Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Ok it's official we don't now who the hell it is but I wish they's pop up again and get into the conversation a little more so we can get to know em Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 It's better to blame it on the brain fog we all have with Hep C but I call mine CRS..So do my kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Terry do you know who gigglebutt2002 is? Diane and I don't Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Hey you may have gotten beads but if they don't have boobs that light up then ya ain't got good ole cajun beads! LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Terry you're more than welcome to join in too.... [ ] (unknown) Ladies if you don't mind a guy helping out, I would love to kick some S.O.B can. For pitting you all against the kids. I kicked Susy's Ex's can several years ago & I can do it again. I'm so tried of hearing guys complain about paying child support for their own kids. I would love to kick another S.O.B's but. Terry __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Hello Rocco..How are you and welcome to the group..I am Jan and also have Hep..Have had it for almost 20 yrs and just found out 2 yrs ago..Where are you from?? Please let us know more about you and again welcome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Jan Jan from Cajun Land here Suzy!!! Don't worry Terry as long as I've been in here I still can't remember...There goes that damn CRS again..LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Thanks y'all for the websites with slang, etc. words. ===== Go USA!! All the way!! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Sorry I stopped buying bridges when I was in my early teens. Terry --- Jannewilms42@... wrote: > Hey Terry we also got a bridge to sell ya!!!! > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 I guess I missed that one too Jan.... Whi is it????? Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Jan I think we would have remembered the name!!!!! We can't both have CRS at the same time.... Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 What time do you want me to swing by in the truck??????? LOL Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Hi Georgina..We don't know about the casting yet..they did set a date for April..hopefully if he does decide to do it..he will start it before camp starts..we got the application in the mail and Tabitha is already looking forward to going. The only thing bad i see as far as the casting goes..is Tabitha will have to use the wheelchair again but to get to the good..you have to have some bad i guess. Just wish they could of gotten her an appointment sooner. Hope all is well with your family! Good luck karen(tab16..poly) From: " Georgina " <gmckin@...> Reply- < > Subject: Re: (unknown) Date: Wed, 20 Feb 2002 12:12:15 -1000 Hi , We still don't have the availability of the larger dosage pills of MTX around here, though it was months ago that I first read about and posted the news approving their manufacture. Hopefully they will be available in other locations soon. That'll make it lots easier for the children. How's Tabitha's right knee? What did the orthopedic surgeon think the best option was? Are they going to do the casting? Take care, Georgina Hello all, i hope everything is good. Tabitha had her appointment yesterday with her rheumy and everything checks out good. But she has been having trouble with her neck bothering her..we are afraid arthur is camping there again now..which she hasn't had that problem since she was about 5 or 6. So he increased her methatrexate to 6 tablets from 4 which it was 5 before we had started remicade,i don't think that he is afraid that the remicade isn't working..i think he just wants to cover all posibilities. So she is going from 12 mgs a week to 15 mgs. which is the highest she has been on. She has never had any stomach problems which is a plus even on 5..hope jumping to 15 mg...it won't start. I had to laugh because he told her after she finishes the pills she has..that they now have it where she can take 1 pill of the methatrexate that will enough mgs. that the 6 pills does; or she can do it by injections..should of seen tabs face..lol..i knew the pills would win out by a longshot. He also gave me a number for an eye specialist aroung where i live who i can call to get her eyes checked..she hasn't had any trouble..he said that it seems that uevitis shows up more in kids under 7 than when they are passed that age but she still has to get it checked once a year. Around the 14th she is to get her dose of remicade again...she enjoys the break at the hospital..gets her away from the house plus the extra attention she gets there..she loves. The doctor, Tab, and I dicussed her right knee(the one replaced that locked in a bent position)well the brace hasn't helped in straightening it..so he is making her an appointment at hershey with the new orthopedic surgeon to see if popping it straight while she is knocked out will be the best solution or a serial cast(a cast every 2 weeks..to where each time her knee and tendons will be straightened slowly) her rheumy thinks that since Tabs knee has been bent like that for a long period of time..her tendons and plus her(i think this is the word)heel cord are wound tight and unlocking it while she is out won't help much with her range of motion. Sorry..i hope i didn't confuse anyone on that..lol...still asleep. Anyways all is well as can be..so i am happy about that! Good luck karen(tab16..poly) p.s...gave a mother the web address for this list..she has a small daughter who has jra and sees Dr. Groh..i was talking to Dr.Groh about some of yall and he said he has heard so much about this list and how great it is..told him how Georgina works hard and gets us info as does others..he said it is good we have this list..i agree! _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Gotta wait for Dennis to bring the truck!!!!!! ha ha BTW got my own Marti Gras beads... I got ones with roses on them... One from Pat O'Briens and a lot of the ones they throw!!!! I got a Marti Gras Doll and a few other things..... I am going to hang them around the pool if i gets opened this year...... Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 I have that problem most of the, had it before I started TX so I can't blame it on that. Maybe to some I could pass it off as old age. My kids would buy that one. Terry --- Jannewilms42@... wrote: > I have no idea Diane..Guess we either both missed it > or both have CRS today > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 I have that problem most of the, had it before I started TX so I can't blame it on that. Maybe to some I could pass it off as old age. My kids would buy that one. Terry --- Jannewilms42@... wrote: > I have no idea Diane..Guess we either both missed it > or both have CRS today > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 I just went to the members page for this group and will be believe there are 57 members and since I've been a member (2/15) I've only met a few of yall. Come on you guys lurking in the shadows, jump out and say boo!!! Machelle Re: [ ] (unknown) I have that problem most of the, had it before I started TX so I can't blame it on that. Maybe to some I could pass it off as old age. My kids would buy that one. Terry --- Jannewilms42@... wrote: > I have no idea Diane..Guess we either both missed it > or both have CRS today > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Jan & Diane what am I missing here. I'm in a loss as to what you two are talking about. Terry --- Jannewilms42@... wrote: > Ok it's official we don't now who the hell it is but > I wish they's pop up > again and get into the conversation a little more so > we can get to know em > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 I wish I did but I have no Idea. I'm still trying to place where everyone is from. Susy keeps asking who all is in our group & where are they from. Terry --- Jannewilms42@... wrote: > Terry do you know who gigglebutt2002 is? Diane and I > don't > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Hi all, Rocco Here. I just joined this group , i was referred by Sandi. I was hoping to get in on the chat live on sat. I do sort of not like getting all the emails tho...... Not luurking. just deleting. lol Rocco At 02:39 PM 2/21/02 -0500, you wrote: I just went to the members page for this group and will be believe there are 57 members and since I've been a member (2/15) I've only met a few of yall. Come on you guys lurking in the shadows, jump out and say boo!!! Machelle Re: [ ] (unknown) I have that problem most of the, had it before I started TX so I can't blame it on that. Maybe to some I could pass it off as old age. My kids would buy that one. Terry --- Jannewilms42@... wrote: > I have no idea Diane..Guess we either both missed it > or both have CRS today > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Hi Rocco, Go to the same place where you signed up and change your subscrition to digest. That way all the messages from the day will come in a few emails instead of many... Machelle Re: [ ] (unknown) I have that problem most of the, had it before Istarted TX so I can't blame it on that. Maybe to someI could pass it off as old age. My kids would buy thatone. Terry--- Jannewilms42@... wrote:> I have no idea Diane..Guess we either both missed it> or both have CRS today>__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Thanks, machelle! I was kind of wondering what was up....... i usually hang around at leonas Hepc haven on Delphi, but it is nice to find other homes Rocco At 03:30 PM 2/21/02 -0500, you wrote: Hi Rocco, Go to the same place where you signed up and change your subscrition to digest. That way all the messages from the day will come in a few emails instead of many... Machelle Re: [ ] (unknown) I have that problem most of the, had it before I started TX so I can't blame it on that. Maybe to some I could pass it off as old age. My kids would buy that one. Terry --- Jannewilms42@... wrote: > I have no idea Diane..Guess we either both missed it > or both have CRS today > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 anytime, that's what we're here for... Re: [ ] (unknown) I have that problem most of the, had it before I started TX so I can't blame it on that. Maybe to some I could pass it off as old age. My kids would buy that one. Terry --- Jannewilms42@... wrote: > I have no idea Diane..Guess we either both missed it > or both have CRS today > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Anytime, that's what we're here for...to offer help and advice to one another... Re: [ ] (unknown) Thanks, machelle!I was kind of wondering what was up....... i usually hang around at leonas Hepc haven on Delphi, but it is nice to find other homesRoccoAt 03:30 PM 2/21/02 -0500, you wrote: Hi Rocco,Go to the same place where you signed up and change your subscrition to digest. That way all the messages from the day will come in a few emails instead of many...Machelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Hi Jan, Im not sure when i got the bug, but i was diagnosed a year ago and I am just now eligible for Tx. I live in BC and we have socialized meds here so you have to have at least 150% normal AST and ALT . Everything was OK til Dec. then my counts went thru the roof....234 & 128 yikes!!!! Anyways, all is well , i have a biopsy next month and hope to start treatment soon. I have to decide whether to wait for pegylated to come on the market as it is only in trials here. ttyl Rocco At 05:02 PM 2/21/02 -0500, you wrote: Hello Rocco..How are you and welcome to the group..I am Jan and also have Hep..Have had it for almost 20 yrs and just found out 2 yrs ago..Where are you from?? Please let us know more about you and again welcome. Quote Link to comment Share on other sites More sharing options...
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