Hello

[Guest guest]

In article <000d01be647e$58154b40$531467d1@paul4>, paul

<paul4@...> writes

> properly . I have read more studies on Crohn's than any one i've

> meet and i 'm sure you would have some excitting info too.Mail me

> back if you want to converse a little  more in depth on a chat

> place and time . Thanks for responding !!!

I'm not well read on Crohn's. Can you supply references regarding

antibiotic trial in Crohns'? ( yes, I could look this up myself - but

no time )

Thanks,

-------

Regards, Dr Graham Chiu

Prospective Internet Observational Study in Arthritis

Home Page http://www.compkarori.com/arthritis/

Contribute at http://www.compkarori.com/arthritis/contrib.htm

Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi

[Guest guest]

Hi Quick question. On the lipoic acid my sons bowel movements were great ,

he is off cycle and they are quickly back to constipated, any suggestions,

also can lipoic acid irritate the bladder, he seems to be experiencing

discomfort on urinating.

crystal

[Guest guest]

<< Hi Quick question. On the lipoic acid my sons bowel movements were great

,

he is off cycle and they are quickly back to constipated, any suggestions, >>

Sounds like maybe the constipation problem is too little bile, which can be

addressed with bile supplement (in digestive enzymes among other things),

with the supplments taurine, glycine and milk thistle, or with mineral oil

which kind of serves the same lubricating function.

<< also can lipoic acid irritate the bladder, he seems to be experiencing

discomfort on urinating. >>

I don't know about this one.

Andy

[Guest guest]

Hi Dixieturtle, I'm Judy fromIndy. I am new to the group also. Let me tell

you, I have been learning alot from just reading the different letters from

the other members of the group. About your dr., It is very diff. to find a

good one. I am seeing a new one recomd by a friend. Like you my old dr. was

just there, I didn't feel he was very inter in me much less doing me any good

but this one is at the IU med cntr. My big deal was that I did not want the

mtrx. It scares me so I am trying the diet, and exercise hoping that will

help. It's hard tho cause I have a sweet tooth. Talk to ya later and hope you

enjoy this group as much as I do Judy

[Guest guest]

Welcome to our group Sharon. There's a physician locator on my web site and

you can look up board certified rheumatologists in your area. Some of us go

to

GP's and get very good care. I hope you find a doctor that you are

comfortable with.

http://rheumatoid.arthritis.freehosting.net/Drugs%20 & %20testing.htm

a

----- Original Message -----

From: <dixieturtle67@...>

< egroups>

Sent: Saturday, October 28, 2000 3:52 AM

Subject: [ ] Hello

> Hello everyone,

> I have just recently joined this support group and I just wanted to

introduce

> my self. I am a 33 year old female and have had RA for 11 years now.

Right

> now I am on Enbrel and MTX and slowly but surely getting off of

prednisone.

> I am down to 5 mgs. per day and next week I'm going down to 2.5 mgs and

stay

> with that for a while, then I am going off for good. I was off of

prednisone

> for about a year and I lost over 100lbs. Since starting the pred again, I

> have gained almost all of that weight back. But I am determined to get

off

> pred and stay off. I also was wondering if anyone might live in NC and

could

> maybe let me know if they know of a good RA doctor. My current doctor is

not

> " up on the job " . in my opinion...he just doesn't listen to what I have to

say

> and if I call his office for any reason ( questions, etc.), he never calls

me

> back...some times his nurse does, but not usually. Well, I don't mean to

be

> rambleing on so I will end this here. I am really looking forward to

getting

> to know all of you in this group and if anyone wants to email me directly,

> then that would be fine too. Thanks for your consideration.

>

> Sincerely,

> Sharon

[Guest guest]

Sharon,

Thanks for the note. No you are not lucky either, after all you are only

33. My son now 18 had several flares of Systemic onset JRA when he was very

youn 3-6. It was really bad but he never had any others but it was before

lots of the new meds and all he was given was NSAIs.

As far as the car accident, yes it was aweful-my now 23 year old daughter,

, was driving on her permit. I was in the front seat and a, then

14 was behind me and Dan, then 11 was behind . It happened on the

way home from a Church Youth Activity at 8:30 PM. We were driving in one

direction on a rural road but near a shopping center. He crossed the line

and hit us head on. There was a police car just two cars behind us so we

got to a hospital fast. There were a couple of miraculous events involved.

First my daughter a didn't have her seatbelt on till about 100 yds

before we were hit. She felt prompted to put it on. My younger children,

then 8 and 4 were at home which I only did because they were already in pj's

and calmly watching TV. My pediatrician said that they would probably not

have survived even with seatbelts. And a woman came to the doo of the van

right after impact and stayed till everyone was in an ambulance. No name

was given-angel? I believe so. a had abdominal surgery like mine for

internal bleeding and had a fractured vetebrae in her back-end of sports

career and in a brace for a year. She will always have a weak back. Dan had

a concussion, whiplash and some neurological damage-double vision for a

month. , driver did best-a broken nose-lots of blood but didn't need

to stay in the hospital. They are all fine. a had anxiety disorder for

awhile, saw a psychiatrist and took zanax. They have all recovered. I

place the beginning of my problems at the accident but except for the soon

to be six abdominal surgeries, I really can't blame it for everything.

Yes, faith helps and I do pray that the doctors will find a way to help. It

is tough but I really am a positive person and don't dwell. I am now

limited but not dead and But for the power of God's intervention when I had

the brain hemmorage I would be. I joke with the doctors and I have quite a

few that I am a Type A person stuck in a Type Z body! I'm sending this to

the list too because others have asked about the childrn. I will check out

ArthritisInsight.com

*** Temple***

Kuddle Kritters Farm

Chelmsford, MA

dat2352@...

www.homestead.com/kuddlekraft/index.html

www.homestead.com/kuddlekrittersfarm/index.html

www.homestead.com/kuddlekrittersdairygoats/index.html

[Guest guest]

Jeanette,

Happy to hear that you are recovering so nicely from your surgery.

And, It's OK to babble. It means you are feeling up to it. It's

better than not hearing from you at all. Keep on babbling. We all

do it at times.

Take care,

Sylvia

> Hi Group:

>

> I am recovering very nicely from my surgery except for a sinus

infection.

> Tery, it looks like you are going to have surgery soon on your

ears. What is

> going on? When is this going to happen?

>

> I saw the good news too on last night's news about a cure for RA.

Too bad it

> is going to take about 5 years before we can get it though. Why

does it have

> to take so long?

>

> I see you guys had a snakes oil salesperson. Well, they are all

over the

> place preying on the vulnerable. Maybe they actually do believe in

what they

> are trying to sell though. On a newsgroup they are present all the

time

> because you do not have to join a newsgroup. You can just jump

right in.

> Maybe that is why the members are so cranky and on the defensive

side.

>

> I am suppose to get a perm today but I am not feeling quite up to

it. It

> seems my perms last for only about 2 months, 3 months very very

maximum. It

> is probably from all the drugs we take. Does anybody else have

this problem?

> I got my hair cut at a Cost Cutters on a whim 2 weeks ago and it

looked

> great for about 3 days. They all the perm went totally staight and

I look

> like heck. I am just not up to driving to my regular stylist and

sitting

> there today for 2 hours getting another perm. I am also afraid she

will be

> mad at me for going elsewhere to get my hair cut. Oh well, we have

to be

> whimsical some times right?

>

> I cannot believe how the weather here in Wisconsin is holding out.

It is

> another beautiful fall day with temperatures in the 60's. This is

not

> normal. But then our seasons have not been normal for awhile. Our

winters

> have become more mild and Spring comes early and Winter comes

later. Maybe

> by the year 3000 we will have California weather and they will have

Wisconsin

> weather. What a thought. Anyway, I am happy for the good

weather. Winter

> depresses me after New Years until Spring. I get cabin fever and

start

> bouncing off walls.

>

> I have a baby quilt I have to start working on soon. My best

friend's

> daughter is having a baby and the shower is in Milwaukee the

weekend after

> Thanksgiving. I told my friend I would make a baby quilt for her

daughter's

> baby (she is having a boy). I got the cutest material with kitties

and puppy

> dogs and a blue background. My mom likes to do these things so

maybe I can

> get her to help me. I have made them for others having babies and

they love

> them. I also got her a pair of Oskosh By Gosh bib overalls

(stripped). They

> are so cute. This is her first baby and the first grand child.

>

> Anyway, I am babbling. Talk to you all later.

>

> Love and Peace, Jeannette

[Guest guest]

:

Actually, when the services called mom yesterday, she told them she did not

want any help. Then they called me and told me. I called mom and told her

that I am too sick to be playing these games and that I was wiping my hands

clean of helping her out. I turned it over to social services at the

hospital and they have been quite supportive of me. They said they will deal

with them. Mom and dad are in denial and there is nothing I can do about

anymore. I have been told by alot of people that I need to step back and

take care of myself and my family and that my parents will have to learn the

hard way obviously. So, after a miserable yesterday, I am better today.

Social services will be talking with them tomorrow at dad's rehab and they

are aware of their circumstances. Dealing with elderly parents is really

really hard. Especially when they circumvent everything you do to help them.

Does anybody else have any experience dealing with their parents like this?

I really could use some feedback about this. I feel like a rotten daughter

for wiping my hands right now but there is nothing else I can do. It is

affecting my health. My stomach last night and today has been really bad. I

think it is now from the stress. Before it was from the drug reaction and

now it is acting up from stress. I am not even answering my phone today and

giving myself a break. If my husband calls, he rings once, hangs up and

calls back so I know it is him. What else can I do? I need to take care of

me too.

Don't you agree?

Jeannette

[Guest guest]

Jeannette,

Even though you weren't asking me, I'm butting in here . I think you need

a break. If you don't take care of yourself then you are no good to your

parents or anyone else.

You can only do so much. If someone can't or want help themselves (as much

as they can) there is nothing you can do. If there are services there that

can help your parents, let them. Tell your mom that you just can't do it.

She should understand after living with your dad and his RA all of these

years. It's ok to feel guilty, but then get over it. You count too! Tery

[Guest guest]

Tery:

Just read your e-mail to me. Thanks, I needed that. I am going to give

myself a break. Talk to you soon.

Jeannette

[Guest guest]

I'm glad to hear that things are calming down for you and your parents,

Jeannette. I'm hoping for a much better 2001 for all of us, too.

----- Original Message -----

From: <ednettieolson@...>

< egroups>

Sent: Wednesday, December 13, 2000 10:24 AM

Subject: [ ] Hello

> Hello Everybody:

>

> I just went through 72 e-mails. I have been off-line for a day or two. I

am

> up to my eye balls in family problems (mom and dad) and my own health

> problems. However, I got some things in place for mom and dad yesterday

via

> the telephone. Social Services at the hospital, Cardiac Rehab and Home

> Services are all involved and aware that mom and dad are having problems

> handling things on their own. Thus, we are getting some help for them.

It

> is amazing what only a few phone calls can do to help the situation. Poor

> mom was getting overwhelmed with taking care of everything. She has been

at

> a loss since I have been unable to get there to help her. Dad bucks her

all

> the time and it gets very frustrating for her. I had a few talks with him

> yesterday about THINGS. Hopefully we are on the right path.

>

> My stomach is finally settling down and I think the drugs are out of my

> system. What an awful nightmare. Not only did I feel physically ill, but

my

> head was feeling like it was out in orbit somewhere. And, my body

(nervous

> system) was really reacting to all the radical changes happening. I think

I

> am settled down now and am able to get some sleep.

>

> As I read all of the posts, I think how very sad it is that we are all

going

> through such hard times right now. There is our physical pain and our

> emotional pain to deal with. Losses have been very tragic. My heart goes

> out to each of you. It always seems that at this very special time of the

> year, we should be experiencing joy but hardship has no time barriers. I

am

> praying hard that we all can have a joyous Christmas and that the New Year

> brings us new found hope for a better 2001. You are all very special to

me

> and right now I cannot respond to each of you individually, but you are in

my

> thoughts and prayers. Please take care of yourselves.

>

> Much Love and Blessings,

>

> Jeannette

[Guest guest]

Hi Jeannette,

You do need to take care of yourself and you are NOT a bad daughter.

Sometimes you just have to turn everything over to someone else. Your

parents will probably be more co-operative with a stranger than with you.

Sometimes I get upset with my mom, and that doesn't make me wrong or a

terrible daughter. If you don't take care of yourself you won't be able to

help your parents at all. Probably, some of your stomach problems are

coming from stress. I do believe some of mine are from stress. A body can

only take so much and than it is going to let you know it one way or other.

So relax and stop beating yourself up. You have done all you can do and

that is all there is. I really think social services will get through to

your parents, they deal with this sort of thing all the time.

Rest today,

Me Mom

----------

> From: ednettieolson@...

> egroups

> Subject: Re: [ ] Hello

> Date: Thursday, December 14, 2000 10:56 AM

>

> :

>

> Actually, when the services called mom yesterday, she told them she did

not

> want any help. Then they called me and told me. I called mom and told

her

> that I am too sick to be playing these games and that I was wiping my

hands

> clean of helping her out. I turned it over to social services at the

> hospital and they have been quite supportive of me. They said they will

deal

> with them. Mom and dad are in denial and there is nothing I can do about

> anymore. I have been told by alot of people that I need to step back and

> take care of myself and my family and that my parents will have to learn

the

> hard way obviously. So, after a miserable yesterday, I am better today.

> Social services will be talking with them tomorrow at dad's rehab and

they

> are aware of their circumstances. Dealing with elderly parents is really

> really hard. Especially when they circumvent everything you do to help

them.

> Does anybody else have any experience dealing with their parents like

this?

> I really could use some feedback about this. I feel like a rotten

daughter

> for wiping my hands right now but there is nothing else I can do. It is

> affecting my health. My stomach last night and today has been really

bad. I

> think it is now from the stress. Before it was from the drug reaction

and

> now it is acting up from stress. I am not even answering my phone today

and

> giving myself a break. If my husband calls, he rings once, hangs up and

> calls back so I know it is him. What else can I do? I need to take care

of

> me too.

> Don't you agree?

>

> Jeannette

>

>

> Our websites: http://rheumatoid.arthritis.freehosting.net/

> http://www.rasupport.webprovider.com/

> Change subscription options:

[Guest guest]

do what you have to do and to heck with the rest.

rhoda

--- ednettieolson@... wrote:

> :

>

> Actually, when the services called mom yesterday,

> she told them she did not

> want any help. Then they called me and told me. I

> called mom and told her

> that I am too sick to be playing these games and

> that I was wiping my hands

> clean of helping her out. I turned it over to

> social services at the

> hospital and they have been quite supportive of me.

> They said they will deal

> with them. Mom and dad are in denial and there is

> nothing I can do about

> anymore. I have been told by alot of people that I

> need to step back and

> take care of myself and my family and that my

> parents will have to learn the

> hard way obviously. So, after a miserable

> yesterday, I am better today.

> Social services will be talking with them tomorrow

> at dad's rehab and they

> are aware of their circumstances. Dealing with

> elderly parents is really

> really hard. Especially when they circumvent

> everything you do to help them.

> Does anybody else have any experience dealing with

> their parents like this?

> I really could use some feedback about this. I feel

> like a rotten daughter

> for wiping my hands right now but there is nothing

> else I can do. It is

> affecting my health. My stomach last night and

> today has been really bad. I

> think it is now from the stress. Before it was from

> the drug reaction and

> now it is acting up from stress. I am not even

> answering my phone today and

> giving myself a break. If my husband calls, he

> rings once, hangs up and

> calls back so I know it is him. What else can I do?

> I need to take care of

> me too.

> Don't you agree?

>

> Jeannette

>

> -------------------------- eGroups Sponsor

>

> Our websites:

> http://rheumatoid.arthritis.freehosting.net/

> http://www.rasupport.webprovider.com/

> Change subscription options:

>

>

_______________________________________________________

[Guest guest]

Jeanette,

It must be really rough trying to help your parents when they aren't

cooperating. You DO need to take care of you. Sometimes the elderly don't

feel comfortable with strangers doing things for them. They are more

comfortable with YOU. Stand your ground, you have no choice. Hopefully

they will start to feel more comfortable with the service.

a

----- Original Message -----

From: <ednettieolson@...>

< egroups>

Sent: Thursday, December 14, 2000 10:56 AM

Subject: Re: [ ] Hello

> :

>

> Actually, when the services called mom yesterday, she told them she did

not

> want any help. Then they called me and told me. I called mom and told

her

> that I am too sick to be playing these games and that I was wiping my

hands

> clean of helping her out. I turned it over to social services at the

> hospital and they have been quite supportive of me. They said they will

deal

> with them. Mom and dad are in denial and there is nothing I can do about

> anymore. I have been told by alot of people that I need to step back and

> take care of myself and my family and that my parents will have to learn

the

> hard way obviously. So, after a miserable yesterday, I am better today.

> Social services will be talking with them tomorrow at dad's rehab and they

> are aware of their circumstances. Dealing with elderly parents is really

> really hard. Especially when they circumvent everything you do to help

them.

> Does anybody else have any experience dealing with their parents like

this?

> I really could use some feedback about this. I feel like a rotten

daughter

> for wiping my hands right now but there is nothing else I can do. It is

> affecting my health. My stomach last night and today has been really bad.

I

> think it is now from the stress. Before it was from the drug reaction and

> now it is acting up from stress. I am not even answering my phone today

and

> giving myself a break. If my husband calls, he rings once, hangs up and

> calls back so I know it is him. What else can I do? I need to take care

of

> me too.

> Don't you agree?

>

> Jeannette

>

>

> Our websites: http://rheumatoid.arthritis.freehosting.net/

> http://www.rasupport.webprovider.com/

> Change subscription options:

>

[Guest guest]

Thanks a for your feedback regarding my folks. They had a meeting with

Social Services yesterday and I do not know what was said but mom is more

cooperative today. I had another talk with her today about accepting this

service. Perhaps I got through to her. She claims all that she wants is

somebody to come and clean for her every other week. I said she needed more

than that in the event that she gets sick (which she does alot). They can

clean and/or do anything else you need for only $13.00/hr at a minimum of 2

hrs. I think that is really really reasonable considering people charge

$15.00 and up to just clean. I told her she cannot depend always on the

kindness of relatives and neighbors because that gets old after awhile. She

is now doing all the things she used to do plus everything my father used to

do and is 83+ years old. If she couldn't do it when she was younger, why is

she able to do it now? PARENTS URGH!!!!! Love em dearly but they are

impossible.

Jeannette

[Guest guest]

i am so happy to hear your dad is feeling better and will be home for the

holidays!!

[Guest guest]

Jeannette,

I was just talking to my aunt in Arizone. I just checked my mail, hope

you find some comfort in knowing that everyone here is thinking about you.

Me Mom

----------

> From: ednettieolson@...

> egroups

> Subject: [ ] Hello

> Date: Thursday, December 28, 2000 11:40 PM

>

> Hello Everybody:

>

> I can't seem to do it without you guys so I am writing tonight while I am

> again trying to get sleepy. I always go to bed tired and within 10-15

> minutes my mind starts going 90 miles per hour and my legs start moving

all

> over and so I get up and check the e-mail.

>

> Again, thank you for your kind words and thoughts. It was another

difficult

> day for me. I was crying on and off. My cousin wrote me tonight from

> Atlanta. Her father was my dad's brother and he died of cancer in about

> 1986. She talked about the stages we go through when facing the possible

> death of a loved one. I have never hit anger though and probably never

will

> as far as my dad is concerned. He is 83 and has lived a rich full life

and

> very active life. To see him so unable to do anything except eat,

shower,

> sit, use the bathroom and sleep is quite hard. He does laugh and joke

alot

> though. Maybe he is trying to help us as well. I wish you could all

know my

> dad. You would all love him as most everybody has/does.

>

> Elaine, I am glad that you made it through your surgery ok. Now the

healing

> process begins. I am glad your daughter is there for you. I hope you

will

> be up and around and feeling better soon.

>

> Michele, thank you so so much for your message. It was so so kind. You

are

> going through a great deal of your own grief. You are quite a wonder to

be

> able to extend yourself to me as you have. You too are angel on earth.

I

> wonder where you get so much love and strength from. It must be in your

> faith in God. Tell me more about your other child with downs syndrome.

I

> have said before, they are so so special as was my little cousin. He

lived

> into his 30's but died from a bowel obstruction a number of years ago and

was

> severely retarded so would not have been able to handle himself with a

> colostomy bag. It was a blessing. I remember how he used to come up and

> just hug you real hard and smile. He only learned to walk, use the

bathroom,

> dress himself and eat. He needed alot of care. He was deaf so he could

not

> learn to talk. At the time he was born, very little was done with down

> syndrome children. Perhaps he would have had a better chance if he were

born

> now.

>

> Saturday we are going up to the farm and having Christmas with Ed's

family.

> It will be good to get away for a couple of days. We are all staying at

the

> Holiday Inn and will have a pool and pizza party that night with Ed's

> brothers and sister and their families. We have some little children in

the

> family so that always makes it special. We will be back on New Years Eve

and

> are going out to dinner with my stepson and daughter-in-law and her

parents.

> I will enjoy that. Maybe we will then catch a later movie or something.

>

> Did I tell you I also got a bread maker for Christmas? I am so so

anxious to

> try out my first loaf of bread. I love homemade bread. I will probably

eat

> the whole loaf myself. Ed likes that awful store white bread with all

the

> preservatives that never gets moldy. I cannot help to think it must be

doing

> horrible things to your insides if it never gets moldy. It must be

filled

> with chemicals.

>

> Has anybody ever tried the diet plan? I was it one late

> night on an info commerical. I love that guy. He is so full of positive

> energy and seems to really care about people. His plan seems to be so

easy

> like Weight Watchers used to be and only a fraction of the cost. WW

meetings

> are now $9.95/week. I think it is way too much plus I do not have a

nearby

> meeting to attend. I remember when the cost was $4.00/week and I thought

> that was alot for what you get. I also hate weighing in every week. It

can

> be demoralizing. The question is, can you lose weight while still on

> Prednisone? Has anybody had success with this?

>

> Well, I guess that is all. Good night all.

>

> Love, Jeannette

>

>

> Our websites: http://rheumatoid.arthritis.freehosting.net/

> http://www.rasupport.webprovider.com/

> Change subscription options:

[Guest guest]

Dear Jeanette,

Such a few weeks ago I felt as if I had not slept more than two hours at a

stretch for years. As I have mentioned before, I take Ambian every night.

(My doctor feels Ambian is the safest of the prescription medications).

Still, I never slept long with one 10mg pill. One of my friends bugged me

constantly about my caffeine drinks. I never drank coffee, just soda! I

cut it out -- almost. I am sleeping so much better. I had forgotten how it

felt to feel drowsy. Now and then I walk in the morning and stop by

Mcs. Instead of a medium diet Coke, like I used to have most days, I

ask for two thirds carbonated water and add a little ice tea or coke. To

get my friend, Betty, off my back, I researched caffeine and found that it

has a half life just like some prescription drugs. Hope I don't fall off

the wagon! (I still take Ambian, but get drowsy without it). My Mom used

to drink black coffee all day and fell asleep by 9:00.

As far as the legs flopping all over, for some crazy reason the lazy leg

syndrome got a lot better after the RA and the pain of RA blocked out the

pain of fibro. Sometimes in the movies my legs would move so much I would

have to stand up --people behind me loved that! I always ate candy at

movies. I wonder if sugar had anything to do with anything. My

granddaughter's legs move in her sleep. I hope it goes away. One day some

smart researcher will read all our posts and realize that all these maladies

go together!

Hope you are feeling better and that your Dad is not suffering.

Sincerely,

Patsy

-----Original Message-----

From: ednettieolson@... [mailto:ednettieolson@...]

Sent: Thursday, December 28, 2000 8:40 PM

egroups

Subject: [ ] Hello

Hello Everybody:

I can't seem to do it without you guys so I am writing tonight while I am

again trying to get sleepy. I always go to bed tired and within 10-15

minutes my mind starts going 90 miles per hour and my legs start moving all

over and so I get up and check the e-mail.

Again, thank you for your kind words and thoughts. It was another difficult

day for me. I was crying on and off. My cousin wrote me tonight from

Atlanta. Her father was my dad's brother and he died of cancer in about

1986. She talked about the stages we go through when facing the possible

death of a loved one. I have never hit anger though and probably never will

as far as my dad is concerned. He is 83 and has lived a rich full life and

very active life. To see him so unable to do anything except eat, shower,

sit, use the bathroom and sleep is quite hard. He does laugh and joke alot

though. Maybe he is trying to help us as well. I wish you could all know

my

dad. You would all love him as most everybody has/does.

Elaine, I am glad that you made it through your surgery ok. Now the healing

process begins. I am glad your daughter is there for you. I hope you will

be up and around and feeling better soon.

Michele, thank you so so much for your message. It was so so kind. You are

going through a great deal of your own grief. You are quite a wonder to be

able to extend yourself to me as you have. You too are angel on earth. I

wonder where you get so much love and strength from. It must be in your

faith in God. Tell me more about your other child with downs syndrome. I

have said before, they are so so special as was my little cousin. He lived

into his 30's but died from a bowel obstruction a number of years ago and

was

severely retarded so would not have been able to handle himself with a

colostomy bag. It was a blessing. I remember how he used to come up and

just hug you real hard and smile. He only learned to walk, use the

bathroom,

dress himself and eat. He needed alot of care. He was deaf so he could not

learn to talk. At the time he was born, very little was done with down

syndrome children. Perhaps he would have had a better chance if he were

born

now.

Saturday we are going up to the farm and having Christmas with Ed's family.

It will be good to get away for a couple of days. We are all staying at the

Holiday Inn and will have a pool and pizza party that night with Ed's

brothers and sister and their families. We have some little children in the

family so that always makes it special. We will be back on New Years Eve

and

are going out to dinner with my stepson and daughter-in-law and her parents.

I will enjoy that. Maybe we will then catch a later movie or something.

Did I tell you I also got a bread maker for Christmas? I am so so anxious

to

try out my first loaf of bread. I love homemade bread. I will probably eat

the whole loaf myself. Ed likes that awful store white bread with all the

preservatives that never gets moldy. I cannot help to think it must be

doing

horrible things to your insides if it never gets moldy. It must be filled

with chemicals.

Has anybody ever tried the diet plan? I was it one late

night on an info commerical. I love that guy. He is so full of positive

energy and seems to really care about people. His plan seems to be so easy

like Weight Watchers used to be and only a fraction of the cost. WW

meetings

are now $9.95/week. I think it is way too much plus I do not have a nearby

meeting to attend. I remember when the cost was $4.00/week and I thought

that was alot for what you get. I also hate weighing in every week. It can

be demoralizing. The question is, can you lose weight while still on

Prednisone? Has anybody had success with this?

Well, I guess that is all. Good night all.

Love, Jeannette

Our websites: http://rheumatoid.arthritis.freehosting.net/

http://www.rasupport.webprovider.com/

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[Guest guest]

weight watchers seemed to be a little better, when i was little they would

ridicule you if you gained. they don't do that anymore. but it is too

expensive. the last time i did it, i lost 25 lbs. don't take prendisone

though. if coarse that was a couple years ago and i found it again!! might

have even brought a friend or 2!! kathy

[Guest guest]

Hi Kathy:

What do you think of Simons diet?

Jeannette

[Guest guest]

Hi Patsy:

Thanks for your long letter today. My dr. tried me on Ambien but it only

made me more restless. I never drink caffeine either. My father and I both

share the same restless leg syndome and insomnia. Some nights are better

than others. If I am feeling less stressed or really really tired I go to

sleep. Otherwise it is up late and bouncing off walls. This has been going

on for years and years. I take clonopin but usually have to take more than

my recommended dose and it takes awhile before it gets into my blood stream

to make me sleepy. My husband has the patience of a saint to put up with me.

He can fall asleep in 2 seconds. Drives me crazy. Before my CPAP machine,

however, I got to the point where I was losing so much sleep from my sleep

apnea that I would get up in the a.m. and sit down in a chair and fall asleep

again. Now I have too too much energy at night. I am practically nocturnal.

How are things with you? Are you having a good holiday week? Hope so.

Happy New Year if I do not talk to you.

Jeannette

[Guest guest]

i'v never actually tried it. my friend ordered the deal a meal, but i don't

think she ever tried it either. kathy

[Guest guest]

Kathy:

I think now all they have are these little flaps you close each time you eat

something in that food group that day. When all the flaps are closed, that's

it for the day. No more food. Sounds so so easy.

Jeannette

[Guest guest]

i'm not worried about closing the flaps, it's the refrigerator door i'm more

concerned with!!! kathy

[Guest guest]

Wilkommen Wolfgang,

I'm glad you read English because " Ich sprechen ein bischen deutsch aber nicht

so viel. " We have several on the list for whom I believe English is not their

first language.. Hope you find the list helpful. I'm sure we will learn from

you as well. We all ask lots of questions and learn from each other. Most of

us have children, relatives, or friends with autism or Asperger's and believe

mercury or other heavy metals from vaccines and other sources caused or

contributed to the autism or Asperger's. Some of us have had mercury poisoning

ourselves from dental fillings or other sources.

S

--------------------------------------------------------------

Hello Group

My Name is Wolfgang i come from Germany an i am 27 Years i Have Asperger Syndrom

..

I hope i can find Help in this Group

Sorry my writing in English is not so good reading is not a Problem

Wolfgang