Re: (unknown)

[Guest guest]

thank you joan!

yes....we are just so so thankful.

how long would you advise to wait before going into solid foods?

shalom,

ruth

Joan Pearse <jpearse@...> wrote:

Ruth welcome !

So glad your husband is feeling so good after surgery. Take it easy and

don't push the solid food too soon !

It is a wonderful feeling when the food hits your stomach for the first time

for a long time .

Good luck

Joan

Johannesburg

South Africa

(unknown)

>

> my huaband had surgury for A this week. he had the laproscopic heller

> myotomy.

> WOW. it has been a joy to see him eat and eat and eat. even if it is

> mostly soups and custard. no complaining over here. what a gift to have

> him eat again.

> just wanted to share our happy moment. we are from winnipeg, canada.

>

> __________________________________________________

>

[Guest guest]

Hi Ruth,

You have already had some excellent advice from those who have just had the

experience ! I would honestly go slowly as Kathie did and introduce foods

one at a time. It is worth remembering that your stomach wall has been

'fiddled with' and the valve (sphincter) cut so give it time to heal. There

are others who with their doctors blessing went and had a hamburger, but I

too would rather be safe than sorry.

Joan

(unknown)

>

>

>>

>> my huaband had surgury for A this week. he had the laproscopic heller

>> myotomy.

>> WOW. it has been a joy to see him eat and eat and eat. even if it is

>> mostly soups and custard. no complaining over here. what a gift to have

>> him eat again.

>> just wanted to share our happy moment. we are from winnipeg, canada.

>>

>> __________________________________________________

>>

[Guest guest]

thank you joan!

yes....i have been busy making him soft foods.

i got cream of potatoe...cream of tomato....cream of

cauliflour/asparagus....baked custurd...

Joan Pearse <jpearse@...> wrote:

Hi Ruth,

You have already had some excellent advice from those who have just had the

experience ! I would honestly go slowly as Kathie did and introduce foods

one at a time. It is worth remembering that your stomach wall has been

'fiddled with' and the valve (sphincter) cut so give it time to heal. There

are others who with their doctors blessing went and had a hamburger, but I

too would rather be safe than sorry.

Joan

(unknown)

>

>

>>

>> my huaband had surgury for A this week. he had the laproscopic heller

>> myotomy.

>> WOW. it has been a joy to see him eat and eat and eat. even if it is

>> mostly soups and custard. no complaining over here. what a gift to have

>> him eat again.

>> just wanted to share our happy moment. we are from winnipeg, canada.

>>

>> __________________________________________________

>>

[Guest guest]

- welcome. What is your son's name? Our daughter Macey is 9 and has

CVID which is a combination of immune problems. Has your son had any of the

heart related problems from the Di? Is he very allergic to

everything? What type of treatment do they have him on? Feel free to ask

any questions you may have. I believe we have other families with Di

and I know we have some Hyper IgE (aka Job's syndrome) families.

Ursula Holleman

mom to (12 yrs old) and Macey (9 yr. old with CVID, Diabetes

Insipidus, colonic inertia)

http://members.cox.net/maceyh

Immune Deficiency Foundation - Peer Contact for GA

http://www.primaryimmune.org

IDF Patient/Family Handbook

http://www.primaryimmune.org/pubs/book_pats/book_pats.htm

/

[Guest guest]

best of luck to you and your family. Our son too has many issues.

Our son is 3 yrs old and has cvid, acid reflux disease, torticolis

developmental delay ect....my name is Dawn

--- nancy kuhr <lilwildones@...> wrote:

> Hello im i have a son who has hyper IGE syndrome and De

> syndrome and velcocardiofacial syndrome, hes only 3 yrs old and been

> through alot. just finally diagnoaised with these syndromes in jan.2005.

> we started out at 5 days old havin grand maul seizures and not sure he

> would make it, and now we are at 3 yrs old and worried about the future

> for him. me and my husband are looking to meet parents with children

> with immune defencys, its really changed are lifes. we hardly go

> anywheres besides childrens hosp of wisc, we have 2 other children

> too..thank you all and god bless

>

>

>

> ---------------------------------

> Do you ?

> Small Business - Try our new resources site!

>

>

[Guest guest]

Is this true? Or one of those email chain letters? Isn't there a site where

you can find out if this type of emails are legit? Does someone have it?

Kimi

[Guest guest]

In a message dated 4/27/2005 10:27:05 AM Eastern Standard Time,

Ksmile96@... writes:

Isn't there a site where you can find out if this type of emails are legit?

Does someone have it?

isn't it snopes.com?

Amy M. Marquez

McHenry, Illinois

[Guest guest]

or breakthechain.org

Ames24@... wrote:

>In a message dated 4/27/2005 10:27:05 AM Eastern Standard Time,

>Ksmile96@... writes:

>Isn't there a site where you can find out if this type of emails are legit?

>Does someone have it?

>isn't it snopes.com?

>

>Amy M. Marquez

>McHenry, Illinois

>

>

>

[Guest guest]

Yes, snopes would have the info. I checked that for several other

things, including the email from my sis in-law about the ban on

religious broadcasting (but that particular one did not mention Dobson).

> In a message dated 4/27/2005 10:27:05 AM Eastern Standard Time,

> Ksmile96@a... writes:

> Isn't there a site where you can find out if this type of emails are

legit?

> Does someone have it?

> isn't it snopes.com?

>

> Amy M. Marquez

> McHenry, Illinois

>

>

>

[Guest guest]

Anyone know of anything that helps with receding gums? My dentist told

me it's a consequence of aging, so I'd love to prove him wrong.

McCourt, Ph.D. wrote:

>Seems just like everything else. Cannot tell that it is better or worse.

>Very Inexpensive. Mouth seems cleaner and less slimy than commercial paste.

>Does not prevent tartar. Does not promote improved gum tissue. But then

>again neither do the commercial products.

>

> (unknown)

>>>

>>>

>>>

>>>

>>>>Hi Everybody,

>>>>

>>>>Does anybody know the safety of using household

>>>>hydrogen peroxide?

>>>>

>>>>I used to use a combo of hydrogen peroxide and

>>>>

>>>>

>>>baking

>>>

>>>

>>>>soda to brush my teeth, but a dentist told me it

>>>>erodes the tooth enamel.

>>>>

>>>>So, now I just use plain baking soda.

>>>>

>>>>Thoughts?

>>>>

>>>>Much love,

>>>>Pamela

>>>>

>>>>

>

>

>

>

>

>Note: This forum is for discussion of health related subjects but under no

circumstances should any information published here be considered a substitute

for personal medical advice from a qualified physician. -the owner

>

[Guest guest]

Dawn, I am so excited for you! Drink lots of water to get the sweat going in the sauna. Good Luck, Anita (unknown) Hi Everybody,Thanks Rogene, Patty and Kenda for answering myswollen gland question!I'm waiting around for the ax to fall quite frankly.Reason being, I actually am having a major break fromthe anxiety and depression that I had while I had theimplants. I know I probably sound like a fruit cakehere, but I think I may have been much much moredepressed than I thought. Truthfully, the depressionprobably came before all of the other symptoms... butit was so insidious that I did not even recognize itas depression. For the past three years I just wanted to be alone...I wanted to be around no one, I wanted to do nothing,I wanted zero relationship with my husband. I amactually shocked at the fact that I now yearn to bewith my family, I am excited about life, I feel someof the vigor I had pre implant. I know I am notimagining this, my husband sees it too. We just don'twant to get too excited about this yet since who knowsif it will last.This is a good sign. It goes to show that the implantsreally were wreaking havoc inside my body. I nowbelieve that other symptoms will abate and I have anexcellent shot for recovery.I haven't been able to keep up with the postslately... sorry, I'm sort of out of the loop as towhat's goin' on .. on the board. I will contribute asmuch as I can regarding my recovery.. I want the newgirls to know that they should have hope and that itis not all in their head.By the way, did the sauna at the gym today... gees,just like you guys said.... I was in there for a good15 to 20 mins and barely broke a sweat! Howdisappointing! Oh well, I'll keep trying.Hope you all are doing okay.Hugs,Dawn__________________________________________________

[Guest guest]

Well Sue I just got back from a meeting with the principal of my elementary

school to see if she was open to a half day kindergarten next year for

Micah, as an alternative to pre-school wirth aide. The advocate we spoke with

suggested talking to her to see how she responded because she could

make or break it for Micah. Well no such luck. She didn't seem very happy to

see us there as if she had better things to do. I got all the old standby's

" Oh he would probably do better in self contained because they can work more

one on one with him. " Duh,that's what a resource room is for. Also my

personal favorite " Well if he can't keep up with his peers then it would not be

the

best placement " I said " He will never keep up with his peers. That has

nothing to do with the most appropriate placement for him. " She kept saying

she started out as a special ed teacher and knows the laws as she worked with

a special ed lawyer at one point.. I wanted to say, then do you know

" Holland vs. the school board " etc. but I bit my tongue until it bled and

played

stupid until my CSE meeting. I will now go in and definitely fight for

pre-school with teacher consult and KNOW I am looking at a HUGE fight but i am

hopping mad right now.

So Sue you are not going through this stuff alone. I am too!

Loree

[Guest guest]

Well Sue I just got back from a meeting with the principal of my elementary

school to see if she was open to a half day kindergarten next year for

Micah, as an alternative to pre-school wirth aide. The advocate we spoke with

suggested talking to her to see how she responded because she could

make or break it for Micah. Well no such luck. She didn't seem very happy to

see us there as if she had better things to do. I got all the old standby's

" Oh he would probably do better in self contained because they can work more

one on one with him. " Duh,that's what a resource room is for. Also my

personal favorite " Well if he can't keep up with his peers then it would not be

the

best placement " I said " He will never keep up with his peers. That has

nothing to do with the most appropriate placement for him. " She kept saying

she started out as a special ed teacher and knows the laws as she worked with

a special ed lawyer at one point.. I wanted to say, then do you know

" Holland vs. the school board " etc. but I bit my tongue until it bled and

played

stupid until my CSE meeting. I will now go in and definitely fight for

pre-school with teacher consult and KNOW I am looking at a HUGE fight but i am

hopping mad right now.

So Sue you are not going through this stuff alone. I am too!

Loree

[Guest guest]

Thanks Di I will look it up on the internet and see if I can copy it off to

take to my CS meeting with me along with Holland vs. the board of education.

Loree

[Guest guest]

Thanks Di I will look it up on the internet and see if I can copy it off to

take to my CS meeting with me along with Holland vs. the board of education.

Loree

[Guest guest]

Tell her to look up Gaskin vs. Pennsylvania Department of education. It was in

the courts for 10 years and just settled 12/04. In favor of the parents

DI

Re: (unknown)

Well Sue I just got back from a meeting with the principal of my elementary

school to see if she was open to a half day kindergarten next year for

Micah, as an alternative to pre-school wirth aide. The advocate we spoke with

suggested talking to her to see how she responded because she could

make or break it for Micah. Well no such luck. She didn't seem very happy

to

see us there as if she had better things to do. I got all the old standby's

" Oh he would probably do better in self contained because they can work more

one on one with him. " Duh,that's what a resource room is for. Also my

personal favorite " Well if he can't keep up with his peers then it would not

be the

best placement " I said " He will never keep up with his peers. That has

nothing to do with the most appropriate placement for him. " She kept

saying

she started out as a special ed teacher and knows the laws as she worked with

a special ed lawyer at one point.. I wanted to say, then do you know

" Holland vs. the school board " etc. but I bit my tongue until it bled and

played

stupid until my CSE meeting. I will now go in and definitely fight for

pre-school with teacher consult and KNOW I am looking at a HUGE fight but i

am

hopping mad right now.

So Sue you are not going through this stuff alone. I am too!

Loree

[Guest guest]

Tell her to look up Gaskin vs. Pennsylvania Department of education. It was in

the courts for 10 years and just settled 12/04. In favor of the parents

DI

Re: (unknown)

Well Sue I just got back from a meeting with the principal of my elementary

school to see if she was open to a half day kindergarten next year for

Micah, as an alternative to pre-school wirth aide. The advocate we spoke with

suggested talking to her to see how she responded because she could

make or break it for Micah. Well no such luck. She didn't seem very happy

to

see us there as if she had better things to do. I got all the old standby's

" Oh he would probably do better in self contained because they can work more

one on one with him. " Duh,that's what a resource room is for. Also my

personal favorite " Well if he can't keep up with his peers then it would not

be the

best placement " I said " He will never keep up with his peers. That has

nothing to do with the most appropriate placement for him. " She kept

saying

she started out as a special ed teacher and knows the laws as she worked with

a special ed lawyer at one point.. I wanted to say, then do you know

" Holland vs. the school board " etc. but I bit my tongue until it bled and

played

stupid until my CSE meeting. I will now go in and definitely fight for

pre-school with teacher consult and KNOW I am looking at a HUGE fight but i

am

hopping mad right now.

So Sue you are not going through this stuff alone. I am too!

Loree

[Guest guest]

In a message dated 5/6/2005 5:14:53 PM Eastern Standard Time, Loree5@...

writes:

Thanks Di I will look it up on the internet and see if I can copy it off to

take to my CS meeting with me along with Holland vs. the board of education.

Loree

--

Loree - where are you?

I'll look for case on point in your jurisdiction

- Becky

[Guest guest]

In a message dated 5/6/2005 5:14:53 PM Eastern Standard Time, Loree5@...

writes:

Thanks Di I will look it up on the internet and see if I can copy it off to

take to my CS meeting with me along with Holland vs. the board of education.

Loree

--

Loree - where are you?

I'll look for case on point in your jurisdiction

- Becky

[Guest guest]

Heidi I see you!!! You do exist on the group.

Jean

[Guest guest]

Heidi I see you!!! You do exist on the group.

Jean

[Guest guest]

Copaxone is the only CRAB drug that does not conflict with LDN.

[Guest guest]

If you go to the health food store or order online d-mannose you will throw your bladder meds away. read up on this. a uti is gone in a day or two.kathy

[low dose naltrexone] (unknown)

I am new here. My family doctor called me and told me to read up about this.This sounds very interesting but I have a number of questions. I am going to see my neurologist mid June and I want to have all the information to discuss with her.I am currently on Betaseron. Do I continue with Betaseron when I start LDN?I am also taking Baclofen (5 pills per day @10mg each pill)I also take Alertec.I also suffer from constant bladder issues (infections etc.) I have gone to a urologist and she percribed Macrobid 100mg every evening.I also take Vitamin C, Evening Primrose Oil & Vitamin D.I am have a pharmacy in my bathroom.Any information you could provide would be appreciated.Thank youAnne-Marie (the email address says Stan but that's my husband)

[Guest guest]

Hi Anne-Marie

Glad your taking the "C" but is it enuf?

While you are at the health food store pick up a large bottle of powdered Vitamin "c" then mix a teaspoon full in a glass of Orange juice I figure this is about a gram if you use a smallish teaspoon. Either way if you drink this daily odds are you won't get no more infections plus it's good for ya. Since I wasn't plagued by them anyway I use this as a preventative and it sure keeps one regular.Yep no more worrys bout constapation....... Which means one teaspoon is my limit but at least it's cheap.

Betaseron will directly negate the LDN endorphin production so it's a no no on LDN.

So get the Drs. copy and the patients copy of the LDN protocol for your Dr. and then

Try to see your regular Dr. instead of a Nuerologist as they are way more receptive to alternate means of defeating M.S.

Watch the Baclofen carefully,,,, my legs got so weak after a few days on the smallest dose available that I was constantly using my wheel chair now I am here permanently! Probably I was going to be here anyway but it seems I react badly to most meds, even LDN at anything over 3.0 mgs is too much.

I think we all have pharmacys in our homes as it goes with the territorykinda like aging and Viagra )

Good luck and best wishes

Reg.

-- Re: [low dose naltrexone] (unknown)

If you go to the health food store or order online d-mannose you will throw your bladder meds away. read up on this. a uti is gone in a day or two.kathy

[low dose naltrexone] (unknown)

I am new here. My family doctor called me and told me to read up about this.This sounds very interesting but I have a number of questions. I am going to see my neurologist mid June and I want to have all the information to discuss with her.I am currently on Betaseron. Do I continue with Betaseron when I start LDN?I am also taking Baclofen (5 pills per day @10mg each pill)I also take Alertec.I also suffer from constant bladder issues (infections etc.) I have gone to a urologist and she percribed Macrobid 100mg every evening.I also take Vitamin C, Evening Primrose Oil & Vitamin D.I am have a pharmacy in my bathroom.Any information you could provide would be appreciated.Thank youAnne-Marie (the email address says Stan but that's my husband)

[Guest guest]

Attention all menbers of remote list

I did NOT write the below email apparently someone has decided to hijack my

email address. I have no experience with Ex-med but have heard nothing bad

about them and wish them well

Again I DID NOT WRITE thie belwo email

Regards

Z Greaber

owner of tom5255@...

>From: tom5255@...

>Reply-

>

>Subject: (unknown)

>Date: Mon, 23 May 2005 08:23:20 -0700

>

>Ref Offshore medics courses

>

>I heard that these guys running this course at Ex Med, have not worked

>offshore,

>so doubt that they can advise on various Environmental and industry

>related issues.

>

>I also heard that they have not paid for their offshore medics

>course which they attended at a reputed UK establishment, where no doubt

>the

>grounding and content of their course will have come from.

>

>I would stick to the more well recognised training centres, as anyone

>can loook up the required regulations for the course and prepare a

>training program, but with out the industry exoerience, I doubt that it

>can be of any use to experienced Military Medics and Nurses out there

>wanting to go work offshore.

>

>--

>

> stewpot@...

>