Newbie

[Guest guest]

There's a farmer named " Broommaker " who is one of the managers of the

hipuniverse support group at msn.com. I'm sure if you posted your

question over there, he'd see it and answer it. I believe he has had

both hips replaced.

> Hi all, I have a few quick questions with which I'm hoping to get

> some insight on.

> I'm a 45 year old male living in Eastern Ontario, Canada and run a

> farm. I was very interested in the ASR resufacing procedure so I

met

> with a Dr. u in Montreal. During that visit he stated that I

> have some bone cysts and MIGHT have not be able to receive the

> resurfacing but rather would receive a MOM THR. I'm concerned about

> what that would mean when working on the farm.

>

> After one is healed what sort of restrictions is one phsyically

faced

> when one has a THR.

>

> What's the general feeling about the larger MOM.

>

> Should one wait it out until an operation is 100% needed or should

> one take the chance on the resurfacing knowing that they could end

up

> with a THR. ( I can walk for about a mile or so before it really

> hurts but then after a good night sleep the pain is gone. I do have

a

> major limp and have only had one or two nights in severe pain. No

> meds. as of yet.

>

> Any advice would be appreciated.

>

> Thanks.

> JB.

[Guest guest]

Hi

If you can't have the ASR then the large head MOM device is really your best

option as

regards restrictions (lack of).

You are very fortunate that your Dr, is well known as an excelllent resrfacing

surgeon and

he will give it his best shot.

I wish you all the very best

jane in Wales UK

with two resurfaced hips

> Hi all, I have a few quick questions with which I'm hoping to get

> some insight on.

> I'm a 45 year old male living in Eastern Ontario, Canada and run a

> farm. I was very interested in the ASR resufacing procedure so I met

> with a Dr. u in Montreal. During that visit he stated that I

> have some bone cysts and MIGHT have not be able to receive the

> resurfacing but rather would receive a MOM THR. I'm concerned about

> what that would mean when working on the farm.

>

> After one is healed what sort of restrictions is one phsyically faced

> when one has a THR.

>

> What's the general feeling about the larger MOM.

>

> Should one wait it out until an operation is 100% needed or should

> one take the chance on the resurfacing knowing that they could end up

> with a THR. ( I can walk for about a mile or so before it really

> hurts but then after a good night sleep the pain is gone. I do have a

> major limp and have only had one or two nights in severe pain. No

> meds. as of yet.

>

> Any advice would be appreciated.

>

> Thanks.

> JB.

[Guest guest]

I agree with Jane. I had a resurfacing, which had to be revised due

to avascular necrosis, and I now have a large headed MOM device. I

originally had cysts on the head of the femur, but, my surgeon

thought that the condition of the bone was good enough at the time

to proceed with resurfacing.

The result of the revision is good, no restrictions at all and a

good range of movement.

> > Hi all, I have a few quick questions with which I'm hoping to

get

> > some insight on.

> > I'm a 45 year old male living in Eastern Ontario, Canada and run

a

> > farm. I was very interested in the ASR resufacing procedure so I

met

> > with a Dr. u in Montreal. During that visit he stated

that I

> > have some bone cysts and MIGHT have not be able to receive the

> > resurfacing but rather would receive a MOM THR. I'm concerned

about

> > what that would mean when working on the farm.

> >

> > After one is healed what sort of restrictions is one phsyically

faced

> > when one has a THR.

> >

> > What's the general feeling about the larger MOM.

> >

> > Should one wait it out until an operation is 100% needed or

should

> > one take the chance on the resurfacing knowing that they could

end up

> > with a THR. ( I can walk for about a mile or so before it really

> > hurts but then after a good night sleep the pain is gone. I do

have a

> > major limp and have only had one or two nights in severe pain.

No

> > meds. as of yet.

> >

> > Any advice would be appreciated.

> >

> > Thanks.

> > JB.

[Guest guest]

Hi JB,

I am 32 with a THR on July 25. I am doing great. My doctor completed the anterior approach with a Ceramic on Ceramic material (head size is 58). The incision was about 6 in. long. While I normally work in an office, my home is a vineyard in Sonoma. We have just started to pick our grapes for the season. My first day of harvest was good, just very tiring. I am still able to drive the tractors, pick the grapes, sucker the vines, prune and walk the land. The only problem I have is lifting. The doctor does not want me to lift anything over 20 pounds. So I need to have others lift the heavy stuff for me. But other than the lifting, I do everything I used to before. I do have restictions around running, jumping and crossing midline but that is all. The pain is tally removed for me. Feels great to get back to helping around the ranch like I used to.alvord_joe

<joefish@...> wrote:

> Hi all, I have a few quick questions with which I'm hoping to get > some insight on. > I'm a 45 year old male living in Eastern Ontario, Canada and run a > farm. I was very interested in the ASR resufacing procedure so I met > with a Dr. u in Montreal. During that visit he stated that I > have some bone cysts and MIGHT have not be able to receive the > resurfacing but rather would receive a MOM THR. I'm concerned about > what that would mean when working on the farm. > > After one is healed what sort of restrictions is one phsyically faced > when one has a THR.> > What's the general feeling about the larger MOM. > > Should one wait it out until an operation is 100% needed or

should > one take the chance on the resurfacing knowing that they could end up > with a THR. ( I can walk for about a mile or so before it really > hurts but then after a good night sleep the pain is gone. I do have a > major limp and have only had one or two nights in severe pain. No > meds. as of yet.> > Any advice would be appreciated.> > Thanks.> JB.__________________________________________________

[Guest guest]

JB - here is another note to consider. I waited over 8 years for the surgery from the time my hip was damaged. I wanted to have the best technology and options available. If you can wait, I say go it. Everyone just get better and more advanced over time. I applaud you for not taking meds yet. That was when I knew it was time.

As for the limp. My limp was more pronounced over the last two - three years. As a result, retraining my brain to walk correctly is taking the most time with Physical Therapy. It is also the most painful part. I am making great progress, but I also understand my walk, straide and gait will probably take a full year to get back to "normal."

Good luck with your decision. Hope this helps. JennHjb_brook <jb_brook@...> wrote:

Hi all, I have a few quick questions with which I'm hoping to get some insight on. I'm a 45 year old male living in Eastern Ontario, Canada and run a farm. I was very interested in the ASR resufacing procedure so I met with a Dr. u in Montreal. During that visit he stated that I have some bone cysts and MIGHT have not be able to receive the resurfacing but rather would receive a MOM THR. I'm concerned about what that would mean when working on the farm. After one is healed what sort of restrictions is one phsyically faced when one has a THR.What's the general feeling about the larger MOM. Should one wait it out until an operation is 100% needed or should one take the chance on the resurfacing knowing that they could end up with a THR. ( I can walk for about a mile or so before it really hurts but then after

a good night sleep the pain is gone. I do have a major limp and have only had one or two nights in severe pain. No meds. as of yet.Any advice would be appreciated.Thanks.JB.

for Good Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

I had a resurfacing, which had to be revised <<<< Notice to Chris.... I guess there's your first sight of bad resurfacing. There are more out there just few that mention it. Thanks for mentioning ... just so he knows I do have a clue about what I've said and maybe won't take such offense to hearing my view as I've respected hearing his.

The result of the revision is good, no restrictions at all and a good range of movement. >>> Great news... and happy to hear that your doing well from the sounds of it. Hope your bone health continues to hold out and no more revisions / anything! to worry for in the future. Walk well~

[Guest guest]

I am 32 with a THR on July 25. I am doing great.... The only problem I have is lifting Feels great to get back to helping around the ranch like I used to. >>> Great news

ginjin and happy to hear your recovery has went so well. I hope you continue to heal and do only better day by day. As to the lifting issue... maybe try getting one of those light weight utility wagons that's what I use to garden at times and it does help avoid the lifting. Certainly might help you out.... just a thought.

[Guest guest]

why do you need to avoid lifting?

curious jane in Wales UK

-- In Joint Replacement , SassyLouYou@a... wrote:

> I am 32 with a THR on July 25. I am doing great.... The only problem I have

> is lifting Feels great to get back to helping around the ranch like I used to.

> >>> Great news

> ginjin and happy to hear your recovery has went so well. I hope you continue

> to heal and do only better day by day. As to the lifting issue... maybe

> try getting one of those light weight utility wagons that's what I use to

> garden at times and it does help avoid the lifting. Certainly might help you

> out.... just a thought.

[Guest guest]

Lifting puts added weight on a healing THR my dr said nothing more than

20lbs.

Jane Le Kanides

http://www.my.tupperware.com/maryjanelk Visit my online Tupperware store

[Guest guest]

Thank you Jane

I had never realised that thr had weight restrictions. I take it once it has

healed (six weeks or

so) then you can lift what you like again?

jane - in Wales

2 x BHR's

> Lifting puts added weight on a healing THR my dr said nothing more than

> 20lbs.

>

> Jane Le Kanides

> http://www.my.tupperware.com/maryjanelk Visit my online Tupperware store

[Guest guest]

I would really like to hear from either the moderator or maralyn about this.

I didn't know about the restrictions on lifting until I had the revision.

Being the mad independent person I am I have even swapped the desks between

the two offices at work by myself one weekend.

I actually wonder if that had something to do with my hip loosening.

Thanks if you can respond

Aussie Margaret

Re: Newbie

> why do you need to avoid lifting?

>

> curious jane in Wales UK

>

>

>

>

> -- In Joint Replacement , SassyLouYou@a... wrote:

>> I am 32 with a THR on July 25. I am doing great.... The only problem I

>> have

>> is lifting Feels great to get back to helping around the ranch like I

>> used to.

>> >>> Great news

>> ginjin and happy to hear your recovery has went so well. I hope you

>> continue

>> to heal and do only better day by day. As to the lifting issue...

>> maybe

>> try getting one of those light weight utility wagons that's what I use to

>> garden at times and it does help avoid the lifting. Certainly might help

>> you

>> out.... just a thought.

>

>

>

>

>

>

[Guest guest]

I do not know if everyone would have a weight restriction. I had a

ceramic with out any cementing...do not know if that is why no lifting.

I do know the other day, after shopping, when I tried walking up steps

with my groceries I felt lot of pain. (without the groceries I was

better).

Today I am 8 weeks Post op!

Jane

Jane Le Kanides

http://www.my.tupperware.com/maryjanelk Visit my online Tupperware store

[Guest guest]

I was a little surprised to hear about the restrictions as well

regarding lifting. When I had the initial meeting with my OS, I

expected the standard no running, jumping and all those sorts of

things, but my doctor also places a no lifting restriction as well.

The lifting restriction is no lifting of anything 20lbs or more, and

it is a life long restriction. I used to be pretty stubborn about

doing things myself, but I've resigned myself to the notion that I

need to do what I have to in order to preserve the new hip, even if

it means not lifting anything heavy and putting uneeded stress on

the new joint.

Aimee

> > Lifting puts added weight on a healing THR my dr said nothing

more than

> > 20lbs.

> >

> > Jane Le Kanides

> > http://www.my.tupperware.com/maryjanelk Visit my online

Tupperware store

[Guest guest]

After Many surgeries,more recently THR ALL OS have said NO lifting over 15 -20 #'s for at least one year.

Most of us feel OK very soon after surgery ,however,

When I did not follow this instruction I paid....There are reasons for this. .Please heed to prevent future (sometimes serious) problems/complications/pain ... some of which do not show up until much later...

for Good Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

Not all hospitals are the same, but here is my story.

Never had any problems with my ears. In fact, my hearing was exceptional. Started getting stuffy ear feeling, after six months of going to my primary, I decided to go to ENT. ENT had a C-scan done and informed me I had c-toma. The day of surgery I was scared to death (by the way I was 48). Sugery lasted 7 hours because ENT couldn't identify any ear parts due to the tumor being so large. He had to call in an Otologist (Dr. Hoyt), luckily he was and is one the 10 top Orotoligist's in the country. Dr. Hoyt finished the surgery and I spent a miserable night in the hospital with this stupid turbin like wrap on my head. The ENT came in the next morning and removed the wrap, told me that during the surgery they cleaned it all (the c-toma) out and removed all the spongy stuff in my mastoid to make sure the tumor was all gone and we would see about reconstructive surgery in a year or so. I went back to work about a week later. (I am an office

manager). After several visits to the ENT and a year later, the ENT refered me to Dr. Hoyt for "a second look."

On the first visit, Dr. Hoyt said everything looked fine but wanted to wait and see before doing anything surgical. We decided to take the summer and made an appointment for in the fall. Upon return to Dr. Hoyt in September, he found that the upper wall of my ear canal had fallen (he showed me the hole on a TV screen, it was rather cool) due to the dreaded c-toma's return.

On October 14, 2003 18 months after my first surgery, I went into surgery for a modified wall down. Dr. Hoyt removed most of the ear canal's upper wall and replaced the ear drum and put a titanium prostesis in to replace the hearing bones that were destroyed the first time around.

That was two years ago. My hearing is somewhat diminished in the bad (right) ear. I have to make sure that I don't get too much water in the ear and when I get tired of hearing someone ramble on like I am doing now, I just turn my right ear toward them and all is well.

Hope this helps. C-toma can be a royal pain to get rid of but living with the aftermath has been nothing more than an inconvenience for me.

Bottom line is, you'll get through it like so many of have and live to tell about it. Also, your ear will look really weird for awhile because it will probably stick out (they will probably go after the big C from behind your ear) but it will eventually go back where it belongs. In fact, my right ear was always a little lower than my left causing my glasses to always be a little crooked. When they nailed my ear back on they raised it up so it is even with my left.

Dave

goofey30 <goofey30@...> wrote:

new to the group. found out i had ctoma. Surgery this thursday. It ison the masiod bone. I have been fighting ear infection sincechristmas. 39 years old never had a bit of trouble before this. Whatin general can i expect before, during and after surgery. thanks

for Good Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

DEAR SALLY

I am so sorry you have had such a hard time. I am 73 and have both knees replaced. I will walk with you if you need me. Catch me at email address.

hugs from here

Marge

Hi all. my name is Sally and i am soon to be 65 years old i had a TKR on Feb 16 of this year. since then i had two manipulations without success. next Monday i am going to have a total knee revision.

[Guest guest]

Hi Sally,

I read your post and immediately had tears in my eyes. I feel your pain. I had my TKR on 10/21/04 and only started feeling good in September of 2005. I too was depressed for a very long time - always thinking there was something wrong with my surgery. My ROM today is 95 and that's the best it will get.

Sounds like you have had a hard time. You will be in my thoughts and i hope this surgery will make it better for you.

You can contact me at my e-mail address at any time for additional support.

Joy

-- newbie

Hi all. my name is Sally and i am soon to be 65 years old i had a total knee replacement on Feb 16 of this year. since then i had two manipulations without success. next Monday i am going to have a total knee revision. i have terrible scarring (keloids). i only have about 60 degrees of rom and a lot of pain. i just recently can stay on the computer. sometimes i get so depressed. this weekend i will put myself on special notice on my groups in . i'm sure it will be quite a while before i can get back on. i'll get off my soapbox now.Sally

[Guest guest]

Hi Sally,

I feel really bad for you! My heart goes out to you! This whole

process is hard enough, without having to deal with the complications

you've dealt with. I hope your knee revision is a success! I will

keep you in my thoughts!

>

> Hi all. my name is Sally and i am soon to be 65 years old i had a

total

> knee replacement on Feb 16 of this year. since then i had two

> manipulations without success. next Monday i am going to have a

total

> knee revision. i have terrible scarring (keloids). i only have about

60

> degrees of rom and a lot of pain. i just recently can stay on the

> computer. sometimes i get so depressed. this weekend i will put

myself

> on special notice on my groups in . i'm sure it will be quite a

> while before i can get back on. i'll get off my soapbox now.

> Sally

>

[Guest guest]

sally, i'm sorry to hear you are not doing well and i hope that this surgery goes better than the last. depression is easy to fall into and you may need some help to get past it. i see a specialist and take my "happy" meds every day. i am younger than you and my hip surgery did not give me the desired results. now i have several other joints also failing so feeling good about things gets to be a battle. please talk to your dr. about this. there is a lot of help out there but you need to ask for it

[Guest guest]

Dear Sally & Gayle-

Good Luck! Sally I hope the revision removes the scar tissue and you

get better ROM.

and Gayle....someday I will be in your shoes...hope everything goes OK-

I agree. Vicodin is not a way of life it is good for temporay assistance

....but living with constant pain- we need to do whatever we can to change

that- and give ourselves the chance to take that " walk in the park "

MJ

Jane Le Kanides

http://www.my.tupperware.com/maryjanelk Visit my online Tupperware store

[Guest guest]

thanks to all who wrote concers. Gayle, you will be in my prayers. please pray for me also as i have a low tolerance for pain and am allerfic to morphine, codien, and others.

[Guest guest]

They were able to remove the cholesteatoma and do cartilage grafts, (does anyone know about the cartilage grafts, I am still confused about what this means)

Hi

Cartilage is repair material. Ctomas produce enzymes (especially when infected) that destroy the bone and tissue in and around the ear. It may be that there are holes in the membrane skin of the middle ear it may be that there is erosion through the bony partitions that cover the facial nerve or the inner ear organs. They use fascia or cartilage to repair these. Cartilage may also be used to strengthen the surrounding part of the eardrum. Grafts are a fairly routine part of ctoma surgery.

Phil

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[Guest guest]

I was wondering where they get the cartilage from. I forgot to ask my doctor during my last visit. Are the grafts to replace the damaged ear bone? The doctor spoke with my father after my surgery and god love him he doesn't remember a word that was said to him, lol.

Hi

As far as I know the cartilage is taken just behind the ear where the mastoidectomy starts. There is plenty of it there and they would only need very tiny amounts. The middle ear is a very small space (about the size of the top of you thumb - I know it feels a lot bigger) so there isn't much to graft. It would generally be used to cover up the holes in the bone and perhaps also the section between the mastoid and the middle ear. The only problem with grafts is that the larger the graft the more chance that it won't hold. When I went through the first surgery they told me that the bottom of the middle ear was missing, leaving a hole there. They grafted it but the graft didn't last very long.

Phil

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[Guest guest]

,

I had a similar experience, except that my doctors kept saying it was

an ear infection and kept putting me on different antibiotics. I

have a deficiency in my immune system since I don't have a spleen, so

the docotrs (and I) thought that I just wasn't able to fight off the

ear infections. Finally, after I kept going back again and again,

they referred me to an ENT who found it, but subsequently refused to

refer me to an otologist since he wanted to do the surgery himself.

How is your hearing now? Do you hear better or worse than before the

surgery, and have they said they are going to do two surgeries or is

the one all that they think was needed?

Thanks,

Gerry

>

> Hi everyone,

>

> I am 33 and just had my surgery on the 31st of January. I had been

> experiencing hearing loss for some time, but its seemed that my

doctor at

> the time was not as concerned as I was. When I was able to switch

doctors I

> was finally refered to an ENT who couldn't find anything wrong and

(thank

> goodness) refered me out to an Otologist who discovered my

cholesteatoma.

> Unfortunately I did lose my malleus and incus, but I am very happy

that it

> wasn't worse. I am glad that I found this group, I only wish I had

found it

> sooner when I had all of the questions.

>

> Hugs,

>

> --

> come play in feyville

> www.geocities.com/feyfolkcreations

>

[Guest guest]

Gerry,

I am not sure how well I can hear yet, I still have packing in my ear which will come out Wednesday. I did put the phone to my ear today by mistake and found that I did hear a very faint noise from the dial tone. I am not sure yet if I will need another operation. They were able to remove the cholesteatoma and do cartilage grafts, (does anyone know about the cartilage grafts, I am still confused about what this means) but I still need to speak with my doctor and see if that fixed it all. Everyone told me what a great surgeon he is but I found that when he explains things I think I understand until I try to explain it to someone else. Too many medical words for me at one time, lol. I definitely have to clarify a few things this week.

Hugs,

On 2/13/06, Gerry <gerrydel@...> wrote:

,I had a similar experience, except that my doctors kept saying it was an ear infection and kept putting me on different antibiotics. I have a deficiency in my immune system since I don't have a spleen, so the docotrs (and I) thought that I just wasn't able to fight off the ear infections. Finally, after I kept going back again and again,

they referred me to an ENT who found it, but subsequently refused to refer me to an otologist since he wanted to do the surgery himself. How is your hearing now? Do you hear better or worse than before the

surgery, and have they said they are going to do two surgeries or is the one all that they think was needed?Thanks,Gerry>> Hi everyone,> > I am 33 and just had my surgery on the 31st of January. I had been> experiencing hearing loss for some time, but its seemed that my doctor at> the time was not as concerned as I was. When I was able to switch doctors I> was finally refered to an ENT who couldn't find anything wrong and (thank> goodness) refered me out to an Otologist who discovered my cholesteatoma.> Unfortunately I did lose my malleus and incus, but I am very happy that it> wasn't worse. I am glad that I found this group, I only wish I had found it> sooner when I had all of the questions.

> > Hugs, > > --> come play in feyville> www.geocities.com/feyfolkcreations

>