Guest guest Report post Posted February 20, 2008 Re: [ ] hello !! It is wonderful to hear from someone who has done well for 12 years. Congratulations to you and it brings tremendous hope to all of us dealing with it now. Thank you for your great success! Sandie -- ---- stber2001 <beriatos@statistics .gr> wrote: > I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM > 1996. > STAVROS > DXD 7/1996 > ON GLIVEC FROM 2002 > ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 9, 2008 I'm so jelous linda wish it was warm here it's 15D here and have at least 2 feet of snow and still coming down yuck!! were are you in florida? aliza **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 10, 2008 Hi Aliza - no I live in sunny hot Australia! Regards, From: [mailto: ] On Behalf Of taina2044@... Sent: Monday, 10 March 2008 12:37 AM Subject: Re: [ ] hello I'm so jelous linda wish it was warm here it's 15D here and have at least 2 feet of snow and still coming down yuck!! were are you in florida? aliza Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 11, 2008 Hi Stavros, I have just achieved 1-1/2 years on Gleevec, with remission finally after more than a year. I am so encouraged to hear of your health and well-being on Gleevec! We all have hope! Thank you for writing. Vicki Lynnwood, Washington Dx'd in 09/06, Started Gleevec at 400 Saw Dr Druker, who recommended increase in dosage Finally! Remission in October, 2007 Gleevec 600 mg/day > > I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM > 1996. > STAVROS > DXD 7/1996 > ON GLIVEC FROM 2002 > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 6, 2008 Thanks Ed. , My dx was confirmed on March 12. I am still on 2 Hydrea, 1 Allopurinol and 400 mg Gleevec. I just can't miss anymore days off work. I had a hot shower this morning with one of those shower massage things and it helped. I am keeping my figures crossed and thinking good thoughts. Take care . Eva From: Edgardo Sent: Sunday, April 06, 2008 12:06 AM Subject: [ ] Hello Hello Eva, I was diagnosed with cml this year the 9th of january. Took hydrea for one month and then started on glivec on february. The symptoms I had are pretty much similar to the ones you have now and I think everybody does to some extent at the beginning with glivec. The meds for bone pain that I use is Ibuprofen, never tylenol because it makes more work for my liver. Also taking a bath with hot water helps ( told me that, I tried and it worked! ) For muscle pain I used a muscle rub. Remember that rest is the best med, so do it as much as you can. You should keep writing if something bothers you, this is an excellent group and we are here to help. Have a nice weekend. Ed Eva <evaob365@...> wrote: Hi Everyone , It is day 3 on Gleevec and since Thursday afternoon , not even 24 hours after starting my Gleevec I have unbelievable muscle spasms in my left shoulder blade up into my neck and aprox where my spleen is . I have been put on Tylenol 3 and told it is just a side effect. I missed work on Friday and there is no sign of this letting up . I am hoping for a miracle by Monday morning because I cannot afford any more time off work. I just started my job 3 days before dx, I am afraid they are going to fire me for too much time off. If any one has experienced the same thing and can offer any suggestions no matter how wild I am willing to try just about anything to stop the spasms and pain before Monday. Thanks take care ; Eva From: Terry Dailey Sent: Saturday, April 05, 2008 1:01 PM Subject: Re: [ ] Coping when relationships go wrong I am so sorry for your son. I myself went through a similar situation when I was first dxed in April of 04. Long story short my wife left me shortly afterwards and I was very devastated. In all honesty I will never be the same again. In fact I am now in the process of getting divorced again, but this is by my choice and another story. I can tell you from experience how things may go with your son. First thing....Be very leery and steer him clear from meeting anyone off the internet. I had a few women that wanted to date me because they knew I get monthly pain meds, been taken for over a grand in cash. This may not happen to him once he decides to try and date again but just keep an eye out for him. He will not see it, or will be in denial. It will take him a while to get over this, but he will. Now I only have CML so my condition does not sound as severe as your son's but he very well may pull himself out of it. One thing he may do is kinda lose his judgement in regards toward what sort of woman he will date. I am not sure of his diagnoses, or the types of treatments he is receiving, so I really cannot say in all honesty how long he will be down. In my case it was around 6 months, and then I put up personal ads. I tried different approaches as far as when I would tell someone about my disease. Some I would tell right away, and others I would wait to see if things turned into more than a couple of dates. I have found it really did not make a difference in the long run. I can very much relate to the sort of pain he is feeling right now. What makes it worse I think is the fact that his fiancee at first was promising him the world and then she dumps him, all the while he is asking her if she is okay with everything, and I am sure she told him she was. It makes a person feel broken in my opinion. In fact it does actually break you. So be supportive of him dating but do not push things, he will have to do this when he is ready. As I said before after a few months he may lose it a bit in his standards, won't look for obvious warning signs. An example, I continued to pursue a relationship with a woman despite the fact I knew in she had spent 3 months in jail for selling drugs, was abusing her meds(She had Crones Disease), and let's just leave it at she had allot of other things in her past and present behavior that would have told a normal thinking man DANGER, but I denied it all and things turned out bad. I wish I could say everything will be okay but honestly no one can know what is going to happen. With his age I am hoping he will bounce back and honestly think he will. If his treatments have caused him to lose his hair, then once it grows back that will hopefully help his self esteem a bit. He very well may not find the " right " woman, but then again fate has a funny way of doing things, so he could just as easy find someone very quickly. I haven't personally found the right person, and at this point in my life I am tired of looking.( I am 41) I have basically consigned myself to the fact that I do not need someone in my life to be happy, and may never find any sort of real love again. It makes it a bit easy for me because I was blessed enough to have my son Nick. He is 14 and I can concentrate on raising him. I honestly hurt for your son, I know how he is feeling right now. I wish there was an easy answer. Everything effects everyone differently. He may start spending allot more time on the net. I know this may sound silly but what has gotten me through a very rough period was playing online PC games. Any sort of human contact is good for him right now even if it is just playing a game. Has he withdrawn allot? I will do what I can or talk with you more as things progress if you need me. There is a good chance he will have a another love in his life, but as with everything nothing is certain. Please take care, just be there for him when he wants to talk, but don't push him if he has sort of become withdrawn. I am not a doctor or anything but perhaps short term therapy might help? Anyway if there is anything I can so let me know. I have all the hope in the world for your son to bounce back and find himself a woman that is worthy of his love. Terry 41 years old Dxed April 04 On Sat, Apr 5, 2008 at 9:28 AM, <Sionito@...> wrote: > Wow.? That is a tough blow to such a young life. > > ? > > There is always hope.? It may seem bleak, but you just never know what may > happen. > > ? > > Your son and his ex are young, dispite disease, and you never know how > things will end up.? Majo illnesses cause everyone to rethink their > situations.? She may not have felt she could do this before, but now as > things are more seriously moving forward (marriage) she may have really done > some hard thinking and changed her mind.? No telling why, but people are > nervous about forever even without the?burdens of disease. > > ? > > If all sounds fresh, so perhaps in time, your son will be more active and > more open to the idea of meeting new people.? Seven years is a long time, > but he has lots of days and years ahead for more adventures!? Perhaps he > will want to just take some time to adjust to the new reality and then move > forward.? It sound like a very emotional and stressful couple of years.? A > vacation may be in order!!! > > ? > > Lots of single?folks on cruises these days.? Maybe a little sun and fun > will bring back some hope. > > ? > > Good luck, and know that lots of us have to fight to maintain hope to find > a life long love. > > Peace, > > Rhonda > > [ ] Coping when relationships go wrong > > I am a new member. Apologies for wading in with a heavy topic at the > > outset but i simply don't know where to turn. My son is 26 and > > diagnosed with CML and AML in 2006. STC in May 07. GvHD since sept 07 > > but coping quite well. Until this week when his fiancee left him and > > called off their wedding scheduled for 2nd August. They were together > > for 7 years. She was fantastic throughout the early stages of illness > > and transplant. He proposed on Christmas eve and she seemed truly > > happy to be getting married. then the bombshell. My son is > > distraughtas he sees no future at all now where once he had some hope. > > I have only come across stories where love has seen couples through > > adversity and never ones where one of the couple cannot hack the new > > future. Has anyone one else had this happen to them or a loved one? > > Is there the possibility of a future for him or is he correct when he > > says how bleak it all is? The normal phrases about fish in the sea sre > > redundant - he is disabled now. he can't father children and his life > > span is truncated. That can't be it though can it? Can it? I'd love > > to hear from anyone who can offer a glimmer of a chance.. Many thanks > > for your time > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted April 7, 2008 Thanks Ed , Take care;Eva From: Edgardo Sent: Sunday, April 06, 2008 12:06 AM Subject: [ ] Hello Hello Eva, I was diagnosed with cml this year the 9th of january. Took hydrea for one month and then started on glivec on february. The symptoms I had are pretty much similar to the ones you have now and I think everybody does to some extent at the beginning with glivec. The meds for bone pain that I use is Ibuprofen, never tylenol because it makes more work for my liver. Also taking a bath with hot water helps ( told me that, I tried and it worked! ) For muscle pain I used a muscle rub. Remember that rest is the best med, so do it as much as you can. You should keep writing if something bothers you, this is an excellent group and we are here to help. Have a nice weekend. Ed Eva <evaob365@...> wrote: Hi Everyone , It is day 3 on Gleevec and since Thursday afternoon , not even 24 hours after starting my Gleevec I have unbelievable muscle spasms in my left shoulder blade up into my neck and aprox where my spleen is . I have been put on Tylenol 3 and told it is just a side effect. I missed work on Friday and there is no sign of this letting up . I am hoping for a miracle by Monday morning because I cannot afford any more time off work. I just started my job 3 days before dx, I am afraid they are going to fire me for too much time off. If any one has experienced the same thing and can offer any suggestions no matter how wild I am willing to try just about anything to stop the spasms and pain before Monday. Thanks take care ; Eva From: Terry Dailey Sent: Saturday, April 05, 2008 1:01 PM Subject: Re: [ ] Coping when relationships go wrong I am so sorry for your son. I myself went through a similar situation when I was first dxed in April of 04. Long story short my wife left me shortly afterwards and I was very devastated. In all honesty I will never be the same again. In fact I am now in the process of getting divorced again, but this is by my choice and another story. I can tell you from experience how things may go with your son. First thing....Be very leery and steer him clear from meeting anyone off the internet. I had a few women that wanted to date me because they knew I get monthly pain meds, been taken for over a grand in cash. This may not happen to him once he decides to try and date again but just keep an eye out for him. He will not see it, or will be in denial. It will take him a while to get over this, but he will. Now I only have CML so my condition does not sound as severe as your son's but he very well may pull himself out of it. One thing he may do is kinda lose his judgement in regards toward what sort of woman he will date. I am not sure of his diagnoses, or the types of treatments he is receiving, so I really cannot say in all honesty how long he will be down. In my case it was around 6 months, and then I put up personal ads. I tried different approaches as far as when I would tell someone about my disease. Some I would tell right away, and others I would wait to see if things turned into more than a couple of dates. I have found it really did not make a difference in the long run. I can very much relate to the sort of pain he is feeling right now. What makes it worse I think is the fact that his fiancee at first was promising him the world and then she dumps him, all the while he is asking her if she is okay with everything, and I am sure she told him she was. It makes a person feel broken in my opinion. In fact it does actually break you. So be supportive of him dating but do not push things, he will have to do this when he is ready. As I said before after a few months he may lose it a bit in his standards, won't look for obvious warning signs. An example, I continued to pursue a relationship with a woman despite the fact I knew in she had spent 3 months in jail for selling drugs, was abusing her meds(She had Crones Disease), and let's just leave it at she had allot of other things in her past and present behavior that would have told a normal thinking man DANGER, but I denied it all and things turned out bad. I wish I could say everything will be okay but honestly no one can know what is going to happen. With his age I am hoping he will bounce back and honestly think he will. If his treatments have caused him to lose his hair, then once it grows back that will hopefully help his self esteem a bit. He very well may not find the " right " woman, but then again fate has a funny way of doing things, so he could just as easy find someone very quickly. I haven't personally found the right person, and at this point in my life I am tired of looking.( I am 41) I have basically consigned myself to the fact that I do not need someone in my life to be happy, and may never find any sort of real love again. It makes it a bit easy for me because I was blessed enough to have my son Nick. He is 14 and I can concentrate on raising him. I honestly hurt for your son, I know how he is feeling right now. I wish there was an easy answer. Everything effects everyone differently. He may start spending allot more time on the net. I know this may sound silly but what has gotten me through a very rough period was playing online PC games. Any sort of human contact is good for him right now even if it is just playing a game. Has he withdrawn allot? I will do what I can or talk with you more as things progress if you need me. There is a good chance he will have a another love in his life, but as with everything nothing is certain. Please take care, just be there for him when he wants to talk, but don't push him if he has sort of become withdrawn. I am not a doctor or anything but perhaps short term therapy might help? Anyway if there is anything I can so let me know. I have all the hope in the world for your son to bounce back and find himself a woman that is worthy of his love. Terry 41 years old Dxed April 04 On Sat, Apr 5, 2008 at 9:28 AM, <Sionito@...> wrote: > Wow.? That is a tough blow to such a young life. > > ? > > There is always hope.? It may seem bleak, but you just never know what may > happen. > > ? > > Your son and his ex are young, dispite disease, and you never know how > things will end up.? Majo illnesses cause everyone to rethink their > situations.? She may not have felt she could do this before, but now as > things are more seriously moving forward (marriage) she may have really done > some hard thinking and changed her mind.? No telling why, but people are > nervous about forever even without the?burdens of disease. > > ? > > If all sounds fresh, so perhaps in time, your son will be more active and > more open to the idea of meeting new people.? Seven years is a long time, > but he has lots of days and years ahead for more adventures!? Perhaps he > will want to just take some time to adjust to the new reality and then move > forward.? It sound like a very emotional and stressful couple of years.? A > vacation may be in order!!! > > ? > > Lots of single?folks on cruises these days.? Maybe a little sun and fun > will bring back some hope. > > ? > > Good luck, and know that lots of us have to fight to maintain hope to find > a life long love. > > Peace, > > Rhonda > > [ ] Coping when relationships go wrong > > I am a new member. Apologies for wading in with a heavy topic at the > > outset but i simply don't know where to turn. My son is 26 and > > diagnosed with CML and AML in 2006. STC in May 07. GvHD since sept 07 > > but coping quite well. Until this week when his fiancee left him and > > called off their wedding scheduled for 2nd August. They were together > > for 7 years. She was fantastic throughout the early stages of illness > > and transplant. He proposed on Christmas eve and she seemed truly > > happy to be getting married. then the bombshell. My son is > > distraughtas he sees no future at all now where once he had some hope. > > I have only come across stories where love has seen couples through > > adversity and never ones where one of the couple cannot hack the new > > future. Has anyone one else had this happen to them or a loved one? > > Is there the possibility of a future for him or is he correct when he > > says how bleak it all is? The normal phrases about fish in the sea sre > > redundant - he is disabled now. he can't father children and his life > > span is truncated. That can't be it though can it? Can it? I'd love > > to hear from anyone who can offer a glimmer of a chance.. Many thanks > > for your time > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 30, 2008 Hi , Welcome to the group. It is a great family here. P.S. is number 667 in the Zero Club Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.5 log reduction Jan/08 3.6 log reduction Apr/08 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: [mailto: ] On Behalf Of Sent: May 30, 2008 2:07 AM Subject: [ ] Hello Well I am new to this group but not new to CML. I was dx'ed five years ago this October. I am not going to say much right now, I am tired and it is late but I just wanted to say Hello. Lottie invited me in it will be nice to talk to people again who are going thru the same thing as myself. I havent done that in quite some time. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 30, 2008 Hi , welcome to the family, I'm pretty new to it too, thanks to Lottie...Bobby <katybug45@...> wrote: Well I am new to this group but not new to CML. I was dx'ed five years ago this October. I am not going to say much right now, I am tired and it is late but I just wanted to say Hello. Lottie invited me in it will be nice to talk to people again who are going thru the same thing as myself. I havent done that in quite some time. a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 30, 2008 Oops . is # 677 Zavie _____ From: [mailto: ] On Behalf Of Zavie miller Sent: May 30, 2008 8:28 AM Subject: RE: [ ] Hello Hi , Welcome to the group. It is a great family here. P.S. is number 667 in the Zero Club Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.5 log reduction Jan/08 3.6 log reduction Apr/08 e-mail: zmillersympatico (DOT) <mailto:zmiller%40sympatico.ca> ca Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Sent: May 30, 2008 2:07 AM groups (DOT) <mailto:%40> com Subject: [ ] Hello Well I am new to this group but not new to CML. I was dx'ed five years ago this October. I am not going to say much right now, I am tired and it is late but I just wanted to say Hello. Lottie invited me in it will be nice to talk to people again who are going thru the same thing as myself. I havent done that in quite some time. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 1, 2008 what is this?? Suzi List Owner health/ http://360./suziesgoats What is a weed? A plant whose virtues have not yet been discovered. From: <deuteronomy2929@...>Subject: Hello"Heidi Burke" <hburke76@...>, "carolG" <cgiambri@...>, "Connecting Colorado" <coloradoworkforcecenter@...>, deuteronomy2929@..., " Doerner" <ejdoerner@...>, " Doerner" <vecus28@...>, "Jon Gettings" <JGettings@...>, "Guido" <guido2008@...>, "Duane and Jacquee Hagans" <duanehagans@...>, , " Herren" <raherren@...>, " Hidalgo" <michael@...>, "Brittany Holzmann" <torreynerd@...>, "Luke Holzmann" <tomysky@...>, info@..., "Janet" <dragonhealing@...>, "Jen" <jc_angel77@...>, "" <deuteronomy2929@...>, "Hazel " <hazelj@...>, "Josh" <e.corvis@...>, "Mandy Lester" <mandylester@...>, "a Lindstrom" <zzintheredvw@...>, "Marilyn" <mrsmimi2001@...>, "McKoy" <jesusrocks73@...>, "OnlyYbarras" <mrsmimi2001@...>, "Gayla " <aeranch@...>, "Suzi" <suziesgoats@...>, "" <freshtrav97@...>, "Virginia" <vidhagans@...>, " " <jamesindenver@...>, " Y" <greywolf52929@...>, " Ybarra" <johnybarra06@...>Date: Monday, June 30, 2008, 4:30 PMWELCOM TO BE THE MEMBER OF brandshop68.com We are an electronic products wholesale .Our products are of high quality and low price. If you want to do business , we can offer you the most reasonable discount to make you get more profits. We are expecting for your business. Please visit our website: http://www.brandshop68.com MSN :brandshop998@... E-mail : brandshop68@... ------------------------------------ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 1, 2008 This sucks! It appears that my email got infected yesterday. I didn't send it, sorry. Once I saw it, I ran both Norton (was on the computer when I got it) and MacAfee (got it with ComCast bundled internet/phone/cable), neither found anything. Then ran AVG free antivirus, and there it was. It doesn't appear harmful, just irritating as all heck! From: <deuteronomy2929>Subject: [HAWK_Health_ Awareness] Hello"Heidi Burke" <hburke76gmail (DOT) com>, "carolG" <cgiambri (DOT) com>, "Connecting Colorado" <coloradoworkforcece ntercsd (DOT) net>, deuteronomy2929@ gmail.com, " Doerner" <ejdoerner (DOT) com>, " Doerner" <vecus28 (DOT) com>, "Jon Gettings" <JGettings@denrescue .org>, "Guido" <guido2008comcast (DOT) net>, "Duane and Jacquee Hagans" <duanehagans@ sbcglobal. net>, hawk_health_ awareness, " Herren" <raherrencox (DOT) net>, " Hidalgo" <michael@denverchurc h.org>, "Brittany Holzmann" <torreynerdgmail (DOT) com>, "Luke Holzmann" <tomyskygmail (DOT) com>, infodenverchurch (DOT) org, "Janet" <dragonhealing@ comcast.net>, "Jen" <jc_angel77 (DOT) com>, "" <deuteronomy2929>, "Hazel " <hazeljsnowcrest (DOT) net>, "Josh" <e.corvisgmail (DOT) com>, "Mandy Lester" <mandylester@ hotmail.com>, "a Lindstrom" <zzintheredvw>, "Marilyn" <mrsmimi2001>, "McKoy" <jesusrocks73@ hotmail.com>, "OnlyYbarras" <mrsmimi2001@ comcast.net>, "Gayla " <aeranchgmail (DOT) com>, "Suzi" <suziesgoats>, "" <freshtrav97>, "Virginia" <vidhaganshotmail (DOT) com>, " " <jamesindenver@ gmail.com>, " Y" <greywolf52929>, " Ybarra" <johnybarra06@ comcast.net>Date: Monday, June 30, 2008, 4:30 PMWELCOM TO BE THE MEMBER OF brandshop68. com We are an electronic products wholesale .Our products are of high quality and low price. If you want to do business , we can offer you the most reasonable discount to make you get more profits. We are expecting for your business. Please visit our website: http://www.brandsho p68.com MSN :brandshop998@ hotmail.com E-mail : brandshop68@ .cn ------------ --------- --------- ------ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 1, 2008 Me, too! All I got from the link was a blank page. ???Ev what is this?? Suzi List Owner health/ http://360./suziesgoats What is a weed? A plant whose virtues have not yet been discovered. From: <deuteronomy2929@...>Subject: Hello"Heidi Burke" <hburke76@...>, "carolG" <cgiambri@...>, "Connecting Colorado" <coloradoworkforcecenter@...>, deuteronomy2929@..., " Doerner" <ejdoerner@...>, " Doerner" <vecus28@...>, "Jon Gettings" <JGettings@...>, "Guido" <guido2008@...>, "Duane and Jacquee Hagans" <duanehagans@...>, , " Herren" <raherren@...>, " Hidalgo" <michael@...>, "Brittany Holzmann" <torreynerd@...>, "Luke Holzmann" <tomysky@...>, info@..., "Janet" <dragonhealing@...>, "Jen" <jc_angel77@...>, "" <deuteronomy2929@...>, "Hazel " <hazelj@...>, "Josh" <e.corvis@...>, "Mandy Lester" <mandylester@...>, "a Lindstrom" <zzintheredvw@...>, "Marilyn" <mrsmimi2001@...>, "McKoy" <jesusrocks73@...>, "OnlyYbarras" <mrsmimi2001@...>, "Gayla " <aeranch@...>, "Suzi" <suziesgoats@...>, "" <freshtrav97@...>, "Virginia" <vidhagans@...>, " " <jamesindenver@...>, " Y" <greywolf52929@...>, " Ybarra" <johnybarra06@...>Date: Monday, June 30, 2008, 4:30 PMWELCOM TO BE THE MEMBER OF brandshop68.com We are an electronic products wholesale .Our products are of high quality and low price. If you want to do business , we can offer you the most reasonable discount to make you get more profits. We are expecting for your business. Please visit our website: http://www.brandshop68.com MSN :brandshop998@... E-mail : brandshop68@... ------------------------------------ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 1, 2008 , set AVG to scan all incoming and outgoing mail automatically; you really don’t need Mac or Norton for that. Janet From: health [mailto:health ] On Behalf Of Sent: Tuesday, July 01, 2008 3:37 AM health Subject: Re: Hello This sucks! It appears that my email got infected yesterday. I didn't send it, sorry. Once I saw it, I ran both Norton (was on the computer when I got it) and MacAfee (got it with ComCast bundled internet/phone/cable), neither found anything. Then ran AVG free antivirus, and there it was. It doesn't appear harmful, just irritating as all heck! --- On Mon, 6/30/08, Suzanne <suziesgoats > wrote: From: Suzanne <suziesgoats > Subject: Re: Hello health Date: Monday, June 30, 2008, 11:37 PM what is this?? Suzi List Owner http://health. groups.. com/group/ HAWK_Health_ Awareness/ http://360.. com/suziesgoats What is a weed? A plant whose virtues have not yet been discovered. --- On Mon, 6/30/08, <deuteronomy2929> wrote: From: <deuteronomy2929> Subject: [HAWK_Health_ Awareness] Hello " Heidi Burke " <hburke76gmail (DOT) com>, " carolG " <cgiambri (DOT) com>, " Connecting Colorado " <coloradoworkforcece ntercsd (DOT) net>, deuteronomy2929@ gmail.com, " Doerner " <ejdoerner (DOT) com>, " Doerner " <vecus28 (DOT) com>, " Jon Gettings " <JGettings@denrescue .org>, " Guido " <guido2008comcast (DOT) net>, " Duane and Jacquee Hagans " <duanehagans@ sbcglobal. net>, hawk_health_ awareness, " Herren " <raherrencox (DOT) net>, " Hidalgo " <michael@denverchurc h.org>, " Brittany Holzmann " <torreynerdgmail (DOT) com>, " Luke Holzmann " <tomyskygmail (DOT) com>, infodenverchurch (DOT) org, " Janet " <dragonhealing@ comcast.net>, " Jen " <jc_angel77 (DOT) com>, " " <deuteronomy2929>, " Hazel " <hazeljsnowcrest (DOT) net>, " Josh " <e.corvisgmail (DOT) com>, " Mandy Lester " <mandylester@ hotmail.com>, " a Lindstrom " <zzintheredvw@ >, " Marilyn " <mrsmimi2001>, " McKoy " <jesusrocks73@ hotmail.com>, " OnlyYbarras " <mrsmimi2001@ comcast.net>, " Gayla " <aeranchgmail (DOT) com>, " Suzi " <suziesgoats@ >, " " <freshtrav97>, " Virginia " <vidhaganshotmail (DOT) com>, " " <jamesindenver@ gmail.com>, " Y " <greywolf52929>, " Ybarra " <johnybarra06@ comcast.net> Date: Monday, June 30, 2008, 4:30 PM WELCOM TO BE THE MEMBER OF brandshop68. com We are an electronic products wholesale .Our products are of high quality andlow price. If you want to do business , we can offer you the most reasonablediscount to make you get more profits. We are expecting for your business. Please visit our website: http://www.brandsho p68.com MSN :brandshop998@ hotmail.com E-mail : brandshop68@ .cn ------------ --------- --------- ------ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 2, 2008 Yup, that's what I did. From: <deuteronomy2929>Subject: [HAWK_Health_ Awareness] Hello"Heidi Burke" <hburke76gmail (DOT) com>, "carolG" <cgiambri (DOT) com>, "Connecting Colorado" <coloradoworkforcece ntercsd (DOT) net>, deuteronomy2929@ gmail.com, " Doerner" <ejdoerner (DOT) com>, " Doerner" <vecus28 (DOT) com>, "Jon Gettings" <JGettings@denrescue .org>, "Guido" <guido2008comcast (DOT) net>, "Duane and Jacquee Hagans" <duanehagans@ sbcglobal. net>, hawk_health_ awareness, " Herren" <raherrencox (DOT) net>, " Hidalgo" <michael@denverchurc h.org>, "Brittany Holzmann" <torreynerdgmail (DOT) com>, "Luke Holzmann" <tomyskygmail (DOT) com>, infodenverchurch (DOT) org, "Janet" <dragonhealing@ comcast.net>, "Jen" <jc_angel77 (DOT) com>, "" <deuteronomy2929@ >, "Hazel " <hazeljsnowcrest (DOT) net>, "Josh" <e.corvisgmail (DOT) com>, "Mandy Lester" <mandylester@ hotmail.com>, "a Lindstrom" <zzintheredvw>, "Marilyn" <mrsmimi2001>, "McKoy" <jesusrocks73@ hotmail.com>, "OnlyYbarras" <mrsmimi2001@ comcast.net>, "Gayla " <aeranchgmail (DOT) com>, "Suzi" <suziesgoats>, "" <freshtrav97>, "Virginia" <vidhaganshotmail (DOT) com>, " " <jamesindenver@ gmail.com>, " Y" <greywolf52929>, " Ybarra" <johnybarra06@ comcast.net>Date: Monday, June 30, 2008, 4:30 PMWELCOM TO BE THE MEMBER OF brandshop68. com We are an electronic products wholesale .Our products are of high quality andlow price. If you want to do business , we can offer you the most reasonablediscount to make you get more profits. We are expecting for your business. Please visit our website: http://www.brandsho p68.com MSN :brandshop998@ hotmail.com E-mail : brandshop68@ .cn ------------ --------- --------- ------ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 16, 2008 Welcome. This group is extremely supportive. I have RA/fibromyalgia for the past 7 years. Just know you don't have to go through it alone. > > I am new to the group. I was diagnosed with rheumatoid athritis just a > few hours ago. I'm here to make friends who understand and offer moral > support. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 17, 2008 Southernangel, Welcome to the group. You are in the right place to get advice, have questions answered, or just to vent. We are here for you, this group is wonderful. I have learned so much since joining. Heidi M On Wed, Jul 16, 2008 at 6:38 PM, <man_u8@...> wrote: > Welcome. This group is extremely supportive. I have RA/fibromyalgia > for the past 7 years. Just know you don't have to go through it alone. > > > > > > > > I am new to the group. I was diagnosed with rheumatoid athritis just > a > > few hours ago. I'm here to make friends who understand and offer > moral > > support. > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 17, 2008 Thank you guys. My biggest problem right now is dealing until the medicine starts working and dealing with the shock of it. I have an 8 year old daughter and it scares me that I may become limited in what I can do with her. Hopefully, this will progress slowly enough that it won't be a problem. But then I think about grandchildren and everything I'd want to do with them. I know I am thinking a long time in the future. I suppose it's normal though? > > > > > > I am new to the group. I was diagnosed with rheumatoid athritis just > > a > > > few hours ago. I'm here to make friends who understand and offer > > moral > > > support. > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 17, 2008 Once I was diagnosed and on meds (I had three sons that needed me at the time) I was almost back to normal. I do everything, I even just started pilates to keep limber, losing some weight would help alot though too, just so hard for me. When I first went to my rheumy I could do nothing, now you wouldn't even know I have RA. Yes, there is some joint that is a little painful every day but I just look past it and take an over counter pain pill if it's really bad. Good luck to you. [ ] Re: Hello Thank you guys. My biggest problem right now is dealing until the medicine starts working and dealing with the shock of it. I have an 8 year old daughter and it scares me that I may become limited in what I can do with her. Hopefully, this will progress slowly enough that it won't be a problem. But then I think about grandchildren and everything I'd want to do with them. I know I am thinking a long time in the future. I suppose it's normal though? > > > > > > I am new to the group. I was diagnosed with rheumatoid athritis just > > a > > > few hours ago. I'm here to make friends who understand and offer > > moral > > > support. > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 17, 2008 , would you mind saying what meds seemed to help you the most? I am still floundering and now my doc wants me to do Remicade. Thanks a lot a Re: [ ] Re: Hello ._,_.___ Messages in this topic (186) Reply (via web post) | Start a new topic Messages | Files | Photos | Database | Polls | Calendar Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 17, 2008 a, I started out 9 years ago on 3 mtx a week, folic 2x a day, I added Remicade last July because my doc said it was less toxic on the body. Well, after each infustion (except 1) I got an infection that I needed a antibiotic from the primary. So, after switching to a new rheumy (same practice, different doc, long story) we are dropping the Remicade and I'm probably going to go to Orencia with the plan to be able to drop the mtx if it works. I hope this hleps you. in PA Re: [ ] Re: Hello ._,_.___ Messages in this topic (186) Reply (via web post) | Start a new topic Messages | Files | Photos | Database | Polls | Calendar Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 17, 2008 Thank you very much . Im going to research Orencia a Re: [ ] Re: Hello ._,_.___ Messages in this topic (186) Reply (via web post) | Start a new topic Messages | Files | Photos | Database | Polls | Calendar Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 17, 2008 WELCOME SOUTHERNANGELL, this ra group is awesome! gina is an angel herself. if there's something we don't understand or don't know she tries to find the answer. SHE'S AWESOME!! i have an 11 yr.old i know how u feel, but u know what they learn to deal & my alyssa is an ANGEL in disguise!!! alyssa is a GREAT lil helper & she is more compassionate,loving,caring, & considerate towards people who r different. usally kids now a days r so ignorant!!!!! when i was at orientation with alyssa,she's entering middle school the kids were so rude. as i was walking down the ramp the boys were blocking it, i said excuse me one boy replied, YOU'RE EXCUSED! i just turned around & looked at him then walked away.. when i was getting into the car that same boy who was with the other boys, came to me & to my dismay APOLOGIZED!! so i believe it's up to the parents to teach thier kids about how everyone not being the same!! i to think every single day what if i get worse & i can't handle or care for alyssa but then i STOP & THINK, alyssa will LOVE me no matter how i am!!! yes i have limitations but where there's a will there's a way & i live that MOTTO every day!!! she is my " MIRACLE " BABY so i don't ever question god or anything else!! i leave it up to god cuz he has a PLAN for each & everyone of us... so try not to WORRY too much & take one day at a time cuz that's all we can really do. LIVE EACH DAY TO THE FULLEST!! god bless,melyndagamez 7/17/08 [ ] Re: Hello  Thank you guys. My biggest problem right now is dealing until the  medicine starts working and dealing with the shock of it. I have an  8 year old daughter and it scares me that I may become limited in  what I can do with her. Hopefully, this will progress slowly enough  that it won't be a problem. But then I think about grandchildren  and everything I'd want to do with them. I know I am thinking a  long time in the future. I suppose it's normal though?   > > >  > > > I am new to the group. I was diagnosed with rheumatoid  athritis just  > > a  > > > few hours ago. I'm here to make friends who understand and  offer  > > moral  > > > support.  > > >  > >  > >  > >  >  >  > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 17, 2008 a, not everyone has a problem with Remicade, don't count it out because of my experience. Re: [ ] Re: Hello ._,_.___ Messages in this topic (186) Reply (via web post) | Start a new topic Messages | Files | Photos | Database | Polls | Calendar Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 17, 2008 Southernangell, I know its hard to hink you won't be able to do things with the grankids but stop right now, put down things you want to do with them, and map out a plan. If you want to take them swimming do it but be able to spend time with them. HeidiM On Thu, Jul 17, 2008 at 1:44 PM, southernangell <southernangell@...> wrote: > Thank you guys. My biggest problem right now is dealing until the > medicine starts working and dealing with the shock of it. I have an > 8 year old daughter and it scares me that I may become limited in > what I can do with her. Hopefully, this will progress slowly enough > that it won't be a problem. But then I think about grandchildren > and everything I'd want to do with them. I know I am thinking a > long time in the future. I suppose it's normal though? > > > > > > > > > > I am new to the group. I was diagnosed with rheumatoid > athritis just > > > a > > > > few hours ago. I'm here to make friends who understand and > offer > > > moral > > > > support. > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 18, 2008 Hi Southernangell, Sorry about your diagnosis. You are doing the right thing by arming yourself with as much information as you can get. Life is not over by any means. You will learn from many of the members that some still work, run and do most anything that they enjoy. We just learn to work around our RA. Everyone is different so no text book or case study can cover that. You most valuable weapon in this battle is optimism; don't loose it. Hang in Lady, I promise it isn't the end. Welcome to the group. Shirley > > > > > > > > > > > I am new to the group. I was diagnosed with rheumatoid > athritis just > > > a > > > > few hours ago. I'm here to make friends who understand and > offer > > > moral > > > > support. > > > > > > > > > > > > > > > > > > > Quote Share this post Link to post Share on other sites
