New member

[Guest guest]

Dear Holly,

Since you have posted your original message, you have received many responses,

and you have been most gracious to those who have taken the time to help you. 

Everyone has to decide for themselves, hopefully after fully exploring their

options, what course of action is the best for themselves.  I was wondering if

you would share with the group your thinking as to why you decided not to have

the surgery for now?

Re: New member

Dana,

Thank you so much for telling us your experience (very detailed) and

that helps me alot as far as my nerves go. I have actually decided

against surgery for now. I wish your daughter and you the very best

Holly

>          Hello my name is Holly and I am 24 years old from

southwest colorado.

> I have been suffering from achalasia since i was 15 and I am

scheduled

> for my first esophogeal myotomy Aug. 14th and was wondering if

anyone

> could tell me about their personal experiences with the procedure.

I

> have had dilations done and had an ER scare back in May when I

> developed bleeding ulcers in my esophagus and began throwing up

large

> amounts of blood and was put in the ICU. I had a dilation done

after

> that but it was recommended that I have the myotomy surgery done.

Im a

> bit afraid of having the surgery done after hearing some awful

stories

> of worse symptoms aftewards and I am also a very slow healer. If

> anyone can tell me anything at all of their experiences I would

> greatly appreciate any advice I can get.

>

>

>

>                           

>

>

>

[Guest guest]

Hi to all,

I decided against surgery because I dont feel that the surgeon that

would have been preforming the surgery was experienced in the myotomy

procedure. With his help I will find a specialist that is. I would

like to go to the Cleveland Clinic as my first choice but the reality

of that is pretty small seeing as how I have to go through Indian

Contract Health and IHS for my treatment. I'm pretty much left at

their mercy unless I want to pay full out of my own pocket (And quite

frankly I have yet to learn how to grow a money tree so thats outta

the question). He suggested the Mayo clinic in Minn. or there is a

Mayo clinic in Arz. which would help me because it is so much closer

and I think with my push and Dr. Rainer's shove we could convince IHS

to send me there. I am currently health apart from the " A " . I weigh

anywhere from 130 to 135, It depends on the scale and am 5'5, I

have quit smoking (1 pack every week and a half) and have cut back on

my alcohol consumption. After my stint in the hospital at the end of

May because of bleeding ulcers in my esophagus it was Drs orders to

stop smoking, no carbonation, no caffeine and no alcohol until my

ulcers healed. When I went back a month later and they were all

healed up he did a dilation on me. I refrain from junk food (fast

food, chips, candy,things of that nature) and I continue to drink

very little caffeine because it tends to give me heartburn and never

was much of a soda fan so I dont really drink anything carbonated

except a good microbrew ale here and there. I have suffered from " A "

for about 10 yrs now so I have learned what I can eat and cant and

how to go about eating properly so the toilet and my esophagus dont

communicate so much. I try to eat more in the morning with a decent

sized breakfast and tend to snack here and there throughout the day

instead of eating lunch. My sweetie and I have small dinners and take

a walk afteward to help my food go down and BONUS!! keep my jeans

looking good. I try to keep myself active and in good spirits and I

think Im doing quite well and I feel that as long as I continue to go

in for monitoring and dilation then I can keep from having the

surgery at least for a few more years, which is how long it might

take to get anything done. I try to always see things in a good light

which isnt always easy but I have faith that things will work out for

me, it just might take a little time to get there but I have a great

family and thanks to this group support from people who understand

what living with " A " is like.

Thanks

Holly

> >          Hello my name is Holly and I am 24 years old from

> southwest colorado.

> > I have been suffering from achalasia since i was 15 and I am

> scheduled

> > for my first esophogeal myotomy Aug. 14th and was wondering if

> anyone

> > could tell me about their personal experiences with the

procedure.

> I

> > have had dilations done and had an ER scare back in May when I

> > developed bleeding ulcers in my esophagus and began throwing up

> large

> > amounts of blood and was put in the ICU. I had a dilation done

> after

> > that but it was recommended that I have the myotomy surgery done.

> Im a

> > bit afraid of having the surgery done after hearing some awful

> stories

> > of worse symptoms aftewards and I am also a very slow healer. If

> > anyone can tell me anything at all of their experiences I would

> > greatly appreciate any advice I can get.

> >

> >

> >

> >                           

> >

> >

> >

[Guest guest]

Dear Holly,

Thank you for sharing your thoughts with us.   If there is a way we can be

helpful in the future, please feel free to call upon us..  You are always

welcome here!

Re: New member

Hi to all,

I decided against surgery because I dont feel that the surgeon that

would have been performing the surgery was experienced in the myotomy

procedure. With his help I will find a specialist that is. I would

like to go to the Cleveland Clinic as my first choice but the reality

of that is pretty small seeing as how I have to go through Indian

Contract Health and IHS for my treatment. I'm pretty much left at

their mercy unless I want to pay full out of my own pocket (And quite

frankly I have yet to learn how to grow a money tree so thats outta

the question). He suggested the Mayo clinic in Minn. or there is a

Mayo clinic in Arz. which would help me because it is so much closer

and I think with my push and Dr. Rainer's shove we could convince IHS

to send me there. I am currently health apart from the " A " . I weigh

anywhere from 130 to 135, It depends on the scale and am 5'5, I

have quit smoking (1 pack every week and a half) and have cut back on

my alcohol consumption.. After my stint in the hospital at the end of

May because of bleeding ulcers in my esophagus it was Drs orders to

stop smoking, no carbonation, no caffeine and no alcohol until my

ulcers healed. When I went back a month later and they were all

healed up he did a dilation on me. I refrain from junk food (fast

food, chips, candy,things of that nature) and I continue to drink

very little caffeine because it tends to give me heartburn and never

was much of a soda fan so I dont really drink anything carbonated

except a good microbrew ale here and there. I have suffered from " A "

for about 10 yrs now so I have learned what I can eat and cant and

how to go about eating properly so the toilet and my esophagus dont

communicate so much. I try to eat more in the morning with a decent

sized breakfast and tend to snack here and there throughout the day

instead of eating lunch. My sweetie and I have small dinners and take

a walk afteward to help my food go down and BONUS!! keep my jeans

looking good. I try to keep myself active and in good spirits and I

think Im doing quite well and I feel that as long as I continue to go

in for monitoring and dilation then I can keep from having the

surgery at least for a few more years, which is how long it might

take to get anything done. I try to always see things in a good light

which isnt always easy but I have faith that things will work out for

me, it just might take a little time to get there but I have a great

family and thanks to this group support from people who understand

what living with " A " is like.

Thanks

Holly

> >          Hello my name is Holly and I am 24 years old from

> southwest colorado.

> > I have been suffering from achalasia since i was 15 and I am

> scheduled

> > for my first esophogeal myotomy Aug. 14th and was wondering if

> anyone

> > could tell me about their personal experiences with the

procedure.

> I

> > have had dilations done and had an ER scare back in May when I

> > developed bleeding ulcers in my esophagus and began throwing up

> large

> > amounts of blood and was put in the ICU. I had a dilation done

> after

> > that but it was recommended that I have the myotomy surgery done.

> Im a

> > bit afraid of having the surgery done after hearing some awful

> stories

> > of worse symptoms aftewards and I am also a very slow healer. If

> > anyone can tell me anything at all of their experiences I would

> > greatly appreciate any advice I can get.

> >

> >

> >

> >                           

> >

> >

> >

[Guest guest]

Holly wrote:

> ...there is a Mayo clinic in Arz. ...

The Mayo hospital in sdale/Phoenix is a nice place, also very new.

(That is good and bad but that caused me no problems). All the doctors

and nurses I had there were great. The equipment for manometry is modern

(I have had some old stuff too) and the person that did my manometry was

great. My doctor there was Dr. Kristi Harold,

http://www.mayoclinic.org/bio/12342114.html very nice and sharp.

I did have a problem with insurance there. Unless they have an agreement

with your insurance to agree on a price, they will want you to pay every

last cent that your insurance does not pay. If your insurance agrees to

only pay what they consider usual and customary and that is less than

your bill, you will owe the rest. That is understandable, and why you

need to find out ahead of time about how much it is going to cost and

how much of it your insurance is going to pay. Don't be fooled by

statements saying that they will pay like they do for things in network.

That may mean that they will only pay what they pay an in network center

and you owe the rest. You don't just want to know how much they will

pay. You also want to know how much you will owe after insurance pays

all they will. Sometime people only end up with a small copay. Sometimes

they end up paying a large part of the bill. In my case there was some

confusion. Everything looked good when I checked in. It would seem I

appeared to be covered by insurance at that point, but the morning after

the surgery, while still hooked up to the morphine pump one of their

bean counters called to tell me I had no insurance coverage and wanted

know how I would like to pay the $30,000 I owed. That was not just a

mistake, it was very wrong. The insurance was going to pay but it had

become unclear how much. Part of the confusion was Mayo's strange

billing system, which comes in two parts which my insurance company took

to be two versions of the same bill. After that there was lots more

confusion and it took six month and help from an employer's insurance

rep. but in the end I only paid $100 for the surgery and another $50 for

office visits. The Mayo billing department was friendly but incompetent,

unhelpful, annoying and unaware of what their other members had said.

Not everyone has these problems going out of network. I give you warning

just so you can prepare yourself ahead of time.

notan

[Guest guest]

Hi All,

I have an insurance plan that only pays 90% and I have been seeing some pretty

high bills for my 10%. I knew this would happen and there was nothing I could

do about it and I needed to be able to swallow my own spit again so no regrets,

but boy is insurance a pain in the butt sometimes. Notan, you must have been

freaking out while still in the hospital and they are telling you that you owed

30 grand.... talk about stress for your poor esophagus!!

sorry I have not been posting much this summer- work stress city and I was so

overwhelmed by emails that I actually for the first time didn't read some of

them---- shame on me!!

Hope everyone is doing okay

Dawn

Re: Re: New member

Holly wrote:

> ...there is a Mayo clinic in Arz. ...

The Mayo hospital in sdale/Phoenix is a nice place, also very new.

(That is good and bad but that caused me no problems). All the doctors

and nurses I had there were great. The equipment for manometry is modern

(I have had some old stuff too) and the person that did my manometry was

great. My doctor there was Dr. Kristi Harold,

http://www.mayoclinic.org/bio/12342114.html<http://www.mayoclinic.org/bio/123421\

14.html> very nice and sharp.

I did have a problem with insurance there. Unless they have an agreement

with your insurance to agree on a price, they will want you to pay every

last cent that your insurance does not pay. If your insurance agrees to

only pay what they consider usual and customary and that is less than

your bill, you will owe the rest. That is understandable, and why you

need to find out ahead of time about how much it is going to cost and

how much of it your insurance is going to pay. Don't be fooled by

statements saying that they will pay like they do for things in network.

That may mean that they will only pay what they pay an in network center

and you owe the rest. You don't just want to know how much they will

pay. You also want to know how much you will owe after insurance pays

all they will. Sometime people only end up with a small copay. Sometimes

they end up paying a large part of the bill. In my case there was some

confusion. Everything looked good when I checked in. It would seem I

appeared to be covered by insurance at that point, but the morning after

the surgery, while still hooked up to the morphine pump one of their

bean counters called to tell me I had no insurance coverage and wanted

know how I would like to pay the $30,000 I owed. That was not just a

mistake, it was very wrong. The insurance was going to pay but it had

become unclear how much. Part of the confusion was Mayo's strange

billing system, which comes in two parts which my insurance company took

to be two versions of the same bill. After that there was lots more

confusion and it took six month and help from an employer's insurance

rep. but in the end I only paid $100 for the surgery and another $50 for

office visits. The Mayo billing department was friendly but incompetent,

unhelpful, annoying and unaware of what their other members had said.

Not everyone has these problems going out of network. I give you warning

just so you can prepare yourself ahead of time.

notan

[Guest guest]

Dawn wrote:

> I have an insurance plan that only pays 90% and I have been seeing some pretty

high bills for my 10%.

I guess the good news there is that it isn't one of those 80/20 plans.

Out of network that 80% would only be on what they consider usual and

customary. You would pay your 20% of that and all of the charges above

the usual and customary. In the end instead of 20% you could end up with

something like 33%.

> .. Notan, you must have been freaking out while still in the hospital and they

are telling you that you owed 30 grand....

It was crazy. Part of the confusion was that manometry and myotomy kind

of sound alike. I had to have a manometry test the week before the

surgery. The letter of approval for it nowhere said manometry or

described it but did state that I was approved for out patient surgery.

We thought it odd that I was approved for out patient surgery, thinking

it was for the myotomy. Talking to the hospital about it they said that

was not unusual and that they automatically would upgrade it after the

surgery (myotomy) to inpatient - " happens all the time. " Just to be sure

we called the insurance company and asked them if I was going to be

covered for in patient. We asked about the myotomy surgery and gave them

the reference number (manometry) and they said that if inpatient care

was needed it would be added to the approval. So, we were asking about

myotomy but they are answering about manometry. We were told that we had

coverage the same as if it was in network for that procedure

(manometry), us thinking that meant myotomy. I went for the manometry

test wondering why I didn't have a letter of approval but it was not as

much of a concern as the approval for the surgery and we had called and

had been told the manometry was covered. Turns out that I was going to

be approved for the surgery (myotomy) but it wouldn't arrive in the mail

or show in the system as official until after the day of the surgery.

So, that morning after the surgery and Mayo telling us I wasn't covered,

my wife talked to two people, one said I wasn't covered and another told

her I was but it didn't show in the system yet and that the approval was

in the mail. It went on like that for six month, never knowing how much

was going to be covered or not, Mayo claiming one thing and the

insurance company saying another. On top of this the insurance company

has a policy that they will only discuss a disputed claim once every

thirty days. But Mayo had no problem with calling us often to see what

we had found out from our insurance company. Very frustrating. It didn't

help that Mayo's goofy two part billing caused a lot of confusion or

that the people calling for Mayo couldn't get the numbers or dates right

or know what others there had agreed to. The insurance covered the

manometry in full without any problems. That didn't stop one of the Mayo

callers from getting confused about it and trying to collect it again

too. Just crazy.

From the Mayo web site: http://www.mayoclinic.org/billing-sct/ " Mayo's

billing statement may look different than what you have experienced

elsewhere. " Right! It made it look like I had two surgeries on the same day.

notan

[Guest guest]

In a message dated 9/10/2008 11:11:09 AM Eastern Daylight Time,

lally@... writes:

I joined last week but thought I should introduce myself before I jumped in

with a million questions.

Hi Brigid welcome to the group! You have3 come to a wonderful place filled

with wise and compassionate parents who can help answer some of your

questions and will ask others. That is what is so great here...wew are all in

this

together and all have questions and answers so looking forward to your

questions. nd even more so to your answers.

Loree

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)

[Guest guest]

Welcome Athena. What program are you trying?

N.H.New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out!

[Guest guest]

In a message dated 10/21/2008 4:10:57 P.M. Eastern Daylight Time, sugar_fairy_athena@... writes:

Its just some people are not ready or willing to work for it.

I guess I fall into this catergory. I in my mind think I am ready. BUT run into many obstacles. Any PROGRAM or LIFESTYLE way of life you chose, I have found WATER, PORTIONS, and Exercise are involved.

N.H.Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out!

[Guest guest]

Welcome, and congratulations on your baby! It's very exciting and so good to

hear you investigated vaccines beforehand. Once the baby's here, though, all

sorts of doubts will likely come over you. Just so you know, it's normal.

Good luck with the birth, and Happy New Year to you, too!

Winnie

New member

Vaccinations

> Hi all

>

> My husband and I have just joined this group and thought we

> would

> take this opportunity to introduce ourselves and explain what

> background and attitudes we have towards vaccines. We are

> expecting a

> baby any day now and through our own research, as well as

> watching

> DVD's by Tocco and Dr Sherri Tenpenny, we have come to the

> decision to refuse all vaccinations. My sister in law has made

> the

> same decision for her children and this sparked us to find out

> more

> for ourselves. It would be nice to be in contact with others who

> share the same attitudes and thoughts, as being in a minority

> group

> in society can be difficult, especially when making decisions

> and

> handling pressures from others in regards to your child's

> health. We

> know that a lot of challenges and stigma lay ahead of us because

> of

> our views.

>

> Happy New Year,

> Beana and Gerrard

> , Australia

>

>

>

>

>

[Guest guest]

Hi Beana and Gerrard,

Congratulations on your soon-to-be-here babe, and welcome to the list. You

will never regret making the decision to refuse all vaccines - we made this

same decision for our daughter eleven years ago and with each day that

passes I am more and more glad that we did.

Obviously you know that vaccination is not mandatory in Australia for babies

- yet! - but if anyone has told you that you will compromise welfare

benefits if you don't vaccinate, this is not true. You can obtain a

Conscientious Objection form which will cover the Maternity Immunisation

Allowance, and the Childcare Benefit (down the line) and other than this you

shouldn't have to take any further action. Your doctor may well tell you

otherwise, of course! ;o)

If you need the CO form, or haven't seen it before, you can find it here:

http://www.medicare.gov.au/public/files/ma_conscientious_objection_form.pdf

Can I suggest that if you haven't already done so, you join the Australian

Vaccination Network list? There is also a lot of information on the AVN

website if you need it. This link for the list:

AVN/join

AVN website here: www.avn.org.au

Looking forward to talking with you more. We're in WA, south of Perth. I

think is probably more progressive! )

Sue x

-- New member

Hi all

My husband and I have just joined this group and thought we would

take this opportunity to introduce ourselves and explain what

background and attitudes we have towards vaccines. We are expecting a

baby any day now and through our own research, as well as watching

DVD's by Tocco and Dr Sherri Tenpenny, we have come to the

decision to refuse all vaccinations. My sister in law has made the

same decision for her children and this sparked us to find out more

for ourselves. It would be nice to be in contact with others who

share the same attitudes and thoughts, as being in a minority group

in society can be difficult, especially when making decisions and

handling pressures from others in regards to your child's health. We

know that a lot of challenges and stigma lay ahead of us because of

our views.

Happy New Year,

Beana and Gerrard

, Australia

------------------------------------

[Guest guest]

Welcome to you both. We are across the ditch in Green Bay, Auckland.

So good to hear of parents who make the decision based on knowledge, rather than

the hindsight that vaccine injury provides! We stopped vaccinating in 1977!

There are many parents of vaccine injured children on this list - all sacrificed

on the altar of modern " scientific " medicine profits.

I'm a grandma now, and do the best I can to educate as many as possible at every

opportunity. I used to embarrass one son as I would strike up conversations with

new parents. Now he does it! His chiropractor gets info off him to keep in her

office for new parents. None of her staff have vaccinated their babies as a

result.

Good luck in your journey.

Maracuja

From: astrobean01 <robina.carson@...>

Subject: New member

Vaccinations

Date: Wednesday, December 31, 2008, 5:22 PM

Hi all

My husband and I have just joined this group and thought we would

take this opportunity to introduce ourselves and explain what

background and attitudes we have towards vaccines. We are expecting a

baby any day now and through our own research, as well as watching

DVD's by Tocco and Dr Sherri Tenpenny, we have come to the

decision to refuse all vaccinations. My sister in law has made the

same decision for her children and this sparked us to find out more

for ourselves. It would be nice to be in contact with others who

share the same attitudes and thoughts, as being in a minority group

in society can be difficult, especially when making decisions and

handling pressures from others in regards to your child's health. We

know that a lot of challenges and stigma lay ahead of us because of

our views.

Happy New Year,

Beana and Gerrard

, Australia

[Guest guest]

Check out ww.nvic.org

and www.thinktwice.com

I also have information on my states page.

Stick with your instincts!

Casey

MD Coalition for Vaccine Choice

www.mdvaccinechoice.wordpress.com

[Guest guest]

Hi, Hope--welcome! It's good to hear you woke up to the vaccine issue so early

on. Yes, NJ is becoming quite rabid about their vaccine schedule. Glad you're on

top of it.

Winnie

new member

Vaccinations

> Hi, everyone!

>

> My name is Hope. My family lives in northern NJ. We have a 2-1/2 year

> old daughter. We chose to stop vaccinating at five months. Given that

> we live in NJ, where every year new mandates are added, you can

> imagine how concerned we are about this issue. So glad to have

> found a

> community of likeminded folks!

>

> Hope

>

> On Thu, Jan 29, 2009 at 3:55 PM, Sholtz

> wrote:

> > Hello group,

> >

> > The best way to find a certified classical homeopath is to

> check out the

> > North American Society of Homeopaths' website (NASH), and look

> for a person

> > who holds an RSHom; this designates the highest proficiency

> level a person

> > can reach in North America. You can also check out the CHC,

> the Council for

> > Homeopathic Certification, as well as the National Center for

> Homeopathy> (the NCH). There are quite a few of us out there!

> >

> > Stay well,

> >

> >

> > Sholtz, PhD, RSHom(NA), CCH, FBIH

> > Registrar, North American Society of Homeopaths

> >

> >

>

>

>

> --

> * * * * * * * * * * * * *

> montani semper liberi

>

> You will find something more in woods than in books. Trees and

> stones will teach you that which you can never learn from

> masters. Saint Bernard (1090-1153)

>

[Guest guest]

Hi ,

I think one of the things that makes Roach Prufe so effective is that its granules are much finer/smaller than other brands of boric acid powder. Mites are small, so the boric acid particles need to be small too. I found that Borax is not effective, possibly due to granule size.- requireshelp

From: nuthatch_mins <nuthatch_mins@...>bird mites Sent: Thursday, March 26, 2009 9:44:54 AMSubject: New Member

I joined this group a week or two ago and have been so busy readingthrough the messages I haven't yet said hello. Thank you to all of youwho have put so much information and encouragement here to read. I'm, from London, England. My family and I have had the plague(birdmites or rodent mites, we fhink) for four months now. We havespread the infestation to three homes: my elderly mother's, my brother's. and mine, before we realised there was a problem. We stilldon't know where they came from - no bird nests or rodent infestationthat we have found/know of. We assume it started at my mother's as thatis our central point - I look after her and am there nearly every dayand my brother is a frequent visitor.At first we thought it was fleas - my brother and mother have cats, sowe could even have started with them and then the mites joined in. Wetreated all properties with permethrin/precor and got

rid of the fleas.Only we still seemed to have very small fleas that liked our heads/hairand faces, eyebrows and noses. Eventually we realised they were mitesand have visited birdmites.org for information frequently. It was arelief to find that other people know what we are going through and havesome ways to help deal with it.My brother spoke to an entomologist who said bird mites can cause havocbut will die off in a few weeks(!) I e-mailed a parasitologist to ask ifhe knew of anyone who could advise us, but he never replied. PestControl man said there are no insects! Arghhhh.....A few questions:I read in an early post on this site that there are a lot of hits on themain site from people in the UK which would suggest a lot of people areexperiencing this (surely if we spread it between 3 homes so easilythere must be thousands of people suffering the same thing) but we haveheard

nothing about this in the media here. Is there a cover up or dopeople just keep quiet about it?One problem is a lot of the products recommended in USA are notavailable here. Can anyone tell me:Roach Prufe is 98 per cent boric acid - what is the other 2 per cent andis it important? (I can get boric acid powder but not RP).What are ingedients in Dawn Dish Soap, what is the ingredient that iseffective (if anyone knows), and doesn't it make everything sticky ifyou spray walls carpets etc?Loads more - but this is long enough. Hope to hear from you all.

Looking for the perfect gift? Give the gift of Flickr!

[Guest guest]

The only way I can think of to make regular boric acid like Roach Prufe would be to put the boric acid powder into a blender and run the powder in the blender until it is extremely fine. The RP powder is a very, very fine grained powder. The smallest insect still gets the powder stuck on it's body because the powder is so very fine grained. The 2 % other ingredients are coloring and a bitter substance so pets won't eat it. The Dawn dish soap is just a really thick soap that removes oil and grease really well, but any soap will do. Good luck, Rita

New Member

I joined this group a week or two ago and have been so busy readingthrough the messages I haven't yet said hello. Thank you to all of youwho have put so much information and encouragement here to read. I'm, from London, England. My family and I have had the plague(birdmites or rodent mites, we fhink) for four months now. We havespread the infestation to three homes: my elderly mother's, my brother's. and mine, before we realised there was a problem. We stilldon't know where they came from - no bird nests or rodent infestationthat we have found/know of. We assume it started at my mother's as thatis our central point - I look after her and am there nearly every dayand my brother is a frequent visitor.At first we thought it was fleas - my brother and mother have cats, sowe could even have started with them and then the mites joined in. Wetreated all properties with permethrin/precor and got rid of the fleas.Only we still seemed to have very small fleas that liked our heads/hairand faces, eyebrows and noses. Eventually we realised they were mitesand have visited birdmites.org for information frequently. It was arelief to find that other people know what we are going through and havesome ways to help deal with it.My brother spoke to an entomologist who said bird mites can cause havocbut will die off in a few weeks(!) I e-mailed a parasitologist to ask ifhe knew of anyone who could advise us, but he never replied. PestControl man said there are no insects! Arghhhh.....A few questions:I read in an early post on this site that there are a lot of hits on themain site from people in the UK which would suggest a lot of people areexperiencing this (surely if we spread it between 3 homes so easilythere must be thousands of people suffering the same thing) but we haveheard nothing about this in the media here. Is there a cover up or dopeople just keep quiet about it?One problem is a lot of the products recommended in USA are notavailable here. Can anyone tell me:Roach Prufe is 98 per cent boric acid - what is the other 2 per cent andis it important? (I can get boric acid powder but not RP).What are ingedients in Dawn Dish Soap, what is the ingredient that iseffective (if anyone knows), and doesn't it make everything sticky ifyou spray walls carpets etc?Loads more - but this is long enough. Hope to hear from you all.

Looking for the perfect gift? Give the gift of Flickr!

[Guest guest]

Thanks to all who replied to my questions, and thanks to Tim for setting

up the site, and to everyone for so much information. Don't feel quite

so hopeless, almost positive sometimes. Getting bitten today though,

so...

I have an old blender and will use that on the boric acid powder, and

then give it a go. Trouble is finding the time - all the cleaning and

washing here and at my mother's means I am always running back and

forwards and exhausted.

>

> The only way I can think of to make regular boric acid like Roach

Prufe would be to put the boric acid powder into a blender and run the

powder in the blender until it is extremely fine. The RP powder is a

very, very fine grained powder. The smallest insect still gets the

powder stuck on it's body because the powder is so very fine grained.

The 2 % other ingredients are coloring and a bitter substance so pets

won't eat it. The Dawn dish soap is just a really thick soap that

removes oil and grease really well, but any soap will do. Good luck,

Rita

>

> New Member

>

>

>

> I joined this group a week or two ago and have been so busy reading

> through the messages I haven't yet said hello. Thank you to all of you

> who have put so much information and encouragement here to read. I'm

> , from London, England. My family and I have had the plague

> (birdmites or rodent mites, we fhink) for four months now. We have

> spread the infestation to three homes: my elderly mother's, my

> brother's. and mine, before we realised there was a problem. We still

> don't know where they came from - no bird nests or rodent infestation

> that we have found/know of. We assume it started at my mother's as

that

> is our central point - I look after her and am there nearly every day

> and my brother is a frequent visitor.

>

> At first we thought it was fleas - my brother and mother have cats, so

> we could even have started with them and then the mites joined in. We

> treated all properties with permethrin/precor and got rid of the

fleas.

> Only we still seemed to have very small fleas that liked our

heads/hair

> and faces, eyebrows and noses. Eventually we realised they were mites

> and have visited birdmites.org for information frequently. It was a

> relief to find that other people know what we are going through and

have

> some ways to help deal with it.

>

> My brother spoke to an entomologist who said bird mites can cause

havoc

> but will die off in a few weeks(!) I e-mailed a parasitologist to ask

if

> he knew of anyone who could advise us, but he never replied. Pest

> Control man said there are no insects! Arghhhh.....

>

> A few questions:

>

> I read in an early post on this site that there are a lot of hits on

the

> main site from people in the UK which would suggest a lot of people

are

> experiencing this (surely if we spread it between 3 homes so easily

> there must be thousands of people suffering the same thing) but we

have

> heard nothing about this in the media here. Is there a cover up or do

> people just keep quiet about it?

>

> One problem is a lot of the products recommended in USA are not

> available here. Can anyone tell me:

>

> Roach Prufe is 98 per cent boric acid - what is the other 2 per cent

and

> is it important? (I can get boric acid powder but not RP).

>

> What are ingedients in Dawn Dish Soap, what is the ingredient that is

> effective (if anyone knows), and doesn't it make everything sticky if

> you spray walls carpets etc?

>

> Loads more - but this is long enough. Hope to hear from you all.

>

>

>

>

>

>

>

------------------------------------------------------------------------\

------

> Looking for the perfect gift? Give the gift of Flickr!

>

[Guest guest]

There are brands like Roach Prufe, specifically meant to combat little critters. Maybe those are refined to very small granules as well.

From: sarah3dw <nuthatch_mins@...>bird mites Sent: Sunday, March 29, 2009 5:03:43 AMSubject: Re: New Member

Thanks to all who replied to my questions, and thanks to Tim for settingup the site, and to everyone for so much information. Don't feel quiteso hopeless, almost positive sometimes. Getting bitten today though,so...I have an old blender and will use that on the boric acid powder, andthen give it a go. Trouble is finding the time - all the cleaning andwashing here and at my mother's means I am always running back andforwards and exhausted.>> The only way I can think of to make regular boric acid like RoachPrufe would be to put the boric acid powder into a blender and run thepowder in the blender until it is extremely fine. The RP powder is avery, very fine grained

powder. The smallest insect still gets thepowder stuck on it's body because the powder is so very fine grained.The 2 % other ingredients are coloring and a bitter substance so petswon't eat it. The Dawn dish soap is just a really thick soap thatremoves oil and grease really well, but any soap will do. Good luck,Rita>> New Member>>>> I joined this group a week or two ago and have been so busy reading> through the messages I haven't yet said hello. Thank you to all of you> who have put so much information and encouragement here to read. I'm> , from London, England. My family and I have had the plague> (birdmites or rodent mites, we fhink) for four months now. We have> spread the infestation to three homes: my elderly mother's, my>

brother's. and mine, before we realised there was a problem. We still> don't know where they came from - no bird nests or rodent infestation> that we have found/know of. We assume it started at my mother's asthat> is our central point - I look after her and am there nearly every day> and my brother is a frequent visitor.>> At first we thought it was fleas - my brother and mother have cats, so> we could even have started with them and then the mites joined in. We> treated all properties with permethrin/precor and got rid of thefleas.> Only we still seemed to have very small fleas that liked ourheads/hair> and faces, eyebrows and noses. Eventually we realised they were mites> and have visited birdmites.org for information frequently. It was a> relief to find that other people know what we are going through andhave> some ways to help deal with

it.>> My brother spoke to an entomologist who said bird mites can causehavoc> but will die off in a few weeks(!) I e-mailed a parasitologist to askif> he knew of anyone who could advise us, but he never replied. Pest> Control man said there are no insects! Arghhhh.....>> A few questions:>> I read in an early post on this site that there are a lot of hits onthe> main site from people in the UK which would suggest a lot of peopleare> experiencing this (surely if we spread it between 3 homes so easily> there must be thousands of people suffering the same thing) but wehave> heard nothing about this in the media here. Is there a cover up or do> people just keep quiet about it?>> One problem is a lot of the products recommended in USA are not> available here. Can anyone tell me:>> Roach Prufe is 98 per cent

boric acid - what is the other 2 per centand> is it important? (I can get boric acid powder but not RP).>> What are ingedients in Dawn Dish Soap, what is the ingredient that is> effective (if anyone knows), and doesn't it make everything sticky if> you spray walls carpets etc?>> Loads more - but this is long enough. Hope to hear from you all.>> >>>>>------------ --------- --------- --------- --------- --------- -\------> Looking for the perfect gift? Give the gift of Flickr!>

Instant message from any web browser! Try the new Canada Messenger for the Web BETA

[Guest guest]

Hi Debby and wecome!! To answer your question Yes...Yes and Yes!!! We

had real issues with pneumonia when my Micah was a baby, he is 8 now.

Has anyone suggested you test Noah for silent reflux. Does he ever

cough when taking his bottle or eating? Micah had pneumonia 4 times in

2 years and I did the research myself. They tested him for systic

fibrosis and said he had asthma and put him on meds but i didn't see

it. Took him to a specialist and she detrermined he had reflux. Put

him on meds and presto no more pneumonia. He would get the pneumonia

at the drop of a hat with no fever or anything. His only symptom was

vomiting and lethargy. Question your pediatrrician about it. Of

course it could be something else but this is something that is

frequently overlooked especially if it is " silent " , Hope this helps

you.

New Member

Hi everyone,

I am new to the group and thought I'd introduce myself. I am a SAHM to

3 wonderful boys (a 3 y.o. and twin 15 m.o.)and a wife to an awesome

husband! I was formerly a veterinarian but I stopped working to have

the kiddos and have not regretted that decision even once! One of my

twins, Noah, has Down Syndrome along with a complete AV canal and

common valv

e. He had open heart surgery at 4 months old and has been

doing SO much better since! However, he has been hospitalized 2 times

in the past 6 weeks for pneumonia so that is dragging us all down.

Does anyone else have trouble with pneumonia? Well, that's about it.

I'm glad to get to know you all and learn from you.

Debby

Mom to Malakai " Kai " 3y

Ezekiel " Zeze " & Noah (DS) 15m

[Guest guest]

Welcome.  i can't answer your question, but am glad to see you joining this

group.  They seem very supportive of one another.

 

Mallory's Grandma Cynde

(3 yr old with DS)

Cylinda (Cynde)

225 810 0225

at cassady1970@...

[Guest guest]

Liam has had one confirmed bout with pneumonia and one suspected.? He had

reactive airway disease as a baby which has turned into asthma (which is very

common in my dad's side of the family).? For the confirmed one we saw fluid on

his xray.? He was about 5 for that one.? The suspected one happened when he was

4.? I took him to the emergency room and they admitted him for it.? When his

pediatrician and pulmonologist saw his xrays the next day, they both felt that '

his lungs are that bad, but it's not pneumonia.'? We stayed in the hospital for

three days because his white blood cell count wouldn't come down.? So they

called it viral syndrome because his blood cultures came back negative.

He's also had wicked croup which sent us to the ER when he was 6.? In total he

had 6 surgeries and 4 other hospitalizations in his first 6 years of life.?

Nothing since.? He turned 11 on Monday.? Hopefully he's grown out of it.

Kathy, Liam's mom (11, DS, asthma,diabetes)

New Member

Hi everyone,

I am new to the group and thought I'd introduce myself. I am a SAHM to 3

wonderful boys (a 3 y.o. and twin 15 m.o.)and a wife to an awesome husband! I

was formerly a veterinarian but I stopped working to have the kiddos and have

not regretted that decision even once! One of my twins, Noah, has Down Syndrome

along with a complete AV canal and common valve. He had open heart surgery at 4

months old and has been doing SO much better since! However, he has been

hospitalized 2 times in the past 6 weeks for pneumonia so that is dragging us

all down. Does anyone else have trouble with pneumonia? Well, that's about it.

I'm glad to get to know you all and learn from you.

Debby

Mom to Malakai " Kai " 3y

Ezekiel " Zeze " & Noah (DS) 15m

[Guest guest]

Welcome to the group Tara... you do not say what State/Town you are in.

Arianna Mojica -   (UCC 1-207/1-103) 

~~~ " All rights not demanded are presumed waived " . ~ Thurston

~~~ " The only safe vaccine is a vaccine that is never used " -- Dr. A.

, National Institutes of Health

~~~A truth’s initial commotion is directly proportional to how deeply the lie

was believed...When a well-packaged web of lies has been sold gradually to the

masses over generations, the truth will seem utterly preposterous and its

speaker, a raving lunatic. " Dresden

www.vaclib.org 

www.909shot.com

 http://www.vacinfo.org/

http://www.vran.org/

http://www.momtoanangel.net/ingred.htm

 

http://www.moorbows.com/

From: Tara <tarathompson626@...>

Subject: New member

Vaccinations

Date: Monday, July 27, 2009, 8:42 AM

 

Hello,

 I am new to the group. My name is Tara . I have a one yr old. My

husband I do not vaccinate. I started reading about it when I was pregnant.. The

more I read. The more mad I got at the information I saw. So now it has turned

into a full time thing for me. I read and read. I started a book collection. It

is the only topic on my shelf. Oh and ASL.

I would like to meet other parents like me. Also would like to maybe make a new

friend.

 

Thanks

Tara~

[Guest guest]

Hi, Tara. Welcome! How smart of you to question vaccines before your child was

born when there was so much else to think about at the time. I wish I had but at

least I figured it out before too much damage was caused. There sure is a lot of

info out there to wade through.

Winnie

New member

Vaccinations

> Hello,

> I am new to the group. My name is Tara . I have a one

> yr old. My husband I do not vaccinate. I started reading about

> it when I was pregnant.. The more I read. The more mad I got at

> the information I saw. So now it has turned into a full time

> thing for me. I read and read. I started a book collection. It

> is the only topic on my shelf. Oh and ASL.

> I would like to meet other parents like me. Also would like to

> maybe make a new friend.

>

> Thanks

> Tara~

>

>

>

>

>

[Guest guest]

Hi Tara! ASL? I am an Interpreter for the deaf....are you?

Western NY

New member

Vaccinations

> Hello,

> I am new to the group. My name is Tara . I have a one

> yr old. My husband I do not vaccinate. I started reading about

> it when I was pregnant.. The more I read. The more mad I got at

> the information I saw. So now it has turned into a full time

> thing for me. I read and read. I started a book collection. It

> is the only topic on my shelf. Oh and ASL.

> I would like to meet other parents like me. Also would like to

> maybe make a new friend.

>

> Thanks

> Tara~

>

>

>

>

>

[Guest guest]

Hi Tara,

I did almost the same thing, when I was pregnant with my son 10 years ago I

started looking into the vaccinations after I took a Bradley Birthing class. (I

think it was Sherri the list owner who found me on a birth and baby forum asking

questions and she linked me here)

I decided to first delay vaccinating, and well we're still delaying (LOL) for my

son and now my daughter as well (she's almost 6)

Chelly - In Nebraska.

Vaccinations

From: tarathompson626@...

Date: Mon, 27 Jul 2009 05:42:15 -0700

Subject: New member

Hello,

I am new to the group. My name is Tara . I have a one yr old. My

husband I do not vaccinate. I started reading about it when I was pregnant.. The

more I read. The more mad I got at the information I saw. So now it has turned

into a full time thing for me. I read and read. I started a book collection. It

is the only topic on my shelf. Oh and ASL.

I would like to meet other parents like me. Also would like to maybe make a new

friend.

Thanks

Tara~