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Thanks for the info Dave.

Debbie

Dave Shelden <wholehealthawareness@...> wrote:

A cyst could cause that kind of pain if putting pressure on either

nerve or blood flow but this does not mean that is what is causing the pain.

While a cyst on the liver can be relatively harmless, it is an abnormal mass and

would indicate a predisposition to things like gall stones, fatty lipomas,

kidney stones, etc. If they cannot determine from the ultrasounds and your past

imaging of the cyst that the spot they have found are one and the same, They are

going to want the CT. Good idea. -D

----- Original Message -----

From: craft_scents<mailto:craft_scents@...>

gallstones <mailto:gallstones >

Sent: Thursday, October 11, 2007 3:48 PM

Subject: Hello

Hello

Well i got my ultrasound test back and my gallbladder is fine, they

did find a spot on my liver and i reminded my doctor that i do have a

cysts on my liver that i have probably had since birth so he was going

to go over the two ultrasounds to see if that is what it is, but i

have alot of pain and right shoulder pain which he said i could have

because of my liver, but would cysts cause pain like that? He wanted

me to get a ct scan but he said he would check the ultrasounds first

so i will call him in the morning..Any take on this?

Debbie

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Welcome, Ross! I'm glad you found us! This is a group of great

people - mostly other parents who are willing to share what they know -

a great support group! They've helped me a lot and I hope they are

able to help you, too. My son, Bobby, is 8 years old, diagnosed with

autism at age 3. Chris

>

> Hello friends, my name is Ross Vizzini. I live in Broadview Heights

with my wife and four children. My yongest son Marco, who is

four was diagnosed with ASD on June 6th 2007. Thank you for accepting

us into your group.

>

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Welcome Ross! I live in Hudson and have two kids with the oldest dx'd w/ ASD and hyperlexia. This is a wonderful group - you will get a lot of info and support here.

Becky

----- Original Message -----

From: vizzinib

Sent: 10/11/2007 12:12:10 PM

Subject: [ ] hello

Hello friends, my name is Ross Vizzini. I live in Broadview Heights with my wife and four children. My yongest son Marco, who is four was diagnosed with ASD on June 6th 2007. Thank you for accepting us into your group.

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Hey, Becky!

It's me, Christie, down the street! I didn't know you were in this

group. Ha! It's been very informative...nice to hear all the input. By

the way, Drew has just recently been mainstreamed into a regular

preschool now. Amazing! It's going well so far. I haven't mentioned to

the teachers that he has ASD and hyperlexia yet, and I don't think

they'll ever figure it out. Well, they'll discover that he can read...

I hope you're doing well. I know you're loving that new dog of yours!

He's really cute, and I hope your kids are enjoying him too.

I'll see ya soon,

Christie

Becky wrote:

>

> Welcome Ross! I live in Hudson and have two kids with the oldest dx'd

> w/ ASD and hyperlexia. This is a wonderful group - you will get a lot

> of info and support here.

> Becky

>

> ----- Original Message -----

> *From:* vizzinib <mailto:vizzinib@...>

> ** <mailto: >

> *Sent:* 10/11/2007 12:12:10 PM

> *Subject:* [ ] hello

>

> Hello friends, my name is Ross Vizzini. I live in Broadview

> Heights with my wife and four children. My yongest son

> Marco, who is four was diagnosed with ASD on June 6th 2007. Thank

> you for accepting us into your group.

>

>

>

>

>

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Hi Christie! Small world! LOL! This is one of the groups I told you about

last summer. What school is Drew in? Is he still on an IEP?

Becky

> [Original Message]

> From: Christie Funderburk <sunshinefun@...>

> < >

> Date: 10/11/2007 11:47:18 PM

> Subject: Re: [ ] hello

>

> Hey, Becky!

>

> It's me, Christie, down the street! I didn't know you were in this

> group. Ha! It's been very informative...nice to hear all the input. By

> the way, Drew has just recently been mainstreamed into a regular

> preschool now. Amazing! It's going well so far. I haven't mentioned to

> the teachers that he has ASD and hyperlexia yet, and I don't think

> they'll ever figure it out. Well, they'll discover that he can read...

>

> I hope you're doing well. I know you're loving that new dog of yours!

> He's really cute, and I hope your kids are enjoying him too.

>

> I'll see ya soon,

> Christie

>

>

>

> Becky wrote:

> >

> > Welcome Ross! I live in Hudson and have two kids with the oldest dx'd

> > w/ ASD and hyperlexia. This is a wonderful group - you will get a lot

> > of info and support here.

> > Becky

> >

> > ----- Original Message -----

> > *From:* vizzinib <mailto:vizzinib@...>

> > ** <mailto: >

> > *Sent:* 10/11/2007 12:12:10 PM

> > *Subject:* [ ] hello

> >

> > Hello friends, my name is Ross Vizzini. I live in Broadview

> > Heights with my wife and four children. My yongest son

> > Marco, who is four was diagnosed with ASD on June 6th 2007. Thank

> > you for accepting us into your group.

> >

> >

> >

> >

> >

>

>

>

> *Important Notes and links for Databases:

>

> ~~~ ~~~ ~~~ ~~~

> To Lurk; is to Learn. To participate; is to help others learn. Share

what you know.

>

> Let me know if you have any concerns or needs -

> - n DMHelmick12@...

>

> ~~~ ~~~ ~~~ ~~~

> ABA Contact List:

>

> This list is provided for both parents seeking ABA and ABA personnel to

list their contact information. This list is not for commercial or

salicitation purposes.

>

> Parents seeking ABA personnel must ask questions or interview desired

personnel as this list is only a reference and not an approved provider

list.

>

> * You’ll need to sign into after clicking on a link.

> To see the list:

>

/database?method=reportRows & tbl

=5 & sortBy=1 & sortDir=down & startAt= & prntRpt=1

>

> ABA personnel add contact info:

/database?method=addRecord & tbl=

5

>

> To Edit your contact Info:

>

>

/database?method=reportRows & tbl

=5

>

> ~~~ ~~~ ~~~ ~~~

>

> Help raise money for ASO (Autism Society of Akron, Ohio). Just by using

a charity based search engine like Goodsearch.com Search for anything you

need info on. Only 2 steps: 1. Just go to www.goodsearch.com 2. scroll

down and type in Autism Society of Ohio and hit verify. Then type in your

search word. heres the link: http://www.goodsearch.com

>

> ~~~ ~~~ ~~~ ~~~ ~~~

> Our Parent Contact list - see a printable list or add your contact info:

>

> See the printable list:

/database?method=reportRows & tbl

=2 & sortBy=1 & sortDir=down & startAt= & prntRpt=1

>

> Add your contact info here:

/database?method=addRecord & tbl=

2

>

> ~~~ ~~~ ~~~ ~~~ ~~~

> is a networking and support group

> of " Parent to Parent for Autism " .

> Website: http://hometown.aol.com/parentschat/homepage.html

>

> ~~~ ~~~ ~~~ ~~

>

> See More info below for this group's other Links.

>

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Well my doctor told me that the last ultrasound showing my cysts on my liver is

different from this new ultrasound, it is not in the sam eplace as my cysts. Het

thinks it could be a hemangioma and i am scheuled for a ct scan on Monday. Can

anything be done to treat a hemangioma naturally? I still have some pain.

Debbie

Dave Shelden <wholehealthawareness@...> wrote:

A cyst could cause that kind of pain if putting pressure on either

nerve or blood flow but this does not mean that is what is causing the pain.

While a cyst on the liver can be relatively harmless, it is an abnormal mass and

would indicate a predisposition to things like gall stones, fatty lipomas,

kidney stones, etc. If they cannot determine from the ultrasounds and your past

imaging of the cyst that the spot they have found are one and the same, They are

going to want the CT. Good idea. -D

----- Original Message -----

From: craft_scents<mailto:craft_scents@...>

gallstones <mailto:gallstones >

Sent: Thursday, October 11, 2007 3:48 PM

Subject: Hello

Hello

Well i got my ultrasound test back and my gallbladder is fine, they

did find a spot on my liver and i reminded my doctor that i do have a

cysts on my liver that i have probably had since birth so he was going

to go over the two ultrasounds to see if that is what it is, but i

have alot of pain and right shoulder pain which he said i could have

because of my liver, but would cysts cause pain like that? He wanted

me to get a ct scan but he said he would check the ultrasounds first

so i will call him in the morning..Any take on this?

Debbie

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Hemangiomas on the liver are very rarely a problem except large ones in infants.

Doubtful your pain is from one. You probably have gallbladder pain from

congestion. Since the spot is different from your cyst it is a very good idea

to have the CT. All the best, -Dave

----- Original Message -----

From: Deborah Lessard<mailto:craft_scents@...>

gallstones <mailto:gallstones >

Sent: Friday, October 12, 2007 10:42 AM

Subject: Re: Hello

Well my doctor told me that the last ultrasound showing my cysts on my liver

is different from this new ultrasound, it is not in the sam eplace as my cysts.

Het thinks it could be a hemangioma and i am scheuled for a ct scan on Monday.

Can anything be done to treat a hemangioma naturally? I still have some pain.

Debbie

Dave Shelden

<wholehealthawareness@...<mailto:wholehealthawareness@...>> wrote:

A cyst could cause that kind of pain if putting pressure on either nerve or

blood flow but this does not mean that is what is causing the pain. While a cyst

on the liver can be relatively harmless, it is an abnormal mass and would

indicate a predisposition to things like gall stones, fatty lipomas, kidney

stones, etc. If they cannot determine from the ultrasounds and your past imaging

of the cyst that the spot they have found are one and the same, They are going

to want the CT. Good idea. -D

----- Original Message -----

From:

craft_scents<mailto:craft_scents@...<mailto:craft_scents@...>>

To:

gallstones <mailto:gallstones ><mailto:gallstones@\

<mailto:gallstones >>

Sent: Thursday, October 11, 2007 3:48 PM

Subject: Hello

Hello

Well i got my ultrasound test back and my gallbladder is fine, they

did find a spot on my liver and i reminded my doctor that i do have a

cysts on my liver that i have probably had since birth so he was going

to go over the two ultrasounds to see if that is what it is, but i

have alot of pain and right shoulder pain which he said i could have

because of my liver, but would cysts cause pain like that? He wanted

me to get a ct scan but he said he would check the ultrasounds first

so i will call him in the morning..Any take on this?

Debbie

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Becky ~ Yes, he's still on an IEP...in fact, our annual meeting is next

week. Drew was at Whole Child Therapy, yet they have closed. So, we'll

have to figure out what to do now. ~ Christie

Becky wrote:

> Hi Christie! Small world! LOL! This is one of the groups I told you about

> last summer. What school is Drew in? Is he still on an IEP?

> Becky

>

>

>

>> [Original Message]

>> From: Christie Funderburk <sunshinefun@...>

>> < >

>> Date: 10/11/2007 11:47:18 PM

>> Subject: Re: [ ] hello

>>

>> Hey, Becky!

>>

>> It's me, Christie, down the street! I didn't know you were in this

>> group. Ha! It's been very informative...nice to hear all the input. By

>> the way, Drew has just recently been mainstreamed into a regular

>> preschool now. Amazing! It's going well so far. I haven't mentioned to

>> the teachers that he has ASD and hyperlexia yet, and I don't think

>> they'll ever figure it out. Well, they'll discover that he can read...

>>

>> I hope you're doing well. I know you're loving that new dog of yours!

>> He's really cute, and I hope your kids are enjoying him too.

>>

>> I'll see ya soon,

>> Christie

>>

>>

>>

>> Becky wrote:

>>

>>> Welcome Ross! I live in Hudson and have two kids with the oldest dx'd

>>> w/ ASD and hyperlexia. This is a wonderful group - you will get a lot

>>> of info and support here.

>>> Becky

>>>

>>> ----- Original Message -----

>>> *From:* vizzinib <mailto:vizzinib@...>

>>> ** <mailto: >

>>> *Sent:* 10/11/2007 12:12:10 PM

>>> *Subject:* [ ] hello

>>>

>>> Hello friends, my name is Ross Vizzini. I live in Broadview

>>> Heights with my wife and four children. My yongest son

>>> Marco, who is four was diagnosed with ASD on June 6th 2007. Thank

>>> you for accepting us into your group.

>>>

>>>

>>>

>>>

>>>

>>>

>>

>> *Important Notes and links for Databases:

>>

>> ~~~ ~~~ ~~~ ~~~

>> To Lurk; is to Learn. To participate; is to help others learn. Share

>>

> what you know.

>

>> Let me know if you have any concerns or needs -

>> - n DMHelmick12@...

>>

>> ~~~ ~~~ ~~~ ~~~

>> ABA Contact List:

>>

>> This list is provided for both parents seeking ABA and ABA personnel to

>>

> list their contact information. This list is not for commercial or

> salicitation purposes.

>

>> Parents seeking ABA personnel must ask questions or interview desired

>>

> personnel as this list is only a reference and not an approved provider

> list.

>

>> * You’ll need to sign into after clicking on a link.

>> To see the list:

>>

>>

> /database?method=reportRows & tbl

> =5 & sortBy=1 & sortDir=down & startAt= & prntRpt=1

>

>> ABA personnel add contact info:

>>

> /database?method=addRecord & tbl=

> 5

>

>> To Edit your contact Info:

>>

>>

>>

> /database?method=reportRows & tbl

> =5

>

>> ~~~ ~~~ ~~~ ~~~

>>

>> Help raise money for ASO (Autism Society of Akron, Ohio). Just by using

>>

> a charity based search engine like Goodsearch.com Search for anything you

> need info on. Only 2 steps: 1. Just go to www.goodsearch.com 2. scroll

> down and type in Autism Society of Ohio and hit verify. Then type in your

> search word. heres the link: http://www.goodsearch.com

>

>> ~~~ ~~~ ~~~ ~~~ ~~~

>> Our Parent Contact list - see a printable list or add your contact info:

>>

>> See the printable list:

>>

> /database?method=reportRows & tbl

> =2 & sortBy=1 & sortDir=down & startAt= & prntRpt=1

>

>> Add your contact info here:

>>

> /database?method=addRecord & tbl=

> 2

>

>> ~~~ ~~~ ~~~ ~~~ ~~~

>> is a networking and support group

>> of " Parent to Parent for Autism " .

>> Website: http://hometown.aol.com/parentschat/homepage.html

>>

>> ~~~ ~~~ ~~~ ~~

>>

>> See More info below for this group's other Links.

>>

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Hi ,

Nice to meet you and welcome to our group! I was born in Canton and we

moved from there when I was around the age of 11. My family lived

close to the Canton/Akron airport area. My Father and brother still

live there but now near Massilon.

We have a few members out that way. Hope you can connect with a few

people in the group. Check our Members contact list. You will find

the link for the list at the bottom of every individual email that goes

through the forum.

Yours,

n

Moderator/

Parent to Parent for Autism.

http://hometown.aol.com/parentschat/homepage.html

>

> Hello,

>

> I am new to this group, and wanted to introduce myself. My name is

> . My husband and I have a three year old son, Corbin, who was

> recently diagnosed with autism. We live in Canton, OH. He has

> started preschool in our local school district through the county SKIP

> program. I am excited to be a part of this group. Looking forward

> to chatting with and getting to know other families in the area.

>

> ;)

>

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Welcome to this great group! You will definitely get support with all the great members. I have two kids. My son is 8 (ASD/hyperlexia) and my daughter is 6 (NT).

Becky

----- Original Message -----

From:

Sent: 10/18/2007 1:45:53 PM

Subject: [ ] Hello

Hello,I am new to this group, and wanted to introduce myself. My name is. My husband and I have a three year old son, Corbin, who wasrecently diagnosed with autism. We live in Canton, OH. He hasstarted preschool in our local school district through the county SKIPprogram. I am excited to be a part of this group. Looking forwardto chatting with and getting to know other families in the area. ;)

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  • 1 month later...

Kerri,

The more information and support you can get early on should be

helpful with some of the way you are feeling. Please try to learn as

much as you can about BPES through your doctor(s), the internet and

this group. Remember that you are not alone on this journey and that

armed with good medical information and with the love and support of

your family it can be a positive one.

My daughter is 18 and is in her first semester at college. She is the

only person on both sides of the family to be born with BPES. When

she was born, I knew something was different as far as her eye

structure and with her ability to open her eyes but the pediatrician

told me to relax and give her time to recover from the delivery

process. I continued to push with questions until I asked my son's

ophthalmologist a couple of questions regarding my concerns about my

daughter's " sleepy " look. (Whenever we were out in public, people

always commented about how sleepy she looked due to her eye structure

and the way her eyelids opened only halfway. I was also asked if her

father was Asian a few times-he is not.) This doctor showed me

pictures in a medical book that helped me begin to understand that

what we were living with was an eye disorder that could be corrected

if needed—which it was due to her lack of lid muscle tone and

amblyopia. She also referred us to an ophthalmic plastic surgeon that

performed lid surgeries when my daughter was 18 months and 2 years

old. At the time of her initial diagnosis and treatment, the Internet

was not what we know it to be today. I have felt very alone and

unprepared/uneducated about what to do for my child.

Since then, we moved from Texas back to the Midwest and the only

follow up care has been yearly eye exams to keep her eyeglass

prescriptions up to date. Initially, my daughter wore single vision

glasses, and then quickly moved into bifocals.

She continues to be a joy and an immense source of pride to us. We

are starting to work through some additional medical issues that may

or may not be associated with BPES and some of these medical concerns

may have been things that we should have been working through as she

grew up but our home life has been basically a happy one and school

was always a place where she excelled academically. I know that she

has been teased occasionally about her eyes but to the best of our

abilities, we have always provided a supportive, safe, loving and

respectful environment for her to grow up in.

Take care.

>

> Hello, I am a new member. I have just learned that my 3 month old

> daughter has BPES. That is about all I know. The specialist

really

> did not say much except I need to get a genetic panel done. There

is

> no one on either side of our family with this condition and I am in

> shock. Any help, info, or advice would be greatly appreciated. I

> have an appointment in Boston for a second opinion and an

opportunity

> to actually ask questions.

>

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  • 2 months later...

Hi Mike and welcome. Are you seeing a rheumatologist yet? That is essential to

good management. Make a couple of appointments and find a doc you really like

and trust. Don't make any career decisions until you have a good treatment

plan. Once you find the right drugs, there is a great chance you can figure out

how to do the work you love. I've been diagnosed since Dec 06 but symptomatic

since 1998. I'm on Enbrel and prednisone. Best wishes, Kate F

[ ] hello

hi, my name is mike, and i am new to the group. i recently was sent to

a rheumatoligist concerning swelling in my joints. i was given a few

shots and told to go back every week. i have been off work since dec

17th from this and it worries me. i have cut me for a living the last

15 years, and was cosidered by my peers to be quite good at what i do .

have been asked to fulfull specialty orders especially around the

holidays. now i cant hold a knife. i have enjoyed my career and am

worried if i will be able to function my job ever again. the dr told me

to start thinking about another career , which scares me, was always

told to be happy with what you do or dont do it. i dont know quite what

to do.

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Search.

http://tools.search./newsearch/category.php?category=shopping

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Sorry to hear your plite but it is a possibility with the right medicine you

could do the same job you have always keep a possitive attude if you can.

mike <meatman4369@...> wrote: hi, my name is mike, and i am new

to the group. i recently was sent to

a rheumatoligist concerning swelling in my joints. i was given a few

shots and told to go back every week. i have been off work since dec

17th from this and it worries me. i have cut me for a living the last

15 years, and was cosidered by my peers to be quite good at what i do .

have been asked to fulfull specialty orders especially around the

holidays. now i cant hold a knife. i have enjoyed my career and am

worried if i will be able to function my job ever again. the dr told me

to start thinking about another career , which scares me, was always

told to be happy with what you do or dont do it. i dont know quite what

to do.

---------------------------------

Looking for last minute shopping deals? Find them fast with Search.

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Hi Mike,

I was diagnosed in November at a point when my hands were so inflamed

that I could not hold eating utensils, use a knife, pen, or type. My

feet, ankles, and knees made it very difficult for me to walk.

I'm a good example of what the right medications for the right person

can do. My inflammation is almost completely under control with

Methotrexate. I am able to walk normally and can do most things with

my hands again. They are still a little weak and painful at times but

vastly improved and still improving.

All of this to say " do not lose hope! " . With the right medications

it's very possible that you will see improvement and be able to go

back to your career.

Seek out a good rheumatologist if you haven't already found one.

Good luck!

Kim

>

> hi, my name is mike, and i am new to the group. i recently was sent to

> a rheumatoligist concerning swelling in my joints. i was given a few

> shots and told to go back every week. i have been off work since dec

> 17th from this and it worries me. i have cut me for a living the last

> 15 years, and was cosidered by my peers to be quite good at what i do .

> have been asked to fulfull specialty orders especially around the

> holidays. now i cant hold a knife. i have enjoyed my career and am

> worried if i will be able to function my job ever again. the dr told me

> to start thinking about another career , which scares me, was always

> told to be happy with what you do or dont do it. i dont know quite what

> to do.

>

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--- In blepharophimosis , " h.jameson " <h.jameson@...>

wrote:

>

> hey i am hannah and i am 13 i have bpes and i am the only one in my

> family who has it. so i was wondering if there was any one who wanted

> to be pen pals i am 13 and turning 14

>

> well ty and have a great one

>

>

> hannah

>

hello

my daughter has bpes too. she is five years old. i don't know she

should have surgery or not. how are you. have you done yet. because of

bpes, her eye sight is not good. high power of short sighted and high

astig too. the dropping eyelid block her vision.

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>

> Looking to find a support group online. Please email.

>

> Thanks

> Tricia

Hi Tricia I just read your post and wanted to welcome u. I am only a

few days new and still trying to figure out if I reply to e-mails

correctly and learning gettin around, but hope this is the site your

looking for. I am a fibromyalgia suffee, a s you see there are alot of

R/A and both. So far I have been glad I found them it has kept me from

going absolutely nuts while I wait for a day I can get out again, and

feel good for 1 hr. Again welcome. Sharon

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Hi Sharon. Thanks for responding. I was just looking to chat with people who

are coping with RA or Fibromyalgia, I have both. I was diagnosed over ten years

ago with RA. It's moderately progressive. I have been on lots of meds, before

trying biologics seven years ago. I started with Enbrel, which worked for five

years. Then, I went on Humara, which caused kidney infections. I am now on

Orencia. Orencia is working great for me. I have had joint damage, basically

from the early years when I wasn't on the right medication. I have a great Dr.

I am having foot surgery this month to correct a bunion and hammer toe-not

looking forward to it or the recovery.

What about yourself?

Love to hear from you,

Tricia

[ ] Re: Hello

>

> Looking to find a support group online. Please email.

>

> Thanks

> Tricia

Hi Tricia I just read your post and wanted to welcome u. I am only a

few days new and still trying to figure out if I reply to e-mails

correctly and learning gettin around, but hope this is the site your

looking for. I am a fibromyalgia suffee, a s you see there are alot of

R/A and both. So far I have been glad I found them it has kept me from

going absolutely nuts while I wait for a day I can get out again, and

feel good for 1 hr. Again welcome. Sharon

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

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Stavros:

That gives us all hope, as you were pre-Gleevec. I hope

you continue to do well.

With warm regards,

Matt

ville, FL

DX January 2005

Gleevec March 2005

Tasigna November 2008

In a message dated 2/11/2008 5:41:13 A.M. Eastern Standard Time,

beriatos@... writes:

I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM

1996.

STAVROS

DXD 7/1996

ON GLIVEC FROM 2002

**************Biggest Grammy Award surprises of all time on AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

5

48)

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Hello, Stavros,

It's so good to see your name again. I was wondering how these 12 years have

been for you? You're not just still alive. It must have been quite a journey

between your diagnosis and today. Congratulations to another CML Warrior!

Welcome back,

L

2001 diagnosis

800 mg Imatinib (Gleevec) 2001-2007

Current: On break from Sprycel trial for

side effects

[ ] hello

I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM

1996.

STAVROS

DXD 7/1996

ON GLIVEC FROM 2002

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!! It is wonderful to hear from someone who has done well for 12 years.

Congratulations to you and it brings tremendous hope to all of us dealing with

it now. Thank you for your great success!

Sandie

--

---- stber2001 <beriatos@...> wrote:

> I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM

> 1996.

> STAVROS

> DXD 7/1996

> ON GLIVEC FROM 2002

>

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Tricia,

Excellent advice.........But you are right...I have been diagnosed for 6

years....and

it still is very hard to accept and cope with.

Corinne

baileyp97 wrote:

>

> I have been living with RA for over ten years and still go through what

> new diagnosee's go through on a dailey basis. It dosen't get any easy

> as the disease progresses. New challenges pop up with new flare ups.

> Once you get all your blood work back and talk to your Dr. about what

> medications you will go on, you will feel better. My advise is to

> listen to your Dr.- the expert. Don't try to research and find

> alternative meds to cope with disease. Find out how aggressive your RA

> is, this will help you get an understanding of how progressive your

> joint damage may get and at what rate.

>

> If you want to talk email. Don't feel isolated from your friends, give

> them a chance to understand what it is your going through.

>

> Tricia

>

>

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Hey Group. . .

CONGRATS to you Stavros, 12 years. . .and to all my Pioneer/Warrior Brother &

Sister Survivors celebrating yet another . . . more than my current. . .5 years

as a SURVIVOR!

Take care, I have ALL in my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Kalimera Stavros,

I am happy to see you posting again and that you are well.

Stavros is # 559 in the Zero Club.

Zavie

Zavie (age 69)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.2 log reduction Jun/07

3.6 log reduction Sep/07

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of

stber2001

Sent: February 11, 2008 5:41 AM

Subject: [ ] hello

I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM

1996.

STAVROS

DXD 7/1996

ON GLIVEC FROM 2002

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>

> I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM

> 1996.

> STAVROS

> DXD 7/1996

> ON GLIVEC FROM 2002

>

Hi Stavros, nice to meet you I've only had cml for 1 yr. and 4

months it's always nice to meet another cmler who has survived 12

years.I am so glad you did so well when you didn't have the gleevec in

the begining. you give us newbies alot of hope. 2 years ago I visited

Greece. What a beautifull country! I was born there and came to the

U.S. when i was 2. Stay well

Esther

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Good morning Zavie,

I'm back to Life after an unreasonabe time away from the group. Glad you're

awake and already Online.

Have a winderful Day!

L.

[ ] hello

I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM

1996.

STAVROS

DXD 7/1996

ON GLIVEC FROM 2002

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