Guest guest Report post Posted October 12, 2007 Thanks for the info Dave. Debbie Dave Shelden <wholehealthawareness@...> wrote: A cyst could cause that kind of pain if putting pressure on either nerve or blood flow but this does not mean that is what is causing the pain. While a cyst on the liver can be relatively harmless, it is an abnormal mass and would indicate a predisposition to things like gall stones, fatty lipomas, kidney stones, etc. If they cannot determine from the ultrasounds and your past imaging of the cyst that the spot they have found are one and the same, They are going to want the CT. Good idea. -D ----- Original Message ----- From: craft_scents<mailto:craft_scents@...> gallstones <mailto:gallstones > Sent: Thursday, October 11, 2007 3:48 PM Subject: Hello Hello Well i got my ultrasound test back and my gallbladder is fine, they did find a spot on my liver and i reminded my doctor that i do have a cysts on my liver that i have probably had since birth so he was going to go over the two ultrasounds to see if that is what it is, but i have alot of pain and right shoulder pain which he said i could have because of my liver, but would cysts cause pain like that? He wanted me to get a ct scan but he said he would check the ultrasounds first so i will call him in the morning..Any take on this? Debbie Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 12, 2007 Welcome, Ross! I'm glad you found us! This is a group of great people - mostly other parents who are willing to share what they know - a great support group! They've helped me a lot and I hope they are able to help you, too. My son, Bobby, is 8 years old, diagnosed with autism at age 3. Chris > > Hello friends, my name is Ross Vizzini. I live in Broadview Heights with my wife and four children. My yongest son Marco, who is four was diagnosed with ASD on June 6th 2007. Thank you for accepting us into your group. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 12, 2007 Welcome Ross! I live in Hudson and have two kids with the oldest dx'd w/ ASD and hyperlexia. This is a wonderful group - you will get a lot of info and support here. Becky ----- Original Message ----- From: vizzinib Sent: 10/11/2007 12:12:10 PM Subject: [ ] hello Hello friends, my name is Ross Vizzini. I live in Broadview Heights with my wife and four children. My yongest son Marco, who is four was diagnosed with ASD on June 6th 2007. Thank you for accepting us into your group. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 12, 2007 Hey, Becky! It's me, Christie, down the street! I didn't know you were in this group. Ha! It's been very informative...nice to hear all the input. By the way, Drew has just recently been mainstreamed into a regular preschool now. Amazing! It's going well so far. I haven't mentioned to the teachers that he has ASD and hyperlexia yet, and I don't think they'll ever figure it out. Well, they'll discover that he can read... I hope you're doing well. I know you're loving that new dog of yours! He's really cute, and I hope your kids are enjoying him too. I'll see ya soon, Christie Becky wrote: > > Welcome Ross! I live in Hudson and have two kids with the oldest dx'd > w/ ASD and hyperlexia. This is a wonderful group - you will get a lot > of info and support here. > Becky > > ----- Original Message ----- > *From:* vizzinib <mailto:vizzinib@...> > ** <mailto: > > *Sent:* 10/11/2007 12:12:10 PM > *Subject:* [ ] hello > > Hello friends, my name is Ross Vizzini. I live in Broadview > Heights with my wife and four children. My yongest son > Marco, who is four was diagnosed with ASD on June 6th 2007. Thank > you for accepting us into your group. > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 12, 2007 Hi Christie! Small world! LOL! This is one of the groups I told you about last summer. What school is Drew in? Is he still on an IEP? Becky > [Original Message] > From: Christie Funderburk <sunshinefun@...> > < > > Date: 10/11/2007 11:47:18 PM > Subject: Re: [ ] hello > > Hey, Becky! > > It's me, Christie, down the street! I didn't know you were in this > group. Ha! It's been very informative...nice to hear all the input. By > the way, Drew has just recently been mainstreamed into a regular > preschool now. Amazing! It's going well so far. I haven't mentioned to > the teachers that he has ASD and hyperlexia yet, and I don't think > they'll ever figure it out. Well, they'll discover that he can read... > > I hope you're doing well. I know you're loving that new dog of yours! > He's really cute, and I hope your kids are enjoying him too. > > I'll see ya soon, > Christie > > > > Becky wrote: > > > > Welcome Ross! I live in Hudson and have two kids with the oldest dx'd > > w/ ASD and hyperlexia. This is a wonderful group - you will get a lot > > of info and support here. > > Becky > > > > ----- Original Message ----- > > *From:* vizzinib <mailto:vizzinib@...> > > ** <mailto: > > > *Sent:* 10/11/2007 12:12:10 PM > > *Subject:* [ ] hello > > > > Hello friends, my name is Ross Vizzini. I live in Broadview > > Heights with my wife and four children. My yongest son > > Marco, who is four was diagnosed with ASD on June 6th 2007. Thank > > you for accepting us into your group. > > > > > > > > > > > > > > *Important Notes and links for Databases: > > ~~~ ~~~ ~~~ ~~~ > To Lurk; is to Learn. To participate; is to help others learn. Share what you know. > > Let me know if you have any concerns or needs - > - n DMHelmick12@... > > ~~~ ~~~ ~~~ ~~~ > ABA Contact List: > > This list is provided for both parents seeking ABA and ABA personnel to list their contact information. This list is not for commercial or salicitation purposes. > > Parents seeking ABA personnel must ask questions or interview desired personnel as this list is only a reference and not an approved provider list. > > * You’ll need to sign into after clicking on a link. > To see the list: > /database?method=reportRows & tbl =5 & sortBy=1 & sortDir=down & startAt= & prntRpt=1 > > ABA personnel add contact info: /database?method=addRecord & tbl= 5 > > To Edit your contact Info: > > /database?method=reportRows & tbl =5 > > ~~~ ~~~ ~~~ ~~~ > > Help raise money for ASO (Autism Society of Akron, Ohio). Just by using a charity based search engine like Goodsearch.com Search for anything you need info on. Only 2 steps: 1. Just go to www.goodsearch.com 2. scroll down and type in Autism Society of Ohio and hit verify. Then type in your search word. heres the link: http://www.goodsearch.com > > ~~~ ~~~ ~~~ ~~~ ~~~ > Our Parent Contact list - see a printable list or add your contact info: > > See the printable list: /database?method=reportRows & tbl =2 & sortBy=1 & sortDir=down & startAt= & prntRpt=1 > > Add your contact info here: /database?method=addRecord & tbl= 2 > > ~~~ ~~~ ~~~ ~~~ ~~~ > is a networking and support group > of " Parent to Parent for Autism " . > Website: http://hometown.aol.com/parentschat/homepage.html > > ~~~ ~~~ ~~~ ~~ > > See More info below for this group's other Links. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 12, 2007 Well my doctor told me that the last ultrasound showing my cysts on my liver is different from this new ultrasound, it is not in the sam eplace as my cysts. Het thinks it could be a hemangioma and i am scheuled for a ct scan on Monday. Can anything be done to treat a hemangioma naturally? I still have some pain. Debbie Dave Shelden <wholehealthawareness@...> wrote: A cyst could cause that kind of pain if putting pressure on either nerve or blood flow but this does not mean that is what is causing the pain. While a cyst on the liver can be relatively harmless, it is an abnormal mass and would indicate a predisposition to things like gall stones, fatty lipomas, kidney stones, etc. If they cannot determine from the ultrasounds and your past imaging of the cyst that the spot they have found are one and the same, They are going to want the CT. Good idea. -D ----- Original Message ----- From: craft_scents<mailto:craft_scents@...> gallstones <mailto:gallstones > Sent: Thursday, October 11, 2007 3:48 PM Subject: Hello Hello Well i got my ultrasound test back and my gallbladder is fine, they did find a spot on my liver and i reminded my doctor that i do have a cysts on my liver that i have probably had since birth so he was going to go over the two ultrasounds to see if that is what it is, but i have alot of pain and right shoulder pain which he said i could have because of my liver, but would cysts cause pain like that? He wanted me to get a ct scan but he said he would check the ultrasounds first so i will call him in the morning..Any take on this? Debbie Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 12, 2007 Hemangiomas on the liver are very rarely a problem except large ones in infants. Doubtful your pain is from one. You probably have gallbladder pain from congestion. Since the spot is different from your cyst it is a very good idea to have the CT. All the best, -Dave ----- Original Message ----- From: Deborah Lessard<mailto:craft_scents@...> gallstones <mailto:gallstones > Sent: Friday, October 12, 2007 10:42 AM Subject: Re: Hello Well my doctor told me that the last ultrasound showing my cysts on my liver is different from this new ultrasound, it is not in the sam eplace as my cysts. Het thinks it could be a hemangioma and i am scheuled for a ct scan on Monday. Can anything be done to treat a hemangioma naturally? I still have some pain. Debbie Dave Shelden <wholehealthawareness@...<mailto:wholehealthawareness@...>> wrote: A cyst could cause that kind of pain if putting pressure on either nerve or blood flow but this does not mean that is what is causing the pain. While a cyst on the liver can be relatively harmless, it is an abnormal mass and would indicate a predisposition to things like gall stones, fatty lipomas, kidney stones, etc. If they cannot determine from the ultrasounds and your past imaging of the cyst that the spot they have found are one and the same, They are going to want the CT. Good idea. -D ----- Original Message ----- From: craft_scents<mailto:craft_scents@...<mailto:craft_scents@...>> To: gallstones <mailto:gallstones ><mailto:gallstones@\ <mailto:gallstones >> Sent: Thursday, October 11, 2007 3:48 PM Subject: Hello Hello Well i got my ultrasound test back and my gallbladder is fine, they did find a spot on my liver and i reminded my doctor that i do have a cysts on my liver that i have probably had since birth so he was going to go over the two ultrasounds to see if that is what it is, but i have alot of pain and right shoulder pain which he said i could have because of my liver, but would cysts cause pain like that? He wanted me to get a ct scan but he said he would check the ultrasounds first so i will call him in the morning..Any take on this? Debbie Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 13, 2007 Becky ~ Yes, he's still on an IEP...in fact, our annual meeting is next week. Drew was at Whole Child Therapy, yet they have closed. So, we'll have to figure out what to do now. ~ Christie Becky wrote: > Hi Christie! Small world! LOL! This is one of the groups I told you about > last summer. What school is Drew in? Is he still on an IEP? > Becky > > > >> [Original Message] >> From: Christie Funderburk <sunshinefun@...> >> < > >> Date: 10/11/2007 11:47:18 PM >> Subject: Re: [ ] hello >> >> Hey, Becky! >> >> It's me, Christie, down the street! I didn't know you were in this >> group. Ha! It's been very informative...nice to hear all the input. By >> the way, Drew has just recently been mainstreamed into a regular >> preschool now. Amazing! It's going well so far. I haven't mentioned to >> the teachers that he has ASD and hyperlexia yet, and I don't think >> they'll ever figure it out. Well, they'll discover that he can read... >> >> I hope you're doing well. I know you're loving that new dog of yours! >> He's really cute, and I hope your kids are enjoying him too. >> >> I'll see ya soon, >> Christie >> >> >> >> Becky wrote: >> >>> Welcome Ross! I live in Hudson and have two kids with the oldest dx'd >>> w/ ASD and hyperlexia. This is a wonderful group - you will get a lot >>> of info and support here. >>> Becky >>> >>> ----- Original Message ----- >>> *From:* vizzinib <mailto:vizzinib@...> >>> ** <mailto: > >>> *Sent:* 10/11/2007 12:12:10 PM >>> *Subject:* [ ] hello >>> >>> Hello friends, my name is Ross Vizzini. I live in Broadview >>> Heights with my wife and four children. My yongest son >>> Marco, who is four was diagnosed with ASD on June 6th 2007. Thank >>> you for accepting us into your group. >>> >>> >>> >>> >>> >>> >> >> *Important Notes and links for Databases: >> >> ~~~ ~~~ ~~~ ~~~ >> To Lurk; is to Learn. To participate; is to help others learn. Share >> > what you know. > >> Let me know if you have any concerns or needs - >> - n DMHelmick12@... >> >> ~~~ ~~~ ~~~ ~~~ >> ABA Contact List: >> >> This list is provided for both parents seeking ABA and ABA personnel to >> > list their contact information. This list is not for commercial or > salicitation purposes. > >> Parents seeking ABA personnel must ask questions or interview desired >> > personnel as this list is only a reference and not an approved provider > list. > >> * You’ll need to sign into after clicking on a link. >> To see the list: >> >> > /database?method=reportRows & tbl > =5 & sortBy=1 & sortDir=down & startAt= & prntRpt=1 > >> ABA personnel add contact info: >> > /database?method=addRecord & tbl= > 5 > >> To Edit your contact Info: >> >> >> > /database?method=reportRows & tbl > =5 > >> ~~~ ~~~ ~~~ ~~~ >> >> Help raise money for ASO (Autism Society of Akron, Ohio). Just by using >> > a charity based search engine like Goodsearch.com Search for anything you > need info on. Only 2 steps: 1. Just go to www.goodsearch.com 2. scroll > down and type in Autism Society of Ohio and hit verify. Then type in your > search word. heres the link: http://www.goodsearch.com > >> ~~~ ~~~ ~~~ ~~~ ~~~ >> Our Parent Contact list - see a printable list or add your contact info: >> >> See the printable list: >> > /database?method=reportRows & tbl > =2 & sortBy=1 & sortDir=down & startAt= & prntRpt=1 > >> Add your contact info here: >> > /database?method=addRecord & tbl= > 2 > >> ~~~ ~~~ ~~~ ~~~ ~~~ >> is a networking and support group >> of " Parent to Parent for Autism " . >> Website: http://hometown.aol.com/parentschat/homepage.html >> >> ~~~ ~~~ ~~~ ~~ >> >> See More info below for this group's other Links. >> Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 18, 2007 Hi , Nice to meet you and welcome to our group! I was born in Canton and we moved from there when I was around the age of 11. My family lived close to the Canton/Akron airport area. My Father and brother still live there but now near Massilon. We have a few members out that way. Hope you can connect with a few people in the group. Check our Members contact list. You will find the link for the list at the bottom of every individual email that goes through the forum. Yours, n Moderator/ Parent to Parent for Autism. http://hometown.aol.com/parentschat/homepage.html > > Hello, > > I am new to this group, and wanted to introduce myself. My name is > . My husband and I have a three year old son, Corbin, who was > recently diagnosed with autism. We live in Canton, OH. He has > started preschool in our local school district through the county SKIP > program. I am excited to be a part of this group. Looking forward > to chatting with and getting to know other families in the area. > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 18, 2007 Welcome to this great group! You will definitely get support with all the great members. I have two kids. My son is 8 (ASD/hyperlexia) and my daughter is 6 (NT). Becky ----- Original Message ----- From: Sent: 10/18/2007 1:45:53 PM Subject: [ ] Hello Hello,I am new to this group, and wanted to introduce myself. My name is. My husband and I have a three year old son, Corbin, who wasrecently diagnosed with autism. We live in Canton, OH. He hasstarted preschool in our local school district through the county SKIPprogram. I am excited to be a part of this group. Looking forwardto chatting with and getting to know other families in the area. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 25, 2007 Kerri, The more information and support you can get early on should be helpful with some of the way you are feeling. Please try to learn as much as you can about BPES through your doctor(s), the internet and this group. Remember that you are not alone on this journey and that armed with good medical information and with the love and support of your family it can be a positive one. My daughter is 18 and is in her first semester at college. She is the only person on both sides of the family to be born with BPES. When she was born, I knew something was different as far as her eye structure and with her ability to open her eyes but the pediatrician told me to relax and give her time to recover from the delivery process. I continued to push with questions until I asked my son's ophthalmologist a couple of questions regarding my concerns about my daughter's " sleepy " look. (Whenever we were out in public, people always commented about how sleepy she looked due to her eye structure and the way her eyelids opened only halfway. I was also asked if her father was Asian a few times-he is not.) This doctor showed me pictures in a medical book that helped me begin to understand that what we were living with was an eye disorder that could be corrected if needed—which it was due to her lack of lid muscle tone and amblyopia. She also referred us to an ophthalmic plastic surgeon that performed lid surgeries when my daughter was 18 months and 2 years old. At the time of her initial diagnosis and treatment, the Internet was not what we know it to be today. I have felt very alone and unprepared/uneducated about what to do for my child. Since then, we moved from Texas back to the Midwest and the only follow up care has been yearly eye exams to keep her eyeglass prescriptions up to date. Initially, my daughter wore single vision glasses, and then quickly moved into bifocals. She continues to be a joy and an immense source of pride to us. We are starting to work through some additional medical issues that may or may not be associated with BPES and some of these medical concerns may have been things that we should have been working through as she grew up but our home life has been basically a happy one and school was always a place where she excelled academically. I know that she has been teased occasionally about her eyes but to the best of our abilities, we have always provided a supportive, safe, loving and respectful environment for her to grow up in. Take care. > > Hello, I am a new member. I have just learned that my 3 month old > daughter has BPES. That is about all I know. The specialist really > did not say much except I need to get a genetic panel done. There is > no one on either side of our family with this condition and I am in > shock. Any help, info, or advice would be greatly appreciated. I > have an appointment in Boston for a second opinion and an opportunity > to actually ask questions. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 31, 2008 Hi Mike and welcome. Are you seeing a rheumatologist yet? That is essential to good management. Make a couple of appointments and find a doc you really like and trust. Don't make any career decisions until you have a good treatment plan. Once you find the right drugs, there is a great chance you can figure out how to do the work you love. I've been diagnosed since Dec 06 but symptomatic since 1998. I'm on Enbrel and prednisone. Best wishes, Kate F [ ] hello hi, my name is mike, and i am new to the group. i recently was sent to a rheumatoligist concerning swelling in my joints. i was given a few shots and told to go back every week. i have been off work since dec 17th from this and it worries me. i have cut me for a living the last 15 years, and was cosidered by my peers to be quite good at what i do . have been asked to fulfull specialty orders especially around the holidays. now i cant hold a knife. i have enjoyed my career and am worried if i will be able to function my job ever again. the dr told me to start thinking about another career , which scares me, was always told to be happy with what you do or dont do it. i dont know quite what to do. ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 31, 2008 Sorry to hear your plite but it is a possibility with the right medicine you could do the same job you have always keep a possitive attude if you can. mike <meatman4369@...> wrote: hi, my name is mike, and i am new to the group. i recently was sent to a rheumatoligist concerning swelling in my joints. i was given a few shots and told to go back every week. i have been off work since dec 17th from this and it worries me. i have cut me for a living the last 15 years, and was cosidered by my peers to be quite good at what i do . have been asked to fulfull specialty orders especially around the holidays. now i cant hold a knife. i have enjoyed my career and am worried if i will be able to function my job ever again. the dr told me to start thinking about another career , which scares me, was always told to be happy with what you do or dont do it. i dont know quite what to do. --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 31, 2008 Hi Mike, I was diagnosed in November at a point when my hands were so inflamed that I could not hold eating utensils, use a knife, pen, or type. My feet, ankles, and knees made it very difficult for me to walk. I'm a good example of what the right medications for the right person can do. My inflammation is almost completely under control with Methotrexate. I am able to walk normally and can do most things with my hands again. They are still a little weak and painful at times but vastly improved and still improving. All of this to say " do not lose hope! " . With the right medications it's very possible that you will see improvement and be able to go back to your career. Seek out a good rheumatologist if you haven't already found one. Good luck! Kim > > hi, my name is mike, and i am new to the group. i recently was sent to > a rheumatoligist concerning swelling in my joints. i was given a few > shots and told to go back every week. i have been off work since dec > 17th from this and it worries me. i have cut me for a living the last > 15 years, and was cosidered by my peers to be quite good at what i do . > have been asked to fulfull specialty orders especially around the > holidays. now i cant hold a knife. i have enjoyed my career and am > worried if i will be able to function my job ever again. the dr told me > to start thinking about another career , which scares me, was always > told to be happy with what you do or dont do it. i dont know quite what > to do. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 1, 2008 --- In blepharophimosis , " h.jameson " <h.jameson@...> wrote: > > hey i am hannah and i am 13 i have bpes and i am the only one in my > family who has it. so i was wondering if there was any one who wanted > to be pen pals i am 13 and turning 14 > > well ty and have a great one > > > hannah > hello my daughter has bpes too. she is five years old. i don't know she should have surgery or not. how are you. have you done yet. because of bpes, her eye sight is not good. high power of short sighted and high astig too. the dropping eyelid block her vision. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 7, 2008 > > Looking to find a support group online. Please email. > > Thanks > Tricia Hi Tricia I just read your post and wanted to welcome u. I am only a few days new and still trying to figure out if I reply to e-mails correctly and learning gettin around, but hope this is the site your looking for. I am a fibromyalgia suffee, a s you see there are alot of R/A and both. So far I have been glad I found them it has kept me from going absolutely nuts while I wait for a day I can get out again, and feel good for 1 hr. Again welcome. Sharon Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 8, 2008 Hi Sharon. Thanks for responding. I was just looking to chat with people who are coping with RA or Fibromyalgia, I have both. I was diagnosed over ten years ago with RA. It's moderately progressive. I have been on lots of meds, before trying biologics seven years ago. I started with Enbrel, which worked for five years. Then, I went on Humara, which caused kidney infections. I am now on Orencia. Orencia is working great for me. I have had joint damage, basically from the early years when I wasn't on the right medication. I have a great Dr. I am having foot surgery this month to correct a bunion and hammer toe-not looking forward to it or the recovery. What about yourself? Love to hear from you, Tricia [ ] Re: Hello > > Looking to find a support group online. Please email. > > Thanks > Tricia Hi Tricia I just read your post and wanted to welcome u. I am only a few days new and still trying to figure out if I reply to e-mails correctly and learning gettin around, but hope this is the site your looking for. I am a fibromyalgia suffee, a s you see there are alot of R/A and both. So far I have been glad I found them it has kept me from going absolutely nuts while I wait for a day I can get out again, and feel good for 1 hr. Again welcome. Sharon ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 11, 2008 Stavros: That gives us all hope, as you were pre-Gleevec. I hope you continue to do well. With warm regards, Matt ville, FL DX January 2005 Gleevec March 2005 Tasigna November 2008 In a message dated 2/11/2008 5:41:13 A.M. Eastern Standard Time, beriatos@... writes: I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM 1996. STAVROS DXD 7/1996 ON GLIVEC FROM 2002 **************Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5 48) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 11, 2008 Hello, Stavros, It's so good to see your name again. I was wondering how these 12 years have been for you? You're not just still alive. It must have been quite a journey between your diagnosis and today. Congratulations to another CML Warrior! Welcome back, L 2001 diagnosis 800 mg Imatinib (Gleevec) 2001-2007 Current: On break from Sprycel trial for side effects [ ] hello I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM 1996. STAVROS DXD 7/1996 ON GLIVEC FROM 2002 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 11, 2008 !! It is wonderful to hear from someone who has done well for 12 years. Congratulations to you and it brings tremendous hope to all of us dealing with it now. Thank you for your great success! Sandie -- ---- stber2001 <beriatos@...> wrote: > I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM > 1996. > STAVROS > DXD 7/1996 > ON GLIVEC FROM 2002 > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 12, 2008 Tricia, Excellent advice.........But you are right...I have been diagnosed for 6 years....and it still is very hard to accept and cope with. Corinne baileyp97 wrote: > > I have been living with RA for over ten years and still go through what > new diagnosee's go through on a dailey basis. It dosen't get any easy > as the disease progresses. New challenges pop up with new flare ups. > Once you get all your blood work back and talk to your Dr. about what > medications you will go on, you will feel better. My advise is to > listen to your Dr.- the expert. Don't try to research and find > alternative meds to cope with disease. Find out how aggressive your RA > is, this will help you get an understanding of how progressive your > joint damage may get and at what rate. > > If you want to talk email. Don't feel isolated from your friends, give > them a chance to understand what it is your going through. > > Tricia > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 12, 2008 Hey Group. . . CONGRATS to you Stavros, 12 years. . .and to all my Pioneer/Warrior Brother & Sister Survivors celebrating yet another . . . more than my current. . .5 years as a SURVIVOR! Take care, I have ALL in my prayers. . . " K " " K " " I AIN'T FINISHED YET " !!! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 12, 2008 Kalimera Stavros, I am happy to see you posting again and that you are well. Stavros is # 559 in the Zero Club. Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.2 log reduction Jun/07 3.6 log reduction Sep/07 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem YM: zaviemiller Skype: Zavie _____ From: [mailto: ] On Behalf Of stber2001 Sent: February 11, 2008 5:41 AM Subject: [ ] hello I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM 1996. STAVROS DXD 7/1996 ON GLIVEC FROM 2002 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 13, 2008 > > I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM > 1996. > STAVROS > DXD 7/1996 > ON GLIVEC FROM 2002 > Hi Stavros, nice to meet you I've only had cml for 1 yr. and 4 months it's always nice to meet another cmler who has survived 12 years.I am so glad you did so well when you didn't have the gleevec in the begining. you give us newbies alot of hope. 2 years ago I visited Greece. What a beautifull country! I was born there and came to the U.S. when i was 2. Stay well Esther Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 13, 2008 Good morning Zavie, I'm back to Life after an unreasonabe time away from the group. Glad you're awake and already Online. Have a winderful Day! L. [ ] hello I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM 1996. STAVROS DXD 7/1996 ON GLIVEC FROM 2002 Quote Share this post Link to post Share on other sites
