Re: (unknown)

[Guest guest]

Lynn,

Welcome to the group. This is a great place to ask questions. Everyone is

very helpful. There are even some here who have been dealing with the disease

over 30 years, and have alot of experiences to draw from. I hope things get

better soon.

Lynn Hedderman wrote:

Hi there to you all,

My name is Lynn. I'm from Ireland. I'm married with 3 kids. My husband is Colin

and he has just been diagnosed with Stills Disease. He only today has been

released from hospital. We are still trying to get our heads around it and try

to understand the disease. Hope to talk to you all at some stage I'm just

popping in quikly to introduce myself to you all.

Lynn

__________________________________________________________

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know-it-all with Yahoo! Mobile. Try it now.

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[Guest guest]

Lynn,

Welcome to the group. This is a great place to ask questions. Everyone is

very helpful. There are even some here who have been dealing with the disease

over 30 years, and have alot of experiences to draw from. I hope things get

better soon.

Lynn Hedderman wrote:

Hi there to you all,

My name is Lynn. I'm from Ireland. I'm married with 3 kids. My husband is Colin

and he has just been diagnosed with Stills Disease. He only today has been

released from hospital. We are still trying to get our heads around it and try

to understand the disease. Hope to talk to you all at some stage I'm just

popping in quikly to introduce myself to you all.

Lynn

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Good day Lynn,

I know we've already spoken, so to speak but I just wanted to say glad you made

it to the list and hoping your husband gets pleanty of rest and you as well.

Feel free to linger around until you have time or need and chime in whenever

it's good for you. Our regards to you and yours.

----- Original Message -----

From: Lynn Hedderman

My husband is Colin and he has just been diagnosed with Stills Disease. He

only today has been released from hospital.

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[Guest guest]

Hey Lynn I live in NJ am of Irish decent. I am so sorry to hear about your

husband. Lets us know how it goes, hopefully he will get remissions..many

people do. I am one of them. I first was diagnosed in1972 and have had three

major flares lasting 9 months or so. Now I am a hodge podge of rheumatological

complaints..

Many many nice people here. Please feel free to vent and tell us how it is

all going.

Where in Ireland do you live? I have a 12 yr old and a 8 year old and want

to go somewhere in the next year or two.

Hugs

Liz

**************Wondering what's for Dinner Tonight? Get new twists on family

favorites at AOL Food.

(http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

[Guest guest]

Hi Sue,

My daughter Ana has been " labeled " as a stubborn child, and I know she is.

Interesting what you say about giving 5 minutes; the same happens with Ana, the

more you insist the more she becomes resistant to do what is being asked of her.

How can I get a copy of the " Stubborn Is As Stubborn Does " , is it a book?

Bonnie (Mom to Ana 15 w/ds)

----- Mensaje original ----

De: Sue <mom2alyssa3@...>

Para:

Enviado: sábado, 3 de mayo, 2008 19:23:08

Asunto: (unknown)

And then, in 10 minutes she might be absolutely fine.

Boy is this my Alyssa. At this time we call her Sybil. One minute she's angry,

shutting down, refusing to respond, etc and I usually send her to her room to

calm herself down and reboot herself. Usually (not always but mostly) 5-10

minutes later she comes down and does exactly what was asked as if nothing

happened 5 minutes ago. I've tried to tell her teachers that the more they push

her to do something, the more resistant she becomes. If they would just let her

take 5 minutes to herself, most times she'd be fine. They insist she is being

defiant and stubborn. So I copied the " Stubborn Is As Stubborn Does " and gave it

out at her last IEP meeting. Not that it'll do any good, but her Psychologist

hadn't seen it and was impressed with it. Sue & Alyssa -MI

____________ _________ _________ _________ _________ _________ _

Be a better friend, newshound, and

know-it-all with Mobile. Try it now. http://mobile. /

;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

[Guest guest]

Welcome Conina!

What a pretty name.

Looking forward to hearing from you.

Francine

In a message dated 5/13/2008 1:45:31 A.M. Eastern Daylight Time, coninajohnson@... writes:

Thanks for accepting me into your group.

Thank you

Conina

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

epiousian = the expression of agapequite a bit more than enoughWondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.

[Guest guest]

My RA is under control for the time being. My doc did explain that the kind

I have can hit hard and fast, I don't really understand it all, but right now

I am staying steady at no more joint loss or anything. My last appointment

last week he said all staying the same, no increases in anything which is

great. I take Humira, have since Dec. I do know that I am able to do more since

taking it, my doc is real proud that I am now able to squeeze his little meter

thing he uses, which before I could not, so my strength is returning. I take

it every 2 weeks and have had no problems on the it at all. My doc is even

talking that if I keep this up he is taking me off the MTX and Humira will be

all that I am on. I have been having more good days verses bad which is good

cause usually during the hot months down here in the south I can barely move.

I have even started arobics classes since the humira is helping that much.

In a message dated 5/17/2008 9:03:21 P.M. Central Daylight Time,

melyndagamez@... writes:

I was wondering if any of you have an aggressive type

of RA. I just went for a second opinion and the test

results that show my body producing the antibody is

extremely high (150). Anyway, my dr explained the

test and thankfully the other two tests show that

there is not very much activity at the time ( I am

four months pregnant). He wants to watch me closely

and then get started right away on Humeria after the

baby is born. I have never taken anything, and of

course I want to prevent any joint and bone damage I

can. I guess I am wondering if any of you can share

your humeria stories with me, and anyone who may have

an aggressive form of RA.

Thank you so much,

**************Wondering what's for Dinner Tonight? Get new twists on family

favorites at AOL Food.

(http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

[Guest guest]

It's really hard to determine if an individual has an aggressive form of RA in

my honest opinion. For the longest time, I was ok just on Plaquenil and

Sulfasalazine and I've spent the past two weeks in bed all day, not even being

able to put weight upon my feet. It started in the knees and seems to have

spread rapidly. My case is seronegative, yet rheumatologists say that that does

not mean that it won't convert to positive, and that it can be just as

aggressive and progressive as the positive RA. I'm going to have to talk to her

about a walking device, as a cane is no longer cutting it, as well as some

additional xrays. My back has been really bad, my feet which I never had issues

with before besides ankles, now have issues at the metatarsal joints/bone and

near the toes and fingers. One individual may have one flare of RA and then go

into remission and it may never come back, some may start out with mild RA and

go to severe. From the discussion I had with my

rheumatologists they used to allow diagnosis to be made from mild to moderate

to severe but according to an article I read on the college of rheumatology,

they eliminated those diagnosis since its so uncertain. There are many here

that do take Humira and I'm sure will be able to help you with advice and

feedback.

Janet Cumbo <jmcumbo@...> wrote: Hello,

I was wondering if any of you have an aggressive type

of RA. I just went for a second opinion and the test

results that show my body producing the antibody is

extremely high (150). Anyway, my dr explained the

test and thankfully the other two tests show that

there is not very much activity at the time ( I am

four months pregnant). He wants to watch me closely

and then get started right away on Humeria after the

baby is born. I have never taken anything, and of

course I want to prevent any joint and bone damage I

can. I guess I am wondering if any of you can share

your humeria stories with me, and anyone who may have

an aggressive form of RA.

Thank you so much,

Janet

[Guest guest]

my ra is agressive and severe.  humira has really helped me.  i have been on it

for over 2 years.  at one point i was taking one injection every week.  i was

starting to have to have surgeries on joints that had eroded and spinal back

fusion and after starting humira it has slowed down.  nothing else had even

touched it.  if you would like to talk on a more personal levele my email is

ritawages@....  thanks rita

[ ] (unknown)

Hello,

I was wondering if any of you have an aggressive type

of RA. I just went for a second opinion and the test

results that show my body producing the antibody is

extremely high (150). Anyway, my dr explained the

test and thankfully the other two tests show that

there is not very much activity at the time ( I am

four months pregnant). He wants to watch me closely

and then get started right away on Humeria after the

baby is born. I have never taken anything, and of

course I want to prevent any joint and bone damage I

can. I guess I am wondering if any of you can share

your humeria stories with me, and anyone who may have

an aggressive form of RA.

Thank you so much,

Janet

[Guest guest]

hi stephanie, how weird is that i have been having bad pain in my feet as well.

i to have been in bed for two days. i see the dr on tuesday but i have been

popping the pain pills & the pain does not go away!! your right about the flare

ups every person is different. i HOPE YOU FEEL BETTER SOON!!! hang in there &

dont give up! my prayers are with you,stephanie.god bless,melyndagamez 5/17/08

8:05p.m.central

Re: [ ] (unknown)

It's really hard to determine if an individual has an aggressive form of RA in

my honest opinion.  For the longest time, I was ok just on Plaquenil and

Sulfasalazine and I've spent the past two weeks in bed all day, not even being

able to put weight upon my feet.  It started in the knees and seems to have

spread rapidly.  My case is seronegative, yet rheumatologists say that that does

not mean that it won't convert to positive, and that it can be just as

aggressive and progressive as the positive RA.  I'm going to have to talk to her

about a walking device, as a cane is no longer cutting it, as well as some

additional xrays.  My back has been really bad, my feet which I never had issues

with before besides ankles, now have issues at the metatarsal joints/bone and

near the toes and fingers.  One individual may have one flare of RA and then go

into remission and it may never come back, some may start out with mild RA and

go to severe.  From the

discussion I had with my

rheumatologists they used to allow diagnosis to be made from mild to moderate to

severe but according to an article I read on the college of rheumatology, they

eliminated those diagnosis since its so uncertain.  There are many here that do

take Humira and I'm sure will be able to help you with advice and feedback.

Janet Cumbo <jmcumbo@...> wrote:                            Hello,

I was wondering if any of you have an aggressive type

of RA.  I just went for a second opinion and the test

results that show my body producing the antibody is

extremely high (150).  Anyway, my dr explained the

test and thankfully the other two tests show that

there is not very much activity at the time ( I am

four months pregnant).  He wants to watch me closely

and then get started right away on Humeria after the

baby is born.  I have never taken anything, and of

course I want to prevent any joint and bone damage I

can.  I guess I am wondering if any of you can share

your humeria stories with me, and anyone who may have

an aggressive form of RA.

Thank you so much,

Janet

   

                                     

     

[Guest guest]

Hi Janet,

I agree with all of them, I started very sever too and still

nothing controls my flares, from Nov till May every year my life is

horrible but the rest of the year I can control my pain.

I'm on sulfasalazine & prednisone and feeling good now, you can't

take advise from any of us as its a case by case. Arava was a

disaster for me, however MTX was very good.

Until now I don't believe that medication are doing any good for me,

when I have a flare its very bad and nothing matter.

I removed meat from my food and its helping a bit.

>

>

>

>

> My RA is under control for the time being. My doc did explain that

the kind

> I have can hit hard and fast, I don't really understand it all,

but right now

> I am staying steady at no more joint loss or anything. My last

appointment

> last week he said all staying the same, no increases in anything

which is

> great. I take Humira, have since Dec. I do know that I am able to

do more since

> taking it, my doc is real proud that I am now able to squeeze his

little meter

> thing he uses, which before I could not, so my strength is

returning. I take

> it every 2 weeks and have had no problems on the it at all. My doc

is even

> talking that if I keep this up he is taking me off the MTX and

Humira will be

> all that I am on. I have been having more good days verses bad

which is good

> cause usually during the hot months down here in the south I can

barely move.

> I have even started arobics classes since the humira is helping

that much.

>

>

>

>

> In a message dated 5/17/2008 9:03:21 P.M. Central Daylight Time,

> melyndagamez@... writes:

>

> I was wondering if any of you have an aggressive type

> of RA. I just went for a second opinion and the test

> results that show my body producing the antibody is

> extremely high (150). Anyway, my dr explained the

> test and thankfully the other two tests show that

> there is not very much activity at the time ( I am

> four months pregnant). He wants to watch me closely

> and then get started right away on Humeria after the

> baby is born. I have never taken anything, and of

> course I want to prevent any joint and bone damage I

> can. I guess I am wondering if any of you can share

> your humeria stories with me, and anyone who may have

> an aggressive form of RA.

>

> Thank you so much,

>

>

>

>

>

>

> **************Wondering what's for Dinner Tonight? Get new twists

on family

> favorites at AOL Food.

> (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

>

>

>

[Guest guest]

I read your post and was wondering what type of problem you had with

Arava? I am trying to wean off Arava right now. My liver levels have

been sky high.

-- In , " sicsica2000 " <sicsica2000@...> wrote:

>

>

> Hi Janet,

>

> I agree with all of them, I started very sever too and still

> nothing controls my flares, from Nov till May every year my life is

> horrible but the rest of the year I can control my pain.

>

> I'm on sulfasalazine & prednisone and feeling good now, you can't

> take advise from any of us as its a case by case. Arava was a

> disaster for me, however MTX was very good.

>

> Until now I don't believe that medication are doing any good for me,

> when I have a flare its very bad and nothing matter.

>

> I removed meat from my food and its helping a bit.

>

>

> >

> >

> >

> >

> > My RA is under control for the time being. My doc did explain that

> the kind

> > I have can hit hard and fast, I don't really understand it all,

> but right now

> > I am staying steady at no more joint loss or anything. My last

> appointment

> > last week he said all staying the same, no increases in anything

> which is

> > great. I take Humira, have since Dec. I do know that I am able to

> do more since

> > taking it, my doc is real proud that I am now able to squeeze his

> little meter

> > thing he uses, which before I could not, so my strength is

> returning. I take

> > it every 2 weeks and have had no problems on the it at all. My doc

> is even

> > talking that if I keep this up he is taking me off the MTX and

> Humira will be

> > all that I am on. I have been having more good days verses bad

> which is good

> > cause usually during the hot months down here in the south I can

> barely move.

> > I have even started arobics classes since the humira is helping

> that much.

> >

> >

> >

> >

> > In a message dated 5/17/2008 9:03:21 P.M. Central Daylight Time,

> > melyndagamez@ writes:

> >

> > I was wondering if any of you have an aggressive type

> > of RA. I just went for a second opinion and the test

> > results that show my body producing the antibody is

> > extremely high (150). Anyway, my dr explained the

> > test and thankfully the other two tests show that

> > there is not very much activity at the time ( I am

> > four months pregnant). He wants to watch me closely

> > and then get started right away on Humeria after the

> > baby is born. I have never taken anything, and of

> > course I want to prevent any joint and bone damage I

> > can. I guess I am wondering if any of you can share

> > your humeria stories with me, and anyone who may have

> > an aggressive form of RA.

> >

> > Thank you so much,

> >

> >

> >

> >

> >

> >

> > **************Wondering what's for Dinner Tonight? Get new twists

> on family

> > favorites at AOL Food.

> > (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

> >

> >

> >

[Guest guest]

I will not be exaggerating if I said everything from diarrhea, rash till

not being able to move out of bed, when my liver levels were very high I

had to stop but I also had to wait 3 months to start MTX

> > >

> > >

> > >

> > >

> > > My RA is under control for the time being. My doc did explain that

> > the kind

> > > I have can hit hard and fast, I don't really understand it all,

> > but right now

> > > I am staying steady at no more joint loss or anything. My last

> > appointment

> > > last week he said all staying the same, no increases in anything

> > which is

> > > great. I take Humira, have since Dec. I do know that I am able to

> > do more since

> > > taking it, my doc is real proud that I am now able to squeeze his

> > little meter

> > > thing he uses, which before I could not, so my strength is

> > returning. I take

> > > it every 2 weeks and have had no problems on the it at all. My doc

> > is even

> > > talking that if I keep this up he is taking me off the MTX and

> > Humira will be

> > > all that I am on. I have been having more good days verses bad

> > which is good

> > > cause usually during the hot months down here in the south I can

> > barely move.

> > > I have even started arobics classes since the humira is helping

> > that much.

> > >

> > >

> > >

> > >

> > > In a message dated 5/17/2008 9:03:21 P.M. Central Daylight Time,

> > > melyndagamez@ writes:

> > >

> > > I was wondering if any of you have an aggressive type

> > > of RA. I just went for a second opinion and the test

> > > results that show my body producing the antibody is

> > > extremely high (150). Anyway, my dr explained the

> > > test and thankfully the other two tests show that

> > > there is not very much activity at the time ( I am

> > > four months pregnant). He wants to watch me closely

> > > and then get started right away on Humeria after the

> > > baby is born. I have never taken anything, and of

> > > course I want to prevent any joint and bone damage I

> > > can. I guess I am wondering if any of you can share

> > > your humeria stories with me, and anyone who may have

> > > an aggressive form of RA.

> > >

> > > Thank you so much,

> > >

> > >

> > >

> > >

> > >

> > >

> > > **************Wondering what's for Dinner Tonight? Get new twists

> > on family

> > > favorites at AOL Food.

> > > (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

> > >

> > >

> > >

[Guest guest]

Thanks for the info. I have been having a hard time trying to find something

that works that I am not allergic to. My liver levels were so high on the Arava

that they sent me for a liver scan. Everything looks Ok but they are taking me

off the Arava. Not sure what they will try next, sorta running out of meds to

try. My Rheumy wants me to see another Rheumy who is very knowledgable so she

put me on Arthrotec until I can see him. The Arthrotec does seem to be helping

with some of my neck pain. I also take Plaquenil, requip, and flexoril.

Hope you are having a pain free day.

[ ] Re: (unknown)

I will not be exaggerating if I said everything from diarrhea, rash till

not being able to move out of bed, when my liver levels were very high I

had to stop but I also had to wait 3 months to start MTX

> > >

> > >

> > >

> > >

> > > My RA is under control for the time being. My doc did explain that

> > the kind

> > > I have can hit hard and fast, I don't really understand it all,

> > but right now

> > > I am staying steady at no more joint loss or anything. My last

> > appointment

> > > last week he said all staying the same, no increases in anything

> > which is

> > > great. I take Humira, have since Dec. I do know that I am able to

> > do more since

> > > taking it, my doc is real proud that I am now able to squeeze his

> > little meter

> > > thing he uses, which before I could not, so my strength is

> > returning. I take

> > > it every 2 weeks and have had no problems on the it at all. My doc

> > is even

> > > talking that if I keep this up he is taking me off the MTX and

> > Humira will be

> > > all that I am on. I have been having more good days verses bad

> > which is good

> > > cause usually during the hot months down here in the south I can

> > barely move.

> > > I have even started arobics classes since the humira is helping

> > that much.

> > >

> > >

> > >

> > >

> > > In a message dated 5/17/2008 9:03:21 P.M. Central Daylight Time,

> > > melyndagamez@ writes:

> > >

> > > I was wondering if any of you have an aggressive type

> > > of RA. I just went for a second opinion and the test

> > > results that show my body producing the antibody is

> > > extremely high (150). Anyway, my dr explained the

> > > test and thankfully the other two tests show that

> > > there is not very much activity at the time ( I am

> > > four months pregnant). He wants to watch me closely

> > > and then get started right away on Humeria after the

> > > baby is born. I have never taken anything, and of

> > > course I want to prevent any joint and bone damage I

> > > can. I guess I am wondering if any of you can share

> > > your humeria stories with me, and anyone who may have

> > > an aggressive form of RA.

> > >

> > > Thank you so much,

> > >

> > >

> > >

> > >

> > >

> > >

> > > ************ **Wondering what's for Dinner Tonight? Get new twists

> > on family

> > > favorites at AOL Food.

> > > (http://food. aol.com/dinner- tonight?NCID= aolfod0003000000 0001)

> > >

> > >

> > >

[Guest guest]

Well you had a good run at it sorry to see you go we will miss you and God bless

you both and I pray you live a healthy life.

Roy <chickenbirdtree@...> wrote:

Subject: Leaving group

Phil, Brad, Dan M., Denese, Ernest N.,Jim (avocet), Nort, S.,Tom, Vicki

or . I want to tell you guys that I bid you all farwell. You have been so

helpful in so many ways that I can't tell you. There are many more but too

numerous to mention. At 84 I have finally quit sex. The reason is my wife who

has terrible pain with her arthritis in her back that it is no longer feasable

to do so. I have already quit the other group but I assume most of you also

belong to this group so this is my hey day at last. It was a lot of fun while it

lasted but it is time to give up.

I remember when we were first married we had sex two or three times a day.

That went on for about 3 years or so, but finally slowed down later on.

I wish you all well and hope that most of you can have sex as long as we did. We

both enjoyed it so much. I will leave my name on this list in case any of you

want to reply to my message. We carried it longer than most I think and were

thankfulthe Good Lord provided us with such pleasure of being close together.

There is nothing quite like it is there to show your love for another person?.

We have had 62 years together and working on 63 now. We both have our pains but

with the Lord's help we will make it day by day. When we get up in the morning

we say,

" It's good to see you. " Not good morning!

God speed to you all. I will leave my name on here for 30 days then take it

off.I still take my shots to feel well and take cialis every othe day yet to

know that things are going well. I have to take off my security pants at last

pee and sure enough it wakes me up riding high so guess I have the formula about

right. Phil you helped me to do that and Dan sure helped too.

Love all you guys and this is a wonderful forum and so helpful to each other.

I appreacied it so much God's blessings to you all and the best of luck to you

all. We can please each other different ways though when we are in the mood.

Blessings to you all,

Just see if you can keep up with us thats all!!!

Roy

Co-Moderator " Don't believe anything you hear and only half of what you see. "

Phil

[Guest guest]

Roy,

I have been a member of this group for several years and I have alway enjoyed

reading your contributions and comments. We have corresponded together a couple

of times in the past on this board and I'm sure that many others, like myself,

aspire to achieve the longevity, clarity of thought and expression and

compassion for others.

May God continue to bless you and your wife and hold your hands as each of you

continue on your journey.

In His name,

Randy

Roy <chickenbirdtree@...> wrote:

Subject: Leaving group

Phil, Brad, Dan M., Denese, Ernest N.,Jim (avocet), Nort, S.,Tom, Vicki

or . I want to tell you guys that I bid you all farwell. You have been so

helpful in so many ways that I can't tell you. There are many more but too

numerous to mention. At 84 I have finally quit sex. The reason is my wife who

has terrible pain with her arthritis in her back that it is no longer feasable

to do so. I have already quit the other group but I assume most of you also

belong to this group so this is my hey day at last. It was a lot of fun while it

lasted but it is time to give up.

I remember when we were first married we had sex two or three times a day.

That went on for about 3 years or so, but finally slowed down later on.

I wish you all well and hope that most of you can have sex as long as we did.

We both enjoyed it so much. I will leave my name on this list in case any of you

want to reply to my message. We carried it longer than most I think and were

thankfulthe Good Lord provided us with such pleasure of being close together.

There is nothing quite like it is there to show your love for another person?.

We have had 62 years together and working on 63 now. We both have our pains but

with the Lord's help we will make it day by day. When we get up in the morning

we say,

" It's good to see you. " Not good morning!

God speed to you all. I will leave my name on here for 30 days then take it

off.I still take my shots to feel well and take cialis every othe day yet to

know that things are going well. I have to take off my security pants at last

pee and sure enough it wakes me up riding high so guess I have the formula about

right. Phil you helped me to do that and Dan sure helped too.

Love all you guys and this is a wonderful forum and so helpful to each other.

I appreacied it so much God's blessings to you all and the best of luck to you

all. We can please each other different ways though when we are in the mood.

Blessings to you all,

Just see if you can keep up with us thats all!!!

Roy

[Guest guest]

Janice! How are you? Is everything ok?

From: Janice Stokes <janicestokes2003@...>Subject: (unknown) Date: Monday, May 26, 2008, 10:34 AM

THIS IS MESSAGE FOR NINA, PLEASE SEND ME A LIST FOR FILLS IN THE EAST, OR SOUTHEAST, THANKS

JANICE STOKES, Janice Stokeskay and Home Interiorconsultantwww.marykay. com/jstokes7janicestokes2003478-213-8529

[Guest guest]

Hey Randy,

I want to thank you so much for the wonderful compliments even though I

don't deserve them. I am so glad that you think I did contribute to the forum,

I certainly hope so. Yes I remember you and have tabled a place where I

go back and read your comments, they were most helpful..

& nbsp;

You are correct, life is a journey and we have come a long way together,

my wife and I and still in love, more so than ever. I too hope that you

can achieve the longevity that we have had. The Good Lord has blessed

us so much.

& nbsp;

I just finished my Autobiography and I recalled how at each

turn in the road he has guided us. At times He said no, do something

else. That is the road to success in this life, follow His lead. I do have

compassion for others and that is one of the reasons I joined this group,

to help others like me. I am glad you think I still have clarity of mind,

I think I do pretty well as a publisher accepted my manuscript which

thrilled me and they made many excellent comments about it. The

hardest part is putting every thing into its correct place of time,

difficult to do but after four years it is finally finished all but the editing

and book cover.

& nbsp;

We do hold each other's hands yet, even saying the Lord's prayer

together each night.

& nbsp;

I wish you and you wife a wonderful future too and God's blessings

to you both. Stay well and keep walking with the wind to your back.

& nbsp;

Ever Blessing,

Roy

& nbsp;

& nbsp;

--

Date: Friday, May 23, 2008, 9:49 AM

Roy,

I have been a member of this group for several years and I have alway enjoyed

reading your contributions and comments. We have corresponded together a couple

of times in the past on this board and I'm sure that many others, like myself,

aspire to achieve the longevity, clarity of thought and expression and

compassion for others.

May God continue to bless you and your wife and hold your hands as each of you

continue on your journey.

In His name,

Randy

Roy & lt;chickenbirdtree & gt; wrote: Subject: Leaving group

Phil, Brad, Dan M., Denese, Ernest N.,Jim (avocet), Nort, S.,Tom, Vicki

or . I want to tell you guys that I bid you all farwell. You have been so

helpful in so many ways that I can't tell you. There are many more but too

numerous to mention. At 84 I have finally quit sex. The reason is my wife who

has terrible pain with her arthritis in her back that it is no longer feasable

to do so. I have already quit the other group but I assume most of you also

belong to this group so this is my hey day at last. It was a lot of fun while it

lasted but it is time to give up.

I remember when we were first married we had sex two or three times a day.

That went on for about 3 years or so, but finally slowed down later on.

I wish you all well and hope that most of you can have sex as long as we did. We

both enjoyed it so much. I will leave my name on this list in case any of you

want to reply to my message. We carried it longer than most I think and were

thankfulthe Good Lord provided us with such pleasure of being close together.

There is nothing quite like it is there to show your love for another person?.

We have had 62 years together and working on 63 now. We both have our pains but

with the Lord's help we will make it day by day. When we get up in the morning

we say,

" It's good to see you. " Not good morning!

God speed to you all. I will leave my name on here for 30 days then take it

off.I still take my shots to feel well and take cialis every othe day yet to

know that things are going well. I have to take off my security pants at last

pee and sure enough it wakes me up riding high so guess I have the formula about

right. Phil you helped me to do that and Dan sure helped too.

Love all you guys and this is a wonderful forum and so helpful to each other.

I appreacied it so much God's blessings to you all and the best of luck to you

all. We can please each other different ways though when we are in the mood.

Blessings to you all,

Just see if you can keep up with us thats all!!!

Roy

[Guest guest]

Wow Chris! This is great! This is similar to my high school years!

Doug Kemp

From: [mailto: ] On

Behalf Of crmadoh

Sent: Tuesday, May 27, 2008 7:50 AM

Subject: (unknown)

Hi :

OH MY GOD!!! If i could keep my 15yr old daughter at home for 1hr, It would

be fantastic...Her name is and she has SMA type 2. She has been in a

power wheelchair since around 22 months (hot pink in color) She modeled for

Little Tykes. She has many, many " normal " friends, But her best friend is a

girl who is on a portable vent. They both go to regular High school.

was just in the High school play " Grease " she was the car grease and they

built the car around her. had a dance number in her wheelchair, it was

the best scene in the play. leaves the house for school at 710am and

comes home some evenings at 9pm. She calls me on her cell phone and usually

is at her girlfriends house playing guitar hero. She has gone to more

concerts than I ever went to in my teenage years. At one concert she was in

the mausch (spelled wrong) pit, which is where the kids are crashing into

each other and crowd surfing over other kids heads. When came outside,

her

joystick was hanging to the ground , her tilt on her wheelchair was tilted

all the way forward (looked like she was going to fall out of the chair).

looked up at me and said " mom I know it looks bad, but I had the best

time of my life. " Now How can I get mad. Took explaining to the medical

company who fixed the chair.. goes to multiple camps throughout the

summer. When the van pulls up We are practically mobbed before I bring

out. So I guess what I am trying to say is I have never put any restrictions

on as far as what she can do or what she can be. does have a

good head on her shoulders and wants to go into fashion design. I know

is very happy and she has told me she would never change a thing about her

disability, nor misses walking. I think its me sometimes feeling the sorrow

for her.

CHRIS

[Guest guest]

i forgot to mention that i live in phila., penna.

marshiris@...

Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

[Guest guest]

In a message dated 5/28/2008 6:28:05 P.M. Central Daylight Time,

bcreedon@... writes:

What is the deal with all the nbsp throughout my e-mail? & nbsp; How do you

get rid of them?

Your emails must be written in html and this list must only allow text.

You might need to figure out how to send only text to the list.

dd

**************Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002)

[Guest guest]

Thanks for this information.I will try to figure it out.Barbara

From: dgd301@... & lt;dgd301@... & gt;

Subject: Re: [ ] (unknown)

Date: Thursday, May 29, 2008, 4:16 AM

In a message dated 5/28/2008 6:28:05 P.M. Central Daylight Time,

bcreedon (DOT) com writes:

What is the deal with all the nbsp throughout my e-mail? & amp;nbsp; How do you

get rid of them?

Your emails must be written in html and this list must only allow text.

You might need to figure out how to send only text to the list.

dd

************ **Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food. aol.com/tyler- florence? video=4 & amp;? NCID=aolfod00030 000000002)

[Guest guest]

hi barbara, i know i get that & nbsp; also.WHATS UP??? melyndagamez 5/30/08

9:11p.m.central

[ ] (unknown)

What is the deal with all the nbsp throughout my e-mail? & nbsp; How do you get

rid of them?

Thanks,

Barbara

--- In

@gro ups.com, " " & amp;amp;lt;Matsumura_ Clan@

.... & amp;amp;gt;

wrote:

& amp;amp;gt;

& amp;amp;gt; Sharon,

& amp;amp;gt;

& amp;amp;gt; Why do you suspect polymyalgia rheumatica and your physicians RA?

& amp;amp;gt;

& amp;amp;gt;

& amp;amp;gt;

& amp;amp;gt; Not an MD

============ =========

Probably just wishing thinking on my part & amp;amp;lt;g & amp;amp; gt;. HOWEVER,

here is why

I am leaning in that direction.

The way it came on, literally overnight. Pain jumps around. I never

know what new pain I will wake up to (muscles and joints). The pain

from the day before is totally gone. Seems to be focused on my

shoulder/upper arm area, although wrist or finger and knee are common

some days too. This morning my ankle and back are stiff and sore,

which has been been a problem before.

My RA is 84. SEDS is normal. AND... it came on the tail end of a

upper respitory viral type infection.

Through the day....once I am up and moving, the pain lessens

(although it is never totally gone from whatever area it decides to

hit that day). In the evening and especially through the night....

the pain is debilitating.

Ibruprophen doesn't touch the pain. One doc put me on a 3 week

regime of anti-inflamatories. .. which don't seem to be helping. ER

gave me a 30 day supply of Codine... which does take the edge off the

pain...... but I only take it when I absolutely have to. I don't

want to run out before I can get into see a Rheumatologist.

The PCP's see that RA reading and they can't seem to focus on

anything else.

Monday morning I will be on the phone making a couple of appointments

with Rheumatologists. Figure I will check out a couple and see who I

feel most comfortable with..

SHARON

============

[Guest guest]

HI BARBARA LET ME KNOW IF YOUFIGURE IT OUT???? TTFN GOD BLESS,MELYNDAAMEZ

5/30/08 10:50P.M.CENTRAL

Re: [ ] (unknown)

Date: Thursday, May 29, 2008, 4:16 AM

In a message dated 5/28/2008 6:28:05 P.M. Central Daylight Time,

bcreedon (DOT) com writes:

What is the deal with all the nbsp throughout my e-mail? & amp;nbsp; How do you

get rid of them?

Your emails must be written in html and this list must only allow text.

You might need to figure out how to send only text to the list.

dd

************ **Get trade secrets for amazing burgers. Watch " Cooking with

Tyler Florence " on AOL Food.

(http://food. aol.com/tyler- florence? video=4 & amp;? NCID=aolfod00030 000000002)

[Guest guest]

On another list that I'm on, someone said that it might be that you are

sending the messages in HTML, or rich text, and the list allows only

plain text. In my email program, I can change the settings under

" Format. "

Sue

On Friday, May 30, 2008, at 10:12 PM, Melynda Gamez wrote:

> hi barbara, i know i get that & nbsp; also.WHATS UP??? melyndagamez

> 5/30/08 9:11p.m.central

>

>

> ----- Original Message ----

> From: Barbara Creedon <bcreedon@...>

>

> What is the deal with all the nbsp throughout my e-mail? & nbsp; How do

> you get rid of them?