Re: (unknown)

[Guest guest]

Ok it's official we don't now who the hell it is but I wish they's pop up again and get into the conversation a little more so we can get to know em

[Guest guest]

It's better to blame it on the brain fog we all have with Hep C but I call mine CRS..So do my kids.

[Guest guest]

Terry do you know who gigglebutt2002 is? Diane and I don't

[Guest guest]

Hey you may have gotten beads but if they don't have boobs that light up then ya ain't got good ole cajun beads! LOL

[Guest guest]

Terry you're more than welcome to join in too....

[ ] (unknown)

Ladies if you don't mind a guy helping out, I would

love to kick some S.O.B can. For pitting you all

against the kids. I kicked Susy's Ex's can several

years ago & I can do it again. I'm so tried of hearing

guys complain about paying child support for their own

kids. I would love to kick another S.O.B's but.

Terry

__________________________________________________

[Guest guest]

Hello Rocco..How are you and welcome to the group..I am Jan and also have Hep..Have had it for almost 20 yrs and just found out 2 yrs ago..Where are you from?? Please let us know more about you and again welcome.

[Guest guest]

Jan Jan from Cajun Land here Suzy!!! Don't worry Terry as long as I've been in here I still can't remember...There goes that damn CRS again..LOL

[Guest guest]

Thanks y'all for the websites with slang, etc. words.

=====

Go USA!! All the way!!

__________________________________________________

[Guest guest]

Sorry I stopped buying bridges when I was in my

early teens.

Terry

--- Jannewilms42@... wrote:

> Hey Terry we also got a bridge to sell ya!!!!

>

__________________________________________________

[Guest guest]

I guess I missed that one too Jan.... Whi is it?????

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

[Guest guest]

Jan I think we would have remembered the name!!!!! We can't both have

CRS at the same time....

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

[Guest guest]

What time do you want me to swing by in the truck??????? LOL

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

[Guest guest]

Hi Georgina..We don't know about the casting yet..they did set a date for

April..hopefully if he does decide to do it..he will start it before camp

starts..we got the application in the mail and Tabitha is already looking

forward to going. The only thing bad i see as far as the casting goes..is

Tabitha will have to use the wheelchair again but to get to the good..you

have to have some bad i guess. Just wish they could of gotten her an

appointment sooner.

Hope all is well with your family!

Good luck

karen(tab16..poly)

From: " Georgina " <gmckin@...>

Reply-

< >

Subject: Re: (unknown)

Date: Wed, 20 Feb 2002 12:12:15 -1000

Hi ,

We still don't have the availability of the larger dosage pills of MTX

around here, though it was months ago that I first read about and posted the

news approving their manufacture. Hopefully they will be available in other

locations soon. That'll make it lots easier for the children. How's

Tabitha's right knee? What did the orthopedic surgeon think the best option

was? Are they going to do the casting?

Take care,

Georgina

Hello all, i hope everything is good. Tabitha had her appointment

yesterday

with her rheumy and everything checks out good. But she has been having

trouble with her neck bothering her..we are afraid arthur is camping

there

again now..which she hasn't had that problem since she was about 5 or 6.

So

he increased her methatrexate to 6 tablets from 4 which it was 5 before

we

had started remicade,i don't think that he is afraid that the remicade

isn't

working..i think he just wants to cover all posibilities. So she is going

from 12 mgs a week to 15 mgs. which is the highest she has been on. She

has

never had any stomach problems which is a plus even on 5..hope jumping to

15

mg...it won't start. I had to laugh because he told her after she

finishes

the pills she has..that they now have it where she can take 1 pill of the

methatrexate that will enough mgs. that the 6 pills does; or she can do

it

by injections..should of seen tabs face..lol..i knew the pills would win

out

by a longshot. He also gave me a number for an eye specialist aroung

where i

live who i can call to get her eyes checked..she hasn't had any

trouble..he

said that it seems that uevitis shows up more in kids under 7 than when

they

are passed that age but she still has to get it checked once a year.

Around the 14th she is to get her dose of remicade again...she enjoys the

break at the hospital..gets her away from the house plus the extra

attention

she gets there..she loves.

The doctor, Tab, and I dicussed her right knee(the one replaced that

locked

in a bent position)well the brace hasn't helped in straightening it..so

he

is making her an appointment at hershey with the new orthopedic surgeon

to

see if popping it straight while she is knocked out will be the best

solution or a serial cast(a cast every 2 weeks..to where each time her

knee

and tendons will be straightened slowly) her rheumy thinks that since

Tabs

knee has been bent like that for a long period of time..her tendons and

plus

her(i think this is the word)heel cord are wound tight and unlocking it

while she is out won't help much with her range of motion. Sorry..i hope

i

didn't confuse anyone on that..lol...still asleep.

Anyways all is well as can be..so i am happy about that!

Good luck

karen(tab16..poly)

p.s...gave a mother the web address for this list..she has a small

daughter

who has jra and sees Dr. Groh..i was talking to Dr.Groh about some of

yall

and he said he has heard so much about this list and how great it

is..told

him how Georgina works hard and gets us info as does others..he said it

is

good we have this list..i agree!

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Gotta wait for Dennis to bring the truck!!!!!! ha ha

BTW got my own Marti Gras beads... I got ones with roses on them...

One from Pat O'Briens and a lot of the ones they throw!!!! I got a Marti

Gras Doll and a few other things..... I am going to hang them around the

pool if i gets opened this year......

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

[Guest guest]

I have that problem most of the, had it before I

started TX so I can't blame it on that. Maybe to some

I could pass it off as old age. My kids would buy that

one.

Terry

--- Jannewilms42@... wrote:

> I have no idea Diane..Guess we either both missed it

> or both have CRS today

>

__________________________________________________

[Guest guest]

I have that problem most of the, had it before I

started TX so I can't blame it on that. Maybe to some

I could pass it off as old age. My kids would buy that

one.

Terry

--- Jannewilms42@... wrote:

> I have no idea Diane..Guess we either both missed it

> or both have CRS today

>

__________________________________________________

[Guest guest]

I just went to the members page for this group and will be believe there are

57 members and since I've been a member (2/15) I've only met a few of yall.

Come on you guys lurking in the shadows, jump out and say boo!!!

Machelle

Re: [ ] (unknown)

I have that problem most of the, had it before I

started TX so I can't blame it on that. Maybe to some

I could pass it off as old age. My kids would buy that

one.

Terry

--- Jannewilms42@... wrote:

> I have no idea Diane..Guess we either both missed it

> or both have CRS today

>

__________________________________________________

[Guest guest]

Jan & Diane what am I missing here. I'm in a loss as

to what you two are talking about.

Terry

--- Jannewilms42@... wrote:

> Ok it's official we don't now who the hell it is but

> I wish they's pop up

> again and get into the conversation a little more so

> we can get to know em

>

__________________________________________________

[Guest guest]

I wish I did but I have no Idea. I'm still trying to

place where everyone is from. Susy keeps asking who

all is in our group & where are they from.

Terry

--- Jannewilms42@... wrote:

> Terry do you know who gigglebutt2002 is? Diane and I

> don't

>

__________________________________________________

[Guest guest]

Hi all,

Rocco Here. I just joined this group , i was referred by Sandi. I was

hoping to get in on the chat live on sat. I do sort of not like getting

all the emails tho......

Not luurking. just deleting. lol

Rocco

At 02:39 PM 2/21/02 -0500, you wrote:

I just went to the members page

for this group and will be believe there are

57 members and since I've been a member (2/15) I've only met a few of

yall.

Come on you guys lurking in the shadows, jump out and say boo!!!

Machelle

Re: [ ] (unknown)

I have that problem most of the, had it before I

started TX so I can't blame it on that. Maybe to some

I could pass it off as old age. My kids would buy that

one.

Terry

--- Jannewilms42@... wrote:

> I have no idea Diane..Guess we either both missed it

> or both have CRS today

>

__________________________________________________

[Guest guest]

Hi Rocco,

Go to the same place where you signed up and change your subscrition to digest. That way all the messages from the day will come in a few emails instead of many...

Machelle

Re: [ ] (unknown) I have that problem most of the, had it before Istarted TX so I can't blame it on that. Maybe to someI could pass it off as old age. My kids would buy thatone. Terry--- Jannewilms42@... wrote:> I have no idea Diane..Guess we either both missed it> or both have CRS today>__________________________________________________

[Guest guest]

Thanks, machelle!

I was kind of wondering what was up....... i usually hang around at

leonas Hepc haven on Delphi, but it is nice to find other homes

Rocco

At 03:30 PM 2/21/02 -0500, you wrote:

Hi

Rocco,

Go to the same place where you signed up and

change your subscrition to digest. That way all the messages from the day

will come in a few emails instead of many...

Machelle

Re: [ ] (unknown)

I have that problem most of the, had it before I

started TX so I can't blame it on that. Maybe to some

I could pass it off as old age. My kids would buy that

one.

Terry

--- Jannewilms42@... wrote:

> I have no idea Diane..Guess we either both missed it

> or both have CRS today

>

__________________________________________________

[Guest guest]

anytime, that's what we're here for...

Re: [ ] (unknown)

I have that problem most of the, had it before I started TX so I can't blame it on that. Maybe to some I could pass it off as old age. My kids would buy that one. Terry --- Jannewilms42@... wrote: > I have no idea Diane..Guess we either both missed it > or both have CRS today >

__________________________________________________

[Guest guest]

Anytime, that's what we're here for...to offer help and advice to one another...

Re: [ ] (unknown)

Thanks, machelle!I was kind of wondering what was up....... i usually hang around at leonas Hepc haven on Delphi, but it is nice to find other homesRoccoAt 03:30 PM 2/21/02 -0500, you wrote:

Hi Rocco,Go to the same place where you signed up and change your subscrition to digest. That way all the messages from the day will come in a few emails instead of many...Machelle

[Guest guest]

Hi Jan,

Im not sure when i got the bug, but i was diagnosed a year ago and I am

just now eligible for Tx. I live in BC and we have socialized meds here

so you have to have at least 150% normal AST and ALT . Everything was OK

til Dec. then my counts went thru the roof....234 & 128

yikes!!!!

Anyways, all is well , i have a biopsy next month and hope to start

treatment soon. I have to decide whether to wait for pegylated to come on

the market as it is only in trials here.

ttyl

Rocco

At 05:02 PM 2/21/02 -0500, you wrote:

Hello Rocco..How are

you and welcome to the group..I am Jan and also have Hep..Have had it for

almost 20 yrs and just found out 2 yrs ago..Where are you from?? Please

let us know more about you and again welcome.