Re: (unknown)

[Guest guest]

Ron

 Hay ,,, how did things go yeaterday ???? Been wondering about ya... Sorry I

couldnt remember your name last night,,, was a rough one for me,,, But I sure

hope your doing good... Please let us know...

        soft hugs

             T

      group moderator

 lisa

From: B <muttsmom55 (DOT) com>

Subject: Re: (unknown)

Stimulator@gro ups.com

Date: Thursday, March 12, 2009, 6:12 PM

Glad to see someone else standing up for Boston Scientific.. ..I was starting to

feel like the step-child!! ! lol I still say with an scs you can get a lemon

just like you can a car, my parents had a lemon Mercedes that they got straight

from the factory in Germany when we lived there. They got to go watch it go down

the assembly line. You just never know. And I'm sure with scs reps you're going

to find good ones and bad ones with all the companies. I have one I'm not

particularly fond of, it's just a personality thing I guess. So I always call

one of the other 4 I have available to me. And as for the actual surgery, any

doctor could have a bad day, even the greatest doctor. And I'm sure there are

really bad doctors who rarely have a good day!! The best thing is to just do

your research, check out the doctors who are performing the procedure. I know

people who have had bad experiences with Medtronics. One the device stopped

working within a

month, wouldn't charge, wouldn't do anything. She had to have it replaced.

Another still has hers but it doesn't work properly so it's implanted but

doesn't work and she doesn't want to go through the surgery again. And she had

such a bad surgery (in the hospital 3 days) she's afraid to let them take it

out. Both of these people wanted to go where I went but their insurance wasn't

accepted. I'm going to ask (if I remember) the next time I go to Pain Mgt what

the success rate is with my doctor's office.....I believe they only do the

Boston Scientific.

Take Care,

B. in TEXAS

____________ _________ _________ __

From: Corn <butterfliesrfree30 9 @>

stimulator@gro ups.com

Sent: Thursday, March 12, 2009 5:46:12 PM

Subject: (unknown)

Ron

I'm sorry that you had a problem with your Bostom Scientific stimulator. I have

2 of them, a lumbar and cervical. When I had a problem, my doctor made sure it

was resolved very quickly and it was. I wish you luck with the medtronics. Let

us know how you made out

Sue C

Moderator

[Guest guest]

Stefanie,

That is why we hold off on the calcium-constipation

issues, but sometimes pts add them in sooner with no problems.

Bach,

RD, LD, HFS

Barix

Clinics of Ohio

3964

Hamilton Square Blvd.

Groveport,

OH 43125

(614)

834-6819

(unknown)

Hello all,

I am a newcomer to the group so I thought I would

introduce myself. My name is Stefanie Aletras and I am the nutrition

coordinator at the Center for Advanced Bariatric Surgery at Mountainside

Hospital in NJ. I was interested in joining the group to network with other

dietitians in the field and also bounce some questions off everyone. The first

one being- Why is it recommended that calcium supplements not begin until a

month after band/bypass? I was inherited this guideline when I started working

here and I have not been able to find the answer anywhere. Some ideas I had

were sometimes calcium can cause indigestion/constipation

and maybe interfere with healing? Any answers would be much appreciated.

Thanks,

Stefanie

[Guest guest]

Stefanie,

That is why we hold off on the calcium-constipation

issues, but sometimes pts add them in sooner with no problems.

Bach,

RD, LD, HFS

Barix

Clinics of Ohio

3964

Hamilton Square Blvd.

Groveport,

OH 43125

(614)

834-6819

(unknown)

Hello all,

I am a newcomer to the group so I thought I would

introduce myself. My name is Stefanie Aletras and I am the nutrition

coordinator at the Center for Advanced Bariatric Surgery at Mountainside

Hospital in NJ. I was interested in joining the group to network with other

dietitians in the field and also bounce some questions off everyone. The first

one being- Why is it recommended that calcium supplements not begin until a

month after band/bypass? I was inherited this guideline when I started working

here and I have not been able to find the answer anywhere. Some ideas I had

were sometimes calcium can cause indigestion/constipation

and maybe interfere with healing? Any answers would be much appreciated.

Thanks,

Stefanie

[Guest guest]

We don't wait for Ca supplementation. Stool softeners can be used if necessary. Also may try formulations with Magnesium (Twinlab, Blubonnet liquid, Bariatric Advantage)

Amy Long Carrera MS, RD Clinical Dietitian Northridge Hospital Medical Center & Center for Weight Loss Surgery Northridge, CA Amy.Long@... 818-885-8500 x4034

From: [mailto: ] On Behalf Of BachSent: Tuesday, March 17, 2009 7:55 AM Subject: RE: (unknown)

Stefanie,

That is why we hold off on the calcium-constipation issues, but sometimes pts add them in sooner with no problems.

Bach, RD, LD, HFS

Barix Clinics of Ohio

3964 Hamilton Square Blvd.

Groveport, OH 43125

(614) 834-6819

-----Original Message-----From: [mailto: ] On Behalf Of Stefanie AletrasSent: Tuesday, March 17, 2009 9:44 AM Subject: (unknown)

Hello all,

I am a newcomer to the group so I thought I would introduce myself. My name is Stefanie Aletras and I am the nutrition coordinator at the Center for Advanced Bariatric Surgery at Mountainside Hospital in NJ. I was interested in joining the group to network with other dietitians in the field and also bounce some questions off everyone. The first one being- Why is it recommended that calcium supplements not begin until a month after band/bypass? I was inherited this guideline when I started working here and I have not been able to find the answer anywhere. Some ideas I had were sometimes calcium can cause indigestion/constipation and maybe interfere with healing? Any answers would be much appreciated.

Thanks,

Stefanie

[Guest guest]

We don't wait for Ca supplementation. Stool softeners can be used if necessary. Also may try formulations with Magnesium (Twinlab, Blubonnet liquid, Bariatric Advantage)

Amy Long Carrera MS, RD Clinical Dietitian Northridge Hospital Medical Center & Center for Weight Loss Surgery Northridge, CA Amy.Long@... 818-885-8500 x4034

From: [mailto: ] On Behalf Of BachSent: Tuesday, March 17, 2009 7:55 AM Subject: RE: (unknown)

Stefanie,

That is why we hold off on the calcium-constipation issues, but sometimes pts add them in sooner with no problems.

Bach, RD, LD, HFS

Barix Clinics of Ohio

3964 Hamilton Square Blvd.

Groveport, OH 43125

(614) 834-6819

-----Original Message-----From: [mailto: ] On Behalf Of Stefanie AletrasSent: Tuesday, March 17, 2009 9:44 AM Subject: (unknown)

Hello all,

I am a newcomer to the group so I thought I would introduce myself. My name is Stefanie Aletras and I am the nutrition coordinator at the Center for Advanced Bariatric Surgery at Mountainside Hospital in NJ. I was interested in joining the group to network with other dietitians in the field and also bounce some questions off everyone. The first one being- Why is it recommended that calcium supplements not begin until a month after band/bypass? I was inherited this guideline when I started working here and I have not been able to find the answer anywhere. Some ideas I had were sometimes calcium can cause indigestion/constipation and maybe interfere with healing? Any answers would be much appreciated.

Thanks,

Stefanie

[Guest guest]

Hi Stefanie,

Welcome to the group! Our program follows the guidelines outlined in the ASMBS white paper. If you have not seen this, this document written by the Allied Health Sciences Section Ad Hoc Nutrition Committee (L. Allis et al) can be located on the ASMBS website under the Health Professionals page/link.

The guidelines for post-op Ca supplementation indicates that it may begin on day 1 after hospital discharge or within 1 month after surgery. Most of our patients (AGB & RYGB) start their chewable or liquid form Ca supplement when they get back home after surgery without difficulty.

Hope this helps and again welcome to the group.

Tammy Hutchisen RD, LDN, CPT

Mid-land Bariatrics

301-698-5550

www.losing2gain.com

From: Stefanie Aletras <saletras@...>Subject: (unknown) Date: Tuesday, March 17, 2009, 9:44 AM

Hello all,

I am a newcomer to the group so I thought I would introduce myself. My name is Stefanie Aletras and I am the nutrition coordinator at the Center for Advanced Bariatric Surgery at Mountainside Hospital in NJ. I was interested in joining the group to network with other dietitians in the field and also bounce some questions off everyone. The first one being- Why is it recommended that calcium supplements not begin until a month after band/bypass? I was inherited this guideline when I started working here and I have not been able to find the answer anywhere. Some ideas I had were sometimes calcium can cause indigestion/ constipation and maybe interfere with healing? Any answers would be much appreciated.

Thanks,

Stefanie

[Guest guest]

Thank you! Very helpful.

From: Tammy Hutchisen <t_hutchisen@...> Sent: Tuesday, March 17, 2009 5:11:43 PMSubject: Re: (unknown)

Hi Stefanie,

Welcome to the group! Our program follows the guidelines outlined in the ASMBS white paper. If you have not seen this, this document written by the Allied Health Sciences Section Ad Hoc Nutrition Committee (L. Allis et al) can be located on the ASMBS website under the Health Professionals page/link.

The guidelines for post-op Ca supplementation indicates that it may begin on day 1 after hospital discharge or within 1 month after surgery. Most of our patients (AGB & RYGB) start their chewable or liquid form Ca supplement when they get back home after surgery without difficulty.

Hope this helps and again welcome to the group..

Tammy Hutchisen RD, LDN, CPT

Mid-land Bariatrics

301-698-5550

www.losing2gain. com

From: Stefanie Aletras <saletras (DOT) com>Subject: [bariatricNutrition Dietitians] (unknown)bariatricnutritiond ietitiansDate: Tuesday, March 17, 2009, 9:44 AM

Hello all,

I am a newcomer to the group so I thought I would introduce myself. My name is Stefanie Aletras and I am the nutrition coordinator at the Center for Advanced Bariatric Surgery at Mountainside Hospital in NJ. I was interested in joining the group to network with other dietitians in the field and also bounce some questions off everyone. The first one being- Why is it recommended that calcium supplements not begin until a month after band/bypass? I was inherited this guideline when I started working here and I have not been able to find the answer anywhere. Some ideas I had were sometimes calcium can cause indigestion/ constipation and maybe interfere with healing? Any answers would be much appreciated.

Thanks,

Stefanie

[Guest guest]

I have seen this too...hadn't related it to a vitamin deficiency though...I'm curious to see what others share.

From: Stefanie Aletras <saletras@...>Subject: (unknown) Date: Wednesday, March 18, 2009, 3:18 PM

Has anyone ever heard of a heightened sense of smell following gastric bypass? Ultimately, making the patient have a loss of appetitie. I was thinking possible B vitamin deficiency? Perhaps bland diet and recommending a B complex. Any ideas??

Thanks,

Stefanie

[Guest guest]

In my experience, following RNY, some patients complain that "everything" tastes bad, even plain water. Smell and taste are intimately connected. I recommend they begin immediately 50 mg of elemental zinc OD. Could be zinc gluconate or zinc sulfate-

The feedback has been that the "bad taste" resolves in a day or two. I caution them not to take zinc for more than a few months to avoid a copper deficiency- unless they have a documented deficiency.

Lynne Kurzweil, RD

Job Hunting? Start with the companies that posted job openings this week.

[Guest guest]

This information should have gone to Marie privately, as we should not be mentioning doctors full names on the forum.

Lilian

Hi Marie, their is a private DR in Bristol. DR Hembury. google and her site will come up .she seems very good. regards angel.

[Guest guest]

Sorry, me too, but when I saw Sheila and Bob mention a doctor by name I thought

it was OK. Perhaps they need telling off too? :-)

Miriam

> This information should have gone to Marie privately, as we should not be

mentioning doctors full names on the forum.

[Guest guest]

I have been ( and so has Bob ( - so that's three of us

with a smacked bum standing in the corner facing the wall.

Luv - Sheila

Sorry, me too, but when I saw Sheila and Bob

mention a doctor by name I thought it was OK. Perhaps they need telling off

too? :-)

Miriam

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.0.238 / Virus Database: 270.11.22/2015 - Release Date: 03/20/09

19:01:00

[Guest guest]

Thanks to everyone who responded; sorry I got you all in trouble !

[Guest guest]

>>>Perhaps they need telling off too? :-)<<<

They certainly do .

By the way, our doctors e.g. Dr.Peatfield or doctors who are authors and their books are being discussed it is OK to mention their name.

The reason we do not mention doctor's names here is because if they are helpful then they get reported and witch hunted, and if they are not we do not want any libel actions.

Lilian

[Guest guest]

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola.com/promoclk/100126575x1220685763x1201394209/aol?redir=http:%2\

F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID

%3D62%26bcd%3DMarchfooterNO62)

[Guest guest]

Aaaah, thanks, Sue.

you are too sweet!

How have you and Teddy been? Hope all is well, my friend.

Lots of love,

Kathy G. v

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

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%3D62%26bcd%3DMarchfooterNO62)

[Guest guest]

Welcome, Mike! It's so good to hear your boys are doing so well. Good for you to

have learned about vaccines before your children had problems.

Winnie

(unknown)

Vaccinations

> Hello, my name is Mike. I'm the proud dad of two adorable young

> boys(3 and 5) and the proud husband of their mother. I've

> learned quite a bit about vax and the medical community since

> the boys were born, mainly from my wife. I've trusted here

> knowledge and motives behind the decision not to vaccinate the

> boys. Now, i can only be proud at the decision we have made on

> this issue. They are strong and healthy little boys. I came to

> this site to learn some things that my dw has been trying to

> tell me for years. Sometimes you just need to hear it from

> someone else, or read it somewhere else before you finally " get

> it " . That happens to me quite often. I was in the Navy in the

> early nineties and just did what I was told to do. " Roll your

> sleeves up, this won't hurt " , ya right. What's with the PPD

> shot? I've had probably three or four, I was told it's

> for sickle cell animia. Hm, I wonder! They gave us yellow

> fever, why? I was sick

> for weeks in basic training(never went to medical). For me

> that was enough evidence to trust my dw with whatever decisions

> had to be made about vax the boys. They won't ever see a needle

> as long as we are here.

>

>

>

>

>

[Guest guest]

I don't agree with that. For listening and comfort your average family

doctor is going to be much better than any specialist for sure. I don't go

to a specialist for those things. I go for his up to date knowledge on my

condition and the treatments for it. Many people who are excellent in their

respective specialties in medicine are not known for bedside manner but if

you actually want to fight your disease aggressively they still have the

best tools. It sounds like this particular person doesn't have a choice

though.

Gareeth

Jane Celentano wrote:

<< Just because a doctor is a specialist doesn't mean he or she is the best one

for you. You need someone who is going to listen to what you are saying>>

[Guest guest]

Dear Sachin,

No question of hurting anybody.

You can contribute definitely for teaching reforms.

Future of medical education depends on you, young pharmacologists.

Don't be disappointed.

Yes, congratulations for clearing DNB theory.

With warm regards,

Bharat Gajjar.

DR. BHARAT GAJJAR

ASSOCIATE PROFESSOR,

DEPARTMENT OF PHARMACOLOGY,

PRAMUKHSWAMI MEDICAL COLLEGE,

KARAMSAD-388325.

DIST.-ANAND (GUJARAT) INDIA.

MOBILE- 09428153344.

From: sachin kuchya <sachinkuchya@...>Subject: (unknown)netrum Date: Monday, March 23, 2009, 9:16 PM

Dr Bharat sir,with due respect,most of the colleges here in MP, don't even have specimens of Inhalers, Rotahalers in their pharmacy practical/ Demonstration sessions,no one is interested, i showed up your practical manual in one of the departments, it was turned down,these are the states more or less with every department of pharmacology,whom to blame,my sincere apologies, if it hurts somebody.DR SACHIN KUCHYA, MD Assistant Professor, Department of Pharmacology, NSCB Medical College, Jabalpur (MP)

[Guest guest]

Welcome to the group! You've come to an excellent place to ask questions and

chat with others who have BPES or have a family member with BPES. We come from

all over the world. Where are you from?

I don't believe there are any statistics on the odds of BPES without any family

history but I've heard over and over it is rare. Our son just

turned 2 and was diagnosed with BPES at 6 weeks old. We also have no family

history. It's been commented on this site before that BPES is rare enough that

is highly unlikely you will ever " run into " someone else with BPES. With our

wonderful group though it is making it easier to meet others and other family

members of people with BPES.

There are pictures posted on the site as well. Our son is in the

photo section. Best wishes to you and your family and feel free to ask

questions. --Anne Weber-- Chicago, IL, USA

> From: dizzymomma24 <aimiejohns@...>

> Subject: blepharophimosis (unknown)

> blepharophimosis

> Date: Friday, March 27, 2009, 6:11 AM

> Hi,

> I have a 10 month old boy, we're waiting on an

> appointment with a geneticist to have his diagnosis

> confirmed. My son has all the main symptoms of BPES. My

> wonderful pediatrician just came back with the diagnosis

> this week. We have no family history of BPES. I was

> wondering if anyone could tell me how common that is.

> We've been told that his heart sounds fine. We're

> just wondering what to expect from here out.

> I'd love to hear back from someone,

> Thanks.

[Guest guest]

Hello, just to let you know everthing will be fine. You have come to the right place. My dad's father was the first one in our family that had bpes then my dad and some of his brothers and sisters and then myself and one of my brother two of sisters have it so we are a big family of bpes, sure we didn't want it but you play the hand your dealt in life and get on with it. I have a nephew in collage that has a 4.0 and has bpes he could have let his looks become a handicap with all the mean things kids said to him but he didn't. You will be there for your son have the operations but pick the best doctors I am going to send you a picture i don't usually do this but you are worring much. I am the one wearing the red top with the snowmen on it and my sister setting on the other side of my mom on the chair arm also has

bpes. the older man in the other picture is my dad he is 82 and the young men are my nephews you will know the one that has bpes.hope this helps

From: dizzymomma24 <aimiejohns@...>Subject: blepharophimosis (unknown)blepharophimosis Date: Thursday, March 26, 2009, 1:11 PM

Hi,I have a 10 month old boy, we're waiting on an appointment with a geneticist to have his diagnosis confirmed. My son has all the main symptoms of BPES. My wonderful pediatrician just came back with the diagnosis this week. We have no family history of BPES. I was wondering if anyone could tell me how common that is. We've been told that his heart sounds fine. We're just wondering what to expect from here out.I'd love to hear back from someone,Thanks.

[Guest guest]

Unlikely to be related to LDN, especially at that low amount. I always

though a heart rate around 70 was good, so wish mine was 68.

Coincidentally mine has gone up in the 5 years I've been using LDN.

Sherry wrote:

> hi -I was just reading the low dose naltrexone website--it stated that

> doses under 1.7 are thought to be ineffective--i was just wondering if

> any of you have noticed any sort of improvement, while taking this

> amount--one reason i am thinking about this...today at docs office--my

> pulse rate was 68--my pulse rate has all my life been in the 90's

> range --in the last few years around 100 or more--i am currently

> taking 1.5 ldn--any thoughts??

[Guest guest]

Hi ,

We'll be starting inmunovir, hopefully next month as well. The good

news is that for the second time since we've been patients of Dr. G

our son's HHV6 came back normal! (once last August and now in

March). The only thing we did different both times is that we were

more strict with the diet. This comes after heavy allergies last

couple of months, and severe sinus congestion!

Good luck,

Argie

On Mar 27, 2009, at 6:34 PM, ia Azañedo wrote:

> My girl will also begin inmunovir next month, it is because she

> keeps HHV6 very high after 6 months of Valtrex.

> Dr. G is changing valtrex to Famvir, and next month inmunovir to

> support the famvir.

>

>

>

[Guest guest]

Hang in there!! My son’s HHV6 at one point was over 10,000:1, but now it is

ZERO ;-).

Kristy

From: [mailto: ] On Behalf Of ia

Azañedo

Sent: Friday, March 27, 2009 6:34 PM

Subject: (unknown)

My girl will also begin inmunovir next month, it is because she keeps HHV6

very high after 6 months of Valtrex.

Dr. G is changing valtrex to Famvir, and next month inmunovir to support the

famvir.

[Guest guest]

Shirley,

I went a whole summer with the restless leg thing. Then it disappeared. I was on Gabapentin at the time. I occasionally have it happen to me now. In my arms and legs. My daughter does too. I have not solutions. I know there are drugs for it that your doctor can prescribe. It is a mystery to me why it comes and go. I am actually having it in my arms now.

It oftens happens when I am overtired

like I am now.

I wish I could help you. I just wanted to let you know I was thinking of you. It is such a terrible feeling. Sometimes you just want to scream.

Tomorrow I will do some research on this and ask a good friend who is a Naturopath and reads research all the time.

Hope you get some rest.

hugs,

Sue

From: Shirley Godbout <prywarr@...>Subject: (unknown) Date: Saturday, March 28, 2009, 11:39 PM

Hi, everyone is fibroland. I was wondering how many of you suffer from "restless leg syndrome". My was really bad for quite a while but when my dr. put me on Neurontin{Gabapentin) it help for the last year or more. But now they are back really bad even in the daytime. Nothing seems to help any more and I am losing lots and lots of sleep. Can anyone give me some inside info or guidance as to what to do now? You guys are such a wealth of info. My prayers go out for many of you who are much worse off than me. I think God I can still function. Any help or advice would be appreciated.

Shirley Godbout