:

(i) concentrate on breathing through my nose when I eat and,

(ii) eat slowly and chew things into small pieces

However, it's very easy to revert to normal eating mode, forget the above and end up with some painful problems.

If anyone can suggest other things to do / be aware of, I'd be grateful.

I've not really noticed which foods make it worse. Sometimes it's bread but other times, I find it is easy to eat (especialy hard crusty bread which you'd think would be difficult).

I do find that a beer sometimes helps before a meal - it has to be a real ale and not a gassy lager though. Whether it relaxed the muscles inside, I don't know.

Has anyone discovered any drinks or foods that help with their eating?

I also wondered what alternative therapies have fellow sufferers found useful.

I'm sure you have discussed many things in the past so it might be easier to write to me directly rather than repeat it again here. If so, my e-mail is

marching.on@...

I will be extremely grateful for absolutely any help anyone can provide.

I have posted a similar message on the alternative treatment group but thought I'd replicate it here as there seems to be more people on this particular list.

I'm normally quite a positive person but I have to confess that the condition has got me down in recent days as I am having problems every mealtime. However, I know there are much worse things to suffer from and I'm sure that by contacting others who know what's it's like will be of some help to me.

Thank you for listening.

Regards,

Report post · October 10, 2007

Dear Zlatko,

I can confirm what I have written in March to , 'I have achalasia since June 2006, diagnosed I presume in Dec. In last two weeks, I have tried Vitamin B (B1) in various forms of B complex forte, etc multivitamin for men and women. It works for me too. My symptoms are reduced by 2/3. All food grain type, vegimate, rich in Vit B1 and hot drink helps me.

http://www.achalasia.net/forum/viewtopic.php?t=223

Jurek, another electrical engineer

On 10/10/07, zlatko_mateljan <zlatko_mateljan@...> wrote:

me 28 years old electrical engineer just finished with my studies and got first symptoms year agoIs there any hopewe are such a little group of people for medical stuff to care abouth I was digging info for a weeks and concluded

all the procedures of surgery is a lego bricks from other sicknesisaplied to achalasia patientsis standard laparoscopic miotomy with toupet fundo for $15000 the best a achalasia patient can buy. 90% of success for symptom halvation in 5 years of time. then repetition and each next one gets worse.i m well aware of mechanics of Ahave you heard of some new research with pacemaker on the bowels and mechanical valve implants in LES that could be aplied in this case. mechanical valve implants are not internationaly legal yet.zlatko_mateljan@... i m not selling anything

looking for union

Report post · October 31, 2007

Welcome and read my article on the evolution of PA and take to your Dr.

Which tests were done and what were the results.

A 4 cm tumor is a large one for PA.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's new at http://www.aol.com

Report post · October 31, 2007

hi there thanks for your response

i am 34 yrs old, fairly heathly but had 2 cut down on nearly all excersive over

past 2 yrs cos bp never below 105/10- 180, im 6 ft tall and 14il 7 ish, i do

smoke occasionly but hardly ever dring these days !!!

i had a blood test done which takes 7 weeks 2 come back, got a phone call on a

friday saying could i go 4 a cat scan the next tuesda, had a massive panick new

they had found something,luckily its not cancerous.

not sure on the figures but the test showed very high aldosterone

was gonna be put on spiro but not now gonna be put on differnt drug, bp has been

more stable over last month on 3 lots of pills though, consultant making me an

appointment with surgeon 2 discuss removal options, does all this seem normal u

seem 2 be very experienced, been reading some of your answers to other

questions, thank u for all your help oh p.s whats a pa probably obvious !!!

regards gary

Re: new member

Welcome and read my article on the evolution of PA and take to your Dr.

Which tests were done and what were the results.

A 4 cm tumor is a large one for PA.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc. com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

************ ********* ********* ********

See what's new at http://www.aol. com

Report post · November 1, 2007

Again read my article and take to your Dr. You want to know how many fo these

surgies has your he done like you and followed for 5 or more years so he

knows the success rates.AS YOU CAN SEE FORM our files we only recommend surgey

if

BP and K cannot be controlled with drugs and then only if AVS suggests that

taking it our will help. What was your renin and have you had low K problems?

My article will explain why your BP drugs are not working-they don't work in

PA.

CE Grim MD

**************************************

See what's new at

http://www.aol.com

Report post · November 1, 2007

BE certain that blood has been drawn and processed properly to detect low K.

We have guidelines in our files.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's new at http://www.aol.com

Report post · November 1, 2007

Please get all of your Na and K results and plot them also. As far back and

your health care team can track them.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************************************

See what's new at http://www.aol.com

Report post · November 1, 2007

Dr. Grim,

Thank you so much for taking the time to write.

I have been undergoing testing and diagnostic evaluation from 2

primary care physicians (1 internist and 1 family practice) since the

end of May 2007.

The PCPs did not check my renin levels; though, in Sept 2007, my

serum aldosterone level (sitting) was 85.4 [lab norm 4.0 to 31.0].

I began seeing a

local (San , Texas) endocrinologist approximately 3 weeks

ago. She took serum and 24-hour urine tests on a normal diet (which

for me is generally

fairly high in sodium), and then again after 3 days of salt

loading. I am awaiting those results.

I am 47, slender and I have always had low blood pressure. Recently,

my blood pressure has been WNL, but higher than in the past.

My serum potassium and sodium levels have been checked and have been

WNL.

Otherwise, my symptoms mirror those for hyperaldosteronism.

Any guidance you can provide, particularly as to physicians or

hospitals, will be greatly appreciated. I am able to travel out-of-

state, if necessary to receive proper diagnostic

and/or therapeutic care.

Report post · November 3, 2007

Judi, the new drug just approved for fibro is Lyrica or pregabalin.

It is a new anti-seizure drug. I don't have a diagnosis of fibro, but

have had severe constant head pressure for 17 months now with anxiety

attacks during the night. I don't know what caused this. Anyway, I

finally started the Lyrica in desperation. It certainly has reduced

the poor sleep and anxiety during the night. It does not seem to have

relieved the head pressure, but FOR NOW the penicillin VK is helping.

However, I would be hesitant to recommend that you try what I am

trying just because I wrote this.

My opinion after several years of relative recovery is that cfids and

fibro are infectious diseases caused by a few chronic, severe

bacteria and maybe some viruses in the mix. It is very difficult to

address these infections in any effective way. I actually recovered

to some level on three years of 500 mg of Zithromax a day. I also

used whey protein, ImmunoPro RX, and some other stuff. I know I am or

was infected with mycoplasma, 2 strains, EBV, and borrelia aka Lyme

disease. I probably also had babesia.

I have no idea if I have recovered from the infections. My current

symptoms do not seem like the symptoms I had in 1995 when I first got

sick which leads me to think this is something else. It may well be

damage from some medication I took such as quinolone antibiotics. I

think they are the kiss of death at least for me.

Okay, I have written more than enough. I hope you can find some

aspect of your illness that is treatable. Meanwhile the Lyrica is

probably useful to treat symptoms.

a Carnes

>

> Hello

> I am a few days short of 59 and have had many of the consequences

of

> FMS. I have an ileostomy and suffer from osteoarthritis. I have

TMD

> formerly known as TMJ with oral facial pain, and severe bone loss

for

> reasons not yet clear, but may be related to a mis treatment of

anemia

> with thyroid hormone.

> There is nothing simple about my life or my health care, and the

stress

> of that is really getting me down. I recently changed doctors and

she

> mentioned there is a new medication for FMS that is FDA approved,

but I

> do not know the name of it. I also tried a program created by a

> Rheumatologist that uses Requip(restless leg syndrome) for FMS. I

sort

> of nutted up after being on them a very short time. I also have a

> problem with many anti depressants for the same reason.

> I am currently taking Vicoprofen and skalaxin but do not get much

> relief. Soon I will start accupuncture and chiropractic

adjustments

> for ileal sacral pain, and wonder if this might aggravate my FMS.

> If there are any of you on list that have similar problems please

write.

>

> Judi

>

Report post · December 13, 2007

Hello Carl,

I am glad you are OK now and have joined the group. I was implanted 1/06 and have so far not been zapped. Thank goodness you were in a place where you could get good care.

Take care,

Sydney

New Member

Hi all, My name is Carl and I'm from the town, PA area. I was implanted with a Medtronic Virtuoso DR ICD on Oct 9th (unfortunately, the ventricular lead is a Sprint Fidelis which is on the recall, which concerns me somewhat - comments on that issue are welcomed). I lost my "" status at 9:00 PM HST (in Hawaii) on Dec 7. I had noticed some short runs (1-3 seconds or so) of VT in the pulse sound of my electronic blood pressure meter (hadn't really felt symptoms other than being really tired from a long trip) and thought "that's odd." (I had, pre EP study, ablation(s), and implant, been more troubled with PVCs than AT/AF or VT ... I was "throwing" >15,000 PVCs/day and was "normally" in Bradycardia at about 40 bpm, so runs of VT seemed odd.) A few minutes later (fully conscious, still with no real, noticable symptoms), WHAM!!! ... one 35 Joule pulse. Not as excruciatingly painful as I had expected, but it really "rocks your world" doesn't it? After the shock, I was feeling OK, so I called the on-call at my cardiology group in PA and he (someone I've never seen) indicated "one shock can probably wait until you come home for readout IF you're feeling NO symptoms, but if you get shocked again, or feel symptoms, call 911." In the morning I called the ICD/pacer clinic in PA and was told they wanted a readout ASAP, so I returned from the North Shore of Oahu to Queens Medical center in Honolulu, where they examined me, put me on a monitor, did an EKG, and paged the Medtronic rep (who arrived within about 30 minutes or so, read me out, showed me all of the strips/data and explained them all to me quite thoroughly). All of the strips/data and my then current EKG were faxed to my EP in PA and he indicated that the therapy was appropriate, the device did what it was supposed to do, and things looked OK at that time. He said to double my metroprolol from 50mg 2x daily to 100mg 2x daily and the local ER doc wrote a RX for me so I could get that at the local Walmart pharmacy. All in all, I spent about 2 hrs in the ER at Queens. Very friendly, attentive, courteous, and efficient service. If you're ever in Hawaii and need cardiac care, it's the place to go. I'm now on Kauai and OK so far (returning to PA on the 17th). What happened is that I went into AT/AF at rates between 350-700 bpm and in trying to keep up the ventricles got to 188. The device first tried to overpace me out of the VT and when that failed it charged the capacitor and zapped me, which fortunately returned me to a normal rythm. Anyway, I hope I don't get zapped too often Regards, Carl

Report post · December 14, 2007

Hi and welcome!

I’m sorry to hear about your shock.

It sounds to me like you were shocked out of atrial fibrillation.

Please feel free to stick around and ask

any questions you may have. That’s what we’re here for.

From: [mailto: ] On Behalf Of Carl R. son

Sent: Thursday, December 13, 2007

4:13 AM

Subject: New Member

Hi all,

My name is Carl and I'm from the town,

PA area.

I was implanted with a Medtronic Virtuoso DR ICD on Oct 9th

(unfortunately, the ventricular lead is a Sprint Fidelis which is on

the recall, which concerns me somewhat - comments on that issue are

welcomed).

I lost my " " status at 9:00 PM HST (in Hawaii) on Dec 7.

I had noticed some short runs (1-3 seconds or so) of VT in the pulse

sound of my electronic blood pressure meter (hadn't really felt

symptoms other than being really tired from a long trip) and

thought " that's odd. " (I had, pre EP study, ablation(s), and implant,

been more troubled with PVCs than AT/AF or VT ... I was " throwing "

>15,000 PVCs/day and was " normally " in Bradycardia at about 40

bpm,

so runs of VT seemed odd.)

A few minutes later (fully conscious, still with no real, noticable

symptoms), WHAM!!! ... one 35 Joule pulse. Not as excruciatingly

painful as I had expected, but it really " rocks your world " doesn't

it?

After the shock, I was feeling OK, so I called the on-call at my

cardiology group in PA and he (someone I've never seen)

indicated " one shock can probably wait until you come home for

readout IF you're feeling NO symptoms, but if you get shocked again,

or feel symptoms, call 911. "

In the morning I called the ICD/pacer clinic in PA and was told they

wanted a readout ASAP, so I returned from the North Shore of Oahu to

Queens Medical center in Honolulu, where they examined me, put me on

a monitor, did an EKG, and paged the Medtronic rep (who arrived

within about 30 minutes or so, read me out, showed me all of the

strips/data and explained them all to me quite thoroughly).

All of the strips/data and my then current EKG were faxed to my EP in

PA and he indicated that the therapy was appropriate, the device did

what it was supposed to do, and things looked OK at that time. He

said to double my metroprolol from 50mg 2x daily to 100mg 2x daily

and the local ER doc wrote a RX for me so I could get that at the

local Walmart pharmacy.

All in all, I spent about 2 hrs in the ER at Queens.

Very friendly,

attentive, courteous, and efficient service. If you're ever in Hawaii

and need cardiac care, it's the place to go.

I'm now on Kauai and OK so far (returning to

PA on the 17th).

What happened is that I went into AT/AF at rates between 350-700 bpm

and in trying to keep up the ventricles got to 188. The device first

tried to overpace me out of the VT and when that failed it charged

the capacitor and zapped me, which fortunately returned me to a

normal rythm.

Anyway, I hope I don't get zapped too often

Regards,

Carl

__________ NOD32 2720 (20071212) Information __________

This message was checked by NOD32 antivirus system.

http://www.eset.com

Report post · December 14, 2007

Hi Carl welcome to the world of Bionic Hams, Sorry to hear about the

zap. I looked you up on QRZ and that is an impressive resume you have

there. I'm also aware of your problems with ARRL. I wish you the best

of luck with them. They can be !@#$%%^ sometimes. I Hope you have a

great time in KH6 land, I've been there several times in Navy. My name

is Bob and call is NE7NE. I have had my ICD since Dec 2001 after a

cardiac arrest on Dec. 7, 2001. Now we both have our own Pearl Harbor

day. So far have had 16 zaps and am now on ICD #3 a Medtronic Intrinsic

but with Biotronic leads as my first 2 ICD's were Biotronic. Sounds

like we have similar problem bradycardia along with runs of Vtach with

lots of PVC's. I just tell people " I'm an electrician with a short in

my wireing " .

Take care and hope maybe some day to see you in the logbook.

Welcome to the Zapper as this is the largest and best support group

for ICD folks on the web. 73's

Bob W. NE7NE

P.S. There are a couple other Hams here lurking somewere in the

background.

--- >

Report post · December 17, 2007

---

Hello !

I was very concerned when I got the stimulator that I would not be

able to get pregnant with the stimulator and my doctor and the

medtronic guys informed me that I was able to in fact get pregnant

but I would not be able to turn the stimulator on during the

pregnancy. The stimlator itself would not be a problem but the

stimulation may. I hope this helps!

Nikki

In Stimulator , " j.ferber " <j.ferber@...> wrote:

>

> Hi all,

> I am a new member to this site. I was wondering if you can have

the

> stimulater in and get pregnant at the same time? Also, how many of

> you also take somne sort of Rx for your disease? If so, what

kind.

> Like heart meds. vs. opiods? Thanks for your answers.

>

Report post · December 17, 2007

I have RSD and have an SCS impant. I still have to take meds three times daily.

I am on Ultram, Methadone(methadose) and Toprol(for migraines),Doxazosin (for

the heart HBP). I hope this helps you.

a

New Member

Hi all,

I am a new member to this site. I was wondering if you can have the

stimulater in and get pregnant at the same time? Also, how many of

you also take somne sort of Rx for your disease? If so, what kind.

Like heart meds. vs. opiods? Thanks for your answers.

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Report post · December 18, 2007

,

WELCOME TO THE GROUP! I am still taking Neurontin after my SCS. I also

have an intrathecal pump which contains an opiod. I do not know about

pregnancy and the SCS. That would be something to ask your Doctors.

_____

From: Stimulator [mailto:Stimulator ] On

Behalf Of j.ferber

Sent: Wednesday, November 28, 2007 7:08 PM

Stimulator

Subject: New Member

Hi all,

I am a new member to this site. I was wondering if you can have the

stimulater in and get pregnant at the same time? Also, how many of

you also take somne sort of Rx for your disease? If so, what kind.

Like heart meds. vs. opiods? Thanks for your answers.

Report post · December 18, 2007

I checked into seeing if I could get pregnant with the stimulator and also was

told that you could. However, I did not hear that you could not have the device

on. My physician in North Carolina has had a pregnant woman have a baby and

have the stimulator on the entire time. It cannot be turned up as high as you

probably would like it but if you have one in, some is better than nothing. I

made the decision that it was a lot safer to have a baby with the stimulator

than the pain medication. You do have to work closely with your OBGYN to watch

closely. Hope this helps.

Marci B.

turbo040624 <nnels702@...> wrote:

---

Hello !

I was very concerned when I got the stimulator that I would not be

able to get pregnant with the stimulator and my doctor and the

medtronic guys informed me that I was able to in fact get pregnant

but I would not be able to turn the stimulator on during the

pregnancy. The stimlator itself would not be a problem but the

stimulation may. I hope this helps!

Nikki

In Stimulator , " j.ferber " <j.ferber@...> wrote:

>

> Hi all,

> I am a new member to this site. I was wondering if you can have

the

> stimulater in and get pregnant at the same time? Also, how many of

> you also take somne sort of Rx for your disease? If so, what

kind.

> Like heart meds. vs. opiods? Thanks for your answers.

>

---------------------------------

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Report post · January 5, 2008

Jodee

Welcome to the group. Steriod weight is horrible to

try and lose, and steriods are just plain terrible to

be on. I am curious what type of brain surgery you

have had. I also had brain surgery forthe removal of 2

meningioma's which are benign brain tumors. When I was

on the steriods I had to have insulin. but as soon as

I came off the steriods I had no problems. My last A1C

was 6.1.

Vickie

West Virginia

HOme of the Mountaineers Fiesta Bowl Champs

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Report post · January 6, 2008

Welcome Jodie. We are about the same weight. Good Luck with your dietician. Let us know what she says.

N.H.Start the year off right. Easy ways to stay in shape in the new year.

Report post · January 6, 2008

Hi Vickie,

I am a right craniotomy resection to excise a 1.5 cm colloid cyst in the 3rd

ventricle of my brain. Apparently I was born with it but over time it grew

and shifted and blocked the 3rd ventricle where your cerebral fluid flows

down your spinal chord. Because the fluid was trapped in my head I had

acute hydrocephalus which caused me to be altered and was life threatening.

In my case they gave me Decadron that coupled with being laid up after

surgery not feeling myself for months had me packing on pounds at an

alarming rate. I got off those steroids and then was put on Prednisone

multiple times in a row for bronchitis. So two years after surgery after

being on steroids an extended time, my A1c was 9.9 and I was diagnosed with

diabetes. My doctor put me on 500mg Metformin. Just a few months later

after getting off all steroids and adding exercising and eating right to my

life my A1c had dropped to 5.5 which is normal and I was taken off the

Metformin. It will be 7 years since surgery on 2/19/08. I am hoping that

after regaining weight because of undiagnosed hypothyroid the last two years

that now that I am on medication for it that once again I can get the weight

off and get my blood glucose back under control.

How are you doing? Do you have any lasting side effects of your surgery?

Jodee

Welcome to the group. Steriod weight is horrible to

try and lose, and steriods are just plain terrible to

be on. I am curious what type of brain surgery you

have had. I also had brain surgery forthe removal of 2

meningioma's which are benign brain tumors. When I was

on the steriods I had to have insulin. but as soon as

I came off the steriods I had no problems. My last A1C

was 6.1.

Vickie

West Virginia

HOme of the Mountaineers Fiesta Bowl Champs

Report post · January 8, 2008

Hi Jodee - welcome to our group!! I hope you learn lots from the dietician that will help your program.

in WAStart the year off right. Easy ways to stay in shape in the new year.

Report post · January 23, 2008

Hi and welcome! Do you have access to any sibshops in your area of

land (check with local ARC)? Sounds like Caitlyn would benefit from having

other sibs to talk to. Sounds like the girls are really playing you, too. I'd

try to encourage Caitlyn that Angel is not her responsibility. I'm sure you

will get more responses - probably more private emails than anything. My son

with DS is the youngest - I didn't have to deal with those issues, but I did

work hard to give each of my other children individual time - including being

babied. I still baby my 26 year old at times...lol.

New member

Hi everyone!

My name is ....I have a 17 yr old with DS, a 15 yr old with

DS, and an 11 yr old with ADD. Oh, and I also have a 30 something yr

old big kid (aka, my husband!) We live in MD with our two poochies

and kitty. We just moved here 3 years ago. I came across this group

description online and was very interested that its goal is to take

the whole family into consideration, not just an individual. Given

that, I need serious help, so I'll plunge right in!!!! Serious

problems with the girls, Angel (15 yr. old) and Caitlyn (11 yr.

old)!!! They are constantly fighting, aggravating each other 9and

me!) and trying to get one another in trouble. I mean constantly.

People have said, " it's normal sibling rivalry, " but I don't think

it is. This is extreme where they virtually never get along. Caitlyn

is telling on Angel all the time. Angel like to take shortcuts all

the time, if she can get away with it. Knowing that her dirty

clothes belong down by the washer, she will try to throw them in her

room after a shower. If caitlyn sees her doing this, she will say

LOUDLY, " Mom, didn't you tell Angel to take her clothes downstairs? "

Or " Angel, those don't go there.... " (but not in a nice helping

tone). Angel on the other hand, knows that Caitlyn gets easily

irritated, and preys on that. She will do and say things (or make

noises) just to set Caitlyn off. As many thousand times as I have

tried to explain to Caitlyn that if she ignores certain things she

doesn't like, Angel will stop because then she's not getting the

attention for it....she just can't bring herself to ignore her. I

think Caitlyn feels resentful of Angel....she thinks Angel gets more

attention and gets babied. Looking at it objectively, I can say that

she does not get more attention. Babied...well, sometimes guilty as

charged. I really need some advice. I can explain things in a more

understandable way to Caitlyn, so any suggestions on what to say to

help her try to get along with her sister better? Or anything I can

do to promote the relationship? I can see she is struggling with the

dynamics of the relationship and it is making the whole house crazy!!

Sorry for the long post.....Thank you for bearing with me.

Report post · January 24, 2008

Welcome to the group.

I have 2 girls, who is 16 with DS, and who is 12, no disability. We

have had similar issues around here. They have come from feeling that she

is responsible for everything does, and trying to be another " parent " , and

then in reverse with totally resenting . There is a fine line

between helping and telling her what to do.

I have really had to step in, almost constantly at first, reminding that

is capable of doing things, and reminding that she is not in charge.

I am in charge, and if does something wrong, I will discover it, and that

it isn't her " job " to tell me, unless there is a safety issue involved. I have

literally stopped in mid sentence to tell her to stop the tattling. Also,

when I have had to discipline for something, whether it is a punishment or

just having a talk, I noticed was always hanging around, and trying to put

her 2 cents in. I have had to remind that this is between and I,

and is not her business (sounds blunt, but that was the only way she got it).

Another problem I had, was I would find something that someone had done that was

wrong. Now, I didn't know which girl did it, but it needed to stop. So I would

sit them both down to talk about it, and immediately the blame game would start.

Then I raise my hand, stop them both in mid sentence and say " I didn't ask who

did it. I am not interested in who did it. I am simply talking to both of you,

asking that it not be done again. " They both have responded well to this.

And I have started again having Mom and girls time. I had let this go for

awhile, but have now started again. This is a day where no friends are allowed

over to the house, or if we go out, to the movies for example, no friends are

allowed along. We do fun stuff, but I always have some " talk time " , where we

are sitting together, and the 3 of us are talking. The girls love this. Even

in a restaurant, we talk, or sometimes do a simple game, such as the ABC game

(my name is Alice, I will marry Albert, sell apples and live in Albany, the

girls love this). And if any arguing starts, I stop it immediately. But

lately, no arguing starts.

I think it is very easy to begin relying on the child without DS to take on

responsibility for their sibling. I think I have been guilty of this, and once

I could see this, I have really had to step in and take care of it. and I

have had many conversations about DS, and , and what she is or isn't

capable of. I also have really emphasized that is not helping her by

telling on her all the time. On the other hand, does want to help her

sister, so I do pick and choose situations carefully and will ask to help

. Then I also try to find situations for to help .

Their relationship was also one of the reasons we started going to the NDSC

convention. They have a great sibling program. And we don't have a lot of

adults with DS in this area to serve as role models, and the convention is a

great place for to see other people with DS, and see and hear about their

capabilities.

Anyway, sorry this is so long. Hope some of this helps!

Sharon H.

Mom to , (16, DS) and , (12)

South Carolina

www.gsdss.net

" Be kinder than necessary, for everyone you meet is fighting some kind of

battle. "