Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 You would think a bell would go off for more people when they realize that their child is being injected with a disease strong enough to harm someone else. Granted, it's the immune compromised most at risk, but couldn't anyone's immune system be compromised at any given time? Shedding of a virus can be damaging to anyone whose defenses are down, vaccinated or not. Welcome to the group, Anita loripearce@... wrote: Hi I am new to this group so I thought I would introduce myself. My name is Lori I live in Arizona. My husband is Jay and we have 3 wonderful children with another on the way the end of July (ages: 8,2,1) I stay at home and we are a homeschooling family. I started out vaccinating my oldest until the polio one and she couldn't be around anyone with a weakend immune system (for fear of excreting it)my mother in law had breast cancer at the time. So that is when we started questioning the whole thing and stopped the vaccinations. My other two have not had any.I have also found a supportive medical doctor (pedetrician) who respects my decision and does not push the issue. That is a blessing. I have just been trying to do a lot of reasearch on them now and thought this would be a great group. Thanks Lori ---------------------------------------------------------------- This message was sent using IMP, the Internet Messaging Program. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Welcome, Lori. This IS a great group for support and information. You've come to the right place! Kay Intro I have just been trying to do a lot of reasearch on them now and thought this would be a great group. Thanks Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Lori -- Where are you in Arizona? I live in sdale. I'm just curious as to who your pediatrician is. BTW, very wise decision. My oldest daughter is vaccine-injured. Before we figured it out, we were fanatics on the other side (always getting vaccinations the very day they were " due " ). We have found, though, that we've had to leave conventional pediatricians behind because we haven't found anyone in that system who's supportive. Our naturopath is the one who has signed their medical exemptions. I would like to have a back-up pediatrician, though. You can e-mail me off-line, if you'd like -- person5@.... Thanks!-DeEtte > > Hi I am new to this group so I thought I would introduce myself. My name is Lori > I live in Arizona. My husband is Jay and we have 3 wonderful children with > another on the way the end of July (ages: 8,2,1) I stay at home and we are a > homeschooling family. > > I started out vaccinating my oldest until the polio one and she couldn't be > around anyone with a weakend immune system (for fear of excreting it)my mother > in law had breast cancer at the time. So that is when we started questioning > the whole thing and stopped the vaccinations. My other two have not had any.I > have also found a supportive medical doctor (pedetrician) who respects my > decision and does not push the issue. That is a blessing. > > I have just been trying to do a lot of reasearch on them now and thought this > would be a great group. > Thanks > Lori > > > > > ---------------------------------------------------------------- > This message was sent using IMP, the Internet Messaging Program. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Hi Lori & DeEtte, You don't need a medical exemption in Arizona - you just say no. Here is the exemption info - just make a statement using this wording. That's it - nothing more. And could attach the law to it if they have questions Law here http://www.nvic.org/state-site/Arizona.htm Quick Fact: Signed statement to school administrator that parent " has received information about immunizations provided by the department of health services, understands the risks and benefits of immunizations and the potential risks of non-immunization and that due to personal beliefs, the parent or guardian does not consent to the immunization of the pupil. " Other Resources: Arizona Vaccine Information Network: http://www.azavenue.com/kelly/organizations.htm At 03:54 PM 5/21/2006 -0000, you wrote: >Lori -- Where are you in Arizona? I live in sdale. I'm just >curious as to who your pediatrician is. BTW, very wise decision. >My oldest daughter is vaccine-injured. Before we figured it out, we >were fanatics on the other side (always getting vaccinations the >very day they were " due " ). We have found, though, that we've had to >leave conventional pediatricians behind because we haven't found >anyone in that system who's supportive. Our naturopath is the one >who has signed their medical exemptions. I would like to have a >back-up pediatrician, though. You can e-mail me off-line, if you'd >like -- person5@.... Thanks!-DeEtte > > >> >> Hi I am new to this group so I thought I would introduce myself. >My name is Lori >> I live in Arizona. My husband is Jay and we have 3 wonderful >children with >> another on the way the end of July (ages: 8,2,1) I stay at home >and we are a >> homeschooling family. >> >> I started out vaccinating my oldest until the polio one and she >couldn't be >> around anyone with a weakend immune system (for fear of excreting >it)my mother >> in law had breast cancer at the time. So that is when we started >questioning >> the whole thing and stopped the vaccinations. My other two have >not had any.I >> have also found a supportive medical doctor (pedetrician) who >respects my >> decision and does not push the issue. That is a blessing. >> >> I have just been trying to do a lot of reasearch on them now and >thought this >> would be a great group. >> Thanks >> Lori >> >> > -------------------------------------------------------- Sheri Nakken, R.N., MA, Hahnemannian Homeopath Vaccination Information & Choice Network, Nevada City CA & Wales UK $$ Donations to help in the work - accepted by Paypal account earthmysteriestours@... voicemail US 530-740-0561 (go to http://www.paypal.com) or by mail Vaccines - http://www.nccn.net/~wwithin/vaccine.htm Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm Reality of the Diseases & Treatment - http://www.nccn.net/~wwithin/vaccineclass.htm Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 welcome. Dont forget water, portions, and exercise are in any program so start there until you educate yourself with what is out there. NH... Mom to Abby Liz 10/94 Anne 7/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 Hi and welcome. I agree with and Dacia and the others.... water, exercise, portions. I don't count calories, so don't know how many I total. LOL.... ummmmm I know it isn't over 1800.... ok, if I walk a lot and go to Curves, it might be cuz I eat more on those days.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 I'm on Simmon's Foodmover ... I began at 1400 calories and am up to 1600 calories. NEVER limit yourself to less than 1200 calories a day or your body will go into starvation mode and you won't be able to lose anything, and you'll end up getting very very sick (speaking from experience here). <jennifer@...> wrote: Hello, I’m a newbie to this group. Just thought I’d introduce myself …. I don’t have a set plan of action to lose weight now (other than watching what I eat). I’d love to get some insight on what has worked for you gals. For those of you who have counted calories – how many calories did you limit yourself to per day? I look forward to getting to know you all! -Sapphyre Feel Free to Visit: www.geocities.com/asmallersapphyre www.livejournal.com/users/changescomin www.geocities.com/mothernatureschyld Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2006 Report Share Posted May 28, 2006 >For > those of you who have counted calories - how many calories did you limit > yourself to per day? There are so many ways to figure out what a person needs. Some say multiply your current weight by 10, if fairly active and exercise at least 3 to 5 days a week, other say by 8 if you're not as active or are older with a slower metabolism. Others use the guidelines set by for his Foodmover: http://members.tripod.com/sue_in_nj/fm.htm and still others just use the government MyPyramid web site to figure it all out: http://www.mypyramid.gov/ The National Weight Control Registry: http://www.nwcr.ws Found that the successful 2 to 5% of all dieters who lost weight and kept off a minimum of 30 pounds for a minimum of 1 year are doing it by eating apx. 1400 calories a day and exercising off an additional 400 calorie's worth. You would need to use one of the calories burned per minute exercise sites to figure out how much *you* are burning off based on age, weight, and activity. We have links to a few of those on our Links page. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2006 Report Share Posted May 28, 2006 Hi ! I've been off and on diets since I was pre-teen and a 'whopping' 5 pounds over my ideal weight Of course, since I was taller than most of the other girls and had low self esteem, I felt like a blimp compared to everyone else. I wasn't really overweight until I was somewhere around 18-19, I managed to lose 20-30 pounds here and there, but they'd pack right back on plus a couple more for good measure, I guess. Anyway, this is the first plan I've managed to stick to for more than a couple of weeks/months and so far, it's going well. I started exercising almost daily back in September and since then have lost just under 70 pounds. I also keep a food journal. I aim for 5-8 days 'on' and one day 'off' (I sometimes still count calories, sometimes don't, but I eat what I want, just try to use common sense and portion control). I got my calorie info off of caloriesperhour.com - I went under the BMR/RMR link and got that number, then subtracted 700/day to lose 1-2 pounds a week. Right now, on days I exercise, I can have 2200-2400 and still lose weight, but it's slowed down a lot here recently...this might be my first long-ish plateau. Anyway, sounds like our company is here, so I have to wrap this up, but welcome to the group and good luck with whatever you choose to do! -Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 Hi Lori, I am sorry to hear that your little girl is sick. You will find that you are not alone. As I am sure you will hear from most it is difficult to get a diagnosis with this condition mostly because so little it known about it. I just wanted to let you know that my son started his fevers when he was 10 months old, but didn't develop canker sores until he was after two. I think a lot of children start out as the fever as the only symptom. Also children do not need to present with all the symptoms to have or any other of the periodic fevers. If you read in the files section you will see that in one article mouth sores were present in only 70% of children, and the pharyngitis and adenitis were present in about 50% of children if I remember correctly. Don't let you doctor focus on the lack as a symptom as a reason to rule out one the of periodic fever syndromes. I was told my son wasn't a canidate because he didn't get throat complications, but last night we went to the doctors exactly for that. The symptoms will sometimes change over time, and sometimes he will only get cankers sores and be really whinny and crabby with no fever at all. Good luck to you and your family, mom to hieser, 2.7 slsjasrodgers@... wrote: Hello all My name is Lori and I am the mom to four beautiful daughters. The reason I am becoming part of this group is because of my youngest. Her name is . She is 22 months old. She started with fevers at aout 6 months of age. They however were not very cyclic until about 16 months I guess. All I can remember at this point is that she had a LOT of them. They were always very high. 105+. This was nothing like I had experienced with my other three and I thought I had seen it all. She did have one febrile seizure - thank goodness only one, at least that we know about. Of course we ran the virus cycle. I thought there was something else because even thought occasionally there were " reasons " for the fevers - ear infection, strep throat, pneumonia- The fevers would sometimes take a " break " and then come back. Or be there before she got the other symptoms. So finally once I told my pediatrician how exhausted I am with my little one being sick with fevers all the time, she referred us to a pediatric rheumatologist. We saw him about two months ago. He was hesitant to send her for any tests at this time because of the pain involved so he is treating her as if she has . He has given her the tagamet (we have two fevers cycles since the visit now) and I am not optimistic. I talked to my pediatrician since and she told me she is not convinced of the diagnosis because does not get the mouth sores. She never has. So now here we are with the big question mark - what is wrong with our child and how can we help her? I thought I would join this group to hear others stories of the disorder and look for help. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 Hi Lori, My daughter has NEVER had mouth soars and the Rhuemotologist finally diagnosed her when she was 3 with . So, do not rule it out. I would recommend getting a second opinoin. Fern (mom to , age 6) Burger <hiesersmom@...> wrote: Hi Lori, I am sorry to hear that your little girl is sick. You will find that you are not alone. As I am sure you will hear from most it is difficult to get a diagnosis with this condition mostly because so little it known about it. I just wanted to let you know that my son started his fevers when he was 10 months old, but didn't develop canker sores until he was after two. I think a lot of children start out as the fever as the only symptom. Also children do not need to present with all the symptoms to have or any other of the periodic fevers. If you read in the files section you will see that in one article mouth sores were present in only 70% of children, and the pharyngitis and adenitis were present in about 50% of children if I remember correctly. Don't let you doctor focus on the lack as a symptom as a reason to rule out one the of periodic fever syndromes. I was told my son wasn't a canidate because he didn't get throat complications, but last night we went to the doctors exactly for that. The symptoms will sometimes change over time, and sometimes he will only get cankers sores and be really whinny and crabby with no fever at all. Good luck to you and your family, mom to hieser, 2.7 slsjasrodgers@... wrote: Hello all My name is Lori and I am the mom to four beautiful daughters. The reason I am becoming part of this group is because of my youngest. Her name is . She is 22 months old. She started with fevers at aout 6 months of age. They however were not very cyclic until about 16 months I guess. All I can remember at this point is that she had a LOT of them. They were always very high. 105+. This was nothing like I had experienced with my other three and I thought I had seen it all. She did have one febrile seizure - thank goodness only one, at least that we know about. Of course we ran the virus cycle. I thought there was something else because even thought occasionally there were " reasons " for the fevers - ear infection, strep throat, pneumonia- The fevers would sometimes take a " break " and then come back. Or be there before she got the other symptoms. So finally once I told my pediatrician how exhausted I am with my little one being sick with fevers all the time, she referred us to a pediatric rheumatologist. We saw him about two months ago. He was hesitant to send her for any tests at this time because of the pain involved so he is treating her as if she has . He has given her the tagamet (we have two fevers cycles since the visit now) and I am not optimistic. I talked to my pediatrician since and she told me she is not convinced of the diagnosis because does not get the mouth sores. She never has. So now here we are with the big question mark - what is wrong with our child and how can we help her? I thought I would join this group to hear others stories of the disorder and look for help. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 Hello Lori, My name is Sacora I am a mother of 3 boys and my youngest he is now 12 went through everything your saying, but when he was about 15 months or so they ran some blood test and found his IgA level was very low and they thought that was the problem but my son since birth has been a very sick child. We have gone to from doctor to figure things out and were still kinda stuck onto what is going on with him. He has epilepsy now which when he was younger they kept saying it was ferible seizures, it is very frustrating to watch our kids go through this. Me, I am sick as well I did what my son has gone through also and my symptoms have changed from year to year and now I am getting older it has gotten worse and more severe. I went to the NIH in 2002 and was diagnosed with FMF but now that there is a mom and son with the same things going on they are wondering what is going on with both of us. It has been a long frustrating road and some times it seems the doctors act like it is in your head that these things are going on. Don't give up just keep a record on her fevers and symtoms and keep on the doctors if they can't help you then find some one who will. Take care and I wish you all the best. Sacora mom of Nicolas 12 Redmond, OR slsjasrodgers@... wrote: Hello all My name is Lori and I am the mom to four beautiful daughters. The reason I am becoming part of this group is because of my youngest. Her name is . She is 22 months old. She started with fevers at aout 6 months of age. They however were not very cyclic until about 16 months I guess. All I can remember at this point is that she had a LOT of them. They were always very high. 105+. This was nothing like I had experienced with my other three and I thought I had seen it all. She did have one febrile seizure - thank goodness only one, at least that we know about. Of course we ran the virus cycle. I thought there was something else because even thought occasionally there were " reasons " for the fevers - ear infection, strep throat, pneumonia- The fevers would sometimes take a " break " and then come back. Or be there before she got the other symptoms. So finally once I told my pediatrician how exhausted I am with my little one being sick with fevers all the time, she referred us to a pediatric rheumatologist. We saw him about two months ago. He was hesitant to send her for any tests at this time because of the pain involved so he is treating her as if she has . He has given her the tagamet (we have two fevers cycles since the visit now) and I am not optimistic. I talked to my pediatrician since and she told me she is not convinced of the diagnosis because does not get the mouth sores. She never has. So now here we are with the big question mark - what is wrong with our child and how can we help her? I thought I would join this group to hear others stories of the disorder and look for help. Thank you __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 Hi Lori, In some cases mouth sores may not be seen in episodes. It's not a must. My daughter diagnosed with does not have mouth sores either. What she suffers from are: periodic high fever (in every 21-28 days, each episode lasts 3 days), pharyngitis and a swollen lymph. After going through a lot of tests resulting normal except from CRP and throat cultures with no bacteries at all, she's diagnosed with . These episodes are really exhausting not only for little kids but for the whole family. Hope they grow out of it as soon as possible. Good luck to al of us! Elif - Mom to Jasmine, 14 months old / Istanbul on 6/8/06 3:00 AM, slsjasrodgers@... at slsjasrodgers@... wrote: > > > > > Hello all > My name is Lori and I am the mom to four beautiful daughters. The reason I am > becoming part of this group is because of my youngest. Her name is . > She is 22 months old. She started with fevers at aout 6 months of age. They > however were not very cyclic until about 16 months I guess. All I can remember > at this point is that she had a LOT of them. They were always very high. 105+. > This was nothing like I had experienced with my other three and I thought I > had seen it all. She did have one febrile seizure - thank goodness only one, > at least that we know about. Of course we ran the virus cycle. I thought there > was something else because even thought occasionally there were " reasons " for > the fevers - ear infection, strep throat, pneumonia- The fevers would > sometimes take a " break " and then come back. Or be there before she got the > other symptoms. So finally once I told my pediatrician how exhausted I am with > my little one being sick with fevers all the time, she referred us to a > pediatric rheumatologist. We saw him about two months ago. He was hesitant to > send her for any tests at this time because of the pain involved so he is > treating her as if she has . He has given her the tagamet (we have two > fevers cycles since the visit now) and I am not optimistic. I talked to my > pediatrician since and she told me she is not convinced of the diagnosis > because does not get the mouth sores. She never has. So now here we > are with the big question mark - what is wrong with our child and how can we > help her? I thought I would join this group to hear others stories of the > disorder and look for help. Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Hi Lynn! I don't usually write on here but I always read what everyone writes because it is comforting knowing that there are others out there like you. I am 24 and have had my ICD since 02/20/06. Quite hard being 24 and having one. I lost my driving privelages for about 2 months which was just as hard. I am writing because I suffered with depression for only 3 days after the surgery and then I felt great-just slight discomfort around the inplant sight. Then just recently, my heart started thumping in my throat, to the point that people could see it and I could feel it. It prevented me from sleeping. Then I started having panic attacks where I couldn't breathe and felt like I was choking. I went to the Dr. and they advised me that I was dehydrated and suffering from anxiety-something I thought I would never have. I notice that when I don't drink enough water or OJ, my heart thumps in the weirdest ways. As for the anxiety, they put me on meds. You should see your Dr about the depression because the ICD is supposed to improve your quality of life but it's kind of difficult to see that when you feel depressed. I wish you the best of luck and know that we are all here for you. Take care! > > Hi folks-- > > My name is Lynn, I live in Portland, OR. I got my Medtronic 2-lead > 5/17/06, my husband's birthday. He calls it his best birthday present > ever. I'm still getting used to the idea. I'm 45, married, 2 girls > ages not-quite-9 and 5. I got the ICD after two heart attacks and a > cardiac arrest, the former four years apart and the latter luckily in > the hospital, if you can consider cardiac arrest lucky. It's been a > very difficult year; I spent most of May and a few days in June in the > ICU with (very) unstable angina, and I don't want to see the inside of > a cath lab again if I can help it--five trips in one month. I do not > have coronary artery disease. I have the weirdest case of variant > angina anyone's ever seen. If my current medication regimen plus the > ICD/pacer don't do the trick, the next thing they want to try is an > auto-transplant, which just sounds completely wacky to me. I have an > abnormally narrow sub-clavical vein, so a clot formed and I spent more > time in ICU getting that taken care of; I'm now on warfarin therapy and > my left arm is still compromised while the blood vessels re-route. > > My main issues two months out are that at least once a day I start > feeling my heartbeat in my throat. It's not pounding or anything, I > just feel it, and then I get a little lightheaded/dizzy. The damn box > aches a small portion of every day. I still tire easily and while my > family says I'm recovering much faster than they thought I would, I > still hear all these stories about people out on the golf links and > stuff like that the week after surgery. I didn't play golf before-- I > have fibromyalgia on top of everything else--but I wonder if I'm a > slacker. > > Oh yeah, and I'm really, really down. I'm trying to be up, but tears > are always right below the surface. This has been harrowing. > > Anyway, it's time to take meds and go to bed! > > Lynn > > ------ > Mama, homeschooler, writer, activist, spinner & knitter > http://www.siprelle.com > > NOTICE: The National Security Agency may have read this email without > warning, warrant, or notice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Hi Lynn! I don't usually write on here but I always read what everyone writes because it is comforting knowing that there are others out there like you. I am 24 and have had my ICD since 02/20/06. Quite hard being 24 and having one. I lost my driving privelages for about 2 months which was just as hard. I am writing because I suffered with depression for only 3 days after the surgery and then I felt great-just slight discomfort around the inplant sight. Then just recently, my heart started thumping in my throat, to the point that people could see it and I could feel it. It prevented me from sleeping. Then I started having panic attacks where I couldn't breathe and felt like I was choking. I went to the Dr. and they advised me that I was dehydrated and suffering from anxiety-something I thought I would never have. I notice that when I don't drink enough water or OJ, my heart thumps in the weirdest ways. As for the anxiety, they put me on meds. You should see your Dr about the depression because the ICD is supposed to improve your quality of life but it's kind of difficult to see that when you feel depressed. I wish you the best of luck and know that we are all here for you. Take care! > > Hi folks-- > > My name is Lynn, I live in Portland, OR. I got my Medtronic 2-lead > 5/17/06, my husband's birthday. He calls it his best birthday present > ever. I'm still getting used to the idea. I'm 45, married, 2 girls > ages not-quite-9 and 5. I got the ICD after two heart attacks and a > cardiac arrest, the former four years apart and the latter luckily in > the hospital, if you can consider cardiac arrest lucky. It's been a > very difficult year; I spent most of May and a few days in June in the > ICU with (very) unstable angina, and I don't want to see the inside of > a cath lab again if I can help it--five trips in one month. I do not > have coronary artery disease. I have the weirdest case of variant > angina anyone's ever seen. If my current medication regimen plus the > ICD/pacer don't do the trick, the next thing they want to try is an > auto-transplant, which just sounds completely wacky to me. I have an > abnormally narrow sub-clavical vein, so a clot formed and I spent more > time in ICU getting that taken care of; I'm now on warfarin therapy and > my left arm is still compromised while the blood vessels re-route. > > My main issues two months out are that at least once a day I start > feeling my heartbeat in my throat. It's not pounding or anything, I > just feel it, and then I get a little lightheaded/dizzy. The damn box > aches a small portion of every day. I still tire easily and while my > family says I'm recovering much faster than they thought I would, I > still hear all these stories about people out on the golf links and > stuff like that the week after surgery. I didn't play golf before-- I > have fibromyalgia on top of everything else--but I wonder if I'm a > slacker. > > Oh yeah, and I'm really, really down. I'm trying to be up, but tears > are always right below the surface. This has been harrowing. > > Anyway, it's time to take meds and go to bed! > > Lynn > > ------ > Mama, homeschooler, writer, activist, spinner & knitter > http://www.siprelle.com > > NOTICE: The National Security Agency may have read this email without > warning, warrant, or notice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Anyway, it's time to take meds and go to bed! Lynn > Mama, homeschooler, writer, activist, spinner & knitter > http://www.siprelle.com NOTICE: The National Security Agency may have read this email without warning, warrant, or notice. Hi Lynn~ It takes us all a while to get into gear.Different reasons because of different needs. My cardiac arrest was back in 1994 when I was 37 years old, with two daughters 12 and 15.Thank God my husband came home as soon as I went into arrest. Between him and my Mom I survived til the squad got here. and then I had cardiac arrest two more times that day. I had major memory loss. I knew who I was and my Dad but I did not know my husband or that I had children. After ICD and rehab I came home desperate to go back to work. Which just aobut ruined my chance of getting disability. But 4 years later I got the disability, and since I no longer had the stress of work, I did much better. Just relax as best as you can as often as you can, and be joyful that you are one of the survivors. It may take some tweeking with your meds, but it will all work out eventually. Howell with 3rd icd unit with pacer abilities. email me anytime. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Anyway, it's time to take meds and go to bed! Lynn > Mama, homeschooler, writer, activist, spinner & knitter > http://www.siprelle.com NOTICE: The National Security Agency may have read this email without warning, warrant, or notice. Hi Lynn~ It takes us all a while to get into gear.Different reasons because of different needs. My cardiac arrest was back in 1994 when I was 37 years old, with two daughters 12 and 15.Thank God my husband came home as soon as I went into arrest. Between him and my Mom I survived til the squad got here. and then I had cardiac arrest two more times that day. I had major memory loss. I knew who I was and my Dad but I did not know my husband or that I had children. After ICD and rehab I came home desperate to go back to work. Which just aobut ruined my chance of getting disability. But 4 years later I got the disability, and since I no longer had the stress of work, I did much better. Just relax as best as you can as often as you can, and be joyful that you are one of the survivors. It may take some tweeking with your meds, but it will all work out eventually. Howell with 3rd icd unit with pacer abilities. email me anytime. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 > Just relax as best as you can as often as you can, and be joyful that > you are one of the survivors. It may take some tweeking with your > meds, but it will all work out eventually. When do I stop being so afraid? HOW do I stop being so afraid? May was nonstop pain and misery, and almost out of nowhere, and no one knows why I went through this. The cardiologists who've seen my angiogram say my heart's the cleanest they've ever seen in the cath lab. The pain, strangely, stopped once I finally coded and they shocked me back, and my doctor says sometimes that's all a wonky heart needs is that shock to remind it how to work. I'm just so down. I can't even say WHY I'm so down. I'm just shellshocked still, I guess. Thank you from the bottom of what's left of my heart (quite a bit actually) for being here. Lynn S. ------ Mama, homeschooler, writer, activist, spinner & knitter http://www.siprelle.com NOTICE: The National Security Agency may have read this email without warning, warrant, or notice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 > Just relax as best as you can as often as you can, and be joyful that > you are one of the survivors. It may take some tweeking with your > meds, but it will all work out eventually. When do I stop being so afraid? HOW do I stop being so afraid? May was nonstop pain and misery, and almost out of nowhere, and no one knows why I went through this. The cardiologists who've seen my angiogram say my heart's the cleanest they've ever seen in the cath lab. The pain, strangely, stopped once I finally coded and they shocked me back, and my doctor says sometimes that's all a wonky heart needs is that shock to remind it how to work. I'm just so down. I can't even say WHY I'm so down. I'm just shellshocked still, I guess. Thank you from the bottom of what's left of my heart (quite a bit actually) for being here. Lynn S. ------ Mama, homeschooler, writer, activist, spinner & knitter http://www.siprelle.com NOTICE: The National Security Agency may have read this email without warning, warrant, or notice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Hi Lynn Welcome to the group. Sounds like you have had a scarey time, and having small children it must be even tougher. You have to give yourself time to heal, emotionally as well as physically. I have heard those stories too, after one week after implant they are on the go. That is great for them and I am happy for them, but its not like that with everyone. It wasn't easy for me either. I have a medtronic ICD with 3 leads, since 12/28/05. I had a stent put in six months earlier than that. It has been a long road. I just turned 52 today. The left arm and shoulder took a long while to get better, but it does get better everyday. I know the emotional stuff is tough. Take it easy on yourself. Give yourself time. Sounds like you have a wonderful family there that will help you. Email me anytime. Sincerely, Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Happy Birthday Toni!!! I will be 48 on Saturday!!! Well I am one of those ones that had any easy recovery time with a wonderful hubby, a ten and fourteen yo... That was back in 1999. However - 6 most later my Medtronic unit was recalled! I had it replaced. I am now recovering from by second replacement March 13. I now have an EnTrust - yes another dual chamber. I healed well in 1999, but I did go through boughts of depression. A trip to Hawaii helped that - that and the fact that I decided I would rather live like a grandmother, than not live at all. I also view my ICD as my guardian angel. I let it look over my heart and worry for me - so I don't have too. It lets me live my life the way I can without worry. I know easy to say - I have never been shocked. My unit charged once when I was in a flower market in Germany. I have been lucky. I have cardiomyopathy - familial. My EF was down about 40% and I have improved it to 55%. I did that through drug regimen - COREG and cardio rehab. I have also lost 75 pounds this last year - so I am feeling great. Well Guys I am off to KC Missouri tomorrow for my 17 yo Acrobatic Gymnastics Championships - she won GOLD for the Western Region - so we are looking for GOLD next week at Nationals - Then we are off to Europe on the 31st with the whole family for three weeks. So you see there is life after an ICD! It does not keep me home. Lynn - keep your chin up and don't be afraid to ask for the anti anxiety meds to get you through this hump some don't need them, but others do. Talk to your Docs!! Love those kids and be happy to be alive. Things will get better. ~guin Re: Intro Hi Lynn Welcome to the group. Sounds like you have had a scarey time, and having small children it must be even tougher. You have to give yourself time to heal, emotionally as well as physically. I have heard those stories too, after one week after implant they are on the go. That is great for them and I am happy for them, but its not like that with everyone. It wasn't easy for me either. I have a medtronic ICD with 3 leads, since 12/28/05. I had a stent put in six months earlier than that. It has been a long road. I just turned 52 today. The left arm and shoulder took a long while to get better, but it does get better everyday. I know the emotional stuff is tough. Take it easy on yourself. Give yourself time. Sounds like you have a wonderful family there that will help you. Email me anytime. Sincerely, Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Guin, Well back at ya with the Happy Birthday !! You give a lot of optimism thank you for that. It's great to hear that you are recovering well and living a life. Good Luck with the championships. You must be so proud. Take care and give us an update on all the happenings. Sincerely, Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Hi Lu and welcome!! I am almost 39 and started at 310, you can do this... one step at a time!! Glad you decided to join us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 In a message dated 7/22/2006 10:08:20 PM Pacific Standard Time, aussielue@... writes: it really has to be one step at a time doesn't it? One step at a time is how I accumulated 2.7 million steps on my pedometer this past 13 months... definately!! I can't even imagine going back to how I was a year ago. Sure, I have my lazy slug-fest days, but for the most part, I am working up to 7 days a week exercise... There are no quick fixes, no miracle pills....note they can put man on the moon, invent viagra and a way to put hair back when you lose it...but still no magic weight loss pill...um....don't we think our priorities are just a little skewed here?????? Hey, my b/f was talking about ANOTHER diet pill that they are about to come out with - it is in the final stages of testing/approval?? Have any of you been following the news on what this may be?? NOT that I am going to go run off and buy or get an RX for a pill (again) - but it did pique my curiousity.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 I've been reading this list for a few weeks now and so here I go jumping in with both feet...finally! Hi Lu, Glad you finally decided to post! I'm about to turn 40, am 317 lb and am at that point in this struggle where I know it's lose weight or lose my life....or at least the quality of life that still has me doing things for myself. That is such a real motivator. I think losing the ability to do basic everyday hygiene and basic living skills is a scary thing for anyone. And as so many has said here just trying to live healthier is a goal for most of us. Come on in with us all and start taking some baby steps of your own. We will do it together. I'm glad to be a part of this group. thanks We need your support too so its a give and take here. Wecome again! Lu Quote Link to comment Share on other sites More sharing options...
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