Guest guest Report post Posted July 26, 2008 My son took 600mg a day for 6 months didn't help him so he is on colchicine now. So I think you are on the normal track that we all go threw. good luck char. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 26, 2008 My son is 2.5 yrs old now. He also fevers every 2 weeks for 3 days each episode. He has been fevering for just over 2 years now. It is VERY hard with the cycles so close together. We have a T & A scheduled for August 5th for him. We are all hoping it will end the fevers and allow him to have a normal life without being sick all the time. His developement is above in most areas for his age, but his speech is just starting to really take off with better pronounciation and small word groupings. I think it is because his throat is sore so often. He used to not talk very much when he was fevering, now he still talks during the episodes (almost as much as inbetween them). Anyway, I wanted to let your family know I understand what you are going through. Continue to be proactive and assertive about care for your nephew. Hopefully you will find a way to help his fevers end. If you haven't heard about the success rate of having a tonsillectomy done, search on here for " study " . There was one done not too long ago that was successful in 26 of the 27 children who had the procedure done. , Tyler 2.5 yrs old - fevering over 2 yrs (?) Dylan 4 months old Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 26, 2008 My son is 2.5 yrs old now. He also fevers every 2 weeks for 3 days each episode. He has been fevering for just over 2 years now. It is VERY hard with the cycles so close together. We have a T & A scheduled for August 5th for him. We are all hoping it will end the fevers and allow him to have a normal life without being sick all the time. His developement is above in most areas for his age, but his speech is just starting to really take off with better pronounciation and small word groupings. I think it is because his throat is sore so often. He used to not talk very much when he was fevering, now he still talks during the episodes (almost as much as inbetween them). Anyway, I wanted to let your family know I understand what you are going through. Continue to be proactive and assertive about care for your nephew. Hopefully you will find a way to help his fevers end. If you haven't heard about the success rate of having a tonsillectomy done, search on here for " study " . There was one done not too long ago that was successful in 26 of the 27 children who had the procedure done. , Tyler 2.5 yrs old - fevering over 2 yrs (?) Dylan 4 months old Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 27, 2008 Welcome , Have you found a job yet? Where would you like to work? Nigel Bobbing around ff the coast of Angola -------------------------------------------------- From: " Ma " <sandramahk1976@...> Sent: Sunday, July 27, 2008 4:35 PM < > Subject: Intro > Hello peeps, I am a newbie medic and have joined this discussion group to > gain a greater insight into the role (and the goings- on in the job) of > the offshore medic, and also to have a banter with medics from other > disciplines besides the offshore environment. Any advice or tips > gratefully received! Looking forward to a new beginning (and a bit > nervous at the same time)... > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 27, 2008 Hi there!! I am a bit giddy, I didn't think anyone would read my entry hahahaah! No I haven't got a job just yet; I only officially became a Medic a couple of weeks ago, so the ball is starting to roll now. I have my medical tomorrow and then I have the survival to do at some stage. Everything is on hold at the mo because I am trying to finish my dissertation for a University course, so I am having to take things steady and not rush into leaving my current job. I am going to keep my options open with regards to job prospects because I just want to gain some offshore experience, so I can't afford to be too picky... as long as I don't end up somewhere dodgy! What is Angola like then? (static onshore, Leeds). > > Welcome , > > Have you found a job yet? > > Where would you like to work? > > Nigel > > Bobbing around ff the coast of Angola > > -------------------------------------------------- > From: " Ma " sandramahk1976@... > Sent: Sunday, July 27, 2008 4:35 PM > > Subject: Intro > > > Hello peeps, I am a newbie medic and have joined this discussion group to > > gain a greater insight into the role (and the goings- on in the job) of > > the offshore medic, and also to have a banter with medics from other > > disciplines besides the offshore environment. Any advice or tips > > gratefully received! Looking forward to a new beginning (and a bit > > nervous at the same time)... > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 27, 2008 Thanks for the welcome, ! We were out at the NIH before my son's transplant, right after he was diagnosed with NEMO. We didn't take our other children, but sent in bloodwork after we returned. Our daughter was determined to be a NEMO carrier, but I believe she has full NEMO function since it's x-linked and only affects boys. She has some other immune issues, mildly low IgG, no NK cell function, and a severe complement deficiency. I know that the NEMO gene (NFkB) can have a connection with the periodic fevers, but I'm not sure if that is really the problem with her since she does have one normal NEMO gene. By the way, I don't believe our daughter has ever had an elevated CRP or ESR, we've tested her a couple of times recently. We are meeting with our ID doc next week and I'll see if he can help with testing. Thanks for the advice! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 27, 2008 Thanks for the welcome, ! We were out at the NIH before my son's transplant, right after he was diagnosed with NEMO. We didn't take our other children, but sent in bloodwork after we returned. Our daughter was determined to be a NEMO carrier, but I believe she has full NEMO function since it's x-linked and only affects boys. She has some other immune issues, mildly low IgG, no NK cell function, and a severe complement deficiency. I know that the NEMO gene (NFkB) can have a connection with the periodic fevers, but I'm not sure if that is really the problem with her since she does have one normal NEMO gene. By the way, I don't believe our daughter has ever had an elevated CRP or ESR, we've tested her a couple of times recently. We are meeting with our ID doc next week and I'll see if he can help with testing. Thanks for the advice! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 28, 2008 Dear , My names john I to am an offshore medic currently on a perminant shell contract. I live near selby just of the 62 got loads of info and am in the loop of a few contracts coming up so if you want drop me a line on johnwalsh5701@... and id be glad to fire you some info. Regards @...: sandramahk1976@...: Sun, 27 Jul 2008 17:19:50 +0000Subject: Re: Intro Hi there!!I am a bit giddy, I didn't think anyone would read my entry hahahaah!No I haven't got a job just yet; I only officially became a Medic acouple of weeks ago, so the ball is starting to roll now. I have mymedical tomorrow and then I have the survival to do at some stage. Everything is on hold at the mo because I am trying to finish mydissertation for a University course, so I am having to take thingssteady and not rush into leaving my current job. I am going to keep myoptions open with regards to job prospects because I just want to gainsome offshore experience, so I can't afford to be too picky... as longas I don't end up somewhere dodgy!What is Angola like then? (static onshore, Leeds).>> Welcome ,>> Have you found a job yet?>> Where would you like to work?>> Nigel>> Bobbing around ff the coast of Angola>> --------------------------------------------------> From: " Ma " sandramahk1976@...> Sent: Sunday, July 27, 2008 4:35 PM> To: > Subject: Intro>> > Hello peeps, I am a newbie medic and have joined this discussiongroup to> > gain a greater insight into the role (and the goings- on in the job)of> > the offshore medic, and also to have a banter with medics from other> > disciplines besides the offshore environment. Any advice or tips> > gratefully received! Looking forward to a new beginning (and a bit> > nervous at the same time)...> >> >> >> _________________________________________________________________ Find the best and worst places on the planet http://clk.atdmt.com/UKM/go/101719807/direct/01/ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 28, 2008 Your welcome! Jeez you describe Breana with those labs...Her IgG c4, Imm D and IgA are always very low. Her Ck and CKMB are always high...plus many other highs and lows but those stand out! Hang in there! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 28, 2008 Your welcome! Jeez you describe Breana with those labs...Her IgG c4, Imm D and IgA are always very low. Her Ck and CKMB are always high...plus many other highs and lows but those stand out! Hang in there! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 28, 2008 Your welcome! Jeez you describe Breana with those labs...Her IgG c4, Imm D and IgA are always very low. Her Ck and CKMB are always high...plus many other highs and lows but those stand out! Hang in there! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 19, 2008 Laurie here are links to a study done not too long ago about and T & A - successful on 26 out of 27 patients! Article about it : http://www.washingtonpost.com/wp-dyn/content/article/2008/06/20/AR2008062002501.\ \ html I can't get the study to save. I am going to try to forward the email I received to the group and your email. Hope this helps you with the MD's Pruden Tyler Pruden 2.5yrs old fevering since 3 months - - T & A Aug.5th Dylan Pruden 5 months Vancouver WA Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 8, 2008 Hi The blisters on the fingertips sound like foot & mouth, which would also present with high fevers. Strange to be getting that so regularly though. In terms of having non- symptoms, in my opinion it could still be - there are so many exceptions to the rule ranging from no symptoms except the fever to joint pain, stomach pain, vomiting, mouth ulcers, inflamed throat etc. I wish there was a test one could take that confirms or rules out ! It seems to always be diagnosed when they don't come up with anything else?! Good luck and take care Inga, mom to Emma, fevering from 11 months until T & A at 32 months in March 2008, and , 9 months and healthy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 8, 2008 , could an overuse of antibiotics during all this got his good bacteria out of whack allowing yeast or thrush type problems? just a thought. Ive read alot about these problems and missed diagnosises, The sources came from the Mayo clinic.. Steve Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 26, 2008 Welcome, Marcie! I recently joined the GF list and am about 6 days or so gluten free, I have seen you there and think you have replied to my cookie and bread posts! (c8 I know that hypothyroidism can cause low ferritin levels, but does celiac also? I assume it does but I don't know much about celiacs. If so, that's a double whammy. I wonder if digestive enzymes would be appropriate for your husband's situation. Do you have Dr. Brownstein's iodine book yet? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 26, 2008 Welcome Marcie! Thanks for the intro. You have a very "medically / thyroid" challenged family. All of your children will need to be watched since you and hubby have issues. Doctors for the most part have lost their clinical skills. They rely way too much on labs and not on how the person feels or looks. It is very sad. It does force us to find answers. My son's blood labs were negative for celiac yet after going off gluten for 1 week he feels much better and can tell me that his "tummy no longer hurts". Now that is something. After reading the dangerous grains book I think gluten is way too over used. It is dangerous to our health. My son is low in iron and ferritin as well. Steph Intro I think I forgot to intro myself? Name Marcie. Meet on the gfcf board. My oldest son at age 5 (very long story) was found to have Graves Disease. After searching and searching apparently there are only two known cases of kids have graves. I say bull donky and kids should be tested yearly. My son also has Celiac and so I am a full believer in the gluten, dairy, soy free diet. (very long story)For years I went to doctor after doctor, tired and whatnot I would get told over and over you are fine go home. Or you have kids of course your tired go home and nap. After having my second child is when it hit the worse. It would be 90 outside and I would be crashed out on the couch wrapped up in a blanket. I couldn't go outside because it was cold. but according to the doctors I was fine? So after baby number 3 I gave up on doctors and researched myself. I found what I needed and actually found most of it in one pill which I found on ebay. After two months I had energy, I was off the couch no longer napping. So when I found a great Natural Doctor and showed her the thyroid stuff and she was impressed and told me to stay on it. Since it was working for me and my numbers were nearly normal.But my husband is another story, he is very hypo. His up to 120 Armour and his numbers are still dropping so after talking with I am here to try and learn in any spare time I have. My husband goes in for a scope on the 2nd for Celiac, also he's iron levels are nearly zero and we need to find out why. He is even on iron shots and iron pills. So after the scope his diet is changing. Along with me working on his thyroid. He goes in for labs on Monday and we go from there. I am a big believer everyone in the world needs to be tested for Celiac Disease. But I do not believe in the blood test. 1 in 133 people have Celiac and only 3% of the people know about it. Those numbers are scary. Marcie Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 26, 2008 I agree, as I'm sitting here typing my middle son is sitting in front of the heater freezing. His also covered in bruises so I know he's low on iron again. My youngest when we go in, in Jan for another auto immune issue that is when we will do all his blood work. It's just amazing how much we are going through. I also believe my youngest has Celiac, but knowing what I know at 10 months changed his diet and he's been great. Why do any testing? On top of things my husbands cousin has graves and her mother's thyroid is really bad. She has been seeing a specialist down in CA for it. Although her last email she is not doing too well, so my next email to her will be asking if she has looked into Celiac Disease. As she has dropped about 50 pounds in a very short time. I also have a mother and father in law so much in denial I think it's killing my father in law. But because the doctor didn't bring it up he must be fine? Sure WHATEVER!!! Marcie Marcie Dingerson REALTOR Doug Burger Realty Group Your Home Buying Specialist www.MarcieDingerson.com 360-292-2569 http://threeboysandglutenfree.blogspot.com/ Check out my monkey's From: ladybugsandbees <ladybugsandbees@...>Subject: Re: Introiodine Date: Wednesday, November 26, 2008, 6:04 AM Welcome Marcie! Thanks for the intro. You have a very "medically / thyroid" challenged family. All of your children will need to be watched since you and hubby have issues. Doctors for the most part have lost their clinical skills. They rely way too much on labs and not on how the person feels or looks. It is very sad. It does force us to find answers. My son's blood labs were negative for celiac yet after going off gluten for 1 week he feels much better and can tell me that his "tummy no longer hurts". Now that is something. After reading the dangerous grains book I think gluten is way too over used. It is dangerous to our health. My son is low in iron and ferritin as well. Steph Intro I think I forgot to intro myself? Name Marcie. Meet on the gfcf board. My oldest son at age 5 (very long story) was found to have Graves Disease. After searching and searching apparently there are only two known cases of kids have graves. I say bull donky and kids should be tested yearly. My son also has Celiac and so I am a full believer in the gluten, dairy, soy free diet. (very long story)For years I went to doctor after doctor, tired and whatnot I would get told over and over you are fine go home. Or you have kids of course your tired go home and nap. After having my second child is when it hit the worse. It would be 90 outside and I would be crashed out on the couch wrapped up in a blanket. I couldn't go outside because it was cold. but according to the doctors I was fine? So after baby number 3 I gave up on doctors and researched myself. I found what I needed and actually found most of it in one pill which I found on ebay. After two months I had energy, I was off the couch no longer napping. So when I found a great Natural Doctor and showed her the thyroid stuff and she was impressed and told me to stay on it. Since it was working for me and my numbers were nearly normal.But my husband is another story, he is very hypo. His up to 120 Armour and his numbers are still dropping so after talking with I am here to try and learn in any spare time I have. My husband goes in for a scope on the 2nd for Celiac, also he's iron levels are nearly zero and we need to find out why. He is even on iron shots and iron pills. So after the scope his diet is changing. Along with me working on his thyroid. He goes in for labs on Monday and we go from there. I am a big believer everyone in the world needs to be tested for Celiac Disease. But I do not believe in the blood test. 1 in 133 people have Celiac and only 3% of the people know about it. Those numbers are scary. Marcie Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 26, 2008 Yes, Celiac can cause low to no iron. This is one big reason for the scope for him. So this way we have this for insurance or tax reasons. And to conviced the in laws. After his scope and we get the blood work back. He will be gluten, dairy and soy free. He is nearly but I told him to stay on gluten until the scope. As I'm looing into every vitamin and such I am adding them to his line up of pills to take. Which will include an enzyme and a few other things. He is now on vitamin D. He get's b-12 shots which are not working right now at all. Along with iron shots and pills and that is not working. So after the scope his life will change and he is ok with that as he feels like crap. Yep, seen you over on the gfcf site. How are you liking gluten free? We love it. It is hard to get started. I remember standing in the kitchen night after night wondering how do I make dinner that is gluten free and eatable? Many nights we just had potatos. Marcie Marcie Dingerson REALTOR Doug Burger Realty Group Your Home Buying Specialist www.MarcieDingerson.com 360-292-2569 http://threeboysandglutenfree.blogspot.com/ Check out my monkey's From: Piwowarski <lpiwowarski@...>Subject: Re: Introiodine Date: Wednesday, November 26, 2008, 3:08 AM Welcome, Marcie! I recently joined the GF list and am about 6 days or so gluten free, I have seen you there and think you have replied to my cookie and bread posts! (c8I know that hypothyroidism can cause low ferritin levels, but does celiac also? I assume it does but I don't know much about celiacs. If so, that's a double whammy. I wonder if digestive enzymes would be appropriate for your husband's situation.Do you have Dr. Brownstein's iodine book yet? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 26, 2008 I am living in the same world with relatives. My SIL has chronic fatigue / Fibro and I know that iodine would help her based on the testimonies here. But she won't do it because her doctor says she is fine. Yet she cannot work and sleeps all day and is up all night and pops pain pills like crazy. Steph Re: Intro I agree, as I'm sitting here typing my middle son is sitting in front of the heater freezing. His also covered in bruises so I know he's low on iron again. My youngest when we go in, in Jan for another auto immune issue that is when we will do all his blood work. It's just amazing how much we are going through. I also believe my youngest has Celiac, but knowing what I know at 10 months changed his diet and he's been great. Why do any testing? On top of things my husbands cousin has graves and her mother's thyroid is really bad. She has been seeing a specialist down in CA for it. Although her last email she is not doing too well, so my next email to her will be asking if she has looked into Celiac Disease. As she has dropped about 50 pounds in a very short time. I also have a mother and father in law so much in denial I think it's killing my father in law. But because the doctor didn't bring it up he must be fine? Sure WHATEVER!!! Marcie Marcie Dingerson REALTOR Doug Burger Realty Group Your Home Buying Specialist www.MarcieDingerson.com 360-292-2569 http://threeboysandglutenfree.blogspot.com/ Check out my monkey's Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 26, 2008 My sister too, she pops purple pills. And she will not go to the doctor. Heck she will not touch anything that is gluten free. Do not feed her gluten free food. And because my sister in law does not understand, she has not talked to us in 14 months. How could I do this to my child? Is her thoughts. Although my child has gained over 10 pounds and has added inches to his height? Huh? Marcie Marcie Dingerson REALTOR Doug Burger Realty Group Your Home Buying Specialist www.MarcieDingerson.com 360-292-2569 http://threeboysandglutenfree.blogspot.com/ Check out my monkey's From: ladybugsandbees <ladybugsandbees@...>Subject: Re: Introiodine Date: Wednesday, November 26, 2008, 8:19 AM I am living in the same world with relatives. My SIL has chronic fatigue / Fibro and I know that iodine would help her based on the testimonies here. But she won't do it because her doctor says she is fine. Yet she cannot work and sleeps all day and is up all night and pops pain pills like crazy. Steph Re: Intro I agree, as I'm sitting here typing my middle son is sitting in front of the heater freezing. His also covered in bruises so I know he's low on iron again. My youngest when we go in, in Jan for another auto immune issue that is when we will do all his blood work. It's just amazing how much we are going through. I also believe my youngest has Celiac, but knowing what I know at 10 months changed his diet and he's been great. Why do any testing? On top of things my husbands cousin has graves and her mother's thyroid is really bad. She has been seeing a specialist down in CA for it. Although her last email she is not doing too well, so my next email to her will be asking if she has looked into Celiac Disease. As she has dropped about 50 pounds in a very short time. I also have a mother and father in law so much in denial I think it's killing my father in law. But because the doctor didn't bring it up he must be fine? Sure WHATEVER!!! Marcie Marcie Dingerson REALTOR Doug Burger Realty Group Your Home Buying Specialist www.MarcieDingerson .com 360-292-2569 http://threeboysand glutenfree. blogspot. com/ Check out my monkey's Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 26, 2008 My SIL knows she has a gluten problem as she feels bad when she eats it. Her niece is celiac. We have thanksgiving here and I told her no gluten. She is bringing her own pie because she doesn't want the gluten free pumpkin I made. She will be the only one eating it and it will go home with her. Steph Re: Intro I agree, as I'm sitting here typing my middle son is sitting in front of the heater freezing. His also covered in bruises so I know he's low on iron again. My youngest when we go in, in Jan for another auto immune issue that is when we will do all his blood work. It's just amazing how much we are going through. I also believe my youngest has Celiac, but knowing what I know at 10 months changed his diet and he's been great. Why do any testing? On top of things my husbands cousin has graves and her mother's thyroid is really bad. She has been seeing a specialist down in CA for it. Although her last email she is not doing too well, so my next email to her will be asking if she has looked into Celiac Disease. As she has dropped about 50 pounds in a very short time. I also have a mother and father in law so much in denial I think it's killing my father in law. But because the doctor didn't bring it up he must be fine? Sure WHATEVER!!! Marcie Marcie Dingerson REALTOR Doug Burger Realty Group Your Home Buying Specialist www.MarcieDingerson .com 360-292-2569 http://threeboysand glutenfree. blogspot. com/ Check out my monkey's Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 26, 2008 The doctor who diagnosed my hypothyroidism almost 2 years ago and put me on Synthroid - long story - and thought iodine was poison and Armour dose was fine at 30 mg daily told me that the reason I hurt all over and was tired was CFS/fibromyalgia and referred me to a rheumatologist. As I sat there telling him what I thought of the diagnosis of CFS/fibro being a " garbage can " diagnosis and the thing doctors use when they don't know what else to do, he took out his prescription pad and was writing " PRO... " I saw it and said " And I am NOT suffering from an acute Prozac deficiency! " He put the pad in his pocket and looked at me with shock. I fired him, got a different doctor who put me on 50 mg of iodine/iodide and a larger dose of Armour. I felt SO much better within a few weeks. I went from falling asleep while reading out loud to my boys and not being able to drive myself to a doctor's appointment 45 minutes away to going on a trek to the U.P. to visit my parents (6 hour drive one way) and while there going on a day trip to Mackinac Island where we RENTED BIKES and rode around the island. My two boys, ages 10 and 11 at the time, were pooped and wanted to turn in the bikes but I was ready to go up the hill to the other things to see. Iodoral and Armour have probably saved my life. When I was put on Synthroid my husband woke me up at night at times because he said I had stopped breathing while asleep. I had become so weak that I had to use two arms and rock like an old lady to get out of a chair. You have my permission to send this to anyone that needs to read it. My labwork was " fine " too, for over 20 years, but I had symptoms of hypothyroidism that were not recognized as such because doctors are taught differently now than they were 60 years ago. I am a registered nurse and still didn't recognize my cold hands and other symptoms as hypothyroidism. ladybugsandbees wrote: > > I am living in the same world with relatives. My SIL has chronic > fatigue / Fibro and I know that iodine would help her based on the > testimonies here. But she won't do it because her doctor says she is > fine. Yet she cannot work and sleeps all day and is up all night and > pops pain pills like crazy. > > Steph > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 26, 2008 Well, so far being gluten free is going so well I can't believe it. I've tried it before but caved within one day to cravings for bread or muffins or whatever was here. One taste and I had to have more and more. Yesterday I made bread and was fine after one slice and one sandwich. No bloating, no regrets. I feel so good. I've gone 6 days now totally gluten free except for touching bread dough when making it for my husband. The last time I made a change in diet/supplements that made me feel THIS GOOD was when I got up to 50 mg Iodoral and for the first time in 20 years had warm hands and feet. Of course the doctor I was going to at the time said that was a symptom of HYPERthyroidism..... but that's a nuther story. Changes in diet are so difficult and gluten free has been no exception! I have my first gluten free made-from-scratch cake in the oven, thanks to Steph. Cream cheese/pumpkin frosting goes on it later. I'm labeling it tomorrow on the buffet as GLUTEN FREE so if anyone else there needs gluten free then can try it. I'm sure that no one will touch it and I can bring most of it back home, tee hee. Marcie Dingerson wrote: > > > Yep, seen you over on the gfcf site. How are you liking gluten free? > We love it. It is hard to get started. I remember standing in the > kitchen night after night wondering how do I make dinner that is > gluten free and eatable? Many nights we just had potatos. > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 26, 2008 Your story is not unusual - unfortunately. Misdx no matter what the symptoms are. Steph Re: Intro The doctor who diagnosed my hypothyroidism almost 2 years ago and put me on Synthroid - long story - and thought iodine was poison and Armour dose was fine at 30 mg daily told me that the reason I hurt all over and was tired was CFS/fibromyalgia and referred me to a rheumatologist. As I sat there telling him what I thought of the diagnosis of CFS/fibro being a "garbage can" diagnosis and the thing doctors use when they don't know what else to do, he took out his prescription pad and was writing "PRO..." I saw it and said "And I am NOT suffering from an acute Prozac deficiency!" He put the pad in his pocket and looked at me with shock. I fired him, got a different doctor who put me on 50 mg of iodine/iodide and a larger dose of Armour. I felt SO much better within a few weeks. I went from falling asleep while reading out loud to my boys and not being able to drive myself to a doctor's appointment 45 minutes away to going on a trek to the U.P. to visit my parents (6 hour drive one way) and while there going on a day trip to Mackinac Island where we RENTED BIKES and rode around the island. My two boys, ages 10 and 11 at the time, were pooped and wanted to turn in the bikes but I was ready to go up the hill to the other things to see. Iodoral and Armour have probably saved my life. When I was put on Synthroid my husband woke me up at night at times because he said I had stopped breathing while asleep. I had become so weak that I had to use two arms and rock like an old lady to get out of a chair. You have my permission to send this to anyone that needs to read it. My labwork was "fine" too, for over 20 years, but I had symptoms of hypothyroidism that were not recognized as such because doctors are taught differently now than they were 60 years ago. I am a registered nurse and still didn't recognize my cold hands and other symptoms as hypothyroidism. ladybugsandbees wrote:>> I am living in the same world with relatives. My SIL has chronic > fatigue / Fibro and I know that iodine would help her based on the > testimonies here. But she won't do it because her doctor says she is > fine. Yet she cannot work and sleeps all day and is up all night and > pops pain pills like crazy.> > Steph> > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 26, 2008 If you read dangerous grains it talks about how gluten is an opium like substance. It works the same way in our brain. That is probably why they are called "comfort foods". Knowing all this maybe our low iodine status is not really due to dropping levels in our food and soil but to the fact that our guts are all messed up and aren't absorbing the nutrients. I think many of us are malnourished. Steph Re: Intro Well, so far being gluten free is going so well I can't believe it. I've tried it before but caved within one day to cravings for bread or muffins or whatever was here. One taste and I had to have more and more. Yesterday I made bread and was fine after one slice and one sandwich. No bloating, no regrets. I feel so good. I've gone 6 days now totally gluten free except for touching bread dough when making it for my husband. The last time I made a change in diet/supplements that made me feel THIS GOOD was when I got up to 50 mg Iodoral and for the first time in 20 years had warm hands and feet. Of course the doctor I was going to at the time said that was a symptom of HYPERthyroidism..... but that's a nuther story.Changes in diet are so difficult and gluten free has been no exception!I have my first gluten free made-from-scratch cake in the oven, thanks to Steph. Cream cheese/pumpkin frosting goes on it later. I'm labeling it tomorrow on the buffet as GLUTEN FREE so if anyone else there needs gluten free then can try it. I'm sure that no one will touch it and I can bring most of it back home, tee hee.Marcie Dingerson wrote:>>> Yep, seen you over on the gfcf site. How are you liking gluten free? > We love it. It is hard to get started. I remember standing in the > kitchen night after night wondering how do I make dinner that is > gluten free and eatable? Many nights we just had potatos.> >> Quote Share this post Link to post Share on other sites
